Tag: fibromyalgia symptoms

A detailed guide to understanding Fibromyalgia symptoms, early warning signs, and how they are diagnosed.

  • What is Fibromyalgia (and What Is It Not)?

    What is Fibromyalgia (and What Is It Not)?

    First, it is important to know that fibromyalgia is characterized by wide-spread muscle pain and specific tender areas of the body. However, it doesn’t stop there, because fibromyalgia affects multiple systems of the body, including the nervous system, endocrine system, and the immune system.

    The brain and GI tract are often involved as well. 

    One of the hallmarks of fibromyalgia is a dysfunction in the Central Nervous System. This dysfunction can cause a fibro body to react to things like lights, sounds, toxins, odors, and more. This can cause a lot of physiological stress internally, which often translates to symptoms throughout different areas of the body.

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    You may often hear that Fibromyalgia is the result of “over active” nerves. Trigger points can also exacerbate symptoms in fibromyalgia by their presence in and around muscles and connective tissue. The endocrine system can become challenged due to the stress on thyroid and adrenal glands. 

    The immune system is also working overtime, often times due to the primary co-conditions that affect immune status. This is why people with fibromyalgia often describe fibromyalgia as not just living with chronic pain, but like living with a flu 24/7.

    What Fibromyalgia is Not

    People are often confused and ask what is fibromyalgia because they simply don’t understand what this diagnosis means, but let’s jump right to the second part of this question first.

    Fibromyalgia is not just a reason to complain. It isn’t an excuse not to work or to get out of other responsibilities by choice. It isn’t a source of pain that comes and goes at the sufferer’s discretion.

    While these are the opinions sometimes held by people who don’t believe in or understand fibromyalgia, this is a serious medical condition that impacts multiple systems of the body. 

    Fibromyalgia is not an illness merely associated with mid-life, as in the everyday aches and pains of getting older. No, it is much more complex than that. In fact, many of us have lived with symptoms since a young age.

    In my case, symptoms started at the age of 9, with severe chronic migraine, MCS and later progressing to fibromyalgia. We believe that we must look at all potential toxins, traumas and exposures in early life. Toxic exposures that can actually create a greater propensity to developing fibromyalgia or any auto immune condition

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    Fibromyalgia is not what you see depicted in TV commercials. These ads and commercials do not even begin to accurately depict the complexity of fibromyalgia. They cannot, because if they did, they wouldn’t be able to promote their medications for it.

    So, in a sense, they are simplifying their portrayal of fibromyalgia in order to continue to sell medications for fibromyalgia. No, living with fibro is not as easy or simple as taking a pill and getting on with your life. In fact, many of us have severe reactions to medications and the side effects only exacerbate symptoms already present.

    Fibromyalgia is not muscle strain in one area of the body from “over doing”
    We do not have fibro in just one area of the body. Yes, I have heard it before. People self-diagnose and say they have fibro in their legs or shoulders or wherever. No, it doesn’t work like that.

    For instance, many people can have trigger points around muscles and connective tissue, and these can become activated through a stress or strain. But with fibromyalgia, we have a combination of tender areas, trigger point areas and symptoms in multiple systems. So even a “soft trauma” can activate the nervous system in fibro, unlike other conditions. 

    Fibromyalgia does not often stand alone. Many of us live with its primary co-conditions, CFS/ME (Myalgic Encephalomyelitis) and MCS (Multiple Chemical Sensitivity) More information can be found throughout our site on these co-conditions. 

    Fibromyalgia and these co-conditions can make keeping up with daily life challenging, but those suffering from the pain and symptoms of fibromyalgia would give anything to make it go away.

    They would gladly take on more responsibility, and they dream of a day when they can guarantee never to miss another important event in the lives of those they love. Just like someone suffering from a heart disorder, epilepsy, or cancer, they simply don’t have a choice. 

    What is Fibromyalgia?

    Fibromyalgia is considered a wide-spread musculoskeletal pain condition, even though it also affects many systems of the body. One of those primary systems is the Central Nervous System.

