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Tag: chronic fatigue syndrome

A detailed guide to Chronic Fatigue Syndrome (CFS), including its symptoms, causes, and effective treatment strategies to improve energy and well-being.

  • Ann Bannon’s Courageous Journey: Living and Writing with ME/CFS

    Ann Bannon’s Courageous Journey: Living and Writing with ME/CFS

    Introduction

    Ann Bannon, celebrated American author known for her groundbreaking work in lesbian pulp fiction, has faced a significant personal challenge: myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This debilitating condition has profoundly impacted her life and career. Through her journey, Bannon has become a vocal advocate for awareness and understanding of ME/CFS, sharing her experiences and insights to help others navigate this often misunderstood illness.

    Ann Bannon’s Journey with ME/CFS

    Literary Career and Onset of Illness

    Ann Bannon, born Ann Weldy, is best known for her “Beebo Brinker Chronicles,” a series of lesbian pulp fiction novels published in the 1950s and 1960s. These works earned her the title of the “Queen of Lesbian Pulp Fiction.” However, Bannon’s promising literary career was interrupted by the onset of ME/CFS, a chronic illness characterized by extreme fatigue and other severe symptoms. This condition, which developed following a viral infection, forced Bannon to adapt to a new way of life and work.

    Diagnosis and Initial Struggles

    Diagnosing ME/CFS can be a long and challenging process, often involving the exclusion of other medical conditions. Bannon experienced a period of uncertainty and frustration as she sought answers for her persistent fatigue and other symptoms. Receiving a diagnosis of ME/CFS marked a pivotal moment in her life, prompting her to seek ways to manage her condition while continuing her writing career.

    Understanding Myalgic Encephalomyelitis (ME/CFS)

    What is ME/CFS?

    Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is a chronic, debilitating illness characterized by severe fatigue that does not improve with rest. It often follows a viral infection and can significantly impair daily functioning and quality of life.

    Common Symptoms

    • Severe Fatigue: Persistent exhaustion that worsens with physical or mental activity and does not improve with rest.
    • Post-Exertional Malaise (PEM): A significant worsening of symptoms following physical or mental exertion.
    • Sleep Problems: Unrefreshing sleep, insomnia, or other sleep disturbances.
    • Cognitive Difficulties: Issues with concentration, memory, and cognitive processing, often referred to as “brain fog.”
    • Muscle and Joint Pain: Unexplained muscle pain and joint pain without swelling or redness.
    • Headaches: New or worsening headaches.
    • Sore Throat and Swollen Lymph Nodes: Recurring sore throat and tender lymph nodes.

    Ann Bannon’s Battle with Symptoms

    Daily Life Challenges

    The transition from a thriving author to living with ME/CFS was profoundly challenging for Bannon. Tasks that were once routine became insurmountable obstacles. The severe fatigue and other symptoms significantly impacted her ability to engage in daily activities and maintain her writing schedule.

    Mental and Emotional Impact

    The chronic nature of ME/CFS also took a toll on Bannon’s mental and emotional well-being. The drastic change in her life, coupled with the invisible nature of the illness, led to feelings of frustration, isolation, and depression. The lack of public understanding and support for ME/CFS added to the emotional burden she carried.

    Treatment and Management Strategies

    Medical Treatments

    • Medications: There is no specific cure for ME/CFS, but various medications can help manage symptoms. These may include pain relievers, sleep aids, and antidepressants to improve sleep and mood.
    • Cognitive Behavioral Therapy (CBT): CBT can help patients develop coping strategies to manage the psychological impact of ME/CFS.

    Lifestyle Modifications

    • Pacing: Pacing involves balancing periods of activity with rest to avoid triggering post-exertional malaise. This method helps manage energy levels and prevent symptom flare-ups.
    • Healthy Diet: Maintaining a balanced diet rich in essential nutrients can support overall health and energy levels.
    • Gentle Exercise: Low-impact exercises, such as stretching and yoga, can help maintain physical health without exacerbating symptoms. Exercise routines should be tailored to individual energy levels and capabilities.
    • Sleep Hygiene: Establishing a regular sleep schedule and creating a restful sleep environment can help improve sleep quality.

    Alternative Therapies

    • Acupuncture: Some patients find relief from symptoms through acupuncture, which may help improve energy levels and reduce pain.
    • Massage Therapy: Regular massages can help alleviate muscle tension and promote relaxation.
    • Mindfulness and Meditation: Practices such as mindfulness meditation can help manage stress and improve mental clarity.

    Ann Bannon’s Advocacy and Awareness Efforts

    Raising Public Awareness

    Ann Bannon has used her platform to raise awareness about ME/CFS. By sharing her personal experiences and the challenges she faces, she has helped to shed light on the condition and foster greater understanding and empathy among the public.

    Supporting Research and Education

    Bannon’s advocacy extends to supporting research and education initiatives aimed at better understanding ME/CFS. She emphasizes the need for more scientific research to uncover the underlying causes of the condition and develop effective treatments.

    Living with ME/CFS: Insights from Ann Bannon

    Adapting to Limitations

    Bannon has had to make significant adjustments to her lifestyle to manage her symptoms effectively. This includes prioritizing rest, avoiding activities that trigger symptoms, and finding a balance between personal commitments and health needs.

    Maintaining a Positive Outlook

    Despite the challenges, Bannon maintains a positive outlook. Her resilience and determination to live a fulfilling life, despite ME/CFS, serve as an inspiration to others facing similar battles. She continues to advocate for better understanding and support for those living with chronic illnesses.

    FAQs

    What led to Ann Bannon developing ME/CFS?

    The exact cause of ME/CFS is unknown. Bannon’s condition developed gradually, with persistent fatigue and other symptoms significantly impacting her daily life and writing career.

    How does Ann Bannon manage her ME/CFS symptoms?

    Bannon manages her symptoms through a combination of medical treatments, lifestyle changes, and alternative therapies. This includes pacing, maintaining a healthy diet, incorporating gentle exercise, and practicing mindfulness.

    What are the main symptoms of ME/CFS?

    The main symptoms of ME/CFS include severe fatigue, post-exertional malaise, sleep problems, cognitive difficulties, muscle and joint pain, headaches, and recurring sore throat and tender lymph nodes.

    Can ME/CFS be cured?

    There is currently no cure for ME/CFS, but symptoms can be managed effectively through a combination of treatments and lifestyle modifications. Research continues to seek better understanding and effective treatments for the condition.

    How has Ann Bannon’s openness about ME/CFS impacted public awareness?

    Bannon’s openness has significantly raised public awareness about ME/CFS, helping to foster greater understanding and empathy for those living with this condition.

    What lifestyle changes has Ann Bannon made to manage her ME/CFS?

    Bannon has adapted her lifestyle by prioritizing rest, avoiding activities that trigger symptoms, maintaining a healthy diet, incorporating regular, gentle exercise, and practicing mindfulness and meditation.

