Dear Fibromyalgia

Tag: fibromyalgia symptoms

A detailed guide to understanding Fibromyalgia symptoms, early warning signs, and how they are diagnosed.

Why do some people call Fibromyalgia “Fatso-myalgia”?

Different sufferers have various opinions related to the term fatso-myalgia, Here we have we warriors who shared their experiences here.

My life my way with fibromyalgia

I am 5’4”. When my fibromyalgia symptoms started, I was 22 and weighed 140lbs. I was, and still am, an endorphin junky who loved swimming and running. I had to give up running because of pain spreading to all my muscles, particularly after weight-bearing exercise. My weight plummeted to 105lbs. I most likely lost some muscle mass along with the fat, and I was depressed and nauseous from medication side effects. I was rolling down my jeans several times over and folding down and pinning my skirts in the back.

After I learned to manage my symptoms better, I got back to swimming, using fins to spread the work over my entire body, thus avoiding a major flare in my shoulders and obliques. I picked up a sport called underwater hockey.

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My weight rose back up to around 125lbs after I started feeling somewhat better, and it mostly hovers around this amount. However, when I feel worse, it can drop back down to between 110–115lbs, again because of loss of muscle mass from having to lie on the couch so much, compounded by depression from missing out on my favorite activities and whatever current flavor of side effect is plaguing me due to whatever new medication I am attempting to manage my symptoms with.

I also recently came to the realization that I have quite a bit of anxiety sprinkled into my depression, due to never entirely knowing if some new treatment or activity is going to make my symptoms worse or better. And having to answer questions like this one. This question makes me lose my appetite.

I realize my story is not typical and that most people gain weight after developing fibromyalgia. However, to my understanding, being overweight or obese comes with a specific set of symptoms, which can include pain, but that is distinct from our understanding of fibromyalgia and other chronic pain syndromes. In other words, fibromyalgia can affect people of all sizes, and there is still much work to be done to narrow down all the possible causes and risk factors.

My life is stuck with fibromyalgia

Because they are ignorant and cruel. I was struck with this disease in my late teens. I was, if anything, underweight at the time. The blood bank routinely turned me away from donations because I didn’t meet their minimum weight requirement.

Gaining weight didn’t cause my disease. I was slender until my mid-thirties. The sedentary lifestyle enforced by chronic pain and fatigue eventually caused me to gain weight. This is exacerbated by the fact that being sick all the time makes it much harder to shop for and prepare low-calorie, healthy meals.

I’m now nearly fifty and considered clinically overweight by about fifteen pounds, but I have never been in the category of obese.

I my living fat with fibromyalgia

I am a 41-year-old female with Fibromyalgia. 5’5″ 215lbs. Fat. Well, I haven’t always been sick, and not coincidentally, I haven’t always been fat. Like many fibro patients, I am fighting other things as well, but Fibro was the downfall of my active life and the subsequent rise of my weight.

I think many people see my sedentary lifestyle and think that I would be much healthier if I would just exercise more. (They’re not wrong) That my pain and fatigue are the results of my laziness. Thus, “Fatso–myalgia“

But the pain came first. The fat came later.

Now it’s just the revolving door of pain=lazy=fat=pain.

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01/15/2022
Is my Illness Related to Ascension?

It would depend on your definition of ascension. I suspect that just like almost all illnesses can be viewed from an anatomic, biochemical, and biophysics perspective, and often explained largely from each of those perspectives individually, it can also be explained from a Mind/body/spirit perspective.

I have discussed the mind-body perspective of fibromyalgia elsewhere. But not so much the spiritual interplay with the physical. So please bear with me as I give a perspective to consider.

In metaphysical terms, Ascension can be seen as moving from a perspective of Duality to Unity. People with fibromyalgia, overall tend to be more empathic, and often have difficulty setting clear boundaries (as in saying “No” to requests that feel bad). Setting up an energy crisis in their lives.

The thymus gland, which is the seat of our immune function is the ability to set boundaries between self and others. An ability that needs to be learned to be able to move to ascension, or Unity, while still also maintaining our unique individual perspectives at the same time. Fibromyalgia is a common problem in that growth path, as we learn to develop a perspective of Unity (Ascension) while maintaining ourselves.

