Been a bad fibro flare week. Yuck! Pretty sure an infection is kicking up into high gear and heading out on its road trip through my body. Wonder which route it will take this time…
So far my eyes are looking like I had a wickedly good party, and my sinuses have started that all too familiar throb. I’m so tired that I can’t keep my eyes open, but once they flutter closed I can’t fall asleep. If I am lucky enough to finally drift off, a sound no matter how gentle startles me awake.
I sit up and try again. Rinse n’ repeat as I like to call it. Try to focus on something in front of me, and slowly the eyes begin to close. Then my chin hits my chest, head lolls to the side and I begin to drift. A bird chirps somewhere and WHAM! I’m startled awake once again.
Thanks for letting me rant. I really do try my best to keep things positive, but sometimes reality just plain and simply sucks! Especially, when you’re living with fibromyalgia. And, some days just letting go and getting it all off my chest is the best medicine. Am I right, or what?
Instead of painting on a smile and picking through a massive pile of negative for one teeny tiny itsy bitsy spark of a silver lining, sometimes it is ok to accept that there just really isn’t anything good about today except that it will inevitably turn into tomorrow.
Moan about it, groan about it and maybe even allow yourself to cry a little.
I mean, I’m not talking about allowing yourself to dive into some downward spiral where there are dangers of drowning in the deep dark depths of negativity. I just mean acknowledging that at a particular moment in time, especially during a fibro flare life is not fair and on this particular day it just plain sucks.
Yesterday was an ok day, and I hope tomorrow will be great but today? Well, today is an awful day and I’m giving myself permission to not fake it.
I hurt everywhere and have sub-zero energy. I’m feeling miserable, and for a little while, I’m going to allow myself to sit here uncomfortably in pain and be miserable.
So for now my fibro warrior friends I leave you with a quote from I Love Lucy “WAHHHHHHHHH”!
Oh wait a minute, I can’t raise my right-hand today because of killer shoulder pain. Hang on while I check to see if the left arm is working. Yeah! I can raise my left hand! Yes, I have been asked what having fibromyalgia feels like, many times.
Who knows what tomorrow or even later today will bring. My shoulders are favorites for my fibro buddy to target. There can be a limited range of motion in one shoulder or both. Sometimes neither, those are the good days. I find out only when the time comes.
Absolutely no way to predict these things, but learning to live with fibromyalgia means respecting physical limitations when they do crop up. I’ve been taken down for months by my fibro shoulders.
I mean pain pops up everywhere, no part of your body is sacred and there’s quite a variety of pain types and levels. There’s the stabbing, knock the wind out of you and take you down “fibro pain”. It moves around targeting different parts of you and the pain level ranges sometimes requiring medical attention.
Then there are the dull throbbing aches throughout your body that never completely subside. Sometimes they flare in spots and the pain can take you down. But, if you learn to respect the aches, and don’t push too far they can remain a dull pulsing ache.
It’s exhausting to never be comfortable, but you have to learn to live with the discomfort in order to survive.
Sleeping? Well, that’s a whole different matter. Tad difficult to get good quality sleep when your body is constantly hurting. Oh, and restless legs? Wow, they work better than any alarm clock. Then there are the times that your skin feels like it is quite literally crawling with tiny stinging insects, just under the surface so you can’t quite get to them.
We each are individual; unique. No two people are exactly alike. In that same sense, how Fibromyalgia affects or feels to someone will differ as much as we do as people.
Plus, fibro symptoms are almost fluid, they transform and move around constantly. It’s this never-ending process and so it’s tough trying to put into words something that never stops evolving.
It sucks to be exhausted, confused, and uncomfortable in addition to suffering from varying degrees of widespread pain every second of every minute of every day.
The thing about Fibro Warriors? We get knocked down, but we get right back up again. Well, maybe not right back up, but we get back up as soon as our bodies say we can.
The moment the words ‘get active’ escape their lips my focus shifts 100% to holding back the incredible urge to roll my eyes. For the most part, unsuccessfully.
It’s like constantly replaying the perfect vine loop of watching Groundhog Day over and over. We keep hearing how we need to get active in order to feel better. But, what people don’t understand is, we need to feel better in order to get active in the first place.
Press play and repeat day after day after day the exhausting loop plays.
For five years I spent a lot of days, months actually, beating myself up for not being active. It’s exhausting silently screaming at yourself constantly to get up and get active.