    With fibromyalgia, it can feel like the body is always on alert. Within our website here, we address the many systems and areas of the body affected, from the muscles and joints to the gastrointestinal tract and brain.

    Fibromyalgia impacts the immune and nervous system to the endocrine system as well. It can impact any of your body’s more vulnerable areas such as tender areas around the neck and lower back, trigger points in the upper back, to the muscles and bones and the various systems including the endocrine, nervous and immune system.

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    For greater accuracy, we list some of the secondary symptoms within primary symptom links in our Symptoms List.

    Some people consider depression, anxiety, and other mental illnesses a direct symptom of the condition that is just as real as the pain. It’s more likely a consequence of the illness because living with fibromyalgia is stressful.

    Too often, symptoms in fibromyalgia can be “activated” from external sources that we are not always in control of. This might lead to a few hours of increased pain or to an extended flare, lasting days or weeks. 

    With the absence of a cancer tumor, surgical intervention, or even medical scans showing something physically wrong with the body, it’s difficult for some people to realize how much pain is endured by fibromyalgia sufferers.

    Many sufferers don’t receive the support and care that they need from loved ones, and even with that support, this is a condition that takes a mental, physical, and social toll.

    Ruling Out Other Options/The Good and the Bad

    It is important to determine what is fibromyalgia and what is not. You can visit your doctor frequently with severe pain, stiffness, aching muscles, tingling, burning and extreme fatigue, and they may routinely tell you that there is nothing wrong with you.

    They may pick up on some inflammation in your body, but they often can’t determine where it’s coming from. A diagnosis of fibromyalgia typically comes after a lot of testing because you must rule out other medical conditions first. 

    This is why fibromyalgia is often considered an invisible illness. It’s clearly there, but like many other conditions, you cannot see the pain, you cannot always “see” the symptoms we are experiencing. It’s a chronic illness that can lead to consistent pain and discomfort.

    It may also come and go with flare-ups sparking at unexpected and very inconvenient moments. It can be completely debilitating, even when the sufferers want nothing more than to enjoy an active, healthy life.

    The good and the bad. You feel good when you are not diagnosed with a life threatening illness. Other testing comes up negative. However, you can feel just as bad when the doctor looks at you like everything is fine. Why don’t you feel fine?

    You know that something is not right. This is often the beginning of the journey. You will work with your doctor where you need to, but you will also know that there will be areas of your health that you need to take into your own hands.

    We want you to better understand fibromyalgia and all of the symptoms, but at the same time, it can be dangerous to attribute every symptom to fibro. With all of our specific articles on fibromyalgia symptoms, we offer solutions to help you create a better quality of life, but never false cures or cover ups. See, it is important to know what is happening in our bodies. Why am I having this pain? What is triggering a particular symptom?

    That is why we do this. Our number one goal is to help everyone with fibromyalgia and co-conditions live the best quality of life possible. No false cures, no quick fixes. Refer back to the interactive Symptoms List below at any time. 

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Illness Coming Out With An Invisible Illness!

    Illness Coming Out With An Invisible Illness!

    Yup, I’m coming out today!  Not about my sexuality, but my health. I want to tell everyone that….. I have a chronic illness. I have Fibromyalgia.

    Maybe you’re thinking, “yeah- ok, so do I –welcome to the club”; or maybe you’re thinking “what in the heck is Fibromyalgia?”. Well, for me to come out and say this -is a very big deal. Especially since I was diagnosed in 2014 (Four years ago!).  I have pretty much been in denial for a few years.  I had decided that I wasn’t going to let it affect my life and my goals, until it did, and I had no control over it.

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    There are Four reasons why I am starting this blog about my illness:

    1. The most important one is that by talking about my illness publicly, I have to admit it and accept it.
    2. I also hope that it will give me some accountability in taking care of myself instead of putting my needs on the back burner. I’m sure a lot of us moms tend to do this.
    3. Another reason for this blog is to share my experiences to help others and so that others can maybe help me. There are so many wonderful strong women (and men) out there living with Fibro and still kicking the world’s butt; I want to be one of them.  I figure what better way to become successful at something than by learning from the others that already walked down that road.
    4. Lastly and honestly, I plan for my blog to bring in an income so that eventually I do not have to work my “day job” anymore. However, I’m not counting on this and would only be a perk and a way to manage my illness more easily.