In that way, it can be viewed as a milestone on the path to Ascension, teaching us to love and respect all, and all perspectives, while still being able to simply say No to things that feel bad. An important lesson of the illness.

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01/15/2022
Can Domestic Abuse bring on Fibromyalgia?

Three Fibro Warrior Women have shared their stories of domestic abuse. That is how fibromyalgia is becoming worse with domestic abuse.

1^st Fibro Warrior Women

Yes, yes yes!!!!!! My ex-husband started abusing me emotionally and mentally after I moved in with him. Before that, he was so sweet kind, and very loving. The symptoms we not from just my feet burning, I had that for CPL years before I met him. How did the intensity come on fast? I had to quit my job and was literally bedbound for 2 years before I got a handle on it.

2^nd Fibro Warrior Women

Yes, it absolutely can!

When I was diagnosed in 2009, my rheumatologist, while she was examining me, made the observation that I had been badly abused. She asked when the abuse had taken place, what type of abuse I had endured, and if I had been raped.

As I answered her questions, I began asking some of my own and she noted that in her years of practice that she had noted that those who had suffered from abuse displayed different characteristics in their conditions. Those who showed symptoms early in life were more likely to have more serious trigger events and symptoms later in life.

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I have been now told by three different rheumatologists and two different pain management practitioners that I have one of the worst cases that they have ever seen. It is not a condition that is easy to deal with, but it is one that can eventually affect every aspect of your life.

3^rd Fibro Warrior Women

Domestic abuse is extreme stress, which can in some cases trigger Fibromyalgia. It’s one of those weird conditions that have a whole mountain of things that can trigger it. I’d consider domestic abuse to be pretty high up there on the list.

For me, it was (I think) a car accident after I had just had neck surgery (3wks post-surgery, augh, I know), plus the stress of not being well enough to function at my job. 900% not fun, I’ll tell you that much.

Fibromyalgia is tied up into psychological yet physical pain which is why some people do really well on Cymbalta as a part of their treatment. Cymbalta, while helping agitated nerves calm (much like epilepsy), also acts as a mood stabilizer. That can help with the psychological state post-trauma (i.e. the domestic abuse, which hopefully has been dealt with accordingly), allowing the abused party to step back from the situation long enough to breathe and begin to heal and provide a scientifically proven way to relieve nerve pain.

In short, your emotions are tied to your physical well-being. Fibromyalgia is, very literally, in your head and in your nerves. Brain scans show that the electrical activity in a person that has Fibromyalgia is much, much higher than in someone who doesn’t have it. Great stress changes the body (I know since I’ve lived a life of intense stress myself and am a survivor of child molestation), which affects the mind. Invasive surgeries can also trigger Fibromyalgia – great stress on the body, which, again, affects the mind.

You might go through 20 surgeries and not get Fibromyalgia. You might go through 50 instances of domestic abuse and not get Fibromyalgia. Or you could have two surgeries and get in a fender bender that changes your whole life, triggering Fibromyalgia. It’s a lotta weird for a complex set of conditions that may or may not leave someone suffering from Fibromyalgia.

If you think there’s something wrong, see a Rheumatologist right after you take that harrowing leap out of that shitty domestic situation. Get yourself out of the stress, contact a shelter, go live with your mom, get safe and then get answers.

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01/15/2022
Does fibromyalgia cause permanent damage?

I have so many auto-immune diseases going on, I’ll begin with fibromyalgia.

When I lived in Vermont, one morning I could hardly get out of bed…all my muscles and joints hurt very much. I thought I’d have to call an ambulance. I lie there a while in bed. Eventually the severe pain eased us. I had what is known as a “flare”.

I went to my Dr. She said her office would make an appointment with a teaching hospital in New Hampshire. I was given a ride there. The Physician’s assistant pressed on various muscles…wow! Did that hurt! I was given no information. I didn’t know a thing!

A friend of mine had scads of information.

