Tag: chronic illness

Raise awareness about chronic illnesses by understanding their impact, symptoms, and the importance of support and education.

  • The Surprise I Didn’t Expect from The Whole30 Diet

    The Surprise I Didn’t Expect from The Whole30 Diet

    I have several chronic illnesses and have tried many different treatment options to improve my symptoms for all of them. My illnesses include: fibromyalgia, arthritis, endometriosis, hypopituitarism, pituitary adenoma, irritable bowel syndrome, rashes, restless leg syndrome and I think that is it, but I could be forgetting something. The medications that I have taken for these illnesses have caused me greater side effects than benefits. That is what led me to a holistic doctor and the Whole30 diet. This is my journey and the surprise I didn’t expect from the Whole30 diet.

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    Reasons I started the Whole30

    Like I said above, I have tried many different medications. They caused me severe side effects to the point I could barely function. I have seen doctor after doctor who did nothing but push pills in my face and not listen. As a last resort, I made an appointment with a Holistic doctor and I was pleasantly surprised by this visit. Prior to the visit I filled out several pages of information from my medical background, my family’s medical background and my level of commitment to making changes to live a healthier life.

    During the visit we talked about my past traumas and my current symptoms. This doctor recommended many supplements and an elimination diet (Whole30). She explained that it is possible some foods I am eating are causing inflammation and stomach issues. I was ready for anything new at this point so here we go.

    My First Week on the Whole30

    Leading up to day 1 I had to prepare my house and my mind. I tried to clean out as much of the stuff I couldn’t eat as I could, but the rest of my family wasn’t doing this with me, so I was going to have to use willpower. I bought the Whole30 book and started reading. I was going to have to give up:

    • Preservatives
    • Sugar
    • Alcohol
    • Legumes
    • Diary
    • Grains

    Luckily, the book gave me many ideas on what I could eat including recipes. I’m not really a recipe kind of gal. I like to improvise and make up my own stuff as I go. Therefore, these recipes were just a building block for my own ideas. So, I made a plan (so important) for every meal and went shopping. I told myself “You can do this” and charged through.

    This first week taught me some lessons that actually helped me finish strong.

    1. Plan 3 meals to take to work to eat every 3 hours. The first week I was so hungry I thought I was going to die. I had horrible headaches and I couldn’t concentrate.
    2. Prep my food ahead of time as much as I can to save me time and ensure that I can eat only the things allowed.
    3. Surprise! Whole food actually tastes good and makes me feel good.

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    Breakfast:

    2 scrambled eggs mixed in with:

    • Sweet potatoes or red potatoes
      • Zucchini and or
      • bell peppers (which actually hurt my stomach, so I stopped those)
      • Asparagus
      • Avocado

    Lunch:

    Turkey roll ups:

    • Organic turkey lunch meat
      • Hard-boiled egg
      • Avocado
      • Cucumber

    Lunch-able Whole30 Style:

    • Organic turkey lunch meat
      • Hard-boiled egg
      • Avocado
      • Cucumber
      • Side of baby carrots

    Bun-less hamburger

    Dinner:

    Veggie Baked Potato:

    • Red potato
      • Veggies like zucchini, summer squash, asparagus
      • Sometimes scrambled egg

    Stir-fry

    • Chicken or Steak
      • Brussel sprouts
      • Sweet Potato
      • Avocado
      • Mustard (because I love it on everything)

    These are just a few of the recipes I made up. There were more but they all usually involved these ingredients. I would also have fruit on the side like strawberries, blueberries, bananas, apples, oranges and grapes.

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    The surprises I didn’t expect from the Whole30 diet.

    In the book there are testimonials about how on day 31 when you are able to start re-introducing the foods back in you won’t even want the thing you were craving on day 2. This was so NOT true for me. I craved chocolate every day. I craved bread every day. I wanted all the things my family was eating that I could not have. But, I didn’t give in. I found that since I had a deadline and if I cheated I would have to start day 1 over, it made it easier to push through.

    Guess what? I started feeling better! I was less bloated, and my stomach didn’t always hurt. The best part was at the end of the 30 days I had lost 17 pounds! That was with no exercise and just changing the way I was eating. Honestly, if my whole family would get on board I could live this way all the time. You really see how awful some food can make you feel when you go through this elimination diet.

    How I re-introduced the forbidden food and what happened.

    Legumes were the first food I re-introduced as was suggested. I thought for sure I would feel bloated or something the next day, but no. We were good to go to keep eating legumes- yay!

    Non-gluten grains were second after two days back on the full diet. Now, this gave me some stomach issues. So, I’m bummed but thinking maybe I just ate too much in one day. I had gluten-free oatmeal and rice for lunch and spaghetti for dinner.

    Diary is next after I took an extra day to recover from the non-gluten grains. Now, you need to know how much I love cheese. This was a very hard item to give up, so I was super stoked to be eating cheese on this day. My heart was broken when I ended up in the bathroom many times the next day. Cheese is out if I want to feel good.

    Grains was the last to be brought back in. I was also excited about this one because I love my grains. For lunch, I had an open-faced rye sandwich with my usual toppings from above and I cannot remember what I had for dinner. However, it doesn’t matter because again I spent much time in the bathroom the next day.  So now grains are out.

