Dear Fibromyalgia

Tag: chronic illness

Raise awareness about chronic illnesses by understanding their impact, symptoms, and the importance of support and education.

My Body negotiations: Someone with Chronic Diseases Negotiations

By: Dr. Alexa James

I spend a lot of time negotiating with my body as someone with multiple chronic illnesses. I feel I can’t go for days and I’m determined to never give up for days. The emotional range is wide. I was through all of them and I have a great deal of coping mechanisms. My inner dialog is one of them. It could be my enemy or my friend. I have a large number of approaches because I really like them. The day depends on which one I use and how much they torture me. Some examples are as follows:

Approach Tough Love:

“It’s true? Can’t you work as an ordinary body?!?! I know before that you did it! Halfway you were willing to do that. Why can’t you just do what I need to do rather than be so hard? I know how.” I know your know-how.

Approach to Nice:

“They’re hard, I know. It felt like nothing would want to survive, but this is something you can do. We had a rough week. Simply put one foot before the other. Come on.”

Approach to Negotiation:

“Come on, get up, take the shower, get it over. Then, for a few minutes, you can relax. Manage one small thing and I’m going to break you.

Bitter Approach:

“It is true? Can’t a shower just? You once could do TWO work, AND go to school, manage a social life, and don’t even have a little shower? What have you become?”

Empowering Approach:

“This you have! You’ve had a worse time. That shower you can take. Just get up and move forward! Every day, woman, you fight pain. Compared with operations and other things you have experienced, this is nothing. Give it a grip!! Get into that shower! Get into that shower!”

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The Approach I have Given up:

“You are pathetic. you are pathetic. That’s a DOWN JUST. Can’t wash, you couldn’t. How difficult is it? Aren’t you really trying to be meaningless? I don’t know why I bother but go into the shower, even if you’re now lame and weak. “I’m going through these negotiations, and more, on a very everyday basis. The latter is not something I really control. When I have all I can do to encourage myself, and feel like I have failed, that voice comes out.

It’s frustrating and emotional, so all these various scenarios continue in my head. I do my best to stay positive, but nobody can always be positive realistically. Many of the people with whom we interact daily can forget that chronic diseases are challenging. We fight with our bodies while trying to maintain the apparitions we cope with when we don’t.

It’s uncomfortable that we spend a good deal of time trying to determine whether it’s worth living so we try to hide it. We hide our tears of suffering, despair, anger, and frustration in order to make all the others all right. In my head, there is a constant internal dialog. It’s usually about trying to talk about how my body functions or trying to convince me that despite my feeling I’m not worthless. It sometimes persuades me that somebody deserves my patience and understanding. It’s an ever-changing ripple of emotions.

A typical day can go something like this:

At 3 am, when waking up, there seems to be no reason for ridiculous pain:

ME: (eyes opening through my body when pain shoots) “OW. Oh yes? That’s so, now, huh? BODY: “It’s safe. Well, good luck with that. “ME,” You’ve just been stuffing my hips with a big knife like someone? At 3 a.m. when I am just LAYING DOWN is this necessary? Can’t you just be glad to rest? “BODY:” Simply wait until you really feel it and just sit up there. Will be an enjoyable one. Muahahaha “ME:” Super. Much more. Thank you. Thank you. Enjoy this.

20 Minutes Later

BODY: “Now you are completely awake……” The room will now begin to spin. BODY:”……….” ME:’ Nothing? Fabulous.’ Do not comedies snarky? “BODY: Wait. I:” Ah, I see. Wait for it. Heat and severe nausea flashes. You’re finished yet? BODY: “Don’t really do. You haven’t learned I’m never finished yet? “I had been hopeful that we could only quickly get it over so I could move on.” BODY: “Pffft.” Hang it up for a while. Nope.-Nope. What’s the fun there? “It would certainly be more fun for ME to get through it quickly. BODY:’ Well………..’ ME:’……….’ I want to feel halfway normal rather than tortured.’

45 Minutes Later

BODY: “Hey. Hey. ‘ My goodbye? ‘” I: Oh, oh, oh? Have we now changed? BODY: “How cute. About Time.” You believe this change is going to like you. Oh, oh, oh!

Uncontrollable shaking while lying under four heavy blankets after at least 30 minutes non-stop:

BODY: “You’re having fun? BODY:” Hahahahaha. “Go away, I know.” I’m going to stop here. For the time being. “Too weak, too weak. Enjoy the aftermath.” Later I’m going to talk to you.

About an hour after passing out:

ME: “Is waking up still safe? BODY:” Perhaps. Perhaps not. Not perhaps. I: “You’re so precious. Try it and see.” Well, that knows? “I know. I know. BODY:” Normal pain so far. Will a catch be there? “BODY:” All right. ME: “Argh.” We’re going to see.