    What will my blog posts be about? Since I am not just someone with an illness.

    • I am married (19 years) with 3 children ages 22, 16 and 9.  I work full-time and am working on my BA online part-time.  Until recently, I have been juggling all these and my illness fairly well. 
    • For the last 8 months I have been in the worst flare I have ever experienced and have been unable to work or attend school. Let me tell you, it has been a huge “wake-up call”.  I am realizing how I need to stop ignoring my Fibro and embrace it, so I can manage it. 
    • The hope is to have posts that any working mom can relate to, but especially those with challenges like physical and emotional disabilities. So there should be something here to relate to for the working mom, student and wife.
    • I am going to go celebrate launching my site and my first blog post now! I look forward to hearing from you and learning from you! Please feel free to follow me on social media for a daily dose of motivation and positivity.  Talk to you soon!

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • 8 Ways To Control Your Itchy Fibromyalgia Rash

    8 Ways To Control Your Itchy Fibromyalgia Rash

    FibroRash Is this really a thing you ask? Yes, apparently it is a thing.  If you have trouble with any kind of rash all over your body and you have Fibromyalgia, you could also have Fibro-Rash.  I just visited my dermatologist because my rheumatologist wanted me to rule out psoriatic arthritis. I have had itchy skin for many years and just thought it was my dry skin.  It turns out that it is really folliculitis, an inflammation of the hair follicles brought on by Fibro -and I do not have psoriasis-whew!  My doctor said that there are ways to ease the symptoms but the only way to really control it, is to control the Fibro. Sure, no problem that is an easy fix….(she says sarcastically.)

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    I’ve always had sensitive skin, so it doesn’t surprise me that my Fibro symptoms come out through my skin as well. People with auto-immune illness and chronic diseases are more susceptible to folliculitis.  So, it makes sense that I really started to notice something was wrong when my flare began.  My chest broke out into a red, blotchy rash which waxed and waned with my stress level. It was like my body was doing whatever it could to get me to stop and notice. I was waking up scratching my legs at night – it was horrible!

    Bottom rash is an example of Folliculitis

    How can fibromyalgia folliculitis be treated? Here is what my doctor said to do:

    1. Cure Joy that I found with a simple google search. Please follow the link for complete directions. I have tried a couple of these, please leave your experience in the comments below.
    2. More Ideas To Help You Control Your Itchy Fibromyalgia Rash

    3. White Vinegar – one tablespoon to two cups of water, then apply to the affected area with pressure for twenty minutes.

    4. Tea Tree Oil-best for scalp folliculitis

    5. Garlic– beneficial due to antibacterial properties

    6. Aloe Vera-antibacterial and anti-inflammatory. This is the aloe vera that I use. I love it and it has tea tree oil in it already – I apply after a shower daily.

    For me, this was just another reminder that I have Fibromyalgia and I can’t deny or ignore it any longer. We really need to take care of ourselves, make time for just you- even if you have to schedule it!

    Diet To Control Your Itchy Fibromyalgia Rash

    7. Since I first wrote this article a couple years ago, I have learned a lot about Fibromyalgia. In the last year or so, I have really been focusing on controlling my symptoms with my diet. I go into a lot more detail (see link) of how an elimination diet can help you improve your fibromyalgia symptoms.

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    8. If you want to try an intolerance test to get to what might be causing your rash faster I recommend 5 Strands Affordable Testing, use fibro cure 10 for 10% off. I used this service and hope to write an article on it soon. It really helps narrow down foods that may be bothering you.

