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  • The 5 Ways My Artwork Helps Me Cope with My Multiple Chronic Diseases

    The 5 Ways My Artwork Helps Me Cope with My Multiple Chronic Diseases

    ‘Art enables me to face my body and my life with courage.’

    Chronic 24/7 pain, fatigue, swelling, and a host of other symptoms are all part of my journey with rheumatoid arthritis, axial spondyloarthritis, osteoarthritis, fibromyalgia, and other chronic conditions I’ve been living with for years. I’ve loved drawing since I was a child, and after my RA diagnosis in 2011, I started to create art more regularly. As my diseases progressed and multiplied, my art became more integral to expressing my experiences.

    Over this past year, I’ve been fortunate to start sharing my artwork on a much bigger platform than my own social media pages. Chronicwoman started publishing my art regularly — and the supportive, empathetic, and eye-opening responses I’ve been receiving from the chronic illness community have gone beyond my wildest expectations. I gave a keynote address about how my arthritis impacts my art at the annual meeting of the National Organization of Rheumatology Managers (NORM) and presented my artwork at the Spring/Summer 2020 New York Fashion Week show of designer Michael Kuluva, who also lives with rheumatoid arthritis.

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    I’m particularly proud of developing an abstract about how my artwork helps me cope with arthritis for the 2019 American College of Rheumatology/Association of Rheumatology Professionals (ACR/ARP) Annual Meeting in Atlanta. It’s part of the Patient Perspectives Poster Session, which invites patients like me to address “adaptations developed with their health care team that have improved their health.” I gave a lot of thought to the specific ways that creating artwork that visually conveys patients’ experiences of arthritis symptoms has helped me and others cope with our diseases.

    Here’s what I realized — and shared in my ACR abstract:

    1. Creating art that expresses my pain and health struggles helps me trust my body.

    Art helps me to listen to my body, enabling a more flexible reaction to pain episodes or flares.
    Listening to my body in the first place got me diagnosed and got me the medical help that I needed. My health and body took an upturn when I learned to not fight the cycles of flares, pain, and disease. Listening to my body for cues allowed me to function more because I rested or pushed when needed. I learned my patterns and strengths, allowing me to accomplish more when I have energy without overdoing it.

    2. Visual art enables me to express my journey while reaching out to others.

    I am an expressive person and found myself discussing my diseases a lot due to the need for accommodation or support. But symptoms like constant exhaustion, lack of sleep, high pain levels, RA flares, and bouts of back pain left me without the capacity to use words.

    When I began to publish these pieces on social media, the overwhelming response reminded me that I’m not alone on this journey and that my body is telling the truth.

    I’m able to process my grief over lost abilities, deteriorating health, and describe my experience and journey with inflammatory arthritis in a more universal way, without words.

    3. My art allows me to show my life and struggles in a way that makes abled folks stop and take notice.

    Visual representation helps other patients point to a piece that validates their pain and creates better connections between people.

    4. People with inflammatory arthritis need to know that what they are experiencing is normal.

    My art helps me and others cope better because we see visually what is happening invisibly to our bodies. It validates our experiences and lets us know we are not alone in what is happening to us.

    5. Art reminds me how powerful my mind and heart are so I can pick myself up one more day and live for good instead of being lost in pain.

    It gives me the ability to look back on a piece of artwork and remember the pain and my resilience and power in the face of intense circumstances.

    It fulfills my need to be creative but also my need to take control of my life and body in a way that makes sense, allowing me to accept where I am.

    It gives me the chance to process what is happening so I don’t fight the disease process. Art enables me to face my body and my life with courage and hope.

    https://fibromyalgia-6.creator-spring.com/
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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Medical Marijuana for Arthritis: Does Legal Status Affect Whether Patients Use It — or Talk to Their Doctor About It?

    Medical Marijuana for Arthritis: Does Legal Status Affect Whether Patients Use It — or Talk to Their Doctor About It?

    No matter who you talk to in the chronic pain, arthritis, and musculoskeletal disease community — patients, clinicians, researchers, public health experts — medical marijuana is controversial. Is it safe? Is it effective for treating pain and inflammation? Should it be legal?

    While more clinical trials are sorely needed to understand the benefits and side effects of using medical marijuana to treat conditions like arthritis, it’s important to understand how patients think about and use marijuana to manage their conditions. The United States has a complicated quilt of state laws about the legal use of marijuana. Presently, 33 U.S. states have laws that allow for the legal use of marijuana for medical reasons, according to the National Conference of State Legislatures. (When you add recreational marijuana use and the legality of cannabidiol or CBD to the mix, things get even more confusing.) We have to recognize that its legal status may, in fact, influence whether patients use marijuana — or feel comfortable talking to their doctor about it. So researchers, including those from our non-profit organization, the Global Healthy Living Foundation (GHLF), set out to study this.

    In research presented at the 2019 American College of Rheumatology/Association of Rheumatology Professionals (ACR/ARP) Annual Meeting in Atlanta, researchers surveyed 1,059 patients through the Chronicwoman patient community and the Chronicwoman research registry. Of those, 37 percent of people reported using marijuana for medical purposes, either presently or in the past. Of those, the majority said they did so to manage a specific health condition, such as:

    Nearly two-third of people currently using medical marijuana reported doing so at least once a day.

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    How Medical Marijuana’s Legal Status Affects Patients’ Usage

    In this study, 77 percent of current or past marijuana users live in a state where it is legal for medical reasons. Just 40 percent of current or past users said they used a medical marijuana card to purchase it. Among the 60 percent of study participants who did not use a medical marijuana card, the top reasons included:

    • Not being legal where the patient lives: 42 percent
    • Cost of marijuana is more expensive through a dispensary: 19 percent
    • Difficulty getting a card: 18 percent

    Of the approximately two-thirds of patients surveyed who said they had never used marijuana for medical purposes, illegality played a big role: 40 percent cited that as a reason they haven’t used it. Other reasons for not using marijuana included:

    • Potential impairment: 24 percent
    • Not knowing where to obtain it: 21 percent
    • Not knowing how to obtain it: 20 percent

    How Medical Marijuana’s Legal Status Affects the Doctor-Patient Relationship

    Our research found that there was a link between whether medical marijuana was legal where patients lived and whether patients spoke with their doctor about their usage. Among patients who live in states where marijuana is medically legal, 68 percent said they told their doctor about using it, while only 54 percent of patients in states where medical marijuana was not legal talked with their doctor about it.

    “It’s alarming that not everyone is telling their doctor about their marijuana use, regardless of its legal status,” says study co-author W. Benjamin Nowell, PhD, director of Patient-Centered Research at the Global Healthy Living Foundation. “It is important that your rheumatologist and other providers are aware of what you might be using in addition to prescribed medication.”

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    A Lack of Research and Mixed Messages About Effectiveness

    If you’re a patient who uses medical marijuana (or CBD, for that matter) to help treat your arthritis symptoms, your health care providers should know about it. Ideally, providers would make patients aware of potential side effects and interactions with other medications they use, advise on dosages, and help patients monitor and evaluate whether these treatments are helping. But our research, and that of others, indicates this isn’t always the case.

    Earlier findings from the same survey, for example, noted that only 42 percent of patients perceived that their health care provider integrated their medical marijuana usage into their overall care (for example, made note of it and discussed how it fits in with other medications they take).

    In a separate, unrelated study presented at the 2019 ACR meeting, when researchers at the University of Vermont Medical Center surveyed rheumatology clinicians about their patients’ usage of medical marijuana and CBD, they found that 45 percent of more than 100 doctors disagreed that marijuana or CBD should be recommended as medical therapy for people with rheumatologic conditions.

    Here, legality may play a role too: More doctors who practiced in states where marijuana was legal for medical and recreational use said they were comfortable addressing questions about usage than in states where it was not legal. The authors concluded that “surrounding laws likely impact clinician perception and comfort with medical use.”

    Part of this challenge is a dearth of solid research that rheumatologists and other doctors need to feel comfortable making recommendations to patients. In fact, in a recent paper published in the journal Expert Review of Clinical Immunology, researchers reviewed animal and human clinical studies on the use of cannabis for treating rheumatoid arthritis, osteoarthritis, systemic lupus erythematosus, systemic sclerosis, and fibromyalgia. “Despite the presence of studies supporting the benefits of cannabis, the researchers were unable to definitively conclude that cannabis or cannabis-related products are safe and effective for treatment of rheumatic diseases,” reported Clinical Pain Advisor. “They noted a gap between animal and clinical studies, as well as the paucity of studies examining long-term adverse effects. Large-scale clinical trials are necessary to examine the safety and efficacy of cannabis before it can be recommended for the management of rheumatoid arthritis, osteoarthritis, and fibromyalgia.”

