Dear Fibromyalgia

Tag: chronic illness

Raise awareness about chronic illnesses by understanding their impact, symptoms, and the importance of support and education.

  • The Emotional And Physical Toll Of Raising A Child With Mental Illness

    The Emotional And Physical Toll Of Raising A Child With Mental Illness

    Staring down at my beautiful new son I am filled with love, so much love. I practically imagine his whole life in front of me. How wonderful his life is going to be and how happy we all will be together. I’m not sure if everyone feels this way when they first see their newborn baby or if it’s just me. I don’t care though; I have a son and I am on cloud nine! Little do I know what is in store for me and how hard my life is about to get. I wish the me today could warn the me back then. Buckle up because here we go…

    My Special Son

    I always thought my son was special, I just didn’t know how special. I think all parents would agree you never want anything to be wrong with your child. You want to always keep them healthy and safe and you do all you can to accomplish that. I did everything I could to keep him healthy, safe and thriving. Sometimes though, there are things that are just out of your control. It isn’t anyone’s fault. (My son has given his permission and blessing for this post)

    The BackStory

    First of all, I want to say writing this has been very difficult. This is the first time that I am truly talking about this publicly as I always try to respect my son’s privacy. I also feel like we need to break down the barriers surrounding mental illness and make it something we can talk about. So, I decided to make this sacrifice in hopes it will help at least one person in the situation.

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    Getting A Diagnosis

    My son was always kind of demanding and he threw tantrums frequently. After he was asked to leave his second preschool, I knew I had to get some help. What was wrong with my toddler? I thought for a while this is what it is like to have a boy. They get hurt, break things and have a lot of energy, right? I’ll never forget the day in his psychologist’s office when I was told, “I think your son has bi-polar disorder.” I of course am in shock – he is only three years old – how can you know that?

    I felt punched in the gut. So many questions…What does this mean? What do we do? I had no idea what was coming, and I wasn’t ready. All I was thinking about was how to protect my son and how to help him. I wasn’t thinking about my own health or taking care of myself. My husband and I decided we didn’t want to put him on medication if we didn’t need to, instead we went ahead and kept him in therapy.

    The Day That Changed Everything

    Then one day he comes up to me with a knife and says he wants to kill himself. A piece inside of me starts to die in that moment and I didn’t realize at the time how I would never be the same again and neither would he. I decided not to hospitalize my toddler.

    The anxiety of not knowing what would happen to him in my absence was too overwhelming. Instead we opted for medicine. Looking back, I’m still not sure what the right decision could have been. If you ask my son, it wasn’t the medication. He will go on to always resent the fact that his childhood is a haze because he was always on some kind of drug.

    I don’t know if I can put into words the years of struggle that will follow this, but I will try. What I do know is that watching your child suffer like I have watched my son suffer, is the most excruciating feeling in the world. He ends up going through countless assessments, many different psychiatrists and therapists for years. He was unable to handle a regular classroom, so he began kindergarten in special education with other emotionally disturbed children. That whole experience is a whole different story.

    For me, this time period is filled with working full-time and getting him to his appointments. This means keeping track of side effects, symptoms, past medications. In fact, in order to keep it all straight, I had a huge binder.

    The Tears and Tantrums

    The tantrums that my son experienced were the worst I have ever seen. He would completely demolish his bedroom, even turning his mattress on its side. Often, I would have to get behind him and hold him down to get him to come out of his rage. This would result in me accidentally getting hurt often, not to mention the amount of energy it would take to hold him. I might have forgotten to mention, from the moment my son was born he was a large child. His whole life he has been bigger than everyone and looked older than he was – which didn’t help the situation. Currently he is 6 ft. 8 in. tall! These moments add up and begin to take a toll on my emotional and physical health.

    To add insult to injury the mental health professionals would change his diagnosis all the time. I think that was hard because you want to put a name to it. But we were told that wasn’t important. It was more important to “treat the symptoms.” That left me feeling very alone and lost. I didn’t know who to look to for support or what to Google on the internet. Was I making the right decisions for my son? That question still lingers to this day and continues with my younger son as well.

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    Mama Bear

    Raising a child with a mental illness is probably the hardest thing I have ever had to do. I have made so many mistakes and learned so much. What I learned most is how strong I am and how strong he can be. I think all that he and I have been through together has solidified our bond that we made that very first day we laid eyes on each other. He knows I will do anything for him. I have proven that over and over by fighting for his rights and advocating for his education. I have had to make very, very hard heartbreaking decisions that he may never forgive me for. However, I know he knows that they were made out of love and the fierce protection that I will always have for him.

    There is such a stigma on mental illness that for a long time I was afraid to talk about my son’s illness. I can’t tell you how alone I felt. I didn’t know about social media until he was already mostly grown. Not to mention the fact that I am very protective of his privacy. I will say though, that he had a handful of therapists that were my saving grace. They helped me be a better mom and reminded me how I was doing an awesome job. Those kinds of talks are what kept me going.

    The Emotional and Physical Toll on Me

    Anyone with fibromyalgia knows how bad symptoms get when you don’t manage your stress. It could be that the years of stress my body went through left me susceptible to fibromyalgia. I didn’t ask for help enough and I didn’t use coping mechanisms to protect myself. Often, I was blamed for his behaviors. I was told my parenting was to blame. Believe me I didn’t need anyone making me feel guilty. I already felt like a horrible mother, in way over my head. Overwhelmed and exhausted. I don’t blame my son; I blame me for not taking better care of myself while trying to take care of him. If I could go back and tell myself anything it would be this:

    “Take time to take care of you. Be consistent in your discipline and your love with your son and yourself. Forgive him for what he does and forgive yourself because you are doing a great job! “

    Not Alone Now

    I am opening up about this because I know I’m not the only one that has gone through this. No one wants to feel alone. I also think it is a really good lesson in how we need to prioritize self-care when caring for others. If your child becomes ill with a physical illness, you reach out for support. When your child becomes ill with a mental illness society tends to tell you to keep that to yourself. That is ridiculous and we need to change it. Conversations like this is how we do that. I am proud of my son! It is not his fault that he has mental illness and in fact, because of his illness he is a stronger, more insightful person than I could have hoped for. I encourage you to share in the comments if you have gone through parenting a child with mental illness.

