Tag: fibromyalgia warriors

Celebrate the resilience of Fibromyalgia warriors, sharing stories of strength, tips for managing symptoms, and resources for support and empowerment.

  • AHA News: Worried About Her Health, She Lost 163 Pounds – And Inspired Her Husband to Drop 55

    A few weeks before Thanksgiving, Ken and Morgan House of Newington, Connecticut, spent a week at one of her favorite places – Disney World. They walked to all the theme parks, went on countless rides and shared healthy meals.

    Every day, Morgan would smile broadly at Ken and shoot him an expression that said, “Do you even believe this?”

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    The last time the Houses were there, Morgan weighed 357 pounds. Ken weighed 280.

    While they enjoyed the trip, Morgan couldn’t walk for more than 10 minutes without needing to take a break, her knees hurt and she didn’t fit on some of the rides, including Avatar Flight of Passage, one of her favorites.

    That was in January 2020.

    In November 2021, Morgan weighed 194 pounds. Ken weighed 225.

    “I wasn’t struggling to get in and out of rides,” Morgan said. “I wasn’t struggling to walk. In fact, I was doing 15,000 to 20,000 steps a day without batting an eye.”

    One day, she cried with gratitude exiting Flight of Passage.

    The tears of joy were as much about conquering her lifelong struggle as they were about enjoying that ride.

    “Being overweight prevented me from being my best self, my confident self,” she said. “You internalize how society views you as a fat person.”

    In high school, she began what would become years of trying various diets and workout plans. Her weight yo-yoed, always ending higher.

    In her 20s, she started getting migraines and was diagnosed with fibromyalgia, a condition marked by pain. Later, she developed sleep apnea and prediabetes.

    Doctors recommended bariatric surgery. Morgan saw that as a last resort. She wanted to continue trying to lose the weight on her own.

    In her 30s, her struggles continued. Between pain from the fibromyalgia and a lack of activity, “I kind of spiraled,” she said.

    “Once my weight got to a certain point, I had depression, anxiety and felt out of control,” she continued. “My life was feeling unmanageable.”

    Morgan was in her early 20s when she met Ken. They married five years later.

    “She was always beautiful to me, and I’ve always loved her,” Ken said. “But I saw the weight as impacting her quality of life and self-esteem.”

    A few years ago, a doctor encouraged Morgan to learn more about gastric bypass surgery. It’s not enough to want the operation; patients must meet certain guidelines to qualify. These include a willingness to make permanent lifestyle changes.

    “I thought, ‘This is a tool that can physically help me,’” Morgan said. “It was very scary, and I had a lot of emotions, but it also felt promising.”

    Ken, meanwhile, was having his own middle-age wakeup call. He’d long been on medication for high blood pressure.

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    “I always knew I was too heavy, but it just didn’t bother me,” he said. “Then my physician told me I was a ticking time bomb for stroke and heart attack because of my blood pressure, heart rate and metabolic panel.”

    He was also developing sleep apnea. He’d wake up in the middle of the night feeling like he was drowning. He feared leaving behind Morgan and his daughter from a previous relationship.

    “I want to be there for both of them,” he said.

    Ken vowed to walk 10,000 steps a day. He aimed to limit his daily diet to 2,000 calories.

    As he began slimming down, Morgan received the OK for the bariatric surgery. She underwent the procedure in September 2020, then began adjusting to her new life.

    “I might think, ‘Oh, I can’t fit between that chair and the wall’ – when, in fact, now I can,” she said. “It’s a weird feeling.”

    Another weird feeling: Adjusting to people treating her differently just because there’s less of her. It makes her angry.

    “At 357 pounds, I felt invisible,” she said. “Then when you’re the same person but 163 pounds lighter, you’re suddenly visible.”

    The weight loss has made them healthier.

    Ken said his sleep apnea is gone and he’s in the best shape of his life. Morgan is especially excited about walking long distances without knee pain.

    She’s looking forward to their Disney-themed vacation for her 40th birthday on Jan. 28.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • New Awareness For Fibromyalgia

    It’s an unfortunate fact that Fibromyalgia doesn’t always get as much media attention as it deserves – leaving many of us feeling isolated in our pain. The good news is, things might be starting to change. This past Novemeber, The British Medical Journal published a Clinical Review of Fibromyalgia – validating the condition, the underlying causes as well as the tested therapies used to treat it.