    My Compromises with the Whole30 diet

    After it was all over, I really didn’t know what to do. My doctor didn’t really give much direction in this regard and pretty much told me to follow the book. The book makes it sound like this is the way you should live from here on out. So, for the last month, I have been doing some testing. I have been pushing my limits to see what bothers me and how much of it bothers me. I have tried cheese on several occasions and it seems possibly a small amount will be ok. I also, have added sourdough bread which seems to have no issues, but I am limiting it.

    I have to say losing the weight gives me motivation to stay on this crazy diet. I have learned that planning makes all the difference. Especially, when I’m not feeling well if I already have something prepped it makes it so much easier to eat healthy while sick. I know this isn’t for everyone, but I do encourage you to give it a try. You never know what surprises are in store for you.

    What is Next?

    Next, I will doing another elimination diet and including night shades. These are tomatoes, potatoes, peppers, eggplant etc. Not eating potatoes is going to be a challenge as they have been a staple for me for months now. However, I love sweet potatoes and they are not included in the night shade family! The purpose of this is to hopefully really start focusing on my inflammation and hopefully reducing it. Stay tuned for those results.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia & Doctors: An Open Letter To My Ex-Doctors

    Fibromyalgia & Doctors: An Open Letter To My Ex-Doctors

    Have you ever had a doctor not listen to your concerns about your health? Has a doctor ever dismissed your symptoms for your existing condition, only to find out later they were unrelated? Have you ever had a doctor treat you like your illness wasn’t as bad as you were claiming it to be, especially fibromyalgia? Well, if you answered yes to any of these questions you will definitely relate to this article on fibromyalgia and doctors. Here is my open letter to my ex-doctors that I want to send, but won’t.

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    To the Primary Care Physician:

    Dear Dr. T. I am writing to let you know how my health has turned out since we last saw each other. I went through so much pain and agony emotionally and physically that wasn’t needed. Remember how you thought my restless leg syndrome was a side effect of the Cymbalta? Not to mention, the symptoms of my severe fatigue and my inability to get any sleep? Well, it turns out that I had a severe case of anemia. This could have been detected if you would have just run a couple more tests. My Ferritin level was a 4! (This basically means the iron was not binding to my blood.) To correct this issue I was given an IV solution of Iron and have been doing pretty well on that front for a few months. However, this is something that needs continuous monitoring.

    My Struggles: Fibromyalgia & Doctors

    Maybe you can recall, that when you wanted me to go back to work I cried? I told you how I was barely functioning and how severe the side effects of the Cymbalta were. You told me that you understood but there was nothing you could do for me. You advised me to find another doctor. I felt your actions were telling me that you didn’t believe me. You told me to stop telling myself that “I couldn’t do things” and start telling myself “, I could do things” with no care to my real medical condition that I had no control over.

    My Concerns: Fibromyalgia & Doctors

    I need you to know that by this point, I am almost broken not just physically but emotionally. I see a couple more doctors that treat me equally as bad. I am now afraid to see doctors, a fear I never had before. I often wonder when it gets bad if it is in my head or real. It sure feels real. I didn’t expect you to be an expert in fibromyalgia. I expected you to take my concerns seriously and maybe take some time to do some research.

    To the Rheumatologists:

    Dear Dr E and Dr C. I am writing to you because you both aided in my fear of doctors. I was dismissed by both of you! Although, Dr E was thorough in the beginning by sending me to other specialists and taking multiple x-rays and MRIs. After that, you treated me like I was bothering you with my fibromyalgia symptoms. Both of you, lumped all your fibromyalgia patients into one group. You treated us all like we were the same. I’m not an expert on fibromyalgia but I do know that we each experience different severity levels of symptoms. Yes, I have found that my diet and exercise levels directly affect my fibromyalgia symptoms. However, I am still in a constant flare! Do you hear that? After a year of suffering, I am still in a non-stop flare!

    I feel like I have moments where I feel like I’m coming out of it, only to be pulled back in again. What I expected from you both is understanding, not condescending behavior. I was told by you “we advise all our fibromyalgia patients to remain active and that is why we feel they can work a full-time job.”

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    Does this make any sense to anyone else? It makes no sense to me.

    Going back to work with Fibromyalgia

    Since going back to work, I have missed many days because of my illness and doctors appointments. My productivity has gone down because I find it very difficult to concentrate. I am often late to work because it can be a challenge to get myself ready in the morning. I just wish you both would have listened to me and had taken what I was saying seriously and helped me work towards a solution. Instead, you left me to flounder alone.

    My final point: Fibromyalgia & Doctors

    You may or may not care that I am picking myself up. After being turned away from a doctor for my case being too complicated, I have found a new primary care doctor. He seems to be someone that wants to work with me towards my health. I let him know up front how I have been traumatized. I also advocated for myself by telling him that I would listen to what he had to say but I expected him to listen to me as well. After all, I am the one living with this condition, therefore having the most experience between the two of us.

    Thank you for teaching me the hard way how to advocate for myself. I hope that you can consider my story the next time you lump all fibromyalgia patients into one group.

    Why I am sharing

    I share this with my readers for several reasons. The biggest reason is that sadly, I know I’m not alone in this feeling and reading this may give you comfort (you are not crazy). Next, I want those that don’t have fibromyalgia to know that each one of us is different. I want you to know that we are being treated as if our illness produces the same “amount” of pain in everyone. This is NOT true! Lastly, I really needed to get this out of my head, so in part this is therapeutic for me.

