Tag: Fibromyalgia

An in-depth guide on Fibromyalgia, covering its symptoms, causes, treatments, and tips for managing this chronic condition effectively.

Understanding Fibromyalgia

Outline for “Fibromyalgia”

Heading	Sub-Headings
H1: Understanding Fibromyalgia
H2: What is Fibromyalgia?	Definition of Fibromyalgia
	History and Discovery of Fibromyalgia
H2: Symptoms of Fibromyalgia	Common Symptoms
	Uncommon Symptoms
	Fibromyalgia Pain
	Cognitive Symptoms (Fibro Fog)
	Emotional Symptoms
H2: Causes of Fibromyalgia	Genetic Factors
	Environmental Triggers
	Biological Factors
H2: Diagnosing Fibromyalgia	Diagnostic Criteria
	Diagnostic Tests
	Differential Diagnosis
H2: Treatment Options for Fibromyalgia	Medications
	Physical Therapy
	Alternative Therapies
	Lifestyle Modifications
H2: Medications for Fibromyalgia	Pain Relievers
	Antidepressants
	Anti-seizure Drugs
H2: Non-Pharmacological Treatments	Cognitive Behavioral Therapy
	Exercise and Physical Therapy
	Diet and Nutrition
	Mindfulness and Meditation
H2: Living with Fibromyalgia	Daily Life Management
	Work and Fibromyalgia
	Support Networks
H2: Fibromyalgia in Different Populations	Women and Fibromyalgia
	Men and Fibromyalgia
	Children and Adolescents
H2: Fibromyalgia and Mental Health	Depression and Anxiety
	Coping Strategies
	Seeking Professional Help
H2: Myths and Misconceptions	Common Myths
	The Reality of Fibromyalgia
H2: Research and Future Directions	Current Research
	Future Therapies
H2: FAQs about Fibromyalgia	What are the first signs of fibromyalgia?
	How is fibromyalgia diagnosed?
	Can fibromyalgia be cured?
	What are the best treatments for fibromyalgia?
	How does diet affect fibromyalgia?
	Are there any new treatments for fibromyalgia?
H2: Conclusion	Summary of Key Points
	Encouragement for Readers

Understanding Fibromyalgia

What is Fibromyalgia?

Definition of Fibromyalgia

Fibromyalgia is a chronic condition characterized by widespread pain, tenderness in muscles and joints, and a range of other symptoms. This disorder affects millions of people worldwide, significantly impacting their quality of life.

History and Discovery of Fibromyalgia

Fibromyalgia was first described in medical literature in the early 19th century, but it wasn’t until the late 20th century that it gained widespread recognition. Researchers have since made strides in understanding its complexities, though its exact cause remains elusive.

Symptoms of Fibromyalgia

Common Symptoms

Fibromyalgia is notorious for its diverse symptoms, which can vary significantly from person to person. The most common symptoms include chronic widespread pain, fatigue, and sleep disturbances.

Uncommon Symptoms

In addition to the more common symptoms, some individuals may experience unusual symptoms such as restless legs syndrome, irritable bowel syndrome, and heightened sensitivity to light, noise, and temperature.

Fibromyalgia Pain

The pain associated with fibromyalgia is often described as a constant, dull ache that has lasted for at least three months. It typically occurs on both sides of the body and above and below the waist.

Cognitive Symptoms (Fibro Fog)

Many people with fibromyalgia experience cognitive difficulties, commonly referred to as “fibro fog.” These can include problems with focus, memory, and concentration.

Emotional Symptoms

Emotional symptoms, such as anxiety and depression, are also prevalent among those with fibromyalgia. The chronic pain and fatigue can contribute to a cycle of emotional distress.

Causes of Fibromyalgia

Genetic Factors

Research suggests that fibromyalgia may run in families, indicating a possible genetic predisposition. Certain genes are thought to influence the way the brain processes pain signals.

Environmental Triggers

Various environmental factors can trigger fibromyalgia symptoms. These may include physical or emotional trauma, infections, or prolonged stress.

Biological Factors

Biological abnormalities, such as imbalances in neurotransmitters and hormonal irregularities, may also play a role in the development of fibromyalgia. The central nervous system’s heightened response to pain is a key feature of the disorder.

Diagnosing Fibromyalgia

Diagnostic Criteria

The diagnosis of fibromyalgia is primarily clinical, based on patient history and symptom presentation. The American College of Rheumatology has established specific criteria, including widespread pain lasting more than three months and the presence of tender points.

Diagnostic Tests

While there are no definitive tests for fibromyalgia, doctors often use blood tests and imaging studies to rule out other conditions that could mimic its symptoms.

Differential Diagnosis

Conditions such as rheumatoid arthritis, lupus, and chronic fatigue syndrome share similar symptoms with fibromyalgia, making differential diagnosis crucial to ensure appropriate treatment.

Treatment Options for Fibromyalgia

Medications

Several medications can help manage fibromyalgia symptoms. These include pain relievers, antidepressants, and anti-seizure drugs.

Physical Therapy

Physical therapy can improve mobility and reduce pain through exercises tailored to the patient’s needs. Techniques such as hydrotherapy and massage may also be beneficial.

Alternative Therapies

Many patients find relief through alternative therapies such as acupuncture, chiropractic care, and biofeedback. These approaches can complement conventional treatments.

Lifestyle Modifications

Lifestyle changes, including regular exercise, stress management, and a balanced diet, can significantly impact the severity and frequency of fibromyalgia symptoms.

Medications for Fibromyalgia

Pain Relievers

Over-the-counter pain relievers, such as ibuprofen and acetaminophen, can help reduce pain and inflammation. Prescription pain medications may be necessary for more severe cases.

Antidepressants

Certain antidepressants, such as amitriptyline and duloxetine, can help alleviate pain and improve sleep. They may also address the emotional symptoms associated with fibromyalgia.

Anti-seizure Drugs

Medications like pregabalin and gabapentin, originally developed for epilepsy, are effective in reducing fibromyalgia pain by altering nerve signals.

Non-Pharmacological Treatments

Cognitive Behavioral Therapy

Cognitive Behavioral Therapy (CBT) can help patients manage pain and cope with the emotional challenges of fibromyalgia. CBT focuses on changing negative thought patterns and behaviors.