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    References:

    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

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  • Big battles because of chronic pain when little things happen

    Big battles because of chronic pain when little things happen

    By: Dr. Alexa James

    We experience hundreds, thousands and hundreds of tiny movements every day in our everyday lives. We probably don’t even think about most of that. We have natural instincts and reflexes. We have tasks and tasks every day. We’re working, we’re playing, we’re training. We are breathing in, we are exhaling. Even before we get out of bed we wake up in the morning and spend another day facing. In the night (or in the middle of the day, because we sleep wonderfully). We’re dreaming, we are rummaging, we are drooling. As a human being we tend to be very self-evident.

    Some people face a much bigger challenge in these small, tiny tasks. People who have chronic pain face daily problems that can be seen as natural and second nature by other people. A simple act like sleeping can be torturous for someone with chronic pain. Sleeplessness, not able to be somewhat comfortable. Furiousness and frustration. The exhaustion of the physics, mind and emotion. It can be life or death for someone suffering from chronic pain the morning that some people find happy and refreshing. Whether it provides temporary relief or throws muscles into a bigger spasm is unknown.

    Simple, necessary tasks are becoming stressful and complicated. For example, you have to shower and wash your hair. This is usually relatively fast and easy. However, due to slow, meticulous movements for other people it can take two or three times as long to try to minimize pain. Slowly shampooing, before taking a break. For women, shaving your legs (or men, this is the year 2019, I don’t judge) can feel like you are an eight-leg shaving pulser instead of 2. Blow drying and hair styling is another daunting job after showering. Sometimes (all right, most of the time) you sit in a towel for one hour on your bed, trying to get the power and the mind to continue. It might just be easier to shave your head some days, honestly.

    We live in a world of shopping online, but there are still grocery stores and orders. Some people love (or love) food shopping (like me). Walk around the shop, check out sales, decide what to eat for the week and, above all, people who watch make Sunday morning fun. Finding unforeseen treatments and surprises. The surprises here are the rapid appearance of pain and the feeling of having a nap on the center of the cereal aisle. You have to take the groceries to your house once shopping is done and you finally make it home.

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    Yikes. As if it wasn’t enough to drag you to the checkout? Some of us were one tripper (and always tried to be). Load your arms like a pack mule and refuse to return to the car for a second time. Well, the smartest idea is not when chronic pain is mediocre at best. One trip, turns into two trips, turns into three trips, turns into “What I want, I’ll just take one after the other out the cans of Seltzer.” (I’m not known for my clever thoughts…).

    Cleaning. Oof. We all need a clean house and enjoy it, right? Clean clothes and clean? I’m living alone myself, so every job and care for my overall well-being is over me. I always enjoy standing up on a Saturday morning, coffeeing a French press, sprinkling music and cleaning my apartment and washing laundry. This is not very pleasant with chronic pain. I have “good” days (a good day is a day when my pain is at 6-8 instead of a constant 10).  Many people with chronic pain are not so fortunate, and none of these days are acknowledged to me. Rather than clean it all in a single day, I do my best to keep my friends or family away. One room, and one object at a time, I do it.

    The bathroom, for instance. Take a break, I’m going to clean the toilet. Take a break, purify the sink. Take a break, clean the shower. Take a nap, Sweep and Swiffer. This goes from one room to another. I barely make it across a room for many days. My poor cat. A simple litter box scoop can destroy my arms and back completely. Poor thing has been dealing with a full box for many days, but bless her little heart never got stuffed on the floor (all of them knocking in the wood now, please. Thank you!).

    It is a PROCESS; my washing room is in the basement. Fill my basket, carry it, bend down to the laundry, return to my apartment. Go back to the cellar and bend down to a dryer and go upstairs. And finally, one last trip back to my apartment to load the basket up and return. Really, all that happens is a load of washing one day. And if you think it will be folded and packed in 10-14 working days you will joke. Other simple stuff that I, and others with chronic pain, fight with cans, and bottles (the day I fought to crack open a cold beer after a long day was a sad, sad day.) Day after day, tying shoes, putting your hair in the middle, I’ll admit it was mid-March and all my festivals, including the artificial tree, are still up. Dinner for cooking is a trip. From planning, preparation, execution to food. It is exhausting to stand, to stir and to pivot. Dishes, if you have no washing machine? Ha. Hey. That same day won’t happen. It’s awkward because it’s frustrating.

    Probably now you can see the trend. Do not be patient or understanding if you don’t suffer from chronic pain. Don’t give up if you have chronic pain. Don’t get on yourself. Don’t get on yourself. You are not alone.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

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  • So much more than just pain is Chronic Pain

    So much more than just pain is Chronic Pain

    By: Dr Alexa James

    Very often, people do not understand what Fibromyalgia is like, and other chronic, invisible diseases that cause chronic pain. In their lives they have experienced constant pain, so many have somehow, but they have never had to deal with long-term pain. I tried to search for the “official” pain labels for different pain types I felt but could not find a label with a proper description for them all. I found technical descriptions and patient descriptions sometimes, but nothing entirely correct.

    Chronic pain differs greatly from the average pain. It can vary from mild to severe, but it can be more difficult to treat the mildest chronic pain long term than the severe acute or short-lived pain. It constantly stalks you until you cry, weep and are desperate for relief–making even the simplest task a serious fight. We celebrate some days just getting it from our bed to our couch, because that day is really so difficult to do. The pain probably prevented a relaxing sleep and does not forget all the other symptoms that are accompanied by these diseases.

    The list is long, with extreme fatigue, nausea, cognitive problems, migraines, light sensitivity, sound, smells, contact and motion. The pain is also not a single type of pain. It’d be too easy, I suppose. No, many forms of pain are accepted. Multiple forms are often used simultaneously. It’s a blow… read this with as much sarcasm as you can, because it definitely doesn’t have any fun at all.

    The following kinds of pain seem common to our condition by feeling my own pain and interviews with others with Fibromyalgia:

    Musculoskeletal pain:

    Feeling like a deep, ache and flu-free feelings, sometimes for weeks, or months, at once, crawling through my body.

    Pain of the nerves:

    I wrote it in advance, and the pain of the devil is the nerves again. It’s torturous, so you can feel crazy because your body is on fire, you’ll swear. The worst pain you can imagine is stabbing, itching and burning. Like burning on a red-hot metal piece, but can’t do anything to calm it down. In order to persuade myself to NOT fire, I always look at whatever part of the body it happens. It’s a mental trick of some kind.