What happened is how our brain and spinal cord process pain signals. They are very exaggerated! Most of fibro. patients are women. Also if you have another painful disease like arthritis, and have anxiety and depression. Also, if you were emotionally abused or physically abused.

Fibro. can give you headaches, dry mouth, nose, and eyes. Sensitivity to light and sound, heat or cold.

Treatments: moist heat, gentle exercise…meds used are Cymbalta and Lyrica. But the best one for me was Plaquenil. it’s a malaria drug. It helped immediately.

Thanks and Be safe.

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01/15/2022
Why Every Single Day is Different in Fibromyalgia?

Seriously, no two days are the same. I think that is the reality that most people can’t wrap their minds around. I have absolutely no idea what my pain will be like a month from now. The only thing I know for certain is that I will have pain. Every day. For the rest of my life.

I’d say it’s like being trapped on a roller coaster and you can only see two feet in front of you.

Although, if you pay close enough attention for long enough (I recommend a pain diary), you can get a decent handle on some patterns. Different factors have different effects, like weather and stressors. For instance, my primary influence (outside my control) is barometric pressure. I am a human barometer. If I tell you that the weatherman is wrong, trust me, he’s wrong.

At this point, I’m realizing that this is coming off way more negative than I intended. There is much more to my life than pain, that is just one part of my existence on this planet.

By the way, this human barometer lives in north-central Wisconsin.

I don’t recommend the combination.

Sorry, I got to add one more thing. Fibromyalgia is neurological, not psychological. This is important. Those two words do not mean the same thing and they are not interchangeable. If my pain was “all in my head,” I would not be able to predict the weather.

Three Fibro Warrior shares their experience with fibromyalgia.

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1^st Fibromyalgia Warrior

In my experience, the biggest misunderstanding is that people think we can control it. It’s unlike other diseases/syndromes/etc. because it’s so inconsistent. One day I could get up, put on makeup, work hard, be cheerful and function apparently like everyone else (even though a good day is still full of aches, pains, symptoms, and exhaustion-but relatively it’s a good day) and the next day has explosive diarrhea all day, migraines, pain so bad I could scream, exhaustion, muscle weakness, confusion, etc. so bad I can’t function.

People around me have acted like I’m choosing the days I’m well or making excuses because they think I’m “well” because I had a good day, week, or month. They also seem to think that normal things like exercising a lot or doing common sense things that others do will help a me-every person with fibro responds to meds differently and has different symptoms and other problems.

Pilates messed up my bulging discs, some meds made me feel like a zombie, some did nothing, some worked for a bit then quit…The only thing that has worked for me was resting, minimizing stress, learning how far I can push myself, yoga, trying to stay generally as healthy and positive as possible, and getting unsupportive draining people out of my life.

When I get overwhelmed with life, family, work, it gets worse-people to think we just want to be lazy but for whatever reason overwhelmed brains make us nosedive really quick. It’s in the brain, nerves, muscles, and affects our neural pathways, we tend to have problems with sensory overload and our brains start shutting down and misfiring-the constant pain and fatigue put our whole system on the edge, so too much of anything can send us over the edge. Have compassion and empathy for everyone who fights a chronic illness.

2^nd Fibromyalgia Warrior

The most misunderstood thing about fibromyalgia is that it’s actually a disease, a complicated one at that. Because you look normal, people, including family members and doctors, don’t think you’re sick. And as for finding someone who can heal you, they don’t exist except for the marginally few who have $25,000 or more to spend.

This is an expensive disease to treat because it requires expensive supplements, doctors who don’t take insurance, treatments (like IV nutrition and Ondamed) that insurance won’t pay for, and experimental procedures. Not to mention the organic food you have to eat because of your already toxin-filled body.

I have been sick for 35 years and some of my family members still don’t believe I’m sick.

I apologize for whining. You pressed my hot button today. May you have an understanding family who loves you and wish you well. You will need their support.

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3^rd Fibromyalgia Warrior

I think that the most misunderstood thing about fibromyalgia is that there is no cure. There will be times that we feel better due to various meds or treatments, but there is no cure. For those of us with true Fibromyalgia, we will never be totally well.

