Tag: fibromyalgia pain

A comprehensive look at Fibromyalgia pain, its symptoms, triggers, and effective strategies to manage and alleviate discomfort.

  • Why is it that every sufferer that I’ve met that has fibromyalgia also has a controlling personality or bipolar problem, including me?

    Why is it that every sufferer that I’ve met that has fibromyalgia also has a controlling personality or bipolar problem, including me?

    Multiple doctors have told me I very likely have fibromyalgia (but my mother never took me to a rheumatologist), and I would say that I only am controlling to protect myself from being harmed… 

    So I am not officially diagnosed, but doctors have told me I likely have it, as in a neurologist, psychiatrist, and a family practitioner. A physical therapist named Marcos who is not an MD, but knows my family, also told me he thinks I have it, and he’s worked with a lot of fibromyalgia patients.

    I am highly moody and irritable, though.

    Fibromyalgia is oftentimes caused by Trauma

    Most people who have CPTSD, have some chronic pain disorder… Depression (which almost always occurs with anxiety) and forms of PTSD is the most common psychiatric associations to fibromyalgia… The Link Between Fibromyalgia and PTSD

    Click here to Get this or Visit Fibromyalgia Store

    Those of us abused will be controlling as to protect ourselves from further harm, and when you’re always fatigued and achy, it makes it easy to be controlled, so that you avoid feeling worse and more drained. I 80% of the time always feel lethargic and energy-depleted, and when under stress, I get aches and pains in various places of my body, icepick headaches, and muscles spasms.

    My hands and feet intensely throb the fronts that are not directly my shoulder, but more the muscle in front of the shoulder blades that maybe are like in the center of them ache badly. I get shocks of pain to my head, which are known as icepick/suicide headaches, but I only get those when I am under very, very severe stress.

    I have gotten vertigo when I came out of a psychiatric hospital from attempting suicide, and I don’t know if that’s fibromyalgia-related or not, but I felt nonstop dizzy for two days and a very scary type of dizzy. That makes it pretty hard to always be happy, and atop that, I am dealing with CPTSD, my childhood abuse, borderline PD, and major depressive disorder.

    I have THE WORST periods, and it feels like a knife is being stabbed into my ovaries. Makes it even harder to be nice, and not as controlling. The day child protective services came to investigate my mom and dad is the first day my period cramps have been as horrible as they now are, but I was having issues five years ago, and this only was three years ago.

    My period came a week early and it came that night instead. It’s only the first day they’re unbearably bad to where I am crying and sometimes, screaming, and the second day, they lessen but are somewhat bad. I wonder if it’s post-traumatic-related, and is only bad just like how they were bad the day cps came.

    Depression almost always occurs with fibro, and actually treatment most times involves an antidepressant, so the moodiness can be depression-related, or it can be something to do with our gut, as 90% of neurotransmitters formulate within our gut. It is so, so important to healthful wat when you have fibromyalgia. Study shows how serotonin and a popular anti-depressant affect the gut’s microbiota

    I never once said I was not diagnosed with my psychiatric conditions. I said I was not officially diagnosed with fibromyalgia. I am officially diagnosed with complex post-traumatic stress disorder, borderline personality disorder, major depressive disorder, and as I specified in my bio because my credentials ran out of space, a schizotypal personality disorder is an armchair by my psychiatrist.

    She didn’t want to diagnose me with two personality disorders whilst I was a minor. Aspergers isn’t in my bio or credentials, but I’ve been diagnosed with that, too.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia pain is getting worse why can’t I get pain meds when I go to the ER?

    Fibromyalgia pain is getting worse why can’t I get pain meds when I go to the ER?

    As a Nurse Practitioner, patients presenting with chronic pain problems to the ER are problematic. During this so-called opioid epidemic, guidelines were put in place for patients seeking narcotics. Also urgent care facilities. It is a problem, and I’m not implying patients are not in pain, or simply drug seekers.