    Rashes can be scary, if you have one I recommend going to your doctor. I hope that my story has brought you some comfort and that if you do experience this, you now know that you are not alone. Not only are you not alone but there are steps you can take to relieve the misery.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • It’s not you, It’s me: Fibromyalgia and Relationships

    It’s not you, It’s me: Fibromyalgia and Relationships

    Grab a cup of coffee or tea and get ready because it is about to get REAL! I have my favorite coffee in my favorite cup and I’m ready to talk about Fibromyalgia and the effects it has on our relationships.

    My Story On Relationships:

    I don’t know how many times I have said to family members, “It’s not you, it’s me and I’m sorry for snapping.” This is especially true of my nine-year-old. I have tried explaining to him that I am sick and I’m in a lot of pain, but I’m not sure how much he really understands. Since he is the baby of the family, he has been spoiled (yes, I’m admitting it)! Needless to say, he is used to getting his way and when we try to lay down the law -he resists.  It’s on my bad days that this resisting is not something I can handle or tolerate. These are the days I snap at him.

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    Maybe this is the part where you judge me, vocally or silently. Or maybe this is the part where you understand because the same thing happens in your house.  Either way, I get it- I judge me too!  I’m probably harder on me than any other person could be (hence chronic illness brought on by stress). Before I was really “dealing” with my illness, I think I still snapped, but didn’t really accept responsibility for my behavior.  Now it’s different. I can (most of the time) recognize that I just said or did something that I wouldn’t normally, had I not been in so much pain or so exhausted.  So, now I try to apologize.  I don’t use my illness as an excuse though.  This is why I say to my son, “It’s not you, It’s me”. I try to explain to him that his behavior needs to change but that was no excuse for me to (insert whatever I said or did).

    My Thoughts On Relationship Solutions:

    This post is hard to write……although I am pretending you and I are friends just sitting at a coffee shop catching up. The truth is some of the people reading this I do not know at all. It is pretty scary to put yourself out there like that for all to see.  I find it just as scary for the people I do know to read this, because I haven’t told them any of this either. HOWEVER- like I said in my post Coming Out, I can’t hide from this anymore. This is just another way to remind myself that what I am going through is REAL and not just going to go away.  Fibromyalgia doesn’t give a F*** about my hopes, dreams, goals or the people I love. It doesn’t care that I need to go to work, that I need to finish school or that I had plans with someone special.  When Fibromyalgia takes from you, it takes what it wants, when it wants.

    Taking Care of Yourself

    This is why it is so important to manage stress and take time for yourself.  I understand this now; even though it is still easier said than done. By letting everyone know what I’m going through, I’m no longer fighting this alone.  I have learned so much from others already diagnosed. First, is that somedays you have to take it hour by hour or less if you need to.  I learned that meditation can help center myself and keep my thoughts in check.  Next, I learned that if I can stop living so much in the future I can manage my stress level better. Also, I have learned so much more than this, but most importantly – I learned that I am not the only one going through this. My invisible illness doesn’t have to be something I keep hidden.

    My Not Really Advice On Relationships

    I can’t really give any advice on the best way to deal with your personal relationships when you have Fibromyalgia. Why?  Because I am still trying to figure it out.  Really, I am pretty lucky!  I have a supportive husband and family who understands my illness. That may not seem like much, but it really is everything.  If they didn’t support me, I would be even more lost. So I acknowledge that daily and I am very appreciative for what I have, despite what the illness takes from me.

    My last thought is that no one is perfect.  You may snap at people and that isn’t ok no matter what you are going through. We have to take responsibility for our actions, even if our actions are driven by an illness that others can’t see. My goal is first to be up front with what I am going through in the moment, especially with my husband.  If he wants to have a stressful conversation, maybe it is something that can wait. Know your limits, meaning learn what pushes you over the edge so that you can stop the situation from getting that far. In my case, maybe I know I’m hurting, so I need to alter my day to only going to one store instead of the three I need to go to. I am hoping that by understanding my limits better, I can lessen the amount of times I hurt my family’s feelings.