A few hours later when I have to get up and be productive:

BODY: “Whoa, whoa. What do you believe you’re doing?” Me: “I can’t go to the kitchen downstairs?” BODY: “Good, no. There was still nobody telling you to move. ME:” Hrmph. BODY: “Too bad.” I’ve got things I need to do.

An hour later:

ME: “I’m still able to move? It should be enough for three hours of rest. BODY: “I think it was all I did. But don’t get too excited. Don’t get too excited. “Oh well, thank you so much for your goodness.” BODY: “Would you like absolutely nothing to do today? You want nothing to do today at all? MY:”…….” Keep it up.

After it was placed in the kitchen and half the dishes were done:

BODY: “HOLDING!! This is sufficient of it. You’re trying to murder me?!?”I:” Thanks. A sink filled with dishes, I did like. This isn’t about killing you. BODY: “It’s, yes. That’s essentially nothing.” I’m no longer able to cooperate. The next dish you touch, I’m breaking. You know I’m going to do that. “ME:” Okay. BODY: “Shut up. Spaz.” BODY: “Lay down.” BODY: “Well, it would help if you would make stairs easier to get up.” BODY: “Ha! I’m tired.” You want the world! You want the world! Get over it! Get over it! I would say “Grrr” to Crawl if you must.

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Upstairs after the restoration to sleep:

BODY: “I don’t want to lay on that side.” ME: “I just might have said that instead of sending my left side piercing pain.” Me: * Eye roll * Funnier this way.

20 minutes later:

BODY: “There’s no longer I want to lay down.” Will you let me sit up and get sick? “BODY:” Now, you know that all that I can’t be. ME: “With whom exactly is the reputation? BODY: “So? You are living in my head. “It happened to you, what happened to me?’ You were only moderately hard. In your old age, you got so bitter? “I’m bitter, BODY:” Yes. Very bitter. -Very bitter. Now pay. ME: “Great.” Now pay for it.

About an hour later:

BODY: “Too long I left you alone! This is some more love. I: “No thanks. I don’t know. I’m all right that I’m neglected. Doesn’t need AAAAAA!! Are you?!? Do you want to move Right now a kidney stone? From nowhere?? I said: “Oh, you thought that I needed no rest since you gave me soo much sleep last night? I’m so bored and you looked like you were too peaceful!” I said. “BODY:” You could handle it, Nah. BODY: “Love you,”* a huge smile*, “I don’t like you.”

Four hours later (the kidney stone was fighting all the time):

ME: “Hey, what’s the pain up? BODY: “Well, the stone was a little stuck. It’s out of control.” All the tissue of the scar, you know. You will do something about it. “ME:” You kidding me? You guys kidding me? You began this, how did you deal with it?”I’d like to do more things than me.” BODY: “I’ve got better things to do.”

After a lot of water drinking & moving, two hours later:’ME:

BODY: “Oh, you got it taken care of at last?” “Finally.”I:” I do. I: BODY: “I don’t know about you, but I’m getting pretty tired. I don’t know about you. “Think it is time to get to bed. I think this is time to go to bed.” It’s just 6 pm and all day you gave me a tough time. I’m not going to sleep now anyway. BODY: “Sleep.” ME: “No.” I need a little time to recover.

This goes up and down until after fighting to keep my eyes open all the time I finally get into and go to bed. Then we usually start again with a number of medical problems and symptoms. I usually imagine the sarcastic kind of part of my body that has nothing better to do than harass me. It sounds crazy, I know, but, hey, we all have our mechanisms of coping. It’s a constant struggle of different degrees.

Some days are worse than others, but no days are really what someone used to be healthy would call “the good.” The majority of days are as described above, or I spend the day discussing with myself whether I go slip into bitterness or depression internally. In this series, I’m going into that a little more. Only the first installment. These are the real talks I’ve got in my mind. I decided to put them on paper since I also understand that others are fighting in a variety of ways with their internal dialogues.

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01/16/2020
If Doctors are breaking you off as they are unable to deal with you – Fibromyalgia Awareness

By: Dr. Alexa James

I watched one of my favorite TV shows recently, The Golden Girls. Though I saw the show hundreds of times, I really clicked and hit home this time to watch some episodes. The episodes I am talking about are known as “sick and fatigued,” if we know the show.

This two-part episode was a time of extreme exhaustion for Dorothy and a month of feeling sick. I know everything too well as fibromyalgia. That truly brought me to think. How many of us have had several doctors, appointments, and stories to endure?

How often were we brushed off and told to rest because the doctor could not find the root cause of our pain? How many times have we wondered and doubted that we might not be really sick?

The episode concentrates on the struggles of Dorothy trying to find a doctor who believes that she is sick and does not try to discard her disease because she is incomplete. It’s all in her head, she saw doctors, but she knows that she’s not good deep down. This has been addressed by all of us and continues to be addressed.

