Dear Fibromyalgia

Tag: chronic fatigue syndrome

A detailed guide to Chronic Fatigue Syndrome (CFS), including its symptoms, causes, and effective treatment strategies to improve energy and well-being.

  • Big battles because of chronic pain when little things happen

    Big battles because of chronic pain when little things happen

    By: Dr. Alexa James

    We experience hundreds, thousands and hundreds of tiny movements every day in our everyday lives. We probably don’t even think about most of that. We have natural instincts and reflexes. We have tasks and tasks every day. We’re working, we’re playing, we’re training. We are breathing in, we are exhaling. Even before we get out of bed we wake up in the morning and spend another day facing. In the night (or in the middle of the day, because we sleep wonderfully). We’re dreaming, we are rummaging, we are drooling. As a human being we tend to be very self-evident.

    Some people face a much bigger challenge in these small, tiny tasks. People who have chronic pain face daily problems that can be seen as natural and second nature by other people. A simple act like sleeping can be torturous for someone with chronic pain. Sleeplessness, not able to be somewhat comfortable. Furiousness and frustration. The exhaustion of the physics, mind and emotion. It can be life or death for someone suffering from chronic pain the morning that some people find happy and refreshing. Whether it provides temporary relief or throws muscles into a bigger spasm is unknown.

    Simple, necessary tasks are becoming stressful and complicated. For example, you have to shower and wash your hair. This is usually relatively fast and easy. However, due to slow, meticulous movements for other people it can take two or three times as long to try to minimize pain. Slowly shampooing, before taking a break. For women, shaving your legs (or men, this is the year 2019, I don’t judge) can feel like you are an eight-leg shaving pulser instead of 2. Blow drying and hair styling is another daunting job after showering. Sometimes (all right, most of the time) you sit in a towel for one hour on your bed, trying to get the power and the mind to continue. It might just be easier to shave your head some days, honestly.

    We live in a world of shopping online, but there are still grocery stores and orders. Some people love (or love) food shopping (like me). Walk around the shop, check out sales, decide what to eat for the week and, above all, people who watch make Sunday morning fun. Finding unforeseen treatments and surprises. The surprises here are the rapid appearance of pain and the feeling of having a nap on the center of the cereal aisle. You have to take the groceries to your house once shopping is done and you finally make it home.

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    Yikes. As if it wasn’t enough to drag you to the checkout? Some of us were one tripper (and always tried to be). Load your arms like a pack mule and refuse to return to the car for a second time. Well, the smartest idea is not when chronic pain is mediocre at best. One trip, turns into two trips, turns into three trips, turns into “What I want, I’ll just take one after the other out the cans of Seltzer.” (I’m not known for my clever thoughts…).

    Cleaning. Oof. We all need a clean house and enjoy it, right? Clean clothes and clean? I’m living alone myself, so every job and care for my overall well-being is over me. I always enjoy standing up on a Saturday morning, coffeeing a French press, sprinkling music and cleaning my apartment and washing laundry. This is not very pleasant with chronic pain. I have “good” days (a good day is a day when my pain is at 6-8 instead of a constant 10).  Many people with chronic pain are not so fortunate, and none of these days are acknowledged to me. Rather than clean it all in a single day, I do my best to keep my friends or family away. One room, and one object at a time, I do it.

    The bathroom, for instance. Take a break, I’m going to clean the toilet. Take a break, purify the sink. Take a break, clean the shower. Take a nap, Sweep and Swiffer. This goes from one room to another. I barely make it across a room for many days. My poor cat. A simple litter box scoop can destroy my arms and back completely. Poor thing has been dealing with a full box for many days, but bless her little heart never got stuffed on the floor (all of them knocking in the wood now, please. Thank you!).

    It is a PROCESS; my washing room is in the basement. Fill my basket, carry it, bend down to the laundry, return to my apartment. Go back to the cellar and bend down to a dryer and go upstairs. And finally, one last trip back to my apartment to load the basket up and return. Really, all that happens is a load of washing one day. And if you think it will be folded and packed in 10-14 working days you will joke. Other simple stuff that I, and others with chronic pain, fight with cans, and bottles (the day I fought to crack open a cold beer after a long day was a sad, sad day.) Day after day, tying shoes, putting your hair in the middle, I’ll admit it was mid-March and all my festivals, including the artificial tree, are still up. Dinner for cooking is a trip. From planning, preparation, execution to food. It is exhausting to stand, to stir and to pivot. Dishes, if you have no washing machine? Ha. Hey. That same day won’t happen. It’s awkward because it’s frustrating.

    Probably now you can see the trend. Do not be patient or understanding if you don’t suffer from chronic pain. Don’t give up if you have chronic pain. Don’t get on yourself. Don’t get on yourself. You are not alone.

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    References:

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  • So much more than just pain is Chronic Pain

    So much more than just pain is Chronic Pain

    By: Dr Alexa James

    Very often, people do not understand what Fibromyalgia is like, and other chronic, invisible diseases that cause chronic pain. In their lives they have experienced constant pain, so many have somehow, but they have never had to deal with long-term pain. I tried to search for the “official” pain labels for different pain types I felt but could not find a label with a proper description for them all. I found technical descriptions and patient descriptions sometimes, but nothing entirely correct.

    Chronic pain differs greatly from the average pain. It can vary from mild to severe, but it can be more difficult to treat the mildest chronic pain long term than the severe acute or short-lived pain. It constantly stalks you until you cry, weep and are desperate for relief–making even the simplest task a serious fight. We celebrate some days just getting it from our bed to our couch, because that day is really so difficult to do. The pain probably prevented a relaxing sleep and does not forget all the other symptoms that are accompanied by these diseases.

    The list is long, with extreme fatigue, nausea, cognitive problems, migraines, light sensitivity, sound, smells, contact and motion. The pain is also not a single type of pain. It’d be too easy, I suppose. No, many forms of pain are accepted. Multiple forms are often used simultaneously. It’s a blow… read this with as much sarcasm as you can, because it definitely doesn’t have any fun at all.