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    Pain of pressure:

    my own label, since I still have to find a proper “official” label. Two different forms can be used. You can feel that one man is sitting on a semi-truck all over my body, and then running over for a couple of times. You feel weighed, almost incapable of moving, just like your body is held down. The second type appears randomly, apparently wherever it wants, like a flow pierced you suddenly. It is usually in a round spot of two “-four, “and the pulses are deep, but sharp and stirred pain for 4 to 20 minutes, everywhere. After a while it goes away and leaves behind a strange ache.

    Joint pain:

    This type of pain, whether caused by general aging or arthritis, is already known to many. It may feel like a sharp jab in your joint or a deep ache in the joint bone.

    Inflammation:

    I include it, as it rarely brings pain. It can cause you to swell, to cause another kind of pressure and make you think that your body is exploding. Medications often appear not to be helpful and rigidity becomes harder to walk without feeling like a stick-figure. Pet scan also shows that fibro patients have brain inflammation.

    Surgical procedures/medical treatment pain:

    Oh yeah, the very things that should help me can add to our pain very often, making things even more exhausting! Things that should help us. It is impossible to describe all of them but I will call them “healing pain.” There are so many different pains this can cause, it is impossible.

    TMJ / jaw / face pain:

    This appears to be common to us, too. We may have sharp pain in our faces either because of poor teeth caused by their conditions or medicine to treat them or because of the inflammation of the joint tissues in the jaw. It can be awful, taking all the self-control that I don’t have to cry. All the pain and the long list of other symptoms which constantly bombard us make it much harder for us to do simple daily activities than the average person.

    I have compiled a list of a few normal activities to try to explain the differences really, which virtually everyone has to do at some point. I explained to those of us with chronic pain how it can feel after each activity.

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    1. Just taking a shower — may be that at the end of a very long day we just ran for a few miles and jumped into the shower. When it’s over, we’re exhausted and can hardly move.
    2. Stepping outside in the weather above 75 °–immediately feels like 8 hours of hard work in 100 ° + weather have actually been spent. It is almost impossible to be mindful, because every ounce of energy in seconds is drained by heat.
    3. When the temperature is below 40 ° C–immediately it looks as if we have plunged into an ice bath naked. The pain is heavy, heavy and bone-like.
    4. NO drinking–it feels like we went to a bender for Spring Break and just woken up the first, sober day, following an outing at a club or concert.
    5. Getting an inflammation–feels like a flash.
    6. Two hours a day–may feel that we have been up straight for three days already.
    7. Having a light yard work for an hour usually feels like we’ve been digging holes for 8 hours.
    8. Riding in the vehicle–it feels like in the middle of a storm in a demolition derby race.
    9. As a spectator, it feels like we played it ourselves and it was a sport of contact.
    10. Making some foods–it’s like working as a dish washer an eight-hour shift.

    At least one of these things should give you an idea of how much energy it takes to do things compared to the average person and pain it causes. I can remember a time when it was much easier for me too. Earlier. Before all pain, symptoms, exhaustion, emotional difficulties and relationship problems due to an invisible chronic disease are dealt with. A normal, active life was previously impossible to live.

    We do not choose to make it harder for us to make it easy for others to do, or to try to understand when we are slower, or can’t go out, or cook dinner, or anything else that we might expect. It’s hard for my fellow pain patients. It’s true, not only in your head. It’s tiring and we’re trying to break it, but we’re stronger. Every day we fight. We have courage, value and compassion. Continue to fight. If you feel worthless, find something for yourself. A career doesn’t determine your value, just as it won’t determine your condition unless you allow it.

    https://fibromyalgia-6.creator-spring.com/
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    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • To the person who does not believe in my illness

    To the person who does not believe in my illness

    By: Dr Alexa James

    I just feel you. I feel you. I look okay, I’m okay. I live an active life, which is relatively normal. I’m walking, I’m driving, I’m climbing stairs. Visibly, I’m not disabled. I have no limp, no cane or wheelchair or walkers. I have no limp. I’m working a job of complete time. I’m living alone. I live alone. I take care of myself. I take care of myself. I’m cooking, I’m cleaning, I’m going to the ground to make a linen. I’m a grocery store and believe in all the bags on a journey to the house. I am laughing, I am crying, I am joking about it. Life, I’m glad and excited. I’ve got great days, and I’ve got awful days. I’m on holiday. I’m hiking, I’m bathing, I’m skydiving. I date, I go to the bars and dinner.

    However, my disease is invisible. It’s the constant dull, burning muscles that you do not see. You don’t feel my full weariness and frustration that I can’t get a good sleep during the night. You see that I don’t twist and turn all night, hoping and praying that I will be sleeping for at least an hour. For times I am so defeated you are not there that I cry, sometimes for hours. You are not there. From my depression, you do not hear the negative self-talk in my mind because my body and mind are under constant strain.

    It doesn’t make it any less real because you can’t see my disease. You can’t see the air, but it’s right there? (All right, this is an extreme example, but you get where I go). You can’t see IBS, but when you have it, you believe. Somebody’s migraine you cannot see, but you can empathize with it. You can’t see someone’s cancer always, but you know how awful it is for someone who suffers and you want to help them.

    This invisible disease is awful. This wouldn’t be it, if I had to choose a fake disease. Pain, pain, sorrow, flames, shoots, blows, pain. The rigidity every day. Difficulties with daily tasks like hair washing, drying with blow and styling. The cabinet is vacuumed, dusted and cleaned. Remove the trash. The frustration of the time it takes to perform a simple task, usually in minutes.

    It’s impossible to imagine the energy it needs to counteract this disease day after day. It would take a great deal of time to come up with these specific pain points and sentiments just to keep up with the disease. There are so many specific, random and non-fibromyalgic symptoms and chronic pain conditions. The problems of the inner stomach are so unpredictable. For no reason, the dry skin. Sleeplessness. The fatigue. And fibro fog, the memory and focus are lacking. It might certainly be a good excuse, but it’s one of the most frustrating pieces of fibromyalgia. It is terrible to constantly forget and be distracted.