    If we were friends at a coffee shop catching up, it would now be your turn to share.  I would love to hear your thoughts and how you deal with relationships while in pain and exhausted.  Please leave your story in the comments.  Don’t forget to subscribe to my newsletter below so you can be the first to know when new content is published.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • 10 Things I wish my Co-Workers Knew about Fibromyalgia and me!

    10 Things I wish my Co-Workers Knew about Fibromyalgia and me!

    Most of the time, I would consider myself a private person.  I don’t tend to put my personal business out for the entire world to see. However, since my chronic illness has taken my life hostage, I have found the courage to seek support in those around me.  Except I’m not quite brave enough to share this with all my co-workers and really, I shouldn’t. Instead, for therapeutic reasons I wrote a list for me and I am sharing it with you.

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    What I wish my coworkers knew about me:

    1. The truth is- I have Fibromyalgia, which is a condition that involves the brain and nervous system. It is very complex and effects many parts of my body. 
    2. I’m in pain almost constantly. The pain is widespread all over my body, like someone has been punching me; even a slight touch or bump can be felt as if it were a punch!  This is why sometimes when you pat me or hug me too hard, I wince.
    3. The constant pain leads to exhaustion and not being able to sleep.  Most days I wake up already exhausted, like I ran a marathon. This means that by the time I get to work, I feel like you might feel after days of no sleep.
    4. My brain is overloaded by pain and sometimes-loud noises or too much stimulus can overwhelm me and make me feel confused.
    5. Fibromyalgia can cause my cognitive functions to slow, meaning  sometimes I just can’t find the word I’m looking for. Or it takes me longer to get to the answer than it used to.
    6. The medicine I’m on makes me dizzy and sleepy and many other side effects in addition to my illness.
    7. I have good days and bad days If I’m having a good day, it doesn’t mean I’m cured or “faking it on the bad days”.
    8. Relationships can be a challenge. Sometimes all this makes it hard  for me to even have a conversation and if I’m rude, I’m sorry it is not intentional.
    9. Please, No Drama! Stress brings on my symptoms and makes them worse.  I care about you all, but I’m just here to do my work. I don’t want to be a part of any conflict.
    10. I’m still me! I’m still that ambitious, competitive, over-achiever you have always known.  I just need to take it in smaller doses now.  I need to take time to take care of me.

    There are so many people out there that have chronic pain conditions that have to go to work. I know how hard it can be and how much energy it takes you to get through it!  You are NOT alone!  I hope this list serves as a reminder that although we don’t want everyone we work with to know our personal business, we need everyone to know how much their kindness means.  You never know what someone else is going through on the inside.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • A Look Into The Mirror

    A Look Into The Mirror

    I look into the mirror and I wonder
    Who are you now?
    I remember who you used to be
    Are you still the same?

    I look into the mirror and I wonder
    Do you still want the same things?
    I remember what you used to want
    Are you still the same?

    I look into the mirror and I wonder
    Are you still motivated and ambitious?
    I remember that you used to be
    Are you still the same?

    I look into the mirror and I wonder
    Is this the same person that walked a half marathon?
    I remember when you did that
    Are you still the same?

    I look into the mirror and I know
    The pain has changed you but…
    You are still the same
    You are still caring and loving
    You are still passionate and giving
    You are still ambitious and productive

    I look into the mirror and I see you
    Not Fibromyalgia!

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Searching for Dr. Right- Fibromyalgia and Physicians

    Searching for Dr. Right- Fibromyalgia and Physicians

    When you have Fibromyalgia it’s almost like the quest for Dr. Right is literally a rite of passage.  So many of us “Spoonies” have been frustrated by the lack of knowledge and often kindness we experience at physician visits.  I am not immune to this scenario; this actually has been a heart-breaking experience.  Don’t worry though; I think it has a happy ending.

    My Story

    I was diagnosed in 2014 by a physician whose middle name was “judgment” (seriously). When I went to her about my anxiety, which was way out of control, she looked at me like I was crazy.  I already felt crazy, so it made sense at the time that someone thought I actually was crazy! So then there was a search for a new doctor.