    We do use Toradol. Unfortunately, patients with chronic pain problems should be receiving care from their primary care physician or pain clinic. I can’t provide a percentage, but we were inundated! I’m a chronic pain patient myself, and the ER’s were being utilized when patients ran out of opiate meds, the physicians working in them were concerned about their license and DEA #’s being sanctioned.

    Click here to Get this or Visit Fibromyalgia Store

    Some states have placed a limit on the number of days supply that can be provided. Hopefully, the new guidelines will be clarified that was written in June 2021, on how much should be dispensed. Usually, a 2–3 day supply was provided til patients could see their primary or pain, clinic doctor.

    Even with the prescription drug monitoring system in place, doctors were concerned about “Big Brother” looking over their shoulder as they wrote a prescription. This period of time has been hell for chronic pain patients, and I can vouch for it. It’s out of control at this time. My supervising physician has to follow the hospital guidelines.

    TRUST ME I have no problem giving a 3 day supply, back in 2016. I understand your and other patients‘ pain problems, but the ER is for emergencies, life or limb at risk, and CHRONIC problems need to be managed in other ways. I don’t want to be perceived as an uncaring, jerk, or 4 letter word, but our hands are tied. I could keep writing, but it’s a problem that hopefully will be resolved soon.

    If you visit chronicillness.co, Pain, you will read the same information as I’ve written. Yes, patients are committing many unwanted things, buying meds off the internet chancing your life they may contain a fatal dose of Fentanyl. The guidelines should be published soon, to ease restrictions.

    I CAN’T WAIT, as my Morphine was cut from 150mg. to 90 mg. and just because I’m in the medical field, do not receive additional amounts. My life has declined and hard to function. Was working 50 hours a week, but for almost 2 years, zero hours. Take MS Contin 30mg 1 hour before getting out of bed! I’m not alone.

    May God give you strength, as he has to me, making me take my Glock out of my mouth. No joke.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • What are ways to ease discomfort from Fibromyalgia while Pregnant?

    I’ve had two difficult pregnancies. Two boys were born healthy

    This is going to sound awful. It hurts just to say it. It’s the silver bullet, though, against fibromyalgia. Exercise.

    Don’t stop reading yet.

    You have to start very, very slowly. 5 minutes of gentle exercise is perfect for the first week. If you have access to a warm pool, then it’s even better because you have less weight in the pool and the warm water reduces pain.

    Click here to Get this or Visit Fibromyalgia Store

    You might try physical therapy (PT) as many PT facilities have such pools. Make sure the physical therapist has experience with fibromyalgia, though. If experience isn’t available, speak with them about their approach.

    If they start with “we’ll start you easy with 30 minutes and 2-pound weights,” they don’t know enough about the condition. If they say 10 minutes and 1/2 pound weights, you are in a position to explain that they expect too much. You need to start with less time and the weight of your own body.

    Note that your insurance will limit visits. Find out the limit so you can spread visits out to cover the pregnancy and part of recovery.

    You (and possibly your PT provider) can slowly increase your activities. Keep in mind that you don’t want to increase as fast as most people would. I used to add three minutes every three days, and I considered that an aggressive approach. Three minutes a week might be more sensible.

    The mistake I always make is to stop when I’m sick. Short of influenza, I need to keep going and maintain my ability to move. We seem to have less ability to hold on to our gains than most people.

    A motivator that I should point out: if your core and abdominal floor are strong and flexible, you will have an easier delivery (according to my OB all those years ago). If they are weak, you have more chance of injury and you will have a harder time with the “push” part of delivering the baby. I haven’t heard any statistics on this, but logic dictates that if you have difficulty with delivery, it might increase the chance of complications.

    Exercise hurts when you have fibromyalgia. I won’t argue with that. But every incremental increase in fitness will reduce pain. The trick is to keep it slow and gentle.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Regarding a Fibromyalgia Flare, how do we identify the Triggers?

    Regarding a Fibromyalgia Flare, how do we identify the Triggers?

