Tag: fibromyalgia warriors

Celebrate the resilience of Fibromyalgia warriors, sharing stories of strength, tips for managing symptoms, and resources for support and empowerment.

  • Do you know someone who was diagnosed with Fibromyalgia and Polymyalgia?

    Do you know someone who was diagnosed with Fibromyalgia and Polymyalgia?

    I can tell you as someone who was diagnosed with PMR and fibro, most PMR info on the internet isn’t all that accurate. PMR usually affects elderly women, but it’s not so rare for younger folks to have it. And, most who are below the age cut off aren’t even given the blood tests needed to confirm the diagnosis because doctors just think it’s impossible to have PMR at 30, 40, 50 years of age.

    I was 54 when I woke one morning thinking I must have the flu due to the unexplained pain and stiffness in my body. Over the course of two weeks, I had two primary care visits, pretty large doses of pain meds, increasingly painful stiffness that lasted until 2 or 3 p.m., severe sleep deprivation, rapid weight loss.

    I thought my normally attentive primary care dr might have a cruel streak in her when she denied prescribing me steroids (I was desperate for relief) even for just 2 or 3 days until my appointment with the rheumatologist arrived. She explained it could mess up important blood work the rheumy would likely need.

    By the time I saw the rheumatologist (just 2 weeks from the onset of symptoms), I could not dress my upper body, wash my hair, or brush my hair because of the pain and extreme lack of mobility in my shoulders, upper arms, and neck. I couldn’t drive because I could not turn the steering wheel or press on the brake hard enough to stop it from moving.

    I couldn’t turn my head to look to the side let alone behind me to back up. I literally performed an off-balance hobble to the bathroom when needed, and spent the rest of my time in a recliner. It was the least painful thing I could do to help myself. I could barely hold a fork or spoon let alone cut any food.

    My lower body was crippled by horrible pain and unbelievable stiffness. Feet, ankles, knees, hips are all affected. This was sheer hell. Every single day my condition worsened exponentially. My first time in a wheelchair was my first appointment with a wonderful rheumatologist. I needed help getting out of the wheelchair and into the SUV to go home because I couldn’t rise without falling back to the wheelchair seat.

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    I went into all that because when I googled my symptoms, PMR was often a result but I didn’t think it was that because the information didn’t even touch on the severity, that it could be completely disabling within just a few days time, or the widespread symptoms outside of the upper body morning stiffness. No way did those symptoms cover what I was experiencing!

    Upon diagnosis, I started a prednisone regimen and found a couple of PMR groups on Facebook. When I read thru the posts of the first group, I did it through heavily flowing tears and frequent nose-blowing breaks. I scrolled and read all night long. THESE PEOPLE WERE DESCRIBING MY EXPERIENCE!!! I truly felt 100% alone in this outside of my rheumy understanding what was happening and assuring me I’d get better.

    Nothing in print truly confirmed my symptoms. When you are at a pain level of 8 to 10 every single moment of every single day, when the 30-minute increments of sleep you manage a few times a night end with the sound of yourself moaning in pain loud enough to wake you, when you’re hypersensitive to light, sound, motion, touch, and the best-printed info you can find makes it sound like you have some aches and pains in the morning, you feel A.L.O.N.E.

    It was in the FB groups where I learned that the severity of symptoms and problems simply getting yourself to the toilet to pee was the norm. Countless people younger than me had PMR. Countless people suffered for months, got addicted to pain meds (which do not help PMR, by the way), were brushed off by doctors as complainers or drug seekers, never even received referrals to rheumatology! It’s a fairly rare condition but frequently misdiagnosed or undiagnosed, and not treated properly.

    Bloodwork alone doesn’t 100% confirm PMR. But, bloodwork combined with improvement with prednisone is confirmation. Unfortunately, so many in the FB groups have struggled for years–even decades–because we are individuals who respond differently to the same treatments.

    Prednisone is the cure (although some have achieved success with an anti-inflammatory diet & lifestyle change). No amount of pain meds will help. I know. I was on heavy doses for 2 weeks.

    I was fortunate to start low-dose pred, increasing dosage until I was able to function. Stayed on that dose for a couple of months & tapered down (which was scary because each small decrease in dosage brought on flares for a few days) over the course of a few months. I’ve had a few flare-ups since, but the bloodwork was borderline, so I chose to wait it out & I was lucky enough that the flare-ups passed on their own.

