Tag: Fibromyalgia

An in-depth guide on Fibromyalgia, covering its symptoms, causes, treatments, and tips for managing this chronic condition effectively.

  • In my Experience, Fibromyalgia Pain Can Happen in any Part of your Body.

    In my Experience, Fibromyalgia Pain Can Happen in any Part of your Body.

    I’ve had it for about 29 years now. In a word—-Pain. Never-ending, constant pain. Your shoulder will suddenly start to hurt, which can last for a few seconds to days. That can happen in any part of your body. When it quits, it will start in some other place, again for only a few seconds to days.

    One day I woke up, got up to go to the bathroom, and fell on my knees with horrible pain in both groins. I had to crawl to the bathroom. It felt as though I had sprained or tore both groin muscles, was that way for a week. I couldn’t go to work. All of a sudden it stopped.

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    It causes brain fog—forgetting things that used to be just automatic, sleep disturbances, your brain just will not shut up. You do stuff like put milk in the cabinet and cereal in the fridge, your wallet in the freezer, Go into the bathroom to pee, and all of a sudden you are standing in the tub, fully clothed with your watch and glasses on, frequently wonder if you have Alzheimer’s or dementia—-you test normal on all tests. The one that needs to be done is called the Stroop test. It actually takes us twice as long as “normals” to process stuff in our brains.

    You can frequently get an incredibly intense itch—-anywhere, on me, usually my thumb or any finger or palm of my hand. And I do mean intense, To the point, you are screaming and wanting to run out into the street pulling your hair off and ripping your clothes off.

    You need to put immense pressure, to the point of pain on the spot to get a little relief. It can last several very long, excruciating minutes to about 30. It seems days. I’ve put all sorts of stuff on it and taken Benadryl or anything else I can get my hands on. ( still do not know what has worked, if anything.

    Your whole body can ache, like the horrible flu. You feel tired—-beyond belief. You feel so tired you are scared to fall asleep because you are too tired to breathe. You feel like you just won’t wake up because you won’t be able to continue breathing in your sleep. There develop tender points on your body. certain areas that when touched are very painful.

    My husband would bend over, place his hands on my knees and give me a kiss. Did it for years, all of a sudden, it started hurting, to the point I just wanted to haul off and slap him! He had to stop doing it, even though he was not applying that much pressure. There are more—-flare-ups, you are worthless when they happen. I think this is enough—-in short—-you do not want this!!

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia makes me Exhausting, Frustrating, Difficult, Painful, Embarrassing and Limiting

    Fibromyalgia makes me Exhausting, Frustrating, Difficult, Painful, Embarrassing and Limiting

    I was diagnosed with Fibromyalgia in 1992, long before it was trendy and before many physicians even acknowledged it as a true medical condition. I was 16 and couldn’t understand how people could play sports, roll down hills, or perform any of a million other activities that they seemed to take for granted but I couldn’t imagine voluntarily engaging in, much less enjoying.

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    My Fibro journey has been a roller coaster. I have lost jobs because I couldn’t attend them regularly, or even remember to call in sick sometimes. I have crawled on my hands and knees to the bathroom in the morning because it hurt too much to put weight on some part of my body by walking. I have lost relationships because my partner believed it was all in my head or an attention-seeking ploy.

    I have also traveled around Europe solo for four months, enjoyed a healthy romantic life, and held down jobs of surprising responsibility and physicality, most notably being a successful retail store manager for several years. I’ve been on dozens of medications, sometimes all at once.

    Now I am 38 years old. I take Tramadol, a non-narcotic painkiller, anywhere from zero to four times a day. And that’s it, other than the occasional aspirin for a headache. I have a job I enjoy and am successful at, although I’ve left retail because it’s a hard routine to maintain without exacerbating the Fibro symptoms.

    What is it like? It’s a day-to-day, and sometimes minute-to-minute, thrill ride. You never know if you’ll be able to keep plans or lift your leg high enough to get in the shower or remember your pet’s (or husband’s) name. You might develop a limp for a day or a week because of a random muscle spasm or shooting pain down one leg. You just never know.

    You can let it rule your life, or you can choose to roll with the punches, make the necessary adjustments to your activity level depending on your symptoms at the moment, and move on. Fibromyalgia gives me Exhausting, Frustrating, Difficult, Painful, Embarrassing, and Limiting.

    Depression is common, but not inevitable. It’s all about your attitude, just like anything in life.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • I was diagnosed with Fibromyalgia by a Physiatrist who told me that he couldn’t help me.