It’s not easy to have an invisible disease. We know something’s wrong, but how are you demonstrating it? There is no simple test or blood work to diagnose fibromyalgia or chronic fatigue.

The episode scene is all too well-known. We know we’re ill. We know we’re ill. It’s known to our family. They encourage and support us to seek assistance. (I know not everyone is fortunate, but I have an incredible support system like Dorothy.) Finally, after being finally diagnosed, Dorothy meets the doctor who dropped her out while she was in a restaurant dinner. Rose, Blanche, and Sophia took her ironically to dinner to finally be diagnosed with other doctors for chronic fatigue.

She could confront him and tell him she really is sick, and he was not professional nor helpful in dismissing her without any assistance. We are not all fortunate enough to confront those, particularly doctors, who doubt us.

The refusal to face an invisible disease is nearly as bad as our physical pain. Although the exhibition came out several years ago, for those of us who suffer it still is so powerful and helpful. Given the fact that many people question and doubt the pain and fatigue, TV shows are so helpful, and famous people like Lady Gaga and Morgan Freeman talk out to illustrate how serious and real these diseases are.

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01/16/2020
It’s hard to pretend to be OK – Chronic Illness Awareness

By: Dr. Alexa James

When people ask me what I am or what I am doing, generally my typical answer is the same, “I am OK,” or “I am good,” or “I am OK,” or, “We are all OK.” Without a second thought, we have conditioned this response. These reactions are so automatic that we don’t know any other answer. It’s just because I sometimes think “Hello, how are you going?”When you see the people, it’s so automated that our answer is the same, it’s automatic.

We don’t want to share how “actually” we are for many different reasons. Our family or friends wear no burden because I’m sorry to tell how we feel, the pain, fatigue, mental anxiety. We know we can’t stop talking once we start talking.

Or, even those we love do not want to hear it from previous discussions, do not feel confident of our suffering, or are simply guilty of our suffering. This is a condition that people have difficulty believing, so it’s everything in our heads. And when our healthcare community makes it even more difficult to take thoughts and feelings. And maybe some of us deny that we have a very misunderstood condition. For some reason what we’re doing is pretending to be “ok.” But it’s exhausting somewhere.

I tried to learn how to continue as’ normal’ a life as I can since I was diagnosed with fibromyalgia, chronic pain, chronic fatigue, and several other conditions. The tears that come when my body and brain tell me to slow down or end are hidden. I don’t show the physical or mental pain I have, and I try to participate in the activities. I keep pushing myself to prevent people from seeing me suffer. It is important for my family to be there because I participate. But it’s becoming more and more difficult to participate every day, week, month and I have to watch life happen. But I’m still trying to pretend it’s all right.

Whether it’s physically all right or mentally all right, it’s exhausting. Our fighting, we don’t want to show anybody. We don’t want to take pity on the people, or have you tried to listen to “cures” proposals that are endless? “If they know our condition, we don’t want to hear the negative voice of people. And in the case of our loved ones, we don’t want to burden and put our sufferings on their shoulders regardless of our support and our understanding of our struggles.

The chronic, invisible disease is an unfair hand we have to learn to live with. We have to struggle to find treatments to reduce our symptoms every day. But yet we keep hiding our struggle and keep fighting to pretend we’re all right. And for many of us, it makes us vulnerable to show our pain and struggles, and I do not like to feel vulnerable, let alone see it for anybody else.

“I’m okay,” because the key phrase my family has learned to mean now is “I’m not okay.” I must be more responsive in my house. I keep on smiling, hugging them, letting them love me. I’ve got to the point I’m not trying to hide my misery from them because they’ve learned to see me past trying to be all right.

Fortunately, I have a family that knows how I feel and supports me every day, as much as anyone can. However, my mask appears and my smile is painted on when I leave the walls of my secure room. At some point the goddamn will break, it will have a mental impact, we are swallowed up by exhaustion, and we have to grieve. We must take some time to “not be OK” for a little, and in some ways, it is a relief to allow ourselves to be OK and rid ourselves of pain.

So, while pretending to be all right can drain us, for whatever reason we’re going to continue to do that. However, I would encourage you to leave and be vulnerable once in a while. Practicing yourself as much as you can, have a good cry, indulge in something that makes you feel better. Take care of yourself, most of all. Keep on fighting for a better life, continue exploring therapies and treatments that can alleviate your sufferings. You mustn’t always pretend to be all right, because it’s frankly exhaustive.