    Do not assume that you see someone parked in a handicapped car park and they appear “fine.” Don’t judge and ridicule them. Do not judge them. It can sometimes be unimaginable the pain and energy to even reach the car and drive to the shop. Any steps that are saved are pain and energy. Energy to try and get the essential elements through the shopping trip, then fight back to the car, get home and be done during the day. This is sometimes the equivalent of a “normal” marathon runner.

    It’s not real to the person who stuffs my disease. Be patient. Be kind. Be friendly. Be comprehensive. Train yourself. Education others.

    Sincerely, 

    An exhausted, frustrated, and hurt fibromyalgia sufferer. 

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

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  • I’m More than my chronic disease

    I’m More than my chronic disease

    By: Dr Alexa James

    We always look for ways of identifying and distinguishing ourselves. A way to be a single person. The Funny One, the Smart One, the Beautiful. The fan, the creative, the athletic. The “fan of sport,” One way I don’t want to do that is to “be a fibromyalgic girl.” “The painful girl, the painful girl” or “the tired girl.” “The painless girl,”

    I’m more than my pain.

    Ask me to camp. Ask me to camp. That’s the way to go. Please ask me to go shopping for a day. Suggest that we walk the city. Don’t be afraid to hug me or to joke in a joke with the jab in my arm. Call me, your house, to parties. We’ve been dreaming of this picnic. Holidays? Let’s just do it. Let’s do it. So let’s get tickets and tailgate. I want to go to that baseball and soccer game. I’m not sorry, I enjoy Chronic Disease

    I’ve got a lot of interests. I love cooking (read 36 fibro patient cooking hacks) and baking. My air fryer obsesses me. I love learning about various people and cultures. Overall, I love to learn. Something teach me. Animals, especially dogs, cats, alpacas, narwhals and dinosaurs. (Let’s read more about pet health.) I am obsessed with animals. It’s black, my preferred color. That is how I take my coffee. I love that black color. Pizza, wings, beer, I love them. I love to check out various breweries. We’re going to hop the bar. Let’s make brunch. Let’s make brunch. Make it a day. Let’s do it a day.

    I’m training. My body allows me to do what I do. I work with my body. I work with my body. I do yoga, I walk, I weigh lightly. In home workouts, I do TRX and randomly. My body works although it feels like my body works some days against me.

    I am far more than just my chronic disease.

    I am clever. I am being driven. – I’m determined. I was somewhat crazy and got out even more forcefully than I knew. I’m impervious. I am just funny. I’m being caring. I am empathetic. I am being creative. I’m just laid back. I’m just organized. I am a do-er. I’m a thinking thinker. I am an introvert. I am a cat mother.

    A sister, a sister, an aunt, mother and a cousin. I’m a daughter. I am a friend. I am a friend. I’m as much as I can to my friends and family. The times are good and the times are bad. I’m leaning on a shoulder. I make jokes. I make jokes. I give you advice. I give advice. I am a sports fan. I am a sports fan. I shout on the TV when it’s a bad call during a football game. I’m staying far too late to watch football on a Sunday or Monday night. On a sunny afternoon, I catch a baseball game.

    I’m working. I work. I work very hard. I go to meetings. I believe. I learn. I don’t. I succeed that. I succeed. I’ve been working for a career that I still work for.

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    My chronic disease, I am not. I’m a human living with a chronic disease.

    Instead of letting my pain control my life, I’ve learned to listen to my body and work with pain. I’m studying equilibrium. I know that it differs from good pain to bad pain. I know I can continue to push a bit further. When I have to take a break, I also know. Yes, sometimes because of my illness, I can’t show up. Yes, I’m going to say no sometimes. But don’t stop inviting me, please. Do not let one “no” stop the “normal” person from seeing me. Not only my illness, learn about me. Let’s speak about family, hobby and interest. Let’s speak to our family. Let’s speak of what we’re enthusiastic about. Tell me your best father joke and jokes. Tell me. What’s the most awkward thing you’ve ever experienced? If you want my fibromyalgia to learn. I would love to speak too, but don’t forget, please, that is so much more for me.

    https://fibromyalgia-6.creator-spring.com/
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    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • I’m searching for the pain relief, not for the pain. Oh, I’m searching for bread administration, not a miracle!

    I’m searching for the pain relief, not for the pain. Oh, I’m searching for bread administration, not a miracle!

    By: Dr Alexa James

    The chronic pain of such a hot button is pain relief, pain medication, and the treatment of pain. People believe that people who are suffering from chronic pain or seek pain medicines can not go beyond the truth. Individuals with chronic pain and chronic pain seek one thing alone, pain relief or pain control. Unfortunately, many pain conditions are widely misunderstood, especially fibromyalgia. Fibromyalgia, therapy and management of this condition are very little understood. In some instances, fibromyalgia is the most painful misunderstanding and how to handle it in all aspects, especially the pain.

    We suffer from other conditions that also cause pain for most people with fibromyalgia. Autoimmune conditions, arthritis, degenerative disk conditions, spinal problems, etc. On top of fibromyalgia, all of these conditions cause pain, daily pain, relentless pain, uncontroverted pain! So, what do we want from life, pain management and pain management, but above all, understanding of our pain! So why can’t we get so desperately needed pain relief???

    The best solution is, right now, the current epidemic of opioids. I’m not here to begin a discussion about this but simply to debate how it has an impact on people like us. People like me who suffer every day, people who want to have better than bad days, people who want to have a sharp edge removed from what we feel every day.  First and foremost, we are trying to find a little relief for people suffering from chronic pain and pain. When we tell an average person that they will have pain from now on every single day, not just headache or joint pain.

    Pain which will continually disrupt their lives, pain that makes it nearly impossible to perform “daily” tasks, pain which makes good sleep difficult, pain that makes it impossible to work, pain in your social life, pain in your family, your day-to-day life, pain that makes life easier to enjoy, well, impossible! Well, I don’t think masses would be silent if we told the average person that this is their life from now on!

    Those of us who suffer the way we do want nothing but hope and a little relief. Some people could “work the system” to get pain medications, therefore there is abuse of pain medicines, pain med addiction and opioid drugs. Unfortunately, some of those suffering from addiction and abuse simply sought treatment for pain. The healthcare system was left rolling due to these problems!

