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  • Is there a potential cure for fibromyalgia or a way to protect against fibromyalgia?

    Is there a potential cure for fibromyalgia or a way to protect against fibromyalgia?

    Fibromyalgia is primarily a neurological brain disorder. It is seven times more likely to strike women than men, and it doesn’t matter what nationality you are. The hypothalamus part of the brain acts as a circuit breaker/fuse box for the rest of the brain and body. It’s like the battery for the entire body.

    There are several things that typically cause Fibromyalgia and Chronic Fatigue Syndrome to manifest, but basically high amounts of stress are what cause the hypothalamus to blow its fuse, creating a host of neurological problems, like hormone imbalances, increased pain sensitivity, fatigue, and “brain fog“. Essentially, you’ve got a dead battery that won’t hold a charge, which is why so many people experience debilitating fatigue. The blown fuse can happen in an instant, and you get no say in if or when it happens.

    The hypothalamus has done a system-wide “shutting down” and tried to reboot, in an effort to protect your body and brain from further stress and damage. Like when you turn off your computer and restart it because using Ctrl +Alt +Delete hasn’t worked. Only, by doing this, the brain is permanently altered, like a computer virus that can’t be repaired.

    A person can quite literally be fine one day and wake up the next morning feeling so completely different, and your entire life has changed because your brain no longer functions the way it used to. Many Fibro/CFS patients can pinpoint the exact day/week/month everything changed for them. The most common “triggers” fibromyalgia patients report are:

    A virus/illness or a prolonged decrease in the immune system
    Lime’s Disease, Epstein Bar Virus, Mono are often associated with the development of Fibromyalgia and CFS symptoms. etc.

    A sudden traumatic event
    A house fire, abusive situations, physical attacks, etc. Similar to PTSD, or Dissociation disorders, the brain is trying to cope and process the additional shock and stress, triggering the hypothalamus to “protect” the rest of the brain by flipping a switch.

    An accident
    Car accidents, drowning, severe falling, etc. can cause the hypothalamus to be trying to “protect” by flipping the switch.

    Medical or dental surgery
    Any time you have surgery, it puts the body under huge increases in stress, because cutting into your body sends the brain “we are under attack!” signals.

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    Pregnancy
    Because of the drastic hormonal shifts, joint stress, depleted vitamins and minerals, and the physical trauma of the birth process, pregnancy creates so much stress that for whatever reason the mother’s body just can’t handle it. Fibromyalgia develops during pregnancy or soon after birth. For many women, their Fibromyalgia symptoms and Chronic Fatigue are ignored as simple “hormone shifts” or ” new mommy fatigue”, when in fact her body will never really readjust back to normal.

    High-pressure lifestyles/stressful jobs/major anxiety
    Workaholics, or people who don’t take enough time off, or just can’t relax and rest. In school-age students, the stress of studies, trying to get good grades, fears of the future, or even too many activities can cause an abundance of stress the body can’t handle.

    For some adults, this means they get sick in the form of common things like high blood pressure, heart attacks, or stroke. Others can develop Fibromyalgia and Chronic Fatigue Syndrome, or other random “stress-related” illnesses.

    Many people are able to live completely normal, energetic, and happy lives BEFORE these stressful, triggering events. Any of these things can cause the hypothalamus fuse to blow like a light bulb that goes out. Once that fuse blows, basically your “brain is broken“. It doesn’t matter how old you are, or what gender. Even children and teenagers can (and do) develop Fibro and CFS, especially if they have had an accident, undergone serious trauma, or had to have surgery. Being young doesn’t automatically mean someone is healthy, even if they “look healthy”.

    This can happen to anyone, at any time, and once it does, there is no way to change that. You can’t just flip the switch back to fix it. The hypothalamus begins sending the wrong signals to the rest of the brain and to the nerves, causing the super sensitive fascia, painful joints and muscles, sensitivity to touch, and intolerance to certain foods and weather changes, causing thyroid and metabolic changes, and cognitive disruptions.

    Ironically, the brain’s fuse box blows in an effort to protect your brain and body from further damage because of the prolonged stress you have already been under. This is the chief reason why so many Fibromyalgia patients experience a “Flair Up” of pain and other symptoms when they are under high amounts of additional life stress, like family conflict or having to pack and move. Things like exercise and many mundane physical activities are just too stressful for an already constantly stressed out body, so these things cause a flair-up of symptoms.

    The body is already so stressed out from whatever life has thrown at you and being in pain 24/7 that you just can’t handle it anymore. The “Flare Up” will force you to slow down and rest, even when you have things you need to do. This is why a Fibro/CFS patient can feel okay enough to go out and do things one day (feeling “normal“) and be utterly exhausted for the days or weeks after, in a “Flair up”.

    Because Fibromyalgia is so physically debilitating, in this way your body is forcing you to rest and slow down, so it can make an effort to heal itself and relax. This is why people with Fibro need to take steps to simplify their life and be as stress-free as possible. Medicine and Science is just now figuring this out, and it might take another couple of decades for them to agree on a treatment plan that will actually cure the hypothalamus and flip the switch back on.