    The following kinds of pain seem common to our condition by feeling my own pain and interviews with others with Fibromyalgia:

    Musculoskeletal pain:

    Feeling like a deep, ache and flu-free feelings, sometimes for weeks, or months, at once, crawling through my body.

    Pain of the nerves:

    I wrote it in advance, and the pain of the devil is the nerves again. It’s torturous, so you can feel crazy because your body is on fire, you’ll swear. The worst pain you can imagine is stabbing, itching and burning. Like burning on a red-hot metal piece, but can’t do anything to calm it down. In order to persuade myself to NOT fire, I always look at whatever part of the body it happens. It’s a mental trick of some kind.

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    Pain of pressure:

    my own label, since I still have to find a proper “official” label. Two different forms can be used. You can feel that one man is sitting on a semi-truck all over my body, and then running over for a couple of times. You feel weighed, almost incapable of moving, just like your body is held down. The second type appears randomly, apparently wherever it wants, like a flow pierced you suddenly. It is usually in a round spot of two “-four, “and the pulses are deep, but sharp and stirred pain for 4 to 20 minutes, everywhere. After a while it goes away and leaves behind a strange ache.

    Joint pain:

    This type of pain, whether caused by general aging or arthritis, is already known to many. It may feel like a sharp jab in your joint or a deep ache in the joint bone.

    Inflammation:

    I include it, as it rarely brings pain. It can cause you to swell, to cause another kind of pressure and make you think that your body is exploding. Medications often appear not to be helpful and rigidity becomes harder to walk without feeling like a stick-figure. Pet scan also shows that fibro patients have brain inflammation.

    Surgical procedures/medical treatment pain:

    Oh yeah, the very things that should help me can add to our pain very often, making things even more exhausting! Things that should help us. It is impossible to describe all of them but I will call them “healing pain.” There are so many different pains this can cause, it is impossible.

    TMJ / jaw / face pain:

    This appears to be common to us, too. We may have sharp pain in our faces either because of poor teeth caused by their conditions or medicine to treat them or because of the inflammation of the joint tissues in the jaw. It can be awful, taking all the self-control that I don’t have to cry. All the pain and the long list of other symptoms which constantly bombard us make it much harder for us to do simple daily activities than the average person.

    I have compiled a list of a few normal activities to try to explain the differences really, which virtually everyone has to do at some point. I explained to those of us with chronic pain how it can feel after each activity.

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    1. Just taking a shower — may be that at the end of a very long day we just ran for a few miles and jumped into the shower. When it’s over, we’re exhausted and can hardly move.
    2. Stepping outside in the weather above 75 °–immediately feels like 8 hours of hard work in 100 ° + weather have actually been spent. It is almost impossible to be mindful, because every ounce of energy in seconds is drained by heat.
    3. When the temperature is below 40 ° C–immediately it looks as if we have plunged into an ice bath naked. The pain is heavy, heavy and bone-like.
    4. NO drinking–it feels like we went to a bender for Spring Break and just woken up the first, sober day, following an outing at a club or concert.
    5. Getting an inflammation–feels like a flash.
    6. Two hours a day–may feel that we have been up straight for three days already.
    7. Having a light yard work for an hour usually feels like we’ve been digging holes for 8 hours.
    8. Riding in the vehicle–it feels like in the middle of a storm in a demolition derby race.
    9. As a spectator, it feels like we played it ourselves and it was a sport of contact.
    10. Making some foods–it’s like working as a dish washer an eight-hour shift.

    At least one of these things should give you an idea of how much energy it takes to do things compared to the average person and pain it causes. I can remember a time when it was much easier for me too. Earlier. Before all pain, symptoms, exhaustion, emotional difficulties and relationship problems due to an invisible chronic disease are dealt with. A normal, active life was previously impossible to live.

    We do not choose to make it harder for us to make it easy for others to do, or to try to understand when we are slower, or can’t go out, or cook dinner, or anything else that we might expect. It’s hard for my fellow pain patients. It’s true, not only in your head. It’s tiring and we’re trying to break it, but we’re stronger. Every day we fight. We have courage, value and compassion. Continue to fight. If you feel worthless, find something for yourself. A career doesn’t determine your value, just as it won’t determine your condition unless you allow it.

    https://fibromyalgia-6.creator-spring.com/
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    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • To the person who does not believe in my illness

    To the person who does not believe in my illness

    By: Dr Alexa James

    I just feel you. I feel you. I look okay, I’m okay. I live an active life, which is relatively normal. I’m walking, I’m driving, I’m climbing stairs. Visibly, I’m not disabled. I have no limp, no cane or wheelchair or walkers. I have no limp. I’m working a job of complete time. I’m living alone. I live alone. I take care of myself. I take care of myself. I’m cooking, I’m cleaning, I’m going to the ground to make a linen. I’m a grocery store and believe in all the bags on a journey to the house. I am laughing, I am crying, I am joking about it. Life, I’m glad and excited. I’ve got great days, and I’ve got awful days. I’m on holiday. I’m hiking, I’m bathing, I’m skydiving. I date, I go to the bars and dinner.

    However, my disease is invisible. It’s the constant dull, burning muscles that you do not see. You don’t feel my full weariness and frustration that I can’t get a good sleep during the night. You see that I don’t twist and turn all night, hoping and praying that I will be sleeping for at least an hour. For times I am so defeated you are not there that I cry, sometimes for hours. You are not there. From my depression, you do not hear the negative self-talk in my mind because my body and mind are under constant strain.

    It doesn’t make it any less real because you can’t see my disease. You can’t see the air, but it’s right there? (All right, this is an extreme example, but you get where I go). You can’t see IBS, but when you have it, you believe. Somebody’s migraine you cannot see, but you can empathize with it. You can’t see someone’s cancer always, but you know how awful it is for someone who suffers and you want to help them.

    This invisible disease is awful. This wouldn’t be it, if I had to choose a fake disease. Pain, pain, sorrow, flames, shoots, blows, pain. The rigidity every day. Difficulties with daily tasks like hair washing, drying with blow and styling. The cabinet is vacuumed, dusted and cleaned. Remove the trash. The frustration of the time it takes to perform a simple task, usually in minutes.

