My name is Amelia and I’m 31 years old. I have been suffering from fibromyalgia since I was 20. I have just awoken from being in bed for 12 hours, that’s after not sleeping the previous night at all because the pain was so bad.
As I type this the pain in my legs is unbearable, horrible deep aches along with burning acid type pains. My arms are exactly the same, my toes feel like they are in a vice and I could go on but I’ll give you the break my body never allows me.
I have just had to ram a handful of pain meds down my throat and pray they actually do something other then make me feel sick or itchy or some other awful side effect that seems to come along more often then the pain killing effect. You may ask “why bother taking them then?” And you’d have a valid point. The truth is that I’m desperate and I don’t know what else to do.
I know fibro has become something people take the piss out of because “I saw that person last week and they looked fine” Do you have any idea how much medication that took to allow that person to go out? How many times they probably had to put it off to another day? How many days afterwards that that person will suffer just for doing whatever it was that you witnessed them doing? What else are we supposed to do? Just sit in the corner and never ever do anything again? That’s not really very fair is it, small things like having a coffee with a friend might be the only thing keeping that person alive.
I’m sure I’ll get a lot of ridicule about how I look, yes I’m fat and ugly but I have had over ten years of pain and sleepless nights behind me and let me tell you, this is what it does to you. So before you decide to take the piss, imagine if I were your mother/father or sister/brother and you’d watched that person go from a vibrant and happy person to someone that couldn’t move or stand to be touched because they are in so much pain. Someone who can’t reliably arrange anything because they don’t know if they will have slept the night before or if they will be able to get there because the pain is so bad. Someone who at times can’t string a sentence together, or make a decision or even stand to talk to you because they’re brain is so foggy. Believe me when I tell you it takes everything away from you from your independence and confidence to your friends and hobbies.
So yes, this is a very small snapshot of a much wider invisible illness which is completely misunderstood. I know fellow fibro sufferers will understand this but I hope it allows even a few other people to maybe think twice before taking the piss out of someone who is already suffering so much next time.
Can I ask you all to share this please? And I’d love to see pictures of fellow sufferers and read your stories so we can add to this post and show people what it’s like. I tried not to make it to long so I wouldn’t lose people.
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