    “Indeed, our [Chronicillness.co and Chronicwoman.com] research shows that despite a lack of quality evidence to guide the usage of medical marijuana and regardless of its legal status, many patients with arthritis are using it — and need more support,” says study co-author Kelly Gavigan, MPH, manager of research and data science at the Global Healthy Living Foundation (GHLF). “We need high-quality randomized controlled clinical trials to better understand whether and how medical marijuana might be used to help patients manage these diseases, in conjunction with their recommended medication.”

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • These Are the Methotrexate Side Effects That Make Arthritis Patients Stop Taking It

    These Are the Methotrexate Side Effects That Make Arthritis Patients Stop Taking It

    Methotrexate (MTX) is considered a “first-line” therapy for rheumatoid arthritis (RA) and is also used to treat psoriatic arthritis (PsA). But despite the well-known benefits of helping to reduce symptoms and prevent disease progression, methotrexate has a very mixed reputation among arthritis patients.

    Perhaps because MTX is so commonly prescribed, many inflammatory arthritis patients start to worry about whether or not they’ll have to take it almost as soon as they’re diagnosed. “For anyone with RA, initiation into the MTX club seems particularly harrowing,” RA patient and Chronicwoman contributor Dibs Baer wrote about starting to take methotrexate. “I admit that I waited weeks to start taking it when I first got diagnosed with RA.”

    In particular, many patients have questions, concerns, and fears about side effects from taking methotrexate — everything from hair loss to serious, though rare, issues like liver toxicity.

    Do patients’ concerns about the bothersome effects of methotrexate have an impact on whether they take the medication consistently? The benefits of early and consistent treatment of inflammatory arthritis are well established, so the fact that a patient’s discomfort with methotrexate could prevent them from taking their prescription is a serious issue.

    If doctors knew more about patients’ main concerns regarding methotrexate, could they do a better job at preparing patients for the potential side effects and giving advice for how to manage them? These are all issues the rheumatology community needs to know more about, so researchers, including those from our nonprofit organization, the Global Healthy Living Foundation, set out to study this.

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    In research presented at the 2019 American College of Rheumatology/Association of Rheumatology Professionals (ACR/ARP) Annual Meeting in Atlanta, researchers surveyed 371 patients with rheumatoid arthritis or psoriatic arthritis in the ArthritisPower research registry who were currently taking or had previously taken methotrexate. Here’s what we learned.

    The Most Common Methotrexate Side Effect

    Not surprisingly, the majority of patients surveyed reported that they experienced one or more side effects while taking methotrexate: 58 percent of current methotrexate users and 79 percent of people who had taken methotrexate but stopped. More research is currently underway to understand the degree to which MTX side effects play a role in whether people stop taking it.

    When patients in the survey were asked about specific MTX side effects and whether they experience them, the most commonly reported one was fatigue. About 44 percent of patients reported fatigue or tiredness from the medication, both among those currently taking methotrexate and those who had previously taken methotrexate.

    Methotrexate and GI Issues

    Patients who stopped taking methotrexate reported having substantially more gastrointestinal issues — including nausea, abdominal pain, and loss of appetite — from methotrexate than current users did.

    • Just 26 percent of current MTX users reported nausea, compared with 40 percent of those who used it previously.
    • Just 9 percent of current MTX users reported abdominal pain, compared with 25 percent of those who used it previously.
    • Just 14 percent of current MTX users reported diarrhea, compared with 18 percent of those who used it previously.
    • Just 10 percent of current MTX users reported loss of appetite, compared with 17 percent of those who used it previously.

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    Overall Perceptions of Methotrexate

    However, despite many patients reporting side effects, those who currently take methotrexate consider the drug important in managing their disease and health. Nearly two thirds (65 percent) of current MTX users agree that the medication “protects me from becoming worse.”

    About half (47 percent) said that their health depends on methotrexate. Forty three percent agreed that “my life would be impossible without my methotrexate.”

    Managing Methotrexate Side Effects

    If you’re taking methotrexate for your rheumatoid arthritis or psoriatic arthritis, it’s important to talk to your doctor about any side effects that you may be experiencing.

    “We know many RA and PsA patients discontinue methotrexate with or without their physician’s knowledge,” says study coauthor W. Benjamin Nowell, PhD, director of Patient-Centered Research at the Global Healthy Living Foundation. “We hope this research provides insights to both patients and doctors about the side effects patients most often report and are most concerned about. Improving communication about these side effects and how to manage them may help patients to keep taking this beneficial medication or to request an effective alternative. Either way, it’s important to keep in mind that early, aggressive, and consistent treatment is the best way to improve their long-term outcomes.”

    You and your doctor may discuss taking some of the following steps to reduce the side effects from taking methotrexate:

    Take a folic acid supplement. Folic acid is a type of B vitamin that you need for your cells to divide and grow normally. Folic acid is also essential in the production of red blood cells. Methotrexate blocks some of the actions of folic acid, which can lead to side effects such as mouth sores, abdominal pain, liver problems, hair loss, and anemia. Taking folic acid supplements can help offset MTX side effects.

    Take methotrexate after meals, which may reduce the risk of stomach upset. Your doctor may also consider prescribing other medication to help treat symptoms like nausea and vomiting.

    Use a lower dose. According to the Hospital for Special Surgery, many MTX side effects can be resolved by lowering the dose. However, you should never lower the dose or stop taking methotrexate without the guidance of your doctor.

    Take MTX close to the weekend. For patients who report fatigue to be an important side effect, taking the medication, which is often given weekly, on a Friday or Saturday can allow you to rest and recover over the weekend.

    Consider the side effect profile of other medications you take. Many other drugs used to treat RA or PsA can also cause similar side effects. For example, some patients who use non-steroidal anti-inflammatory pain medication (NSAIDs) report gastrointestinal (GI) upset as a symptom. Make sure your doctor knows all of your medications and supplements, both over the counter and prescription, so they can help you minimize side effects and interactions.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • The Arthritis Symptoms That Matter to Patients May Not Always Be the Ones They Discuss with Their Doctor

    The Arthritis Symptoms That Matter to Patients May Not Always Be the Ones They Discuss with Their Doctor

    One of the main reasons people with arthritis visit the rheumatologist frequently — every three months is common among patients with inflammatory arthritis — is for doctors and patients to assess how arthritis patients are managing their disease. Typical check-ins may include a doctor’s physical exam and assessment as well as reviewing the results of blood tests and imaging tests.

    What’s also critical at these visits is something arthritis researchers and doctors call PROs, or patient-reported outcomes. PROs are a patient’s own assessments of how arthritis affects daily tasks — including how you rank or define the difficulty of simple activities like getting in and out of your car or buttoning your shirt — and are a very important tool for measuring and monitoring your disease.

    PROs are also important during clinical trials for medications or other treatments, as they can assess how different therapies affect patients and the symptoms that matter to them.

    There are many different PRO measures and questionnaires doctors and researchers can use, but which symptoms are most important to patients? This is an important topic that the rheumatology community needs to know more about, so researchers, including those from our non-profit organization, the Global Healthy Living Foundation (GHLF), set out to study this.

    “PRO measures are important indicators of disease activity, but as we learn more about the importance of their role in evaluating treatment effectiveness, we need to also learn more about the specific symptoms that patients find most important to track,” says study co-author Kelly Gavigan, MPH, manager of research and data science at GHLF.

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    In research presented at the 2019 American College of Rheumatology/Association of Rheumatology Professionals (ACR/ARP) Annual Meeting in Atlanta, researchers surveyed 253 patients through our ArthritisPower research registry with various self-reported conditions, including rheumatoid arthritis (RA), psoriatic arthritis (PsA), ankylosing spondylitis (AS), systemic lupus erythematosus (SLE), osteoporosis (OP), osteoarthritis (OA), and fibromyalgia syndrome (FMS).

    At the start of the study, patients could select up to 10 different symptoms they wanted to track via short health assessment questionnaires. Study participants would then go on to complete the assessments once a month for the next three months. The symptoms that patients could track included:

    On average, participants chose to track seven different symptoms at the start of the study.

    The Symptoms that Matter Most to Patients

    In evaluating the PROs that were most popular among study participants at baseline, three stood out:

    • Fatigue: 83 percent of patients chose fatigue as a PRO they wanted to track.
    • Pain: 83 percent of patients chose pain as a PRO they wanted to track.
    • Mental health: 82 percent of patients chose mental health as a PRO they wanted to track. Within mental health, 54 percent of patients wanted to track depression and 44 percent of patients wanted to track anxiety.

    Here is the percentage of patients who wanted to track other PROs in the study:

    • Physical Function: 72 percent
    • RA Flare: 70 percent (only offered to RA patients)
    • Social Health: 67 percent
    • Sleep Disturbance: 65 percent
    • Duration of Morning Joint Stiffness: 57 percent
    • Sexual Function: 11 percent

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    Putting a Spotlight on Mental Health

    Study participants were also asked to share any self-reported comorbidities, or other diseases they have along with their arthritis diagnosis. The most common comorbidity was depression, reported by 51 percent of participants. This may partly explain why so many participants were interested in tracking aspects of their mental health.