    I was diagnosed with Fibromyalgia by a Physiatrist who told me that he couldn’t help me.

    I’ve had fibromyalgia since the 1980s. It came on gradually, with a lot of muscle pain. I knew something was wrong and had a course of physical therapy, and started working out, which put me at about 95% of normal. Then I was in a car accident, which caused a fibromyalgia flare.

    I had a nerve pinch from my neck down my arm, which was a 7 + on the pain scale and lasted a full month. That’s when I was diagnosed, by a physiatrist who told me he couldn’t help me. I have had times when I was in so much pain I couldn’t walk. Other times my feet are fine, but my glutes hurt so much I can’t move. Or my neck is locked up.

    My shoulders feel like bone plates, the muscles are so tight. I have a trigger point in my back that catches me when I’m dehydrated. It feels like a searing hot knife in my back so that I cry out loud. At least I know I need a glass of water!

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    But the worst is fatigue. I have days when I can’t think. I can’t even process what I’m reading. In those days I watch videos. I watch fixer-uppers, soothing scrolls through gorgeous houses, or animal and nature movies.

    I sit in my recliner with my computer on my lap and go away somewhere peaceful. That’s the only thing that I can do. I have many days when I can’t process numbers. It’s like my brain locks up. Try doing your taxes then!

    You have to learn to pace yourself. You can’t do any one thing for more than 2 hours. You can’t stay in any one position for more than 2 hours. Then you should completely change what you’re doing. I have to pay a lot of attention to ergonomics. I am short, and I always head for the small chair that’s low to the ground.

    A tall, armless chair is torture, nowhere to take the pressure off the weight of my shoulders. I carry a folding footstool when I know I’ll be sitting for a long time. At the movies, I sit in the front row middle where I can prop my feet on the bars in front of me. At home, I have a footstool at the dining table, my desk, and my drafting table.

    I buy fabulously expensive office chairs that are multi-adjustable so that I can at least be halfway comfortable at home. I have a massage chair in my bedroom, and a Thera cane draped over my recliner.

    I’m retired and my husband is working. We have only one car, so if I need the car for anything, I have to get up 2 hours earlier than normal, take him to work, then run my errands, and pick him up at the end of the day.

    A car day takes me a week or more to get over. The day after a car day I will sit with my computer and do nothing else. I have to plan on that. People wonder why I don’t run around doing endless fun stuff or shopping or whatever. I can’t.

    Some of my relatives think I’m just a hypochondriac. They don’t believe I’m sick because I look normal. Believe me, I’m not at all normal. I wish I could work, go places, and have a life. Oh, one last thing: I have to consider everything I put into my mouth. This disease is only managed by diet.

    I’ve given up anything with sugar in it, anything with grains in it, all processed food, all carbs except fresh fruit, which I eat as a meal by itself. It is very hard to have a social life – people serve baked goods on every social occasion. I’ve learned to bring my own food and ignore what’s on offer. When I get tired of that and ignore my own rules, I always suffer.

    My muscles feel all ropey and knotty, and they are always sore, somewhere or another. I don’t have the skin pain others describe, but ever since I had an osteopathic manipulation, I can do a stretch and it will release something somewhere, causing spontaneous muscle spasms that I can’t control.

    My husband can gauge my level of fibromyalgia that day by flicking his fingers at me. If I’m having a bad day, my head shakes uncontrollably.

    If you want to avoid this, keep yourself healthy. Stay active, and eat healthily; get off sugar and processed foods.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • I was Diagnosed with Fibromyalgia Approximately 1 month After Got Well

    I was Diagnosed with Fibromyalgia Approximately 1 month After Got Well

    Fibromyalgia is a nightmare. I have had it for approximately 25 years. My GP, at a time when it was at its worst, gave me Tramadol. It was a miracle drug for me, but it is very difficult to come off of, so I stopped taking it.

    I finally went to a doctor for emotional issues and he recommended Cymbalta. It worked immediately to lessen my pain. I also take Wellbutrin. Between the two I am very functional.

    Everything that has been said here is 100% true. I walked around for years unable to enjoy anything in life. Everything hurt constantly. Clothes were horrible to put on and then wear all day.

    At home, I put on the loosest pair of pants and shirt I could find and just tried to sleep. I think the foggy brain was the worst of it. I just wanted to be laying on my bed all the time. Sometimes I even would sleep on the living room floor. For some reason it made me feel better.