    I found a physician that I thought was wonderful.  She is a D.O. and supposed to treat the “whole person” so I thought she was going to be a good fit. Which she was until I went into a huge flare. She just threw “Fibromyalgia” drugs at me and ignored my other real symptoms like chronic anemia. She wasted so many months not really treating my health issues.  However, each time I saw her I felt like she didn’t really believe me. So then there was a search for a new doctor.

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    The Silver Lining

    I went to a rheumatologist that had helped diagnosis my arthritis in the past.  Quickly I was reminded why I stopped going to her.  She didn’t really believe me either. The silver lining out of this visit was that she recommended I start seeing another specialist, like a hematologist and sleep study doctor.  That actually led me to Palo Alto Medical Foundation, where every physician has treated me wonderfully and respectfully.  This is where I have found a dermatologist, hematologist, primary care doctor, and rheumatologist.  I finally feel hope that all of me will be taken into consideration!

    For fun (not), I have made a list of hurtful things physicians have said to me since I have been diagnosed with Fibromyalgia:

    1. “Just think more positively and you will feel better.”
    2. Rheumatologist just kinda got stuck with Fibromyalgia it really isn’t something we should be dealing with.”
    3. “Your pain isn’t dangerous.  You should exercise- your going to be in pain anyway.”
    4. “My other Fibromyalgia patients are able to work.”
    5. “I filled out your disability paperwork, but I won’t fill out anymore for you.”
    6. “If this medicine doesn’t work, I don’t have any other options for you.”

    Sharing Our Fibromyalgia Stories to Raise Awareness

    These physicians were telling me they didn’t believe me with their words and actions. It is soul-crushing to have someone treat you this way, especially when you already wonder what is happening to you and how to fix it.  I have been treated like I don’t want to work, not that I am physically, emotionally, and mentally unable to work. My hope is that by writing this post, I can spread more awareness of Fibromyalgia and Invisible Illnesses so that patients like me can get more support from our medical providers. We NEED more research done and more doctors to care about learning all they can about this devastating condition!

    Here are just a few symptoms that people with Fibromyalgia suffer from:

    1. Headaches
    2. Restless Legs
    3. Irritable Bowl Syndrome
    4. Sensitive to temperatures
    5. Depression
    6. Sensitive to sounds (my husband’s constant whistling)
    7. Anxiety
    8. Sensitive to touch (along with rashes on the skin)
    9. Sleep deprivation
    10. Inability to concentrate or think clearly
    11. Fibro Fog (can’t recall names for objects/people)

    I share this small list again to raise awareness, the more everyone knows about this condition the more likely research will get funded. As for me, I finally found a physician that understands and is on my side to help me take better care of myself and advocate for me. That was a wonderful day and I hope all with invisible illness get to feel that feeling. We are NOT faking it and we DO want to get better! Please share this post with as many people as possible so we can spread the awareness of what we “spoonies” have to go through to get good medical care.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Four Lessons in Parenting For Those With Fibromyalgia

    Four Lessons in Parenting For Those With Fibromyalgia

    Parenting is for sure the hardest job on the planet! Add a chronic pain illness like Fibromyalgia to the mix and you have a possible disaster just waiting to happen. I have been a mother for 22 years; now you might think that is a long time, but I still feel like I don’t know what I am doing. This article is to help us both feel a little better about ourselves and let go of some of the guilt. These are the top four lessons I have learned as a parent.

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    Lesson 1:

    You cannot be everything to everyone all the time. This means that you can’t always be “supermom” cleaning, organizing etc. Sometimes you have to let something go. I don’t know how many times people say to me, “how do you do it” when they find out I work full-time, have kids, and go to school! I always say, “Well, my house is a mess!” Don’t get me wrong; deep down it bugs the hell out of me that my house is not as clean as I would like it. However, if it comes down to playing a game with my kid or doing the dishes…..I think we all know what choice we should make.