    The sufferers left unfortunately are the ones who benefit from pain medicinal products and need them for a life that is somewhat’ tolerable.’ This is so wide-ranging topic that you will try in one article to address so many avenues and a controversial subject. But rest assured, chronically painful people want to listen, we want a voice, we want to say a saying, we want a choice. And the headline on local news speaks of excessive deaths as I write this. We fight to make our voices heard, no wonder!

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    Now please understand that I don’t want to promote the use of pain medicines in an unnecessary way, nor do I try to normalize the use of pain medicines. I hope that there will be more options. More options for pain alleviation that will ultimately make pain patients feel like a ‘ drug seeker. ‘

    A handful of medicines can be used to treat pain related to fibromyalgia that cannot be discarded, although many individuals with fibromyalgia can also be diagnosed with a slew of additional pain and fibromyalgia, and some of the treatments for fibromyalgia do not exist where our options and access to appropriate pain management are very limited. And some of us have serious reactions to the drugs that are out there, or they just do not work for us.

    We want a treatment plan to help relieve some of our pain, medication, therapy. Many of us have taken the path of uncertainty and unsuccessful treatment. Medicines and therapies work for everyone differently, I’ve spoken it over and over, and what works for one person can not work for another. The side effects of one person are very different from the effects of another. Nobody has the same body chemistry as anybody else. It is difficult to treat pain that what works for one person, can work for another or cannot, does not all people react to a certain medication or treatment in the same way.

    It is a way of hope that we have to find. Hopeful and hopeful abundant, the “alternative” therapies will improve and broaden our options for relief from pain. It is hoped that we will not feel like a drug addict if we need pain relief. We also hope that a physician who will assist us can finish without doubting us. With fibromyalgia, we struggle to get people to know our daily business even remotely, let alone to question our doctors about the validity of our pain and suffering.

    Unfortunately, now we are in a time of immediate dismissal or judgment if we have any type of pain. It must be stopped. The health care professional must be able to achieve the knowledge they really need on PERSON and PATIENT. The use of pain medicines may or cannot be included. But the more the patient AND the person understands the more hope they will see the whole image and not just a screenshot and can work with the patient to find a solution or to develop a plan. It’s time for you to find a new one, which I am finding at the moment, if you’re not in contact with your doctor or health care provider.

    Sometimes, especially when it comes to chronic pain conditions it is difficult to advocate for oneself. But we cannot give up! We must continue to fight for the United States! We need to struggle and hopefully find a common ground or a decent treatment plan. Nobody with chronic pain expects to live entirely without pain; we know that this is a totally unrealistic objective.

    But what can we hope to find is a treatment plan that addresses the most, if not all, of our needs and a plan is provided to attempt to achieve them and, most importantly, we want a healthcare provider who understands our struggles and is ready to listen not only to our needs but is ready to help us try, regardless of what the treatment plan involves, to achieve a pain management goal.

    We’re all looking for the same outcome, whether it’s tomorrow, next week, next month or years away. Those who are suffering from chronic pain simply want to see what we are suffering and to find options so we can “live the best of our life! “We do not need to seek the pain medication, we want the control of pain, we don’t need the pain medicine, we want the treatment of pain. We want to understand and support, however, most of all!

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    References:

    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

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  • NSAIDs for Fibromyalgia & Chronic Fatigue Syndrome

    NSAIDs for Fibromyalgia & Chronic Fatigue Syndrome

    By: Dr Alexa James

    The lack of inflammatory findings

    When patients complain about diffuse muscle and soft tissue pain in the tender areas, fibromyalgia (FM) diagnosis is considered. Pure or primary FM is non-inflammatory because it has poor response to anti-inflammatory conditions and has a lack of inflammatory findings about blood work, and examination. It is not associated with other inflammatory diseases. However, there can be diffuse musculoskeletal pain in patients with inflammatory disease such as RA, which feels like FM but is inflammatory, and thus likely to be inflammatory.

    What are NSAIDs?

    We generally refer to pain relievers available on the grocery store or on the pharmacy when talking about NSAIDs. Ibuprofen (advil and motrin), sodium naproxen (alve) and aspirin (bavarian and excedrin) include these substances.  Most people assume acetaminophen (Tylenol) is in the NSAID family, but this group of OTC drugs technically does not. Actually, acetaminophen not only has no effect on inflammation, but scientists remain uncertain about its workings.  It’s a pain killer or analgesic technically. There are several other types of NSAID prescription, but we will focus on the most popular ones.

    Pain killers are anti-inflammatory medicines

    Anti-inflammatory medicines are one of the most common types of painkillers. NSAIDs, which stand for non-steroidal anti-inflammatory medicinal products, are a common type of anti-inflammatory medication. Include popular OTC NSAIDs:

    The prescription strengths of these drugs are also available. NSAIDs include prescription-only:

    Not all the pain caused by fibromyalgia is due

    The general pain is usually taken with Ibuprofen, naproxen sodium and aspirin. Sometimes, pain levels associated with various types of surgery are proposed to be treated. Thus, it is meaningful to consider them as a way of finding relief from fibromyalgia. The difficulty is that not all pain with fibromyalgia is due to inflammation. In fact, the absence of fibromyalgia inflammation is one of the main differences from inflammatory conditions such as rheumatoid arthritis. However, at least one study shows that fibromyalgia is inflamed by the fascia, the fibrous sheath that covers the muscles. Inflammation, however, is not an indicator of fibro-diagnosis.

    Dangers of NSAID

    More than 100,000 people are admitted to hospitals in the United States each year due to NSAIDs, according to the American Journal of Medicine. In addition, NSAID-related problems, like ulcers and gastrointestinal bleeding, die from 15 to 20,000 each year, and digestive side effects could occur in as many as 60% of users of NSAID. Increased risk for death from heart attack or stroke is also associated with NSAIDs. These medicines may also cause liver or kidney problems.

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    Possible side effects of medicines such as Vioxx-COX-2 Inhibitors:

    Fibromyalgia Pain Relief Vioxx has been developed to reduce pain and inflammations without the risk of ulcers and other potentially fatal gastrointestinal side effects of aspirin and similar medicine, called a “COX 2 inhibitor.” Fibromyalgia Pain Relief Vioxxx. But COX-2 inhibitors may cause a second in resolving one serious problem. A group of researchers led by Garret FitzGerald MD, head of the Pharmacologist and Director of the Institute of Translational Medicine and Therapeutics at Penn, found that both drugs had been suppressing prostacyclin in humans just before Celebrex and Vioxx were approved and launched.