    Keeping a journal is the single best way to identify your triggers. So, what kinds of things should you write down? Here are some of the most common flares:

    • Stress: What’s going on in your life? Is everything going well in your relationship? Any problems with your kids? Is your job hectic or overwhelming? Are you moving, remodeling, or redecorating? Have you lost a loved one recently? Think about anything out of the ordinary that might be causing you stress.
    • Sleep: Try to make your bedroom a place for intimacy and sleep…and nothing else. Make sure you take time to wind down for at least an hour before sleep…no devices. Write down the time when you turn off the light and get ready to sleep, and when you wake up in the morning. If you can’t sleep, write that down. Estimate how much sleep you get every night.
    • Diet: Write down the food you eat. Don’t worry about the amounts or calories, just the types of food so that you can notice if there’s a pattern related to, for example, dairy or caffeine or gluten.
    • Weather: Extreme cold, humidity, and barometric pressure changes can trigger a flare, so jot down the weather. Intellicast offers a graph presentation that includes barometric pressure.
    • Activity: Overdoing it and, strangely, not doing enough can both trigger flares. We fibromites have difficulty properly oxygenating our muscle tissue AND flushing lactic acid from our bodies, making us feel weak and sore. Overdoing it can exacerbate this. However, not moving around enough can cause stiff, tense muscles. It’s best to pace activity with equal rest breaks…15 minutes of chores, 15 minutes of rest, etc.
    • Overwhelm: Fibromyalgia includes both hyperalgesia (pain amplification) and allodynia (ordinary, non-painful things are experienced as pain). Sudden, loud noises and bright lights can be painful, as can any type of sensory overload. (Personally, I can’t walk down the cleaning aisle in the store unless I’m holding my breath; the smell is overwhelming and nauseating.)

    Click here to Get this or Visit Fibromyalgia Store

    Over my 16 years with fibromyalgia, I’ve found a few non-invasive things that have helped me immensely. Some of them are a bit pricy, others are homemade, and still, others are absolutely free.

    • This memory foam mattress topper allows me to remain comfortable during sleep. It eliminates pressure points, yet still provides support.
    • The memory foam bed pillows I made from these zippered pillowcases and this loose memory foam perfectly cradle my head and neck whether I sleep on my back, side, or tummy.
    • This TENS unit helps relieve muscle tension and reduces my pain level. You do have to be careful to not stick the pads on or near tender points!
    • Make a heating pad from uncooked long grain rice. I began with a simple one made by filling, then knotting a tube sock. Then, I sewed a larger one from a pillowcase. Double-stitch stripes the length of the pillowcase about 5″ apart, creating “tunnels.” Fill each “tunnel” with a half-cup of rice, then double-stitch about 5″ up from the short end, enclosing the rice. Repeat until you reach the opening of the pillowcase and double-stitch it closed. When you want heat, toss it into the microwave for a couple minutes, shake it up, and apply. (I use a second pillowcase as a sham to keep it clean.) Be extremely careful not to overheat it, as it will burn your skin.
    • Practice Jacobson’s progressive relaxation technique. I find it helps to play some soft instrumental music in the background.
    • Do gentle stretching exercises daily.
    • Try to avoid processed and fast food as much as possible. (I’ve found it helps to cook larger batches of meals that can then be split into portion sizes, vacuum-sealed, and frozen. Obviously, this doesn’t work for everything, but it’s great for things like beef stew, spaghetti sauce, soups and stews, chili, and lasagna.)
    • Try to avoid chemical cleansers as much as possible. (I clean with either bleach or white vinegar, watered down as necessary. It’s helped me a lot to rid my house of those multi-chemical cleansers. The smells of them alone were overwhelming.)

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • What is the best way to battle daily with Fibromyalgia Nerve and Muscle Pain?

    What is the best way to battle daily with Fibromyalgia Nerve and Muscle Pain?