    Lesson 2:

    Let your child be independent, in fact teach them how. I used to do EVERYTHING for my kids, in fact my nine year old still expects me to do things he is totally capable of doing. Teaching them how to make themselves something to eat safely, how to do simple chores is something that will help you and empower them. Trust me, on a flare day when you can barely move, you will thank me for this piece of advice. This lesson is all about thinking ahead and preparing, both for you and your child. An example of something my son can do is get his clothes ready for the next day. He knows he needs to clean out his own lunch box and not leave it for me to do. This isn’t perfect, but we are still working on it. Good news, last night he put his pile of laundry away without me even asking- success!!

    Lesson 3:

    Talk to your child about your illness. This might seem daunting and you might not know where to start. It really does depend on your child’s age. However, one thing I noticed is that my nine year old understood so much more than I thought he did. He said to me that my illness prevents him from enjoying certain things. So I asked him what he thought it prevented me from doing. He was so thoughtful about his answer; he knew that it put me in pain and made it hard for me to do the fun stuff we always want to do. When I am in a lot of pain, I try not to complain about it, but I do let him know this is a bad day. If I snap at him, I remind him that it’s me, not him.

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    Lesson 4

    This last lesson is one I found on accident, but might just be the best one. I promise to always tell my kids the truth! Talking to them by asking them open-ended questions helps to minimize the one word answers. I remind them how their actions might make someone else feel. This isn’t about making your chronic illness easier, but now that I have older children I am reaping the rewards of these actions. Creating an atmosphere where my kids feel comfortable talking to me about anything (even scary things) gives me peace of mind! My kids know that no matter what they can come to us, especially if they need help.

    Like I said, parenting is the hardest job on the planet! Having a chronic illness means you need to make more time for yourself. If you remember that you can’t be everything to everyone, you teach your child to be independent, talk to your child about your illness and be honest with your child then you are doing the best you can! I would love to hear what you have learned as a parent with a chronic illness, please share in the comments below.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Causes & 10 Ways to Improve Health

    Fibromyalgia Causes & 10 Ways to Improve Health

    Although the exact cause of Fibromyalgia is not known, there are enough people with the condition to have several possible causes with positive correlations. Sadly, correlation does not mean causation! So what caused my Fibromyalgia? Personally, I know exactly why I have the condition. It directly correlates with some of my life choices. That is not to say I would not have developed the condition either way, however if anyone can learn from my mistakes I am happy to share my experience.

    Fibromyalgia Causes Research

    According to a WebMD article, “What Causes Fibromyalgia?” there are several possible causes which include genetics, diseases such as arthritis, trauma or abuse, depression and anxiety, PTSD, gender and not exercising enough. The article states that fibromyalgia patients have more cells that carry pain to the brain than someone who does not have the condition. So, with all this information, for me, it is easy to see why I have this ghastly condition.

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    It is as if I created a perfect storm for my body to fall apart on me. It could have been any number of the causes above, or even all of them. I do have family members with Fibromyalgia. Sadly, I have experienced trauma and abuse in my life as too many of us have. Arthritis is one of my diagnoses and I have suffered from depression, I would say all of my life. Although anxiety was there as a teen it became very prevalent mostly in my adult life. Having a desk job for twenty years and not exercising enough for sure had something to do with my current condition.

    Like many people out there, we have lived paycheck to paycheck just barely surviving for most of our marriage. I had to work sixty-hour weeks just to barely pay the bills. I know deep in my heart that working so hard for so long, being under such deep stress for so long, and not taking time to take care of myself is the main reason why I am so sick now. You might be saying to yourself right now, “Well if you know what you did wrong, you must know how to treat yourself now then!” If only changing habits was that easy.

    My 10 goals to change my bad habits and take care of myself:

    1. Commit to daily exercise at least 15 minutes a day.
    2. Try to be more cognizant of what I put into my body.
    3. Practice meditation daily!
    4. Reevaluating my current work situation.
    5. Taking a semester or two off from working on my BA.
    6. Changing my mind-set when I do go back to school to manage my stress better.
    7. Take more time for me, such as getting a pedicure, massage etc.
    8. Cut myself slack when I don’t complete my “To Do List” for the day or even the week.
    9. Remind myself I can’t be EVERYTHING to EVERYONE and it’s ok to say NO.
    10. Forgive myself, when I can’t do the list above.

