Tag: fibromyalgia treatment

Explore effective treatments for Fibromyalgia, including medication, therapy, lifestyle changes, and holistic approaches to manage symptoms.

  • What percent of Fibromyalgia patients don’t respond to any of the commonly used Medicines?

    What percent of Fibromyalgia patients don’t respond to any of the commonly used Medicines?

    You know this is the craziest thing I am going to talk about now…

    I’m not sure what the percentage is, but I can tell you that I spent years taking Adderall for ADHD and then had to stop taking it when I got pregnant. During the hiatus from that medication, I was diagnosed with fibromyalgia.

    After unsuccessful attempts at treating it with many of the same methods you mentioned, I decided that I was sick of being a test monkey and asked my doctor to put me back on the Adderall. This time around, not only did it manage my ADHD symptoms, but it also seemingly “cured” my fibro.

    Click here to Get this or Visit Fibromyalgia Store

    Being a stimulant medication, its purpose is to counteract the area of an ADHD patient’s brain that makes them feel restless and unfocused by “tricking” the brain into believing it has produced too much of its own stimulant, therefore making it produce the chemicals that calm.

    While it still does this for me, it also cleared up the brain fog and mental sluggishness that accompanies fibro, but the best thing it’s done is make the pain tolerable so I can normally physically function. As you certainly know, with fibro, some days are worse than others, and it’s not as though this medication blocks the pain as an opiate does, rather, it keeps me so focused on the task at hand that it also distracts me from the pain.

    Upon realizing this, I started doing things to help further lessen the background pain, such as yoga and taking daily vitamin B12 and folic acid supplements, as they support nerve health.

    Adderall is not recognized as a pain management drug, and only a small handful of doctors currently acknowledge it as a treatment for fibromyalgia. It is a controlled substance with a high potential for abuse, so, doctors won’t prescribe it without a perfectly valid reason, and they usually require a clear EKG prior to prescribing because the stimulant property is sometimes hard on the heart muscle.

    BUT, Adderall IS recognized as a treatment for chronic fatigue, so, if you approach your doctor after having utilized so many other medications unsuccessfully and specifically address the concern that the fatigue which accompanies your fibro is debilitating in nature, and you propose the idea of trying a stimulant, he or she may agree to prescribe it at a low dose on a trial run.

    Be prepared, however, as it is a common practice for doctors to perform drug tests before and during treatment with a controlled substance to ensure a patient is not abusing it or any other drugs.

    I’m certain this is a treatment that will not be appropriate for every person with fibro or other chronic pain disorders, but it has worked in this way for me and a decent handful of other people in our shoes. That being said, for how significantly my quality of life has improved, I firmly believe that it is a treatment that deserves consideration by doctors and sufferers alike.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • How would you decide if a diagnosis is Chronic Fatigue Syndrome or Fibromyalgia?

    How would you decide if a diagnosis is Chronic Fatigue Syndrome or Fibromyalgia?

    Get your genes mapped. If you have either fibromyalgia or chronic fatigue it is probably most likely due to “Soft Tissue Calcification” which is caused by the body not excreting enough sulfur and phosphorus, which is caused by having genetic mutations like CBS 699 and SUOX mutations.

    The treatment for these mutations right now is to eat a diet that is very low in sulfur and phosphorus and calcium and vitamin D because these will all lead to pain or chronic fatigue.

    Also, it is important to supplement daily with a well-absorbed brand of magnesium citrate like Solgar magnesium citrate tablets, or CALM magnesium citrate powder by Natural Vitality that you dissolve in water and drink, or CALM magnesium citrate gummies that you just chew up.

    Pick one of the three, depending on which would work best for you. They are all very well absorbed.

    Click here to Get this or Visit Fibromyalgia Store

    It is also very important to avoid vitamin D and calcium in both supplements and foods, so this also means to avoid multivitamins as they are all very high in calcium and vitamin D and only have unabsorbable magnesium in them (aka they usually contain magnesium oxide, which is only 4% bioavailable)

    So ditch the D, calcium, and multi vibes, start taking magnesium citrate daily and avoid all foods high in sulfur, phosphorus, vitamin D, and calcium. And also avoid MSG and MSG chemicals like the plague.