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01/16/2020
What is Difference Between Irritable Bowel Syndrome and Carcinoid Syndrome?
Doctors are diagnosing metastatic carcinoid tumors (MCTs) increasingly better. Nevertheless, the varying symptoms of an MCT can sometimes lead to misdiagnosis and inappropriate care until it is discovered that a carcinoid tumor is behind these symptoms. Carcinoid tumors are often initially misdiagnosed as irritable bowel syndrome (IBS) or Crohn’s disease, or as a symptom of menopause in women, according to the National Organization for Rare Disorders.

Understanding the similarities between carcinoid syndrome symptoms and IBS will give you an idea of what disorder you may have and what you should ask your doctor to find out for sure.

Understanding MCTs Major Symptoms

Most carcinoid tumors do not cause symptoms, according to the American Family Physicist newspaper. A surgeon often discovers one of these tumors while performing surgery for another issue, such as acute pancreatitis, bowel blockage of a person, or reproductive tract diseases of a woman.

A variety of hormones that affect the body can be secreted by carcinoid tumors, the most important being serotonin. Increased serotonin in your body may stimulate your intestine, causing symptoms similar to IBS, particularly diarrhea. Some MCT-related symptoms include:
- muscle and joint aches
- wheezing
- flushing
- heart problems i.e. irregular heartbeats
- changes in lowering blood pressure
Because MCT-related diarrhea usually gets worse after a person eats foods that contain a substance called tyramine. Therefore wine, cheese, and chocolate are all products containing tyramine.

So over time, MCT-related abdominal symptoms may have additional harmful effects. However these include weight loss as stool moves through your intestines so rapidly that there is no space for your body to absorb nutrients. For similar reasons, dehydration and malnutrition can also occur.

Understanding Differences Between IBS and MCTs

It is easy to see how an MCT can be misdiagnosed as IBS, considering the symptoms of IBS. Some key factors, however, can lead a physician to suggest diagnostic tests for an MCT.

1^st is Age Diagnosis

While a person may develop IBS at any age, according to the Mayo Clinic, women under the age of 45 are most likely to be diagnosed with IBS. The average age of a person with an MCT, on the other hand, starts to see signs between 50 and 60.

2^nd is Flushing Wheezing Breathing Issue

So a person with an MCT may experience wheezing and diarrhea as well as chalk these symptoms to various problems. Because they may, blame a cold for wheezing and IBS for their diarrhea. Therefore the symptoms associated with MCTs, however, are not always based on one process in the body of a person.

Therefore knowing this, it is important that you explain to your doctor all the unusual symptoms that you have experienced, even if they do not appear to be related. For example, if you have experienced diarrhea as well as flushing, wheezing, or general breathing difficulty, so you should share it. Because in general, in 58 percent of those with an MCT, diarrhea and flushing occur simultaneously.

3^rd is Weight Loss

While a person with IBS may experience weight loss due to their diarrhea, with MCTs or another more serious disorder this symptom is more likely to occur. Weight loss is known as a “red flag sign” although, according to the research, the underlying cause is not IBS.

Understanding Continued Abdominal Symptoms

Often people with MCT will experience different abdominal symptoms without a diagnosis for many years. Because if your symptoms have not responded to treatment or appear to only improve with the removal of tyramine-containing substances from your diet, this may be a signal to ask your doctor to continue digging.

Types of MCT diagnostic tests include:
- therefore test the urine for 24 hours for 5-HIAA, a body by-product which breaks down serotonin
- however check your blood for compound chromogranin-A
- so use imaging scans, such as CT scans and MRI scans, to determine the possible location of MCT.
Giving’s

Therefore the average time from the start to diagnosis of MCT symptoms is 9 years Trusted Source. So while this seems to be a very long time, this shows how hard it can be to identify an MCT, and sometimes frustrating it can be.

However if you have symptoms that go beyond diarrhea, talk with your doctor about doing MCT research. Because most people with MCT do not seek treatment until the tumor has spread and begins to cause further symptoms. So if you take steps early on for additional tests or your doctor identifies MCT, they may be able to remove the tumor and prevent it from spreading.

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12/17/2019
Things in your Chronic Survival Pack You Should have

By: Dr Alex Robber

A Chronic Pain survivor shared us these related details to chronic survival pack. In the event of an emergency, we asked people to add items to the list containing few items which all should keep in their pack. Their ideas and needs were brought up.

This is the community that shares this with us:

1. Every physician has their own website and I stick the card at the bottom right-hand corner instead of a doctors ‘ card or ER, and the correct corner of the bottom left-hand corner is where the physician is (I hold this book for my wife and daughter too) and at the top of the page I have a doctor’s details and a Fax. The addresses, first appointment, therapy and next plan option are also mentioned. I’ve also mentioned my husband’s medicine in my medicine and so hot and farms that we have medical problems. Next book is the Journal for lower dollars. I follow up my strange periods and see my gynecologist therein. I’m taking all those books! I didn’t mention my schedule

2. A coke syrup bottle operates for nausea ten times better. Dissolve faster and enter the blood system faster in place of the snack a bottle of glucose tabs. For absence of moisture and eyes mask to rest if my eyes are too light-sensitive, I’d add humidifying lip baffles and eye drops.