    When my rheumy diagnosed the PMR, he said he thought there was something else going on too but he wanted to get the PMR under control first. It was later that he was diagnosed the fibro. Fibro is a bitch. I hate it. It’s unpredictable & the brain fog not only makes you feel like you’re losing your senses, I think it can actually make you crazy at times.

    It’s a struggle to mentally and emotionally deal with the daily pains & bouts of extreme fatigue, and flare-ups that can leave you bedridden, but it’s the unpredictability, the making plans and doing everything possible to be prepared to keep your plans or commitments, and not knowing until the time comes if you’ll be able to do it….and if you are, how long will you last?

    The two conditions are similar in that they push the limits of pain & fatigue, but they are very different, at least for me, in how adversely they affected my life. I’m one of the lucky PMR-ers because my length of treatment fell within the parameters of most descriptions, and my steroid dosage was in the middle range too.

    As much as I hate fibro, I’d choose it over PMR if I had to choose one or the other. Unless there’s a guarantee PMR will be treated with success in getting off prednisone, I’d choose fibro cuz I wouldn’t stick it out for years and years with PMR pain, or OMR pain-free but stuck on prednisone forever.

    So, if anyone had the patience to sit thru my ramblings, I hope you felt you gained some helpful insight. My intent was to inform readers that most material describing PMR (including that handed out by doctors) makes it sound like a Club Med experience compared to the living hell it really is.

    If you suspect you may have it, insist on seeing a rheumatologist for the best chance of successful treatment. Successful means little to no pain and steroid-free! This turned out to be therapeutic for me and I’ve never discussed my experience like this with anyone–ever!

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia: Do you think that Fibro Patients are imagined to live without pain?

    Fibromyalgia: Do you think that Fibro Patients are imagined to live without pain?

    I would think that would qualify as an oxymoron, calling Fibromyalgia a “comfort zone”! Since I noticed the first pains, it seems as though I haven’t been comfortable again.

    I know you mean more on a mental/emotional level, however. I would still be inclined to think not. From what I’ve read, the people I’ve talked to a majority of people with Fibromyalgia were “type A” personalities. Meaning, they were movers, shakers, doers, overachievers, survivalists– we were always moving, cleaning, hustling, being as efficient with time, so to do as much as possible, with the least amount of time.

    Plus, we did it right, we did it without asking for help, and we did it for everyone but ourselves. I’ve said, although I’m stuck with FM now, I can still say I lived one heck of life before. And, even since.

    So, when FM hit us, it not only took away our ability to move, it took away who we were at our core. The way we always functioned was yanked away, and after all the Dr’s, tests, and fear before our diagnoses were gone, we were left with that same energy running laps in our brains. Some of us were predisposed to mental illness, some not, perhaps. But, I know a lot of people get depressed. Who wouldn’t? Fibromyalgia is a beast of mythical power.

    It attacks you at your senses-sight, smell, sound, touch, taste, temperature- everything is affected. Sound tones (dog barking), feel like knitting needles to your ears. Sunlight is blinding, phone lights give me headaches. And, smells! I get nauseous walking to the store from car exhaust, cigarette smoke on people walking by, detergents used by the store, (not to mention the detergent aisle-my eyes water & burn &my lungs close), 20 different people with 20 different smells from cologne, perfume, lotion, bath soap, everything.

    It’s unpleasant, at best. Worst case, I get headaches, nausea, I “taste” the smells, I get dizzy. It’s not great. I break out into a sweat several times a day, for no apparent reason. Some people are constantly cold, like my icy feet & hands. I constantly have every symptom of a bad kidney infection, which is a gift from FM called Interstitial Cystitis.

    FM is different for everyone, except in that it’s typically different for each of us every day. I often say it would be easier to draw what my body feels like. My skin would be lumpy with huge knots, black and blue, and on fire from the waist up. My eyes, nose, ears & throat would have fire coming from them, as well. My bones would all be broken to some degree.

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    The worst would be my pelvic/hip/tail bone, and my feet would be mutilated, full of broken glass, and look like ice. My hands would also be swollen, black and blue, full of broken bones and glass, with rubber bands wrapped tightly around them. Sharp blades that cut into my wrists, would go down the insides of my wrist, into the bend of my elbows.