    National data show that depression and anxiety are common among people living with arthritis. According to a 2018 CDC report, 23 percent of people with arthritis reported symptoms of anxiety and 12 percent reported depression. These rates are likely even higher among specific populations of arthritis patients. For example, a 2019 study found that people with ankylosing spondylitis were twice as likely to have depression as people without AS. Other research has indicated that depression rates are higher among people with psoriatic arthritis than other rheumatologic conditions.

    “Our research shows us that mental health is a top priority for patients and they do want to keep track of it,” says Gavigan. “But we know it can be challenging for some people to discuss mental health issues with their rheumatologist or other providers.”

    In fact, other GHLF data suggest patients aren’t talking about their mental health with their rheumatologist. In a 2018 poll of ArthritisPower users, 59 percent of nearly 1,000 respondents said that their rheumatologist or primary care doctor does not ask about their mental health.

    “We hope that being able to log and track mental health symptoms through ArthritisPower can facilitate these discussions and ensure that patients get the care and support they need to cope better with chronic illness,” Gavigan adds.

    Fatigue: As Important as Pain

    As many patients — 83 percent — reported wanting to track their fatigue as they did pain, which is important for rheumatology clinicians and researchers alike to know.

    “We often hear from our arthritis patient community that fatigue is difficult to talk about with care providers,” says Seth Ginsberg, president and co-founder of Chronicwoman, which is part of GHLF. Patients report that doctors don’t always take their fatigue as seriously as other symptoms. What makes this even more challenging is that loved ones and caregivers also often struggle to understand the impact of fatigue on someone living with arthritis — that it’s more than just feeling tired. People who have fatigue from chronic illness are not “lazy” or “just need to get more sleep.” Fatigue is a physical manifestation of their disease, just like pain, stiffness, or swelling.

    “The more patients can quantify difficult-to-discuss symptoms like fatigue, and mental health concerns, the more we as a rheumatology community can evaluate disease activity, treatment effectiveness, and overall health in a broader context that more fully takes into account patients’ complex experiences living with complicated, lifelong chronic diseases,” says W. Benjamin Nowell, PhD, director of Patient-Centered Research at GHLF.

    Found This Study Interesting? Get Involved

    If you are diagnosed with arthritis or another musculoskeletal condition, we encourage you to participate in future studies by joining Chronicwoman’ patient research registry, ArthritisPower. ArthritisPower is the first-ever patient-led, patient-centered research registry for joint, bone, and inflammatory skin conditions.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia vs. Lupus: What’s the Difference?

    Fibromyalgia vs. Lupus: What’s the Difference?

    Fibromyalgia and lupus are both chronic diseases with no cure, can both cause some similar symptoms, and can both take a long time to get the right diagnosis. But fibromyalgia — often called fibro — and lupus are two very distinct health conditions with very different causes and treatments, despite having some features in common.

    Lupus is an autoimmune disorder that involves widespread inflammation and impacts many organs throughout the body. Fibromyalgia a disorder that causes widespread chronic pain and tenderness. Unlike lupus, fibromyalgia is not an inflammatory or autoimmune disease.

    Still, many signs and symptoms of fibromyalgia and lupus overlap and it’s not uncommon for fibromyalgia to be misdiagnosed as lupus, says rheumatologist George Stojan, MD, an assistant professor of medicine at Johns Hopkins University School of Medicine and co-director of the Johns Hopkins Lupus Center in Baltimore, Maryland. Both fibromyalgia and lupus can cause muscle/joint pain, brain fog, and fatigue. Both are also more likely to occur in younger and middle-aged women.

    Interestingly, another factor that makes fibromyalgia and lupus difficult to differentiate from each other is that some people have both at the same time. “Having both lupus and fibromyalgia is extremely common,” says Dr. Stojan. “In our cohort here at Hopkins about 30 percent of lupus patients have fibromyalgia too.”

    People with other rheumatic diseases such as rheumatoid arthritis, osteoarthritis, and axial spondyloarthritis are also at an increased risk of also having fibromyalgia.

    Read more to learn about the different symptoms of fibromyalgia vs. lupus, how fibromyalgia and lupus are each diagnosed, and how treatments for fibromyalgia and lupus differ.

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    The Basics of Fibromyalgia

    The U.S. Centers for Disease Control and Prevention (CDC) estimates that about 4 million American adults have fibromyalgia. While doctors don’t know what causes fibromyalgia, it is a disorder in which people often experience widespread chronic pain and sensitivity to touch, in addition to many other symptoms (more on this below).

    Unlike lupus, fibromyalgia is not an autoimmune disease, which occurs when then body’s immune system mistakenly attacks your own cells and tissues. Fibromyalgia is not related to inflammation, nor is it a joint or muscle disorder caused by physical injury.

    People at higher risk of fibromyalgia include women, the middle-aged, and those with certain diseases, including different types of arthritis, or a family history of fibro. While fibro can impair your quality of life, it doesn’t damage your tissues and organs, or cause medical problems like heart disease. It is not life-threatening.

    Common Symptoms of Fibromyalgia

    Widespread musculoskeletal pain all over the body

    Fibro’s hallmark symptom is persistent pain in soft tissues and muscles all over the body. It may involve tender points, or areas of tenderness in specific parts of body. Frequently described as a deep ache, fibro pain may move around, persist for long periods, and disappear.

    Fatigue

    More than nine in 10 fibromyalgia patients experience exhaustion. Fatigue can be especially noticeable when you first wake up in the morning, even when you’ve gotten plenty of sleep; light activity can make pain and fatigue worse.

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    Cognitive issues

    People with fibro can have difficulty concentrating or switching between tasks, frequently referred to as “fibro fog.”

    Tension or migraine headache

    More than half of patients with fibromyalgia have frequent headaches.

    Weird body sensations

    Some people with fibro report tingling, burning, numbness, or creepy-crawly sensations in both arms or legs.

    Other symptoms

    Fibromyalgia patients often also have irritable bowel symptoms, pelvic pain, and jaw/facial pain.

    Read more here about fibromyalgia symptoms.

    The Basics of Lupus

    The Lupus Foundation estimates that 1.5 million people in America have a form of lupus. Lupus is an autoimmune disease that occurs when your immune system cells — which are supposed to protect the body from different germs — start treating normal, healthy cells like invaders, attacking them and causing flare-ups that can affect the joints, skin, heart, lungs, kidneys, and almost any other system in the body.

    Women of childbearing age (between 15 and 44) are at the highest risk of developing lupus, according to the CDC; some 90 percent of people with lupus are women. People of color — particularly African Americans — are at a higher risk of lupus than white people are, and the disease tends to affect populations differently. Native American and black patients tend to have higher mortality rates than white patients, while Hispanic and Asian patients have a lower risk of lupus.

    There are several types of lupus, but most people refer to the most common form: systemic lupus erythematosus, also known as SLE. About 70 percent of people with lupus have SLE, according to the Lupus Foundation of America. Lupus can cause a range of complications; some, such as heart disease and kidney disease, can be severe and even life-threatening without early and proper medical treatment. Regular medical care that utilizes an integrated team of specialists is important to help lupus patients avoid life-potentially serious complications.

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    Common Symptoms of Lupus

    Painful, swollen joints

    These are usually far from the center of your body, such as joints in the fingers, toes, ankles, wrists, knees, and elbows.

    Swelling around the eyes and extremities

    Kidney inflammation can cause fluid retention that can make ankles, feet, legs, hands, and sometimes eyelids feel puffy and swollen.

    Unintentional weight loss (or sometimes gain due to swelling)

    Unexplained weight loss — not due to dieting, other illness, or medication side effects — can be a sign of lupus. On the other hand, weight gain caused by fluid retention can also be a sign of the disease.

    Rashes and skin lesions

    The characteristic rash across the cheeks and nose (called a malar rash) is one of the most recognized symptoms of lupus, although a similar-looking rash can also occur in other skin issues. Another type of lupus skin issue is a discoid rash that causes raised, red, and scaly patches.

    Sensitivity to sunlight and cold temperatures

    Sun exposure can cause a lupus rash to develop or flare. People with lupus are also at risk of developing Raynaud’s, a condition in which the small blood vessels in the hands and feet suddenly constrict when exposed to cold or stress.

    Other lupus symptoms include fever; neuropsychiatric issues such as depression, anxiety, seizures, or psychosis; brain fog; fatigue; headaches (including migraine-like attacks); mouth ulcers; kidney problems; and chest pain.

    Read more here about lupus symptoms.

    Symptoms that Lupus and Fibromyalgia Have in Common

    • Pain
    • Cognitive issues
    • Fatigue
    • Headaches

    Key Ways Fibromyalgia and Lupus Are Different

    Despite the similarities in some of the symptoms, there are a few clear differences doctors and patients should be on the lookout for, says Dr. Stojan.