    There is a lot of research on what causes cancer, diabetes, and obesity to name a few. There is not really much research on what causes fibromyalgia. When we find out something we are eating may cause cancer, some of us will stop eating it. Research results tend to help us make needed changes in our lives. That is why continued research on fibromyalgia is so important! The more we know about causes, symptoms and treatments, the more likely we can prevent it and possibly reverse the effects.

    I urge you to get involved with International Support Fibromyalgia Network to support more education and research for Fibromyalgia.

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    Fibromyalgia currently has no cure. However, it doesn’t have to be a prison sentence. I challenge you to make a 10-goal list for yourself! What do you have control over? What can you change for yourself today? Your list will be different than mine and it should be. I really hope you take me up on this challenge and please share your list in the comments! Let’s support each other on this one, and find out how to make our selves feel better, even if for a day or an hour. As always, I am sending much love and gentle hugs to my fellow “spoonies” and “fibro warriors”.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • My Love/Hate Relationship With Taking a Shower

    My Love/Hate Relationship With Taking a Shower

    I didn’t always hate taking a shower. Before I had Fibromyalgia I probably even loved it. It has always been the thing that wakes me up in the morning and makes me feel good. However, now there is more of a love/hate feeling towards the shower. If you have Fibromyalgia or any other chronic pain condition, you probably already know what I’m going to say.  If you don’t have a chronic condition then you are in for a treat; a peak into the daily torture I go through.

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    So, since I have to go to work still and I love my co-workers, I have to shower. It is still the thing I need to wake me up that early in the morning. My day starts with me sitting on the edge of the bed, taking an inventory of the pain.  I know this sounds weird, but I have to acknowledge it in my brain before I stand up or it catches me off guard. Once I take some deep breaths and some self talk (“ugh, I don’t want to”, “shut up and do it”) I get up and let the dogs out. Then I go into the bathroom and get into the shower. Since I’m so stiff and in so much pain, the hot water is soothing.  I do what I need to do in there and then I do some stretches

    You might be saying, “Suzanne, you stretch in the shower, why?” Yes I do everyday because I have to.  This is the best place for me to get a little stretching in and wake up my muscles.  Since my goal everyday is to do yoga before I leave for work and that NEVER happens, this is my time. Now that was the easy part of getting ready and believe me, it wasn’t really easy for me.

    Once I am out of the shower and dry off and get my PJ’s back on (yes, I put those back on) I have to rest. Oh I forgot one important and taxing part- I have to brush my wet hair out so it doesn’t dry in tangles. This is the part that takes the most energy. Now with all that done, I have to go sit on the couch and rest. Heaven forbid the days that I couldn’t get out of bed on time because of exhaustion or pain because I still have to go through this process regardless.

    Once I have rested a bit, now comes the hard part, I have to brush my teeth AND blow-dry my hair.  I know this sounds stupid, but it is so hard to do. Think of it this way, if you work out a lot, lift weights or do a bunch of push-ups, you get sore right? Then if you try to lift your arms, it is difficult, even painful? Well, this is my daily life and I didn’t lift any weights- we won’t even speak about what it feels like when I have done some push-ups (yes, I can do some push-ups).

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    Now that I am good and exhausted, it is time to go to work. When I was home on medical leave, there were many days in a row that I didn’t even shower (embarrassing I know). It took all I had some days to make it from the bed to the couch. This is why we (chronic illness sufferers) are called “warriors” because most days we fight past all that I just mentioned and get through our day.  It is ok if we are not able to, but when we do it can feel like a victory over an illness that is trying to take over our life!

    I would love to hear your comments below. If you are Warrior- how do you get through your morning routine?  Is it similar to mine or different, I would love to know. Are you a Warrior supporter? I would love to hear how this article helps you better understand the person you are supporting. As always, gentle hugs to you, push when you can- rest when you need it.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store