    Please note that this is an extremely simplified explanation of brain functions and responses. There has been tons of research by the medical community that can go into even greater details. I simply tried to put my understanding of their complex (and complicated) research discoveries into common terms and phrases people can easily relate to. I am not a doctor, but I have spent the last decade researching and learning about my diagnosis.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • What is FibroCovid? Almost one-third of Patients in the Italian Study had Musculoskeletal Sequelae

    What is FibroCovid? Almost one-third of Patients in the Italian Study had Musculoskeletal Sequelae

    Among patients who developed post-acute COVID-19 — so-called “long COVID” — almost one-third reported clinical features of fibromyalgia, Italian researchers reported.

    In a web-based survey that included more than 600 patients, 30.7% met the American College of Rheumatology criteria for a fibromyalgia diagnosis at a mean of 6 months after having had COVID-19, said Francesco Ursini, MD, Ph.D., of the University of Bologna, and colleagues.

    “In light of the overwhelming numbers of the SARS-CoV-2 pandemic, it is reasonable to forecast that rheumatologists will face a sharp rise in cases of a new entity that we defined as ‘FibroCOVID,’”

    Aside from the potentially lethal acute viral infection of SARS-CoV-2, a post-acute syndrome with myriad symptoms including not only pulmonary sequelae but also endocrine, cardiovascular, neuropsychiatric, and musculoskeletal manifestations is now widely recognized.

    The current definition of fibromyalgia requires a score of 13 or higher on the Fibromyalgia Symptom Scale, which combines scores on the Widespread Pain Index and Symptom Severity Scale.

    The pathogenesis of fibromyalgia is not completely understood. “Pain augmentation/dysperception seems associated with exquisite neuron morphological modifications and imbalance between pronociceptive and antinociceptive pathways arising from an intricate interplay between genetic predisposition, stressful life events, psychological characteristics, and emerging peripheral mechanisms, such as small fiber neuropathy or neuroinflammation,” Ursini and colleagues explained.

    In addition, viral triggers have been linked with the development of fibromyalgia. Therefore, to investigate the prevalence of fibromyalgia following acute COVID-19, the researchers conducted a cross-sectional survey during April 2021, in which participants completed a survey that included information on demographics, symptoms, and duration of COVID-19, and comorbidities.

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    A total of 616 patients were included, with 189 diagnosed with fibromyalgia. More than three-quarters were women whose mean age was 45. The median duration of acute COVID-19 was 13 days, and 10.7% were hospitalized. Among the symptoms reported during the acute viral illness were anosmia/ageusia in 70.9%, myalgia in 70.4%, fever in 67.7%, and arthralgia in 64.6%.

    Comorbidities included anxiety and chronic pulmonary disease in patients both with and without fibromyalgia. In contrast, hypertension was significantly higher among fibromyalgia patients (27% vs 10.8%, P<0.0001), as was the mean body mass index (30.4 vs 23, P<0.0001) and the prevalence of obesity (49.2% vs 2.1%, P<0.0001).

    Among the survey respondents who had fibromyalgia, 57% were women, a percentage that was lower than the 77.4% of women in the cohort overall, suggesting that men more often developed the musculoskeletal sequelae, the researchers explained.

    Those with fibromyalgia also were significantly more likely to be hospitalized (19% vs 7%, P<0.0001). During the acute phase of the disease, patients who subsequently developed fibromyalgia more often reported cough (52.9% vs 45%, P=0.046) and dyspnea (45.5% vs 35.4%, P=0.017), and also more often required supplemental oxygen (18% vs 7.5%, P<0.0001).

    On univariate analysis, factors associated with fibromyalgia included age, male sex, cough, dyspnea, hypertension, obesity, and treatment with antibiotics, low molecular weight heparin, or oxygen.

    On multivariate analysis, the only independent predictors were male sex, with an odds ratio of 9.951 (95% CI 6.025-16.435, P<0.0001) and obesity, with an odds ratio of 82.823 (95% CI 32.192-213.084, P<0.0001).

    Overall, patients who developed fibromyalgia appeared to have a more serious phenotype of COVID-19, more often requiring hospitalization and supplemental oxygen, the researchers reported. “Notably, both male gender and obesity have been consistently associated with a more severe clinical course in patients with COVID-19, including a significantly increased mortality rate.”

    Potential mechanisms by which the coronavirus could trigger fibromyalgia, the team speculated, are epithelial injury or damage to the neuromuscular, immune dysfunction, and upregulation of inflammatory cytokines such as interleukins 1 and 6.

    Prospective studies will be needed to further elucidate the clinical course and outcomes of the post-acute COVID-19 musculoskeletal disease manifestations, the authors cautioned.