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    1. The nature of fatigue: Fatigue is common during a lupus flare, but it will subside once the attack is over, says Dr. Stojan. In fibromyalgia, however, exhaustion is more chronic — it’s less likely to come and go.

    2. The nature of pain: Although both fibromyalgia and lupus can cause muscle and joint pain, lupus pain persists until it’s treated, says Dr. Stojan. The pain of fibromyalgia comes and goes. “The transient quality of the symptoms is a reliable sign that pain is not related to lupus,” he says.

    3. Whether skin is involved: Fibromyalgia doesn’t cause nose and/or mouth ulcers or rashes like lupus does, such as the typical “butterfly” rash on the cheeks and bridge of the nose that can pop up during a lupus flare.

    4. Whether there is inflammation: In lupus, a patient’s immune system starts to attack organs and other body tissues, leading to widespread inflammation that will likely show up in lab tests or imaging, says Dr. Stojan. Fibromyalgia, on the other hand, does not cause inflammation.

    Getting the Right Diagnosis

    There are no definitive tests for either fibromyalgia or lupus, so differentiating between the two relies mostly on a thorough history of your symptoms, a physical exam, and sometimes blood tests or imaging to rule out other conditions. Read more here about how fibromyalgia is diagnosed.

    Your doctor will ask you to describe your pain — and if they suspect fibromyalgia, may perform a “tenderness” test, pressing on several parts of your body to gauge where the tenderness is, and how severe it is.

    Your doctor will likely also ask whether you experience fatigue, wake up tired every morning, or have trouble concentrating or experience brain fog — and for how long you’ve had these symptoms.

    Your doctor may order some blood tests in order to rule out diseases that can cause fatigue, such as hypothyroidism type 2 diabetes. They may order blood tests to check for levels of inflammation in the body or for antibodies that could signal an autoimmune disease. One test ordered to help confirm or rule out lupus is the blood test for antinuclear antibodies (ANA). A positive test can be one sign of lupus, but it doesn’t necessarily mean you have it. “ANA is a very common marker people have in the blood. Almost one-third of people in the U.S. will test positive — and that alone doesn’t mean you have lupus,” Dr. Stojan says. However, most people who have lupus will have a positive test.

    If you have a positive ANA test and other signs that point to lupus, your doctor may do additional antibody tests that help confirm or rule out the illness.

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    Your doctor may also order imaging tests like X-rays or MRIs to narrow down the cause of your symptoms. Neither fibromyalgia or lupus cause erosion in the joints (the way rheumatoid arthritis does) or visible inflammation of the lower back (the way axial spondyloarthritis does).

    Treatment for Fibromyalgia vs. Lupus

    Neither disease has a cure, but medication can treat symptoms and help prevent serious lupus complications. The medications used to treat lupus are very different from those used to treat fibromyalgia.

    For fibro patients: Some drugs commonly used to treat depression, called antidepressants, may ease pain and fatigue; these include duloxetine (Cymbalta) and milnacipran (Savella). Anti-seizure medications, frequently prescribed to people with epilepsy, can also help manage pain in fibromyalgia. Among these, the FDA has specifically approved pregabalin (Lyrica) for the treatment of fibro.

    For lupus patients: Many different types of medications can be used to treat lupus, including:

    • Non-steroidal anti-inflammatory drugs (NSAIDs) to relieve pain and inflammation
    • Hydroxychloroquine or chloroquine, a malaria drug that is also useful at treating lupus flares, joint pain, and skin rashes
    • Glucocorticoids, or steroids, to relieve inflammation and treat flares
    • Immunosuppressive medications, such as azathioprine, cyclophosphamide, methotrexate, mycophenalate mofetil
    • Targeted biologics, such as rituximab (Rituxan) and belimumab (Benlysta), which reduce the activity of the immune system by targeting specific immune cells
    • Other medications to help manage complications of lupus, including those for cholesterol, blood pressure, osteoporosis, and others

    Patients with lupus and fibro can also benefit from healthy lifestyle practices, too, including:

    • Exercise: Regular physical activity can help manage symptoms of fibro or lupus, and may improve mood, fitness and function. Swimming, walking, tai chi, and yoga are smart options. Exercise can be very important in helping people with lupus reduce their risk of cardiovascular disease complications. Consult a health care provider or physical therapist about a new exercise regimen, so it can be adapted to individual needs.
    • Diet: Though there is no specific diet recommended for lupus or fibro, a healthy eating plan may boost your immune system, help manage co-existing conditions, and promote overall good health. Read more about a following a healthy diet for lupus and a healthy diet for fibromyalgia.
    • Sleep: Getting adequate rest is vital for both conditions. It’s recommended that adults between ages 18 and 64 should aim for seven to nine hours nightly.
    • Complementary practices: Some patients report that activities like meditation, acupuncture, deep breathing, and massage help them relax and ease symptoms.

    While lupus and fibro may have some symptoms in common, they are ultimately distinct conditions with very different causes and treatments. Visiting a health care provider can help you get to the bottom of your symptoms quickly and begin the correct therapies. The faster you start, the faster you can start feeling better.

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    References:

    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

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  • Fibromyalgia Symptoms: 10 Clues You Might Be Ignoring

    Fibromyalgia Symptoms: 10 Clues You Might Be Ignoring

    If you’ve had a nagging sore throat, your doctor may take a swab to check for strep. If you’re suffering from a high fever and bad cough, your doctor may order a chest X-ray to look for pneumonia. But not all diagnoses are that straightforward.

    Case in point: Fibromyalgia, a condition that causes widespread chronic pain — as well as fatigue, sleep disturbances, and cognitive difficulties — is often challenging for a physician to pinpoint.

    Fibromyalgia can be difficult to diagnose because there’s no gold standard test like an X-ray or blood work,” says Lenore Brancato, MD, a board-certified rheumatologist at NYU Langone Ambulatory Care in New Hyde Park, New York. “It’s a diagnosis of exclusion, which means you first have to rule out other diseases that may be causing symptoms. It’s not a cookie-cutter condition.”

    Fibromyalgia is also a diagnosis that’s been subject to change. Back in 1990, when the first diagnostic criteria were set by the American College of Rheumatology (ACR), a doctor had to find the following elements in order to say their patient had fibromyalgia: pain in at least 11 of 18 designated “tender points” throughout the body, plus a history of widespread pain lasting more than three months.

    In 2010, however, those diagnostic criteria for fibromyalgia were updated to eliminate the tender point requirement and instead focus on findings that a patient has widespread pain, as well as sleep disruptions, fatigue, and cognitive difficulties.

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    Whereas the validity of fibromyalgia as a diagnosis was once questioned in the medical community — leading to a stigma it’s still overcoming — ongoing research has led to a number of possible explanations for physical causes of fibromyalgia (ranging from genetics to physical triggers) and mechanisms (involving the central nervous system).

    What we know for sure is that fibromyalgia affects approximately 2 percent of adults in the United States, and your risk of developing the condition increases if you are middle-aged or older and have been diagnosed with lupus or rheumatoid arthritis, says the Centers for Disease Control and Prevention (CDC). You may also be at a higher risk if you are female (most fibromyalgia patient are women), have suffered a trauma or repetitive injury, or if you are obese.

    But statistics and risk factors can’t describe how fibromyalgia actually feels to the person living with it. What follows are the descriptions doctors hear patients use when they talk about both usual and less common symptoms of fibromyalgia.

    Widespread pain

    While every fibromyalgia patient is different, their descriptions of overwhelming, debilitating pain throughout the entire body are very common. “My patients report feeling sore and stiff with an achy pain that goes from the top of their head to their toenails,” says Christopher Morris, MD, a board-certified rheumatologist with Arthritis Associates in Kingsport, Tennessee, and a fellow of the American College of Rheumatology. “They tell me the pain is in the muscles and soft tissues rather than joints.” Dr. Brancato hears similar concerns, with some of her patients saying the pain is lacerating, “like being cut by knives.”

    Sensitivity to touch

    Fibromyalgia could also make you overly sensitive to touch and temperature. “If you’re a patient with fibromyalgia, and someone brushes up against you in a crowded room it can be very painful,” says Dr. Brancato. “I’ll hear that my female patients can’t tolerate a massage.” Even though the stimulus is taken away, like removing your hand from a hot stove, the pain can continue, she explains.

    Sleep issues

    If you have fibromyalgia, you may have trouble falling asleep or staying asleep. “My patients say they toss and turn, or their mind wanders,” Dr. Brancato says. “I’ll hear that my patients wake up throughout the night and end up feeling as tired as when they went to bed,” Dr. Morris adds.

    Daytime fatigue

    One of the most common issues for fibromyalgia patients is fatigue. “It’s exhausting for them,” says Dr. Brancato. “If you ask a patient how they feel in the morning, you’ll hear they felt awful, they never feel ready to go, they feel like they can’t get their head above water.”