    Advocacy

    Healthcare needs to change. I urge you to contact your local representatives and tell them your story. If you are able to attend Support Fibro is hosting Advocacy Day in Washington DC, September 18 & 19, 2019. Follow the attached link to get more information. Please share with us in the comments if you do either of these advocacy items.

    Hope in Health Coaching

    There is hope! I know there are good doctors out there (at least I have heard the stories). I urge you to keep looking and don’t be afraid to fire the bad ones. Also, I urge you to find a health coach! A health coach can bridge that gap between the doctor and you. I recently became a certified health coach and I am excited to offer my services to my chronic illness community. My passion lies in helping others like me go from “my doctor said to improve my condition I need to change my diet and exercise, but I don’t know how” to “my health coach helped guide me to healthy changes and I’m starting to feel better.”

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Chronic Illness Community Support

    Chronic Illness Community Support

    Since allowing myself to reach out to others almost a year ago, I have found my community. I have found my people, my tribe! I didn’t know that I needed these people in my life until they appeared. Sadly, I had closed myself off by denying my illness was a part of me. So, I write this to you today for several reasons. One is for the people who haven’t allowed others in to their hearts. The other is to recognize and thank those that are now part of my heart. If you don’t know already, here is how I found importance in the chronic illness community.

    Blogging Community

    I have met so many supportive friends through the blogging world and the chronic illness community. How did I meet them? Well, one of the things that isn’t talked about much is that you HAVE to network when you start a blog. You have to follow other bloggers on social media and their blogs. This is important to not only make friends but to learn from others. There is always someone else who knows just a little more (or a lot more) than you. It benefits you to befriend bloggers for support and knowledge. I’m sorry to say, but it is rare that you are going to launch your blog and have immediate success without sharing your blog and returning the favor to other bloggers. I quite enjoy reading other bloggers articles and looking at their websites. It gives me motivation and sometimes ideas I hadn’t thought of.

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    Social Media Community

    If blogging isn’t something you want to do, then putting yourself out there on social media is the next best thing. Of course, you need to be careful as there are predators out there and they seem to prey on women and especially those with a chronic illness. That being said, I have met the most wonderful women on social media (some men too). These people are going through exactly what I’m going through or sadly worse. They give me strength when I don’t think I have any left. Just when I’m feeling down and sorry for myself someone will post something uplifting to remind me to keep going. I treasure the chronic illness community with all my heart (you all know who you are). Honestly, there are so many I fear accidentally leaving someone out.

    Awards Community

    When I first started blogging I saw bloggers say they were nominated for awards like the Sunshine Blogger Award, The Versatile Blogger Award. I soon learned that these awards were given by other bloggers. It is a fun way for us to get to know each other and recognize our work. I think I have been recognized for all of them now, although I haven’t written a post for each one as I have been too sick to focus on my blog.

    WEGO HEALTH Community

    This last month, I learned of an organization called WEGO Health. This is an organization that you can become a member and network with other people and organizations as a patient leader providing advocacy for your community. What is a Patient Leader? A patient leader is an advocate, who knows what it takes to navigate the healthcare system. It is also an influencer who is able to reach people in a community online. Lastly, a patient leader is an expert, who is a business professional who understands things from a patient perspective. Becoming a member of WEGO Health allows you to network with other industry leaders. So, if you are looking to up your advocacy game, this is the place to do it.

    My Road to WEGO Health Nominations

    When I learned about WEGO Health I immediately put earning this award on my bucket list. I know that I am very new to the advocacy world, but it doesn’t mean my heart is any less involved. Since I was young, I always wanted to do something to change the world. This feeling is in my blood and drives my goals today. I started this 6 years ago when I went back to college to work on my psychology degree. At 44 years old my true desire is still to become a psychologist and study human behavior. However, my body has other plans for me. Don’t get me wrong, I am still working towards that goal, but I may have to take another detour.

    WEGO Health Endorsements

    I have been nominated for the Best Kept Secret and Best in Show Blog awards. I do not know who nominated me, but I suspect. However, it means the world to me and it has pushed me to keep going with my advocacy efforts. It is not easy to keep going when you fight fibromyalgia on a daily basis, work full time, and in addition work towards a degree while building a blog and business. Like I said earlier though, my community pushes me forward. They give me the energy and support I need to get back up.

    I would truly appreciate support from the chronic illness community now by endorsing both my nominations at the link below. Earning this award from my community and my readers is just the incentive I need to take myself to the next level and truly make a difference in the world.

    Make a Difference Today

    You can make a difference in the chronic illness community as well! If you haven’t subscribed to my blog yet, please do so below so you can see when there are opportunities to help your community. I also encourage all to visit International Support Fibromyalgia Network as they not only have resources but provide advocacy opportunities as well. Gentle Hugs to all my fellow Chronic Illness Warriors!

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • 10 Tips On Attending Comic-Con With Fibromyalgia

    10 Tips On Attending Comic-Con With Fibromyalgia

    My husband and I have been coming to San Diego Comic Con for years. Sometimes he goes without me, but I believe it’s been about 15 years. He is an art collector and recently began writing comic books as well. He is well known and really this is more like a side business for him than a hobby. It seems every year I say I’m not coming back because it is so hard on my health, yet I end up going again. This is my story on Comic-Con and Fibromyalgia and how to balance both.

    What is Comic-Con?