    Conclusion

    Ann Bannon’s journey with myalgic encephalomyelitis/chronic fatigue syndrome highlights her resilience and determination to overcome the challenges posed by this debilitating condition. Through her advocacy and personal experiences, she has raised much-needed awareness about ME/CFS, inspiring others to seek help and manage their symptoms effectively. By adopting a comprehensive approach that includes medical treatments, lifestyle changes, and alternative therapies, Bannon continues to lead a fulfilling life, demonstrating that with the right strategies, it is possible to live well with ME/CFS.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Rob Baker’s Brave Retirement: Navigating Life with Chronic Fatigue Syndrome Post-Cricket Career

    Rob Baker’s Brave Retirement: Navigating Life with Chronic Fatigue Syndrome Post-Cricket Career

    Introduction

    Rob Baker, once a rising star in Australian cricket, captained the Under-19 team with promise and skill. However, his cricket career was abruptly halted by chronic fatigue syndrome (CFS), a debilitating condition that developed following a viral infection. Baker’s journey with CFS highlights the resilience required to navigate life after an unexpected health challenge and underscores the importance of raising awareness about this often misunderstood illness.

    Rob Baker’s Journey with Chronic Fatigue Syndrome

    Promising Cricket Career and the Onset of Illness

    Rob Baker’s ascent in the cricket world was marked by his talent and leadership as the Under-19 captain for Australia. However, his promising career was cut short when he developed CFS after contracting a viral infection. The sudden onset of extreme fatigue, pain, and other debilitating symptoms forced Baker into early retirement, marking the beginning of a challenging new chapter in his life.

    Diagnosis and Initial Struggles

    Diagnosing chronic fatigue syndrome can be complex, often requiring the exclusion of other medical conditions. Baker experienced a long and frustrating journey to receive a definitive diagnosis. The uncertainty and lack of understanding about his condition added to the difficulties he faced as he adapted to a life drastically different from his days as an athlete.

    Understanding Chronic Fatigue Syndrome

    What is Chronic Fatigue Syndrome?

    Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), is a chronic, debilitating illness characterized by severe fatigue that does not improve with rest. It often follows a viral infection and can significantly impair daily functioning and quality of life.

    Common Symptoms

    • Severe Fatigue: Persistent exhaustion that worsens with physical or mental activity and does not improve with rest.
    • Post-Exertional Malaise (PEM): A significant worsening of symptoms following physical or mental exertion.
    • Sleep Problems: Unrefreshing sleep, insomnia, or other sleep disturbances.
    • Cognitive Difficulties: Issues with concentration, memory, and cognitive processing, often referred to as “brain fog.”
    • Muscle and Joint Pain: Unexplained muscle pain and joint pain without swelling or redness.
    • Headaches: New or worsening headaches.
    • Sore Throat and Swollen Lymph Nodes: Recurring sore throat and tender lymph nodes.

    Rob Baker’s Battle with Symptoms

    Daily Life Challenges

    Transitioning from a high-performing athlete to living with CFS was profoundly challenging for Baker. Tasks that were once routine became insurmountable obstacles. The severe fatigue and other symptoms significantly impacted his ability to engage in daily activities and maintain an active lifestyle.

    Mental and Emotional Impact

    The chronic nature of CFS also took a toll on Baker’s mental and emotional well-being. The drastic change in his life, coupled with the invisible nature of the illness, led to feelings of frustration, isolation, and depression. The lack of public understanding and support for CFS added to the emotional burden he carried.

    Treatment and Management Strategies

    Medical Treatments

    • Medications: There is no specific cure for CFS, but various medications can help manage symptoms. These may include pain relievers, sleep aids, and antidepressants to improve sleep and mood.
    • Cognitive Behavioral Therapy (CBT): CBT can help patients develop coping strategies to manage the psychological impact of CFS.

    Lifestyle Modifications

    • Pacing: Pacing involves balancing periods of activity with rest to avoid triggering post-exertional malaise. This method helps manage energy levels and prevent symptom flare-ups.
    • Healthy Diet: Maintaining a balanced diet rich in essential nutrients can support overall health and energy levels.
    • Gentle Exercise: Low-impact exercises, such as stretching and yoga, can help maintain physical health without exacerbating symptoms. Exercise routines should be tailored to individual energy levels and capabilities.
    • Sleep Hygiene: Establishing a regular sleep schedule and creating a restful sleep environment can help improve sleep quality.

    Alternative Therapies

    • Acupuncture: Some patients find relief from symptoms through acupuncture, which may help improve energy levels and reduce pain.
    • Massage Therapy: Regular massages can help alleviate muscle tension and promote relaxation.
    • Mindfulness and Meditation: Practices such as mindfulness meditation can help manage stress and improve mental clarity.

    Rob Baker’s Advocacy and Awareness Efforts

    Raising Public Awareness

    Rob Baker has used his platform to raise awareness about CFS. By sharing his personal experiences and the challenges he faces, he has helped to shed light on the condition and foster greater understanding and empathy among the public.

    Supporting Research and Education

    Baker’s advocacy extends to supporting research and education initiatives aimed at better understanding CFS. He emphasizes the need for more scientific research to uncover the underlying causes of the condition and develop effective treatments.

    Living with CFS: Insights from Rob Baker

    Adapting to Limitations

    Baker has had to make significant adjustments to his lifestyle to manage his symptoms effectively. This includes prioritizing rest, avoiding activities that trigger symptoms, and finding a balance between personal commitments and health needs.

    Maintaining a Positive Outlook

    Despite the challenges, Baker maintains a positive outlook. His resilience and determination to live a fulfilling life, despite CFS, serve as an inspiration to others facing similar battles. He continues to advocate for better understanding and support for those living with chronic illnesses.

    FAQs

    What led to Rob Baker developing chronic fatigue syndrome?

    Rob Baker developed CFS following a viral infection. The condition significantly impacted his life and forced him to retire from his promising cricket career.

    How does Rob Baker manage his CFS symptoms?

    Baker manages his symptoms through a combination of medical treatments, lifestyle changes, and alternative therapies. This includes pacing, maintaining a healthy diet, incorporating gentle exercise, and practicing mindfulness.

    What are the main symptoms of CFS?

    The main symptoms of CFS include severe fatigue, post-exertional malaise, sleep problems, cognitive difficulties, muscle and joint pain, headaches, and recurring sore throat and tender lymph nodes.

    Can CFS be cured?

    There is currently no cure for CFS, but symptoms can be managed effectively through a combination of treatments and lifestyle modifications. Research continues to seek better understanding and effective treatments for the condition.

    How has Rob Baker’s openness about CFS impacted public awareness?

    Baker’s openness has significantly raised public awareness about CFS, helping to foster greater understanding and empathy for those living with this condition.

    What lifestyle changes has Rob Baker made to manage his CFS?

    Baker has adapted his lifestyle by prioritizing rest, avoiding activities that trigger symptoms, maintaining a healthy diet, incorporating regular, gentle exercise, and practicing mindfulness and meditation.