    The review had some incredibly interesting statistics, explaining that fibromyalgia could be present in 10% of the population. This figure is substantially more than the 2-4% that was previously estimated. While the article focuses mainly on more well established treatments, The Fibro Clinic is able to pick up where they leave off with the newest, most cutting edge treatments spanning from around the world.

    Keep an eye out for future blog posts with the latest and best fibromyalgia treatment news!

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • The Symptoms of Fibromyalgia for emails with over 12,000 patients

    The Symptoms of Fibromyalgia for emails with over 12,000 patients

    We know what it means to have Fibromyalgia. Throughout the years, our team at The Chronicillness.co team have talked and exchanged emails with over 12,000 patients, read countless articles, watched more DVDs than we could count, and attended numerous local, national, and international conferences.

    When it comes to symptoms, the first thing patients say to us is normally along the lines of, “The pain is so bad, I’m so stiff I can hardly move and I can’t sleep well at all. My life is misery.” When we meet face to face, the look of despair is almost always there, despite trying to be brave facing a condition that many still pretend doesn’t exist.

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    Other symptoms mentioned are commonly anxiety, depression, post-exertional fatigue/malaise, problems with temperature control or cold intolerance, sensitivity to many stimuli including bright lights and noise, irritable bowel (often this presents itself as constipation or diarrhoea and bladder/urinary frequency problems), headaches, brain fog (many patients find this one of the most distressing symptoms), hypermobility (often causes weakness in muscles or joints leading to frequent injuries), alcohol and medicine intolerance, dizziness, restless leg syndrome, and occasionally Neurally Mediated Hypotension. Oftentimes they also have a family member with Fibromyalgia.

    We have spoken to many patients who also suffer with ME/CFS and fatigue is their main problem, very often followed by pain, stiffness and sleep problems. No one really understands fatigue as a symptom on its own, however much is now known about the pain, stiffness and sleep problems of FM and CFS/me.

    Although it’s not a symptom, but more a result of these symptoms – most patients mention an overall feeling of despair. Many struggle in their personal relationships and regret having to miss out on time or activities with family. Often they’ve had to put careers on hold or have stopped working completely – leading to a breakdown in hopes, dreams and aspirations.

    Here at The Chronicillness.co team, we urge you to remember that you are not alone. Fortunately there are ways to better your overall condition and total health. Our hope is that those who stumble across this page may find solace in the fact that there are indeed people out there just waiting to help you – and we hope to hear from you soon.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Mindfulness for Fibromyalgia by best possible treatment in our holistic

    Mindfulness for Fibromyalgia by best possible treatment in our holistic

    In order to provide patients with the best possible treatment in our holistic approach at our Multi-disciplinary Clinic we try to consider everything available and as part of that we’ve looked at many non-drug therapies over the years. Many of these treatments or therapies are for reducing the Sympathetic Nervous System over stimulation (or the heightened fight or flight reaction most readers will have heard of) of Fibromyalgia have been studied and now part of our scientific treatment.

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    One therapy that’s getting a lot of attention lately and is thought to reduce the Sympathetic Nervous System over stimulation and has shown improvements in Fibro symptoms is Mindfulness. Kim Jones, PhD recently completed a clinical study on Fibromyalgia and Mindfulness and it was the cover article in the USA Fibromyalgia and Chronic Pain Life Winter Magazine 2014 issue, where they state “These results indicate that practicing mindfulness techniques may be a low-cost, side effect free option for people wishing to reduce the severity of their fibromyalgia.”

    Basically practicing mindfulness techniques starts with the concept of living in the moment and not looking back into the past or forward into the future. Try to keep your mind in the present moment of whatever you’re doing, so if you’re ironing, doing paperwork or walking, just focus on those things in your mind and don’t think about other things. My best Mindfulness moments are when I walk my dogs, no matter how stressed I am at the beginning of the walk I come back….calm.