    The best way is to accept it and moderate it in a moment-by-moment exercise. The stress of the “fight” will only make the pain worse for most with fibro. My new normal is that I am in pain every second of every day. I avoid unnecessary stressors which include movies and tv shows that are too intense.

    If a sporting event causes “tension and release” that is excessive for me, I stop watching. If a food causes symptoms, I stop eating it. Part of fibro is a dysregulation of the peripheral nervous system which means that our bodies may overreact or underreact to strong inputs through our senses and emotions.

    There are lots of normal things that are no longer normal for me. I have stopped fighting my new limits and have learned to accept what I can and cannot do. It is a process of grieving the loss of function and celebrating what remains.

    Click here to Get this or Visit Fibromyalgia Store

    I have learned that I must do moderate movement and small amounts of rest continuously to function. I sleep because we all must even though I know that the lack of activity through the night will increase the cramps that must be worked out in the morning.

    But I slowly work and move through the cramps in order to function. I want to remain in bed because I wake up exhausted, but I know that a lack of moderate movement will mean that my cramping will get worse instead of better.

    I take Lyrica, Wellbutrin, Lexapro, something for sleep, and something for a learning disability. I am consistent with my medications and have tried many to find a good mix for me. I accept that this is all that the doctors can do for me.

    The “battle” is one where people expect that there is an answer to get better, and there is no one right now. We can learn the coping mechanisms that work for us and use them. I have better days now than I had before because I move moderately, stretch mildly, rest often, set boundaries with people, and have lowered my expectations for what I am able to do.

    Fibromyalgia and Chronic Fatigue are survivable, and I can honestly say that I am a very happy man who deals with grieving the life that I lost every day. It is a process. I had a therapist. We saw each other a lot. I have learned how to disconnect a bit from my pain. I have learned how to engage in activities where the pleasure and payoff are more than the pain and costs. Those are different for each person.

    The pain seems unbearable at first, but we can habituate to it as we repeat to our brains over and over that it is not a signal that something is going to harm or kill us. If we can learn that this pain signal does not mean that a tiger is trying to eat us or that cancer is present, then we can help the body relax and attend to it less. It is a process, and it sucks. But it is better than the alternative.

    Please also understand that most doctors do not understand the disease and that opioids like Vicodin and Percocet (hydrocodone) may make fibro pain worse instead of better for many people with fibromyalgia.

    I also use downward social comparison to help my mental state. Can you imagine having this disorder a thousand years ago with no medications, no heating and air, no choice in foods, and no support groups? We are even way better off than the people who had this 30 years ago and who faced humiliation and shame for their lack of activity.

    Acceptance is a key survival strategy. Grieving is the pathway to acceptance. I still grieve every day about the things that I once could do and no longer can. I grieve the things that a “normal” person my age can normally do. But I come back to acceptance and a place of well-being in the midst of my pain.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • What’s one thing that helped your Fibromyalgia Pain?

    What’s one thing that helped your Fibromyalgia Pain?

    For me, it was addressing the root cause of the illness: heavy metal toxicity. I had 8 dental amalgams as well as a couple of root canals. I used to get vaxxed. I ate a lot of fish. I had some imaging with contrast dyes. Nowadays everyone is exposed to multiple heavy metals.

    So once I had the amalgams safely removed that was a huge step forward I have been working on getting my body’s detox pathways to work right (liver, kidneys, and gut, for example, are how we do a lot of our detox) as well as boosting natural detox such as glutathione levels.

    Click here to Get this or Visit Fibromyalgia Store

    This has helped tremendously. It is taking some major time but I’ve been being poisoned for decades so not surprised to get the garbage out and to repair the damage is taking time and effort.

    I am not “cured” but the fibro is nowhere near as bad as it had been. I do think it is part of why I still have major sleep issues. I fatigue way easier than I should. I DO have chronic pain—but it is not at the level it was. I am still never pain-free but I actually have hopes of getting there.