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    Cognitive problems

    “My patients describe having a ‘fibro fog,’” says Dr. Morris. “They have a hard time concentrating.” For her part, Dr. Brancato sees a lot of memory problems. “If you tell a fibromyalgia patient three things during an office visit, then ask them to recall them later during the same visit, they have difficulty,” she explains. “With fibromyalgia, short-term recall can be very poor.”

    Depression and anxiety

    For many patients, fibromyalgia may also bring feelings of sadness and other negative moods. Some researchers suspect a connection between fibromyalgia and certain types of chronic anxiety and depression.

    Headaches

    Though less common, headaches can occur among fibromyalgia symptoms. “Stress- and tension-type headaches tend to travel with fibromyalgia,” Dr. Brancato reports, adding that they can be triggered differently than in patients without fibromyalgia. “These headaches can be induced by regular sounds, background music, or even odors like perfumes.”

    Digestive issues

    Fibromyalgia can sometimes occur alongside digestive problems, such as bloating, constipation, abdominal pain, and irritable bowel syndrome (IBS), says the CDC.

    Pelvic floor dysfunction

    Some patients with fibromyalgia might also have an increased incidence of interstitial cystitis, says Dr. Brancato. This condition can cause chronic pain or pressure in the bladder and pelvis.

    Jaw and facial pain

    It’s possible for fibromyalgia to be linked to pain in the muscles of the jaw and face (temporomandibular joint disorder) or to myofascial (skeletal muscle) pain in one part of the body. Such occurrences could be considered forms of regional or localized or incomplete fibromyalgia.

    Fibromyalgia and Arthritis: What’s the Link?

    The relationship between fibromyalgia and different types of arthritis can be complicated. For one thing, there’s misdiagnosis: Depending on how your symptoms present, you could be told you have fibromyalgia when you actually have a kind of arthritis, or vice versa. Read about how ankylosing spondylitis and fibromyalgia can be mistaken for each other, for example.

    At the same time, having a painful chronic disease like arthritis may in turn trigger the onset of fibromyalgia. Inflammatory diseases like arthritis can affect the way your central nervous system processes pain, creating a double-whammy of having both diseases at the same time.

    If you suspect your combination of symptoms could be fibromyalgia, it’s a good idea to start with your primary care doctor. Because fibromyalgia is a diagnosis of exclusion, you’ll likely need a through physical exam, blood tests, and imaging tests to figure out what could be causing your symptoms

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    References:

    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

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  • Is There a Difference Between Having Ankylosing Spondylitis with Psoriasis and Psoriatic Arthritis with Back Pain? A New Study Says Yes

    Is There a Difference Between Having Ankylosing Spondylitis with Psoriasis and Psoriatic Arthritis with Back Pain? A New Study Says Yes

    Having AS with psoriasis may have some things in common with psoriatic arthritis, but research shows these are two distinct conditions.

    About 25% of people who have an autoimmune condition develop at least one more; some people live with three, four, or more. In fact, certain pairs of inflammatory diseases commonly occur together.

    For one, people with ankylosing spondylitis (AS) (also known as axial spondyloarthritis) — which is best-known for causing chronic lower back pain — are also more likely to have psoriasis — an autoimmune disease that manifests in the form of scaly red and silvery skin patches. That combination might sound pretty similar to the autoimmune condition psoriatic arthritis (PsA), which, by definition, is a form of inflammatory arthritis that typically causes joint pain as well as skin plaques.

    To further add to the confusion, PsA is considered part of the same family of rheumatic diseases as ankylosing spondylitis — they’re both considered types of spondyloarthritis, which is an umbrella term for a group of types of arthritis that have similar traits in common.

    And while most psoriatic arthritis patients develop arthritis in the small joints of the fingers and toes, the joints in the back can sometimes be impacted. PsA patients who have arthritis in the back or sacroiliac joints in the pelvis may be told that they have “axial PsA.”

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    If the sometimes overlapping details of these conditions are making you wonder if people with AS and psoriasis really have axial PsA, you’re in good company. Researchers at the University of Toronto weren’t sure, either. To find out, they compared data on more than 2,000 patients. One group had been diagnosed with AS and psoriasis; another had been diagnosed with axial PsA; and a third had only been diagnosed with AS (without psoriasis).

    According to their findings, which appear in the journal Rheumatology, axial PsA is not, in fact, the same thing as AS plus psoriasis.

    The researchers found that AS patients (with or without psoriasis) were more apt to be male, more likely to be positive for HLA-B27 (a genetic marker), and much more likely than those with PsA to report back pain as a chief complaint.

    “AS patients, with or without psoriasis, seem to be different demographically, genetically, clinically, and radiographically from [axial PsA] patients. [Axial PsA] seems to be a distinct entity,” they concluded.

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    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

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  • Ankylosing Spondylitis: Can It Cause Knee Pain?

    Ankylosing Spondylitis: Can It Cause Knee Pain?

    When you’re dealing with knee pain that won’t go away, you might blame it on overuse or age-related wear and tear. But in some cases, knee pain can come from a form of inflammatory arthritis such as ankylosing spondylitis (AS).

    AS is known for causing inflammation, pain, and stiffness predominantly in the spine and sacroiliac joints (where the spine meets the pelvis). People often equate ankylosing spondylitis with lower back pain, but it can affect other joints, including the knees.

    What’s behind the inflammation in ankylosing spondylitis? Your body’s immune system is releasing chemicals into your blood and joints that cause pain, stiffness, and eventually joint damage.

    Compared with many other forms of arthritis, AS symptoms usually begin young — before age 45 — and often as early as the teens and twenties. Lower back pain is worse after inactivity or when you wake up; it often strikes in the middle of the night and prevents you from getting a good night’s sleep. AS can present as an ongoing, dull pain that feels like it is coming from deep within the lower back or buttocks. Because back pain is incredibly common, it’s easy for people with inflammatory back pain from AS to chalk up their symptoms to other issues, such as athletic or overuse injuries.

    Axial Spondyloarthritis vs. Peripheral Spondyloarthritis: What’s the Difference?

    Ankylosing spondylitis (AS) is a type of spondyloarthritis (SpA), which is an umbrella term for different types of arthritis — including psoriatic arthritis — that have some traits and symptoms in common. There are two main types of SpA:

    • Axial spondyloarthritis (AxSpA)
    • Peripheral spondyloarthritis

    In axial spondyloarthritis, “the inflammation is more confined to the spine, and occasionally the shoulders and hips,” says Konstantinos Loupasakis, MD, a rheumatologist at MedStar Washington Hospital Center in Washington, D.C. “More distal joints, such as the knees, may also be affected although this is more commonly seen in peripheral spondyloarthritis.”

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    Within AxSpA, there are two categories:

    • Ankylosing spondylitis is considered radiographic AxSpA, which means that evidence of joint damage is visible on X-rays.
    • Non-radiographic axial spondyloarthritis (nr-AxSpA) is essentially the same condition, but without joint damage being visible on X-rays.

    A non-radiographic axial spondyloarthritis diagnosis can be made if the patient has sacroiliac changes on an MRI or is positive for the HLA-B27 gene (this gene gives instructions for making a protein that plays an important role in the immune system) with symptoms of inflammatory back pain (such as nighttime pain and morning stiffness, and improvement with physical activity), says Neal Birnbaum, MD, a rheumatologist, former president of the American College of Rheumatology, and founder of Pacific Rheumatology Associated Medical Group in San Francisco.

    Peripheral spondyloarthritis means that inflammation and joint pain affects the limbs more than the spine. Sites include the knees, as well as the hands, wrists, elbows, shoulders, and ankles.

    Despite formal classification of the spondyloarthropathies as above, in reality, people may have features of both axial and peripheral involvement, says Dr. Loupasakis. One recent study found that more than one-third of patients with axial spondyloarthritis also develop peripheral spondyloarthritis. Researchers studied more than 700 French patients from a group who had been diagnosed with early inflammatory back pain suggestive of AxSpA and followed them for five years. During that time, 36 percent developed arthritis in at least one peripheral joint — most often in the lower limbs.

    How Does AS Affect the Knees?

    Although AS is most common in the spine, any large joint can be affected — usually in an asymmetric distribution. This means that only one knee might hurt, as opposed to both knees. The pain is usually dull, often described by patients as soreness. It’s associated with stiffness that is worse in the morning and usually more intense after inactivity, he says. Pain and stiffness tend to improve with physical activity over an hour or more, Dr. Loupasakis says. The knee may feel warm to the touch and look swollen.

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    Still, how knee pain in AS feels is subjective and varies from patient to patient, says Erika Di Porto, DPT, MSPT, CI, department chairperson for the School of Health Sciences at Miami Dade College Medical Campus in Miami. “The joint hurts. The pain envelops the muscles, tendons, and the joints,” says Dr. Di Porto.