    Comic-Con International is just what it sounds like. It is a comic book convention that is held throughout the world. The convention started 50 years ago and was more comic book centered. As Hollywood entered the scene, Comic-Con expanded to movies and television. The convention now has something for everyone and has grown to such massive popularity that it is very hard to even get a ticket sometimes. If you have ever seen the Big Bang Theory episode where they are trying to get tickets, then you know. My husband used to have several computers lined up to try to get in.

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    What I love about Comic-Con

    There are many things that keep me going back to Comic-Con each year. It is a lot of fun to be so close to celebrities that you admire. There are signings you can attend (if you are lucky and get into the lottery). I enjoy attending panels where you get a look at upcoming episodes and hear first-hand where the show is going. Unexpectedly, I also love talking with the comic book artists. Over the years my husband and I have had awesome experiences with artists. Although, I am not into comic books it is always nice to meet kind people.

    What I hate about Comic-Con

    They allow too many people to attend Comic-Con. This makes it hard to even get from one place to another. The lotteries they hold are supposed to make things more even, yet some people get nothing, and others get several things. Sadly, I think that Comic-Con has outgrown San Diego and it really needs another location that better fits its growth.

    Comic-Con and Fibromyalgia

    I have attended Comic-Con while having Fibromyalgia before, so I knew how hard it could be. I recommend getting parking under the convention center. This is also only on sale during a lottery. However, two years in a row we have purchased parking on EBAY. Parking under the convention center allows for easier access when you need to go and rest from all the people.

    This year, I brought a walker, which was the best decision I ever made. The walker was hard to navigate in the crowds sometimes. However, it really came in handy more than it didn’t. I was able to sit down so much more often, which meant less trips back to the car. Since I had a place to sit, we were able to get into panels we might not have gotten into without the walking aid. In addition, my walker had a storage bin. This meant I didn’t have to lug around a heavy backpack.

    My advice for Comic-Con when you have Fibromyalgia

    • The first thing you should do when you get there is go to disability services between A and B. Here you will get a sticker put on your badge and you can have one person as your attendant. If you have questions always ask. For some reason they don’t seem to willingly give out information, but they will if you ask a specific question. An example of this is that ADA can get into the convention center through door B2.
    • They put out a pdf of the program guide and exhibitors a few days before the convention. Looking through these and planning things out will really help.
    • Have an outline, but don’t have a set plan. I say this because you never know for sure if you will get to do something or not. So, you have to have a plan B and C and be ok with whatever happens.
    • If you want to get into Hall H (this is where all the really popular panels will be) then you either need to stay till 9:30pm or show up before 7:30am. This is when they hand out wristbands and also goes for ADA line.

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    • If you need to a place to sit down or rent a mobility aid, then disability services is the place for that.
    • Bring your pain medications and pain creams, you will need those.
    • Prepare healthy snacks so you won’t be tempted to buy the junk they serve there. Although, I did splurge once on a pretzel.
    • If you have anxiety like I do, breathing exercises really helped me so much. Breathe in counting to 4, hold for count of 2, breathe out for a count of 6, repeat.
    • Again, you have to ask questions. So, always ask if there is an ADA line for something you want to do. There may be one and it won’t be advertised.
    • If you are flying into the convention, or don’t have room in your car there is a FedEx service on location. This is very handy because you will be buying many things. In addition, you can also check your bags for a small fee. This will allow you to enjoy yourself without having to carry all your purchases all day.

    Comic-Con and self-care

    Even if you don’t have a chronic illness like Fibromyalgia, self-care is a must while attending Comic-Con. The reason I say this is because the con is 4 ½ days of early and long days. There is so much to do there from anime to video games. Not to mention, the convention has spread all throughout the area. There are things to do for miles and some things you don’t even have to have a badge for.

    My self-care techniques include:

    1. Proper nutrition: You are on vacation and you know your body, but I suggest staying as close to your normal diet as possible. I have IBS and it can have devastating effects on my stomach to consume things that bother me. I did this by bringing my own snacks.
    2. Hot-Tub or bath: Using the hotel hot tub or just taking a relaxing bath can do wonders for your body. You are walking probably more than you are used to and pushing your body. So, bring your swimsuit.
    3. Yoga: Every morning and evening I would do a few yoga poses to help loosen my muscles. I even do stretches in the shower with the hot water hitting me. Afterward, I apply CBD pain cream (linking to the cream I use). This really helps keep the pain down.
    4. Routine: It can be a challenge to keep up your nightly or morning routine when on vacation. However, I think you will find if you keep your routine as close as possible you will find it relaxing.

    Have fun

    These are all the tips I can give you to have a good time at Comic-Con while trying to balance a chronic illness like fibromyalgia. For me and I’m sure for many fibromyalgia warriors out there, it is hard to predict how your body is going to handle an event like this. Almost every day I woke up feeling like I wasn’t sure how I was going to make it through. With the tips above I did make it and I even had fun. I had some hard times, but overall, I managed to go with the flow a little more than I usually do, and it was fun.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • How To Power Through With A Fibromyalgia Diagnosis

    How To Power Through With A Fibromyalgia Diagnosis

    Meet Hilary Neumann! She has lived with Fibromyalgia and several other diagnoses for many years. In the video below she tells her story of how she handles living with fibromyalgia. Her strength and determination to live her best life has shown me how to power through when living with a fibromyalgia diagnosis. Listen to her story below:

    Different Fibromyalgia Treatments

    Hilary has lived with fibromyalgia for twenty years and has tried many different treatments. Today, she is trying “outside the box” treatments like aqua-therapy and massage. However, these treatments are not covered under her insurance. It is important that fibromyalgia patients have treatments that are accessible, not just available. This is why it is so important that we continue to let our legislators know how fibromyalgia affects us daily.