    Doing these things will help you to get rid of or lessen any fibromyalgia pain or chronic fatigue that you may have.

    If you think I’m crazy, then all you have to do is try what I am saying for a couple of weeks (as it is not dangerous) and you should see your symptoms lessening.

    And then to be absolutely sure, get your genes mapped to see if you have the CBS699 or SUOX (SUlfur OXidase) mutations.

    See genetic genie dot org and 23andme dot com for more info. (It will cost about $250 to get this done or maybe less if 23andme is having a sale or if you buy more than one gene testing kit)

    I had this done and it turns out that I have a lot of these mutations from both parents so my body cannot properly metabolize and excrete sulfur and phosphorus, and this causes excess sulfur and phosphorus in all my cells which causes both pain and fatigue in the cells and calcium and vitamin D make the pain worse.

    So as long as I stay away from all foods high in sulfur and phosphorus and avoid calcium and vitamin D and all MSG chemicals, I am painfree.

    If I eat anything that is high in sulfur and phosphorus or high in calcium or vitamin D, I will get bad pain within half an hour of ingestion. Black pepper and foods high in oxalic acid will also cause pain, so I avoid those as well.

    And I also avoid zinc supplements since zinc strengthens the glutamate response in the body.

    At any rate, this is something for others to try and see if it works. It is cheap and easy and safe. And as they say, the proof is in the pudding.

    I no longer have bad fibromyalgia pain and before, I had such bad pain that I couldn’t even sit down. So this just might work for others as well. I can’t be the only one with these mutations. And I know I’m not because both sides of my family carry them and have all sorts of medical issues.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • How much of the Psychological pain causes Physical pain and vice versa with Fibromyalgia?

    How much of the Psychological pain causes Physical pain and vice versa with Fibromyalgia?

    I saw an answer from a physician, but mine comes from personal experience from fibro (8 years and counting). It’s not a simple answer, unfortunately.

    Fibromyalgia, for me, is a reactive condition. What that means for me is that I have a constant level of pain that is my day-to-day pain level. It’s usually somewhere about a 4 or a 5. If it’s a little lower, that’s a fantastic day, but I can survive with a 4 or a 5. However, when I hit certain triggers, that pain level spikes up.

    My biggest spike at the moment is stress – I have quite a stressful job – and it will trigger my fibromyalgia and cause it to flare. This may mean that my pain level shoots up to a 7 or an 8 or even a 9. I usually lose my weekends to self-care and recovery, to try to get back to my 4 or 5 levels.

    My other trigger is over-exertion, which unfortunately at the moment, is pretty much any sustained activity for over 30 minutes. The physical effort pushes me into a flare. These again are probably about the 7 or 8 levels.

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    In pain, I’ll notice that my blood pressure and heart rate rise and my resting heart rate will be at least 10 bpm higher than it usually is. My BP will be on the worryingly high side. I can take my painkillers, and rest and relax as much as I can, but I have difficulty doing things like holding my body upright, and everything takes so much more effort.

    I also get more emotional during flares because I’m beating myself up for being useless, relying on my partner for everything including helping me to take off my bra. Pain has an effect on the body that people don’t appreciate until they experience it and it goes away. It’s tiring. It’s depressing.

    It’s horrible. And because of that, it’s easier to overexert yourself because you have less energy to do the things you would regularly do, which puts you in a flare, which further depresses you… It’s a vicious circle.

    I wish that there were more research on fibromyalgia, on the cause and treatments that aren’t huge doses of painkillers. I wish that the opioid epidemic wasn’t making it difficult for people who have a genuine need to get their medications. But it all adds up, unfortunately.

    There are theories out there – and I’m basing this on some “opinions” that I’ve had from medical and alternate therapy practitioners, so your mileage may vary – to say that fibromyalgia is a reaction to trauma at some point in your life; physical or psychological.

    I once attended a lecture where a woman claimed that it traced back in her life to her parent’s divorce at age 4 and the excessive shouting that took place then. I got told that it’s my body locking up and locking me in, and the only way to combat it was to spend £75 a week for a professional massage, by a doctor whose wife was a professional masseuse and would I like a card and a referral? I’ve been told it just happens.