    Another good principal is to stop multi-tasking. You really can’t be calm if your mind is racing, trying to do several things at one. Try to just do the one thing and do it well, then move on to the next thing that needs doing and just focus on that one thing.

    Finally, meditation and deep breathing are also essential to obtaining Mindfulnesses possible stress reducing effects, which should then hopefully reduce the Sympathetic Nervous System over stimulation and possibly help reduce your Fibro symptoms. The body can’t heal if it feels it’s under threat, so being calm and rested are thought to be essential to one’s recovery.

    There are many sources of Mindfulness online and most CBT (Cognitive Behaviour) Therapists will be familiar with it and be able to offer advice. So relax and don’t stress if you don’t get Mindfulness at first – as that defeats the entire purpose!

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    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Research shows a Car Accident Influence Chronic Pain

    At the 2014 American Pain Society Meeting, a hot topic of conversation focused around the emotional and physical repercussions following a car accident.

    Because persistent pain and disability often occur after whiplash or other musculoskeletal injuries, it is of interest to understand to what extent poor expectations of recovery influence overall outcomes.

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    A 2007 study published in the Journal of Rheumatology concluded that poor expectations of recovery can be a powerful predictor of adverse outcomes. To expand on these findings, a team from the University of North Carolina has now conducted research to further analyse recovery outcomes following accidents.

    In the study, it was found that physical recovery expectations were lowest in the hours just following the accident due to high stress levels and emotion. This acute psychological distress was most strongly associated with poorer expected recovery.

    Additionally, a large factor in expected recovery period was the overall mentality of the patients prior to the accident. Patients who had reported good physical health and traits of optimism before the accident in turn had shorter estimated recovery time.

    In contrast, those who had a slightly more negative outlook, perhaps having previously suffered pain, felt that the other driver was at fault, or suffered from depressive symptoms, had a longer expected recovery.

    In short, acute pain in addition to preexisting psychological symptoms were found to be directly correlated with physical and emotional recovery following a traumatic accident.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Why no one seems to ask us how fibromyalgia is affecting our relationships

    Our doctors spend a lot of time asking us questions like ‘what are your symptoms?’ and ‘how’s your sleep?’ So why is it that no one seems to ask us how fibromyalgia is affecting our relationships? Our spouses, our children, our friends and our colleagues – all of them are affected when it comes to fibromyalgia, but to what extent?

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    The National Fibromyalgia & Chronic Pain Association recently posted a survey asking about fibromyalgia symptoms and the impact that fibromyalgia had on relationships with partners/spouses, children, and friends. The survey was completed by over 6000 people with fibromyalgia, making it one of the largest fibromyalgia surveys. The results were published in the medical journal Musculoskeletal Care.

    Out of those who participated, 96% were women and most were between 45 and 64 years old. The results were as follows:

    Relationships with significant others:

    Over one in four people reported that their spouse/partner did not understand their fibromyalgia, and half of people said fibromyalgia had damaged a current or previous relationship with a spouse or partner. 10% said fibromyalgia contributed to a break-up of a relationship.

    Relationships with children:

    Over 70% of people surveyed said they had children who were old enough to understand their FM. One in three said their children resented when they couldn’t participate in activities with them, and one in four said their children thought they exaggerated their pain.

    Relationships with friends:

    In general, those surveyed explained that fibromyalgia had less of a negative impact on friendships than with spouses/ partners or children. That being said, many people felt that having fibromyalgia resulted in eventually losing friends, as many stopped calling or extending invitations.

    Here at The Chronicillness.co team, we don’t want your relationships to suffer on account of your fibromyalgia. We are constantly taking new research and information into consideration when finding the correct treatment path for our patients, and strongly believe a multidisciplinary approach to treatment can help manage symptoms for a better quality of life.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Patient Questions: Answered related to Fibromyalgia

    Question:
    I have had fibromyalgia for some years. I would like to address the illness and get some help in managing pain levels better, any advice?

    There are many steps you can take when it comes to managing your fibromyalgia. To start, choose activity wisely. Exercise regularly, but do not overdo things. Set personal limits, and always remember to take a rest. Try your best to remove yourself from situations that are likely to cause stress as this can aggravate pain, and modify your working environment to better suit your situation. During a flare-up, do less, take warm baths or use ice — whichever works best for you. It is also a good idea to read up on some simple mindfulness techniques such as meditation, deep breathing, or visualisation — as many patients see relief from these practices.