    It’s impossible to imagine the energy it needs to counteract this disease day after day. It would take a great deal of time to come up with these specific pain points and sentiments just to keep up with the disease. There are so many specific, random and non-fibromyalgic symptoms and chronic pain conditions. The problems of the inner stomach are so unpredictable. For no reason, the dry skin. Sleeplessness. The fatigue. And fibro fog, the memory and focus are lacking. It might certainly be a good excuse, but it’s one of the most frustrating pieces of fibromyalgia. It is terrible to constantly forget and be distracted.

    Do not assume that you see someone parked in a handicapped car park and they appear “fine.” Don’t judge and ridicule them. Do not judge them. It can sometimes be unimaginable the pain and energy to even reach the car and drive to the shop. Any steps that are saved are pain and energy. Energy to try and get the essential elements through the shopping trip, then fight back to the car, get home and be done during the day. This is sometimes the equivalent of a “normal” marathon runner.

    It’s not real to the person who stuffs my disease. Be patient. Be kind. Be friendly. Be comprehensive. Train yourself. Education others.

    Sincerely, 

    An exhausted, frustrated, and hurt fibromyalgia sufferer. 

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • I’m More than my chronic disease

    I’m More than my chronic disease

    By: Dr Alexa James

    We always look for ways of identifying and distinguishing ourselves. A way to be a single person. The Funny One, the Smart One, the Beautiful. The fan, the creative, the athletic. The “fan of sport,” One way I don’t want to do that is to “be a fibromyalgic girl.” “The painful girl, the painful girl” or “the tired girl.” “The painless girl,”

    I’m more than my pain.

    Ask me to camp. Ask me to camp. That’s the way to go. Please ask me to go shopping for a day. Suggest that we walk the city. Don’t be afraid to hug me or to joke in a joke with the jab in my arm. Call me, your house, to parties. We’ve been dreaming of this picnic. Holidays? Let’s just do it. Let’s do it. So let’s get tickets and tailgate. I want to go to that baseball and soccer game. I’m not sorry, I enjoy Chronic Disease

    I’ve got a lot of interests. I love cooking (read 36 fibro patient cooking hacks) and baking. My air fryer obsesses me. I love learning about various people and cultures. Overall, I love to learn. Something teach me. Animals, especially dogs, cats, alpacas, narwhals and dinosaurs. (Let’s read more about pet health.) I am obsessed with animals. It’s black, my preferred color. That is how I take my coffee. I love that black color. Pizza, wings, beer, I love them. I love to check out various breweries. We’re going to hop the bar. Let’s make brunch. Let’s make brunch. Make it a day. Let’s do it a day.

    I’m training. My body allows me to do what I do. I work with my body. I work with my body. I do yoga, I walk, I weigh lightly. In home workouts, I do TRX and randomly. My body works although it feels like my body works some days against me.

    I am far more than just my chronic disease.

    I am clever. I am being driven. – I’m determined. I was somewhat crazy and got out even more forcefully than I knew. I’m impervious. I am just funny. I’m being caring. I am empathetic. I am being creative. I’m just laid back. I’m just organized. I am a do-er. I’m a thinking thinker. I am an introvert. I am a cat mother.

    A sister, a sister, an aunt, mother and a cousin. I’m a daughter. I am a friend. I am a friend. I’m as much as I can to my friends and family. The times are good and the times are bad. I’m leaning on a shoulder. I make jokes. I make jokes. I give you advice. I give advice. I am a sports fan. I am a sports fan. I shout on the TV when it’s a bad call during a football game. I’m staying far too late to watch football on a Sunday or Monday night. On a sunny afternoon, I catch a baseball game.

    I’m working. I work. I work very hard. I go to meetings. I believe. I learn. I don’t. I succeed that. I succeed. I’ve been working for a career that I still work for.

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    My chronic disease, I am not. I’m a human living with a chronic disease.

    Instead of letting my pain control my life, I’ve learned to listen to my body and work with pain. I’m studying equilibrium. I know that it differs from good pain to bad pain. I know I can continue to push a bit further. When I have to take a break, I also know. Yes, sometimes because of my illness, I can’t show up. Yes, I’m going to say no sometimes. But don’t stop inviting me, please. Do not let one “no” stop the “normal” person from seeing me. Not only my illness, learn about me. Let’s speak about family, hobby and interest. Let’s speak to our family. Let’s speak of what we’re enthusiastic about. Tell me your best father joke and jokes. Tell me. What’s the most awkward thing you’ve ever experienced? If you want my fibromyalgia to learn. I would love to speak too, but don’t forget, please, that is so much more for me.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • I’m searching for the pain relief, not for the pain. Oh, I’m searching for bread administration, not a miracle!

    I’m searching for the pain relief, not for the pain. Oh, I’m searching for bread administration, not a miracle!

    By: Dr Alexa James

    The chronic pain of such a hot button is pain relief, pain medication, and the treatment of pain. People believe that people who are suffering from chronic pain or seek pain medicines can not go beyond the truth. Individuals with chronic pain and chronic pain seek one thing alone, pain relief or pain control. Unfortunately, many pain conditions are widely misunderstood, especially fibromyalgia. Fibromyalgia, therapy and management of this condition are very little understood. In some instances, fibromyalgia is the most painful misunderstanding and how to handle it in all aspects, especially the pain.

    We suffer from other conditions that also cause pain for most people with fibromyalgia. Autoimmune conditions, arthritis, degenerative disk conditions, spinal problems, etc. On top of fibromyalgia, all of these conditions cause pain, daily pain, relentless pain, uncontroverted pain! So, what do we want from life, pain management and pain management, but above all, understanding of our pain! So why can’t we get so desperately needed pain relief???

    The best solution is, right now, the current epidemic of opioids. I’m not here to begin a discussion about this but simply to debate how it has an impact on people like us. People like me who suffer every day, people who want to have better than bad days, people who want to have a sharp edge removed from what we feel every day.  First and foremost, we are trying to find a little relief for people suffering from chronic pain and pain. When we tell an average person that they will have pain from now on every single day, not just headache or joint pain.