    Conclusion

    Rob Baker’s journey with chronic fatigue syndrome highlights his resilience and determination to overcome the challenges posed by this debilitating condition. Through his advocacy and personal experiences, he has raised much-needed awareness about CFS, inspiring others to seek help and manage their symptoms effectively. By adopting a comprehensive approach that includes medical treatments, lifestyle changes, and alternative therapies, Baker continues to lead a fulfilling life, demonstrating that with the right strategies, it is possible to live well with CFS.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Paul Atherton’s Resilient Spirit: Overcoming Chronic Fatigue Syndrome in the World of TV and Film

    Paul Atherton’s Resilient Spirit: Overcoming Chronic Fatigue Syndrome in the World of TV and Film

    Introduction

    Paul Atherton, a renowned British TV and film director and producer, is known for his creative contributions to the entertainment industry. However, behind the scenes, Atherton faces a significant personal challenge: chronic fatigue syndrome (CFS). This debilitating condition, also known as myalgic encephalomyelitis (ME), has profoundly impacted his life and career. Through his journey, Atherton has become a vocal advocate for awareness and understanding of CFS, shedding light on the struggles faced by many who live with this often misunderstood illness.

    Paul Atherton’s Journey with Chronic Fatigue Syndrome

    Career and the Onset of Illness

    Paul Atherton’s successful career in TV and film includes notable projects that showcase his talent and creativity. However, his professional trajectory was disrupted when he developed chronic fatigue syndrome. The onset of severe fatigue, pain, and other debilitating symptoms significantly affected his ability to work and lead a normal life.

    Diagnosis and Early Struggles

    Diagnosing chronic fatigue syndrome can be a complex and lengthy process, often involving the exclusion of other medical conditions. Atherton faced a prolonged period of uncertainty and frustration as he sought answers for his persistent fatigue and other symptoms. Receiving a diagnosis of CFS marked a turning point in his life, leading him to understand and manage his condition better.

    Understanding Chronic Fatigue Syndrome

    What is Chronic Fatigue Syndrome?

    Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), is a long-term illness characterized by extreme fatigue that does not improve with rest. It often follows a viral infection and can significantly impair daily functioning and quality of life.

    Common Symptoms

    • Severe Fatigue: Persistent exhaustion that worsens with physical or mental activity and does not improve with rest.
    • Post-Exertional Malaise (PEM): A significant worsening of symptoms following physical or mental exertion.
    • Sleep Problems: Unrefreshing sleep, insomnia, or other sleep disturbances.
    • Cognitive Difficulties: Issues with concentration, memory, and cognitive processing, often referred to as “brain fog.”
    • Muscle and Joint Pain: Unexplained muscle pain and joint pain without swelling or redness.
    • Headaches: New or worsening headaches.
    • Sore Throat and Swollen Lymph Nodes: Recurring sore throat and tender lymph nodes.

    Paul Atherton’s Battle with Symptoms

    Daily Life Challenges

    The transition from a thriving career in TV and film to living with CFS was profoundly challenging for Atherton. Tasks that were once routine became insurmountable obstacles. The severe fatigue and other symptoms significantly impacted his ability to engage in daily activities and maintain his professional commitments.

    Mental and Emotional Impact

    The chronic nature of CFS also took a toll on Atherton’s mental and emotional well-being. The drastic change in his life, coupled with the invisible nature of the illness, led to feelings of frustration, isolation, and depression. The lack of public understanding and support for CFS added to the emotional burden he carried.

    Treatment and Management Strategies

    Medical Treatments

    • Medications: There is no specific cure for CFS, but various medications can help manage symptoms. These may include pain relievers, sleep aids, and antidepressants to improve sleep and mood.
    • Cognitive Behavioral Therapy (CBT): CBT can help patients develop coping strategies to manage the psychological impact of CFS.

    Lifestyle Modifications

    • Pacing: Pacing involves balancing periods of activity with rest to avoid triggering post-exertional malaise. This method helps manage energy levels and prevent symptom flare-ups.
    • Healthy Diet: Maintaining a balanced diet rich in essential nutrients can support overall health and energy levels.
    • Gentle Exercise: Low-impact exercises, such as stretching and yoga, can help maintain physical health without exacerbating symptoms. Exercise routines should be tailored to individual energy levels and capabilities.
    • Sleep Hygiene: Establishing a regular sleep schedule and creating a restful sleep environment can help improve sleep quality.

    Alternative Therapies

    • Acupuncture: Some patients find relief from symptoms through acupuncture, which may help improve energy levels and reduce pain.
    • Massage Therapy: Regular massages can help alleviate muscle tension and promote relaxation.
    • Mindfulness and Meditation: Practices such as mindfulness meditation can help manage stress and improve mental clarity.

    Paul Atherton’s Advocacy and Awareness Efforts

    Raising Public Awareness

    Paul Atherton has used his platform to raise awareness about CFS. By sharing his personal experiences and the challenges he faces, he has helped to shed light on the condition and foster greater understanding and empathy among the public.

    Supporting Research and Education

    Atherton’s advocacy extends to supporting research and education initiatives aimed at better understanding CFS. He emphasizes the need for more scientific research to uncover the underlying causes of the condition and develop effective treatments.

    Living with CFS: Insights from Paul Atherton

    Adapting to Limitations

    Atherton has had to make significant adjustments to his lifestyle to manage his symptoms effectively. This includes prioritizing rest, avoiding activities that trigger symptoms, and finding a balance between personal commitments and health needs.

    Maintaining a Positive Outlook

    Despite the challenges, Atherton maintains a positive outlook. His resilience and determination to live a fulfilling life, despite CFS, serve as an inspiration to others facing similar battles. He continues to advocate for better understanding and support for those living with chronic illnesses.

    FAQs

    What led to Paul Atherton developing chronic fatigue syndrome?

    The exact cause of CFS is unknown. Atherton’s condition developed gradually, with persistent fatigue and other symptoms significantly impacting his daily life and professional activities.

    How does Paul Atherton manage his CFS symptoms?

    Atherton manages his symptoms through a combination of medical treatments, lifestyle changes, and alternative therapies. This includes pacing, maintaining a healthy diet, incorporating gentle exercise, and practicing mindfulness.

    What are the main symptoms of CFS?

    The main symptoms of CFS include severe fatigue, post-exertional malaise, sleep problems, cognitive difficulties, muscle and joint pain, headaches, and recurring sore throat and tender lymph nodes.

    Can CFS be cured?

    There is currently no cure for CFS, but symptoms can be managed effectively through a combination of treatments and lifestyle modifications. Research continues to seek better understanding and effective treatments for the condition.

    How has Paul Atherton’s openness about CFS impacted public awareness?

    Atherton’s openness has significantly raised public awareness about CFS, helping to foster greater understanding and empathy for those living with this condition.

    What lifestyle changes has Paul Atherton made to manage his CFS?

    Atherton has adapted his lifestyle by prioritizing rest, avoiding activities that trigger symptoms, maintaining a healthy diet, incorporating regular, gentle exercise, and practicing mindfulness and meditation.

    Conclusion

    Paul Atherton’s journey with chronic fatigue syndrome highlights his resilience and determination to overcome the challenges posed by this debilitating condition. Through his advocacy and personal experiences, he has raised much-needed awareness about CFS, inspiring others to seek help and manage their symptoms effectively. By adopting a comprehensive approach that includes medical treatments, lifestyle changes, and alternative therapies, Atherton continues to lead a fulfilling life, demonstrating that with the right strategies, it is possible to live well with CFS.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Billy Garton’s Unyielding Spirit: Confronting ME/CFS Post-Soccer Career

    Billy Garton’s Unyielding Spirit: Confronting ME/CFS Post-Soccer Career

    Introduction

    Billy Garton, a former professional soccer player, faced an unexpected and life-altering challenge: myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). After a promising career on the field, Garton’s life was dramatically changed by this debilitating condition, which developed following a viral infection. His journey highlights the resilience and determination required to navigate life with ME/CFS and underscores the importance of raising awareness about this often misunderstood illness.