Then about a year ago I started listening to music again. Not only did the right playlist cheer me up, but often I’d catch myself bee bopping to the music.
Don’t get me wrong, I wasn’t pulling off DWTS or anything. Sometimes I was simply swaying to the music or shuffling around like Tim Conway. But, I was standing and I was moving.
Which when you are battling fibromyalgia’s chronic pain, counts as getting active as far as I’m concerned. Music doesn’t always get me moving. But, it does some days and in my opinion, that’s better than no days at all.
Anyway, I remembered how much I loved going out dancing and how good it made me feel and so for a while now I’ve been working at wiggling my butt daily.
The right playlist lifts my spirits and gets me moving
I created a bunch of personal mood–lifting playlists. Each one is 6 songs and about 20 minutes long. While prepping for my shower, I press play, and more days than not the music gets me swaying. I always try to get boogieing before hopping into the shower, because I’m usually physically zapped after.
Turns out, well for me anyway, that music is good medicine. Hmmm, who knew?
What I had to learn was, to set the bar at a realistic level for me. And, to give me credit for any and all physical activity. To encourage me to get up and just get moving instead of putting myself down because I expected my version of “getting active” to be on par with die-hard gym-goers or the people I see out jogging.
It’s time Fellow Fibro Warriors to pat yourself on the back each and every time you wiggle that butt, even if it’s ever so slightly.
Why my own of course. Rationally I’m aware that there is no magic bar that’s been set for me by others. There is no invisible line of measurement being monitored for results. Nobody is judging my achievements let alone defining what those are.
Well, that’s not entirely true. There is me, and I’m quite adept at setting the bar way too high for my current physical state. I’m living a life with Fibromyalgia and I won’t cut myself any slack, nor give myself proper credit for the incredible effort I put into moving around each and every single day of my life.
Rationally, I know this. But, unfortunately, that doesn’t make it any easier to accept. Nor does it keep me from constantly nagging myself in my head. It’s exhausting, and so…
Not only will I be taking it one task at a time, but I’m also going to pat myself on the back whenever I finish one. I’m switching into positive reinforcement mode, stepping away from negative mode, and becoming a cheerleader in my mind.
Today is a fibromyalgia day. Not a flare, but rather a not-so-subtle WARNING. If I push too hard there will be consequences.
Here goes, I’m giving encouragement a whirl. Congrats self! You made your bed, swept, took a shower, and tidied the kitchen.
Oh, right, and I also cleaned a toilet!
Take care, my chronic friends,BTW — you’re doing a great job today
Fibromyalgia is such an intricate illness. Currently, there is no cure, however many patients find a mixed approach to soothe flare-ups and live a normal life. Fibromyalgia manifests differently in individuals; for example, some people with fibromyalgia are sensitive to heat and others to cold, while some sufferers also face multiple chemical sensitivity (MCS) or other co-existing conditions. Patients are often forced to take a trial-and-error approach in order to discover what works best for them, which can be costly. This is why therapeutic gifts can be well received by sufferers.
Below is a complete list of gift ideas to suit all types of fibromyalgia patients and cater to all budgets. These gifts can be used to warm up their spirit during the winter holidays, reward a friend or family member for achievement, show appreciation to a parent or grandparent, or make a friend feel special on their birthday. Whatever the occasion is, each gesture is sure to leave an impression and reveal how much you care about their wellbeing.
If you’ve noticed your loved one is struggling with an everyday task, like turning their neck, while driving, checking their blind spots, or moving hot pots or skillets while cooking, there may be tools, tricks, and gadgets that you can pick up to ease these daily burdens.
The animal championship has been proven to aid fibromyalgia patients, both physically and mentally, from simply lifting fibro sufferers’ moods to providing a means of escaping the agony of their symptoms. If you and/ or your loved one aren’t in the position to take in a furry friend or aren’t particularly drawn to them, there are community resources available to visit pets for a shorter period of time. Why not plan a day trip? You may be pleasantly surprised with the outcome of spending time with an animal.
Massage therapy is highly recommended for fibromyalgia patients, to reduce general stiffness and promote flexibility. Many fibromyalgia sufferers receive massages on a regular basis to replace more conventional medical treatments that have negative side effects, such as painkillers. A gift card for a massage at a spa, or an appointment for a therapist to make a home visit, make great gifts for people with chronic pain.