    Pain which will continually disrupt their lives, pain that makes it nearly impossible to perform “daily” tasks, pain which makes good sleep difficult, pain that makes it impossible to work, pain in your social life, pain in your family, your day-to-day life, pain that makes life easier to enjoy, well, impossible! Well, I don’t think masses would be silent if we told the average person that this is their life from now on!

    Those of us who suffer the way we do want nothing but hope and a little relief. Some people could “work the system” to get pain medications, therefore there is abuse of pain medicines, pain med addiction and opioid drugs. Unfortunately, some of those suffering from addiction and abuse simply sought treatment for pain. The healthcare system was left rolling due to these problems!

    The sufferers left unfortunately are the ones who benefit from pain medicinal products and need them for a life that is somewhat’ tolerable.’ This is so wide-ranging topic that you will try in one article to address so many avenues and a controversial subject. But rest assured, chronically painful people want to listen, we want a voice, we want to say a saying, we want a choice. And the headline on local news speaks of excessive deaths as I write this. We fight to make our voices heard, no wonder!

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    Now please understand that I don’t want to promote the use of pain medicines in an unnecessary way, nor do I try to normalize the use of pain medicines. I hope that there will be more options. More options for pain alleviation that will ultimately make pain patients feel like a ‘ drug seeker. ‘

    A handful of medicines can be used to treat pain related to fibromyalgia that cannot be discarded, although many individuals with fibromyalgia can also be diagnosed with a slew of additional pain and fibromyalgia, and some of the treatments for fibromyalgia do not exist where our options and access to appropriate pain management are very limited. And some of us have serious reactions to the drugs that are out there, or they just do not work for us.

    We want a treatment plan to help relieve some of our pain, medication, therapy. Many of us have taken the path of uncertainty and unsuccessful treatment. Medicines and therapies work for everyone differently, I’ve spoken it over and over, and what works for one person can not work for another. The side effects of one person are very different from the effects of another. Nobody has the same body chemistry as anybody else. It is difficult to treat pain that what works for one person, can work for another or cannot, does not all people react to a certain medication or treatment in the same way.

    It is a way of hope that we have to find. Hopeful and hopeful abundant, the “alternative” therapies will improve and broaden our options for relief from pain. It is hoped that we will not feel like a drug addict if we need pain relief. We also hope that a physician who will assist us can finish without doubting us. With fibromyalgia, we struggle to get people to know our daily business even remotely, let alone to question our doctors about the validity of our pain and suffering.

    Unfortunately, now we are in a time of immediate dismissal or judgment if we have any type of pain. It must be stopped. The health care professional must be able to achieve the knowledge they really need on PERSON and PATIENT. The use of pain medicines may or cannot be included. But the more the patient AND the person understands the more hope they will see the whole image and not just a screenshot and can work with the patient to find a solution or to develop a plan. It’s time for you to find a new one, which I am finding at the moment, if you’re not in contact with your doctor or health care provider.

    Sometimes, especially when it comes to chronic pain conditions it is difficult to advocate for oneself. But we cannot give up! We must continue to fight for the United States! We need to struggle and hopefully find a common ground or a decent treatment plan. Nobody with chronic pain expects to live entirely without pain; we know that this is a totally unrealistic objective.

    But what can we hope to find is a treatment plan that addresses the most, if not all, of our needs and a plan is provided to attempt to achieve them and, most importantly, we want a healthcare provider who understands our struggles and is ready to listen not only to our needs but is ready to help us try, regardless of what the treatment plan involves, to achieve a pain management goal.

    We’re all looking for the same outcome, whether it’s tomorrow, next week, next month or years away. Those who are suffering from chronic pain simply want to see what we are suffering and to find options so we can “live the best of our life! “We do not need to seek the pain medication, we want the control of pain, we don’t need the pain medicine, we want the treatment of pain. We want to understand and support, however, most of all!

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • NSAIDs for Fibromyalgia & Chronic Fatigue Syndrome

    NSAIDs for Fibromyalgia & Chronic Fatigue Syndrome

    By: Dr Alexa James

    The lack of inflammatory findings

    When patients complain about diffuse muscle and soft tissue pain in the tender areas, fibromyalgia (FM) diagnosis is considered. Pure or primary FM is non-inflammatory because it has poor response to anti-inflammatory conditions and has a lack of inflammatory findings about blood work, and examination. It is not associated with other inflammatory diseases. However, there can be diffuse musculoskeletal pain in patients with inflammatory disease such as RA, which feels like FM but is inflammatory, and thus likely to be inflammatory.

    What are NSAIDs?

    We generally refer to pain relievers available on the grocery store or on the pharmacy when talking about NSAIDs. Ibuprofen (advil and motrin), sodium naproxen (alve) and aspirin (bavarian and excedrin) include these substances.  Most people assume acetaminophen (Tylenol) is in the NSAID family, but this group of OTC drugs technically does not. Actually, acetaminophen not only has no effect on inflammation, but scientists remain uncertain about its workings.  It’s a pain killer or analgesic technically. There are several other types of NSAID prescription, but we will focus on the most popular ones.

    Pain killers are anti-inflammatory medicines

    Anti-inflammatory medicines are one of the most common types of painkillers. NSAIDs, which stand for non-steroidal anti-inflammatory medicinal products, are a common type of anti-inflammatory medication. Include popular OTC NSAIDs:

    The prescription strengths of these drugs are also available. NSAIDs include prescription-only:

    Not all the pain caused by fibromyalgia is due

    The general pain is usually taken with Ibuprofen, naproxen sodium and aspirin. Sometimes, pain levels associated with various types of surgery are proposed to be treated. Thus, it is meaningful to consider them as a way of finding relief from fibromyalgia. The difficulty is that not all pain with fibromyalgia is due to inflammation. In fact, the absence of fibromyalgia inflammation is one of the main differences from inflammatory conditions such as rheumatoid arthritis. However, at least one study shows that fibromyalgia is inflamed by the fascia, the fibrous sheath that covers the muscles. Inflammation, however, is not an indicator of fibro-diagnosis.