    With several years of experience treating patients with Fibromyalgia, The Chronicillness.co team truly empathise with the obstacles patients face on a daily basis. We are constantly taking new research and information into consideration when finding the correct treatment path for our patients. We believe in a multidisciplinary approach comprised of tried and tested measures to effectively lower and manage symptoms for a better quality of life.

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    Question – Ethel from Gateshead asks:

    What are trigger point injections, and how are they most effective (i.e. all over the body pain or more targeted trigger points?)

    There are a number of different types of trigger point injections including dry needling (acupuncture), and wet needling (with local anaesthetic/ local anaesthetic plus steroid or botox).

    Trigger point injections are thought to work by causing local relaxation of muscle fibres, leading to a reduction in tension and a reduction of afferent pain traffic back to the spinal cord. They also release endorphins in a number of patients, which gives an overall analgesic effect. They are most useful when there are specific targeted trigger points, rather than when patients have widespread all over body trigger points. The aim is to shrink down the area of trigger points to the smallest area, before using trigger point treatment.

    Question – Sam from Watford asks:

    If someone has all over body pain, can treating the worst affected area with trigger point injections help the other areas?

    Yes, in some cases this can be effective, although this is always on a case by case basis for which patients need to be fully, medically assessed. Various treatment options must be reviewed and discussed in person with the patient, so they can make an informed decision as to the best course of treatment.

    With several years of experience treating patients with Fibromyalgia, The Chronicillness.co team urges patients to consider trigger point injections as a highly effective treatment options with little to no side effects.

    Question – John from Edinburgh asks:

    What are the main benefits of TPI’s and can successful TPI’s result in lower requirements for oral drugs?

    The main benefits of trigger point injections include reduction in pain, spasms, and analgesic requirements, in addition to improvement in overall functions. If and when trigger point injections (either dry or wet needling) is effective, this can indeed lead to a lowering of oral, analgesic medications.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia sufferers finally acknowledged by the USA

    The New Year is off to a great start already, as fibromyalgia sufferers in the U.S. have finally been acknowledged. As 2015 came to a close, fibromyalgia received its own official diagnostic code in the ICD-10-CM codes in the U.S. ICD-10-CM stands for International Classification of Diseases, 10th Revision, Clinical Modification. This is a list of diagnostic codes used for medical reporting in the U.S.

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    The ICD-10-CM is based on the ICD-10, the statistical classification of disease published by the World Health Organization. ICD codes are used by everyone in the healthcare industry, such as doctors, insurance companies and government agencies. They are used to identify and classify diagnosed diseases and conditions.

    Prior to the official code, when diagnosing a patient with fibromyalgia, doctors had to use a general code, which could include any muscle pain or inflammation. However, now FM is recognized as a distinct entity with its own code—a meaningful and exciting change for all who suffer.

    The fact that fibromyalgia has its own diagnostic code now makes it impossible for anyone to insist that fibromyalgia isn’t real. Both the World Health Organization as well as the U.S. Government have given it unquestionable legitimacy.

    Additionally, a distinct diagnostic code will improve consistency in fibromyalgia research, as the data for many observational studies is gathered by tracking diagnosis codes. Without its own diagnosis code, fibromyalgia studies have sometimes been hindered by inaccurate data from the inclusion of patients that did not actually have FM.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia syndrome: 4 ways to cope with the pain

    Fibromyalgia syndrome causes widespread pain and stiffness in the body which gets worse as the day progresses, leaving you feeling weak. This syndrome can have a huge impact on how you lead your life on a day-to-day basis. A range of treatments are usually prescribed for long term management of fibromyalgia pain including physical therapy, psychological therapy and drugs.
    Below are some useful coping techniques to help you manage the pain on a day-to-day basis.