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    How To Power Through With A Fibromyalgia Diagnosis

    Hilary’s story is one I’m sure many of you can relate to. She lived with fibromyalgia for twenty years without an actual diagnosis. She sought out treatments. Really, trying anything she could to take control over her symptoms. All the while, living her life and raising her kids. The strength I saw in her while telling her story was very inspiring.

    “I’m suffering from a silent disease. I hurt everyday. I hurt from head to toe. My brain fog, is actually my brain hurting.”

    Family And The Importance Of Having Support

    Hilary’s husband is supportive of her illness and just like us is also frustrated by it. It is so important that we have people around us for support. It makes me so happy that Hilary has someone in her corner to help her power through with her fibromyalgia diagnosis.

    “I dont’ want to be treated different. I just want you to undertand. Don’t think that I’m lazy, that I can’t do it. I CAN when I feel good.”

    Again, I want to thank Hilary for telling us her personal story. Also, for showing us that we can still live our best life, we just have to power through! If you would like to connect with Hilary you can do so through Facebook:

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Finding The Humor In Fibromyalgia

    Finding The Humor In Fibromyalgia

    Meet Jessica Hooten, she is a fibromyalgia warrior who chooses to find the silver lining about her diagnosis. In this video she tells us all about how she was diagnosed with fibromyalgia, treatments she has tried and how she handles getting through each day. Secret: She does it by finding the humor in fibromyalgia.

    Search For A Fibromyalgia Doctor

    Jessica, like many of us has had sleep issues. She has been to a rheumatologist and a sleep doctor to try to ease her symptoms. Finding treatment and answers can be difficult and Jessica shares her journey with us.

    “You don’t want to have something….but can they just find something, so we know what to do.”

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    Finding a good primary care doctor has been what helps Jessica. She is lucky to have a doctor that is trying to understand her condition.

    Fibromyalgia And Going To Work

    Jessica works and tells us how hard it can be sometimes. Some days she struggles to get to work. Many of us can understand this feeling. How does she get through it? She just goes, because once she gets there she knows she will be ok. She is also fortunate to have understanding co-workers.

    Day To Day Living With Fibromyalgia

    Fibromyalgia has become so normal for Jessica that she often forgets that things that are going on with her are because of fibromyalgia. She states it takes her longer to heal from surgery than someone that doesn’t have it. She gives a lot of advice on what helps her day to day pain.

    They tell me it is not progressive, that it doesn’t get worse, but I feel like it has.”

    Staying Postive When Living WIth Fibromyalgia

    How does Jessica stay positive? One way is that her and her husband joke about it with each other. She keeps in perspective that although she may be hurting, there are people worse off than her. She gives some advice:

    “You have to just accept it.

    “It’s going to be ok. You are going to have another good day…when it comes you will appreciate it.”

    “Knowing what makes you feel better and doing those things.”

    “You have to fight it!”

    She has support around her and they keep it light hearted and help her find the humor in the day to day struggles. She is thankful but also does get depressed. The challenge of keeping fibromyalgia in perspective is a day to day fight. A fight that she is willing to do with a smile on her face.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • How To Express Gratitude When You Live In Constant Pain

    How To Express Gratitude When You Live In Constant Pain

    Living in constant pain can make a person lose hope. Not everyone can understand how much harder regular tasks can be when you have a chronic illness like fibromyalgia. I recently found myself in a vicious cycle of feeling sorry for myself. So, I did some reading and found some ways to find happiness and guess what? Expressing gratitude is a big way to find happiness. Of course, I have to share what I have learned with all of you, so here is how to express gratitude when you live in constant pain.

    Why You Should Express Gratitude

    I know when I came across this information it seemed a given that feeling grateful makes you feel good. But, it is important to know why you should do it. So, here are some benefits.

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    1. Improve your health by boosting your immunity.
    2. Can increase your optimism, especially if you are naturally a pessimist (like me).
    3. Widen your perspective so you can see all sides.
    4. Find happiness
    5. Show you the bright side
    6. Feel appreciation for your circumstance.

    To be honest, I am mostly a “glass is half empty” kind of person. Add some incurable chronic illnesses and you have the recipe for further depression and unhappiness. Truly, I know no one wants to live this way, especially me. That is why I had to find a way to see the light. Honestly, it would be so easy to let the darkness claim me; but what about my life- what about those that love me? Ultimately, this is where the search for happiness came in for me. I hope you decide to go on this journey as well.