    Dangers of NSAID

    More than 100,000 people are admitted to hospitals in the United States each year due to NSAIDs, according to the American Journal of Medicine. In addition, NSAID-related problems, like ulcers and gastrointestinal bleeding, die from 15 to 20,000 each year, and digestive side effects could occur in as many as 60% of users of NSAID. Increased risk for death from heart attack or stroke is also associated with NSAIDs. These medicines may also cause liver or kidney problems.

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    Possible side effects of medicines such as Vioxx-COX-2 Inhibitors:

    Fibromyalgia Pain Relief Vioxx has been developed to reduce pain and inflammations without the risk of ulcers and other potentially fatal gastrointestinal side effects of aspirin and similar medicine, called a “COX 2 inhibitor.” Fibromyalgia Pain Relief Vioxxx. But COX-2 inhibitors may cause a second in resolving one serious problem. A group of researchers led by Garret FitzGerald MD, head of the Pharmacologist and Director of the Institute of Translational Medicine and Therapeutics at Penn, found that both drugs had been suppressing prostacyclin in humans just before Celebrex and Vioxx were approved and launched.

    Prostaglandin

    Most medical researchers agree that an anti-inflammatory drug-related pain relief is just a good benefit to their work. That is, they are preventing the syncretization of a type of lipid called prostaglandin within the body. Prostaglandins do a lot, but ultimately, they play a vital role in the inflammatory reaction process of the body.  This prevents the inflammatory response in the body from spreading or even starting.  And there is no inflammation which means no inflammatory pain.

    Fibromyalgia pain is usually not primarily caused by inflammation.

    Sounds awesome, okay? Not that quickly. See, the problem is that the pain caused by fibromyalgia does not usually come first. However, patients with fibro are also often affected by other conditions. Other inflammatory conditions such as arthritis react quite well to anti-inflammatory medicines. That being said, only one way can really figure out if anti-inflammatory drugs work for you: try them for yourself. Some of your pain, but not all, can be relieved. Other days, it could however be the perfect solution and provide you with the relief you need to make it pain free throughout your day. And it’s what matters if it works.

    Other NSAIDS ‘ potential side effects:

    Fibromyalgia Pain is 7 times more likely for adverse gastrointestinal effects for a person taking NSAIDs. The FDA estimates that 200,000 gastric bleeding cases take place every year and that 10,000 to 20,000 deaths are reported every year. The risk of developing higher blood pressure by a person is over double that of NSAIDs, which could lead to more medication. A study also included 41 percent of those who had recently begun drug use to lower blood pressure.

    Talk to your doctor

    You and your doctor will decide together if your diagnoses, symptoms, overall health and lifestyle factors are suitable for NSAIDs. It is important to note that one NSAID can work for you better than others, so that experiments with different medicines can be done to produce the best results. Talk with your doctor about possible alternatives and weigh the risk against benefit when you feel that NSAIDs are effective in reducing your pain.

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  • I’m not going to excuse myself for “OK” days

    I’m not going to excuse myself for “OK” days

    By: Dr Alexa James

    Our days are dictated by pain, tight muscles, fatigue and many other factors and symptoms for the patient who suffers from fibromyalgia or Chronic Pain. Sometimes we have to go so far as to plan a relaxing day, as far as our plans are concerned. What people who don’t have difficulties to understand with these conditions is how we can be productive some days, take part, enjoy fun activities, but some days we can do nothing, and getting out of bed or showering might be the greatest achievement for the day.

    Some people don’t realize that we live a daily life but, sometimes, hour by hour. However, this is our lives, it is not guaranteed what happens from day to day, things may not always be planned and the days are always uncertain. Nevertheless, regardless of what, if it’s an “ok” day, I will try to enjoy it and if I can apologize for it, I will be damned.

    This may sound a bit harsh, but our “new existence” is a reality not understandable by all. There are some days where the major challenge we face is living with fibroid and chronic pain. We’re full of pain and sleeplessness our day and nights, lost plans, friends who don’t exist anymore or who can’t work and just the simple disinformation, the lack of understanding and ignorance from medical professionals.

    But there are days when we can actually tolerate the magic pain scale, even though we may not be completely restful, and the door opens with the opportunity of living, if for at least one day or for some hours. There are many days in which we can take part.

    We need to do that just when we have a day, or days, that we can possibly enjoy family or friends, much necessary and pleasant activities or even go on holiday. We must spend the days in which we can take part in life. But now the inevitable feelings of guilt and physical sorrow come, that are always there if we push ourself too hard, with those days of actually taking part in life and trying to get the most out of a tolerable day.

    We sometimes feel guilty that we can now enjoy living for a day or two for as much as we have lost. Today, for example, I had to miss a family because I couldn’t handle it physically or mentally. I might be seeing myself having lunch with friends tomorrow or having a holiday with my family, but I feel guilty and guilty that yesterday I had to say no, but I can say yes today.

    There is absolutely nothing to predict if there is one thing that can be certain about fibromyalgia and chronic pain. We cannot always plan or commit ourselves to anything in advance, so that’s why we have to take advantage of the days. We can communicate these achievements and joys by touching a button with the age of the social media. People can see and participate in the things we could enjoy.

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    We want to share the joy we had because we had an all right day. But we feel the judgment, the voices behind our back and what we actually feel in this life of fibrous and chronic pain because someone only saw us, smiled, lived and enjoyed this moment. They won’t walk in heating pads or ice bags tomorrow when they do not see the tears, if we have to get up and go up on the stairs and do not see us suffering. They’re going to see the tears on our faces tomorrow. But let us still feel guilty because people were happy to see us and today, we had to say no to another family.

    We feel like we’re in the mountain of guilt because all can see that we could have fun, we must remember, it’s a picture. It is only a small part of our life that people see and enjoy from us, a picture that shows we were OK, if just for a while. A snapshot of an opportunity to enjoy our family activity. A snapshot of the fact that we could exist as closely as we would ever be for a little bit of time.