If your loved one is up for trying something new and maybe even pushing their boundaries, there are several groundbreaking remedies, involving modern medicines and traditional healing, that they can try. Being exposed to something they usually wouldn’t be, may even result in them finding an alternative remedy that aids their fibromyalgia symptoms. Here are some suggestions:
Hyperbaric Oxygen Treatment is the process of heightening a patient’s oxygen levels, by delivering pure oxygen at higher than atmospheric pressures in an enclosed chamber.
Floatation R.E.S.T. (Restricted Environmental Stimulation Therapy/Technique) is floating on top of a 25cm deep pool of salt water in a specially designed tank.
Acupuncture treatmentinvolves the use of “very fine single-use pre-sterilized needles to stimulate specific acupuncture points on your body” and can be combined with other Chinese medicine techniques.
Continuing on the health trend, yoga and low-impact exercises are known to naturally ease fibromyalgia pain. A package for beginner lessons at a studio may make a great present for your loved one with fibromyalgia. This could also be something you try together, and it could even become a regular bonding activity, or simply an opportunity for them to blow off steam and refuel.
If your loved one is already into fitness, there are plenty of complimentary gifts to support their efforts. Infrared workout clothes are designed to enhance the benefits of exercise with a heat-promoting feature, which works twofold to reduce the severity of pain. Wearable technology for fitness is trending right now, especially in the fibromyalgia community.
If your loved one with fibromyalgia loves music, a new set of headphones will make a great therapeutic gift, considering listening and interacting with music has shown to deliver positive results for chronic conditions.
A musical playlist is both a thoughtful and inexpensive gift. Include some of their favorite songs to peak positive memories or introduce them to a new mix of relaxing music to calm their mind and ease their pain. If you’re unsure of their taste in music or prefer they choose their own albums, you can always give a voucher from iTunes, Amazon, or an alike site, to purchase digital music. Alternatively, you can subscribe yourselves to a program like Spotify or Apple Music to discover new music on-demand and collaborate to make ongoing playlists.
Bath-time treats make great gifts for just about everyone, especially people with fibromyalgia. There’s nothing more soothing than sinking into a warm bath, so why not maximize that experience with some candles or an aromatherapy oil burner? Essential body or bath oils will add an element of luxury to this experience. And, it’s worth noting that lavender is a particularly soothing scent that can aid a good night’s sleep.
Preparing someone’s favorite home-cooked meal will brighten their day and give them something to look forward to. And while you’re at it, why not go the extra mile and stock their fridge with healthy ingredients and their cupboards with mineral supplements, like Vitamin D, that are proven to be beneficial for fibromyalgia?
Looking back to the beginning of my fibro tale. I don’t believe pharmacy was necessarily the wrong choice for me at the time.
If there’s one thing I’ve learned in the last two years it’s that no two single Fibro–tales are exactly the same. No two sets of triggers are exactly the same.
I had tumbled a little too far into the abyss and was dangling by a thread above the danger zone. So, I decided on the shortcut, quicker results to bring me back from the brink, both physically and mentally.
For this reason, I filled the first prescription. Which turned out to be the first of many more to come. As one might expect given the circumstances, I needed to get “a little bit well” to tackle life head-on again. So, I decided I would deal with the consequences later.
I don’t regret my choice otherwise, I believe without medicine and the support of my amazing Doctor I might not be here today sharing my Fibro–Tale with you.
After overcoming some uhhhhh shall we call them setbacks? A few months ago I finally decided it was time to start putting some of what I’ve learned about the many faces of my fibromyalgia to use. Now that the urgent stuff had been taken care of, time to try some new things.
I have decided to test the waters at decreasing the number of medications I am taking and to introduce some non-pharmaceutical healing “practices” into my life.
Why? I have finally reached acceptance. Two years into the fibro tale that is now my life, I am at last ready to meet the new me.
After slipping on a wet floor and injuring herself, a nurse developed severe ComplexRegional Pain Syndrome (CRPS), a condition that is known for causing a plethora of extremely painful symptoms. Due to the condition having such a negative impact on her life in every capacity, Ronty Rhodes Solicitors helped her to secure £50,000 in complex regional pain syndrome compensation.
Kathleen Ann McLeish, a 60-year-old nurse from Edinburgh, slipped on a wet floor, fell, and broke her wrist in 2011 while working as an emergency nurse practitioner. She was working in the Emergency Department of the Edinburgh Royal Infirmary at the time of the accident, and there were no signs to indicate that the floor was wet.