    I would have various bugs biting me, making me itchy, and I would have stickers poking my skin. There would be people around me, stabbing me with knives, randomly. I would have twisted metal for my neck/upper spine. Thick, strong cables would be my tendons, and invisible powers will pull them in the wrong directions, at inopportune times, making it easy for a knee/hip/arm to “give out”. A sick marionette doll, of sorts.

    I definitely don’t count nausea as comforting, either. Unable to take meds because of stomach pains/nausea, or getting nauseous from said medications. Feeling your head swim when you’re trying to figure out what to do, or say, because of fibro fog.

    The headaches, body aches, pain all the time take a toll on your mind, body & spirit. Your friends don’t understand or want to hear about it. Your family doesn’t believe you, and why would they? DOCTORS don’t believe you, half the time!

    So, you question your own sanity. You become depressed, isolated, withdrawn. You stop getting invitations because they assume you’ll say no, again. You lose respect from & for others, because you have nothing but time on your hands, and Fibromyalgia WILL be in your thoughts- like it or not. You simply cannot live a “normal life“.

    In my case, I can’t stick to a schedule if my life depended on it. I’ve had FMS for fifteen years, and I get disability, subsidized housing, free rides to dr appointments, and in-home services-someone who comes to help me with cooking, cleaning, etc. I don’t HAVE to do anything, except collect my services, and be “COMFORTABLE”. Yet, I’m constantly trying to do BETTER.

    I’m a double Psych major at the local college, and it will take me longer than most, to finish with my degrees. I’ve gone to Heald college twice for a Business degree. Each time, I have to “fix” my financial aid mess caused from the last time my health stopped me from completing school.

    Each time, I’m older, my abilities are less, and my confidence wavers, when my cognitive abilities are slower, and I’m scared to death I’ll fail. So, why bother, if Fibromyalgia can be a “comfort zone“? Why try to be anything more than who I am TODAY?

    Because I AM NOT FIBROMYALGIA! I HAVE Fibromyalgia! But, I REFUSE to stop moving, stop trying, stop living. Even if I can only move, try 1 day of the week, I’ll take it. And, I won’t feel bad the other 6 days, because ignorant, (read: uneducated, have never felt how I feel, so can’t possibly fathom what it’s like), people often think I’m lazy, I’m lying, I’m scamming the system, or I’m simply comfortable with this horrible condition with which I’ve been afflicted.

    I hope this answers your question. I’m hoping you can answer one for me? Most people don’t know about Fibromyalgia, much less what it does to someone. What would drive you to ask this question, and in the way you asked? With FMS being a pain condition, why would you suggest anyone could/would find any comfort in having Fibro? What is your experience, if any, with Fibromyalgia?

    https://fibromyalgia-6.creator-spring.com/
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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • How Fibromyalgia Suffer can start Strength Training?

    How Fibromyalgia Suffer can start Strength Training?

    Exercise helps break the chronic pain cycle associated with fibromyalgia syndrome (FMS) by improving fitness and functional levels, relieving physical and emotional stress, and boosting one’s confidence and self-esteem. While you probably have heard a lot about the benefits of aerobic exercise, you may be wondering about strength training. Women at risk of osteoporosis commonly hear about including strength training activities in an exercise program.

    Should a person with fibromyalgia perform strength training activities? Is it safe? Will this type of exercise hurt you? In the following article, we will answer these commonly asked questions and describe how you can include basic strength training activities in your exercise regimen.

    First Steps

    There are three important steps to take before beginning an exercise program.

    First, let your doctor and other health care providers know about any change in what you are doing to manage your health—including exercise. While exercise has many physical, emotional, and social benefits, there may be health issues you need to address before starting an exercise program, such as unresolved foot pain or back pain. You may be directed to stay away from certain forms of exercise because of other health issues.

    Second, an exercise program is most effective when you do it consistently. Decide on what you are going to do for exercise and where you will do it. If your exercise is not enjoyable or convenient, you probably will not do it regularly. Follow a basic program, like the one at the end of this article, or get the help of a knowledgeable professional—exercise physiologist, physical therapist, doctor, nurse—to formulate your exercise program.

    Does it make sense for you to be outside or inside at this time of year? Do you like to exercise alone or with others? You can exercise at home, in a community center, or in a commercial fitness center. Once you decide what to do and where to do it, make a commitment to yourself to make time in your schedule to exercise. The more hectic your schedule, the more important it is to review your other commitments and plan your weekly exercise schedule. Consider the times of day and days of the week that works best for you.