Exercise and Physical Therapy

Regular, low-impact exercise, such as walking, swimming, and yoga, can improve overall health and reduce pain. Physical therapy provides a structured approach to maintaining mobility and strength.

Diet and Nutrition

A nutritious diet can support overall health and reduce inflammation. Some patients find that eliminating certain foods, such as gluten or dairy, helps reduce symptoms.

Mindfulness and Meditation

Mindfulness and meditation practices can help manage stress and improve emotional well-being. Techniques such as deep breathing and guided imagery are particularly beneficial.

Living with Fibromyalgia

Daily Life Management

Managing daily life with fibromyalgia involves balancing activity with rest, using assistive devices if necessary, and developing a routine that accommodates fluctuating energy levels.

Work and Fibromyalgia

Many people with fibromyalgia continue to work, though they may need to make adjustments, such as flexible hours or modified duties, to manage their symptoms effectively.

Support Networks

Support from family, friends, and fibromyalgia support groups can provide emotional strength and practical advice. Connecting with others who understand the condition can be particularly comforting.

Fibromyalgia in Different Populations

Women and Fibromyalgia

Fibromyalgia is more common in women than in men. Hormonal fluctuations and genetic factors may contribute to this higher prevalence.

Men and Fibromyalgia

While less common in men, fibromyalgia can be just as debilitating. Men may experience symptoms differently, and societal expectations can affect their willingness to seek help.

Children and Adolescents

Fibromyalgia can also affect children and adolescents, though it is less common. Symptoms and management strategies are similar to those in adults, but the impact on schooling and social development is an added concern.

Fibromyalgia and Mental Health

Depression and Anxiety

The chronic pain and fatigue associated with fibromyalgia can lead to depression and anxiety. Addressing these mental health issues is crucial for overall well-being.

Coping Strategies

Effective coping strategies include pacing activities, setting realistic goals, and maintaining social connections. These strategies help manage both physical and emotional symptoms.

Seeking Professional Help

Professional help, such as therapy or counseling, can provide valuable support for managing fibromyalgia’s mental health aspects. Medications may also be prescribed to address severe emotional symptoms.

Myths and Misconceptions

Common Myths

Common myths about fibromyalgia include the belief that it is “all in the head” or that people with the condition are simply lazy. These misconceptions can lead to stigma and misunderstanding.

The Reality of Fibromyalgia

In reality, fibromyalgia is a legitimate medical condition with complex causes and varied symptoms. Education and awareness are key to dispelling myths and providing proper support.

Research and Future Directions

Current Research

Ongoing research aims to uncover the underlying mechanisms of fibromyalgia and develop more effective treatments. Studies are exploring genetic factors, brain imaging, and new medication trials.

Future Therapies

Future therapies may include advances in personalized medicine, improved diagnostic tools, and new medications targeting specific pathways involved in fibromyalgia.

FAQs about Fibromyalgia

What are the first signs of fibromyalgia?

The first signs of fibromyalgia often include widespread pain, fatigue, and sleep disturbances. Patients may also notice cognitive difficulties and sensitivity to touch.

How is fibromyalgia diagnosed?

Fibromyalgia is diagnosed based on patient history, symptom presentation, and exclusion of other conditions. There are specific criteria established by the American College of Rheumatology for diagnosis.

Can fibromyalgia be cured?

There is currently no cure for fibromyalgia, but various treatments can help manage symptoms and improve quality of life. A combination of medications, therapies, and lifestyle changes is often effective.

What are the best treatments for fibromyalgia?

The best treatments for fibromyalgia vary by individual but typically include a combination of medications, physical therapy, cognitive behavioral therapy, and lifestyle modifications.

How does diet affect fibromyalgia?

Diet can affect fibromyalgia symptoms. A balanced diet rich in anti-inflammatory foods may help reduce symptoms, while some patients find that eliminating certain foods, such as gluten or dairy, provides relief.

Are there any new treatments for fibromyalgia?

Research is ongoing, and new treatments are continually being developed. Current studies are exploring various approaches, including personalized medicine and innovative therapies targeting specific pathways.

Conclusion

Summary of Key Points

Fibromyalgia is a complex and challenging condition characterized by widespread pain, fatigue, and a range of other symptoms. While there is no cure, a combination of treatments can help manage the condition and improve quality of life.

Encouragement for Readers

Living with fibromyalgia can be difficult, but with the right support and management strategies, it is possible to lead a fulfilling life. Stay informed, seek support, and work with healthcare providers to find the best treatment plan for your needs.

https://fibromyalgia-6.creator-spring.com/ — https://www.teepublic.com/stores/fibromyalgia-store

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For More Information Related to Fibromyalgia Visit below sites:

References:

Fibromyalgia Contact Us Directly

Click here to Contact us Directly on Inbox

Official Fibromyalgia Blogs

Click here to Get the latest Chronic illness Updates

Fibromyalgia Stores

Click here to Visit Fibromyalgia Store

06/04/2024

The multiple emotions of fibromyalgia

“Nothing vivifies, and nothing kills, like emotions”, Joseph Roux

It’s almost the end of December already and I missed writing a blog in November. Seems I was trying to recover from the many crises (or at least perceived crises) in my life. The physiotherapist (Nick) said my nervous system was “completely exhausted” and to rest. For the past few weeks things have finally quieted down and I am having Feldenkrais movement treatments/activities (I am somewhat certain that Tai Chi would be equally as effective, as any kind of movement) to help revitalize me somewhat. The fatigue is slowly dissipating and with it some of the pain from all the hyperactivity and intense stressful emotions in my life. I am back on my recumbent bike a couple of times a week for about 20 minutes a day now (again!).

As I write this I watch little light snowflakes outside; there’s a fire in the fireplace; I have just spent 20 minutes meditating and I am at peace with my heating pad on my shoulders and hot tea to comfort me. The winter skylight is incredible at dusk. Now that we have had Solstice the days will be getting longer. If only there were more days like this, but of course, crises happen…stuff happens. I can’t stop the world. I am working on focused practices such as mild exercise and meditation which is what my emotional roller coaster craves and my brain ( that darn amygdala!) has a difficult time understanding. My brain wants to go on that well-worn path to emotional chaos instead of the new calming pathways I am trying to cultivate. The stresses that many of us experience during the festive season create in our emotions that can make us sick, or conversely could make us well.