After the initial accident took place, Kathleen momentarily fainted in the resuscitation room and was immediately sent to the A&E department where, after receiving X-rays, a black slab was added to her fractured wrist. She was sent home with painkillers, and two weeks later, she was admitted to the hospital and underwent surgery to have an external fixation placed on her wrist and lower arm. She was expected to make a full recovery, but soon after the surgery, her fingers became swollen and extremely painful. Although no infection was discovered by professionals, Kathleen was prescribed antibiotics.
Six weeks later, the fixation was removed from Kathleen’s wrist and lower arm, and she began to attend physiotherapy on a weekly basis. Although a reasonable degree of movement returned to her wrist and fingers, she still felt stiffness, restricted movement, and swelling in her hand and wrist. By September the same year, three months after the initial fall took place, Kathleen was continuing to experience a feeling of tightness around her wrist, as well as considerable swelling in the fingers on her left hand, intermittent color changes, and occasional shooting pains.
Due to her persistent symptoms, she consulted her doctor who then diagnosed her with complex regional pain syndrome in her left hand, which was directly caused by the fracture she obtained from the initial fall. CRPS is a poorly understood condition that affects approximately 1 in 3,800 UK people each year and is usually caused by an accident or trauma. It typically affects the limbs and is known as one of the most painful of all medical problems, often causing extreme sensitivity, prolonged pain, stiffness, and cognitive impairment.
As a sufferer, Kathleen’s life has changed in a negative way. The symptoms she experiences prevent her from completing many day-to-day tasks, often leaving her reliant on assistance from others.
She has had to make many lifestyle changes in order to maintain her independence. She has had to adjust the clothes she wears, and only wears clothing with zips as opposed to buttons as she struggles to dress independently. In addition to this, Kathleen has had to employ a gardener due to the severe pain she experiences. She has also had to give up swimming and playing the piano, both of which are hobbies she enjoyed taking part in.
Her confidence at work has been affected and, due to the fact she feels socially isolated from her friends and family, she has become depressed, has put on weight, and has had to be signed off work in order to recover.
Due to the way Kathleen’s life has been affected, and the fact that no verbal, signed, or visible warning was given to her to confirm that the floor was wet, the Court ruled the NHS responsible. Kathleen was issued a sum of £50,000 in complex regional pain syndrome compensation – a sum which should help to improve her quality of life and ease some of the burdens she feels as someone who suffers from CRPS.
If you suffer from CRPS as a result of an accident or injury that wasn’t your fault, you could be entitled to compensation, just like Kathleen. If you suspect this may be the case, read up on how the CRPS law process works, get in touch with our expert team of lawyers by calling 0808 123 0003 or filling in our online contact form, and discuss your case in more detail.
Fibromyalgia and Chronic Fatigue are often associated with toxic overload and therefore, finding ways to reduce the toxins in our bodies are crucial to good health. Dry Body Brushing is a great addition to your daily routine.
Many of us opt for a massage as this helps with our aches and pains. However, what the massage is actually doing is moving and draining lymphatic fluid, getting it to freely circulate around the body. Exercise also has the same effect. However, unless we are very lucky, daily massages are just not an option for most people and we may not be up for exercise every day. Dry Body Brushing is free, quick, and easy, taking just a few minutes every day.
Not only is the skin the largest organ of the body but it is really important for elimination and detoxification. The lymph is responsible for helping to remove toxins from the body and the skin accounts for the removal of about one-third of your body’s toxins.
Often when our body is toxic, this in most cases is reflected on our skin in varying degrees ranging from dry and lackluster to oily and acne. Whilst nutrients are delivered to other areas of the body first before the skin, it is the skin that is the first organ to show signs of dis-ease. Toxic overload can also leave us lacking in energy and suffering from digestive issues.
• Increasing circulation which in some cases has improved cellulite. • Sheds dry skin cells which encourage new cell renewal which ultimately results in brighter skin. • Releases toxins through the improvement of lymphatic drainage. • Stimulates the nerve endings which just feels great. • Helps to eliminate clogged pores and therefore assists absorption of nutrients. • Helps digestion. • Tone the muscles.
• For best results, use a natural bristle brush. • Always brush on dry skin before a shower. • Work in circular, brisk, upward motions always towards the heart and in the direction of the lymphatic flow. • Start at the ankles and work up. • On the back work from the neck, down towards the lower back. • Use circular counter clock-wise strokes on the stomach • Lightly brush over the breasts • Ensure that you never brush over inflamed, sunburnt skin or skin cancer. • Always shower after body brushing to wash away the sloughed-off skin cells. Follow up with a moisturizer.