    An opportunity to have a good time with our families or loved ones, for an activity or at least. What this picture doesn’t show is the sorrow we experience every day, the pain which keeps us couched, the tiredness that has wiped over us and stamped out every opportunity for something to happen. We don’t want people to see these parts of our lives. We don’t share the times, we don’t post our struggles on social media.

    For as limited a life as we can live, we really need to enjoy and enjoy the times we can live. So why are we guilty of having enjoyed this time? It’s a difficult question to answer because we found that we can’t work anymore for some of us with chronic pain and fibromyalgia, and that we can’t help our family. This is a fight in itself, and by feeling that we do not have the right to go out with family or friends, or the right to enjoy ourselves when we feel like we are human beings, we do not need to add to my mental sufferings.

    We DO have the right to live as much as possible without apologizing or guilty that we may not get out of bed yesterday. We suffer from physical or mind pain every day, fighting that nobody can see, feeling just about us, so why should we not be able to enjoy activities, holidays, nights with friends, dinners without being guilty of it? We have to take advantage of these unique opportunities, and we can’t think about our pain and struggles in every minute. Enjoy the days when even if the pain doesn’t go away, we can smile at a level without force.

    Take every chance to forget what your New Existence is, just for a little while. Whenever we can have a good day, we must stop feeling the fault we experience won’t keep apologizing for having some “ok” days, because I’m sure I fight on the other days! These are things and feelings that anyone with fibromyalgia or chronic pain cannot ever understand. And how would they really be since they were never in our shoes? The condition that we say, “I would never wish this to my worst enemy” is that we mean fibromyalgia!

    We don’t seek sympathy or mercy, we just want to understand a bit that our lives differ, because we have chronic pain to live “always.” We must enjoy things as they come and live on the days when we can truly live them.

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  • My Body negotiations: Someone with Chronic Diseases Negotiations

    My Body negotiations: Someone with Chronic Diseases Negotiations

    By: Dr. Alexa James

    I spend a lot of time negotiating with my body as someone with multiple chronic illnesses. I feel I can’t go for days and I’m determined to never give up for days. The emotional range is wide. I was through all of them and I have a great deal of coping mechanisms. My inner dialog is one of them. It could be my enemy or my friend. I have a large number of approaches because I really like them. The day depends on which one I use and how much they torture me. Some examples are as follows:

    Approach Tough Love:

    “It’s true? Can’t you work as an ordinary body?!?! I know before that you did it! Halfway you were willing to do that. Why can’t you just do what I need to do rather than be so hard? I know how.” I know your know-how.

    Approach to Nice:

    “They’re hard, I know. It felt like nothing would want to survive, but this is something you can do. We had a rough week. Simply put one foot before the other. Come on.”

    Approach to Negotiation:

    “Come on, get up, take the shower, get it over. Then, for a few minutes, you can relax. Manage one small thing and I’m going to break you.

    Bitter Approach:

    “It is true? Can’t a shower just? You once could do TWO work, AND go to school, manage a social life, and don’t even have a little shower? What have you become?”

    Empowering Approach:

    “This you have! You’ve had a worse time. That shower you can take. Just get up and move forward! Every day, woman, you fight pain. Compared with operations and other things you have experienced, this is nothing. Give it a grip!! Get into that shower! Get into that shower!”

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    The Approach I have Given up:

    “You are pathetic. you are pathetic. That’s a DOWN JUST. Can’t wash, you couldn’t. How difficult is it? Aren’t you really trying to be meaningless? I don’t know why I bother but go into the shower, even if you’re now lame and weak. “I’m going through these negotiations, and more, on a very everyday basis. The latter is not something I really control. When I have all I can do to encourage myself, and feel like I have failed, that voice comes out.

    It’s frustrating and emotional, so all these various scenarios continue in my head. I do my best to stay positive, but nobody can always be positive realistically. Many of the people with whom we interact daily can forget that chronic diseases are challenging. We fight with our bodies while trying to maintain the apparitions we cope with when we don’t.

    It’s uncomfortable that we spend a good deal of time trying to determine whether it’s worth living so we try to hide it. We hide our tears of suffering, despair, anger, and frustration in order to make all the others all right. In my head, there is a constant internal dialog. It’s usually about trying to talk about how my body functions or trying to convince me that despite my feeling I’m not worthless. It sometimes persuades me that somebody deserves my patience and understanding. It’s an ever-changing ripple of emotions.

    A typical day can go something like this:

    At 3 am, when waking up, there seems to be no reason for ridiculous pain:

    ME: (eyes opening through my body when pain shoots) “OW. Oh yes? That’s so, now, huh? BODY: “It’s safe. Well, good luck with that. “ME,” You’ve just been stuffing my hips with a big knife like someone? At 3 a.m. when I am just LAYING DOWN is this necessary? Can’t you just be glad to rest? “BODY:” Simply wait until you really feel it and just sit up there. Will be an enjoyable one. Muahahaha “ME:” Super. Much more. Thank you. Thank you. Enjoy this.

    20 Minutes Later

    BODY: “Now you are completely awake……” The room will now begin to spin. BODY:”……….” ME:’ Nothing? Fabulous.’ Do not comedies snarky? “BODY: Wait. I:” Ah, I see. Wait for it. Heat and severe nausea flashes. You’re finished yet? BODY: “Don’t really do. You haven’t learned I’m never finished yet? “I had been hopeful that we could only quickly get it over so I could move on.” BODY: “Pffft.” Hang it up for a while. Nope.-Nope. What’s the fun there? “It would certainly be more fun for ME to get through it quickly. BODY:’ Well………..’ ME:’……….’ I want to feel halfway normal rather than tortured.’

    45 Minutes Later

    BODY: “Hey. Hey. ‘ My goodbye? ‘” I: Oh, oh, oh? Have we now changed? BODY: “How cute. About Time.” You believe this change is going to like you. Oh, oh, oh!