    I don’t have a truth to share on that. I don’t recall a specific trigger for myself. I know that the diagnostic pressure points have always hurt. I remember being surprised when I was told that normally, they don’t hurt people – it’s just pressure for normal people. It’s never been that way for me. I don’t remember a time when I wasn’t in some sort of pain, but it definitely got worse after the age of 25.

    I thought I was broken until I got my diagnosis, but when we moved surgeries, I lost the doctor who was actively helping me to deal with it and started having to fight for my condition to be recognized and treated.

    I have so far found one medication that helps, but my last doctor would not prescribe it because one of the side effects was weight gain. Lady, I’m already fat, but my fat a$$ can’t do anything about it if I cannot move because I am in levels of pain that you’ve never had to deal with.

    So, for fibromyalgia, we live, we survive, we rest, we fight and we do what we can in a body that seems some days to actually hate us.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • If you suffer from Fibromyalgia does it hurt you to wear all types of clothes or only certain fabrics?

    If you suffer from Fibromyalgia does it hurt you to wear all types of clothes or only certain fabrics?

    Diagnosed 10 years ago. Every day is a new mystery

    I am ridiculously picky about my clothes, since mild to moderate Allodynia is one of my Fibromyalgia symptoms. No sleeves of any fabric, soft fleece if I need a jacket. No bra. Between allodynia and costochondritis?

    Let them tiddies sag. I like breathing with less pain and not getting rashes. Screw the rules. No wool, cashmere, or other animal fibers. When they are cut, they often have sharp bits. And I’m allergic to wool, soo…

    Click here to Get this or Visit Fibromyalgia Store

    Poly/cotton blends are my go-to. When I was healthy, I tried to wear only cotton, linen, hemp, or the like. But now a blend is the best I can do. That said, each and every item has to be assessed individually. Tags, seams, tight elastics are all bad.

    Frightening fashion that it is, rayon is cool, smooth, and usually comfortable. Seams can sometimes be reinforced with plastic thread, though, so watch for that. I buy 90% of my clothes second-hand. They’re cheap, pre-shrunk, and already “broke in

    Never wear new clothes without washing. Chemicals used in the dyes and cleaners are often irritants. I am “fortunate” that my allodynia usually manifests as intense itching. Cool temps help me the most.

    Shoes are the minions of satan, and I refer to them as foot prisons. NOTHING helps. I wear sandals year-round and when sneakers or trainers are required, I wear one brand.

    So, to sum it up:

    1. Buy cheap so you can experiment.
    2. Find something you love? Time to buy new.
    3. Stay cool if heat is your trigger.
    4. Stay naked (or scantily clad) when you can. No point in suffering alone in your own home.
    5. Assess each item individually. Be picky.
    6. Consider letting go of restrictive clothing like bras and dress shoes.
    7. Forgive yourself for seeking a bit of comfort.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • What will happen when I go to a Rheumatologist about potential Fibromyalgia?

    What will happen when I go to a Rheumatologist about potential Fibromyalgia?

    Not all Rheumatologists (especially if they had been trained some years earlier and belong to the older generation) believe in Fibromyalgia.

    Even if they “believe”, not all are comfortable with managing patients with Fibromyalgia for diverse reasons. One very common reason (which doctors only admit to other doctors) is that Fibromyalgia patients are generally difficult (I sympathize with those patients) as they are generally mistrustful of doctors in general after all their bad experiences with doctors.

    Ask two questions of your Rheumatologists.

    • a) Whether they believe in Fibromyalgia
    • b) Whether they are comfortable and happy treating patients with Fibromyalgia.

    If the answer to either of these questions is a No, ask politely for suggestions for a Rheumatologist who is interested in managing these patients. You would be surprised that there are many. Fibromyalgia is a test of a Rheumatologists utmost all-around skills.

    Click here to Get this or Visit Fibromyalgia Store

    The first order of business is confirmation of Fibromyalgia which is completely clinical. (It involves bedside tests and interviews. There are two criteria for diagnosis both of which are valid. Remember that a diagnosis of fibromyalgia does not exclude any other diagnosis.