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    Finally, anticipate that you may be a bit sore or uncomfortable at first, especially if you have not been physically active in recent months. You should not be in severe pain, however. If you experience severe pain, then you probably have done too much and started too fast. Listen to your body—learn to know the difference between your chronic fibromyalgia pain, the pain of overused muscles, and the acute pain of an injury; they are different.

    One way to help judge your level of pain when exercising is to utilize a 0-10 numerical scale with zero signifying no pain, 5 moderate pain, and 10 the worst possible pain. In general, if your pain is 1-4, exercise as you planned; if the pain rates 5-7, cut back on the amount and intensity of exercise you do that day; if your pain is an 8 or 9, don’t do your regular exercise routine, but you may still be able to perform some gentle stretching and maybe go for a short walk, and if you are experiencing pain that is a 10 it is best if you do not exercise that day.

    While fibromyalgia can be extremely painful, it is important to remember that you are not damaging your muscles and joints when you exercise appropriately. Making good judgments about how much to exercise takes time to learn, but is essential to your successful self-management. With practice, you can become your own exercise expert.

    Adding Strength Training to Your Exercise Program

    Recent research has demonstrated that strength training exercises, when done appropriately, can be safe and beneficial for individuals with FMS. Strength training exercises increase your muscle strength and can make daily activities, such as climbing stairs and carrying laundry, easier. 

    Stronger muscles use less effort to do work than weaker muscles. Some think that by using less effort, your muscles do not get as fatigued. For many years, when FMS was thought to be a disorder of the muscles, people believed that you might damage muscle if you exercised it too hard. Therefore, people with FMS were discouraged from doing strength training type exercises. Today, research demonstrates the safety and benefit of this important type of exercise for the person with FMS.

    Strength training activities can be incorporated into your exercise regimen regardless of your level of experience or fitness. The strength training part of a program ideally should include one exercise for each of the major body areas (legs, chest, shoulders, back, arms, and abdominals). Strength training exercises should be done 2-3 times per week with at least one day of rest between workouts to allow muscles time to rest and recover.

    Exercises can be performed with free weights, machines, stretchy bands, household items (e.g., soup cans), or the resistance of your own body. Exercises can use one or more of the above methods to provide resistance. There is no magic about how you provide resistance. The key is to perform the exercises correctly and regularly, so convenience should be considered when making your decision of what you will use for resistance.

    When beginning a strength-training program for fibromyalgia, you should first learn and master the proper techniques for all exercises. You can learn proper techniques from a book, an introductory session with trained health or fitness professional, or by participating in a class where an instructor will keep a watchful eye on you while you learn with others. More guidance from a knowledgeable professional usually translates into faster learning.

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    A repetition of “rep” is the performance of an exercise one time, and a “set” is a sequence of repetitions of an exercise performed without prolonged rest. The number of repetitions and sets and the amount of resistance is how strength training exercise is quantified or measured. Begin with a level of resistance that allows you to perform eight repetitions “fairly easily.”

    If you can comfortably lift the weight eight times (8 reps), it is safe to progress to 10 reps the next time you exercise. After you are comfortable with 10 reps, you can try to perform a set of 12 reps. When you can perform 12 reps of an exercise for two sessions in a row, you are ready to increase the weight/resistance slightly. When you increase the resistance, remember to reduce the number of reps to eight and repeat the process of gradually increasing the number of repetitions with the new resistance.

    There are several important keys to remember while performing strength training exercises. Always use proper exercise techniques. Avoid “guarding” sore muscles when you perform an exercise. Contracting muscles around an aching body part leads to more tension and poor posture. Poor posture puts unnecessary stress on other body areas. Exercising with good body posture and technique will work the muscles in a balanced manner and reduce the chance of injury.

    Breathing during the exercise is very important for keeping muscles relaxed, comfortable while exercising, and supplied with oxygen to do the work. To breathe properly during an exercise, inhale and exhale slowly as you perform the part of the movement that requires the greatest effort. As you return to the starting position of the movement, breathe in slowly and smoothly. An easy way to remember this is to “exhale on exertion,” and inhale on the less strenuous part of the movement. Remember, you should never hold your breath while performing an exercise.