3. A nice massage balsam for painful muscles (such as arnica or natural menthol). I would take Gatorade or Pedialyte instead of simple water, so that I can maintain my electrolytes and maintain them hydrated.

4. A notice to inform anyone that discovers me about my medical alert bracelet and contact with an emergency

5. Pee spritz pads, tissue to handle the permanent emotional ring and, of course, some dark chocolate to soothe my soul.

6. Carmex all the time for dry lips.

7. Additional t-shirts, bra and underwear

8. Sun glasses, Vicadin tissues and heat pack.

9. Knee 2 bandages, bracelets and eye pain lenses

10. Tissue, sunblock, large sarong scarf, hat, eye drops and clothes changing.

11. Add to the list: the toilet paper, wipes, ass cream, spray in a room, adult clothes, a pair of underwear, leggings or other cute trousers, baskets (to disposal of mess), socks, hand sanitizer, bottle of acetaminophen.

12. I have big make-up bags in my working bag, with plasters, painkillers, waterproof toilet wipes, deodorants, perfumes, makeup, fog, hand gel, bobbles, hairbrush, telephone, eBook loader, keys to the disabled toilet important, card with my ICE data, and a diary. I didn’t bring my survival bag to hospital on Wednesday, because I had to remain in and out the same day, but my phone was dead, and the lessons I learned from it! I did not bring my survival bag with me.

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13. I got a fan powered by the battery that I always keep with me. All the time I get hot and cant. For me, it’s a need. My inhalers and oxygen. Water ice, my walker, a sprinkle of a dry mouth. Band helps because I bleed on my arms readily.

14. Wet wipes, emergency medicine, day medicines, dry shampoo, make up, eye drops, toothpaste, toothbrush, light weight long sleeve shirt, leggings, comb, brush, charger, tissues, gum, Gatorade, water, sunglasses, glasses, salt tabs, glucose tabs, pulse ox, saline, heparin, lotion, band aids, deodorant, hair ties, magazine, word search, nail clippers, heating pad, q tips, tampons, cottonseed wipes, mouthwash, hand sanitize, notebook, colored pencils, crayons, and whatever else I can think of. My bad things normally remain in my vehicle or bed because every 8 weeks, I end up in the hospital, like clockwork.

15. Patches in the tiger balm, aids in the group, medicines, heart burn / gas chewing, sun glasses, deodorants, sweat shirt, bottle of fibromyalgia cream and a book. I’ve got EDS and everything in me can be much easier. I’m using a big bag.

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References:

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Official Fibromyalgia Blogs

Click here to Get the latest Chronic illness Updates

Fibromyalgia Stores

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09/26/2019
When Struggles of Chronic Pain Many Small Issues Become Big

By: Dr Alex Robber

We pass hundreds or thousands of tiny, tiny movements every day in our daily lives. Then probably don’t even believe about most of that. Therefore we have natural instincts and reflexes. We have duties and duties every day. We’re working, we’re playing, we’re training. We inhale, we blink, we exhale. In the morning, we wake up and stretch to face another day before going out of our bed. At night (or at midday because the naps are awesome) we go to bed. We dream, we’re ramming, we are rummaging. As a human race, we tend to be obvious.

Some individuals face a much larger challenge with these tiny, tiny assignments. People with chronic pain face day-to-day problems that can be seen by other individuals as natural and secondary. A easy act like sleeping can be torturing for someone with chronic pain. Sleeplessness, not able to get somewhat comfortable. Anger and disappointment. The exhaustion physical, mental and emotional. The morning stretch of life or death for people with chronic pain can be joyful and refreshing for somebody. The unknown whether it is a momentary relief or a major spasm for the muscles.

It becomes stressful and tiring to undertake simple, needed duties. For instance, you must shower and wash your hair. In general, this is rather fast and simple. However, it can take 2 to 3 times as long to attempt to decrease and minimize pain for others because of the slow, meticulous movements. Slowly shampoo and take a break before setting up. For women (or men, 2019, I don’t judge), you might have the feeling that shaving your legs is an octopus with eight arms to shave instead of two. Another daunting job is to dry and style hair after showering. Sometimes (all right, most of the moment) you sit in a towel for an hour in your bed attempting to work the energy and mind on it. “It might be simpler, frankly, to shave your head some days.