    How to express gratitude

    There are so many little ways you can practice gratitude everyday of the year, not just around the holidays. If you are like me and find it hard to find the bright side, or at least it takes some effort then I recommend practice, practice, and more practice. Finally, here are some ways I find work for me:

    1. Meditation: You can do this on your own or in a guided session. If doing on your own, focus on something or someone that you find you are grateful for. I use the Calm app and they actually have a 7-day series on learning to find gratitude.
    2. Journal. Write 3-5 things in a journal every night before bed that you are grateful for. Then, recite them out loud or in your head. As you do this let your whole body feel the appreciation.
    3. Write someone a gratitude letter. I love this one because it makes you both happy. Basically, you just write a letter to someone and tell them how their action made you feel.
    4. Give a small gift. This could be as simple as bringing a treat into work for your co-workers, a small trinket for a friend or flowers from your garden. Really, it doesn’t have to cost much but the small gesture tells the person that you appreciate them.
    5. Publicly thank someone. This is an easy one to do on social media. Share a photo of someone you are grateful for and tag them. Include a message of what they do that you are so thankful for. This is another feel good one for both involved.
    6. Random acts of kindness. I absolutely love this one because this is also something you can do anonymously. I don’t know if you have ever experienced giving to someone without them knowing it was you- it just leaves a warm feeling all over.
    7. Pay it forward or pay it back. An example of this is if someone in a drive through line paid for your order, then you pay for the person behind you in line. Paying it back means that you do something nice for the person who is doing something nice for you. When you have a chronic illness this goes double for your caretaker. Honestly, it can be as simple as giving them a smile or a hug and saying thank you.
    8. Give someone your full attention. These days with so much happening at once it can be hard not to try to multi-task while someone is trying to talk to you. However, you can show them gratitude by putting everything down and just listening.
    9. Be creative! Sit down and make a list of all the ways you can show someone your gratitude. If you have a certain talent use it! Examples of this are writing a poem, singing a song, playing an instrument or even making a special dish. Really, the possibilities are endless.
    10. Make this a habit. Expressing your gratitude can be as simple as thinking about how grateful you are for anything and everything. Clearly, you don’t have to go to all the lengths listed above and you can certainly do more. The most important thing is to find a way to do it.

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    My journey of gratitude

    Before I became ill, I was the go to person in my household. If something needed to be done it was probably me that did it. I took care of everyone and everything, except myself. Most moms can probably relate to the thankless part of our jobs. There was hardly a thank you given to me.

    After I was diagnosed with fibromyalgia, see my full story in Coming Out With A Invsible Illness, things started to change for me. It didn’t happen right away though, it took some time and me getting worse. I was in terrible daily pain, severe exhaustion even when I did nothing to warrant it and I just couldn’t function. Sadly, this included doing cooking, cleaning and taking care of my kids and husband. I just couldn’t do it anymore. Ultimately, the dynamics of the house had to change!

    My kids started helping out more and my husband not only shared in more chores he was often the only one doing them. I guess since I came from the one doing everything to now not being able to hardly do anything I could appreciate the help. Eventually, I figured out that by showing my gratitude to my family, I actually felt a little better overall and happy. Even though I didn’t feel I had many reasons to be happy, I started finding the reasons!

    How to keep gratitude going

    It is important for me to keep being creative with how I show gratitude. It was stated in a gratitude meditation by Tamara Levitt from the Calm App that, “gratitude can be a superpower!” I mean all you have to do is just look at all the benefits that I listed in the beginning of this article; it truly is amazing. So how can you keep it up?

    1. Like I said before practice, practice, and practice.
    2. Make a ritual out of it.
    3. Keep a journal of not only the things and people you are grateful for, but how you have shown them your gratitude.
    4. Give yourself time to make it a habit and don’t give up.
    5. Show yourself gratitude as well by constantly “flipping the script” on negative thoughts and reminding yourself of your positive qualities.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • How To Re-Create Your Life After A Fibromyalgia Diagnosis

    How To Re-Create Your Life After A Fibromyalgia Diagnosis

    We talk a lot about how fibromyalgia affects women, but did you know than men can have it too? I want to introduce you to Ted Hutchinson, That Gaming Dad! We had a really good conversation about everything from getting diagnosed, living with fibromyalgia as a man and advocating for our community. He not only tells us how much harder it is to get diagnosed as a man but how to re-create your life after a fibromyalgia diagnosis.

    Ted talks about what goes on behind the scenes for someone living with a chronic illness like fibromyalgia and CFS.  

    Ted explains to us that he initially was treated for “acute injuries” and it took eight years to finally get diagnosed. His symptoms started with back pain and exhaustion.  He had to finally find a doctor who had experience with fibromyalgia to get diagnosed. This is when he realized there wasn’t a simple fix he remembers thinking, “cool….we can take care of this and I get back to my normal life, right? Unfortunately, that wasn’t the case and it has been a very long road.”

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    For Ted getting off the pharmaceuticals and finding holistic ways to improve his symptoms has been key. The medicine he had been on had made his life worse than they helped. He has found cannabis and Kratom to be the most helpful for his symptoms. Ted tells me that Kratom is a cousin to the coffee tree and has different strains that have different effects. Some strains help with anxiety and depression, some are like an opiate replacement and some a coffee strain. It can be addictive and should be used in moderation. It comes in many forms like powder, capsules and leaves and can be digested.

     “My pain never goes away, but I can take the edge off it to at least know that I’m not going to overexert myself.”

    “I was addicted to opiates and that was something that happened through doctor prescriptions…Cymbalta! I would rather go through opiate withdrawals then ever come off Cymbalta…that time of my life was some of the worst hell I ever felt.”

    Living With Fibromyalgia as a Man

    Ted tells us what it is like when there is a stigma around the man being the breadwinner of the house. “There is a myth that men can’t get this type of illness and it just isn’t true. He goes on to tell us how he sees the issue, “You just have to re-create your life. For me as a man, it was important to just put myself out there and share my story and just explain to people why this can affect anybody, really.”