    Speed or the pace of a movement is also extremely important to your strength training program. In most strength training exercises there are two parts to each repetition. The first is the concentric or “positive” phase. The concentric phase is when the muscle you are exercising shortens while performing the exercise movement. An example is the biceps muscle, on the front of the upper arm, when you move your hand from your thigh to your shoulder.

    The second part is the eccentric or “negative” phase of the movement where the muscle you are exercising lengthens while you return to the starting position of the exercise. The biceps muscle lengthens when the hand moves from the shoulder to the thigh. Strength training exercises should be performed to a count of two seconds for each of the concentric and eccentric parts of the exercise.

    Our work over the past several years with the SELF-study (Self-management and Exercise for Living with Fibromyalgia) has shown that shortening the eccentric phase can help decrease muscle soreness in people with FMS when beginning a strength training program.

    Strength training exercise has many health benefits for people of all ages. While people with FMS have often been discouraged from performing strength training exercises in the past, evidence today suggests that when performed appropriately, strength training can be an enjoyable and beneficial part of a balanced exercise program. As with any new type of physical activity, it is important to start and progress slowly to allow your body time to learn the exercise and safely adapt to the level of effort.

    https://fibromyalgia-6.creator-spring.com/
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    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Why was I Hiding Fibromyalgia the Person I have Become?

    Why was I Hiding Fibromyalgia the Person I have Become?

    Story of Fibromyalgia Warrior

    Recently I was looking at my social media accounts I came across accounts that I had chosen to hide either my content from. As I looked down the list I realized that many of those people were people that I knew for a significant amount of time in my life.

    Most were people I had either worked with somewhere along the line since Nursing School Graduation, or I went to high school or college with. These were people who were a significant part of my life at one point or another. Not people who were trolls or people from my past that I didn’t want to think about again.

    But as I sat and thought about it I couldn’t find a reason that any of them would have been on the hidden list. The more I thought about it I came to the realization that I must have hidden my posts because I didn’t want them to see my life or my journey.

    But why? I spent a LOT of time thinking about this the next couple of days and the more I thought about it I realized that I had done it because I was embarrassed by what my life had become.

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    The people who knew me 10 or 15 years ago probably don’t know that I am no longer working in my chosen field. That my marriage didn’t work out, that is a whole story for a different day. Or that I am not living my best life with kids, a husband, and my dream job.

    While I know most people are living their exact ideal life. Sometimes I still struggle with the path my life has taken. I know there are always going to be things that we want to change. But my life is FAR from what I ever imagined.

    That being said, this is NO REASON to be embarrassed though. The things that have made such a change were nothing I did. Or bad decisions I made, for the most part anyway. A person can’t change their genetics. Or honestly in many cases like mine the hand they were dealt. So, what? I may not be at a patient’s bedside twelve hours a day.

    Or working to teach future nurses.  But I am still making a difference. I may not be calling Drs or drawing blood. But I am still touching people’s lives. Is it the way that I planned? Hell NO! But I have adjusted and found ways to share my knowledge and provide support in other ways.

    Disability has a way of changing a person and their outlook on life. The things that once seemed so important no longer rank in the top five of the things we worry about.  That isn’t a bad thing though. The version of me that was once embarrassed to let people from my past knew the person who I have become doesn’t exist anymore.

    That person has learned to hold her head up high and be proud of the things she has accomplished. To be proud of the life she has built despite the truly crappy hand she has been dealt. In the end, it really doesn’t matter what any of those people think of me. Whether they knew the person I once was or the person that I am now. The only thing that really matters is how I feel about myself.

    That is what should matter the most to all of us. The opinion of the eyes looking out. Not the eyes looking in. Paths change and so do people, and that’s okay. But we never should be ashamed or embarrassed about the person we became because of an illness.

    Fibromyalgia takes so much away, but it shouldn’t take that. It changes our paths, our hopes, and our dreams. It changes how we look at life as a whole. But it should never change the way we look at ourselves. We all deserve to hold our heads up HIGH and be proud of the badass WARRIORS we have become.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • How do Breastfeeding Moms Tackle Fibromyalgia?

    How do Breastfeeding Moms Tackle Fibromyalgia?

    Relaxation can help in Breastfeeding

    Breastfeeding may sound like the most natural thing in the world, but many women find it harder than expected. Mothers with fibromyalgia often have an especially tough time with breastfeeding, according to a new study.