Annet King, Director of Global Education for The International Dermal Institute says that “body brushing helps to remove stagnant toxins that break down connective tissue leading to the cellulite, however, ultimately there is no conclusive evidence but as a quick fix to plumping the skin, this may be one of the short-lived results of body brushing”.
As with adopting any new regime, it will take time to see results and it is recommended daily brushing for a minimum of 30 days to experience some changes. For a more thorough lymphatic cleansing, you should brush daily for 3 months to see the benefits.
Cases involving CRPS can be tricky, however, as experts, we can help you overcome difficulties you may face when claiming. Find out more here.
Complex regional pain syndrome (CRPS) is an extremely painful condition that’s poorly understood by many. There are two types of CRPS, known as CRPS Type 1 and CRPS Type 2, both of which are notoriously difficult to diagnose due to the similarity in symptoms, which include sweating, discoloration to the skin, burning pain, and sensitivity to touch, pressure, and movement. If you are a CRPS sufferer who has developed the condition as a result of an accident, injury, or trauma that wasn’t your fault, you may be able to claim damages. When making a claim, however, you may face a number of difficulties; CRPS is extremely debilitating and can cause mobility and concentration difficulties, fatigue, and pain, which may make it arduous for sufferers to engage in the litigation process and partake in appointments they may need to attend. To find out more about the problems you could face and how we could help, continue reading.
Every complex regional pain syndrome sufferer knows all too well how poorly understood the condition is, which is why it’s so important to ensure your solicitor has a good understanding of CRPS and knows the ins and outs of the symptoms and consequences associated. Having a good knowledge of the condition won’t only enable your solicitor to produce a detailed and accurate report, but it will also allow them to understand when you’re having a bad day, whether it be due to pain, fatigue, or something else associated with the illness.
At Ronty Rhodes Solicitors, we specialize in CRPS compensation claims and have worked alongside many sufferers in the past, which has provided us with the knowledge we need to understand what our patients experience on a daily basis. With this knowledge and expertise combined, we are able to provide flexibility for our clients and can accommodate their individual needs to make them feel as comfortable as possible; for example, if a client feels more comfortable speaking over the phone, our specialist lawyers are always happy to pick up the phone. In addition to this, our clients can always feel safe in the knowledge that we have the ability to report accurately and correctly, which in turn will have a significant impact on the overall value of the claim.
Cases that involve CRPS are notoriously complex; the condition is extremely difficult to diagnose as there is no single test that can be carried out to give you a definitive yes or no answer. In order to receive a diagnosis and determine what has actually caused the CRPS, a variety of tests can be carried out, which can take some time. Before bringing a compensation claim for CRPS, a full diagnosis must be obtained. There must also be a causal link between the trauma you have sustained which was not your fault and the CRPS. At Brian Barr, we work on a day-to-day basis with a number of expert medical consultants, who not only prepare medical reports but treat patients with CRPS.
Although work has been carried out to improve the stigma attached to CRPS, a degree of stigma still remains. Unfortunately, this stigma often influences experts to suggest that sufferers are lying about their symptoms or observe a sufferer’s medical history to look at past psychological difficulties which may have made them vulnerable to the condition. At Chronicillness, we understand how frustrating this can be for patients and will act on a sufferer’s behalf to earn as much compensation as possible to improve the quality of life for those who have suffered the consequences of CRPS. When using our services, no patient will be dismissed, ignored, or doubted; our expertise lies in offering the very best support to every sufferer.
In order to give any CRPS sufferer the best chance of succeeding when making a CRPS insurance claim, it’s imperative that evidence is gathered right from the start. In order to gather as much evidence as possible, the following must take place:
All medical records must be reviewed in detail, so all aspects of the case are fully understood; The injured party must visit experts as soon as possible and they must also receive the right treatment/ rehabilitation to give them a good chance of managing their condition moving forwards; Any witness evidence should be prepared and detailed to allow others to fully understand the impact the condition has had on the sufferer in terms of day-to-day activities.