    Therefore the second order of business is to look for and exclude any other disease that may co-exist or may have triggered fibromyalgia by increasing the risk. The more recent your fibromyalgia, the more the need to look for other associated conditions.

    If you find something else along with fibromyalgia, the doctor’s job gets easier. (If you have the disease for 10–15 years, there would be little doubt and the doctor may be able to make a diagnosis just by talking to you)

    Managing patients with fibromyalgia is multi-dimensional. Patient education is key so as the patient gets reassured that fibromyalgia is a non-life or limb-threatening benign disease of just pure pain and suffering. So it is important for the patient not to let the disease get to them and fight it valiantly and refuse to be impacted in everyday life. The doctor is there to help you do that.

    The treatment would involve drugs that alleviate the different symptoms as well as lifestyle changes. Exercise and good sleep are the cornerstones of Fibromyalgia management. For those who find exercise painful, it is important to have a structured regimen where you start slow and slowly increase the level of exercise.

    Improved sleep either with lifestyle changes or with fibromyalgia medicines would have a direct and immediate impact on your pain and other symptoms. Reducing weight is important for those who are obese, as they are in general less likely to respond to drugs (contrary is also true, those who are lean tend to respond better to drugs).

    I have seen patients who did not respond to any drugs getting cured simply with exercise and weight loss. While there are several drugs for fibromyalgia that are approved (pregabalin, duloxetine) or off-label, the choice of the first drug should be determined by the specific circumstances of the patient including comorbidities and is not going to be covered here.

    Suffice it to say that different individuals respond differently to different drugs and it is important to find which drugs or combinations thereof work best for any given patient. Therefore, the patient should have patience and stick with your chosen rheumatologist and give him enough time to optimize your management.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Is there a link between Fibromyalgia and Alien Abduction?

    Is there a link between Fibromyalgia and Alien Abduction?

    I was diagnosed with Fibromyalgia in 2015 and have been finding ways to keep going!

    Well, let’s look at this logically.

    When a person goes missing alien abduction is not on the police’s mind. At no point in their investigation does a detective state “should we not consider alien abduction.” When they have completely exhausted all areas of questioning they have to move on and they leave the case as an open “cold case.”

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    Answers could include:

    • The person has disappeared and they are actively choosing to remain so for whatever reason.
    • The person has had an accident in a place where anybody can find them and sadly they die.
    • Someone has abducted the person and either they have found no evidence or their inquiries did not look into this perpetrator.

    At no point even then do the police consider alien abduction. This is something that others may consider on internet forums and chat rooms. It is outside of the general psyche.

    Fibromyalgia is a syndrome that most up-to-date physicians are / or should know about.

    There are no specific tests (at this point in time) to detect Fibromyalgia so the Doctor tests for other conditions that have similar symptoms to Fibromyalgia. When they have tested a patient for several other conditions and all the tests have come back clear and the symptoms have remained for six months or more a Doctor will give a diagnosis of Fibromyalgia.

    Medical knowledge is not complete doctors are learning new things all the time. There may be several new conditions that come under the umbrella of Fibromyalgia at the moment. Even if doctors don’t agree with Fibromyalgia as a diagnosis, most of them understand how much their patients are suffering.

    At one point they didn’t know or understand HIV or Aids, at one stage they didn’t understand or know how to treat cancer. As lifestyles change to adapt to the changes in how people live and work new medical conditions arise.

    I have a feeling that the person who asked this question was trying to be funny, however, Fibromyalgia is very far from a joke. So I have given Fibro the respect it deserves and answered this question, as a byproduct of this I have treated the question with respect, that part is unfortunate and all I can hope for, is that the person asking this question never has to understand the reality of living with Fibromyalgia.

    Karma may have other ideas and may make the question asker regret this.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Is there a correlation between Fibromyalgia and Recurrent Miscarriages?

    Is there a correlation between Fibromyalgia and Recurrent Miscarriages?

    Yes. The underlying disease process causing the symptoms known as “Fibromyalgia” can include an increase in anti-cardiolipin antibodies known to increase the risk of clotting and thus miscarriages.