    Uncontrollable shaking while lying under four heavy blankets after at least 30 minutes non-stop:

    BODY: “You’re having fun? BODY:” Hahahahaha. “Go away, I know.” I’m going to stop here. For the time being. “Too weak, too weak. Enjoy the aftermath.” Later I’m going to talk to you.

    About an hour after passing out:

    ME: “Is waking up still safe? BODY:” Perhaps. Perhaps not. Not perhaps. I: “You’re so precious. Try it and see.” Well, that knows? “I know. I know. BODY:” Normal pain so far. Will a catch be there? “BODY:” All right. ME: “Argh.” We’re going to see.

    A few hours later when I have to get up and be productive:

    BODY: “Whoa, whoa. What do you believe you’re doing?” Me: “I can’t go to the kitchen downstairs?” BODY: “Good, no. There was still nobody telling you to move. ME:” Hrmph. BODY: “Too bad.” I’ve got things I need to do.

    An hour later:

    ME: “I’m still able to move? It should be enough for three hours of rest. BODY: “I think it was all I did. But don’t get too excited. Don’t get too excited. “Oh well, thank you so much for your goodness.” BODY: “Would you like absolutely nothing to do today? You want nothing to do today at all? MY:”…….” Keep it up.

    After it was placed in the kitchen and half the dishes were done:

    BODY: “HOLDING!! This is sufficient of it. You’re trying to murder me?!?”I:” Thanks. A sink filled with dishes, I did like. This isn’t about killing you. BODY: “It’s, yes. That’s essentially nothing.” I’m no longer able to cooperate. The next dish you touch, I’m breaking. You know I’m going to do that. “ME:” Okay. BODY: “Shut up. Spaz.” BODY: “Lay down.” BODY: “Well, it would help if you would make stairs easier to get up.” BODY: “Ha! I’m tired.” You want the world! You want the world! Get over it! Get over it! I would say “Grrr” to Crawl if you must.

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    Upstairs after the restoration to sleep:

    BODY: “I don’t want to lay on that side.” ME: “I just might have said that instead of sending my left side piercing pain.” Me: * Eye roll * Funnier this way.

    20 minutes later:

    BODY: “There’s no longer I want to lay down.” Will you let me sit up and get sick? “BODY:” Now, you know that all that I can’t be. ME: “With whom exactly is the reputation? BODY: “So? You are living in my head. “It happened to you, what happened to me?’ You were only moderately hard. In your old age, you got so bitter? “I’m bitter, BODY:” Yes. Very bitter. -Very bitter. Now pay. ME: “Great.” Now pay for it.

    About an hour later:

    BODY: “Too long I left you alone! This is some more love. I: “No thanks. I don’t know. I’m all right that I’m neglected. Doesn’t need AAAAAA!! Are you?!? Do you want to move Right now a kidney stone? From nowhere?? I said: “Oh, you thought that I needed no rest since you gave me soo much sleep last night? I’m so bored and you looked like you were too peaceful!” I said. “BODY:” You could handle it, Nah. BODY: “Love you,”* a huge smile*, “I don’t like you.”

    Four hours later (the kidney stone was fighting all the time):

    ME: “Hey, what’s the pain up? BODY: “Well, the stone was a little stuck. It’s out of control.” All the tissue of the scar, you know. You will do something about it. “ME:” You kidding me? You guys kidding me? You began this, how did you deal with it?”I’d like to do more things than me.” BODY: “I’ve got better things to do.”

    After a lot of water drinking & moving, two hours later:’ME:

    BODY: “Oh, you got it taken care of at last?” “Finally.”I:” I do. I: BODY: “I don’t know about you, but I’m getting pretty tired. I don’t know about you. “Think it is time to get to bed. I think this is time to go to bed.” It’s just 6 pm and all day you gave me a tough time. I’m not going to sleep now anyway. BODY: “Sleep.” ME: “No.” I need a little time to recover.

    This goes up and down until after fighting to keep my eyes open all the time I finally get into and go to bed. Then we usually start again with a number of medical problems and symptoms. I usually imagine the sarcastic kind of part of my body that has nothing better to do than harass me. It sounds crazy, I know, but, hey, we all have our mechanisms of coping. It’s a constant struggle of different degrees.

    Some days are worse than others, but no days are really what someone used to be healthy would call “the good.” The majority of days are as described above, or I spend the day discussing with myself whether I go slip into bitterness or depression internally. In this series, I’m going into that a little more. Only the first installment. These are the real talks I’ve got in my mind. I decided to put them on paper since I also understand that others are fighting in a variety of ways with their internal dialogues.

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    Fibromyalgia Contact Us Directly

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  • It’s hard to pretend to be OK – Chronic Illness Awareness

    It’s hard to pretend to be OK – Chronic Illness Awareness

    By: Dr. Alexa James

    When people ask me what I am or what I am doing, generally my typical answer is the same, “I am OK,” or “I am good,” or “I am OK,” or, “We are all OK.” Without a second thought, we have conditioned this response. These reactions are so automatic that we don’t know any other answer. It’s just because I sometimes think “Hello, how are you going?”When you see the people, it’s so automated that our answer is the same, it’s automatic.

    We don’t want to share how “actually” we are for many different reasons. Our family or friends wear no burden because I’m sorry to tell how we feel, the pain, fatigue, mental anxiety. We know we can’t stop talking once we start talking.

    Or, even those we love do not want to hear it from previous discussions, do not feel confident of our suffering, or are simply guilty of our suffering. This is a condition that people have difficulty believing, so it’s everything in our heads. And when our healthcare community makes it even more difficult to take thoughts and feelings. And maybe some of us deny that we have a very misunderstood condition. For some reason what we’re doing is pretending to be “ok.” But it’s exhausting somewhere.

    I tried to learn how to continue as’ normal’ a life as I can since I was diagnosed with fibromyalgia, chronic pain, chronic fatigue, and several other conditions. The tears that come when my body and brain tell me to slow down or end are hidden. I don’t show the physical or mental pain I have, and I try to participate in the activities. I keep pushing myself to prevent people from seeing me suffer. It is important for my family to be there because I participate. But it’s becoming more and more difficult to participate every day, week, month and I have to watch life happen. But I’m still trying to pretend it’s all right.