We live in an internet shopping globe, but there are still grocery stores and deals. Some individuals (like me), love (or love) shopping for groceries. Cycle around the shop, check the sales, decide what you want to eat for the week, and, above all, people watch Sunday morning are fun. Finding unforeseen treatments and surprises. Now, the surprises are the rapid onset of pain and the feeling that in the center of the cereal aisle you need a nap. Once you have performed shopping and lastly get home, you must bring food into the house. Yikes. As if it wasn’t enough to drag you to the checkout? Some of us were one of the trippers (and still attempt to be). Load your arms up like a mule pack and refuse to return to the vehicle for a second journey. Well, if chronic pain at best is mediocre, that’s not the cleverest concept. One trip, turns into two trips, turns into three trips, turns into “Well, I’m just going to get the bottles of seltzer one by one, as I want it.” (I’m not renowned for my intelligent thoughts.

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Cleaning off. We all need a clean house and appreciate it, right? What about smooth dresses? I live alone and take care of my wellbeing. (My maid is on a long holiday), I really liked to get up Saturday morning, make some French press coffee, play music, clean my house and laundry. I like my life. This has produced chronic pain much less pleasant. I’m very lucky to have “excellent” days (the good day is a day where my pain is 6-8 rather than 10). Many of the individuals with chronic pain are not happy, and I take none of those days as a matter of course. Rather than clean all in one day, I make the minimum possible and avoid having family or friends. I’m doing one space at a moment and one item.

The bathroom, for instance. I’m going to wash the toilet, pause. Take a break, clean the sink, shower and then take a nap, Sweep, Swiffer. That goes from one space to another. I do not make it through a space for many days. My bad cat. An easy scoop of the box can ruin my arms and back completely. The bad thing has been about a complete box many days, but bless your little heart, never knocked on the ground (kindly knock everybody on all the wood right now, thank you!).

It is a Process, so my laundry is in the cellar. Please fill my basket, carry it, bend down to the washer, get back to my apartment. Go back to the cellar and bend down to the dryer and go upstairs again. And then a last trip down to the basket to load it up and go back to my home. Really, all that is going to happen is a load of laundry per day. You joke, too, if you believe it will be folded down and packed in 10-14 working days. (I’ll admit it’s mid-March, too, and I can still see all my Christmas decoration, including my artificial tree.

There are a few days when you have difficultly tying your shoes, placing your skin into a pony tail and zipping your jacket. Other easy stupid items that I have, and other individuals who have chronic soreness are struggling with (the day I tried to break a cold beer after a lengthy day was a sad day). Dinner is a voyage to cook. From the planning, preparation, execution and food. It’s tiring to stand, stir, and flip. Dishes, if you haven’t got a washing machine? Ha. Ha. The same day won’t occur. It’s awkward, because it’s frustrating. You may see this trend at this time. You have patience and understanding for the people who don’t suffer with chronic pain. Don’t give up if you have chronic pain. Don’t get on yourself. You are not alone.

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References:

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09/20/2019
Whose Wife has a Chronic illness and Fibro disease Advice for her husband

By: Dr Alex Robber

Well, here we are, it’s not only life, I know it has changed. We are now on a fresh trip, not an exciting, but rather a mountain trip with a host of pit stops and detours. There are therefore a few things you should understand about going on this trip that can facilitate your dealings with me. I have a chronic disease, as you understand, and for one of us life will never be the same.

You can’t see a disease, but you can see me fighting. You can feel it’s not a disease, but my pain you see. You might see my frustration, it is not a disease. It will never be the same thing, but for the sake of our family, I can try to keep them as’ normal’ as possible. So how can I clarify completely the difficulties ahead? I want you to understand many elements of chronic disease so we will begin at the beginning and I will explain my utmost so that you know completely what this trip will be. There are many places that can be covered so that it will be a bumpy ride.

So how does fibromyalgia mean this thing? Well, there are so many theories and definitions of which all sorts of networks sound totally confusing and some definitions don’t make sense, while others make it look like a group of diseases without any true significance or diagnosis. I have this “situation” first and foremost, which impacts how I react to pain. The fun part, maybe every day, so one day I’m painful in my joints and another day I’m shooting pains in my legs. Let’s begin with pain, therefore.

My pain could vary from one day to the next and even an hour to the next. Sometimes it can be difficult for me to tell you what hurts and how hurts, but I understand that it’s very awkward and hurts. The “best” days are the days I’m trying hard to keep the house clean and functional daily. I am also trying to address the other projects that are continuing to add up.

Typically, these are the days I go well beyond my boundaries, so I understand I may be down for a couple of days if I’ve had an active day and loads of projects completed. During those days I have severe pain, I spend most of it in the sofa, bed or chair to get comfortable.

These are the days when laundry, food, cleaning and cooking are to be waited for, or I’m going to need assistance. These are probably the days that many tears are thrown away. Painful tears, tears of sadness, frustration tears and knowing tears I let myself down with my family. But you understand those tears, as I learned, and are always ready to comfort me. You understand that this is one of my most sensitive moments and you have given me the best way to cope with it, even if that means I must lose another family.