    Anyone who has never had this condition can never know how dreadful it can be. I worry constantly that my daughter is developing it. She has many of the same physical symptoms I had in the beginning.

    I firmly believe that it began after I had a serious bout of the flu. The flu attacks your muscles. I couldn’t move for one week. I developed fibro approximately 1 month after I got well.

    Anyway, I am now 69 years old and more functional than I was at 50, but I totally empathize with everyone here. It’s a horror that I wouldn’t want anyone to develop. My recommendation to everyone is to see if their doctor will give them Cymbalta if they can take it. It’s worth a try.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • In Fibromyalgia you must know that everything you wear or do how much its pain?

    In Fibromyalgia you must know that everything you wear or do how much its pain?

    It’s like having your nervous system turned up to 11. All the time. With no end in sight and only minor times where it is lessened. You feel everything that is touching you (even your clothes and light breezes) all the time, which can range anywhere from fairly irritating to “why am I being rubbed with coarse sandpaper?” Every joint and muscle feel like you’re just completed a marathon when you’ve just been sitting still.

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    People tend to see you as completely healthy, maybe even wonder why you don’t take better care of yourself. Some wonder why you don’t “just take something for it” as if a minor lessening of pain is worth the damage overusing the medicine can cause. Your body language (of being in pain) can be off-putting and isolating.

    Medical professionals have a hard time believing it exists, and those that do believe can have a hard time figuring out what to do about it. This can make it especially difficult to get help from other agencies that work for people with disabilities.

    For me, the thing that is the hardest is the lack of human touch. I flinch when touched by someone else, cause it hurts, so it makes others not want to give simple touches, like a hug or a caress, cause they don’t want to cause pain.

    You have to make a decision for everything you wear or do about how much pain it’s worth. No one can make this determination for you, nor should you for anyone else.

    Going to work, playing with kids, wearing something tight (or rougher than silk), having sex, having someone simply put their hand on your shoulder; all of these depend on how much pain you think you can take, balanced against doing nothing at all, which has its own level of pain.

    To top it off; pain is subjective. What’s horrid for one person is manageable for another. Every description will ring true for others with Fibro, but we’ll each have our own story.

    https://fibromyalgia-6.creator-spring.com/
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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Every Experience in fibromyalgia have some Level of Pain

    Every Experience in fibromyalgia have some Level of Pain

    Imagine being beaten and having huge bruises over your entire body, with a full-body sunburn on top of that, and having someone taking a stick and repeatedly poking all your tender spots while you are trying to run a long marathon. For someone with Fibromyalgia, everyday tasks are just as exhausting as running a marathon. Even simple things, like taking a shower, requires 5 times the amount of energy for someone with Fibro and CFS, then it does for a healthy person.

    In addition, they often feel like they have the whole body muscle aches of the flu. Imagine trying to live your life with the pain and utter exhaustion of the flu and never getting any better. This is why everyday activities are often utterly debilitating for someone with Fibromyalgia.

    Okay, now that you are sufficiently bruised, sunburned, and achy from the flu, don’t sleep for two days straight. No coffee, sugar, or carbs to keep you awake either. How tired and slow do you feel? Can you still think normally? Yes? Go another day without sleeping, until you are so tired you can’t remember how to spell simple words, and chewing food to too exhausting.

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    Now that you are tired enough, take 50 clothespins and put them on yourself in random places over your sunburn and bruises. Make sure to get your legs, arms, neck, shoulders, back, hands, and feet. Leave them on and try to go about your normal day even though you have the flu and feel like you can’t even get out of bed.

    Leave the pins on and try to take a shower, brush your teeth, get dressed, go to work, run errands, cook a meal, clean your house, go see a movie with friends, play with your kids, pay your bills, mow the lawn. If the pins fall off, put them back on in a different spot.

    Don’t take anything for the pain, because it won’t really take the pain away anyway, since the clothespins are still on. Leave those clothespins on until it hurts so bad you want to scream and you have tears in your eyes, and you can’t possibly stand another second. Go ahead and take them off.

    How long did you last? Feel the pain radiate through your whole body? This is the kind of pain someone with Fibromyalgia lives with EVERY DAY. Only, we can’t take the clothespins off, the flu and bruises and sunburn never go away, and the marathon never ends. Even when sitting or laying down, we still feel the pain and are still exhausted.