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As I ponder emotional characteristics, it seems to me that there is not an infinite amount of human emotions. Feeling sad, happy, angry, fearful, stressed, anxious, joyful…while the list seems endless I can see that many overlaps and the one I do best is fear. It feeds on anxiety and brings along with it depression and anger. I know that pathway well. The brain then takes on the powerful emotion and my pain increases. I have often written about the emotion of empathy and that persons with fibromyalgia have too much of it, taking on the emotions of others in an unhealthy way. Now I suggest we try to replace empathy with compassion for others and ourselves while maintaining boundaries with our feelings/emotions that make us the overly sensitive persons that we are.

What I do well is fret for myself and others. What a small word but one that can keep on stirring up emotions that cause chaos to my nervous system. My New Year resolves to try to choose a new direction when I find myself fretting. I don’t think the brain is as much plastic (some plastic is hard, not soft) as it is elastic…neuroplasticity…so why not stretch it to a happy new place, rather than the old worn one? Here’s to happier/healthier emotions in the new year.

Best wishes to all those who have suffered from the demon that wants to control us. Let us try smiling and laughing at it since it is what it is, but our emotional capacity to change from fear to joy is more powerful than fibromyalgia. Laughter is the best medicine after all.

https://www.teepublic.com/stores/fibromyalgia-store

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For More Information Related to Fibromyalgia Visit below sites:

References:

Fibromyalgia Contact Us Directly

Click here to Contact us Directly on Inbox

Official Fibromyalgia Blogs

Click here to Get the latest Chronic illness Updates

Fibromyalgia Stores

Click here to Visit Fibromyalgia Store

12/12/2023
Why Fibromyalgia misdiagnosed as Arthritis is common?

Several years ago I was diagnosed with rheumatoid arthritis. I was treated with various drugs including methotrexate. The drugs did not really help, but I did have some side effects from them. Recently I obtained a second opinion from a different NHS Trust. I was told that I did not suffer, nor had I ever suffered, from rheumatoid arthritis. I was diagnosed with fibromyalgia. I believe that my current diagnosis is correct and that I never had rheumatoid arthritis. My joints were not inflamed and I did not have synovitis, the medical term for inflammation of the membrane which lines the joints. Do I have a remedy against the NHS Trust which kept treating me for rheumatoid arthritis?

It sounds as though the doctors at the first Trust may well have been negligent in diagnosing you wrongly with rheumatoid arthritis. They may over a long period have failed to appreciate that that diagnosis, in the absence of synovitis of the joints, was unlikely and they should have checked out the diagnosis by using imaging techniques such as Isotope bone scanning.

During the period that you were diagnosed with rheumatoid arthritis, your fibromyalgia was not recognized or being tackled, and instead, you were being given drugs and treatment for rheumatoid arthritis which caused you side effects. In a recent case, a woman received £50,000 in a Court settlement caused because of the incorrect diagnosis and failure to re-evaluate it over a period of time. It is definitely worth you taking legal advice over this.

https://www.teepublic.com/stores/fibromyalgia-store

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For More Information Related to Fibromyalgia Visit below sites:

References:

Fibromyalgia Contact Us Directly

Click here to Contact us Directly on Inbox

Official Fibromyalgia Blogs

Click here to Get the latest Chronic illness Updates

Fibromyalgia Stores

Click here to Visit Fibromyalgia Store

12/12/2023
Overcoming Disability in the Media
This is an assignment for my disability studies course in my social work program. The purpose of the assignment is to identify different models of disability in the media by reviewing a news article. This one looks at the construction of the ‘supercrip’ (super cripple) who ‘overcomes his/her disability. Let me know what you think of this image – inspiring or unrealistic?

Learning Activity 3.1

The article I chose for this Learning Activity describes how a disabled man named Luke Anderson started an initiative called STOPGAP which works to improve the accessibility of Toronto’s built environment by providing ramps to local businesses for free. The primary model of disability employed in the article is the charity model, specifically the construction of a ‘supercrip’. The narrative describes how Luke Anderson was once a star athlete when a tragic accident left him with a spinal cord injury. Fortunately, “Luke Anderson showed that what he has inside is the tenacity to tackle problems of getting around the big city, for himself and others, when you are physically challenged” (Fatah, 2011). The author initially invites the reader’s pity, by, for example, noting how Anderson is now dependent on help to get dressed in the morning. As Withers (2012) describes, the construction of a supercrip is complete when pity is transformed into inspiration (p. 71). Fatah (2011) accomplishes this when she describes how Anderson has not only overcome the challenges of his own disability but is also working to help overcome “the environment of ordinary life itself”.

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Anderson’s disability is constructed in the article as a physical impairment resulting from an accident. His disability is understood to be a medical problem located in his individual body, which is consistent with the medical model of disability, rather than the result of societal oppression and marginalization, as in the social model of disability (Withers, 2012). Although the author focuses on urban accessibility, the solution is framed in terms of the charity model. The author describes the nonprofit STOPGAP’s ramp project in laudatory tones, with no mention of the government’s failure to implement the Accessibility for Ontarians with Disability Act, which is meant to make Toronto “barrier-free” for disabled people.

Luke Anderson is a white man with an excellent education. His relative privilege is not discussed in the context of the author’s description of him as a supercrip. No other structural factors are mentioned in the discussion of the accessibility of the built environment. I would have thought that a discussion of poverty and class would have been incorporated, as it is well-known that exclusion from workplaces and educational institutions because of their inaccessibility affects the economic security of people with disabilities. Overall I found this to be a light and superficial discussion of the issues.

The Ramp Project: tackling access for the disabled one storefront at a time
- It has become a mantra of our progressive, polite society to insist that appearance doesn’t matter, that it’s what’s inside that counts.
- But, fair or not, our physicality affects not only the way we live and what we are able to do but how others perceive us.
- Luke Anderson has been on the extreme ends of the physical spectrum, the ability one as well.
- As a child and young adult, he defined himself primarily as an athlete. If an activity involved a ball, a chase, a run, a ski, a dive, or a bike — Luke was interested, and he excelled.
- His physical strength and love of activity dominated so much of his life that upon graduating from university, he moved from the Toronto area to Rossland, B.C., too, as he puts it, “do nothing but mountain bike.”
- Luke Anderson, speaking at the Canadian Urban Institute forum in November 2011. (Marlena Rogowska)
- But one day in 2002, a biking accident resulted in a massive spinal cord injury that changed his whole life as he knew it.
- Anderson lost the ability to walk, as well as most of the control of his hands.
- He went from being a popular, all-around star athlete, and a pillar of strength, to a young man who needed help getting dressed in the morning and must use a wheelchair.
- It was challenging to say the least. But these are the times when it is what’s inside that counts.
- And Luke Anderson showed that what he has inside is the tenacity to tackle the problems of getting around the big city, for himself and others, when you are physically challenged.
Just getting around

At a recent Canadian Urban Institute forum on accessibility and cities, Anderson gave a presentation to a group of about 100 people, who were charmed by his easy, surfer speak and intrigued by his message.