All in all, it’s important to remember that you employ a specialist to handle your personal injury claim; experts will have a clear understanding of your condition and, as a result, will have immediate access to suitable individuals who can offer expertise and assistance to you during your claim. These individuals can range from treatment providers, medical experts, and knowledgeable legal advisors who will make a positive impact on the result of your claim. With a team of law experts and a breadth of experience under our belts, we know which questions need to be asked and which investigations must be carried out in order to obtain the evidence you need to succeed in your claim.
It may be the case that you have a critical illness insurance policy that does not list CRPS as a particular illness under which the policy will pay out. However, due to the debilitating nature of the condition, it is sometimes possible to claim under the ‘Total and Permanent Disability’ criteria contained within a critical illness policy. Ronty Rhodes Solicitors can assist with this. If you have such a policy and suffer from CRPS and do believe that you satisfy the criteria under this policy, get in touch with us to discuss the details of your case by calling us for free on 0808 123 0003 or by filling in our online contact form.
I have never been a huge visitor to Fibromyalgia support forums. However, it has been “eye-opening to say the least to see how opinions have been divided.
In one camp you have those, like me who think that this is great for raising awareness.
People are finally starting to ask questions about this relatively unknown and misunderstood condition. Facebook went into overdrive. Instagram was buzzing and Twitter, well just tweeted. Daytime TV interviewed doctors who gave the low down on Fibromyalgia. One of our regular presenters got a crash course in pronouncing the word as well as learning what the symptoms are. In some respects, it felt better late than never. All of sudden, we are validated. Just sad that it has taken so long and a celebrity suffering to bring Fibromyalgia out in the open. Good on Gaga!!
Sadly, on the other side of the fence, there are those sufferers who are playing the “my Fibromyalgia is worse than yours” game. They have declared open season on Lady Gaga.
They are questioning her motives for going public. Doubting that she could even have the condition given her long and energetic live performances. There have been those that have suggested that she would be better using her wealth by contributing to research. They deem this preferable as opposed to sharing her story. And believe it or not, there are some who are “whining” about her being in hospital. If she can “rest in the hospital, why can’t I?” Really???
I am sure that she can think of better places to rest and recuperate without being admitted to hospital.
The reality of this condition is that nobody is immune, the pain has no regard for celebrity status. Because Fibromyalgia is so different and unique to each individual it is difficult to judge one set of symptoms against another. Fibromyalgia can prove to be more debilitating for some than others. We know that it tends to go hand in hand with so many other conditions such as Chronic Fatigue or Irritable Bowel Syndrome.
For those of us with Fibromyalgia and chronic pain, it is important that we extend compassion not just to fellow sufferers but also towards ourselves.
It is imperative that we don’t turn our pain into some sort of competition by judging one another as to who can do what. We should be celebrating our successes and commiserating when the going gets tough. Not putting each other down because somebody had a good day!
I have, in some small part, been on the receiving of those who have doubted the severity of my condition. I have been slated for holding down a full-time job and for not taking medication. All good reasons apparently to question my diagnosis by other Fibromyalgia sufferers.
Therefore, I have to say that I do feel for Lady Gaga. Although never a fan, I admire her honesty and her admission that shows she isn’t the superhuman everybody thought she was. By coming out and talking of her struggle with pain, she has made herself vulnerable to the doubters and naysayers. I am hoping that she also becomes an ambassador and a voice for those who genuinely suffer in silence.
She has the same frailties and struggles as the rest of us who suffer with this condition.
And, yes truth be told, she has more money than most. Without a doubt, she will have access to some of the best doctors and healthcare. However, at the end of the day, her pain and fatigue will be as soul-destroying and debilitating as it is for the rest of us.
As we all do, she will have good and bad days. Sadly, she will have flares and periods of stability. She is now after all a Fibromyalgia Warrior battling with the rest of us. Therefore, she is as deserving of our support as any other brave soul battling chronic pain.
Whatever your thoughts are on the performer, she has brought the word Fibromyalgia into the public domain and that can only be a good thing. I for one, wish her all the love and luck in the world.
This is a great opportunity now to capitalize on her story and build momentum by telling ourstories. If you are feeling brave, why not get in touch with your local press and tell them about your Fibro journey. Post on your Facebook page, start up your own community or share your Fibro days on Instagram.
It is certainly a topical subject at the moment and ultimately, this can only be a good thing in educating people about our condition. It is up to us to get our message out there and highlight how many people are actually battling this condition day in day out, out of the headlines, and away from the cameras.
Be brave, be bold and tell your story – no meaty outfits required!!