    According to the McGill pain scale, Fibromyalgia is directly under Childbirth as one of the most painful things a person can endure. Fibromyalgia pain ranks higher than sprains, bone breaks, tooth fractures, arthritis, post-shingles nerve pain, chronic back pain, phantom limb pain, and cancer.

    This is really what it is like for us every day.

    Everyone experiences some level of pain in their lifetime, but the difference is, eventually they heal, the pain goes away and they can go back to living their normal everyday life as if nothing has happened. For someone with fibromyalgia, the pain never goes away.

    They can not just go back to their normal life as if nothing has changed. Their life is forever changed, and they often lose the ability to work or do things they once enjoyed, because the pain and fatigue consume their entire life and every waking moment. When your life is so drastically changed, you feel like a part of you has died, and you are only a shell of the person you used to be.

    You are mourning and grieving the life you lost, only no one else knows the person you used to be has died. They don’t care, because they can’t possibly understand. How could they? They aren’t the ones who have to live in your body and endure the pain you feel every second of every day for the rest of your life.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • What are the best ways to Battle daily Fibromyalgia Nerve and Muscle Pain?

    What are the best ways to Battle daily Fibromyalgia Nerve and Muscle Pain?

    The best way is to accept it and moderate it in a moment-by-moment exercise. The stress of the “fight” will only make the pain worse for most with fibro. My new normal is that I am in pain every second of every day. I avoid unnecessary stressors which include movies and tv shows that are too intense.

    If a sporting event causes “tension and release” that is excessive for me, I stop watching. If a food causes symptoms, I stop eating it. Part of fibro is a dysregulation of the peripheral nervous system which means that our bodies may overreact or underreact to strong inputs through our senses and emotions.

    There are lots of normal things that are no longer normal for me. I have stopped fighting my new limits and have learned to accept what I can and cannot do. It is a process of grieving the loss of function and celebrating what remains.

    I have learned that I must do moderate movement and small amounts of rest continuously to function. I sleep because we all must even though I know that the lack of activity through the night will increase the cramps that must be worked out in the morning.

    But I slowly work and move through the cramps in order to function. I want to remain in bed because I wake up exhausted, but I know that a lack of moderate movement will mean that my cramping will get worse instead of better.

    I take Lyrica, Wellbutrin, Lexapro, something for sleep, and something for a learning disability. I am consistent with my medications and have tried many to find a good mix for me. I accept that this is all that the doctors can do for me.

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    The “battle” is one where people expect that there is an answer to get better, and there is no one right now. We can learn the coping mechanisms that work for us and use them. I have better days now than I had before because I move moderately, stretch mildly, rest often, set boundaries with people, and have lowered my expectations for what I am able to do.

    Fibromyalgia and Chronic Fatigue are survivable, and I can honestly say that I am a very happy man who deals with grieving the life that I lost every day. It is a process. I had a therapist. We saw each other a lot. I have learned how to disconnect a bit from my pain. I have learned how to engage in activities where the pleasure and payoff are more than the pain and costs. Those are different for each person.

    The pain seems unbearable at first, but we can habituate to it as we repeat to our brains over and over that it is not a signal that something is going to harm or kill us. If we can learn that this pain signal does not mean that a tiger is trying to eat us or that cancer is present, then we can help the body relax and attend to it less. It is a process, and it sucks. But it is better than the alternative.

    Please also understand that most doctors do not understand the disease and that opioids like Vicodin and Percocet (hydrocodone) may make fibro pain worse instead of better for many people with fibromyalgia.

    I also use downward social comparison to help my mental state. Can you imagine having this disorder a thousand years ago with no medications, no heating and air, no choice in foods, and no support groups? We are even way better off than the people who had this 30 years ago and who faced humiliation and shame for their lack of activity.

    Acceptance is a key survival strategy. Grieving is the pathway to acceptance. I still grieve every day about the things that I once could do and no longer can. I grieve the things that a “normal” person my age can normally do. But I come back to acceptance and a place of well-being in the midst of my pain.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • What are best coping tricks people with Fibromyalgia trying for their hardest symptoms?

    What are best coping tricks people with Fibromyalgia trying for their hardest symptoms?

    Post Exertional Malaise is my most annoying symptom. I had to stop exercising during a flare 4 months ago, and trying to get myself where I can go for a swim again is highly frustrating, because even a 50m swim will use up all my energy for the day, so I need my husband to do everything else for me. Almost impossible to coordinate. Everything else I can mostly sort out on my own.