    Hydrate yourself

    That clear liquid we take for granted every day can actually help to relieve the symptoms of fibromyalgia. Did you know that fatigue and headaches can be caused by dehydration? Our adult bodies are made up of approximately 70% water which evaporates through breathing, sweating and other natural bodily functions. Drinking water helps to flush all the toxins through your liver and kidneys and out of the body. Aim for at least 8 glasses each day – being hydrated will help to fight off fatigue. If you don’t like plain water try a squeeze of lemon juice or lime to add some flavor.

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    Get some sleep

    Fibromyalgia sufferers tend to have disturbed sleep – research has shown that sleep deprivation can cause widespread pain and chronic daytime fatigue. The key to reducing fatigue is quality sleep. Unfortunately, it’s a double edged sword as the pain makes it harder to sleep but sleep helps to relieve the pain.

    You can encourage a better night’s sleep by setting a regular time for both going to bed and getting up each day. Make your bedroom a cool, dark, distraction free space and avoid drinking caffeinated drinks in the evening. If you feel the need to use a computer before bed you should try and restrict it to at leapt an hour before you go to sleep. If you find your thoughts are what keep you awake you can try keeping a notepad beside the bed and write down the thoughts you have and listen to relaxing music to unwind your mind. This is an effective technique for reducing anxiety.

    Take a bath

    A study in Rheumatology International (2008) confirmed hydrotherapy as a method of relieving the painful symptoms of fibromyalgia. Warm water helps to circulate the blood, reduces the pressure placed on joints and helps to relax the muscles (and the mind). Whilst a hydrotherapy pool isn’t a luxury available to everyone on a daily basis, instead you could have a long, warm bath in the evening to help soothe your muscles.

    Keep moving

    We’re not suggesting that you go and sign up to a 5k race, but research has shown that gentle exercise plays an important role in helping to break the pain cycle, reduce stiffness and improve the symptoms of fibromyalgia. If the pain is bad, it may not be possible to exercise much but starting slowly with a few easy stretches, then working your way up to doing more is a good way to ease into it. Gentle exercise like yoga, walking or swimming will all increase your heart rate. Start out slowly and for short periods of time, then as you are able, work up to 30 minutes a day if you can.

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    https://www.teepublic.com/stores/fibromyalgia-store

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • What it is like to live with Fibromyalgia?

    I am a retired Author and Producer of large creative events and most recently a Paper Maker, Sculptor and Workshop Leader. My husband always said that I metamorphosis at various times throughout life. We married very young and have three children and four grandchildren.

    I was first diagnosed about six years ago. Gradually as my Fibromyalgia symptoms became worse I have had to learn to give myself permission to simply play with materials in the studio and not feel I have had to achieve anything which I have found extremely difficult and I have been very grateful for friends who have encouraged me through playing with me so that occasionally I can make again. Even if I don’t feel like it, I do recognize that creativity is one of the key healing elements in making one feel more uplifted and human.

    I’ve been going to start this article many times but each time I was about to commence the dominant worst characteristics of my Fibromyalgia change, flawing me and causing me to stop and draw upon inner strength to refocus and start writing yet again!

    I have not tried to use medical language but leave that for the experts! Also, I’m never very sure on some aspects whether the medication that is helping some of the more serious symptoms are helpful with others but again rely on expert advice.

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    Of course, all the other symptoms just keep perpetuating and even multiplying at times over the years and sometimes to me even seemingly replicating other diseases but I will come back to these.
    Upon reflection over the years I consider the worse aspect living with Fibromyalgia is the aloneness. Nobody actually sits down with you and says “now tells me what is it like living with Fibromyalgia?” Nobody. People will say how are you today? But that is embarrassing. Do you really want to be known as someone who complains all the time? No! So, to inform a little you just mention localized pain and weakness sometimes.

    When you have a medical appointment, you pick out the worst aspects at that moment of time and it is those that get treated but I am fortunate and have an excellent medical team who’ve heard them all before and so have an overall picture.

    Each day is a challenge and current severe pain areas are in my arms, shoulders, neck and in mostly in the top and back of my head. I also have ongoing very bad pain in my back and hips which is brought on by standing mostly at the kitchen sink after a few seconds, walking or any movement in fact. Pain is extremely unpleasant and can cause a lack of functioning but it is not something I am frightened of and do not therefore retire to my bed. I do get up in the mornings as I believe in moving very strongly and rest between moving. This has been a problem in the past with other extreme health conditions so I try to gage the level sensibly!
    At the moment I am not getting the pain in my legs and feet and toes only normal muscular after exercising. Neither in my hands and fingers. My toes have pins and needles. The shooting pains particularly in my breasts and stomach are also not occurring.