    Ted’s Advice On Living With Fibromyalgia

    I think you will walk away from watching this video and feel inspired that you can still find a way to live a fulfilling life. I have given some quotes from the video here, but honestly they are best heard directly from Ted in the video.

    “Everyone has a path…you’ve got your own journey to go on. For me it was my gaming, my advocacy, it was sharing my story…I can still do it in this capacity, just when I’m well enough, right to be able to share my story.”

    I had to share this quote in its entirety as I felt it was so inspiring. This is Ted’s response to being asked what advice he would give someone with fibromyalgia:

    “Have faith in yourself. Have faith that you have the capacity to be able to be able to overcome whatever it is that you have going on. Does that mean you are going to overcome and go right back to being the construction worker or working 50-60 hours a week? Maybe, maybe not who knows. But Have faith in yourself that you can re-create a life for yourself and create things that are positive influences not only to yourself but the people around you. So, while you may get this heavy burden that has been put upon you. You have a duty to be able to take that burden and hopefully be able to lighten that own load for yourself.  You yourself don’t’ deserve to have to carry that all by yourself. There are people out there that love you and people who do support you. You just have to be able to step outside your own self and look at the big picture and have faith that you can overcome anything. Not even in a religious aspect just faith in yourself. Believe in you!”

    Advocacy

    Ted has built a community with his video gaming on Facebook. His community talks about important issues while playing. He also uses this platform to connect with his kids and bringing those in the chronic illness community closer together.

    “Even if you are sick, even if you have things going on you can still make a name for yourself and you can still put your name out there and you can still make a life. It just may be a different life than you were used to.”

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • How I Let A Pandemic & Fibromyalgia Break Me and How I Fixed It

    How I Let A Pandemic & Fibromyalgia Break Me and How I Fixed It

    It has been awhile since I sat down to write. Life has been overwhelming, wouldn’t you agree? I’ve been contemplating my place in the world and what I want that place to look like. I’ve shed most of my responsibilities and stayed away from social media, so you might be wondering why now am I deciding to write? Well, to be honest I feel broken and I need to put myself back together. So, let’s find out how I let a pandemic and fibromyalgia break me.

    Too Much On My Plate

    It started with putting too much on my plate. I love this analogy! What happens when you go to an all you can eat buffet? You eat too much, don’t you? You sit there with too much on your plate and not only that but you have several different plates sitting in front of you. I don’t even eat everything, so what does that mean? It means things get wasted. That is what I have been doing. Trying to accomplish too many things at once has led me to wasting certain things in my life.

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    I had to admit I couldn’t do it all anymore. So it became necessary to not only put less on my plate but to make my plate smaller.

    Fibromyalgia and Depression

    If you have fibromyalgia then you have probably battled with depression. For some reason they tend to go hand in hand. It could be due to what fibromyalgia does to your body and soul. For me, depression came first and I easily fall into it and I’m not talking about just feeling sad. This is full blown, can’t move, paralyzed with darkness depression. I talk a lot about fighting depression. Honestly though, it is an illness on its own and I don’t control it. If I use my tools I can manage it, but I can’t seem to do anything to make it go away.

    Staying home for months has made it clear to me that I am an introvert, no doubt about that. However, there is an extroverted part of me that thrives on spending time with other (select) people. In fact, I now believe that being social in some way is what has helped me keep my depression in check. Without that interaction, I have fallen into the abyss. Really, I had let a pandemic and fibromyalgia break me.

    Fibromyalgia and Anxiety

    My anxiety is deeply rooted for many reasons and I tend to let my mind go on the worry trail until I’m so worked up I can’t cope. This, my friends, takes practice to control. Lucky me, I also have IBS and that alone has created an anxiety in me that is hard to beat. So you throw in a pandemic and worry over my health and my loved ones and you have a recipe for disaster. If you are someone who is not worried about getting the Coronavirus, then I am happy for you. I am not one of those people. I worry about my family, my friends and myself.

    For my friends that have anxiety like I do, lets talk about how we can take a little control back. First of all, have you heard of the expression, “don’t worry about what you cannot control?” This is a hard one, but it is necessary. Can you control getting the virus? Yes and No. You can wash your hands, not touch your face, wear a mask and social distance. You must weigh the cost versus benefit when it comes to any activity outside the house. We can’t control other people, so all we can do is control our own actions. Sadly, anyone not following safe behavior is not someone I am going to be around right now. All of these steps help calm my anxiety as I take control of what I can do.

    Putting myself back together

    To be honest, I started writing this article a month or so ago. I was feeling completely broken. Now, I wouldn’t say I’m back to normal yet, but I’m getting there. I take as many steps toward wellness as I can take and forgive myself when I falter. An example of this is that I force myself to do things like ride my bike, go for a walk and stretch. I find my center while meditating. I am part of two clubs at my university and on the board of one. This has reminded me how important it is to be a part of something bigger than myself.