    The pain in peripheral joints like the knee can be caused by arthritis (inflammation in the joint itself) or enthesitis (inflammation that occurs where tendons and ligaments attach to the bone), says Dr. Loupasakis. In arthritis, the knee can be swollen, warm, and tender. Enthesitis typically involves the Achilles tendons and the heels. But it can involve almost any part of the body at sites where tendons and ligaments attach to bones (front of the knees, pelvis, side of the hips or front of chest), he says. With enthesitis, the knee is not swollen but is tender to pressure, mostly at the front part around and below the kneecap.

    If You Have Knee Pain Without a Formal AS Diagnosis:

    Keep in mind that it’s rare to have knee pain due to AS without any other AS symptoms. If you or your doctor suspects you could have AS or peripheral spondyloarthritis, they will do more testing. This includes a blood test to see if you have the HLA-B27 gene, as well as blood tests to look for signs of systemic inflammation. The doctor may conduct different tests during a physical exam to assess your range of motion and flexibility in the spine and other joints. They may send you for imaging tests such as X-rays or MRIs. Read more here about how doctors diagnose AS and what to expect at the rheumatologist.

    If You Have Knee Pain with a Formal AS Diagnosis:

    If you already have an AS diagnosis, it’s possible that your knee pain could be due to AS, but it could also be due to a different health issue.

    For example, someone in their twenties or thirties who is physically active may have an injury-related pain syndrome like tendinitis (inflammation or irritation of a tendon) or bursitis (a painful condition that affects the bursae, which are the small, fluid-filled sacs that cushion the bones, tendons, and muscles near your joints). Someone middle-aged is more likely to start to develop osteoarthritis in their joints — from age-related wear and tear — even if they also have a type of inflammatory arthritis.

    A thorough physical exam, medical history, and various imaging tests as needed may be necessary to determine whether your knee pain is due to AS or a different health issue.

    Treatment for AS Knee Pain

    There is no cure for AS, but you can ease its symptoms and slow its progression. Symptoms of AS knee pain are treated in a similar way to AS-related back pain.

    NSAIDs and DMARDs

    Patients with peripheral spondyloarthritis are usually first given a combination of nonsteroidal anti-inflammatory drugs (NSAIDs) to reduce pain and inflammation along with oral disease-modifying anti-rheumatic drugs (DMARDs) like methotrexate or sulfasalazine, says Dr. Loupasakis. Though NSAIDs are available over the counter, they can cause side effects such as stomach ulcers and kidney dysfunction, especially when taken for the long term and/or in high doses. You may also be prescribed topical NSAID creams or gels like diclofenac or salicylate cream that may be effective for enthesitis.

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    These conventional DMARDs are only recommended for peripheral spondyloarthritis. If you have axial spondyloarthritis and are not responding to NSAIDs, biologic drugs are the next step rather than conventional DMARDs, says Brett Smith, DO, a rheumatologist with Blount Memorial Physicians in Alcoa, Tennessee.

    If you have axial disease, the biologics will usually help the peripheral disease, too, he says.

    Biologics

    Biologics are medications — either given by IV infusion or injection — that target certain immune system proteins and pathways to reduce inflammation.

    The first-line biologic drugs recommended for axial spondyloarthritis are called tumor necrosis factor (TNF) inhibitors, which block certain proteins made by the immune system. These include adalimumab (Humira), certolizumab (Cimzia), etanercept (Enbrel), infliximab (Remicade), and golimumab (Simponi).

    Newer biologics for axial spondyloarthritis block other immune system proteins called interleukins. These include secukinumab (Cosentyx) and ixekizumab (Taltz).

    Steroid injections

    Steroid injections may occasionally be given in inflamed large joints in the knees to alleviate pain. “Steroid injections are not to be used more than three to four times a year in the same joint since excessive steroid use may accelerate cartilage thinning and be harmful to the joint,” says Dr. Loupasakis.

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    Cold and heat therapy

    Cold therapy can provide relief for inflamed joints in the wrist. Cold constricts the blood vessels in the muscles, which decreases blood flow to the joint area to help reduce swelling and inflammation. Ice the joint and area for 15 minutes at a time to reduce inflammation, says Dr. Di Porto. Heat therapy warms the skin and the joints, which causes blood vessels to dilate, and sends more oxygen and nutrients to the joints and muscles. Try both and see which makes you feel best.

    Hydrotherapy

    Hydrotherapy can also benefit patients with knee pain from AS, says Dr. Di Porto. Hydrotherapy uses water at varying temperatures for health purposes at a health center, spa, or at home. “It increases your flexibility and blood flow and loosens the tightness in your muscles,” says Dr. Di Porto.

    Exercise for AS Knee Pain Treatment

    Exercise, especially with help from a physical therapist, can also be key in keeping pain at bay. “Physical therapy is crucial to maintaining range of motion and preventing the development of contractures, where the joint gets stiff permanently,” says Dr. Loupasakis. Stretching exercises are also shown to be effective, he says. Check out these daily stretches for AS.

    He recommends swimming or water exercises since the water makes it easier to exercise with less strain on your joints. He also suggests postural training, where you learn how to maintain proper posture to help prevent you from developing stiff joints.

    Surgery for AS Knee Pain

    Surgery is a rarely used in the management of ankylosing spondylitis in the knee. It’s a last resort if knee joints are damaged to the point where daily activities become compromised, if your disease worsens, or you develop less motion and more pain. “You wouldn’t do a knee replacement until you’re at the point where symptoms are severe, your quality of life has been decreased significantly, and your activities of daily living are diminished,” says Dr. Di Porto.

    The most common surgery if surgery is done is total knee arthroplasty, also known as knee replacement. Knee surgeries typically have successful and lasting outcomes. A study in the Journal of Bone and Joint Surgery evaluated the results in a group of patients with ankylosing spondylitis who underwent total knee arthroplasty. The surgery was found to give excellent pain relief and a durable fix at an average of 11.2 years postoperatively. However, since people typically have this surgery at a relatively young age, Dr. Di Porto says they’ll likely need a revision (another) procedure done.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

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  • Arthritis in Your Toes: Signs of Toe Arthritis, and What to Do About It

    Arthritis in Your Toes: Signs of Toe Arthritis, and What to Do About It

    When you think of arthritis, you might think of creaky knees, stiff hips, or painful, swollen fingers. Yes, arthritis commonly attacks joints in the hands, knees, and hips. But it can happen anywhere you have joints — including the toes. So, if you can’t bend your big toe or have swelling around your toes, this toe pain may be caused by arthritis too.

    Toe arthritis can be caused by wear and tear of the cartilage in your toe joints, as well as inflammation of the toe joints. Arthritis most often attacks the big toe, but the other toes may be affected, too. Learn more about what causes toe arthritis and how it is treated.

    Symptoms of Arthritis in Toes

    Common symptoms of toe arthritis may include:

    You have pain in the toes that can take hours or days to subside.

    You have swelling and inflammation around the toe joints.

    • With rheumatoid arthritis and psoriatic arthritis, swelling and edema is associated with redness.
    • With osteoarthritis, there is more bone enlargement of the toe joints as a result of bone spur formation, says podiatrist Krista A. Archer, DPM, a podiatric surgeon who is on staff at Lenox Hill Hospital in New York City. Bone spurs are bony projections that develop along bone edges, often due to joint damage from arthritis.

    You have restricted range of motion due to swelling or damage to cartilage (a rubbery substance on the edges of bones that lubricates the joint) in any joints that are in the toes, midfoot, rearfoot, and ankle, says Dr. Archer. Bone spurs will often develop around the joint, restricting movement.

    You may be unable to bend your big toe upward and have pain when doing so, says Chadwick Hampton, MD, an orthopedic surgeon at Palm Beach Gardens Medical Center in Palm Beach Gardens, Florida. That can make it difficult and painful to walk.

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    Your toe may become bent permanently downward and can’t be positioned flat on the floor.

    Your pain worsens with weight-bearing activities like jogging, walking, and climbing stairs. “It depends on how severe the deformity is to predict what kind of activities will be painful,” says Dr. Archer.

    You may have a bump form (a pressure sore) when the joints rub together. It resembles a callus or bunion.

    You may have pitted, separated, or thick toenails.

    You may have curling of the toes, such claw toe or hammertoe.

    You may have pain in joints in the in the midfoot (cuboid, cuneiform, metcuneiform) and rearfoot (talonavicular, calcaneocuboid).

    You may have numbness, burning, or tingling in the foot or ankle.

    Types of Arthritis that Affect the Toes

    If you have arthritis in your toes, it’s important to understand the type of arthritis that might be causing it, because each type of arthritis has specific medications and treatments. Here are some of the more common types of arthritis that strike in toes.

    Osteoarthritis

    Osteoarthritis (OA) is a degenerative joint disease where the cartilage that cushions the ends of a joint wears away gradually. Osteoarthritis often occurs because of typical wear and tear on a joint that happens with age; it can also occur as a result of injury to the joint. OA most commonly occurs in the joint at the bottom of the big toe, which is called the metatarsophalangeal or MTP joint.