    Fibromyalgia is a chronic disorder characterized by widespread pain and fatigue. Its cause is not known, and it affects more women than men.

    There is no cure for fibromyalgia. Patients often try physical therapy, counseling, and medication (including antidepressants, ibuprofen, and in some cases, morphine) for symptom relief.

    Karen Schaefer, DNSc, RN, assistant professor of nursing at Temple University’s College of Health Professions, studied nine mothers aged 26-36 with fibromyalgia.

    All of the women wanted to breastfeed and had birthed at least one baby before being diagnosed with fibromyalgia. Most had taken medication for their fibromyalgia before pregnancy.

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    Problems Reported

    Breastfeeding was not easy for any of the mothers in the study.

    “All nine women felt that they were not successful in their attempts to breastfeed, and felt frustrated,” Schaefer writes.

    Difficulties included muscle soreness, pain, and stiffness; fatigue; a perceived shortage of breast milk; and sore nipples.

    Those problems are not uncommon among breastfeeding women. However, mothers with fibromyalgia may be particularly affected since they already face pain and fatigue.

    The problems were bad enough that some participants felt they needed to resume medication, which meant giving up breastfeeding to avoid passing the drugs to the babies through breast milk.

    Others stopped breastfeeding after being diagnosed with other health problems, such as hypothyroidism or hepatitis B.

    Feeling “forced” to wean their babies earlier than planned, the mothers were sad and depressed, Schaefer writes.

    Supportive Strategies

    Mothers with fibromyalgia may want to try breastfeeding tips noted in the study:

    • Enlist support. Ask friends and family members for encouragement and assistance.
    • Seek expert help. Ask lactation consultants or nurses for advice. Pregnant women with fibromyalgia may want to start preparing before delivery.
    • Delegate other tasks. Save as much energy as possible for infant care and breastfeeding.
    • Pay attention to proper nutrition.
    • Try relaxation techniques and music therapy to promote relaxation and reduce discomfort during breastfeeding.
    • Find a support group for breastfeeding mothers with chronic illnesses.
    • When breastfeeding, lie on one side with a pillow supporting the woman’s head.
    • Change positions while breastfeeding.
    • Use a sling or some type of support, such as a pillow, under the baby.
    • Find a quiet, restful place to feed the baby to reduce distractions for yourself and your baby.

    Schaefer also encourages healthcare providers to proactively support moms with fibromyalgia who want to breastfeed.

    The study appears in The American Journal of Maternal/Child Nursing.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Young people report worse fibromyalgia than older patients

    Young people report worse fibromyalgia than older patients

    It may seem counterintuitive, but young and middle-aged fibromyalgia patients report worse symptoms and poorer quality of life than older patients, a Mayo Clinic study shows. Fibromyalgia most often strikes women. It is characterized by widespread musculoskeletal pain with fatigue, sleep, memory and mood issues. The research, one of several Mayo studies being presented at the American College of Rheumatology annual meeting, suggests the disorder plays out differently among different age groups.

    Researchers studied 978 fibromyalgia patients and divided them into three age groups: those 39 or younger, those 50 to 59, and those 60 or older. The younger and middle-aged patients were likelier to be employed, unmarried, smokers and have a higher education level, lower body mass index, more abuse history and a shorter duration of fibromyalgia symptoms than older patients.

    “Among the three age groups of young, middle-aged and older, symptom severity and quality of life differs,” says senior author Terry Oh, M.D., a physical medicine and rehabilitation physician at Mayo Clinic in Rochester, Minn. The study’s findings were surprising, because quality of life and physical health are considered to be negatively associated with age, Dr. Oh says.

    Dr. Oh notes that women in all three groups with fibromyalgia reported a lower quality of life than average U.S. women, and that the difference between their physical health and that of the average woman was more significant than mental health differences, particularly in young patients.

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    In other studies, Mayo researchers found:

    *About 7 percent of fibromyalgia patients had inflammatory rheumatic conditions, and that in general, those fibromyalgia patients didn’t do as well with treatment as those without rheumatic diseases.

    *Fibromyalgia patients may also have skin-related symptoms such as excessive sweating or burning or other sensations.

    *Obese patients with polymyalgia rheumatica have more pain and disability than other polymyalgia rheumatica patients. They also tend to need higher doses of glucocorticoids.