    Billy Garton’s Journey with ME/CFS

    Soccer Career and the Onset of Illness

    Billy Garton enjoyed a successful career as a professional soccer player, showcasing his talent and dedication on the field. However, his promising career was cut short when he developed ME/CFS after contracting a viral infection. This condition, characterized by extreme fatigue and other severe symptoms, forced Garton into early retirement and a new, challenging phase of life.

    Diagnosis and Initial Struggles

    Diagnosing ME/CFS can be a complex process, often requiring the exclusion of other medical conditions. Garton experienced a long and frustrating journey to receive a definitive diagnosis. The uncertainty and lack of understanding about his condition added to the difficulties he faced as he adjusted to a life drastically different from his days as an athlete.

    Understanding ME/CFS

    What is ME/CFS?

    Myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), is a chronic, debilitating condition characterized by severe fatigue that does not improve with rest. It often follows a viral infection and can significantly impair daily functioning.

    Common Symptoms

    • Severe Fatigue: Persistent exhaustion that worsens with physical or mental activity and does not improve with rest.
    • Post-Exertional Malaise (PEM): A significant worsening of symptoms following physical or mental exertion.
    • Sleep Problems: Unrefreshing sleep, insomnia, or other sleep disturbances.
    • Cognitive Difficulties: Problems with concentration, memory, and cognitive processing, often referred to as “brain fog.”
    • Muscle and Joint Pain: Unexplained muscle pain and joint pain without swelling or redness.
    • Headaches: New or worsening headaches.
    • Sore Throat and Swollen Lymph Nodes: Recurring sore throat and tender lymph nodes.

    Billy Garton’s Battle with Symptoms

    Daily Life Challenges

    The transition from a professional athlete to living with ME/CFS was profoundly challenging for Garton. Tasks that were once routine became insurmountable obstacles. The severe fatigue and other symptoms significantly impacted his ability to engage in daily activities and maintain an active lifestyle.

    Mental and Emotional Impact

    The chronic nature of ME/CFS also took a toll on Garton’s mental and emotional well-being. The drastic change in his life, coupled with the invisible nature of the illness, led to feelings of frustration, isolation, and depression. The lack of public understanding and support for ME/CFS added to the emotional burden he carried.

    Treatment and Management Strategies

    Medical Treatments

    • Medications: There is no specific cure for ME/CFS, but various medications can help manage symptoms. These may include pain relievers, sleep aids, and antidepressants to improve sleep and mood.
    • Cognitive Behavioral Therapy (CBT): CBT can help patients develop coping strategies to manage the psychological impact of ME/CFS.

    Lifestyle Modifications

    • Pacing: Pacing involves balancing periods of activity with rest to avoid triggering post-exertional malaise. This method helps manage energy levels and prevent symptom flare-ups.
    • Healthy Diet: Maintaining a balanced diet rich in essential nutrients can support overall health and energy levels.
    • Gentle Exercise: Low-impact exercises, such as stretching and yoga, can help maintain physical health without exacerbating symptoms. Exercise routines should be tailored to individual energy levels and capabilities.
    • Sleep Hygiene: Establishing a regular sleep schedule and creating a restful sleep environment can help improve sleep quality.

    Alternative Therapies

    • Acupuncture: Some patients find relief from symptoms through acupuncture, which may help improve energy levels and reduce pain.
    • Massage Therapy: Regular massages can help alleviate muscle tension and promote relaxation.
    • Mindfulness and Meditation: Practices such as mindfulness meditation can help manage stress and improve mental clarity.

    Billy Garton’s Advocacy and Awareness Efforts

    Raising Public Awareness

    Billy Garton has used his platform to raise awareness about ME/CFS. By sharing his personal experiences and the challenges he faces, he has helped to shed light on the condition and foster greater understanding and empathy among the public.

    Supporting Research and Education

    Garton’s advocacy extends to supporting research and education initiatives aimed at better understanding ME/CFS. He emphasizes the need for more scientific research to uncover the underlying causes of the condition and develop effective treatments.

    Living with ME/CFS: Insights from Billy Garton

    Adapting to Limitations

    Garton has had to make significant adjustments to his lifestyle to manage his symptoms effectively. This includes prioritizing rest, avoiding activities that trigger symptoms, and finding a balance between personal commitments and health needs.

    Maintaining a Positive Outlook

    Despite the challenges, Garton maintains a positive outlook. His resilience and determination to live a fulfilling life, despite ME/CFS, serve as an inspiration to others facing similar battles. He continues to advocate for better understanding and support for those living with chronic illnesses.

    FAQs

    What led to Billy Garton developing ME/CFS?

    Billy Garton developed ME/CFS following a viral infection. The condition significantly impacted his life and forced him to retire from his professional soccer career.

    How does Billy Garton manage his ME/CFS symptoms?

    Garton manages his symptoms through a combination of medical treatments, lifestyle changes, and alternative therapies. This includes pacing, maintaining a healthy diet, incorporating gentle exercise, and practicing mindfulness.

    What are the main symptoms of ME/CFS?

    The main symptoms of ME/CFS include severe fatigue, post-exertional malaise, sleep problems, cognitive difficulties, muscle and joint pain, headaches, and recurring sore throat and tender lymph nodes.

    Can ME/CFS be cured?

    There is currently no cure for ME/CFS, but symptoms can be managed effectively through a combination of treatments and lifestyle modifications.

    How has Billy Garton’s openness about ME/CFS impacted public awareness?

    Garton’s openness has significantly raised public awareness about ME/CFS, helping to foster greater understanding and empathy for those living with this condition.

    What lifestyle changes has Billy Garton made to manage his ME/CFS?

    Garton has adapted his lifestyle by prioritizing rest, avoiding activities that trigger symptoms, maintaining a healthy diet, incorporating regular, gentle exercise, and practicing mindfulness and meditation.

    Conclusion

    Billy Garton’s journey with ME/CFS highlights his resilience and determination to overcome the challenges posed by this debilitating condition. Through his advocacy and personal experiences, he has raised much-needed awareness about ME/CFS, inspiring others to seek help and manage their symptoms effectively. By adopting a comprehensive approach that includes medical treatments, lifestyle changes, and alternative therapies, Garton continues to lead a fulfilling life, demonstrating that with the right strategies, it is possible to live well with ME/CFS.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Luke Ford’s Battle with Chronic Fatigue Syndrome: A Journey Through Resilience and Awareness

    Luke Ford’s Battle with Chronic Fatigue Syndrome: A Journey Through Resilience and Awareness

    Introduction

    Luke Ford, a journalist and actor known for his diverse talents and contributions to media, has faced a significant personal challenge: chronic fatigue syndrome (CFS). This condition, characterized by extreme fatigue that does not improve with rest, has profoundly impacted his life and career. Through his journey, Ford has become an advocate for awareness and understanding of CFS, shedding light on the struggles faced by many who live with this debilitating condition.