    Rheumatoid arthritis

    Rheumatoid arthritis (RA) is a chronic inflammatory disease in which the body’s immune system attacks itself, causing inflammation and pain in the joints. RA can affect several small joints in the foot at the same time, including those in the toes. RA often occurs in the small joints of the hands and feet first, though it can affect other joints, such as the knees, elbows, hip, and neck. Around 90 percent of people with RA will have foot problems.

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    Gout

    For many people, pain and swelling in the big toe, especially at the joint where the toe meets with the foot, is the first symptom of gout. Gout is a type of arthritis that occurs because elevated levels of uric acid in the blood accumulate in and aggravate joints, causing inflammation. Gout attacks can affect other joints aside from the big toe, including the ankles, foot, knees, or elbows. Lumps of uric acid, called gout tophi, may become visible underneath the skin around the toes, ankles, and other joints after you’ve had gout for years or if you have severe gout that is not well controlled.

    Psoriatic arthritis

    Psoriatic arthritis is an inflammatory arthritis linked to psoriasis, an autoimmune skin disease that causes red, silver, scaly rashes on the skin. It’s characterized by pain, stiffness, and swelling in the joints. People with psoriatic arthritis might notice pain, stiffness, and swelling in the “knuckles” of the toes, says rheumatologist Arthur M. Mandelin, MD, PhD, associate professor of medicine at the Northwestern Medicine Feinberg School of Medicine in Chicago. People with PsA are likely to have problems with their toenails, such as pitting and crumbling, as well as swollen fingers and toes, a condition called dactylitis that makes them appear sausage-like. Enthesitis, or inflammation at the sites where tendons and ligaments attach to bones, is also common in PsA. This can affect the Achilles tendon at the heel or cause plantar fasciitis along the bottom of the foot.

    Infectious Arthritis

    Also called septic arthritis, this type of arthritis typically causes extreme pain and difficulty using the affected join. Septic arthritis is caused by bacteria or fungi that are carried through the bloodstream from another area of the body, usually settling in one joint. A bacterial infection from an injury or opening from a surgical procedure can also cause infectious arthritis by bringing germs directly to the joint. Pain worsens with movement and comes on rapidly in hours or days. It may include a swollen, red, and warm joint accompanied by fever, chills, fatigue/weakness, and the inability to move the affected joint.

    How Arthritis in the Toes Is Diagnosed

    The diagnosis of arthritis in toes begins with taking your medical history and a physical exam of your foot. The doctor will look at your entire foot, not just your toes. They’re looking for pain, deformity, and loss of function, says Dr. Archer. Your doctor will likely order an X-ray of the foot to help determine whether there is joint damage or changes in the alignment of bones in the foot.

    If your doctor suspects you could have a type of inflammatory arthritis, such as RA or PsA, they may order blood tests to look for signs of inflammation (such as C-reactive protein or erythrocyte sedimentation rate) as well as antibodies (such as rheumatoid factor or anti-CCP). If your doctor suspects you could have gout, they may give you a blood test to look for elevated levels of uric acid and draw fluid from the joint to look for uric acid crystals.

    How Arthritis in the Toes Is Treated

    Treatment for arthritis of the toes depends on the type of arthritis that you have. It typically starts with conservative measures.

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    Non-Steroidal Anti-Inflammatory Drugs (NSAIDs)

    Over-the-counter medications like ibuprofen (Advil) and naproxen (Aleve), as well as prescription NSAIDs, can help relieve pain and swelling in the joints. However, even though many NSAIDs are available over the counter, they can have side effects (such as causing stomach ulcers, increased heart attack risk, and kidney problems) especially when taken for the long term and/or in high doses. NSAIDs are a first-line of treatment in OA to reduce pain and stiffness. In inflammatory arthritis and gout, they can be used along with other kinds of medication to treat inflammation, pain, and swelling.

    A topical gel like diclofenac (Voltaren) may be prescribed for toe arthritis, says Dr. Hampton. Topicals are good if you can’t take oral medications or medications aren’t helping with the pain.

    Steroid injections

    This medication can help treat and relieve inflammation. An occasional shot can be given in any toe and offer temporary pain relief and reduce inflammation. Injections shouldn’t be done repeatedly; frequent injections can damage cartilage. “I give a certain dose and I won’t give it more than three times a year or no more than once every four months,” says Dr. Hampton.

    Disease-Modifying Antirheumatic Drugs (DMARDs)

    If you have an inflammatory arthritis like rheumatoid arthritis, disease-modifying anti-rheumatic drugs (DMARDs) such as methotrexate are used as a first-line therapy to help reduce the immune system activity that triggers inflammation and pain. DMARDs are not used for osteoarthritis.

    Biologics

    Biologics are a newer class of DMARDs that target specific immune system pathways to reduce immune system activity that is causing inflammation and pain. They’re used to treat inflammatory types of arthritis, such as rheumatoid arthritis and psoriatic arthritis, and are typically offered after patients haven’t responded to conventional DMARDs like methotrexate.

    Gout medications

    There are two main kinds of drugs used to treat gout: those used during a flare to reduce inflammation and pain and those used preventively to lower uric acid levels and prevent future flares from occurring. Medications used to treat inflammation in an acute gout flare include NSAIDs, oral corticosteroids or steroid injections, or a drug called colchicine. Medications called xanthine oxidase inhibitors limit the amount of uric acid your body produces. These include allopurinol (Zyloprim and Aloprim) and febuxostat (Uloric). Another class of drugs called uricosurics help your kidneys remove uric acid from the body. These include probenecid (Probalan) and lesinurad (Zurampic). An infused drug called pegloticase (Krystexxa) can help the body eliminate uric acid in people whose gout hasn’t been well controlled with other medication.

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    If your gout attack is limited to one or two joints and your pain is mild to moderate, you may only need one of these medications to control the inflammation. However, if your pain is severe, and if one or more of your larger joints (not just a toe) are involved, you may need a combination of treatments to get it under control. Also, if one drug doesn’t work well enough to treat your gout attack symptoms, your doctor may switch you to a different medication or try a combination of medications.

    Physical Therapy for Arthritis in Toes

    Your doctor may send you for physical therapy to help improve your range of motion and strengthen the muscles around your foot. “Physical therapy can increase pain-free range of motion and strengthen the muscles of the foot to take pressure off the painful joint,” says David Geier, MD, an orthopedic surgeon, sports medicine specialist, and author of That’s Gotta Hurt: The Injuries That Changed Sports Forever. These exercises relieve stiffness and increase your ability to move your joints through their full range of motion.

    Home Remedies for Arthritis in Toes

    You can do some things on your own to help remedy your toe arthritis.

    Modify your footwear

    You want to wear shoes that take pressure of your toe joints to relieve some of the stress from arthritis of the toes. Look for footwear with a more rigid, stiff sole (which will provide support) and wide toe box to help prevent excessive stress and bending forces on the toe joints. Ditch high heels; they put your foot in an unnatural position that takes a toll over time.

    Soothe with ice and heat

    Cold therapy can provide relief for inflamed joints in the wrist. Cold constricts the blood vessels in the muscles, which decreases blood flow to the joint area to help reduce swelling and inflammation. Heat therapy warms the skin and the joints, which causes blood vessels to dilate, and sends more oxygen and nutrients to the joints and muscles. Try both and see which makes you feel best.

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    Exercise to maintain a healthy weight

    Control your weight with regular, low-impact aerobic exercise that doesn’t hurt your toes. Cycling on a recumbent bike or swimming are good options. Keeping your weight close to your ideal body mass index (BMI) is one of the best things you can do to control your toe pain. Being at a healthy weight “balances the pathomechanics [the mechanics of damaged bones, tendons] of the entire foot and relieves stress on toes,” says Dr. Archer. It’s also a good idea to do specific exercises that strengthen your Achilles tendon (the cord at the back of your heel) as well as the tendons in the balls of your feet and toes. You can even simply wiggle your toes.

    Eat a clean diet

    Maintaining a healthy weight helps reduce stress on the joints. Feet are a weight-bearing joint, so obesity makes arthritis worse. Losing excess pounds can lead to less pain and better function. You especially want to eat healthfully since your exercise abilities may be limited if you have a lot of pain in your toes. Aim to eat foods that may help reduce inflammation, called anti-inflammatory foods.

    Surgery for Arthritis in Toes

    Surgery isn’t usually necessary for arthritis of the toes. It’s usually a last resort since you may still have discomfort and have an increased risk of infection after surgery. But several surgical procedures outlined below can be done if other treatments for toe arthritis have not helped.