    *Rheumatoid arthritis patient experiences and symptoms do not always reflect what medical literature shows when it comes to pain, morning stiffness, the relationship between swelling and damage, and what worsens or improves symptoms.

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    *Hospitalization is a significant risk factor for gout flares in people already diagnosed with gout.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

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  • Discovery could eventually help diagnose and treat chronic pain

    Discovery could eventually help diagnose and treat chronic pain

    More than 100 million Americans suffer from chronic pain. But treating and studying chronic pain is complex and presents many challenges. Scientists have long searched for a method to objectively measure pain and a new study from Brigham and Women’s Hospital advances that effort. The study appears in the January 2013 print edition of the journal Pain.

    “While we need to be cautious in the interpretation of our results, this has the potential to be an exciting discovery for anyone who suffers from chronic pain,” said Marco Loggia, PhD, the lead author of the study and a researcher in the Pain Management Center at BWH and the Department of Radiology at Massachusetts General Hospital. “We showed that specific brain patterns appear to track the severity of pain reported by patients, and can predict who is more likely to experience a worsening of chronic back pain while performing maneuvers designed to induce pain. If further research shows this metric is reliable, this is a step toward developing an objective scale for measuring pain in humans.”

    Specifically, researchers studied 16 adults with chronic back pain and 16 adults without pain and used a brain imaging technique called arterial spin labeling to examine patterns of brain connectivity (that is, to examine how different brain regions interact, or “talk to each other”). They found that when a patient moved in a way that increased their back pain, a network of brain regions called Default Mode Network exhibited changes in its connections. Regions within the network (such as the medial prefrontal cortex) became less connected with the rest of the network, whereas regions outside the network (such as the insula) became connected with this network. Some of these observations have been noted in previous studies of fibromyalgia patients, which suggests these changes in brain connectivity might reflect a general feature of chronic pain, possibly common to different patient populations.

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    “This is the first study using arterial spin labeling to show common networking properties of the brain are affected by chronic pain,” said study author Ajay Wasan, MD, MSc, Director of the Section of Clinical Pain Research at BWH. “This novel research supports the use of arterial spin labeling as a tool to evaluate how the brain encodes and is affected by clinical pain, and the use of resting default mode network connectivity as a potential neuroimaging biomarker for chronic pain perception.”

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  • Chronic vulvar pain related to irritable bowel syndrome, fibromyalgia and interstitial cystitis

    Chronic vulvar pain related to irritable bowel syndrome, fibromyalgia and interstitial cystitis

    Women with vulvodynia at much higher risk for other chronic pain conditions, according to a new University of Michigan Health System study.

    Millions of women suffer from unexplained vulvar pain so severe it can make intercourse, exercise and even sitting unbearable.

    New research now shows that women with this painful vaginal condition known as vulvodynia are two to three times more likely to also have one or more other chronic pain conditions, including irritable bowel syndrome, fibromyalgia (musculoskeletal pain) and interstitial cystitis (bladder pain).

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    These increasingly prevalent chronic pain conditions are known to be underdiagnosed — and the new data sheds more light on how they may also be related, according the University of Michigan Health System study that was published in Obstetrics & Gynecology.

    “Millions of people in the U.S. have chronic pain. This report stresses the need to further study relationships between these types of disorders to help understand common patterns and shared features,” says lead author Barbara D. Reed, M.D., M.S.P.H., professor of family medicine at the U-M Medical School.

    “Chronic pain conditions like these can seriously hamper quality of life and it’s imperative that we understand the commonality among them. Results we see in any studies related to one of the conditions, such as regarding etiology, physiology, or treatment, may be relevant to any of others.”

    Other studies show that chronic pain conditions are much more prevalent than previously estimated, and there has been growing interest in understanding the patterns of co-occurrence, Reed says.

    “Women who have these disorders often see physicians but are not given a diagnosis or are given an erroneous diagnosis and continue to suffer without being treated properly,” Reed says. “Until their symptoms have a name, it can be really discouraging because patients begin thinking it’s all in their head.

    “Chronic pain is starting to get a lot more attention, with more research being done on all of these disorders, as well as combinations of these disorders. I think the identification and treatment of these conditions will continue to improve.”

    Authors used data from the six-month follow-up survey of the Michigan Woman to Woman study, a population-based cohort of 2,500 adult women in southeast Michigan. An original study found that more than 25 percent of surveyed women in the metro Detroit area have experienced ongoing vulvar pain at some point in their lives but only 2 percent ever sought treatment for their pain.