    Prostaglandin

    Most medical researchers agree that an anti-inflammatory drug-related pain relief is just a good benefit to their work. That is, they are preventing the syncretization of a type of lipid called prostaglandin within the body. Prostaglandins do a lot, but ultimately, they play a vital role in the inflammatory reaction process of the body.  This prevents the inflammatory response in the body from spreading or even starting.  And there is no inflammation which means no inflammatory pain.

    Fibromyalgia pain is usually not primarily caused by inflammation.

    Sounds awesome, okay? Not that quickly. See, the problem is that the pain caused by fibromyalgia does not usually come first. However, patients with fibro are also often affected by other conditions. Other inflammatory conditions such as arthritis react quite well to anti-inflammatory medicines. That being said, only one way can really figure out if anti-inflammatory drugs work for you: try them for yourself. Some of your pain, but not all, can be relieved. Other days, it could however be the perfect solution and provide you with the relief you need to make it pain free throughout your day. And it’s what matters if it works.

    Other NSAIDS ‘ potential side effects:

    Fibromyalgia Pain is 7 times more likely for adverse gastrointestinal effects for a person taking NSAIDs. The FDA estimates that 200,000 gastric bleeding cases take place every year and that 10,000 to 20,000 deaths are reported every year. The risk of developing higher blood pressure by a person is over double that of NSAIDs, which could lead to more medication. A study also included 41 percent of those who had recently begun drug use to lower blood pressure.

    Talk to your doctor

    You and your doctor will decide together if your diagnoses, symptoms, overall health and lifestyle factors are suitable for NSAIDs. It is important to note that one NSAID can work for you better than others, so that experiments with different medicines can be done to produce the best results. Talk with your doctor about possible alternatives and weigh the risk against benefit when you feel that NSAIDs are effective in reducing your pain.

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    References:

    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

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  • I’m not going to excuse myself for “OK” days

    I’m not going to excuse myself for “OK” days

    By: Dr Alexa James

    Our days are dictated by pain, tight muscles, fatigue and many other factors and symptoms for the patient who suffers from fibromyalgia or Chronic Pain. Sometimes we have to go so far as to plan a relaxing day, as far as our plans are concerned. What people who don’t have difficulties to understand with these conditions is how we can be productive some days, take part, enjoy fun activities, but some days we can do nothing, and getting out of bed or showering might be the greatest achievement for the day.

    Some people don’t realize that we live a daily life but, sometimes, hour by hour. However, this is our lives, it is not guaranteed what happens from day to day, things may not always be planned and the days are always uncertain. Nevertheless, regardless of what, if it’s an “ok” day, I will try to enjoy it and if I can apologize for it, I will be damned.

    This may sound a bit harsh, but our “new existence” is a reality not understandable by all. There are some days where the major challenge we face is living with fibroid and chronic pain. We’re full of pain and sleeplessness our day and nights, lost plans, friends who don’t exist anymore or who can’t work and just the simple disinformation, the lack of understanding and ignorance from medical professionals.

    But there are days when we can actually tolerate the magic pain scale, even though we may not be completely restful, and the door opens with the opportunity of living, if for at least one day or for some hours. There are many days in which we can take part.

    We need to do that just when we have a day, or days, that we can possibly enjoy family or friends, much necessary and pleasant activities or even go on holiday. We must spend the days in which we can take part in life. But now the inevitable feelings of guilt and physical sorrow come, that are always there if we push ourself too hard, with those days of actually taking part in life and trying to get the most out of a tolerable day.

    We sometimes feel guilty that we can now enjoy living for a day or two for as much as we have lost. Today, for example, I had to miss a family because I couldn’t handle it physically or mentally. I might be seeing myself having lunch with friends tomorrow or having a holiday with my family, but I feel guilty and guilty that yesterday I had to say no, but I can say yes today.

    There is absolutely nothing to predict if there is one thing that can be certain about fibromyalgia and chronic pain. We cannot always plan or commit ourselves to anything in advance, so that’s why we have to take advantage of the days. We can communicate these achievements and joys by touching a button with the age of the social media. People can see and participate in the things we could enjoy.

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    We want to share the joy we had because we had an all right day. But we feel the judgment, the voices behind our back and what we actually feel in this life of fibrous and chronic pain because someone only saw us, smiled, lived and enjoyed this moment. They won’t walk in heating pads or ice bags tomorrow when they do not see the tears, if we have to get up and go up on the stairs and do not see us suffering. They’re going to see the tears on our faces tomorrow. But let us still feel guilty because people were happy to see us and today, we had to say no to another family.

    We feel like we’re in the mountain of guilt because all can see that we could have fun, we must remember, it’s a picture. It is only a small part of our life that people see and enjoy from us, a picture that shows we were OK, if just for a while. A snapshot of an opportunity to enjoy our family activity. A snapshot of the fact that we could exist as closely as we would ever be for a little bit of time.

    An opportunity to have a good time with our families or loved ones, for an activity or at least. What this picture doesn’t show is the sorrow we experience every day, the pain which keeps us couched, the tiredness that has wiped over us and stamped out every opportunity for something to happen. We don’t want people to see these parts of our lives. We don’t share the times, we don’t post our struggles on social media.

    For as limited a life as we can live, we really need to enjoy and enjoy the times we can live. So why are we guilty of having enjoyed this time? It’s a difficult question to answer because we found that we can’t work anymore for some of us with chronic pain and fibromyalgia, and that we can’t help our family. This is a fight in itself, and by feeling that we do not have the right to go out with family or friends, or the right to enjoy ourselves when we feel like we are human beings, we do not need to add to my mental sufferings.

    We DO have the right to live as much as possible without apologizing or guilty that we may not get out of bed yesterday. We suffer from physical or mind pain every day, fighting that nobody can see, feeling just about us, so why should we not be able to enjoy activities, holidays, nights with friends, dinners without being guilty of it? We have to take advantage of these unique opportunities, and we can’t think about our pain and struggles in every minute. Enjoy the days when even if the pain doesn’t go away, we can smile at a level without force.

    Take every chance to forget what your New Existence is, just for a little while. Whenever we can have a good day, we must stop feeling the fault we experience won’t keep apologizing for having some “ok” days, because I’m sure I fight on the other days! These are things and feelings that anyone with fibromyalgia or chronic pain cannot ever understand. And how would they really be since they were never in our shoes? The condition that we say, “I would never wish this to my worst enemy” is that we mean fibromyalgia!