He talked about the obvious things involving the physically disabled, like wheelchair ramps and push-button door openers.

But he also opened our eyes to the things most of us don’t necessarily think about — like how difficult it can be to navigate a narrow apartment elevator when you are in a wheelchair.

Most elevators are big enough to allow a wheelchair to get in, but not to turn around. So if you are in a wheelchair by yourself, you don’t always know if you have reached your floor because your back is towards the numbers and the door.

Then there is the problem of getting out of an elevator. You either back out and risk running into someone or something because you can’t see clearly where you are going, or you try to maneuver a challenging three-point-turn within the confines of the elevator itself.

Redesigning the city

For the physically disabled, there are also issues with those everyday things that “seemingly” have nothing to do with accessibility — like air conditioning.

Former British PM Tony Blair places a temporary ramp in front of 10 Downing St., the official residence, for a visitor in 2005.

Anderson told his audience that because of his physical status and the fact that some of his muscles don’t get used enough, he has really bad circulation.

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So the extra-cool air conditioning in most of our big office buildings and retailers actually affects his health directly by slowing his circulation even more and causing numbness.

Used to having defined himself by what he could achieve against the toughest of physical environments, Anderson now has given himself a new challenge — to change the environment of ordinary life itself.

An engineer, with a job in a successful Toronto firm, Anderson is also the founder of STOPGAP, a group of artists, design professionals, and architects that wants to transform Toronto’s built-up urban environment into “a place where everyone has access to what they desire through art, design, discourse and community action.”

The first place he started in was his own neighborhood.

The Ramp Project

Despite all the progress, technology, and social will that is out there, Anderson still found it difficult, if not impossible, to access many of the local businesses, shops, restaurants, cafes, and bars nearby, primarily because most storefronts have a single step.

A brightly colored Ramp Project ramp in a Toronto neighborhood. (Stopgap)

That is one small step for someone who can walk. But it can be a giant obstacle for someone in a wheelchair.

So Anderson and STOPGAP began what they called The Ramp Project, a simple but effective plan to build and provide temporary, weatherproof, slip-resistant ramps to local businesses at no charge.

The materials and money are donated by sponsors and the labor is provided by volunteers. And because the ramps are viewed as “temporary,” they don’t have to fall within the strictures of the building code.

STOPGAP hopes that their colorful ramps will become a staple throughout the city, and maybe even other Canadian cities until permanent accessibility solutions can be found.

The result has been a dozen or so brightly painted, cheerful and useful ramps along with a West-end neighborhood, to help not only people with physical disabilities but the elderly, parents with strollers, pregnant women, people carrying heavy packages. The list goes on.

That’s the thing about improving our built environment to make it more accessible. It doesn’t just help those with disabilities, it improves the standard of living for all of us

Research shows a new marker for the intensity of pain, as well as a new area for the target of pain medications – in the glial cells that surround nerves and provide structure and support.

https://www.teepublic.com/stores/fibromyalgia-store

Click Here to Visit the Store and find Much More….

For More Information Related to Fibromyalgia Visit below sites:

References:

Fibromyalgia Contact Us Directly

Click here to Contact us Directly on Inbox

Official Fibromyalgia Blogs

Click here to Get the latest Chronic illness Updates

Fibromyalgia Stores

Click here to Visit Fibromyalgia Store
12/12/2023
Our relationships and fibromyalgia
Musculoskeletal Care, November 21, 2019, of 40 multiple choice questions was posted online with the objective to poll a large sample of adults with fibromyalgia about the impact on their significant other, friends and children. Questions included were regarding their symptoms, their demographics, any comorbid mood conditions, the relationship impact (with Relationship Assessment Scale). There were 6126 respondents to the survey who had been diagnosed with fibromyalgia.
- -50% of the responders stated that FM had mildly to moderately damaged their relationship(s) with their partner or contributed to the break-up with a partner.
- -50% of responders scored as not being satisfied with their current partner relationship with satisfaction negatively affected by the presence of mood disturbance symptoms and higher FM severity.
- -Relationships with children and close friends were also negatively impacted for a substantial minority of the responders.
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We know that chronic pain is not just something that we deal with. We know that it impacts our caretakers. We know it impacts those around us. Chronic illnesses are not isolated events which affect individual bodies; they are illnesses that affect individuals and relationships of all kinds We are talking about a long-term stressor that is consistent. It is difficult for the individual. It is difficult on the significant other. It can cause some conflict or at the very least a lack of acknowledgement of both sides of how difficult it is on both sides.

People can struggle with understanding an illness that has no end date and how to approach the topic, they simply have no idea how to respond or how to help the person they have a relationship with or even what to say about it. This can create tension from the person with the illness because they may believe the family members, friends or loved ones do not care, are indifferent to their suffering or do not understand what they are going through.

Sometimes there is no way to bridge the gap. Our divorce rate is at 75% after all. However, it is always worth the effort to open communication. To inform those important in your life about your disability, your needs and limitations so they can understand it better. While you have learned to cope in various ways and learned a great deal along the way, they may not understand your process, know what you have learned, know your limitations or restrictions and until they do they cannot help you engage within those boundaries. It also avoids misunderstandings. Hurt feelings and resentments when you turn down events. They will know it is not them, it is your illness.

We also have to understand while we are affected by our illness, so are they and therefore our relationships to them are affected and must adapt. Not all friendships endure. We know that. Not every family member will get it. Not every relationship will cope. However, the ones that do are the ones worth the effort because positive, healthy relationships are our support system and are necessary. We should nourish those good relationships, appreciate them and acknowledge them.