    Luke Ford’s Journey with Chronic Fatigue Syndrome

    Onset of Symptoms

    Luke Ford’s battle with chronic fatigue syndrome began when he started experiencing persistent and overwhelming fatigue that interfered with his daily activities and professional commitments. Despite getting sufficient rest, he found himself constantly exhausted and unable to perform at his usual capacity.

    Diagnosis and Challenges

    Diagnosing chronic fatigue syndrome can be complex and often involves ruling out other conditions. Ford underwent numerous tests and consultations before receiving a definitive diagnosis. This journey was fraught with uncertainty and frustration, as the cause of his debilitating fatigue remained elusive for a long time.

    Understanding Chronic Fatigue Syndrome

    What is Chronic Fatigue Syndrome?

    Chronic fatigue syndrome, also known as myalgic encephalomyelitis (ME/CFS), is a long-term illness characterized by extreme fatigue that cannot be explained by any underlying medical condition. The fatigue worsens with physical or mental activity but does not improve with rest.

    Common Symptoms

    • Severe Fatigue: Persistent exhaustion that is not alleviated by rest and significantly interferes with daily life.
    • Post-Exertional Malaise (PEM): Worsening of symptoms following physical or mental exertion.
    • Sleep Problems: Unrefreshing sleep, insomnia, or other sleep disturbances.
    • Cognitive Difficulties: Problems with concentration, memory, and thinking, often referred to as “brain fog.”
    • Muscle and Joint Pain: Unexplained muscle pain, joint pain without swelling or redness.
    • Headaches: New types of headaches or a change in the pattern of existing headaches.
    • Sore Throat and Enlarged Lymph Nodes: Recurring sore throat and tender lymph nodes in the neck or armpits.

    Luke Ford’s Battle with Symptoms

    Daily Life Challenges

    Ford’s chronic fatigue syndrome significantly impacted his daily life. Tasks that once seemed effortless became insurmountable challenges. The constant exhaustion affected his ability to work consistently as a journalist and actor, requiring him to take extended breaks and limit his professional engagements.

    Emotional and Mental Strain

    The chronic nature of the illness also took a toll on Ford’s mental health. Dealing with persistent fatigue and other symptoms led to feelings of frustration, isolation, and anxiety. The lack of understanding and support from others, who often could not see or comprehend the severity of his condition, added to his emotional burden.

    Treatment and Management Strategies

    Medical Treatments

    • Medications: While there is no cure for CFS, certain medications can help manage symptoms. These may include pain relievers for muscle and joint pain, antidepressants to improve sleep and mood, and antiviral drugs if a viral infection is suspected to contribute to symptoms.
    • Cognitive Behavioral Therapy (CBT): CBT can help manage the mental and emotional aspects of chronic fatigue syndrome, teaching coping strategies and techniques to handle the illness’s impact on daily life.

    Lifestyle Modifications

    • Pacing: Managing activity levels to avoid overexertion is crucial. This involves balancing periods of activity with rest to prevent post-exertional malaise.
    • Healthy Diet: A balanced diet rich in essential nutrients can help improve overall health and energy levels.
    • Regular, Gentle Exercise: Low-impact exercises such as walking, stretching, and yoga can help maintain physical health without exacerbating symptoms. Exercise routines should be tailored to individual energy levels and capabilities.

    Alternative Therapies

    • Acupuncture: Some patients find relief from symptoms through acupuncture, which may help improve energy levels and reduce pain.
    • Massage Therapy: Regular massages can help reduce muscle tension and pain, promoting relaxation and better sleep.
    • Mindfulness and Meditation: Practices such as mindfulness meditation can help manage stress and improve mental clarity, reducing the overall burden of the illness.

    Luke Ford’s Advocacy and Awareness Efforts

    Raising Public Awareness

    Luke Ford has used his platform to raise awareness about chronic fatigue syndrome. By sharing his personal experiences and challenges, he has helped to shed light on the condition and foster greater understanding and empathy among the public.

    Supporting Research and Education

    Ford’s advocacy extends to supporting research and education initiatives aimed at understanding chronic fatigue syndrome better. He emphasizes the need for more scientific research to uncover the underlying causes of CFS and develop effective treatments.

    Living with Chronic Fatigue Syndrome: Insights from Luke Ford

    Adapting to Limitations

    Ford has had to make significant adjustments to his lifestyle to manage his symptoms. This includes prioritizing rest, avoiding activities that trigger symptoms, and finding a balance between professional commitments and personal health.

    Maintaining a Positive Outlook

    Despite the challenges, Ford maintains a positive outlook and continues to pursue his passions within the limitations imposed by his condition. His resilience and determination to live a fulfilling life, despite chronic fatigue syndrome, serve as an inspiration to others facing similar battles.

    FAQs

    What led to Luke Ford developing chronic fatigue syndrome?

    The exact cause of chronic fatigue syndrome is unknown. Ford’s condition developed gradually, with persistent fatigue and other symptoms interfering with his daily life and professional activities.

    How does Luke Ford manage his chronic fatigue syndrome symptoms?

    Ford manages his symptoms through a combination of medical treatments, lifestyle changes, and alternative therapies. This includes pacing his activities, maintaining a healthy diet, incorporating gentle exercise, and practicing mindfulness and meditation.

    What are the main symptoms of chronic fatigue syndrome?

    The main symptoms of chronic fatigue syndrome include severe fatigue, post-exertional malaise, sleep problems, cognitive difficulties, muscle and joint pain, headaches, and recurring sore throat and tender lymph nodes.

    Can chronic fatigue syndrome be cured?

    There is currently no cure for chronic fatigue syndrome, but symptoms can be managed effectively through a combination of treatments and lifestyle modifications.

    How has Luke Ford’s openness about chronic fatigue syndrome impacted public awareness?

    Ford’s openness has significantly raised public awareness about chronic fatigue syndrome, helping to foster greater understanding and empathy for those living with this condition.

    What lifestyle changes has Luke Ford made to manage his chronic fatigue syndrome?

    Ford has adapted his lifestyle by prioritizing rest, avoiding activities that trigger symptoms, maintaining a healthy diet, incorporating regular, gentle exercise, and practicing mindfulness and meditation.

    Conclusion

    Luke Ford’s journey with chronic fatigue syndrome highlights his resilience and determination to overcome the challenges posed by this debilitating condition. Through his advocacy and personal experiences, he has raised much-needed awareness about CFS, inspiring others to seek help and manage their symptoms effectively. By adopting a comprehensive approach that includes medical treatments, lifestyle changes, and alternative therapies, Ford continues to lead a fulfilling life, demonstrating that with the right strategies, it is possible to live well with chronic fatigue syndrome.

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  • Overcoming Disability in the Media

    This is an assignment for my disability studies course in my social work program. The purpose of the assignment is to identify different models of disability in the media by reviewing a news article. This one looks at the construction of the ‘supercrip’ (super cripple) who ‘overcomes his/her disability. Let me know what you think of this image – inspiring or unrealistic?