Another misconception about fibromyalgia is that our days do not redundantly flow one into another. Each day is different. Some days, my hands are completely immobilized. Other days, I can’t put any weight on my right hip.

Still another day, maybe one of my knees won’t hold my weight (and I am not considered overweight). The pain is always there it is just that some days it might be worse in one part of the body than it is in the other.

When I am in a flare, all bets are off. All of me is in complete agony. You won’t hear from me. You won’t see me. I will be hiding under the covers in bed, in the fetal position, whimpering at best. Unfortunately, flares can last for days, weeks, months – I have even heard of people being in a flare for years. For me, once I adjust to my new reality of a flare (which usually takes a couple of days at the minimum), I force myself to move.

I hate it, but I know that if I stay completely immobilized that I won’t be able to get through it. My best way of dealing with extreme pain is to distract myself. This can include watching TV, reading, writing (not longhand – on the iPad as longhand is impossible when I’m in a flare), cooking, and spending time with my significant other.

Sometimes this is easier said than done, but unless something else is wrong – like when I was immobilized by the shingles for 5 weeks earlier this year – but for me, forcing the issue is key to getting through a flare with any sense of sanity.

Last but not least is the simple fact that no matter what we do, it does actually get worse over time no matter how hard we try not to let it happen. These things are more for those of us who have experienced our trigger event which sends our fibromyalgia from manageable to having to learn to live a completely different life because there is no real relief ever again. My trigger event was a fall down half a flight of stairs in 2009. I have been in constant pain ever since and was diagnosed shortly thereafter.

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References:

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01/15/2022
Do you know back in the 1800s fibromyalgia is a psychiatric ailment condition?

Fibromyalgia was first described in the early 1800s. It was considered a psychiatric ailment for decades. It wasn’t until a study done in 1980 that doctors were able to identify it scientifically. I got sick with it in 1989, a very stressful time in my life.

The problem was that even though the year 2000 many, if not most, doctors continued to refer their patients to a mental health professional. Doctors refused to believe it was real. In the 1990s internationally known and respected rheumatologists (thankfully I have forgotten his name) continued to claim that FM did not exist.

He wrote about his opinion and addressed numerous medical conferences to tell the doctors attending to not let what their patients were saying sway their understanding that this “condition” was basically all in their mind, and to continue to refer them to mental health facilities.

Could this (especially in the 19th century and early 20th century) be because 98% of those patients were women? Who knows.

The idea that fibromyalgia may be the symptom of inactivity deserves an answer. If you do not have FM or live with someone who does, it is virtually impossible for someone with FM to explain. My way of explaining it is that it is a circle or cycle of pain.

So, I wake up in the morning in pain. It doesn’t matter how well I did, or did not, sleep. The pain comes from all over my body. Some of it is a dull ache but for me, most of my pain feels like a bruise. It is very easy to elicit pain in a specific area simply by pressing on it. I feel like someone with a ball-peen hammer (the hammer with a round ball on one end) spent the night hitting me with it all over my arms, neck, back, and legs.

When I get out of bed, I’m dizzy and the pain is bad. But as I go through my day, and my muscles loosen up the pain level drops. I have a few good hours on most days from 10 am to about 2 pm. By the time it gets to 3 pm, the fibro fog has descended and I can’t think clearly.

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Trying to have a conversation with fibro fog is impossible. I can see somebody’s lips move but what they are saying doesn’t make sense. I can start to answer them but somewhere along the way I forget what I was saying and fall silent. I often say something but the words don’t go together. I am aware of this difficulty, but I am powerless to fix it.

During this time I am overwhelmed by fatigue. Often I can actually feel my energy drain out of my body. The need to sleep is strong.

I remember one time when my husband and I were going to go to a nice hotel for the night while my parents watched our two teenagers. We spent the morning packing and taking care of things. We finally got in the car about 1:30. We hadn’t eaten, so we stopped at a restaurant we liked about four miles from our house.

As we were finishing our meal, I could feel my energy drain away. I decided to ignore it. I wouldn’t tell my husband. We had a three-hour drive ahead of us and I thought I could just nap in the car.