THINGS TO THINK ABOUT:

Blind to it

Sometimes family and friends will cope by simply pretending there is nothing wrong with you as if by that simple denial it will go away or become less of an issue. They likely feel helpless to actually do anything about it so they want to believe if they ignore it, it will make it easier on you and for you to ignore it. Yet it is this apparent disinterest that seems like lack of caring and can really be hurtful and also it is very stressful since the entire burden is on you to pretend you are ‘all good all of the time’.It is very difficult for family to see someone they love suffer knowing they cannot help them. People have different ways of coping with that. Open communication is always quite important. If you state clearly what you need then they will understand what they can do.

Acknowledgement

There are times with chronic pain we feel our partner doesn’t get how difficult it is for us to function and do daily activities. Yet we feel guilty if we do not do our share. Or some of the routine tasks of the household. When we do them and our partner doesn’t acknowledge the toll it takes on us this can develop into a feeling of isolation and resentment. More so if they asked why didn’t we do More?

Likewise, our spouse may have taken on more household duties to compensate for our disability and feel we do not acknowledge the extra effort they are putting in. This effort they are willing to put in but takes more energy and time on their part as well. When they bring it up though we could feel immediately guilty and this could make us defensive because of that guilt. Again there is a need for communication between partners so that this resentment doesn’t build up and arguments over these types of situations develop. When having a discussion of this sort it is important to not be defensive and understand that your partner is not blaming you for being ill. It is important to understand they do have valid frustrations and feelings and we should acknowledge their struggles with them and their extra effort. Always be open to ways to compromise in the house. Ways to accommodate chores and housework in ways that work for you.

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The retreat

Over a long-term chronic illness friendships can be difficult to maintain. Friendships are a give and take and when a friend feels they are always the one makings plans and you are always the one postponing or cancelling it can be difficult. They may also see that you never are up for socializing or have much energy to do things spontaneously. They may feel they are the ones giving all the energy maintaining a friendship. They may think you no longer that time for them or they may simply give up on putting all that effort in. Slowly that friendship may begin to drift. Maintaining a friendship is great for getting us into the outside world, for socializing and preventing a retreat into isolation that can increase fatigue and promote depression. They play a vital role in our mood regulation whether you have one or many friends. Whether you socialize infrequently, rarely or a lot.

It is a good thing to communicate to your friends how much you value spending time with them and how important it is to you to remain connected to them. People like to feel that they are wanted around. On days when you are unable to leave the house, you can encourage communication with them by other means of offering a sort house visit for tea. Help them understand that short, small ventures are easier to cope with; something along the lines of going to lunch or coffee. Whereas large plans that require significant time, travel and planning often are a lot more difficult and depend on health and pain levels. Remember you can make plans with friends that are more costly to you energy-wise and pain-wise as long as you plan carefully, pace yourself and give yourself the time to recover afterwards. Positive friends should be encouraged and maintained and they will understand your limitations and restrictions if you explain them. Friends that do not believe the extent of your illness or are a constant negative energy drain however you might want to consider rethinking.

Owning Emotions

Family members, friends and loved ones can have a lot of emotions to deal with of their own. Emotions they have a right to. It can be difficult for us to deal with these at times. Sometimes it can be a simple matter of acknowledgment. However, there can resentment, anger and even more. When it comes to a family dynamic with children involves sometimes family therapy can help out. Once it is all out there it can be a real relief and from there a therapist will help in any way they can for coping with those feelings and how to deal with the issues that come up.

Letters to normal are letters that explain chronic pain or fibromyalgia to friends, family or partners so that they might better understand what we are going through. They can be used to help with communicating with people. Then in addition to something like this you can also print of an FM fact sheet from the net.

https://www.teepublic.com/stores/fibromyalgia-store

Click Here to Visit the Store and find Much More….

For More Information Related to Fibromyalgia Visit below sites:

References:

Fibromyalgia Contact Us Directly

Click here to Contact us Directly on Inbox

Official Fibromyalgia Blogs

Click here to Get the latest Chronic illness Updates

Fibromyalgia Stores

Click here to Visit Fibromyalgia Store
12/12/2023
‘Smart’ Underwear May Help Prevent Back Pain

Mechanized “smart” undergarments may be the answer to back pain, according to researchers.

The Vanderbilt University engineers have created an undergarment that eases stress on the low back and activates only when a wearer needs it.

“I’m sick of Tony Stark [the fictional Iron Man] and Bruce Wayne [Batman’s alter ego] being the only ones with performance-boosting supersuits. We, the masses, want our own,” Karl Zelik, principal investigator on the project, quipped in a university news release. “The difference is that I’m not fighting crime. I’m fighting the odds that I’ll strain my back this week trying to lift my 2-year-old.”

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That same kind of back strain got the assistant professor of mechanical engineering thinking about wearable tech solutions.

Made of nylon canvas, Lycra, polyester and other materials, the “smart” underwear feels and behaves like regular clothes, according to researchers.

It has one section for the chest and another for the legs. The sections are connected by straps across the middle back, with natural rubber pieces at the lower back and glutes.

A double tap that engages the straps activates the device. It can also be controlled wirelessly using an app.

The new device was recently unveiled in Brisbane, Australia, and is slated to debut in the United States at an American Society of Biomechanics meeting in Boulder, Colo., this week.

To test the undergarment, eight volunteers lifted 25-pound and 55-pound weights. The device eased muscle use in the lower back by 15 percent to 45 percent, according to the researchers.

“The next idea is: Can we use sensors embedded in the clothing to monitor stress on the low back, and if it gets too high, can we automatically engage this smart clothing?” Zelik said in the news release.

More than half of adults have low back pain at some point. The condition leads to an estimated $30 billion in medical costs and more than $100 billion in lost productivity each year in the United States.

Co-investigator Dr. Aaron Yang specializes in nonsurgical treatment of the back and neck at Vanderbilt University Medical Center. He’s seen many back devices and usually views them with doubt.

The “smart” undergarment is not meant to treat existing back pain, he emphasized. Instead, it aims to prevent pain by reducing stress and fatigue on muscles in the lower back, he said.