    Additional Authors: Besides Reed, authors include Siobán D. Harlow, Ph.D., Ananda Sen, Ph.D., Rayna M. Edwards, MPH, Di Chen, MPH, and Hope K. Haefner, M.D.

    Funding: National Institute of Child Health and Human Development, of the National Institute of Health

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  • Role of impaired sleep in fibromyalgia pain explored

    Role of impaired sleep in fibromyalgia pain explored

    Patients coping with the complex pain disorder fibromyalgia often have difficulty sleeping, and a new study published in The Journal of Pain reports that despite the negative quality of life implications, poor sleep is not a significant predictor of fibromyalgia pain intensity and duration.

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    The complexity of fibromyalgia as a pain disorder is rooted in the variable, patient-to-patient, influence of physical, psychological, social factors that contribute to clinical pain, and their influence often is difficult to understand. Previous research has shown that variables such as negative mood and the number of localized pain areas are significant predictors of clinical pain in fibromyalgia patients.

    Many fibromyalgia patients complain about poor sleep, and studies have shown that interrupted sleep experienced by individuals with other pain conditions is predictive of next day clinical pain. Also, sleep duration has been shown to predict clinical pain in healthy adults. For this study, a research team from the University of Florida hypothesized that decreased total sleep time would predict higher clinical pain in a sample of patients with fibromyalgia.

    Seventy-four adults with fibromyalgia were recruited for a University of Florida study and they were observed for 14 days. Subjects rated their clinical pain every evening and completed sleep diaries describing the previous night’s sleep.

    Results of the analysis showed that four sleep measures evaluated in the study failed to significantly predict clinical pain. The authors noted that the effects of impaired sleep, such as fatigue and inactivity, may play more significant roles in clinical pain than measures of sleep duration or insomnia.

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  • Psychological intervention reduces disability and depression in adolescents with fibromyalgia

    Psychological intervention reduces disability and depression in adolescents with fibromyalgia

    A recent trial shows cognitive-behavioral therapy (CBT) reduces functional disability and depressive symptoms in adolescents with juvenile fibromyalgia. The psychological intervention was found to be safe and effective, and proved to be superior to disease management education. Full findings from this multi-site clinical trial are published in Arthritis & Rheumatism, a peer-reviewed journal of the American College of Rheumatology (ACR).

    Medical evidence reports that juvenile fibromyalgia syndrome affects 2% to 7% of school age children. Similar to adult cases, the juvenile form of the disorder primarily strikes adolescent girls. Both adult and juvenile fibromyalgia patients experience widespread musculoskeletal pain, fatigue, as well as sleep and mood disturbances. Previous studies show that juvenile fibromyalgia patients are burdened with substantial physical, school, social and emotional impairments. However, studies investing treatment for the juvenile form of the disorder are limited.

    For the current trial, led by Dr. Susmita Kashikar-Zuck from the Division of Behavioral Medicine and Clinical Psychology at Cincinnati Children’s Hospital Medical Center in Ohio, investigators recruited 114 adolescents between the ages of 11 and 18 years who were diagnosed with juvenile fibromyalgia. The trial was conducted at four pediatric rheumatology centers between December 2005 through 2009, with participants randomized to cognitive-behavioral therapy or fibromyalgia education, receiving eight weekly individual therapy sessions and two additional sessions in the six months following the end of active therapy.

    Analyses showed that both patient groups displayed significant reduction in functional disability, pain, and depressive symptoms at the end of the trial. Pediatric participants in the cognitive-behavioral therapy group reported a significantly greater reduction in functional disability compared to those receiving fibromyalgia education. The therapy group had a 37% improvement in disability compared to 12% in the education cohort. Both groups had scores in the non-depressed range by the end of the study, but pain reduction was not clinically significant — a decrease in pain of less than 30% for either group.

    The drop-out rate was low with over 85% of participants attending all therapy sessions and no study-related adverse events were reported by investigators. “Our trial confirms that cognitive-behavioral therapy is a safe and effective treatment for reducing functional disability and depression in patients with juvenile fibromyalgia,” concludes Dr. Kashikar-Zuck. “When added to standard medical care, cognitive-behavioral therapy helps to improve daily functioning and overall wellbeing for adolescents with fibromyalgia.”

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