    A potential limitation of the study, they said, was the possibility of self-selection bias.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Chest wall pain mimic costochondritis in fibromyalgia: Successful Treatment

    Chest wall pain mimic costochondritis in fibromyalgia: Successful Treatment

    The muscles between the ribs are formed in such a way to allow our chest to expand and relax with breathing, and they perform their job many times a day, because adults breathe about 20 times per minute.. Many fibromyalgia (FM) patients and some chronic fatigue (ME/CFS) patients complain of chest wall pain and restriction of movement. Often this restriction and pain is misdiagnosed by the health care provider as costochondritis, which is inflammation of the muscles between our ribs usually seen when a viral or infectious process present.

    I want to make this very clear; fibromyalgia is not considered an inflammatory disorder. Pain is thought to be due to a hyper-sensitized central nervous system bombarded by the presence of peripheral pain generators such as chronic myofascial pain.

    More often than not, FM patients have comorbid myofascial trigger points (MTPs) related to chronic myofascial pain (AKA, myofascial pain syndrome). These MTPs shorten the muscle involved, cause pain and dysfunction, radiate pain, and in some cases cause neuropathy and other symptoms. The referral pattern is a consistent pattern for the location of that specific trigger point. It is my belief, and the belief of some experts, that chest wall pain found in FM is from trigger points (also abbreviated TrPs) in the muscles of the chest wall and rib cage. If present, they restrict chest wall motion during inspiration. This restriction then leads to ineffective breathing.

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    The treatment for chest wall pain found in FM is not medications for inflammation unless there is a known inflammatory condition present, (MTPs are not inflammatory in nature either). The treatment is trigger point therapy. If you can feel the tender painful knot apply 80% pressure with stroking motion for 30-60 sec. There can be many due to the lush environment provided by the complex network for proper breathing. Myofascial trigger points can be behind bone or other large muscles, the rib cage in this case. This makes it more difficult to treat them, however, deep breathing exercises such as Qi Gong are quite helpful to relieve restrictions.

    Cellular oxidative stress has been indicated in fibromyalgia, an even better reason to get that chest wall moving. We explain deep breathing techniques in our book and the comorbid condition, chronic myofascial pain at length, “dos and don’ts”, therapies that can help, and what to avoid.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Colors Red + Blue = Purple

    Fibromyalgia Colors Red + Blue = Purple

    Every color in the color wheel has effects on us both physically and emotionally are very important in our lives as they directly influence our well-being and mood. We often hear people say that they are red hot mad, tickled pink, green with envy or ask someone why so blue? (sad).  There have been so many studies showing the positive and the negative effects color can have on us.

    Red color

    Red reminds me of heat like running a temperature. It is the color of fire and blood. I think of anger or even a strong emotion out of control cry.

    Red is strong, powerful, often associated with energy, warmth, anger, danger, aggression, excitement, passion, and love.

    What’s good about it?  It has been proved that color can have a physical effect on a body. It stimulates the body (including circulation, intestine, and appetite), and raises the heart rate. Red increases muscle tone promotes the pulse, raises blood pressure, promotes blood circulation, excretion of adrenaline.

    What’s bad about it? It can cause high blood pressure, heart conditions, sleep problems, epilepsy, asthma, deepens breathing, and can cause headaches.

    It can activate the “fight or flight” instinct.

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    Remember most villains wear red.

    Blue color

    Blue makes me think of the lake, beautiful blue skies, my ice packs, a record my mom had called Navy Blue, tears, feeling sad, and black & blue marks on the body.  Wow, talk about mixed emotions. It truly gives me happy thoughts and very depressing ones.

    Blue affects us mentally and is essentially soothing, rather than the physical reaction we have to read. It is considered to have both negative and positive psychological effects on the mind

    What’s good about it?  Blue is strongly associated with tranquility and coolness, calmness peace, relaxation, slowing down, steadying, self-expression, intuition, honesty, truth, cleansing, soothing, gets rid of nervous tension.  promotes human metabolism, (suppresses appetite), quietness, slowing heart rate, reducing respiratory rhythm, encouraging mental activity, concentration, they say it is the color of peace and rest. Blue is supposed to be able to help with infections with fever or inflammation, stings, headaches, period pains, insomnia, stress, anxiety, obsessions, psychoses, and learning difficulties.

    What’s bad about it? Blue is cold, aloof, and withdrawn. It can make a person feel cold, sad,  unemotional, and unfriendly. Too much dark blue can lead to depression and loneliness.

    Remember most heroes wear blue. 

    Purple color

    I loved purple when I was a teenager. My bedroom walls were lavender and the bed cover, curtains, etc were white with lavender flowers.  I moved to Northern Wisconsin and learned I am not supposed to like Purple because it stood for the rival football team.

    Purple is a mixture of the peace, spirituality, and stability that comes from blue and the energy, heat, aggression, and anger from the red colors.

    What’s bad about it? In a negative sense, purple is thought of as arrogance, conceit, gaudiness, inferiority, immaturity, corruption, delusions of grandeur, and the social climber.

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    Too much dark purple can bring on moodiness, frustration, gloom, and sad feelings. It can cause frustration. It is associated with nightmares and addictions.