    Here are my top coping strategies, in rough order.

    • Pacing, aka counting spoons. Rest little and often in between bouts of activity, and you will be able to do more. If you stop overdoing, you will start to heal and feel better.
    • Learn to say NO!
    • Exercise, even if it hurts during. If you hurt more afterwards, you did too much – reduce by half next time. If you are more tired the next day, you did too much – reduce by half next time. Start small and increase only very gradually. Try and do some every day, unless overtired. D-ribose may protect you a bit from overdoing. Deconditioning is what causes disability IMHO
    • Keep a journal of symptoms and treatment, so you know what works and what doesn’t for the future.
    • Treat the symptoms. If one particular joint hurts, you probably injured it, see a doc. If it’s generalized pain, it’s probably fibro.
    • Sleeping shouldn’t hurt (much). If it hurts to lie in bed, you need something softer like a memory foam topper.
    • Massage is wonderful… If you have the right therapist. If it hurts much, get a new one. A good one can take apart your trigger points, reducing pain.
    • When pain is driving you nuts, have a hot bath with 1 cup (or more) Epsom salts. Keep in mind heat is tiring, so this is best done before bed.
    • When overwhelmed, go find a dark and quiet spot to rest. TV is not real rest! Nor is having a conversation
    • Eating sugar will make you tired, guaranteed.
    • Caffeine energy is fake. Don’t, you’ll feel worse.
    • If you are stressed out or depressed go see a therapist. No, I am not suggesting this is all in your head, but your head can help or hinder.
    • Meditate! Or do yoga, or other mind-body techniques. Your body will start to relax. You have no idea how tense you are until you feel yourself relaxing. Tension causes fibro pain.
    • Don’t rely on your doctor to solve this. The best way to cope is take control. The changes that make the biggest difference are all about lifestyle… all the drugs these days just treat the symptoms and give crappy side effects.
    • Supplements can be almost as powerful as drugs, if you get someone really good to prescribe. Go find the best in your city. One day I’ll write a list of what works for me, but it’s really really long! In the meantime, here’s a good spot to start.

    I could go on, but that’s enough for today…

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Have any incidents or trauma in your life that bought on your Fibromyalgia?

    Have any incidents or trauma in your life that bought on your Fibromyalgia?

    Story of Fibromyalgia Support Group Warrior

    ABSOLUTELY!!! December 2009 thru January 2010…..I was employed at a Major grocery retail store’s food warehouse (not naming names, but a little hint would be they are based in Germany…I would LOVE to just name the company and give as many bad reviews to them as I could.

    I HATE this place …they have NO regard for their employee’s health safety or anything else for that matter…all this place cares about is the Almighty Dollar!!) I had been employed at their warehouse for about 13 yrs I think.

    I still can recall all 5 days I used as sick days, meaning, I was there all the time…I never called off, my boss used to say “if you look up “woman hear me roar” in the dictionary you’d see my face”….I was an exemplary employee!! They decided they needed to expand the warehouse due to growth.

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    They employed several outside contractors to do the work. Long story, it could take me days to tell the details, but I will spare you all that. I worked in the freezer area where they cooled and froze products using Ammonia gas.

    An employee of one of the companies went into the area, in FULL gear (suited up and a mask (respirator type mask), and instead of clearing the lines of all the existing ammonia first, he cut the pipe. the entire dock area where I was filled with ammonia gas.

    (I’m actually getting goosebumps as I’m reliving this incident) A few days later, another one of the companies was doing concrete demolishing on some of the walls. The ENTIRE dock area AGAIN was affected.

    Do you all remember the picture when 9/11 occurred with the people running down the sidewalk with the huge plume of smoke and dust behind them?? That is what the dock looked like! We all who worked there could hear each other, but there was NO way to see each other!!! Needless to say, after these 2 incidents and after breathing all these toxins, my breathing became almost impossible!

    I had woken up in the middle of the night to use the bathroom. As I was attempting to get back into bed, my throat closed. I couldn’t breathe!! My husband called 911 and they took me to the hospital via ambulance. (the whole while my 3 yr old son was yelling and crying “please don’t let them take my mommy”). They ended up sending me to a pulmonologist.

    He had me on 5 different inhalers and MASSIVE amounts of prednisone to try and take down all the swelling of the airways. I was diagnosed with Asthma. THAT was the first of so so many diagnoses! It “freed” my vocal cords (I actually had to take Speak Therapy to relearn how to talk, breathe and learn how to try to breathe if an attack started to happen.