    For more information, Regarding “Chronic Fatigue Syndrome”, “Fibromyalgia”, “Chronic Lyme” & other chronic diseases in which the patient is frequently told by their doctors that; “you look fine, I can’t find anything wrong with you despite all of the labs that I’ve run”.

    Chronic Inflammatory Response Syndrome (CIRS) refers to an immune system malfunction in which the immune system essentially has a broken “off” switch. Up to half of the general population appears to be genetically susceptible (shoulda’ picked better parents) to this disorder.

    Click here to Get this or Visit Fibromyalgia Store

    “Genes load the gun, exposure pulls the trigger”, what does “exposure” mean? It can be one of many things–anything that promotes a pro-inflammatory cytokine “storm” including sepsis, Covid, mold-related illness, and other issues. Mycotoxins, poisons secreted into the local environment by certain molds/fungi, Lyme Disease, Pfiesteria, Ciguatoxin, even exposure to certain vaccines such as the Lyme & Gardisil vaccine can create the surge of inflammatory cytokines that trigger the onset of the illness.

    The International Society of Environmentally Acquired Illness is a professional organization of practitioners experienced in treating this illness. Few physicians even recognize this illness other than calling it by the above names, much less have the awareness that it can be treated and reversed or the fact that while causing great suffering, it also frequently shortens lifespan.

    If this doesn’t work, get a good medical evaluation

    Lyme Disease, I am embarrassed to say that many of my colleagues “don’t believe” in certain diseases such as “Fibromyalgia” & “Chronic Lyme Disease” as if this was a theological or philosophical debate.

    It’s not, It’s “applied biology”, AKA “Medicine” just as “applied physics” is called “Engineering”.

    Sir. William Osler MD once said that “to know Syphilis is to know medicine” because syphilis (a disease that is caused by a spirochete–same family as Borrelia that causes Lyme) can affect so many different organ systems, causing great suffering and shortening lifespan with many types of clinical manifestations/malfunctions of virtually every organ system.

    The fact that with both diseases there’s a long “latent” (asymptomatic/relatively asymptomatic, or with such a bizarre assortment of intermittent, nonconstant symptoms) doesn’t help.

    Add to that the fact that most current lab technology has a false negative rate greater than 50% (over half of the folks with the disease test negative–as if they don’t have the disease).

    In most infections, there’s a clear presence of “cure”. Chest X-rays after pneumonia clear up after infection resolves, blood counts return to normal, blood cultures become negative–the patient is “cured”.

    Not so with Lyme; with most/many labs and imaging reports being normal with the disease–how do we know for certain when “cure” has happened.

    Furthermore, there are two major professional organizations that weigh in on Lyme. The Infectious Disease Society of America (IDSA) is very stringent with its diagnostic criteria and when to use antibiotics to treat.

    The International Society of Lyme-Associated Diseases (ILADs) has much more “liberal” criteria regarding when to “call” the diagnosis as positive and for how long to treat with antibiotics.

    State Medical Boards have also been known to persecute (yeah, not prosecute, persecute) practitioners who recognize the serious nature of Lyme and treat it aggressively.

    It’s a confusing illness, hard to diagnose, IMHO very undiagnosed with a H U G E portion of our population suffering due to it. There’s also strong evidence that it was genetically altered by the Dept of Defense to increase its virulence as a biological weapon with research done on Plum Island CT.

    That’s the “short take” on “What’s the deal with Lyme disease”.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • What is the best support that I could offer someone with Fibromyalgia?

    What is the best support that I could offer someone with Fibromyalgia?

    Support someone with Fibromyalgia

    Honestly just understanding, no suck it up, it can’t be that bad, get out and do something, it’s an illness that we never know how bad we’re gonna be so plans are pointless, invite but don’t get upset if they bail, etc, when we do get good days you can guarantee we will do all we can then have a crash for 2 weeks as did way too much, a job looks simple to you not so much to us.

    I get bad paraesthesia just typing imagine having to scrub the shower I look and know in 1/2 minutes I’m going to have crippled hands so why bother to start, or we can start a job then gets too hard so we move on to another simple thing and repeat till everything is a bit done, etc, most people with fibro are just angered by assumptions like we love being “lazy”.