    Cheilectomy for Arthritis in Toes

    The most common surgery, cheilectomy, involves removing bone spurs that have formed around joints that have become arthritic. It’s typically done when arthritis is in the big toe. It can help relieve discomfort around the joint and improve the movement of the joint. The toe may stay swollen for several months, but you’ll likely experience long-term relief. However, removing bone spurs doesn’t address the worn-out cartilage within the joint. So bone spurs often return in the future. “This surgery has a high revision rate because you’re treating the arthritis as it’s in progression. So [the condition] continues to progress.” says Dr. Hampton. “You’ve removed the bad parts of the bone but you don’t actually replace the joint.”

    Arthroplasty for Arthritis in Toes

    Here, joint surfaces are removed and replaced with an artificial joint. This procedure is geared for older adults who aren’t as physically active.

    Fusion for Arthritis in Toes

    This surgical procedure stimulates bone growth across the joint. The joint is fused together permanently with pins, screws, or a plate. When bone grows across the toe joint, it won’t bend anymore. But since the joint is fused, pain is also relieved. Dr. Archer says that she rarely does this type of surgery. “It’s usually done in active laborers, like carpenters and mechanics, to give them a stable joint with no pain,” says Dr. Geier.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Does Fibromyalgia Cause Back Pain?

    Does Fibromyalgia Cause Back Pain?

    Fibromyalgia — a disorder that causes widespread chronic pain and tenderness — affects 2 to 4 percent of women and men in the United States (women ages 20 to 50 are the most affected) and impacts patients in many different ways.

    Thus, fibromylagia remains mysterious, and questions still linger — like why are more women affected by fibromyalgia than men? And why is fibromyalgia so hard to diagnose and treat? Why do some patients with fibromyalgia have more back pain than others?

    “What causes fibromyalgia has puzzled many scientists for a long time,” says Elena Schiopu, MD, a rheumatologist and internist at Michigan Medicine in Ann Arbor. While the exact cause of fibromyalgia isn’t certain, doctors do know that the disorder can be triggered by an injury, surgery, infection, psychological trauma (like an extremely stressful period), or even just from an accumulation of symptoms that leads to the eventual classification of fibromyalgia.

    The reason for the heightened pain? Fibromyalgia may affect the way your brain interprets pain signals. “Fibromyalgia is basically a miscommunication between the central, peripheral, and autonomic [vegetative] nervous system, which results in abnormal or amplified sensations,” says Dr. Schiopu. This is known as central pain sensitization. It causes your nervous system to become “wound up” and in a constant state of hyperactivity, which creates a lower threshold for experiencing pain.

    When you poke someone without fibromyalgia, for example, it might be no big deal, but for someone with fibro, that same level of touch can cause significant pain or discomfort.

    The Nature of Pain in Fibromyalgia

    Unlike arthritis, in which pain occurs in specific joints, the pain that fibro patients experience is more in the muscles. It’s a widespread pain, which means you feel pain all over you body. According to the latest diagnostic criteria for fibromyalgia, patients must experience pain in four out of five general regions of the body. These include left upper, right upper, left lower, right lower, and low back.

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    What Causes Back Pain in Fibromyalgia?

    People with fibromyalgia may experience long-term back pain along with a number of other symptoms. “Back pain that’s patient-reported and physician-observed — called paraspinal lumbar tenderness — is very common,” says Dr. Schiopu. “All the areas of the body that are being ‘used’ on a regular basis could hurt, like your hands, neck, or upper or lower back.”

    “The back is a common area to have pain in fibromyalgia because muscles in general are often painful in fibromyalgia, and the human back has a large quantity of muscle fibers to support posture,” says Amanda Sammut, MD, a rheumatologist and assistant clinical professor of medicine at Columbia University Medical Center in New York City.

    Also, says Dr. Schiopu, patients with fibromyalgia could have a degree of wear-and-tear arthritis of the lumbar spine, which is amplified by fibro. In fact, it’s common to have fibro at the same time as other diseases, such as inflammatory arthritis or osteoarthritis.

    Back Pain in Fibromyalgia: Could It Be Something Else?

    Lower back pain is an extremely common medical complaint — some 80 percent of Americans experience it at some point in their lives. So if you have lower back pain, how do you know if it could be from fibromyalgia or something else?

    The answer is complicated. If you’re experiencing back pain as well as other symptoms, it’s possible you could have a different health problem entirely — or a health problem plus fibromyalgia at the same time.

    Misdiagnoses are common with fibromyalgia — both in terms of not being diagnosed with fibro when you really have it, or in terms of being diagnosed with fibro when you actually have a different health problem.

    Fibromyalgia is technically an exclusion diagnosis,” says Dr. Schiopu. This means you shouldn’t be diagnosed with fibromyalgia until a doctor has fully ruled out the possibility of having other diseases.

    That’s why a thorough visit with a rheumatologist is critical. If you’ve already been diagnosed with fibromyalgia but find that your current treatment plan isn’t helping your back pain, you could have a different or additional diagnosis, such as one of the following:

    A muscle or ligament strain

    Maybe you lifted a heavy box, strained to reach something in a high cabinet, or picked up your child or grandchild, which could have triggered a back muscle strain. A sudden movement can cause a strain, as well as constant use of your back (like doing repetitive motions), especially if you’re not in good physical shape.

    Axial spondyloarthritis

    If you have lower back pain as well as pain in other places — say, your knees, jaw, neck, or shoulders — it could be from the widespread aches of fibromyalgia, or it could be another condition you may not be familiar with: axial spondyloarthritis (AxSpA), which is an inflammatory type of arthritis in your spine and the area where your spine meets the pelvis (sacroiliac joints). Back pain is a primary symptom of AxSpA, though it can also affect other joints and areas around your body.

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    AxSpA is often divided into two categories. Radiographic AxSpA (which is often called ankylosing spondylitis), means that evidence of joint damage is visible on X-rays. Non-radiographic AxSpA (nr-AxSpA) is essentially the same condition, but without joint damage being visible on X-rays.

    Fibromyalgia and axial spondyloarthritis are caused by very different things (AxSpA is inflammatory and due to an overactive immune system that’s attacking the joints) and thus have very different treatments. It’s important to get the right diagnosis so you can get on the right treatment and start feeling better.

    Scoliosis

    You may have never realized it, but your spine could curve to the side, a condition known as scoliosis. The physical changes of scoliosis often start in childhood but the condition might not start causing back pain until middle age.

    Bulging discs

    The cushiony discs between your vertebrae may bulge or rupture, which can then put pressure on a nerve in your spine. While some people may not feel any pain when this happens, others may find it excruciating.

    Osteoporosis

    A frustrating part about aging: The vertebrae in your spine may develop compression fractures if your bones become too brittle (a condition known as osteoporosis). These fractures can then lead to back pain.

    Common Fibromyalgia Symptoms Aside from Pain

    While you may experience back pain if you have fibromyalgia, if you’re experiencing back pain alone, and not  other fibromyalgia symptoms, then your pain is likely not due to fibromyalgia, says Dr. Schiopu.

    Sleep problems

    In addition to pain, sleep problems are a big part of patients’ experience with fibromyalgia.
    Even if fibro patients sleep for hours, they still may wake up feeling unrefreshed. That could be due to pain waking people up at night, or they may experience other sleep issues, like restless leg syndrome or sleep apnea. This troubled sleep, in turn, can contribute to debilitating daytime fatigue.

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    Fibro fog

    Many patients with fibromyalgia complain of fibro fog, in which people feel like they can’t concentrate, hold conversations, or even remember certain things, like plans or where they placed objects. One reason for the fibro fog could be lack of sleep. Another explanation is that there is potentially something happening in the brain that’s unique to people with fibromyalgia.

    Co-existing health problems

    Fibromyalgia often co-exists with other ailments, like irritable bowel syndrome, migraine, interstitial cystitis (a painful bladder syndrome), and TMJ (a jaw disorder). “That’s all followed by a slew of hypersensitivity to cold, light, noises, smells,” adds Dr. Schiopu. Thus, it can seem like fibromyalgia patients have a laundry list of health woes, which can be incredibly frustrating.

    How Back Pain in Fibromyalgia Is Treated

    If you have fibromyalgia and are experiencing back pain as a symptom, then you’ll want to come up with a treatment game plan with your doctor. “Gentle stretching, warm pool exercises, and even a supportive belt would help,” says Dr. Schiopu. “Daily strengthening of the lumbar musculature [muscles in the lower back] is key as well,” she adds.

    Fibromyalgia medications may help relieve back pain. Some antidepressant drugs are prescribed to help ease pain and fatigue; these include duloxetine (Cymbalta) and milnacipran (Savella). Anti-seizure medications can also help manage pain in fibromyalgia. Among these, the FDA has specifically approved pregabalin (Lyrica) for the treatment of fibro.

    If you have back pain — especially back pain that’s lasting more than three months and doesn’t improve with your current treatment — it’s important to talk to your doctor about  your symptoms and medical history. Your back pain could be due to fibromyalgia, but it could also stem from various other health issues.

    “If your back pain continues despite medical therapy and despite physical therapy, patients should then consider seeing a rheumatologist or a pain management specialist,” says Dr. Sammut.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store