I can also have much anxiety and stress during those times / days of pain. But, as I have learned, not everyone expresses stress and anxiety in the same manner or in the typical manner many individuals believe, especially anxiety. When they hear anxiety or anxiety attacks, most individuals imagine individuals sitting in the corner, bogged down in an up and down ball while wiggling a bunch of gibbers.

Well, in many distinct ways, anxiety can be voiced or proved, most of which I learned from myself. In my opinion, the most prevalent forms of showing anxiety are anger and frustration. Simple things only make me so frustrated, angry and crab bound that I’m so calm, gathered and good, no matter how hard I attempt; I end up snapping on all and anything, leading to battles, arguments and just uncomfortable for all. As much as I attempt to remain calm and collected, it only seems that little things push my buttons and upset me.

I can’t assist it most of the way, however, because physically I’m so discomfort able that sometimes it only takes a specific look to drive me insane! Please understand, I’m so very difficult to let things roll out my back and not cause me stress or anxiety. I am trying so hard to maintain it and I don’t allow things to bother me, but I know that I can’t maintain everything in it sometime and that it is bound to splash like Mount Vesuvius!

You also learned that when I talk to you or others, it sometimes appears that I spray in my mouth, speak quickly, and don’t make much sense sometimes, this is also a way I experience and communicate fear. I attempt to breathe deeply, maintain my answers even, calm and gathered, but yes, an easy discussion can sometimes send out my fear in a punch.

They are not the individuals I talk about that cause me stress or anxiety, but only the overall conversation that can fly my anxiety meter. Socializing can be very hard if I’m in the middle of that anxiety. Sometimes because of increased pain and anxiety I’ll have to miss family gatherings or parties, but please know that I don’t make a conscious decision.

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But now this has a great impact on my life and the way I live it, and yet you seem to know always when I really must have a “time-out” to collect and concentrate and soothe the chaos that goes on in my head. I don’t want to get out of it, or to let it all dictate my life. In all this, tiredness is the other significant player. The best description of my tiredness is that his tiredness, which doesn’t assist much sleep. That’s so true. Self-delusion creates tiredness. Now add stress, anxiety, depression, and chronic fatigue syndrome to that and sometimes it’s even the greatest job I can do all week long to take a shower!

The tiredness caused by the chronic disease is so tired that you feel you haven’t slept for one week yet all the assignments you generally perform on a periodic basis must be continued. All our other symptoms can be encountered by fatigue alone, quadrupling what it “standard.”

Additionally, add the insomnia or different sleep patterns of the people suffering from chronic illness. Yes, literally all the moment we are tired. If we say that we’re “distressed,” it’s not only that we have a poor sleep night, it’s that we are so tired in some days that even the little job is going to drip all the reserves we have. And again, when my last “spoon” has been dumped, you appear to understand and encourage me to rest.

Unemployment now also belongs to our vocabulary and reality. I am also now a large problem in our life not being willing to contribute to our financial plan. It creates pressure for both of us to look to our future. Things are no longer so available, and priorities have shifted as they used to be. However, you still support me and assure me that we will survive with all that added to what we are discussing today.

We’re going to have to say no to more than we say yes, but we’re going to create it function. You keep me in and allow me to understand that I must be still proud of the tasks that I have achieved but comfort me in understanding, as far as I can see, that things will be quite different and that I have nothing to do in order to remedy them.

It seems that I always complain, all the moment, of things that disturb me, of the pain, of the fatigue, but you’re still here to hold my hand, to rub my shoulders and to encourage me to continue fighting. When we have this situation, if we or a wife or family member, everything we have to offer seems to be accepted. But it’s the best gift you need to support me.

Patience is a virtue; convenience is a gift, and both comprehension and empathy are genuinely unusual things. But fortunately, you’ve got everything for me. Your skill in understanding me, be patient with my constraints and console me in my darkest moments, regardless of what our tale has planned. And it has allowed me to continue persevering. Day after day, the best I can do is even hour by hour.

But you will be the best gift you can offer me, knowing that life will be different for us and able to adjust to what we have now, and kindly remain patient and understanding and concerned for what our new truth may be. And thank you above all for understanding that this is a lawful diagnosis. That is your love and support in this crazy world. I will do my utmost but appreciate your assistance in this effort!

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For More Information Related to Fibromyalgia Visit below sites:

References:

Fibromyalgia Contact Us Directly

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Official Fibromyalgia Blogs

Click here to Get the latest Chronic illness Updates

Fibromyalgia Stores

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09/16/2019
Lady Gaga Pissed by People who don’t Believe her Chronic Illness is Real
By: Dr Alex Robber

People are Having a Hard Period to Believe that Famous Lady Gaga is suffered from a painful and Misdiagnosed Disease.