    I saw pain specialists. I had strong pain meds. Only took the edge off. The McKenzie PT has been a real help. I get an “edge off” pain with arnica gel or Penetrex.

    I believe it is crucial for fibro folks to stop eating processed foods, give up fake sugars. reduce real ones, eat fermented foods, and do other things that help the gut to improve. Doing that and much more has made this a presence in my life instead of the dominating force.

    Going to keep getting better; there is a lot of room for improvement but my docs have been astonished I have come this far. My PT has been great. He told me many years ago I was in the sub-sub-(about ten times)-basement and needed to NOT PUSH myself as it kept leading to flares.

    I still drop in on him and he is IMPRESSED. He still offers me tweaks to the routine AND works on me because I still have serious problems but I did not give up; it’s stopped progressing (and contrary to what is claimed, I found it most certainly DID progress and got worse.

    Maybe technically it was the OTHER problems that DO come from it, but it got worse and worse without a doubt.) Infections, Lyme, mold, and more can also be caused or exacerbate the condition so it’s not just heavy metals and I had a lot of those factors so had to address those topics as well.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Is Fibromyalgia just a throw-away Diagnosis when they can’t figure out what’s wrong?

    Is Fibromyalgia just a throw-away Diagnosis when they can’t figure out what’s wrong?

    I don’t know what it takes to make a fibromyalgia diagnosis because I don’t trust science’s model to describe and assess what the phenomenon really is.

    They do more harm when they label human beings with all kinds of “disorders”. Those assumed disorders become something that human beings wrongly identify with, later on in their lives, which render them unable to truly ever transcend their condition. Simply because they have grown to identify with it.

    I also understand, on the other hand, that it is the best we can come up with in terms of organizing humanity efficiently. But in my opinion, it does not serve the individual anymore, really.

    Click here to Get this or Visit Fibromyalgia Store

    And yes, in my view – after observing and experiencing the phenomena quite closely – it is clear to me that fibromyalgia is indeed a throw-away diagnosis. But perhaps, for the medical field – not at all.

    I have come to understand that science and the medical field alike, suffer from a disease called compartmentalization.

    That is, the label and invent names for anything that has the slightest difference in symptomatology and thus create more confusion than not. Rendering them unable to see the forest for the trees anymore.

    Fibromyalgia, Multiple Sclerosis, Rheumatoid Arthritis, Lupus, Lyme Disease, Crohn’s Disease, Huntington Disease, Duchenne muscular dystrophy syndrome, PTSD, Parkinson, Alzheimer, Guillain–Barré syndrome, Autism, ASD, AFM, all other muscle dystrophy diseases and disorders, and I can go on and on filling pages of pages with sophisticated names that describe even the most minute detail indifference, just to justify a new name.

    They have lost their ways of being able to look at the human body as a holistic machine. Rendering them unable to see that all of those “disorders” come from a unified place in the body, but as each human body is unique and therefore different, those imbalances – by the time they come out onto the surface – they take a slightly different form in symptomatology.

    You will notice that the common denominator for all of these “disorders” has to do with electrical( action-potential) imbalances within our nervous system coupled with autoimmune “activity” that arises and takes place within the body.

    In other words, the byproduct of pain, spasms that we feel as a result, (but not only limited to) are a byproduct of locked action-potential electricity within our nervous system: either within the brain, extrapolated within the CNS ( Central Nervous System) – this is where we get the Alzheimer’s and Parkinson’s’ stuff, or within the somatic and peripheral nervous system that is dispersed all around and within the body – where we get the fibromyalgia, multiple sclerosis, etc. All of that ensues as a result of a change deep within the body.

    As a result of that change, other systems such as our immune system, “doesn’t” recognize that said change as a positive change: That is, a change that coming from within the body, and so it thinks that this “change” is a result of an alien attack if I can use that language.

    And so, the immune system rises and attacks this change within the infrastructure. And what we get is the onset of the conditions associated with fibromyalgia and all other conditions stated above.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Do doctors often misdiagnose patients with Fibromyalgia instead of conducting further testing?