    So here’s the list: Asthma, Vocal Cord Dysfunction, Fibromyalgia, Lupus, Migraines, Adrenal Insufficiency (this was a BIG one as I almost died), PTSD, and anxiety, SEVERE continuous pain 24/7.

    I’ve had my lower back and neck fused, I’ve had a “pain stimulator” inserted into my right butt cheek with the leads put into my spine to try and help ease the pain, More trigger points, cortisone, and botox shots than I could ever count.

    The last 20ish years have been a HELLISH NIGHTMARE!! I have lost, NO they have TAKEN away, my job, health, income, insurance for the family and myself, 401 K retirement plan, 5 weeks vacation, and probably most of all my self-worth! I struggled with guilt, (God only knows why this “incident” was by NO means my fault at all!) not being able to provide for my family what I did for so long!

    Almost lost my husband, it is so much harder than ppl think to deal/live with someone with chronic issues! I feel so bad for my husband and 2 kids!! My son “has a much different” mom than his sister!!! SO there is my answer to your question: “Can I pinpoint an incident or trauma in your life that brought on your fibromyalgia?”……ABSOLUTELY I can!!

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • How can I help My Mother she has Fibromyalgia?

    How can I help My Mother she has Fibromyalgia?

    She can barely get out of bed some days. One day it’s her foot, another it’s her hip. She’s sad and tired and feels like my and my sister I’s lives aren’t what they could be because of her. How do I help her?

    Patience and compassion are the keys.

    Your mother isn’t making things up. She’s not lying; she’s not exaggerating.

    One of the hardest things for “norms” (people without invisible illness) to understand is the erratic nature of this disease. Just because I could do this thing yesterday doesn’t mean I can do it today.

    She’s likely struggling in three areas; pain, fatigue, and what’s referred to as “brain fog”.

    Pain:

    It never ends. There isn’t a moment (unless strong drugs are involved) that your mom is pain-free. It isn’t mild pain. It’s pain that’s severe enough that it cannot be ignored, even for a little while. It’s there, weighing her down, every minute of every day. And like you noted, it wanders.

    Today it’s in the hips, tomorrow in her hands. It’s worse in the morning, but it never goes away and gets worse with exertion. She will probably need help with simple things, like opening jars, or vacuuming.

    Fatigue:

    This symptom is part of a vicious circle of pain. Pain uses up a whole lot of her energy. Think of it like bandwidth on computers. Pain hogs most of it, so everything else has very little energy.

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    When she’s feeling bad, she may be as exhausted as a marathon runner with the flu. When fibro is flaring, I sometimes sleep up to twenty hours a day, for several days in a row, and still feel exhausted. This can make it dangerous to do tasks most of us take for granted, such as driving.

    “Fibro fog”:

    This one is hard to explain. It’s almost a physical sensation. It feels like my head is stuffed with cotton. My memory is completely shot. I have trouble communicating because I can’t remember the words for things.

    My kids have become experts at figuring out what I mean when I ask them to go get me the “thing for the thing” (usually accompanied by a vague hand gesture). I mean the broom but cannot remember that word for the life of me. Simple conversations become nearly impossible to follow.

    Watching TV is impossible because I can’t understand what’s happening. Remembering appointments, or what you said to me five minutes ago are as unattainable as the peak of Mount Everest. I’m not stupid. I’m just “busy” being exhausted and in pain.

    Your mom will likely be struggling with the guilt that she can’t be the kind of mom we see on TV. Remind her that you love her no matter what. Take responsibility for any of the household chores that you can manage. Nagging you probably takes more energy and mental effort than she has.

    Every bit of physical effort you do for her frees up a bit of energy she can spend on you. Forgive her when she cannot do things for you like help you with your homework, or when she has to cancel attending your events, and remember it kills her to have to do that. Write things down for her, instead of expecting her to simply remember.

    Remind her of events a few times in advance. She loves you. It’s just that her body fails her more often than she’d like. Tell her you to love her. Knowing her kids are OK is very important. I’m not recommending you lie, but when it’s true, remind her of it. Worry is a huge energy sink.

    If you’re lucky, you will end up as compassionate and self-sufficient as my kids have. Their childhood wasn’t typical, but I think they’ve come through it OK.

    NB: I’m having a bad flare day, so hopefully this makes sense. I’ve spent quite a while editing. I Will have to come back when I’m feeling better and rework it, I’m sure.

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