    What’s good about it? Lighter purples balance the mind, bring peace, inspiration, spirituality, clarity, and compassion. Light purple evokes romantic and nostalgic feelings.

    Purples have been used in the care of mental nervous disorders because they have been shown to help balance the mind and transform obsessions and fears.

    It is believed to be helpful for exhaustion, migraines, stress, anxiety, and low self-esteem.  A purple room can boost a child’s imagination or an artist’s creativity.

    If you are having trouble sleeping try using a light purple light bulb in the lamp by your bed.

    Purple is associated with royalty. wisdom, mystery, magic, and ambition. The Purple Heart is a U.S. Military decoration given to soldiers wounded in battle.

    There is a very long list of various diseases and conditions that use purple Awareness ribbons.  Some of them are Fibromyalgia, Lupus, Neuropathy, and many more.

    Even the essential oil Lavender is used as a calming, relaxing tool.

    Now, many years later after being diagnosed with Fibromyalgia purple gives me the feeling of belonging, unity, and strength.  

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Hello Fibro Warrior. What are your spoons worth?

    Hello Fibro Warrior. What are your spoons worth?

    Like many people diagnosed with fibromyalgia, I have also been diagnosed with Chronic Fatigue Syndrome now known as SEID (Systemic Exertion Intolerance Disease).

    What is SEID?

    The five main symptoms that the new IOM considers key for SEID are:

    • Reduction or impairment in ability to carry out normal daily activities, accompanied by profound fatigue
    • Post-exertional malaise (worsening of symptoms after physical, cognitive, or emotional effort)
    • Unrefreshing sleep
    • Cognitive impairment
    • Orthostatic intolerance (symptoms that worsen when a person stands upright and improve when the person lies back down)

    Doesn’t sound like much fun, does it?

    No matter what fancy name the medical community uses, to me it means that I am always tired. Every activity that I choose to do will eat away at what little energy I have each day. I have to decide after work if I have enough energy to go to the post office, bank, swimming, or if I need to go straight home for my 3:30 p.m. nap.

    I am always looking for ways that I can save my energy.

    Grocery shopping takes the most out of me. It doesn’t matter how rested I am when I start shopping, by the time I’ve made it through all of the aisles, waited in the check-out line, pushed the cart to the car and unloaded the cart into the car, I am done. It becomes an effort just to drive home. Luckily, my husband and daughter carry the bags upstairs to the kitchen and help put away the groceries because after shopping, I grab an ice pack and head straight to my chair for a few hours.

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    More times than I care to admit, I have gotten half way through the store and find myself staring at the shelves. I stand there in a mindless fog, and even though I have my grocery list, I am lost. It is hard to explain to someone who hasn’t experienced it. At that moment, I am unable to process my thoughts into words and feel as though I can’t go on. I have spent all of my spoons.

    So, I was really excited when our town recently added an Aldi’s. It appealed to me for a couple of reasons. It is smaller (less walking), offers a greater variety of natural foods and is cheaper. I did my homework before going. I looked up the Wal-Mart price of everything on my shopping list so I could compare them to Aldi’s pricing.

    One of the ways Aldi’s cuts costs is by having the shopper bag their own groceries. After I went through the check-out line, I pushed the cart to the bagging table. I didn’t think it would be a big deal to bag the groceries, but it turned out to be exhausting. Basically, I had to handle the items in the cart three times. First, leaning into the cart to take the food out and place it on the table. Second, I placed the groceries in the bags. Third, I put the full grocery bags back into the cart and finally, after pushing the cart to the car, one more time I took the bags out of the cart placing them into the car.

    It took all my spoons, i.e. energy, to drive home and put away the groceries. Afterwards, as I was resting, I compared the prices between the two stores.

    The total savings was $15.71. Was it worth it? I can think of a lot of things that I would rather spend my spoons (energy) on than grocery shopping.

    To the healthy shopper, it probably seems ridiculous that I would rather spend an extra $15.71 than all of the steps it took to bag my groceries. It really is a struggle deciding between saving money and saving spoons. I need both. It has taken me years to realize how important it is to do everything I can to save my energy.

    I am happy to report that I may even be able to save more spoons.

    Some Wal-Marts have added a new grocery shopping feature called “pick up today.” You simply go online and select your groceries and the time you want to pick them up. There is no fee and the only requirement is that your purchase is over $50.00. You drive up to the door and they will put your bags in your car for you. You will want to check with your local grocery stores because I’ve heard this is becoming a trend.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Why Fibromyalgia Patients Lost in the Fog

    Why Fibromyalgia Patients Lost in the Fog

    I have found myself Lost in the Fog this week.

    I know that there really is no way that my non-fibromite friends & family will truly understand how it feels however I still find myself trying to explain it to them.

    My daughter almost ended up grounded because I did not remember a conversation that we had last night. I know what you are thinking – but she is a good kid so I knew I could believe her when she told me we had talked and what had been discussed.