When we walked back to the car I started crying and told my husband what had happened. He was very used to this. He asked if I wanted to go on or return home. I told him how sorry I was but I needed to go back home. When we got there I went straight upstairs and went to bed, still crying. Eventually, the tears stopped and I fell asleep.

Now that I’m older, that need to sleep in the afternoon is even worse. I plan my day around it. Doctor appointments have to be finished by 1:00 or my husband has to take me.

As the afternoon and evening progress, the pain begins to ramp up. I am powerless to get on top of it. By the time I go up to the bed, I am drained. My pain is bad, but my fatigue barely lets me brush my teeth. I fall into bed and as my body relaxes, my mind, which has been sleeping most of the day, wakes up.

I know I desperately need sleep but my mind is wide awake. Thoughts run through it for hours keeping me awake. I think about my day, about where we should go for our anniversary, I sing songs. Often a bit of a song runs through my thoughts in a continuous loop.

Three hours later, about 1:30 am, I get up and go to the bathroom. Then I take two Tylenol and go back to bed. I am finally able to sleep until about 8 am.

And the cycle continues.

Here’s the thing about exercise. Some days are a little better than others. On those days I may run an errand and come back completely worn out. On those days, if the weather is nice, I may decide to walk half a block. I return worn out.

On the days when I’m feeling especially good, I might take my three-year-old grandson to the park. It is a significant walk but I love walking with him. By the time we get back home, I can’t move. I go to bed and can’t get out of it in the morning.

If I really have an active day, sometimes I have to spend the next day in bed. I’ve had severe FM for 30 years and I still can’t figure out how much activity is right for that particular day. It’s constantly changing.

Doctors who don’t fully understand FM advise their patients to get outside and work up to walking a mile, go swimming, take up a sport. They simply do not understand the pain and fatigue cycle of FM. I have a primary care doctor and a pain specialist.

Too much exercise causes great setbacks in FM. We have a good exercise bike and I decided to get on it and build up my endurance. The first day I pushed myself and felt horrible that afternoon. I haven’t ridden it since. The amount of time I rode the bike? Two minutes. I think that says it all.

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01/10/2022
My Wrist has Stuck due to Fibromyalgia Pain
Wrist Stuck is a condition that typically involves fibromyalgia pain. This fibro wrist stuck diagnosis can have many different manifestations. The fibromyalgia wrist stuck is generally considered to be centered around a heightened sensitivity of the veins system stuck, especially in the arm pain. Many people with fibromyalgia experience multiple wrist symptoms including:
- Wrist tiredness
- Trouble lifting
- Trouble in movement
- Pressing Problem
- Fibro pain conditions
The wrist symptom that most people have in common is stuck pain. This wrist pain can affect many parts of the body, including any part of the arm.

Fibromyalgia Wrist Stuck symptoms causes

While the cause of wrist stuck in fibromyalgia is not yet fully understood, many theories about the condition include its onset being triggered by different stressors. These triggers may include mental stress, having weight lifting causes, and other general medical health problems.

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Fibromyalgia wrist stuck signs and symptoms

The main symptom leading to a diagnosis of fibromyalgia wrist stuck is damaged veins pain. While all-over pain is common, the pain can also be more localized. It can be located exactly in the wrist joint of occasional or constant.

Other symptoms, such as numbness and tingling with fibromyalgia are also caused by wrist stuck, may be confused with veins damage conditions that affect the arms and hands. Often, the numbness and tingling of fibromyalgia are not to the same degree as we see with other veins damage conditions in the arm. It also does not always follow the typical patterns of veins and nerves in the limb.

Therefore, a careful sensory exam is needed to help find the actual cause of hand numbness or tingling. Special nerve testing (EMG/NCV) can help to clarify the causes of the wrist stuck symptoms in the elbow, forearm, or hand and can help determine whether the symptoms are coming from veins and nerve problems.

There are no common tests, such as x-rays or blood studies, to diagnose fibromyalgia wrist stuck pain, or the disease in general. The diagnosis is made primarily by physical examination and a review of all fibromyalgia arm symptoms (movement pain, weight lifting, veins damage, mental stress, sleepy hand problems, mental fogginess, arthritis problems, etc.).