“People are often trying to capitalize on a huge societal problem with devices that are unproven or unviable,” Yang said in the news release. “This smart clothing concept is different. I see a lot of health care workers or other professionals with jobs that require standing or leaning for long periods. Smart clothing may help offload some of those forces and reduce muscle fatigue.”

https://www.teepublic.com/stores/fibromyalgia-store

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For More Information Related to Fibromyalgia Visit below sites:

References:

Fibromyalgia Contact Us Directly

Click here to Contact us Directly on Inbox

Official Fibromyalgia Blogs

Click here to Get the latest Chronic illness Updates

Fibromyalgia Stores

Click here to Visit Fibromyalgia Store

12/12/2023
Elevating Women’s Voices Will Advance Chronic Pain Treatment and Management
Coordinated by Monica Mallampalli, PhD, Chronicillness.co’s Advisor for Scientific and Strategic Initiatives, our two-day event aimed to advance and amplify current dialogue on the impact of chronic pain on women’s health. We certainly accomplished our goals. The summit convened leading experts in chronic pain science and treatment, policy experts from federal agencies and national pain advocacy organizations. Pain activists with personal knowledge of the devastation caused by chronic pain conditions also provided their unique insights. Chronicillness.co is thankful to these trail blazers for illuminating the elusive aspects of chronic pain with the bright spotlight it demands.

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I learned so much from our participants and from their commitment to ending the suffering connected with chronic pain. For example, artificial intelligence is now being applied to chronic pain study with tremendous potential. And, successful models for pain management programs exist, such as the one established for women veterans at the VA Connecticut Healthcare Center, can be emulated to benefit women and other populations in need.

My hope is that a reckoning for chronic pain in women is not far off. Improved awareness, louder patient voices and targeted research will elevate chronic pain’s status from “invisible” to “visible,” leading to faster diagnoses, innovative treatment and management strategies and, ultimately, will end long-term suffering.

This will be a triumph for women’s health because women bear a far greater burden of pain. Indeed, the prevalence of most common pain conditions (arthritis, back pain, headache, among others), is higher in women compared to men. In addition:
- Seventy percent of chronic pain patients are women.
- Women’s life expectancy is reduced by one year for every 10 years spent with chronic pain.
- Women with chronic pain are more likely to be treated with prescription pain relievers, like opioids, and at higher doses and for longer periods, than are men, putting women at greater risk for developing opioid use disorder.
- While some research has addressed sex differences in pain management, perception and pain threshold, this progress has not translated to improved pain treatment for women.
- Sleep loss increases pain sensitivity and is a major risk factor for developing chronic pain, especially in women.
Our keynote speaker Anita Gupta, DO, PharmD, MPP, Professor, Rowan University School of Medicine and Senior Vice President, Heron Therapeutics, issued a call to action I am compelled to repeat. No stranger to the pain journey, Dr. Gupta shared her personal experience with treatment for a rare disease that has altered her approach to patient care. Like the World Cup-winning women’s soccer stars’ call for pay equity in their sport, it is time for “chronic pain equity” in women’s health, according to Dr. Gupta. No longer should women suffering from chronic pain caused by migraine, fibromyalgia, arthritis, debilitating complex regional pain syndrome, or pelvic pain conditions, such as endometriosis, be underserved.

There is no doubt that we still confront many challenges in the science and management of chronic pain. However, the following 10 highlights (and, it was hard to pick only 10) from our summit indicate to me that we are on the right path:

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1. More informed research about sex differences in pain likely will lead to pain medication and devices tailored specifically for men and women.
2. Researchers and study proposal reviewers are now trained to ask questions and evaluate data with respect to biological differences important to understanding sex differences in pain and pain treatment.
3. Because few drug trials are designed specifically to study women with pain, an opportunity exists to raise awareness about the importance of recruiting women for clinical trials about pain research.
4. Innovative clinical approaches, such as motivational interviewing and functional pain inventories, can improve the patient-clinician dialogue and improve patient outcomes by setting goals for managing and living with chronic pain.
5. Re-thinking treatment for opioid use disorder (OUD) to consider women’s unique health needs and family responsibilities will improve OUD treatment for women and replace current OUD treatment models based on treatment for men.
6. More data on women of color and women of color experiencing chronic pain will inform policy, begin to eliminate health care disparities and will lead to changes in health care delivery for all women.
7. Working to eliminate the stigma associated with chronic pain—including self-stigmatization and inherent race and gender biases–will help to break down major barriers to accessing care and successful treatment.
8. A key to understanding pain is understanding the robust individual differences in pain experiences. Pain management innovation cannot be “one-size fits all.”
9. Pain research is getting better at measuring pain and increasingly more able to activate, isolate and study specific cell types.
10. The patient voice must be a partner in drug development, science and patient care.
Chronicillness.co is proud to lead this call to action with our first summit on chronic pain in women. We support the “super heroes” so aptly described by Lindsay Weitzel, PhD, a migraine strategist and author, in the battle to raise awareness of chronic pain-related issues. We will continue to connect women, their families, and their health care providers with resources designed to help them overcome barriers to treatment and pain-free lifestyles. And, we will continue to help women tell their stories about their journeys, providing hope for those for whom the journey awaits.

We know that “pushing back against pain,” urged by Kate Nicholson, JD, in her closing plenary presentation, “Pain, Resilience and How We Heal,” will help society recognize the existence and impact of chronic pain. If you have a minute, check out Kate’s TED Talk on the implications of undertreating chronic pain.

https://www.teepublic.com/stores/fibromyalgia-store

Click Here to Visit the Store and find Much More….

For More Information Related to Fibromyalgia Visit below sites:

References:

Fibromyalgia Contact Us Directly

Click here to Contact us Directly on Inbox

Official Fibromyalgia Blogs

Click here to Get the latest Chronic illness Updates

Fibromyalgia Stores

Click here to Visit Fibromyalgia Store
12/12/2023
3 Pain-Relief Treatments with Bonus Benefits

When it comes to pain–management options, not surprisingly, safe and effective pain relief should be priority number one. What may be surprising, however, is that some treatments have advantages that go beyond pain relief. In fact, there are a number of affordable and convenient pain treatments that work to alleviate symptoms—and come with bonus benefits. The following pain-relief treatments are sustainable, have additional advantages and most importantly they’re often times effective for many types of painful conditions when combined with a comprehensive treatment plan.

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1. Massage

Massage is a popular pain-relief option as it increases blood flow and reduces muscle tension. It also decreases inflammation by activating genes that naturally reduce swelling. Furthermore, it improves muscle recovery by stimulating mitochondria, the “energy packs” driving cellular function and repair.