    There was so many times today that I said the wrong word or went simply BLANK.

    When I was describing it to someone today I was trying to remember if I had already told her. If so, she was nice enough to listen to me tell it again.

    As I am writing this I can hear others telling me “it happens the older you get”.  I get it. Really, I do. No matter how much I lie about my age my body reminds me daily of my real age.  BUT IT IS NOT THE SAME!

    It could be as simple as losing things or transposing numbers but fibro fog can seriously affect one’s quality of life.

    You sit and stutter trying to come up with the word. ‘The thing, you know, the thing that you use for — never mind, the word is gone.”

    It can be very disorienting and scary. It can screw up all of your senses.

    One of my friends describes it “as if you’re getting startled awake in the middle of the night.”

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    There are many things that can make your symptoms worse and I have experienced many of them the past couple of days. Thanks to the wonderful summer storms we are experiencing I have had increased pain and less sleep.

    Like everything with fibro we can’t predict when we are going to get lost in the fog but there are some things we can do to help alleviate the fibro fog provided you remember them.

    Fibro Fog sucks. I could use prettier words but I can’t think of any better way to express it.  It took a long time but I have finally learned to laugh about a lot of the things that I have done during a foggy day.  Please feel free to post a foggy moment that made you laugh.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Interview with Tania Gregory Burch

    Interview with Tania Gregory Burch

    Nayer: What was your life before fibro?

    It was very different than it is today. I was your typical type A perfectionist. My life was mostly about work. I was editor of a rapidly-growing weekly newspaper, and with that came a lot of deadlines and stress. I loved my job, but the pace of it began to wear on me after a few years.

    I admit I was bad about work/life balance, but I did have some hobbies. I liked working on home-improvement projects. I liked going to yard sales, antique stores or thrift stores and looking for deals. I love beautiful things, so I enjoyed museums and parks. I had an interest in New Age and paranormal topics (meditation, Reiki, ufology, ghosts, etc.). I love animals and have volunteered with animal-rescue groups over the years.

    Nayer: When did you show your first signs and what were your first symptoms?

    I had my first symptoms in 2010 following the death of my mom from lung cancer. My first noticeable symptom was severe fatigue, which wasn’t surprising given how hard I worked. I was so tired, but at the same time, it felt like my body was always in overdrive. I couldn’t relax, and I was having a hard time sleeping.

    About this same time, I began having urinary urgency, which I chalked up to being hereditary because my aunts had dealt with that issue. I also had severe pain in my hands, which was diagnosed as carpal tunnel syndrome. I later found out that was a misdiagnosis.

    Over the next couple of years, the pain in my hands migrated, and I began having pain throughout my body. After going to a series of doctors and being misdiagnosed several times, I was eventually diagnosed with fibromyalgia in early 2014.

    Nayer: Besides fibro, what other coexisting conditions have been diagnosed?

    Last summer, I found out I have chronic Lyme disease and several other tick-borne co-infections. My doctors now believe Lyme and the co-infections are the underlying causes for my fibromyalgia symptoms. I’m currently being treated for tick-borne infections, and I’m hoping my symptoms will eventually dissipate.

    I also have overactive bladder, neuropathy in my feet and thyroid dysfunction – all of which are probably related to Lyme.

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    Nayer: How did your fibro diagnosis initially change your life?

    At first, I thought I had adrenal fatigue or possibly hypothyroidism like my mom. I thought I just needed to rest and regroup. I gave up my stressful job and moved to another state. I started to take better care of myself. I slowly changed my diet. I started exercising. I meditated every day. I made all of the common lifestyle changes that you read about online, but no matter what I did, I still felt awful.

    I began going to various doctors, trying to figure out what was wrong with me. Most of them thought I was depressed and tried to write me prescriptions for antidepressants, but I had suffered from depression earlier in my life, and I knew what I was feeling was NOT depression. It was a very frustrating time because my doctors and my family didn’t believe that I was sick.

    Nayer: What changes have you had to make in your life?

    Everything has changed. I no longer have my beloved career. I’m no longer able to work full time because I don’t have the stamina. I’m not able to take care of my home the way I used to. I’m not able to participate in many of the extracurricular activities that I used to enjoy.

    Nayer: What is your life like now?

    My life is very limited at this point because of the severity of my symptoms. Pretty much every decision I make now is affected by my illness in some way. Decisions are always tradeoffs. If I do XYZ, then I won’t have the energy to do ABC. Like many with chronic illness, my life revolves around treatment.

    Nayer: What are your biggest battles now and how do you confront them?

    Pain and fatigue are my biggest daily battles. I have always been a can-do sort of person, so it’s been a mental struggle for me to admit that I have limitations now. I still want to do all of the things that I used to do, and I tend to push myself, and then pay for it. I really struggle with pacing myself.

    Nayer: What is the best/worst thing that has happened due to illness?

    The best thing? I think I am a much kinder person than I was when I was healthy. I have a lot more compassion for other people, and my mindset is more service-oriented now. I am much less self-absorbed.