    We enjoy bailing on plans or eating toast as haven’t the energy to go shop or even not eating as can’t even manage that, seriously I have eaten one mouthful, and like nope I can’t even lift a spoon or have the energy to chew my food, we’re tired all the time except for like 2 hours when it’s midnight, oh then is 50/50 if we can sleep and even if we do sleep we do not hit deep sleep so always tired which causes more pain.

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    Which causes worse sleep issues which causes more pain…. round and round it goes, so we have to have an order I need to do x.y z they are a must so we do those and anything else is a bonus, look up “spoon theory” this may give you more of an idea, or for example, let’s say you have a phone the charging is unpredictable you plugin for the night and is a surprise what % you may get so you wake up.

    It’s at 50% everyone else is 100% I have the same things to do as you but on 50% battery so have to optimize, leave out some things that take me down to 0 plug phone in the next day because I had to squish stuff in and that messed up my “battery” more today I have 40%, 3 days later I’m only getting to 5% so I need to do nothing to try let battery recover to a better amount.

    Also as my battery is “weak” what takes your battery 1% to do takes mine 4%, so for you having a shower jump in scrub feel refreshed, etc, for me a shower actually takes energy away from me, a walk to the corner shop for you nothing for me like walking the marathon with a limp, we also are VERY good at faking being fine, as we can’t just lie on floor screaming due to the pain all day.

    Just picking up a cup can make it feel like a bone has broken in my hand but I can’t scream every time, we can “continue” with pain most people rush to er for, but in the confines of our homes we’re in pajamas easy clothes, pottering when we can resting and chomping meds that don’t help much, so basically anyone you know with FMS feels shit enough as is w/o people who cannot know what it is actually like judging.

    “Just exercise” “you need change diet” ya de ya trigger phrases do NOT use them, and in my experience most of US with FMS just want people to grasp what we are dealing with and not brush it off, believe me, most of us at Doctors begging for any fucking help so we’re not this pointless waste of flesh but there’s not even a definitive way to diagnose it let alone treat it.

    I am using FMS as fibromyalgia syndrome as it is NOT one problem it is up to 200 symptoms so do you think we’re having fun? headaches lasting weeks? bruising easily, IBS, brain fog, short term memory fucked to shit, I’m at can forget what doing while I am doing it, paresthesia, vertigo, dizziness, eye muscle weakness, just to list a few symptoms bar the “pain

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • What do doctors themselves really think about Fibromyalgia?

    What do doctors themselves really think about Fibromyalgia?

    Well, that’s a loaded question, isn’t it? You are implying that not believing in a condition’s existence is in some way incorrect.

    An honest answer effectively requires admission of fault, which is incorrect and inappropriate. Nonetheless in the hope of providing some balance, please read on. Be warned that if you have fibromyalgia as a diagnosis yourself, you may not like what follows, and may even feel insulted.

    This is of necessity a short article for social media, not a scholarly paper or proper piece of persuasive writing. Even so, it is a fair and honest appraisal of the condition, and given that using this approach I have been successful in ridding many, many people of this unhelpful diagnosis over the years, it is probably reasonably well-founded.

    Click here to Get this or Visit Fibromyalgia Store

    As a diagnosis Fibromyalgia is a bit of a non-entity. There is neither plausible cause nor effective treatment (as of August 2018) In the absence of both, it is perfectly reasonable to say that it is not a disease.

    In fact, there is much to be said for Fibromyalgia as a diagnosis causing a huge amount of harm.

    Firstly, the condition has multiple symptoms, often unrelated, and all subjective. Subjective symptoms may be induced in patients quite easily, so simply reading information leaflets about a condition with such symptoms can actually worsen the impact on patients.

    Secondly, having been diagnosed with ‘fibro’ most patients then cease to seek any further diagnostic option, instead of sinking into chronic pain dependency.

    Fibromyalgia is somewhat akin to Irritable Bowel Syndrome which we now know not to be a condition at all, but instead, a symptom constellation indicating no serious underlying bowel pathology. In fact, there are several conditions that cause the symptoms of IBS and they are mostly treatable – less than 10% remain undiagnosed and treated these days.