Bonus Benefit – Stress Relief

Stress can send the brain into overdrive causing adrenaline and cortisol to release into the body, manifesting in trouble sleeping, digestive issues and a host of other health problems. Pain and stress often go hand in hand, but thankfully massage is one way to manage both at the same time. In fact, recent studies found a reduction of cortisol in saliva samples after the participant received a massage. And while making an appointment at the spa can be prohibitive due to time and cost, there are great handheld massager options like the Wahl Deep Tissue Massager. The intensity can be adjusted for customized pain relief in the comfort of your own home.

2. Glucosamine

Glucosamine supplements are commonly used to reduce joint pain because they don’t require a prescription. Many individuals use glucosamine sulfate orally to treat a painful condition caused by the inflammation, breakdown and eventual loss of cartilage as seen in osteoarthritis. Current research demonstrates that the oral use of glucosamine sulfate may provide some pain relief for people with osteoarthritis of the knee, hip or spine. Early research suggests that oral use of glucosamine hydrochloride might reduce pain related to rheumatoid arthritis when compared with placebo, an inactive substance.

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Bonus Benefit – Reduced Risk for Cardiovascular Disease

Besides pain relief, a recent research study found that adding a glucosamine supplement to your diet may reduce your risk for cardiovascular disease and early death. In fact, it demonstrated that those who took the supplement regularly saw a 15% lower risk of overall cardiovascular disease and a 9% lower risk of stroke.

3. Acupuncture

Acupuncture is a popular Chinese-based medicine that involves the insertion of fine needles at strategic points on the body. There are several ways in which acupuncture potentially helps to decrease pain and promote tissue recovery. For example, it can signal the body to release pain moderating chemicals called endorphins and enkephalins, which increase blood flow to the tissue and bring in nutrients and oxygen to stimulate healing. After an acupuncture session, studies have shown that the body is more likely to be receptive to naturally occurring painkillers and chemicals that help to alleviate muscle tension or discomfort.

Bonus Benefit – Better Sleep

While acupuncture is often used to treat pain symptoms, it is commonly used for overall wellness, including evidence as an effective treatment for insomnia. This is especially noteworthy as quality sleep plays a vital role in both our physical and mental well-being.

https://www.teepublic.com/stores/fibromyalgia-store

Click Here to Visit the Store and find Much More….

For More Information Related to Fibromyalgia Visit below sites:

References:

Fibromyalgia Contact Us Directly

Click here to Contact us Directly on Inbox

Official Fibromyalgia Blogs

Click here to Get the latest Chronic illness Updates

Fibromyalgia Stores

Click here to Visit Fibromyalgia Store

12/12/2023
Fibromyalgia Experience

Let’s talk about the fibromyalgia experience. The truth is that the environment you live in and indeed perceive has as much to do with you being in pain (and getting out of it) as all of the other biological reasons. Brains don’t know the difference between what they think to be true and what’s actually true. In fact, it’s one of the best things about being a human, and also probably one of the worst.

In the picture above I’m playing virtual reality (VR), and we often used VR in the studios to help with client recoveries for a tonne of different reasons.

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In the picture above, I know I’m nice and safe in the studio. I know there are no threats around me, and I know that I’ve played this particular level on this game a thousand different times.

Despite this, my brain thinks I have a large group of zombies chasing me, and as such, I’ve released an enormous amount of adrenaline, my heart rate has risen and it messed up all my complex motor skills(this happens when your heart rate goes up) leading me to run around the studio like some kind of lunatic!

My brain makes me feel, experience, and produce, the expected chemicals that it thinks I should be feeling, given all the threats from the undead hoard around me. The only problem though is that the undead hoards chomping at my feet, well, they don’t actually exist.

So, you may know pain doesn’t mean damage, but that doesn’t mean your brain thinks that, and is that contributing to your individual Fibromyalgia Experience.

You may think pain does mean damage, and perhaps your brain thinks it too.

I know zombies are not real, but it doesn’t stop my brain from thinking they are.

People hinge far too much of their recovery on their own consciousness, but the truth is you don’t have any real direct control over whether you produce pain or not.

You didn’t choose to be in pain. You had no real choice in it. You ended up in pain because of a complicated set of variables all working together, and to get out of it, well, it takes the same; a lot of variables working together in your favour.

Otherwise, you would be able to just do what Betty down the street did to get out of pain.

One of the first things I learned during my own recovery, long before I was a Fibromyalgia sufferer, was that leaving out the social factors when it comes to chronic pain, really stalls your recovery.

That’s the truth of it, but so many people miss them out. It’s understandable though, as at first glance they don’t really seem all that important, but they are. Recovery isn’t just about your biology or your psychology, if it was then you could just simply exercise and CBT your way to a clean bill of health. Nope, there’s a huge social component to it and honestly, it’s more important than most people even really realise.

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One of the craziest things is that when people are online looking for Fibromyalgia recoveries or new fibromyalgia treatments, absolutely nobody looks at the social factors.s a contributor to the Fibromyalgia Experience.

The environment you live in, be that the objective environment or subjective mediates and changes every single biological and psychological driver for your pain.

There are reasons why those who have suffered at the hands of domestic abuse have a much higher prevalence of developing chronic pain.

There are reasons why smokers are more likely to suffer from head pain.

And there are a million other reasons why people end up in pain full stop, and not all of them are to do with how your joints work your posture or any of the other endless sole reasons that people give.

Your environment, your job, your family, friends, and support network, they all fit into your social bubble and they can help or hinder your recovery.

Likewise how you perceive any of these factors can also change how they can affect you and your conditions such as Fibromyalgia.

Pain is a brain thing, and as such, there is a tonne of different variables involved, because brains take them all into account and create your own individual Fibromyalgia Experience.

Unfortunately, people don’t realise this and they eventually become frustrated that nothing has worked for them, even though they have put 100% into their recovery.

We see this a lot with people when they first come to us. They gave it 100% but everything they have tried so far just didn’t work. But, this is a new year, a fresh start, and it’s a fresh chance to really learn, get a handle on, and overcome everything that’s been holding you back, even though you have been going at it with 100%. But, not really moving forward.

And for a lot of people, a full recovery from fibromyalgia can seem a lifetime away if not impossible.

And that starts with the right knowledge.

So, if you want something different this year, you’ve got to change your approach, or the start to 2023 will be exactly the same as this year.

I know Adam is working on some great video content to cover the roadblocks of recovery, what creates the fibromyalgia experience, and how to get around them.