    The worst thing? Losing my independence. I’m more dependent on others now, and I don’t like that one bit. Financially, chronic illness has been a huge drain.

    Nayer: How is your relationship with your family & friends?

    Prior to my Lyme diagnosis, my family didn’t really believe I was sick. When I was diagnosed with fibromyalgia, I felt vindicated because I finally had a label. I didn’t realize that so many people see fibromyalgia as a “fake” illness, and unfortunately some of the people closest to me fell into that category.

    They finally accepted my illness when I had a blood test showing that I was positive for Lyme disease. It’s better now, but it’s very hurtful and stressful when your family thinks you’re a hypochondriac and lazy.

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    Nayer: What made you want to start a blog?

    Part of it was because I didn’t have the support of my family. I needed to connect with others who were going through the same thing.

    I had also become overwhelmed with the information that I found online about fibromyalgia. There are millions of products and services marketed to fibro sufferers, and it was so hard to figure out what might work and what was a rip-off.

    At the time of my fibromyalgia diagnosis, I’d worked almost 20 years as a journalist. I definitely knew how to research and write about health topics, so I decided to use my skills as a journalist to help myself and others, and that’s when I founded FedUpwithFatigue.com.

    Nayer: What do you wish people knew about your illness? 

    First, I want people to know that fibromyalgia and chronic Lyme are real! We are not fabricating our symptoms. We are not lazy. We are not trying to get sympathy.

    Second, I want people to know that fibromyalgia is complicated. Despite those annoying Lyrica commercials on TV, there is no pill that fixes fibro. The fibro drugs on the market only help about one-third of people.

    Third, I want people to know the medical system is failing those who are chronically ill – especially the chronic pain community. Our medical system is fantastic for broken bones and the common cold. It is a dismal failure when it comes to treating chronic conditions, like fibromyalgia and Lyme. These conditions require more than a seven-minute doctor’s visit and a prescription. They require physicians to take a holistic, systemic approach to treatment, and conventional medicine doesn’t allow for that.

    Nayer: What is the most important piece of advice you would give to someone newly diagnosed with Fibro (or even seeking a diagnosis)?

    I know some people are going to take what I’m about to say the wrong way, but I hope they will read my entire response before jumping to conclusions.

    What I would say to someone newly diagnosed is this: Don’t accept that diagnosis. I no longer view fibromyalgia as a condition in and of itself. I see it as a collection of symptoms signaling that there’s a deeper problem.

    Now, in no way am I saying fibromyalgia doesn’t exist. What we’re feeling is very real, and it’s painful, and it’s miserable, and it’s debilitating.

    But what I am saying is to push yourself and your physicians to delve deeper. Don’t just accept the label of fibromyalgia. There’s a Canadian study that found up to two-thirds of people with fibromyalgia may be misdiagnosed. That’s millions of people who are probably living with conditions that could potentially be treated if they were properly diagnosed.

    Our bodies are marvelous machines. They are designed to heal themselves. So, when our bodies go haywire, we need to question what’s the underlying cause for that? Don’t just accept that this is your lot in life, and there’s nothing you can do about it. Keep digging for answers!

    My take has always been that if we can figure out the underlying cause for our symptoms, and treat that, then maybe we can recover. In the coming weeks, I’ll be exploring the issue of underlying causes for fibromyalgia on my blog in greater detail.

    Nayer: You are an inspiration to so many. What advice do you give to others?

    Don’t rely exclusively on your physicians for answers. Do you own research! Become your own guinea pig – within reason, of course!

    The truth is most physicians don’t know much of anything about fibromyalgia outside of what the Pfizer and Eli Lilly drug reps tell them. I know that sounds jaded, but the reality is fibromyalgia research is still in its infancy. We don’t know what causes it, and we don’t know how to treat it, and neither do our doctors!

    Click Here to Visit the Store and find Much More….

    Many doctors are too busy to keep up to date on the research, so don’t rely on them to know about the latest and greatest treatments.

    I know there are some good fibromyalgia doctors out there, but at the end of your appointment, when you walk out of that exam room, he or she is on to the next patient and probably won’t think about you again until your next appointment. YOU have to live with this condition every single day, so take an active role in your treatment plan!

    And consider branching out from conventional medicine. The only progress I’ve ever made was when I worked with physicians who practiced in the areas of functional medicine and/or naturopathy. These practitioners take a more systemic approach to treatment, as I mentioned before, and they’re much more likely to work with you on identifying your underlying causes for illness versus just treating symptoms with pharmaceuticals.

    Nayer: What inspires you?

    My fellow fibro warriors! My mom (who also had fibromyalgia and probably Lyme disease) used to say there’s always somebody who has it worse than me. Although I’m in pain every day, I know there are others in our community who are struggling with symptoms that are much more severe than mine. Hearing their stories and struggles keeps me motivated to stay of service to the fibro and Lyme communities.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Confessions of a Fatigued Fibromite.

    Confessions of a Fatigued Fibromite.