    We don’t seek sympathy or mercy, we just want to understand a bit that our lives differ, because we have chronic pain to live “always.” We must enjoy things as they come and live on the days when we can truly live them.

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    References:

    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

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  • Ways to Aid someone with Chronic Disease

    Ways to Aid someone with Chronic Disease

    By: Dr Alexa James

    It can be frustrating if we need help, but don’t want to accept it, or even harder, that we don’t want to burden anybody else. Fortunately, as someone living with chronic conditions that make it harder to do normal business, I can say that there are people who really want to help others.

    Some people have the best of intentions but don’t know exactly what to offer, or maybe just want to do something else. When you offer support, the choice of words can really determine how comfortable we feel to accept your offer. I would like to note that this doesn’t mean that anyone is ready to help us at all.

    Perhaps the appreciation we feel when people help us can’t be imagined. You probably also could not imagine how difficult it would be when we were in the middle of the pain of our conditions or overwhelmed by the kindness of yours, or when we felt embarrassed that we needed your help.

    If you live with an invisible and unpredictable disease, emotions can be strong. One of us wants to be the last thing that a person cares for, and if, by offering, we feel like you are uncomfortable, or just to be cute, then we’ll probably thank you, but say that you don’t have to.

    Although we fall into daily tasks such as washing and dishes. In my case, I would rather harm myself to do what I need every day instead of having somebody who doesn’t want to help me, or be given “help,” which really doesn’t help me. I’d really like if you didn’t offer people just to be cute or to say something, because I can’t tell it is very rare.

    That is why it is very important to offer your assistance. Things to do can help someone with a chronic illness. The following are ideas. I also have a way of asking everyone to make it easier for the recipient to accept your offer, for the wording will make them feel like you want to assist them.

    Offer to clean them without any assessment or expectations.

    Rather than saying, “I’ll come and clean you up,” “Do you want me clean up?” Try to say: “On Thursday, Thursday, or Friday, I come to cleanse FOR you, whatever day works best for you. You just have to point me into a room, tell me some special instructions, and then relax.”

    That means we’ll need to work when you are coming, and it can really be hard to know when that is possible so usually, we’ll say something like, “Oh, I want it to work,” or “Oh, thank you so much for this offer, but it isn’t needed.” We’ll do the same often if you start your offer with, “You want it to work,” or “Oh, thank you so much for it.”

    We’re not ungrateful, nor do we think the worst of you. This is because we have to live with feelings we don’t do enough, and the culpability that accompanies this leads us all the time to feel like we burden those we love. We just try to avoid such sentiments and are actually a burden.

    I suggest using the phrase I mentioned previously, or saying, “Hey, I’m coming for whatever task you do,” to which many will answer, “Oh, you don’t have to,” and then, that you may tell them flat-out, to which you WILL, that you really wish to help someone without making them feel you are just being polite.

    Sometimes, you come into someone who does not really want any help, and you should fulfill their wishes in those cases. You can at least know that you’ve done all your best to make them feel comfortable accepting your assistance if you offer to use the same word that I suggested. The key is to make sure that your words imply that you WILL be helpful, not just polite.

    Go for them to the shop. It may be hard for us to perform on a bad day and it will prevent us from carrying out several other tasks so we can prevent it from being great at any time.

    Try to use sentences like: “I head to the shop later, thought I’d see if I could collect anything while I was there? “Or:’ On Thursdays I go shopping. If you list anything you need, I can pick it all. “Both of these examples are helpful in making sure that we accept the offer because: a) it allows us to recall some time in every scenario; b) you make it clear that it’s not just a journey for us. If you’re going there anyhow, we don’t feel so bad to let you help.

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    Trust the person you are trying to assist that the number of items is not an issue if you let them know that you are shopping throughout the store. I would leave things outside a list sometimes because I didn’t want a person to go back to the shop. Find a way to let them know you’re ready to get everything they need, and this isn’t a big problem.

    For this particular task, storage-specific applications can be extremely helpful. A number of them now have all the items, prices, sales and coupons listed in the app. You can use the app when you draw up your list, so it almost sounds as if you can see the items in person.

    Pay a bill or give you a prepaid gift card, that can be used wherever it is required.

    If you suffer from a chronic disease, this at least means medical bills. It could also mean that you can’t work so that finances can get tight. Even if you have great money and you do everything you can to earn income, medical expenses can keep you broken. When you can and want to really help, it can be one of the most useful things to do to relieve some of the financial strain.

    Some people might not want your money, but if you know they need help there are ways to do so. Much money stuff can be treated anonymously. Some companies used to have programs that allow you to pay on a bill without the information of your account.

    Many places have changed that because of privacy policies but checking for any company for which you want to pay is at least worthwhile. If you cannot find a way anonymously to do this via the company, slip cash into an envelope or a prepaid card, and make sure that they will only receive it anywhere else. It will alleviate some of their stress unless they are rich.

    Watch your children so that they can relax regularly.

    Many people with kids may have this very well in its wording. You are more likely to offer some sort of assistance, if you have been that fatigued parent to see another parent. For chronically ill parents, it’s both common that we feel like we aren’t doing enough for our kids or that we are riddled with it all. We will not want to accept assistance, but the fact is that a chronic disease will never go away when we feel like we “pawn them” at someone.

    Some of us are in pain and exhausted daily, regardless of how sleepy we are. Daily self-care can be very helpful in our management, but we often lack the time, especially when we are parents. The best way to do so is to talk about children as much as possible or a routine. “Annabeth needs to socialize more, why don’t I go to Isabel every Thursday to get together? “or:” You are on my school journey right now, and children need to make friends, how can I get them every day?

    Adjust these suggestions according to how long you can / would like to devote yourself to helping. If you can’t do things regularly, providing some help can still alleviate some stress every once in a while. Therefore, don’t let the suggestions lift you away from proposing a few hours ‘ free time to play random playdates.

    Another thing to consider when providing childcare-if they are really going to use downtimes, they should do their best to make arrangements for all their children. People often forget children who are not close to their own age in their home, because they may not know them so well. If your objective is to help people really, try to involve everyone, so that their feelings are not hurt.