The diagnosis can be confusing because people with stuck wrist fibromyalgia can also have other conditions in the arm which are unrelated to the fibromyalgia diagnosis, such as carpal tunnel syndrome.

Fibromyalgia wrist stuck treatments

There are no surgical treatments for wrist stuck in fibromyalgia hand pain or arm pain, but other conditions present at the same time may benefit from surgical treatment.

Arthritis specialists (rheumatologists) may assist with the diagnosis and management of wrist stuck in fibromyalgia. They may recommend medications, activity/exercises changes, and other treatments to help with the symptoms of wrist stuck in fibromyalgia.

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01/03/2022
Is there a potential cure for fibromyalgia or a way to protect against fibromyalgia?

Fibromyalgia is primarily a neurological brain disorder. It is seven times more likely to strike women than men, and it doesn’t matter what nationality you are. The hypothalamus part of the brain acts as a circuit breaker/fuse box for the rest of the brain and body. It’s like the battery for the entire body.

There are several things that typically cause Fibromyalgia and Chronic Fatigue Syndrome to manifest, but basically high amounts of stress are what cause the hypothalamus to blow its fuse, creating a host of neurological problems, like hormone imbalances, increased pain sensitivity, fatigue, and “brain fog“. Essentially, you’ve got a dead battery that won’t hold a charge, which is why so many people experience debilitating fatigue. The blown fuse can happen in an instant, and you get no say in if or when it happens.

The hypothalamus has done a system-wide “shutting down” and tried to reboot, in an effort to protect your body and brain from further stress and damage. Like when you turn off your computer and restart it because using Ctrl +Alt +Delete hasn’t worked. Only, by doing this, the brain is permanently altered, like a computer virus that can’t be repaired.

A person can quite literally be fine one day and wake up the next morning feeling so completely different, and your entire life has changed because your brain no longer functions the way it used to. Many Fibro/CFS patients can pinpoint the exact day/week/month everything changed for them. The most common “triggers” fibromyalgia patients report are:

A virus/illness or a prolonged decrease in the immune system
Lime’s Disease, Epstein Bar Virus, Mono are often associated with the development of Fibromyalgia and CFS symptoms. etc.

A sudden traumatic event
A house fire, abusive situations, physical attacks, etc. Similar to PTSD, or Dissociation disorders, the brain is trying to cope and process the additional shock and stress, triggering the hypothalamus to “protect” the rest of the brain by flipping a switch.

An accident
Car accidents, drowning, severe falling, etc. can cause the hypothalamus to be trying to “protect” by flipping the switch.

Medical or dental surgery
Any time you have surgery, it puts the body under huge increases in stress, because cutting into your body sends the brain “we are under attack!” signals.

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Pregnancy
Because of the drastic hormonal shifts, joint stress, depleted vitamins and minerals, and the physical trauma of the birth process, pregnancy creates so much stress that for whatever reason the mother’s body just can’t handle it. Fibromyalgia develops during pregnancy or soon after birth. For many women, their Fibromyalgia symptoms and Chronic Fatigue are ignored as simple “hormone shifts” or ” new mommy fatigue”, when in fact her body will never really readjust back to normal.

High-pressure lifestyles/stressful jobs/major anxiety
Workaholics, or people who don’t take enough time off, or just can’t relax and rest. In school-age students, the stress of studies, trying to get good grades, fears of the future, or even too many activities can cause an abundance of stress the body can’t handle.

For some adults, this means they get sick in the form of common things like high blood pressure, heart attacks, or stroke. Others can develop Fibromyalgia and Chronic Fatigue Syndrome, or other random “stress-related” illnesses.

Many people are able to live completely normal, energetic, and happy lives BEFORE these stressful, triggering events. Any of these things can cause the hypothalamus fuse to blow like a light bulb that goes out. Once that fuse blows, basically your “brain is broken“. It doesn’t matter how old you are, or what gender. Even children and teenagers can (and do) develop Fibro and CFS, especially if they have had an accident, undergone serious trauma, or had to have surgery. Being young doesn’t automatically mean someone is healthy, even if they “look healthy”.