    What have you done due to fatigue?

    I was posting things I have done because of fatigue/”fibro fog”. After sharing my stories others began to share theirs. I saw myself in everyone of their stories. I know it makes me feel better to know that I am not alone.

    MY CONFESSIONS

    I stood in front of my office door pushing the button on my key wondering why it was not opening my door. It took longer than I care to admit for me to realize that I had been clicking my car remote door opener.

    I told my daughter to meet me at the bank. I got there and texted her telling her that I was there waiting for her. She called asking where I was. She had gone to a different bank in town. I was positive that she was at the wrong bank. In fact, she even drove over to the bank I was at meanwhile I had told the lady at the bank that my daughter was late because she had gone to the wrong bank. She arrived and we handed the teller the information for her to make the deposit. You guessed it. She didn’t have an account there. She had been at the right bank but the good kid she is instead of arguing with me or saying something about my memory we just drove over to the correct bank did our banking and went about our day.

    CONFESSIONS OF OTHER FATIGUED FIBROMITES

    “I sprayed hairspray under both arms before realizing that it was not deodorant.”

    “I put milk in the cabinet & cereal in the refrigerator.”

    “I fall asleep in the shower.”

    “I had to stop putting my socks on standing up. My balance has gotten really bad, but it’s mostly because I put my shoes on next, like auto pilot. Know where this is going? Socks, shoes, pants! Then I would fall over because my foot would foot would get stuck in my pants leg because I had already put my shoes on.”

    “I arrived at doc appointments at wrong docs and times. But it’s rare. Once, I went for yearly check up and had absolutely no memory of having ever been there or seen the staff before but they knew me. Freaked me out because my father has advanced dementia. It never came to me. Still don’t remember them. I walked in office saying, did you move?”

    “I drove to the wrong city for 1 of my medical appointments! I was about 1 hour farther out than I needed to be at their main location. Now I can’t even drive myself anymore…who knows what would happen…I would for sure fall asleep at the wheel before I made it!”

    “My big one is getting home from the grocery store, and I’m so wiped out sometimes that my mind blanks on one of the bags, so something doesn’t end up in the fridge or freezer that should have. I hate when I do that!”

    “I went to a hair appointment Tues. when it was actually not till Thurs.”

    “I tried to put the milk in the kitchen cabinet one day. The only reason I didn’t is because it wouldn’t fit.”

    “A couple weeks ago, I was sitting in the car, that I’ve had since 2013, waiting for my husband. He came back to the car to tell me something and I had no clue how to roll the window down or open the door. I sat and played with the locks, until I found the handle…lol Yes, funny, yet scary!”

    “I have no more drinking glasses left. I broke them all. I would just randomly drop them. Plastic is the new glass in my household.”

    “Personally I like fibro pregnancy brain duo. lol I put everything in the freezer or wrong cabinets.”

    “Drove my preteen daughter to the wrong school for morning drop off….! Luckily she noticed! Haha!”

    “I put my phone and umbrella in the fridge one morning.”

    I have been struggling with fatigue more than usual these past few months. I will end this blog by sharing that when I began to proof read the above article it appeared to be longer than I had remembered. I found out why. I had posted each of the stories 2-3 times.

    Share your stories in the comment box below.

    “Wishing you sun~filled days & rest~filled nights”

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia has Changed all my Relationships

    Fibromyalgia has Changed all my Relationships

    Relationships can be difficult for healthy individuals. 

    They are even harder when you add the complications of  being in constant pain, severe fatigue, anxiety/depression and cognitive impairment.

    There are many types of interpersonal relationships.  Some of the various types are friendship, family, and work.

    Fibromyalgia has changed all of my relationships. I have little energy to do the things that I used to do.  I loved to go out and socialize.  Now, I prefer to stay home in my comfy chair.

    Spouse

    Fibromyalgia caused me to lose my career of 20 years. I have a wonderful job but the pay is 1/2 of what I was making previously leaving my spouse mostly financially responsible.

    Being married to someone with fibromyalgia is not easy. It is common that the spouse feels stress, fatigue & loneliness. Couples are more likely to be at risk for divorce when one of them have a chronic pain illness.

    27 years ago we agreed to “in sickness & in health” I don’t think that we really consider what that means when you say “I do”.

    Prior to being ill my husband and I split the chores. He would take care of the outside and I would take care of the inside. I loved to cook new recipes, make breakfast in the morning and keep the house clean and decorated.

    Not only does the spouse take on the financial burden, housekeeper but also as caregiver.  reminding me to take medications, go to sleep, ice packs, etc…..

    I am too tired or in too much pain to want to be intimate which puts a strain on my marriage.

    I don’t have the energy so he goes without me.  I can’t blame him.  Why should he stop going to see movies because the lights are too bright, the noise too loud and it is painful sitting in the theater seats.

    Parenting

    It is difficult enough taking care of yourself and your relationship with your spouse when you have fibromyalgia. Try being a “normal” parent. I became sick when our daughter was 9 years old. She was old enough to understand that mom was sick but still too young to have to grow up so fast.