    Learning Activity 3.1

    The article I chose for this Learning Activity describes how a disabled man named Luke Anderson started an initiative called STOPGAP which works to improve the accessibility of Toronto’s built environment by providing ramps to local businesses for free. The primary model of disability employed in the article is the charity model, specifically the construction of a ‘supercrip’. The narrative describes how Luke Anderson was once a star athlete when a tragic accident left him with a spinal cord injury. Fortunately, “Luke Anderson showed that what he has inside is the tenacity to tackle problems of getting around the big city, for himself and others, when you are physically challenged” (Fatah, 2011). The author initially invites the reader’s pity, by, for example, noting how Anderson is now dependent on help to get dressed in the morning. As Withers (2012) describes, the construction of a supercrip is complete when pity is transformed into inspiration (p. 71). Fatah (2011) accomplishes this when she describes how Anderson has not only overcome the challenges of his own disability but is also working to help overcome “the environment of ordinary life itself”.

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    Anderson’s disability is constructed in the article as a physical impairment resulting from an accident. His disability is understood to be a medical problem located in his individual body, which is consistent with the medical model of disability, rather than the result of societal oppression and marginalization, as in the social model of disability (Withers, 2012). Although the author focuses on urban accessibility, the solution is framed in terms of the charity model. The author describes the nonprofit STOPGAP’s ramp project in laudatory tones, with no mention of the government’s failure to implement the Accessibility for Ontarians with Disability Act, which is meant to make Toronto “barrier-free” for disabled people.

    Luke Anderson is a white man with an excellent education. His relative privilege is not discussed in the context of the author’s description of him as a supercrip. No other structural factors are mentioned in the discussion of the accessibility of the built environment. I would have thought that a discussion of poverty and class would have been incorporated, as it is well-known that exclusion from workplaces and educational institutions because of their inaccessibility affects the economic security of people with disabilities. Overall I found this to be a light and superficial discussion of the issues.

    The Ramp Project: tackling access for the disabled one storefront at a time

    • It has become a mantra of our progressive, polite society to insist that appearance doesn’t matter, that it’s what’s inside that counts.
    • But, fair or not, our physicality affects not only the way we live and what we are able to do but how others perceive us.
    • Luke Anderson has been on the extreme ends of the physical spectrum, the ability one as well.
    • As a child and young adult, he defined himself primarily as an athlete. If an activity involved a ball, a chase, a run, a ski, a dive, or a bike — Luke was interested, and he excelled.
    • His physical strength and love of activity dominated so much of his life that upon graduating from university, he moved from the Toronto area to Rossland, B.C., too, as he puts it, “do nothing but mountain bike.”
    • Luke Anderson, speaking at the Canadian Urban Institute forum in November 2011. (Marlena Rogowska)
    • But one day in 2002, a biking accident resulted in a massive spinal cord injury that changed his whole life as he knew it.
    • Anderson lost the ability to walk, as well as most of the control of his hands.
    • He went from being a popular, all-around star athlete, and a pillar of strength, to a young man who needed help getting dressed in the morning and must use a wheelchair.
    • It was challenging to say the least. But these are the times when it is what’s inside that counts.
    • And Luke Anderson showed that what he has inside is the tenacity to tackle the problems of getting around the big city, for himself and others, when you are physically challenged.  

    Just getting around

    At a recent Canadian Urban Institute forum on accessibility and cities, Anderson gave a presentation to a group of about 100 people, who were charmed by his easy, surfer speak and intrigued by his message.

    He talked about the obvious things involving the physically disabled, like wheelchair ramps and push-button door openers.

    But he also opened our eyes to the things most of us don’t necessarily think about — like how difficult it can be to navigate a narrow apartment elevator when you are in a wheelchair.

    Most elevators are big enough to allow a wheelchair to get in, but not to turn around. So if you are in a wheelchair by yourself, you don’t always know if you have reached your floor because your back is towards the numbers and the door.

    Then there is the problem of getting out of an elevator. You either back out and risk running into someone or something because you can’t see clearly where you are going, or you try to maneuver a challenging three-point-turn within the confines of the elevator itself.

    Redesigning the city

    For the physically disabled, there are also issues with those everyday things that “seemingly” have nothing to do with accessibility — like air conditioning.

    Former British PM Tony Blair places a temporary ramp in front of 10 Downing St., the official residence, for a visitor in 2005.

    Anderson told his audience that because of his physical status and the fact that some of his muscles don’t get used enough, he has really bad circulation.

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    So the extra-cool air conditioning in most of our big office buildings and retailers actually affects his health directly by slowing his circulation even more and causing numbness.

    Used to having defined himself by what he could achieve against the toughest of physical environments, Anderson now has given himself a new challenge — to change the environment of ordinary life itself.

    An engineer, with a job in a successful Toronto firm, Anderson is also the founder of  STOPGAP, a group of artists, design professionals, and architects that wants to transform Toronto’s built-up urban environment into “a place where everyone has access to what they desire through art, design, discourse and community action.” 

    The first place he started in was his own neighborhood.

    The Ramp Project

    Despite all the progress, technology, and social will that is out there, Anderson still found it difficult, if not impossible, to access many of the local businesses, shops, restaurants, cafes, and bars nearby, primarily because most storefronts have a single step.

    A brightly colored Ramp Project ramp in a Toronto neighborhood. (Stopgap)

    That is one small step for someone who can walk. But it can be a giant obstacle for someone in a wheelchair.

    So Anderson and STOPGAP began what they called The Ramp Project, a simple but effective plan to build and provide temporary, weatherproof, slip-resistant ramps to local businesses at no charge.

    The materials and money are donated by sponsors and the labor is provided by volunteers. And because the ramps are viewed as “temporary,” they don’t have to fall within the strictures of the building code. 

    STOPGAP hopes that their colorful ramps will become a staple throughout the city, and maybe even other Canadian cities until permanent accessibility solutions can be found.

    The result has been a dozen or so brightly painted, cheerful and useful ramps along with a West-end neighborhood, to help not only people with physical disabilities but the elderly, parents with strollers, pregnant women, people carrying heavy packages. The list goes on.

    That’s the thing about improving our built environment to make it more accessible. It doesn’t just help those with disabilities, it improves the standard of living for all of us

    Research shows a new marker for the intensity of pain, as well as a new area for the target of pain medications – in the glial cells that surround nerves and provide structure and support.

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  • ‘Smart’ Underwear May Help Prevent Back Pain

    Mechanized “smart” undergarments may be the answer to back pain, according to researchers.

    The Vanderbilt University engineers have created an undergarment that eases stress on the low back and activates only when a wearer needs it.

    “I’m sick of Tony Stark [the fictional Iron Man] and Bruce Wayne [Batman’s alter ego] being the only ones with performance-boosting supersuits. We, the masses, want our own,” Karl Zelik, principal investigator on the project, quipped in a university news release. “The difference is that I’m not fighting crime. I’m fighting the odds that I’ll strain my back this week trying to lift my 2-year-old.”

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    That same kind of back strain got the assistant professor of mechanical engineering thinking about wearable tech solutions.

    Made of nylon canvas, Lycra, polyester and other materials, the “smart” underwear feels and behaves like regular clothes, according to researchers.

    It has one section for the chest and another for the legs. The sections are connected by straps across the middle back, with natural rubber pieces at the lower back and glutes.