    That is not to say that the suffering is not real, but it would be more honest of the doctor to say “you are sore and I don’t know why” than to label your pain with an unhelpful and potentially harmful name.

    As with IBS most fibromyalgia does have a cause and is easily treated. It is then, however, not called fibromyalgia.

    Common causes include:

    • Bad posture – forward head posture accounts for almost every diagnosis of fibromyalgia and it completely explains all the upper back and neck symptoms typical of the condition, including the trigger points. It sticks in my craw to say this but see a chiropracter – you’ll get fixed in no time.
    • Bad posture – much of the rest of fibromyalgia is due to other postural issues, especially apparently minor mispositioning of the body during rest.
    • Depression – the pain of the condition leads to low income, poor work and thus to a defeated posture – see answers above.
    • Injury – injuries can lead to gait and posture changes which cause persistent pain.
    • A diagnosis of fibromyalgia in a friend or relative. It is quite infectious, though as far as we know there is no agent that transmits the disease.

    Click here to Get this or Visit Fibromyalgia Store

    Fundamentally, fibromyalgia is not a disease, it is a name given when the doctor is fed up with you and simply does not care enough to come up with the real diagnosis, or where you yourself are resistant to the possibility of treatment.

    Almost all patients I see (and cure) who have been diagnosed with fibromyalgia and have had it for some time, share one of two sets of characteristics – they are determined to fight the disease or they have given in to it. Both are wrong.

    Firstly it is not a disease, so you can’t fight it – you can just find the cause in your case, which is likely not exactly the same cause as the next person, and fix that. It can take a few months and often the cure starts off being worse than the disease. Trying to fight it and push on through it simply results in exhaustion and more pain which are, funnily enough, the key features of fibromyalgia. Oh…

    Secondly, you can’t use it as an excuse. You will never get better if you consider yourself to be a victim. Painkillers don’t help the condition and only actually make this aspect of the illness worse. Cannabis helps you not to care but actually ends up making the condition worse. Whoops.

    So how to fix it.

    Find out why you are sore and stop doing it. It’s your posture. It’s so often your posture it’s probable that ALL fibromyalgia is a postural issue. That’s not to say that the correction will fix it at once – it can take months and may hurt more in the beginning, but with patience and a little support you can overcome one of the most harmful misdiagnoses in medical history.

    Stop using painkillers – they don’t help. You will of course get worse when you do, but only briefly. Use them occasionally when you have really bad days.

    Do not use cannabis. Total rubbish and will simply end up with you being stoned all the time. Also it tends to make the condition worse over time because not only do you fail to correct issues, you will often adopt postures that make it worse. Sure it helps you sleep and makes the pain feel better yadda yadda yadda – read the previous paragraph until you understand.

    Placebos, meditation, and gentle exercise are very helpful.

    A healthy diet is essential. Lots of whole foods, lots of vegetables. Limit fat, dairy, meat, sugar, and processed foods. (no specific evidence in fibro but it will really help you in so many ways)

    So you ask how often I put my opinion onto patients, well, all the time, but then I don’t have patients with fibromyalgia any more. They haven’t left my practice either. They have got better. They have had their pain diagnosed and treated correctly and effectively.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • How exactly has Fibromyalgia ruined your entire life?

    How exactly has Fibromyalgia ruined your entire life?

    Fibromyalgia did NOT ruin my life, but when I tell you what it has cost me thus far, you will think I’m mistaken.

    • I can no longer exercise in the ways I like, no rollerblading, no horseback riding, no running,
    • I can no longer make a date with friends and promise to be there. Fibro makes it hard to plan ahead.
    • I can’t go for long car rides or road trips because I can’t sit in one position for too long.
    • I have to take meds for pain but they only work on the pain NOT related to the Fibro, so I’m still in pain.

    And the worst thing of all, after being able to proudly say that I am a nurse, I can no longer legally say it. I went on full disability in 2015 because just remembering a doctor’s order was impossible, or a diagnosis, or a name!

    Maybe it’s an inner me, I really don’t know, I just try not to dwell on the bad stuff, and keep looking for the good. There is a TON of good out there!

    I CAN NOT let something RUIN my life, not something like Fibromyalgia.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store