    Do doctors often misdiagnose patients with Fibromyalgia instead of conducting further testing?

    Unfortunately not only is Fibromyalgia comorbid with other conditions, but its symptoms can also mask other issues. There’s no definitive test as it doesn’t show up in blood work so it’s diagnosed by clinical evaluation.

    When I was diagnosed with Fibromyalgia, I had been experiencing widespread pain (one of the symptoms/criteria) for years, but due to being a teenager, was told it was “growing pains”. It wasn’t. Other criteria they use are trigger points that, if pressed, cause intense pain.

    I ‘scored’ on 14 out of 16 trigger points. The other common symptom is “fibro fog” where concentration is poor and cognition can be affected (especially during a flareup).

    I was relieved to finally have a diagnosis. I also have hypermobility which also causes pain, but a different kind of pain: fibro is more nerve pain and hypermobility is more joint pain (and frequent dislocations).

    At the end of the day, you can see why people with certain conditions (such as Ehlers Danlos) refer to themselves as Zebras. Doctors are taught “when you hear hoofbeats, think horses, not zebras”. Aka, don’t go diagnosing ‘rare‘ conditions when it could be a simple thing. Except instead we get fobbed off, being told it’s just back pain and everyone gets that. Oh, you’re only young you’re probably still growing.

    Click here to Get this or Visit Fibromyalgia Store

    Yes, some doctors misdiagnose it. And yes that can have a negative effect on people who do have it. But two people with the same condition can have wildly different experiences. I don’t have to use any mobility aids (i.e. walking stick or wheelchair) but many people with fibro do.

    That doesn’t make me not have fibromyalgia anymore or make me better than them. Because I might suffer more with the other fibro symptoms. Plus I have another condition which, when I have flare-ups of both conditions at the same time, can make it impossible to get out of bed.

    I’m 18 years old, I don’t want to have these conditions but I will live with them. I had to fight for 7 years to get a diagnosis. I can’t remember what it’s like to wake up and not be in some sort of pain. That doesn’t mean I’ll sit back complacent. It means I’ll go to physio and look after myself because I’ve got (hopefully) another 70-odd year with these conditions at least.

    Just think, if someone’s been fighting for doctors to recognize something is actually wrong with them for, in most cases, a decade (average time from onset of symptoms to diagnosis) then maybe once they have an answer that fits, they don’t want to fight anymore.

    Besides, it’s not even doctors that diagnose fibro most of the time, it’s rheumatologists (in the UK anyway) who you have to be referred to, which can take up to 6 months in some cases.

    DoctorsIt’s a difficult condition to diagnose but saying doctors misdiagnose it can be harmful to people who genuinely have it and struggle with it every single day. Sure, it could be an indicator of something else but that’s down to the doctor’s not being informed. Or old school doctor’s thinking they know best.

    And lack of knowledge on treatment pathways

    I know people with Fibromyalgia who are on cocktails of painkillers so strong that they are dependent (not necessarily addicted although that happens too) and cannot come off them without massive withdrawal symptoms – because doctors just keep upping the dosage instead of trying something different.

    Misdiagnosis is more often the doctor’s fault than anything else because it can only be diagnosed clinically rather than a definitive blood test.

    That being said, blame culture in medicine is detrimental to all involved and should be avoided where possible.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • If you have Fibromyalgia, do you remember having been ill with some manner of the virus within a few weeks of developing Fibro?

    If you have Fibromyalgia, do you remember having been ill with some manner of the virus within a few weeks of developing Fibro?

    I have Fibromyalgia.

    My father drank heavily in the 1960s and both my parents smoked tobacco when I was conceived. As a child, I frequently had strep throat, bronchitis, and even pneumonia. Even at 2 two years old I remember being inside the incubator seeing the outline of my Mom and my uncle who came in to visit.