This can happen to anyone, at any time, and once it does, there is no way to change that. You can’t just flip the switch back to fix it. The hypothalamus begins sending the wrong signals to the rest of the brain and to the nerves, causing the super sensitive fascia, painful joints and muscles, sensitivity to touch, and intolerance to certain foods and weather changes, causing thyroid and metabolic changes, and cognitive disruptions.

Ironically, the brain’s fuse box blows in an effort to protect your brain and body from further damage because of the prolonged stress you have already been under. This is the chief reason why so many Fibromyalgia patients experience a “Flair Up” of pain and other symptoms when they are under high amounts of additional life stress, like family conflict or having to pack and move. Things like exercise and many mundane physical activities are just too stressful for an already constantly stressed out body, so these things cause a flair-up of symptoms.

The body is already so stressed out from whatever life has thrown at you and being in pain 24/7 that you just can’t handle it anymore. The “Flare Up” will force you to slow down and rest, even when you have things you need to do. This is why a Fibro/CFS patient can feel okay enough to go out and do things one day (feeling “normal“) and be utterly exhausted for the days or weeks after, in a “Flair up”.

Because Fibromyalgia is so physically debilitating, in this way your body is forcing you to rest and slow down, so it can make an effort to heal itself and relax. This is why people with Fibro need to take steps to simplify their life and be as stress-free as possible. Medicine and Science is just now figuring this out, and it might take another couple of decades for them to agree on a treatment plan that will actually cure the hypothalamus and flip the switch back on.

Please note that this is an extremely simplified explanation of brain functions and responses. There has been tons of research by the medical community that can go into even greater details. I simply tried to put my understanding of their complex (and complicated) research discoveries into common terms and phrases people can easily relate to. I am not a doctor, but I have spent the last decade researching and learning about my diagnosis.

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12/31/2021
What is FibroCovid? Almost one-third of Patients in the Italian Study had Musculoskeletal Sequelae

Among patients who developed post-acute COVID-19 — so-called “long COVID” — almost one-third reported clinical features of fibromyalgia, Italian researchers reported.

In a web-based survey that included more than 600 patients, 30.7% met the American College of Rheumatology criteria for a fibromyalgia diagnosis at a mean of 6 months after having had COVID-19, said Francesco Ursini, MD, Ph.D., of the University of Bologna, and colleagues.

“In light of the overwhelming numbers of the SARS-CoV-2 pandemic, it is reasonable to forecast that rheumatologists will face a sharp rise in cases of a new entity that we defined as ‘FibroCOVID,’”

Aside from the potentially lethal acute viral infection of SARS-CoV-2, a post-acute syndrome with myriad symptoms including not only pulmonary sequelae but also endocrine, cardiovascular, neuropsychiatric, and musculoskeletal manifestations is now widely recognized.

The current definition of fibromyalgia requires a score of 13 or higher on the Fibromyalgia Symptom Scale, which combines scores on the Widespread Pain Index and Symptom Severity Scale.

The pathogenesis of fibromyalgia is not completely understood. “Pain augmentation/dysperception seems associated with exquisite neuron morphological modifications and imbalance between pronociceptive and antinociceptive pathways arising from an intricate interplay between genetic predisposition, stressful life events, psychological characteristics, and emerging peripheral mechanisms, such as small fiber neuropathy or neuroinflammation,” Ursini and colleagues explained.

In addition, viral triggers have been linked with the development of fibromyalgia. Therefore, to investigate the prevalence of fibromyalgia following acute COVID-19, the researchers conducted a cross-sectional survey during April 2021, in which participants completed a survey that included information on demographics, symptoms, and duration of COVID-19, and comorbidities.

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A total of 616 patients were included, with 189 diagnosed with fibromyalgia. More than three-quarters were women whose mean age was 45. The median duration of acute COVID-19 was 13 days, and 10.7% were hospitalized. Among the symptoms reported during the acute viral illness were anosmia/ageusia in 70.9%, myalgia in 70.4%, fever in 67.7%, and arthralgia in 64.6%.