    I try to remain in the present with a hopeful eye to the future. This is hard with so many horrible atrocities happening all around us. Now more than ever, I am controlling who and what is around me. I deleted all my social media apps to prevent myself from going on there and I try to keep as much positivity as possible. I’m not saying that I’m not paying attention, I’m just weeding out the unnecessary. For anyone having a hard time like I am, I want to remind you of the available resources out there for you. There is the crisis text line, just text 741741. In addition, there is always the suicide hotline 800-273-8255. Sometimes it helps to speak to someone outside your life. If you feel comfortable it also helps to confide in a friend or loved one. You may find that they are also having a hard time right now. We will get through this together.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • College Student With Fibromyalgia? Here Is How To Stay Organized.

    College Student With Fibromyalgia? Here Is How To Stay Organized.

    At the age of thirty-nine I decided to go back to college and finish my degree that I had started over 20 years prior. If I thought college was hard at eighteen, I had no idea what was in store for me. At this time, I was married with three kids and a full-time job. I wondered how I was going to fulfill all my responsibilities. I didn’t know at first what my end goal was going to be other than just getting my AA. It wasn’t until a couple years in that I finally decided on Psychology.

    Not Your Everyday Challenges

    About a year into taking 2 classes per semester and working full-time I was diagnosed with fibromyalgia. I always ran myself ragged as an adult, so I was used to feeling tired all the time. This time though the tired came with pain, a lot of pain. My first reaction was that I wasn’t going to let anything stop me, not even fibromyalgia. I pretty much didn’t until 2018. This was the year that fibromyalgia stopped my whole life. I had to take time off from work and school for a few months. Even when I went back to both I still wasn’t at full capacity.

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    I seemed to have developed a tenacity in my old age though and I still wasn’t going to quit. I kept on taking 2 classes per semester and working full-time. Let’s not forget still raising a family at the same time. This has not been easy, but nothing worth doing is.

    Staying Organized

    I often hear, “I don’t know how you do it” from people. I always tell people my two secrets are that (1) I have a planner that I use for everything and (2) my house is a mess (don’t judge). When you are working towards a goal sometimes sacrifices have to be made. Sadly, what I sacrificed a lot of was taking better care of myself (see above flare). The other part that has been hard is the fact that I am a Virgo and I LOVE organization. But loving being organized and having the energy to clean and organize your house are separate. I can’t do it all, so I have to choose.

    This is exactly how I organize my college career down to the semester level. I do not claim that what has worked for me will work for you. The key is you have to take your own life circumstances into account and do what is best for you.

    It helps if you define your goal completely. This means knowing what you are working towards and how to get there. If you were like me and couldn’t see that far ahead then I broke down my goals.

    1. Finish my AA
      1. Use your college advisor to help determine what classes you need.
    2. Find my passion and/or interests while working on my AA
      1. Take classes that sound interesting, not just requirements. If it meets both even better!
    3. Decided major is psychology
      1. Map out the reality of what it will take to choose that major and what jobs are available with each progressive degree.
    4. Transferred to University to complete my BA
      1. Make sure the university you choose has proper accreditation (regional, etc)
    5. Choose what to do with BA                                             
    6. PhD or Masters?
    7. Decided on Masters….choose graduate school/program

    I’m still working on this, but this is my basic guide on decisions I need to make and breaking the big goal down to smaller ones.

    Semester Goals

    The first step I take at the beginning of each semester is to map out my semester. I am addicted to Erin Condren planners, but you can use any that you want. I write out each week’s readings and assignments, making special note of bigger projects or exams. This really helps me plan out my energy to make sure I complete everything when I have the most energy. I recommend planners and even wall calendars so you can easily visualize what is to come. You can even use technology and utilize apps on your phone for assignment reminders.

    Speaking of technology if you are using Word or Google Drive make sure to break down courses into corresponding folders to keep all your documents organized and easy to find.

    Each week I look at what is expected of me in my classes and then I fill in other responsibilities outside of school. Each Sunday, I review the week ahead and see where I can fit each item in the best. I have learned to give myself plenty of leeway for those days I don’t feel well. This has served me well over the last seven years. Granted there have been times I had to really struggle and push through pain and exhaustion, but that is also just part of living with fibromyalgia.

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    More Tips and Tricks

    1. When I was working on my AA, I had to take classes at the college physically. This was a challenge since I worked all day. My secret to getting through these days was to not just pack lunch for work, but dinner as well. I went straight to school after work and sat in my car. This was my free time and I could either eat my dinner and do some homework or take a nap (which I often did). I recommend only a 20-minute nap at the most, otherwise you will feel too tired to go on with your night.
    2. Since enrolling in Penn State World Campus all my classes have been online. Still I feel drained after work and so I often lay down for a quick nap before starting any homework. Sometimes this ends up that I cannot function the rest of the night. This is where the planning and allowing leeway from above comes in. This is why I plan for earlier deadlines to give myself more time if I need it.
    3. Join clubs! You are not too old, and this is a great way to establish social support. In addition, if you do want to go to graduate school having some extra-curricular activities is good for your application.
    4. Wellness is so important to maintain while completing college. This is the one area I struggle with the most and need this reminder myself.

    Ways to maintain wellness

    • Find nutritious snacks to keep at your desk while you study.
    • Read while on the treadmill or bike.
    • Get enough sleep.
    • Drink plenty of water.
    • Use meditation to clear your mind.
    • Sometimes you have to just put it all down and go for a walk outside!

    These are just some of the ways I have gotten through college as an adult-student with fibromyalgia. I think being a college student with fibromyalgia is possible and I hope these tips help you! Feel free to reach out if you are in the same situation. I would love to hear any tips and tricks you may have as well.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store