    A double tap that engages the straps activates the device. It can also be controlled wirelessly using an app.

    The new device was recently unveiled in Brisbane, Australia, and is slated to debut in the United States at an American Society of Biomechanics meeting in Boulder, Colo., this week.

    To test the undergarment, eight volunteers lifted 25-pound and 55-pound weights. The device eased muscle use in the lower back by 15 percent to 45 percent, according to the researchers.

    “The next idea is: Can we use sensors embedded in the clothing to monitor stress on the low back, and if it gets too high, can we automatically engage this smart clothing?” Zelik said in the news release.

    More than half of adults have low back pain at some point. The condition leads to an estimated $30 billion in medical costs and more than $100 billion in lost productivity each year in the United States.

    Co-investigator Dr. Aaron Yang specializes in nonsurgical treatment of the back and neck at Vanderbilt University Medical Center. He’s seen many back devices and usually views them with doubt.

    The “smart” undergarment is not meant to treat existing back pain, he emphasized. Instead, it aims to prevent pain by reducing stress and fatigue on muscles in the lower back, he said.

    “People are often trying to capitalize on a huge societal problem with devices that are unproven or unviable,” Yang said in the news release. “This smart clothing concept is different. I see a lot of health care workers or other professionals with jobs that require standing or leaning for long periods. Smart clothing may help offload some of those forces and reduce muscle fatigue.”

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  • Elevating Women’s Voices Will Advance Chronic Pain Treatment and Management

    Coordinated by Monica Mallampalli, PhD, Chronicillness.co’s Advisor for Scientific and Strategic Initiatives, our two-day event aimed to advance and amplify current dialogue on the impact of chronic pain on women’s health. We certainly accomplished our goals. The summit convened leading experts in chronic pain science and treatment, policy experts from federal agencies and national pain advocacy organizations. Pain activists with personal knowledge of the devastation caused by chronic pain conditions also provided their unique insights. Chronicillness.co is thankful to these trail blazers for illuminating the elusive aspects of chronic pain with the bright spotlight it demands.

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    I learned so much from our participants and from their commitment to ending the suffering connected with chronic pain. For example, artificial intelligence is now being applied to chronic pain study with tremendous potential. And, successful models for pain management programs exist, such as the one established for women veterans at the VA Connecticut Healthcare Center, can be emulated to benefit women and other populations in need.

    My hope is that a reckoning for chronic pain in women is not far off. Improved awareness, louder patient voices and targeted research will elevate chronic pain’s status from “invisible” to “visible,” leading to faster diagnoses, innovative treatment and management strategies and, ultimately, will end long-term suffering.

    This will be a triumph for women’s health because women bear a far greater burden of pain. Indeed, the prevalence of most common pain conditions (arthritis, back pain, headache, among others), is higher in women compared to men. In addition:

    • Seventy percent of chronic pain patients are women.
    • Women’s life expectancy is reduced by one year for every 10 years spent with chronic pain.
    • Women with chronic pain are more likely to be treated with prescription pain relievers, like opioids, and at higher doses and for longer periods, than are men, putting women at greater risk for developing opioid use disorder.
    • While some research has addressed sex differences in pain management, perception and pain threshold, this progress has not translated to improved pain treatment for women.
    • Sleep loss increases pain sensitivity and is a major risk factor for developing chronic pain, especially in women.

    Our keynote speaker Anita Gupta, DO, PharmD, MPP, Professor, Rowan University School of Medicine and Senior Vice President, Heron Therapeutics, issued a call to action I am compelled to repeat. No stranger to the pain journey, Dr. Gupta shared her personal experience with treatment for a rare disease that has altered her approach to patient care. Like the World Cup-winning women’s soccer stars’ call for pay equity in their sport, it is time for “chronic pain equity” in women’s health, according to Dr. Gupta. No longer should women suffering from chronic pain caused by migraine, fibromyalgia, arthritis, debilitating complex regional pain syndrome, or pelvic pain conditions, such as endometriosis, be underserved.

    There is no doubt that we still confront many challenges in the science and management of chronic pain. However, the following 10 highlights (and, it was hard to pick only 10) from our summit indicate to me that we are on the right path:

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    1. More informed research about sex differences in pain likely will lead to pain medication and devices tailored specifically for men and women.
    2. Researchers and study proposal reviewers are now trained to ask questions and evaluate data with respect to biological differences important to understanding sex differences in pain and pain treatment.
    3. Because few drug trials are designed specifically to study women with pain, an opportunity exists to raise awareness about the importance of recruiting women for clinical trials about pain research.
    4. Innovative clinical approaches, such as motivational interviewing and functional pain inventories, can improve the patient-clinician dialogue and improve patient outcomes by setting goals for managing and living with chronic pain.
    5. Re-thinking treatment for opioid use disorder (OUD) to consider women’s unique health needs and family responsibilities will improve OUD treatment for women and replace current OUD treatment models based on treatment for men.
    6. More data on women of color and women of color experiencing chronic pain will inform policy, begin to eliminate health care disparities and will lead to changes in health care delivery for all women.
    7. Working to eliminate the stigma associated with chronic pain—including self-stigmatization and inherent race and gender biases–will help to break down major barriers to accessing care and successful treatment.
    8. A key to understanding pain is understanding the robust individual differences in pain experiences. Pain management innovation cannot be “one-size fits all.”
    9. Pain research is getting better at measuring pain and increasingly more able to activate, isolate and study specific cell types.
    10. The patient voice must be a partner in drug development, science and patient care.

    Chronicillness.co is proud to lead this call to action with our first summit on chronic pain in women. We support the “super heroes” so aptly described by Lindsay Weitzel, PhD, a migraine strategist and author, in the battle to raise awareness of chronic pain-related issues. We will continue to connect women, their families, and their health care providers with resources designed to help them overcome barriers to treatment and pain-free lifestyles. And, we will continue to help women tell their stories about their journeys, providing hope for those for whom the journey awaits.

    We know that “pushing back against pain,” urged by Kate Nicholson, JD, in her closing plenary presentation, “Pain, Resilience and How We Heal,” will help society recognize the existence and impact of chronic pain. If you have a minute, check out Kate’s TED Talk on the implications of undertreating chronic pain.

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  • 3 Pain-Relief Treatments with Bonus Benefits

    When it comes to pain–management options, not surprisingly, safe and effective pain relief should be priority number one. What may be surprising, however, is that some treatments have advantages that go beyond pain relief. In fact, there are a number of affordable and convenient pain treatments that work to alleviate symptoms—and come with bonus benefits. The following pain-relief treatments are sustainable, have additional advantages and most importantly they’re often times effective for many types of painful conditions when combined with a comprehensive treatment plan.

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    1. Massage

    Massage is a popular pain-relief option as it increases blood flow and reduces muscle tension. It also decreases inflammation by activating genes that naturally reduce swelling. Furthermore, it improves muscle recovery by stimulating mitochondria, the “energy packs” driving cellular function and repair.