After the interview confession of lady Gaga that she is painfulness and struggling from the rarified familiar disease Fibromyalgia, the group are not believing her and criticizing her which makes her much spirited and annoyed from them.

The Popular American superstar and pop vocalist singer Stefani Joanne Angelina Germanotta, well known as Lady Gaga, revealed conclusion previous year almost her chronic pain struggling with fibromyalgia, the disease accountable for mood swings, terrible muscular hurting, exhaustion, colorless memory and many more symptoms etc.

‘Did you know that Lady Gaga receiving eager reviews for her starring persona in the remake of “a Star is Born” which is co-starred and directed by Bradly Cooper. Seemingly, she seems healthy and fit growing as she was too busy for promoting their show, but she just canceled her most important tour of Europe because of her painful conditions due to fibromyalgia.

What is Fibromyalgia?

Fibromyalgia or fibromyalgia syndrome (FM) is a prolonged condition in which the sufferer feels pain in an entire body, failing, stiffness in muscles, memory loss in psychic processes such as depression or a stress and sleeping disorders. The patient feels divers types of headaches suchlike migraine, full head or back head pain etc., also both may study with IBS – irritable bowel syndrome in which stomach aches or bloating tough. Fibromyalgia is a long-term statement, sometimes difficult to understandable due to standard symptoms of other diseases.

There is no such proper treatment is observed for fibromyalgia, but treating the symptoms separately relieves the different chronic pains to some extent that makes a patient secure and take out of stress and depression. Few combinations are regular to the sufferers specified as,
- Medication: Prescribed (medicine) painkillers and antidepressants.
- Therapies: Proper counseling and CBT (Cognitive Behavioral Therapy).
- Lifestyle Mode: muscles relaxation techniques and regular effective exercises.
Lady Gaga and Fibromyalgia

Lady Gaga described how worse her term got due to forceful pain and mental depression and her painful struggled which was becoming worse and worse for her. She has expectations from people to understand her conditions and pain because an uncomplaining patient of fibromyalgia gets so much stress and depression takes in his life. A fibromyalgia patient needs to love and mindful lines from others to give them a relieve. That one day someone will understand them and help him to get out of this stress and depression.

In Oct 2018, one of the most popular interviews is conducted with Lady Gaga in which she clearly tells that she feels so much irritation when people will not understand her condition and not to believe that fibromyalgia is exists. She said for her and the else sufferers the disease is similar a cyclone of Post-Traumatic Show Upset, anxiety, slump, fear, depression and trauma which apply one’s nervous system and causes of her nerve pain.

Moreover, she aforementioned “People ought to be a lot of compassionate, chronic pain is not any Joke. And it’s regular wakening not learned however you’re attained to seem.”

Chronic Pain is not a Joke any more:

In 2014 Lady Gaga joint the traumatizing and disturbing life event from which has departed through in her old teens. According to her, she got raped and that’s results are horrible, and she is still in her shocking state of mind because of which she became a tolerant of Post-Traumatic Disorder. In the converse, Lady Gaga revealed her emotions and poured her heart out and said that by sharing specified object to the public helped her to discharge anxiety and stress which helped her to recover from those traumas.

In her interview, she described her panic fear by admitting that she proved to bury her memory and get out of this life-taking stress, but she could not do it alone she needs your help to get out of this trauma that is the reasons she needs your care.

Lady Gaga also uttered that for her, the start of her mental issues begins when she got the chronic pain and she is trying to hide this illness from the world because she only knew that in such disease and nobody knows how much painful fibromyalgia is. Then in his interview she is decided that everyone nearly having PTSD as do not require to hide and suffer it alone as she already pains a lot.

Lady Gaga Stunned or Stunted:

Lady Gaga also distributed the presents scenarios and the evils she eases dealing with a word of energetic physical traumas. Gaga said that she feels “stupid or stunted”. She gave best of her example of a roller coaster that how to feels when it goes physician from a steep angle, the fear and pain regulates the entire body at a time. Pop Performer said her life shut down at those moments when she goes into painful illness. She said she begins to cry when she was enabled to breath properly, and her body went into a vibration.

She expressed, “That’s what it feels equal for trauma victims every day, and it’s…dramatic. I ever say that trauma has a brain. And it totality its way into everything that you do.”

Now, Lady Gaga is describing that she is feeling recoverable and better day by day as she has major doctors who took assist of her and getting her “Show-ready”

https://www.teepublic.com/stores/fibromyalgia-store

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For More Information Related to Fibromyalgia Visit below sites:

References:

Fibromyalgia Contact Us Directly

Click here to Contact us Directly on Inbox

Official Fibromyalgia Blogs

Click here to Get the latest Chronic illness Updates

Fibromyalgia Stores

Click here to Visit Fibromyalgia Store
08/06/2019