    Whether it’s physically all right or mentally all right, it’s exhausting. Our fighting, we don’t want to show anybody. We don’t want to take pity on the people, or have you tried to listen to “cures” proposals that are endless? “If they know our condition, we don’t want to hear the negative voice of people. And in the case of our loved ones, we don’t want to burden and put our sufferings on their shoulders regardless of our support and our understanding of our struggles.

    The chronic, invisible disease is an unfair hand we have to learn to live with. We have to struggle to find treatments to reduce our symptoms every day. But yet we keep hiding our struggle and keep fighting to pretend we’re all right. And for many of us, it makes us vulnerable to show our pain and struggles, and I do not like to feel vulnerable, let alone see it for anybody else.

    “I’m okay,” because the key phrase my family has learned to mean now is “I’m not okay.” I must be more responsive in my house. I keep on smiling, hugging them, letting them love me. I’ve got to the point I’m not trying to hide my misery from them because they’ve learned to see me past trying to be all right.

    Fortunately, I have a family that knows how I feel and supports me every day, as much as anyone can. However, my mask appears and my smile is painted on when I leave the walls of my secure room. At some point the goddamn will break, it will have a mental impact, we are swallowed up by exhaustion, and we have to grieve. We must take some time to “not be OK” for a little, and in some ways, it is a relief to allow ourselves to be OK and rid ourselves of pain.

    So, while pretending to be all right can drain us, for whatever reason we’re going to continue to do that. However, I would encourage you to leave and be vulnerable once in a while. Practicing yourself as much as you can, have a good cry, indulge in something that makes you feel better. Take care of yourself, most of all. Keep on fighting for a better life, continue exploring therapies and treatments that can alleviate your sufferings. You mustn’t always pretend to be all right, because it’s frankly exhaustive.

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  • What is Difference Between Irritable Bowel Syndrome and Carcinoid Syndrome?

    What is Difference Between Irritable Bowel Syndrome and Carcinoid Syndrome?

    Doctors are diagnosing metastatic carcinoid tumors (MCTs) increasingly better. Nevertheless, the varying symptoms of an MCT can sometimes lead to misdiagnosis and inappropriate care until it is discovered that a carcinoid tumor is behind these symptoms. Carcinoid tumors are often initially misdiagnosed as irritable bowel syndrome (IBS) or Crohn’s disease, or as a symptom of menopause in women, according to the National Organization for Rare Disorders.

    Understanding the similarities between carcinoid syndrome symptoms and IBS will give you an idea of what disorder you may have and what you should ask your doctor to find out for sure.

    Understanding MCTs Major Symptoms

    Most carcinoid tumors do not cause symptoms, according to the American Family Physicist newspaper. A surgeon often discovers one of these tumors while performing surgery for another issue, such as acute pancreatitis, bowel blockage of a person, or reproductive tract diseases of a woman.

    A variety of hormones that affect the body can be secreted by carcinoid tumors, the most important being serotonin. Increased serotonin in your body may stimulate your intestine, causing symptoms similar to IBS, particularly diarrhea. Some MCT-related symptoms include:

    • muscle and joint aches
    • wheezing
    • flushing
    • heart problems i.e. irregular heartbeats
    • changes in lowering blood pressure

    Because MCT-related diarrhea usually gets worse after a person eats foods that contain a substance called tyramine. Therefore wine, cheese, and chocolate are all products containing tyramine.

    So over time, MCT-related abdominal symptoms may have additional harmful effects. However these include weight loss as stool moves through your intestines so rapidly that there is no space for your body to absorb nutrients. For similar reasons, dehydration and malnutrition can also occur.

    Understanding Differences Between IBS and MCTs

    It is easy to see how an MCT can be misdiagnosed as IBS, considering the symptoms of IBS. Some key factors, however, can lead a physician to suggest diagnostic tests for an MCT.

    1st is Age Diagnosis

    While a person may develop IBS at any age, according to the Mayo Clinic, women under the age of 45 are most likely to be diagnosed with IBS. The average age of a person with an MCT, on the other hand, starts to see signs between 50 and 60.

    2nd is Flushing Wheezing Breathing Issue

    So a person with an MCT may experience wheezing and diarrhea as well as chalk these symptoms to various problems. Because they may, blame a cold for wheezing and IBS for their diarrhea. Therefore the symptoms associated with MCTs, however, are not always based on one process in the body of a person.

    Therefore knowing this, it is important that you explain to your doctor all the unusual symptoms that you have experienced, even if they do not appear to be related. For example, if you have experienced diarrhea as well as flushing, wheezing, or general breathing difficulty, so you should share it. Because in general, in 58 percent of those with an MCT, diarrhea and flushing occur simultaneously.

    3rd is Weight Loss

    While a person with IBS may experience weight loss due to their diarrhea, with MCTs or another more serious disorder this symptom is more likely to occur. Weight loss is known as a “red flag sign” although, according to the research, the underlying cause is not IBS.

    Understanding Continued Abdominal Symptoms

    Often people with MCT will experience different abdominal symptoms without a diagnosis for many years. Because if your symptoms have not responded to treatment or appear to only improve with the removal of tyramine-containing substances from your diet, this may be a signal to ask your doctor to continue digging.

    Types of MCT diagnostic tests include:

    • therefore test the urine for 24 hours for 5-HIAA, a body by-product which breaks down serotonin 
    • however check your blood for compound chromogranin-A
    • so use imaging scans, such as CT scans and MRI scans, to determine the possible location of MCT.

    Giving’s

    Therefore the average time from the start to diagnosis of MCT symptoms is 9 years Trusted Source. So while this seems to be a very long time, this shows how hard it can be to identify an MCT, and sometimes frustrating it can be.

    However if you have symptoms that go beyond diarrhea, talk with your doctor about doing MCT research. Because most people with MCT do not seek treatment until the tumor has spread and begins to cause further symptoms. So if you take steps early on for additional tests or your doctor identifies MCT, they may be able to remove the tumor and prevent it from spreading.

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