    Bonus Benefit – Stress Relief

    Stress can send the brain into overdrive causing adrenaline and cortisol to release into the body, manifesting in trouble sleeping, digestive issues and a host of other health problems. Pain and stress often go hand in hand, but thankfully massage is one way to manage both at the same time. In fact, recent studies found a reduction of cortisol in saliva samples after the participant received a massage. And while making an appointment at the spa can be prohibitive due to time and cost, there are great handheld massager options like the Wahl Deep Tissue Massager. The intensity can be adjusted for customized pain relief in the comfort of your own home.

    2. Glucosamine

    Glucosamine supplements are commonly used to reduce joint pain because they don’t require a prescription. Many individuals use glucosamine sulfate orally to treat a painful condition caused by the inflammation, breakdown and eventual loss of cartilage as seen in osteoarthritis. Current research demonstrates that the oral use of glucosamine sulfate may provide some pain relief for people with osteoarthritis of the knee, hip or spine. Early research suggests that oral use of glucosamine hydrochloride might reduce pain related to rheumatoid arthritis when compared with placebo, an inactive substance.

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    Bonus Benefit – Reduced Risk for Cardiovascular Disease

    Besides pain relief, a recent research study found that adding a glucosamine supplement to your diet may reduce your risk for cardiovascular disease and early death. In fact, it demonstrated that those who took the supplement regularly saw a 15% lower risk of overall cardiovascular disease and a 9% lower risk of stroke.

    3. Acupuncture

    Acupuncture is a popular Chinese-based medicine that involves the insertion of fine needles at strategic points on the body. There are several ways in which acupuncture potentially helps to decrease pain and promote tissue recovery. For example, it can signal the body to release pain moderating chemicals called endorphins and enkephalins, which increase blood flow to the tissue and bring in nutrients and oxygen to stimulate healing. After an acupuncture session, studies have shown that the body is more likely to be receptive to naturally occurring painkillers and chemicals that help to alleviate muscle tension or discomfort.

    Bonus Benefit – Better Sleep

    While acupuncture is often used to treat pain symptoms, it is commonly used for overall wellness, including evidence as an effective treatment for insomnia. This is especially noteworthy as quality sleep plays a vital role in both our physical and mental well-being.

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  • Honoring Mothers Who Face Chronic Pain

    Being a mom is tough enough. When chronic pain is thrown into the mix, it can seem downright impossible sometimes. That’s why there’s one day devoted entirely to finding ways to tell moms how much we appreciate them.

    Mothers who live with chronic pain have unique struggles that make everyday life a lot harder.

    Chronic pain can be limiting. For mothers with chronic pain, these limits can interfere with the small, everyday things that other moms take for granted. Changing a diaper, coloring a picture, or lifting a child into a carseat can become insurmountable tasks. Despite this, mothers who have chronic pain manage to find ways to make it work.

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    Sarah Willson describes the struggles she has caring for her daughter, stating:

    “I can’t push her stroller much farther than the three blocks between home and day care. I can’t dress her by myself, or tie her shoes. I can’t make the appropriate hand motions to accompany ‘Itsy Bitsy Spider,’ write out the alphabet, or brush her hair. But all that feels like mere window dressing for what I really can’t do: feel at all confident that I can take care of my child alone for more than an hour.”

    She also describes ways she’s found to make things work a little better. For instance, she’s made sure her toddler knows how to scoot down stairs and climb into her own stroller. While this doesn’t seem like much, it does mean that Sarah doesn’t have to carry her toddler down stairs or lift her into the stroller, which saves Sarah from a lot of pain.

    In addition to teaching kids how to be a little more independent, there are a few other ways to manage both motherhood and chronic pain, such as:

    • Planning ahead and resting before a tiring event
    • Pre-medicating when you know you’ll hurt later
    • Focusing on what you can do, instead of what you can’t
    • Identifying pain triggers that you can change, such as adding a cushion to a hard bleacher seat
    • Ask for help from friends and family if you need it

    Despite the challenges of being a mom with chronic pain, most mothers would still choose to feel pain themselves than have to watch their children live with chronic pain.

    Unfortunately, there are children who live with pain on a daily basis. Where children are concerned, one of the most important aspects of being a parent is to be an advocate for your own child. This is particularly important in children with chronic pain, since their pain tends to be poorly managed.

    Often this is because pediatric doctors focus more on finding the cause of the pain, rather than managing the pain, or because doctors aren’t experienced at treating children for chronic pain and are therefore unsure how to proceed. Other times, poor chronic pain management in children might be because children act differently when they’re in pain, which can make it difficult to tell when a child is hurting.

    Some of the signs that a child might be in pain include:

    Official pediatric pain programs aren’t too common. There are only about 30 to 40 hospitals nationwide that have pain programs for children. This is changing slowly, and there are researchers developing online programs for children with chronic pain who live in rural areas without a pain program. However, until these programs become more widespread and accessible, the most important thing any parent can do is be an advocate for his or her child. If you think your child is in pain or that his or her pain management program is insufficient, tell your physician.

    For mothers who live in a house with chronic pain – whether it’s their own or their children’s – finding that perfect Mother’s Day gift can be a challenge.

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    If a mother in your life lives with chronic pain, consider getting her something to help control that pain for Mother’s Day. If you are a mother living with chronic pain, then print off a webpage with what you want and leave it somewhere your partner or child will see it – or just treat yourself. A few possibilities include a supportive pillow or Kinesio Tape.

    You might also consider regular household items, chosen to be a little easier for those with chronic pain. An electric can opener, lighter dishes, or large-handled utensils make the kitchen a little less painful to work in. Long-handed tools of any sort can prevent the need to bend or twist, so look for long-handed dustpans, doggie pooper-scoopers, shower sponges, or even toilet paper holders. If there’s a particular daily activity that’s difficult, look for a tool or gadget that makes that activity easier. For instance, if putting on shoes or socks is hard, consider a sock aid or an extended-handle shoe horn.

    Covering mom’s chores is also always a winner. Cook dinner, vacuum, weed the garden, or clean the bathrooms for your mother. These types of jobs can be difficult and draining for anyone with a pain condition (or anyone’s who’s exhausted from caring for a child with a pain condition), so shouldering a little of the burden will certainly make life easier.

    Another possibility is an experience of some sort. Choose carefully; a person with painful knee joints won’t enjoy a walking tour of the museum much. Relaxing experiences like manicures or pedicures might be appreciated. Also, massage is a fantastic stress relief, and it can also help manage pain. A single massage, a subscription to a local massage parlor, or even an at-home massage might work wonders. If a mother in your life has been curious about trying yoga, acupuncture, or another type of alternate pain relief, get her a gift certificate to try it out.

    Speaking of gift certificates, some people may think they’re a bit on the impersonal side, but that’s not true. A carefully chosen gift certificate to somewhere you know she’ll love is one of the best gifts out there.

    If you yourself are a mom, spoil yourself a little. Splurge a little at your favorite store, go out for a day of pampering, take time to truly relax, or get that new gadget you’ve been wanting.

    And if you need someone to watch the kids while you go out (or while you and your spouse or partner celebrate Mother’s Day without the little ones), tell your own mother (or mother-in-law) that her gift is an afternoon with the grandkids. Pack a couple movies, some low-energy board games or puzzles, and a gift card to order pizza, and drop them off for an afternoon or evening with grandma.

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