    My teeth are stained from taking the antibiotic, Tetracycline as a young child. As I understand it this particular antibiotic is no longer given to young children because of the dental staining.

    Additionally, I am a “DES Baby”. My Mom had 2 miscarriages before I was born. When my mother got pregnant with me, her OB doc prescribed DES in hopes that she might carry me to full term. Well, I’m here, but I only weighed 4lbs at birth. Back in the 1960s, preemie clothes were unheard of, so I wore baby doll clothes. Being small made me vulnerable.

    As a child, I had unexplained aches and pains, migraines, sleep disorders, sensitivity to noise, light, and smells, emotional sensitivity, and restless legs. I thought I was different than other people. I still have these gremlins making life annoying sometimes.

    My point is that I can look back and recognize symptoms I had growing up and into adulthood, middle age, and now at 53.

    My theory is that one or more of those viruses I had, one or more antibiotics or cough/stomach meds or even a vaccine may have all contributed to fibromyalgia and its buddies. I think our food is filled with all kinds of processed ingredients that aren’t really natural, but rather artificial. The air we breathe is polluted and our water is something that has to be “treated” before it comes thru our faucets in our kitchen.

    I believe stress in a developing child can get so extreme that it affects our nerves and the processes of our brains.

    I can’t point to one single thing and know for sure if that particular thing caused my fibromyalgia but medical science still doesn’t know the cause. There are some very fundamental shared commonalities we seem to share.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • What percent of Fibromyalgia patients don’t respond to any of the commonly used Medicines?

    What percent of Fibromyalgia patients don’t respond to any of the commonly used Medicines?

    You know this is the craziest thing I am going to talk about now…

    I’m not sure what the percentage is, but I can tell you that I spent years taking Adderall for ADHD and then had to stop taking it when I got pregnant. During the hiatus from that medication, I was diagnosed with fibromyalgia.

    After unsuccessful attempts at treating it with many of the same methods you mentioned, I decided that I was sick of being a test monkey and asked my doctor to put me back on the Adderall. This time around, not only did it manage my ADHD symptoms, but it also seemingly “cured” my fibro.

    Click here to Get this or Visit Fibromyalgia Store

    Being a stimulant medication, its purpose is to counteract the area of an ADHD patient’s brain that makes them feel restless and unfocused by “tricking” the brain into believing it has produced too much of its own stimulant, therefore making it produce the chemicals that calm.

    While it still does this for me, it also cleared up the brain fog and mental sluggishness that accompanies fibro, but the best thing it’s done is make the pain tolerable so I can normally physically function. As you certainly know, with fibro, some days are worse than others, and it’s not as though this medication blocks the pain as an opiate does, rather, it keeps me so focused on the task at hand that it also distracts me from the pain.

    Upon realizing this, I started doing things to help further lessen the background pain, such as yoga and taking daily vitamin B12 and folic acid supplements, as they support nerve health.

    Adderall is not recognized as a pain management drug, and only a small handful of doctors currently acknowledge it as a treatment for fibromyalgia. It is a controlled substance with a high potential for abuse, so, doctors won’t prescribe it without a perfectly valid reason, and they usually require a clear EKG prior to prescribing because the stimulant property is sometimes hard on the heart muscle.

    BUT, Adderall IS recognized as a treatment for chronic fatigue, so, if you approach your doctor after having utilized so many other medications unsuccessfully and specifically address the concern that the fatigue which accompanies your fibro is debilitating in nature, and you propose the idea of trying a stimulant, he or she may agree to prescribe it at a low dose on a trial run.

    Be prepared, however, as it is a common practice for doctors to perform drug tests before and during treatment with a controlled substance to ensure a patient is not abusing it or any other drugs.

    I’m certain this is a treatment that will not be appropriate for every person with fibro or other chronic pain disorders, but it has worked in this way for me and a decent handful of other people in our shoes. That being said, for how significantly my quality of life has improved, I firmly believe that it is a treatment that deserves consideration by doctors and sufferers alike.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store