    Offer emotional support to those who appear to have everything covered. Sometimes we only need someone who can listen and truly understand.

    Some people are physically covered or helpful, or even financially, by themselves or other. You may appear to be in control of everything. In such cases, I offer at least to be someone they can’t compete with, or say they can be fixed easily or anything. You only have to vent sometimes. I have experienced this many times myself, so I offer to be there for others who may need it.

    Many times, if I try simply to let them vent, I’ll let them speak about anything they want, without offering much.

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    Only if they say something that they really need or want to know, will I offer you information. I usually say something like, to offer emotional support: “I know what it is like that someone does not judge, does not participate in, and does not. Sometimes, I’m adding, that I have experienced similar or detailed experiences that make them know, I’m going to understand and not be judge-full, like: “My children are 12 and 18, if you ever want to speak. I’m going to be here. I know that teenage years can be frustrating times, “or anything that is relevant to what they appear to experience. All five of these things provide you with the best opportunity to offer your assistance to someone you are interested in helping.

    Remember, there are the rarity people who just don’t want to get bothered and it is sometimes difficult for us to accept that because people want to help others. We must also respect these people, because it can also create more stress if we continue to let them help us. It can be a difficult situation to measure but you only know it can happen. Providing the wrong type of assistance can significantly increase our stress level. We always deal with people who just don’t try hard enough to fight our conditions. We always deal with people.

    Unless we have a discussion (and it is clear that we do not know something that exists, it is not appropriate or helpful to suggest practice more, yoga, meditation, diet or other similar things.

    If you have met a recent article in our condition on a new development, that is great information and helpful. Alternatively, there may be a book that you know about our situation, which can be useful, but only provide suggestions. Try not to tell us that it’s going to heal us. CHRONIC are the chronic conditions. There is no cure, only symptoms are managed.

    You should not make a comparison of the pain and the symptoms with your own when offering help (unless you have the same condition, even then, all bodies can be different).

    “Oh, when my muscles hurt, I just stretch out and take a hot bath and they feel so much better.” We wouldn’t fight so badly if it were. Without being very new to pain and diagnosis, we have tried every normal remedy, and we tend to become exasperated when people continue to put forward simple stuff.

    Together with the other examples of how not to offer combined with how to help in ways we feel comfortable with acceptance, both of these examples should certainly provide guidance if you really want to help someone. When done in the right way, your support is needed and appreciated. We will certainly try to ensure that we do not burden you for the majority of people with invisible diseases, but that your help is so needed.

    Thank you for your readiness to offer your assistance in the best way possible. More people are needed who really want to help. Some people in their lives are not ready to do so with chronic conditions. Seek them, and all of your loved ones who are struggling with your health and do whatever you can to facilitate your lives.

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    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

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  • What or Who I Am the Invisible Intruder – Chronic illness Awareness

    What or Who I Am the Invisible Intruder – Chronic illness Awareness

    By: Dr Alexa James

    I was something that was wanted to deny the health community once. You told me I was just in your head, I didn’t exist, you felt like freaks who have lost their minds. Something different than what their practice has been teaching them could not believe. Oh, but I’ve demonstrated I’m so real, and now they know that. I am not in your head as a figment of a psychological or overactive imagining.

    I’m a nightmare you’re worst. I have always been a mystery through the decades — a haunting mystery that no cure exists. Medications may mask a symptom if you have sufficient medication but there is no cure. I’m going to rob your family and friends away, because they don’t understand why you are as…

    May I describe one day of your life–maybe they’ll know a little about you. If they are to look at me in your midst, they might see shining red and blue flames, struck in the midst of every muscle you have. I’d be the scream of a Banshee in order to hear me. They would feel the sand and the fire on their skin to feel you from within.

    In severe cases, you cry and cry to touch something, for it’s like the hottest fire you can imagine, the sand piercing on the skin and reaching every nerve within you…. even the softest of fabrics is wounded and you are burnt when you try to use them, bedding sheets are untenable and sleep evades you. You want to rip off your skin. They will find that it is like a bass-guitar played far beyond what is regarded as “normal,” to enter your realm, and the vibrations are insupportable.

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    Every day or night, I’ll rob yourselves of sleep, sleep is uncommon. I will command your mind and body to feel less than human so long as you cannot escape into any other realm. I tear up your life and ask you to be my 24/7 slave for suffering and pain. Yes, the level of mental, emotional and physical pain you suffer doesn’t understand.

    Some say they understand, but they don’t believe them, because they walk in shoes different from you. Some suffer a similar “me,” however, at all levels and extremes, each of you suffers. Forever and a day, I shall remain a mystery. I’m not the kind of nice thing because, once in a while, I’ll tear apart your heart and soul, and I’m going to fear those you care and want to love.

    You’ll suffer, lie down for days if you’ve had that luxury, and cry out for help just to find empty arms… If you’re lucky, you may find someone that tries to stay near you! If they are lucky, you can find somebody who tries to stay close. But I usually frighten them. The time is turned into hours, the hours are turned into days, the days turn into months, the months turn into years without a cure–all that’s “Me’s pain” within you.

    Remember, I live in all of your nerves and your muscle–there’s no escape. I’m the unseen intruder. There’s no drug, no pharmacist, no wondrous drug or herb that takes me off from you… no sleeping pill or narcotic that can get me from your body… there’s no separation from “me,” I can’t live and not kill. You can never escape me when I have you inside of my grasp.

    But the biggest thing is that your torment flourishes in my favor because you don’t understand the suffering that you are suffering; just as you can’t live a life without pain you, you can’t understand who you don’t know, or want others to have time to understand, you just don’t understand. However, they often go away, if the pain that you feel is expressed, which is not really possible… There are really no words to express what each of you feels or masks. When you work with people you are forced to wear an a’ mask.’ When you come home, you cry out because of the terrible pain.

    Lyrica, Cymbalta and other medications, such as pain relief and muscle relaxing medications, just add to my control, and until they work, you don’t even know–if they work at all.

    Who am I? I’m the Invisible Intruder, and I’ve got many siblings, usually living in you as well, my name is Fibromyalgia. Welcome to my world and perhaps to the world of your friend. “The Invisible Intruder” is my name, yes. There are no escapes, because there’s no cure, I live in you, around and through, and in every aspect of your life. –by McKimson Holly

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store