    It is hard for a child to see their parent crying, not able to walk without help and needing the child to be the caregiver. I am filled with more than the normal “parent guilt”. She just successfully completed her first year of college and has returned home for the summer. She immediately began to clean the house, grocery shop and be there for me again.

    This past Mother’s Day, I received a lecture from my 19 year old that I needed to get out of the house more, needed to head back to swimming and start doing things with my friends. Most people would react that a child should not talk to their parent in this matter. It hurt but more because she is right. I have closed myself off more and more over the past few years.

    Although, my pain is under control I find myself hiding from doing things scared that it will affect my health. It has affected me more emotionally/mentally.

    Friendships/Co-workers

    I was the co-worker that planned the after work activities. I made sure that everyone had a birthday card and treats. They didn’t get just any treat. It would be their favorite. I took the time to learn what their favorite treat was and often made the treat myself.

    I have a great group of co-workers but usually do not accept invitations to do things outside of work. The exhaustion of working is so extreme that I do not allow myself the enjoyment I feel when I am with others. I may text a couple of friends or facebook message them but that is the extent of my socializing. I actually try and avoid talking on the phone.

    Myself

    Outside of work my life consists of coming home, changing into my pajamas and sitting in my chair until it is time to go to bed. Once I was no longer a leader to a support group I stopped participating. I lost the reason for me to go, I was helping others.  A few weeks ago, I realized that for 2 1/2 days I sat in my chair watching Netflix and playing solitaire.

    Reading this over, I know I am doing wrong, what I should be doing but I can not seem to motivate myself to do it. How easy it is to help others and how hard it is to help ourselves. A lot of relationships have been destroyed because of my illnesses but probably none as bad as with myself.

    After completing the above post I asked my daughter to read if for me.  She said, “it’s good, but you need another paragraph”, “?” “Aren’t you Fibro Warriors ~ Living Life still?  Where is your plan? How are you going to get out of this?  You always have a plan, write it down and make yourself accountable”.  I picked up my phone, texted my friend telling her I would go swimming after work on Tuesday.

    Each night this week after work I will pick one of my to-do’s that I have promised others I would do and complete the task.  I will post my to do’s on the kitchen counter and allow my family to check on my status.

    I will do these things because as my daughter reminded me I have been able to manage my pain and continue working because I balance movement & rest, socializing and solitude but most of all I am and will continue to be a Fibro Warriors ~ Living Life.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Swept under the rug of Fibro…

    Swept under the rug of Fibro…

    I am like most fibromites. I struggled to get someone to believe that there was something wrong and that my symptoms were not just “in my head.”  Prior to being diagnosed with fibro, I racked up a list of diagnosed conditions / diseases.  Once diagnosed with fibromyalgia, it all began to make sense.  I looked at the lists of symptoms and found myself checking them off one at a time.

    As additional symptoms and conditions appeared, I immediately chalked them up to fibro. For example, I began having extreme sharp head pains, dizziness and increased mental fog. One time when I was visiting my parents, I had another episode.  My mom reacted like most moms:  Get to the doctor!  She spouted family history of brain aneurysms. Like many daughters, I ignored her.

    A week later though, I started experiencing black outs and an increasing light-headed dizziness. While I was certain these were fibro symptoms, I did make an appointment with the doctor. He scheduled an MRI, the results of which showed nothing irregular, and he was 90% certain that my new symptoms were fibro related.

    Although I agreed with the doctor that the new symptoms were fibro related, I started wondering about how do we differentiate between what is caused by fibromyalgia and what is something new or more serious?

    At what point do we see a physician?  Will they believe us?  Do we begin to assume that any new health issue that arises is caused by fibro?  Are we causing ourselves harm and putting our own health at risk by dismissing indicators or signs that could be other ailments?

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    What about our family and friends?  Do they become so accustomed to our “complaining” that they begin to tune us out?  How often do we ignore new symptoms?  Are we just “sweeping them under the fibro rug?”

    What can we do to avoid making this mistake?

    As I continued pondering these questions, I came up with a few ideas:

    • Keep a daily health journal
      • Medications – dosages and when you take them
      • Symptoms – along with what makes them better or worse
      • What you eat and drink
      • Sleep and pain patterns
    • Use reputable research sites (such as ProHealth) for research
    • Examine your relationship with your healthcare providers
      • Do they listen to you?
      • Do you have a trusting relationship with them?
      • Do they sometimes challenge you?
    • Consult your peers – are you in a support group?
    • Listen to your body.

    Working with a fibromyalgia coach can be very helpful; they can help you talk through what’s happening and help you figure out the next step to take.

    Many times, you will have a “sixth sense” about whether it’s fibro or maybe something else. If you’re not sure, always err on the side of talking with your doctor.

    Just as we don’t sweep dust under the rug, let’s make sure we don’t sweep all of our symptoms under the rug of fibromyalgia!

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store