While he is working on them, I want to start you on your journey by giving you one of our resources covering some of the variables that keep you in pain and why despite you putting in the effort, you’re still at a standstill.

https://www.teepublic.com/stores/fibromyalgia-store

Click Here to Visit the Store and find Much More….

For More Information Related to Fibromyalgia Visit below sites:

References:

Fibromyalgia Contact Us Directly

Click here to Contact us Directly on Inbox

Official Fibromyalgia Blogs

Click here to Get the latest Chronic illness Updates

Fibromyalgia Stores

Click here to Visit Fibromyalgia Store

12/12/2023
My Own 6 Ways That I am Living Well With Fibromyalgia
As we talked about in a previous post, getting treatment for your fibromyalgia is always important. Putting off your treatment can allow symptoms to worsen, and when you do finally seek treatment, it may be more difficult to get symptoms under control. However, not all your fibromyalgia management has to come from physicians and specialists. While medical treatment should definitely be part of your treatment plan, there are several lifestyle changes you can make to help manage your fibromyalgia, too.

1. Know your limits and pace yourself

Plan ahead a little. If you know you’ve got a dozen errands to run this week, spread them out over several days instead of doing them all at once. Better yet, ask a friend or spouse to handle a few of those errands. You might even consider services like home grocery delivery, dry cleaning pick-up, or mobile pet groomers that come to your front door. If it makes your life more manageable, go for it.

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Also, don’t be afraid to ask for assistance at stores. Request that the bagger at the grocery store keep your bags on the light side, or ask if someone can help you load your heavy new TV or bag of cat litter into your car. Once you get home, ask a neighbor to give you a hand carrying anything heavy or awkward.

2. Take the time to get enough rest

This includes both during the day and at night. Avoid taking long naps late in the day, since they may interfere with your ability to sleep at night. However, it’s completely okay to lie down for ten minutes and just relax if you’re feeling a little overwhelmed.

When bedtime rolls around, try to find ways to get the recommended seven to eight hours of sleep. Avoiding long naps in the evening will help. You can also try any or all of these tips. If nothing’s working, talk to your physician. Sleep may seem like a very small thing compared to pain, but it can impact every aspect of your day. Another easy way to help yourself sleep better is to get some exercise throughout the day.

3. Exercise regularly

This doesn’t mean doing something extreme like running a 10K. It means working some moderate physical activity into your daily routine. Low-intensity exercises like walking, stretching, or light weightlifting can all be beneficial. Even your normal daily activities, like gardening, sweeping, or vacuuming, can count toward your exercise for the day.

Yoga is a very popular form of exercise for people with fibromyalgia. It’s a very low-impact, easy-to-modify form of exercise, so you don’t have to push yourself past your capabilities. Additionally, the breathing techniques, meditation, and emphasis on stress reduction in most yoga classes can go a long way toward helping you control stress-related pain.

4. Control your stress

Stress tends to make everything worse. If you’re already hurting, a stressful day will amplify your pain. Therefore, controlling your stress levels can really make a difference in your pain management. Meditation and breathing techniques, like the ones taught in yoga classes, are a great way to manage stress. Exercise can also reduce stress. The simplest way to lower your stress, though, is to take some time to do something you enjoy.

Sit down with a good book. Take an afternoon tea break. Go for a mani/pedi (guys can go for clear polish to get the benefits without the fancy colors!). Splurge on a massage – which can help relieve painful muscle tension and swelling, in addition to helping you lose the stress.

Finding a creative outlet can also make a big difference. Creative therapies, which include music, art, dance, or drama therapies, have been shown to help manage mood disorders like depression. Since depression commonly goes hand-in-hand with fibromyalgia (and can even worsen pain symptoms), taking the time to find a creative hobby may help you reduce your stress and feel happier and healthier.

You don’t necessarily have to find a formal creative therapy class. Take up a creative hobby you’ve always been interested in. Just be careful to modify your new hobby for your pain condition. If you’re looking into dance, be careful it’s not so intense that it worsens your pain. If you’re considering taking up painting, set up a comfortable work station so you don’t get sore after hours of sitting on a hard stool. If you’re going to start writing, make sure you have an ergonomic desk setup.

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5. Find ways to stay comfortable all day

This may seem pretty straightforward, but it’s a biggie. Make sure the chair you sit in all day is as comfortable as possible. If you’re reading, prop your arms up with pillows; consider getting an e-reader if you find yourself drawn to the really big, heavy books. As you go about your day, take note of times when you’re uncomfortable and try to find simple solutions like these to ease your pain.

Keeping warm can also contribute to your pain relief. Cold drafts should be avoided, so close your windows or call a handyman if your house is chilly. A warm shower can also head off some pain if you’re chilled.

Also, simple as it may seem, buy comfortable clothes. Go for pants with wide waistbands or drawstrings. Avoid very tight or constricting clothing. Try on clothes before buying, and make sure you stand, sit, bend, and walk while trying them on. Pay attention to fabrics that are more comfortable for you. Cotton, satin, or fleece tend to work well. Also, consider looking for clothes with printed tags, rather than sewn-in tags.

6. Watch what you eat and drink

Basically, try to eat a healthy diet. Get food from all five food groups (proteins, grains, dairy, fruits, and vegetables). Choose fresh and natural over processed and preserved, when possible. Some foods have a tendency to make fibromyalgia pain worse, so if you can, try to avoid these foods:
- Foods high in saturated fats
- Foods high in calories
- Refined sugars
- Aspartame (an artificial sweetener)
- Monosodium glutamate (MSG, a flavoring used often in Chinese foods)
- Tobacco products
- Caffeine
- Alcohol
When in doubt, you can always try the “elimination diet.” Limit your food to the basics from each food group, and slowly add in one food at a time, paying attention to see how it affects you. This way, you’ll be able to see if pizza or Frappuccinos are to blame for the extra pain you’ve been experiencing.

https://www.teepublic.com/stores/fibromyalgia-store

Click Here to Visit the Store and find Much More….

For More Information Related to Fibromyalgia Visit below sites:

References:

Fibromyalgia Contact Us Directly

Click here to Contact us Directly on Inbox

Official Fibromyalgia Blogs

Click here to Get the latest Chronic illness Updates

Fibromyalgia Stores

Click here to Visit Fibromyalgia Store
12/12/2023