    Starting at the top of my body sleep has been a very difficult issue and until recently due to medication I’ve only been able to sleep on average about 4 hours a night, now I sleep a little longer. I haven’t been able to cope with the computer for longer than 20 minutes at the most without feeling stressed or having a brain fog. Neither can I cope with flashing lights, bright light or loud noises and can feel dizzy easily. Memory loss is embarrassing to say the least.

    I have awful indigestion although I eat little and very slowly and I frequently feel sick. This seems to be felt through heartburn or coughing. I am breathless very easily. I have gradually lost my enjoyment of food.
    I feel as if I have a urine infection most of the time which again interrupts the night as I get up between 5 to 7 times a night and can’t go out without stopping frequently. My vagina is so sore and painful and sexual intercourse has been out of the question over the last few years.

    My body temperature fluctuates excessively at times and for the first few years I felt hot all the time which was unusual, then this changed (which may have been due to medication I don’t know) to frequent hot flushes even if I want to go to the toilet and always at night time so feeling very menopausal. I have never been a sweaty person but during these very warm times I do sweat and it is quite sticky unlike usual sweat. It can feel as if sweat is trickling down my legs. I can go from very cold to very hot within seconds. Patches of my skin can sometimes feel as if they are burning.

    I experience extreme itching all over my body at times and this can for me exceed the pain as it is so tormenting. Other times it just on my head, back areas and leg areas. Also. It can feel quite separately that there are insects crawling under my skin often in my legs. Another sensation is that I have experienced in the past is similar to shingles with similar stripes appearing that can be painful and itchy on my back and under my breasts for a few days.

    I also woke up one day with a red rash on one eye which looked as if I’d been punched in the eye preceding a black eye and was told by a friend who is a medical officer to go straight to A&E where they had an Eye Hospital as my sight kept coming and going. They didn’t know what it was but said I should contact them day or night if necessary. It took nearly a week to completely disappear. My eyesight does occasionally waver and my eyes feel dry and itchy all the time.

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    I also bruise very easily sometimes as red dots which turn blue and other times as a bruise that spreads.

    Normal tasks like cleaning one’s teeth proves very painful whatever I try to alleviate backpain and having a bath is no longer a pleasurable experience so I always shower. This again means inwardly priming oneself up because of the effort taken particularly if I wash my hair. Do I try to keep my arms up in the air or do balance them against my body and bend right over which is going to prove the easiest on that particular day? Of course, not all days are this bad.

    The frustration of being so weak was where I started and it was some time before diagnoses when I complained about pain too. One still hopes to grow stronger through exercise and it is wonderful to no longer be in a wheelchair thanks to meeting Dr Jenner who promised to get me into a better place which indeed he has and through his advice, medication, physical programmed within a year my wheelchair was stored in the attic! Together with my osteopath Victoria Latchem in Dartington, Devon where I live, they are rocks and I look forward to future times of accomplishing the peculiar things on my bucket list!

    Each day no matter how I feel I always determine to be:

    • – up and dressed no later that 9am and try to be earlier than this
    • – make a list of tasks I want to accomplish even if some go over to the next day
    • – go for a walk no matter how much pain knowing that gently moving the muscles will help for the next day
    • – exercise if possible

    Strategies are important too like doing the vegetables or similar jobs sitting down at a table or on one’s lap watching the TV to distract from discomfort.

    However, with the added stresses of Covid19 the fight to be positive is more difficult and depression is now an issue which affects me as an artist but also in the home. People are an antidote even if on zoom.

    I could not cope without my wonderful husband who does know, asks questions and understand as much as anyone can what it is like to have Fibromyalgia living with me every day although he may dispute this. It is very difficult to see someone you love suffer and get frustrated even if they don’t say anything. I would almost say it is worse for him than me. He became like a carer when I deteriorated and therefore, I would say that if I was on my own further strategies would be necessary.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store