Comorbidities included anxiety and chronic pulmonary disease in patients both with and without fibromyalgia. In contrast, hypertension was significantly higher among fibromyalgia patients (27% vs 10.8%, P<0.0001), as was the mean body mass index (30.4 vs 23, P<0.0001) and the prevalence of obesity (49.2% vs 2.1%, P<0.0001).

Among the survey respondents who had fibromyalgia, 57% were women, a percentage that was lower than the 77.4% of women in the cohort overall, suggesting that men more often developed the musculoskeletal sequelae, the researchers explained.

Those with fibromyalgia also were significantly more likely to be hospitalized (19% vs 7%, P<0.0001). During the acute phase of the disease, patients who subsequently developed fibromyalgia more often reported cough (52.9% vs 45%, P=0.046) and dyspnea (45.5% vs 35.4%, P=0.017), and also more often required supplemental oxygen (18% vs 7.5%, P<0.0001).

On univariate analysis, factors associated with fibromyalgia included age, male sex, cough, dyspnea, hypertension, obesity, and treatment with antibiotics, low molecular weight heparin, or oxygen.

On multivariate analysis, the only independent predictors were male sex, with an odds ratio of 9.951 (95% CI 6.025-16.435, P<0.0001) and obesity, with an odds ratio of 82.823 (95% CI 32.192-213.084, P<0.0001).

Overall, patients who developed fibromyalgia appeared to have a more serious phenotype of COVID-19, more often requiring hospitalization and supplemental oxygen, the researchers reported. “Notably, both male gender and obesity have been consistently associated with a more severe clinical course in patients with COVID-19, including a significantly increased mortality rate.”

Potential mechanisms by which the coronavirus could trigger fibromyalgia, the team speculated, are epithelial injury or damage to the neuromuscular, immune dysfunction, and upregulation of inflammatory cytokines such as interleukins 1 and 6.

Prospective studies will be needed to further elucidate the clinical course and outcomes of the post-acute COVID-19 musculoskeletal disease manifestations, the authors cautioned.

A potential limitation of the study, they said, was the possibility of self-selection bias.

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12/31/2021
Young people report worse fibromyalgia than older patients

It may seem counterintuitive, but young and middle-aged fibromyalgia patients report worse symptoms and poorer quality of life than older patients, a Mayo Clinic study shows. Fibromyalgia most often strikes women. It is characterized by widespread musculoskeletal pain with fatigue, sleep, memory and mood issues. The research, one of several Mayo studies being presented at the American College of Rheumatology annual meeting, suggests the disorder plays out differently among different age groups.

Researchers studied 978 fibromyalgia patients and divided them into three age groups: those 39 or younger, those 50 to 59, and those 60 or older. The younger and middle-aged patients were likelier to be employed, unmarried, smokers and have a higher education level, lower body mass index, more abuse history and a shorter duration of fibromyalgia symptoms than older patients.

“Among the three age groups of young, middle-aged and older, symptom severity and quality of life differs,” says senior author Terry Oh, M.D., a physical medicine and rehabilitation physician at Mayo Clinic in Rochester, Minn. The study’s findings were surprising, because quality of life and physical health are considered to be negatively associated with age, Dr. Oh says.

Dr. Oh notes that women in all three groups with fibromyalgia reported a lower quality of life than average U.S. women, and that the difference between their physical health and that of the average woman was more significant than mental health differences, particularly in young patients.

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In other studies, Mayo researchers found:

*About 7 percent of fibromyalgia patients had inflammatory rheumatic conditions, and that in general, those fibromyalgia patients didn’t do as well with treatment as those without rheumatic diseases.

*Fibromyalgia patients may also have skin-related symptoms such as excessive sweating or burning or other sensations.

*Obese patients with polymyalgia rheumatica have more pain and disability than other polymyalgia rheumatica patients. They also tend to need higher doses of glucocorticoids.

*Rheumatoid arthritis patient experiences and symptoms do not always reflect what medical literature shows when it comes to pain, morning stiffness, the relationship between swelling and damage, and what worsens or improves symptoms.

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*Hospitalization is a significant risk factor for gout flares in people already diagnosed with gout.

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04/06/2021