Dear Fibromyalgia

Category: Fibromyalgia

An in-depth guide on Fibromyalgia, covering its symptoms, causes, treatments, and tips for managing this chronic condition effectively.

  • 25 “Fibro Fog” Unforeseen side effects

    25 “Fibro Fog” Unforeseen side effects

    By: Dr Alexa James

    Is there a fiber fog? It feels that you’re dazzled by the simplest things, you can’t remember. You have a loss of memory and can’t speak the words you want to say. You find it difficult to concentrate, you can forget little information and even plan. You may feel confused, just as you can’t understand what is being said to you. The concentration and even a lack of vigilance and energies have decreased. It can be deceptive and depressing. This is one of the major challenges that we face every day. It can range from mild questions, such as forgetting the word hairbrush, to serious problems, such as the sense of confusion about why you are in the room first.

    Fibro fog. Current cognitive problems with fibromyalgia. Fibro-fog, what is that?

    You feel that you can’t remember the simplest things. You can’t remember. You have a loss of memory and may not speak the words. You find it difficult to concentrate, you can forget little details and even plans. You may be confused, just like you can’t understand what you’re told. Concentrations have decreased and even energy has been lacking.

    It can be frustrating and depriving, even. This is one of the most important problems that we face every day. It can range from mild issues, such as the forgetfulness of the word hairbrush, to the seriousness of the confusion of why you’re in the room. I will speak, have a word on my tongue, I’ll have a simple word, like hairbrush, and can’t say that word in my life! I’ll be talking! Rather, I walked through my room and dressed for the day to finish looking through a book of photos and then proceed out of the room. I watched a picture book and then a book of photos. That’d disturb me to the point of tears, and sometimes still. Time to admit to my psychiatric department. I feel like I go nuts.

    Here’s where we share community resources:

    1. Three times I’ve left my garden pants, because after watering outside animals I’ve forgotten to turn them off, and they’ve spent 24 more hours. After all the set of washers, if you forget about starting washing, come back to put the dryer in later. Think it’s not done, I’ve returned a call or sent an email. Forget about what I say… it’s so outrageous!!! –haggy

    2. I ask my husband to take me something high in the cupboards, for example, by replacing a word for another, but I say the name of that other object while pointing at what I want, if I have a glimpse of another object before asking him. I often ask him the “chair” in my kitchen cupboard that’s high up.

    3. My depression is heavily affected by the inability to talk normal. Sometimes I feel like my only meaningful conversations with my 3-year-old granddaughter. -Lisa

    4. I’m anxious to talk to people who don’t know me because my talk is quite choppy. I have a lot to pause and think about words or say the words off the wall that are null and void of what I say. I forget about appointments, talks and questions. However, the part which most disturbs me is that my level of intelligence has fallen dramatically can’t concentrate, like simply discovering issues or puzzles, and sometimes my brain can’t do much work. Occasionally, I drive down the highway and panicked, not knowing where I was for a while. I forget where I go and I’m going. My husband had the checkbook and the accounts to take over. I have messed up paying bills and balanced the checkbook too often when I did it perfectly well for years and years. Jessica

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    5. Once more, I’ll say this too. All of us forget stuff. All of us. Big gap between fibro fog and forgetting. I can easily forget to keep my food list. Like all others, just forgot. Forgetting Fibro Fog has a feeling. A dumb, hazy sensation. A sense of hangover. And I’m beginning to sling out my talk. For the frightening feeling and forgetful thing, I did, I go into panic. My brain tries hard to get to the side of the answer and literally you can feel pressure and hurt. I left the burner last night and decided that Tupperware was a great butter lid on the stove after cooking. -Sammy

    6. I start sweating and my body blows and I try to sit in the middle of grooming my horse. I must lie down, not move, no suffering like floating, for around 15 minutes staring straight ahead. All returns to normal after the fifteen. As normal as we get fibro. Margaret

    7. The worst thing is what we all share: the failure to find words, to blank in mid phrase and to feel stupid. I agree with that. Curiously enough, I write a lot better than I talk, and for decades I have kept newspapers. I’m so happy that I’ve been affected by many of my long-term memory. During flares, I kept a pain newspaper, a dream diary and so on. I must force myself to write a little nowadays but it helps to have a naked soul and not to make it out loud–Terry.

    8. Try to write down things and forget what I write immediately. I’m a cook and have to write on labels what food is and how often I fight to get the food right in front of me. I already write the date several times but forget every time. I have no choice. I’m a cooking assistant. This is so frustrating. So, dumb I feel. – Cory

    9. Go to the airport to pick up my daughter and realize I was going in the wrong direction! Times when I can’t figure out how to get there are thousands of times! Words can’t remember, can’t spell when you talk…. –Alexa

    10. The most frustrating thing for me is that I cannot follow the word. It’s like I hear it, but it doesn’t work in my brain. Words that are wrong and things that are misread are also frustrating, especially because I like to read and write and have always been very good at them. Forgetting about what I’m doing is something else, but without fiber many people do so, so it’s not just as embarrassing to ask someone to reply.

    11. In the second year of the tough doctoral program, my chronic fatigue brain fog first hit me, where I was assumed to have excellent memory and skills. I started asking my professors, and even some of my colleagues, if I was part of the programmed, and felt like an impostor. There was nobody talking about chronic tiredness or brain fog at that point, so I felt I just lost my mind. So, a pity.– Rimse

    12. Losing the mud-thinking phrase, even the middle word. Put the milk into the wardrobe, cereals in the refrigerator, leave oven for 3 hours, use a calendar to keep track of the new medicine. Increase schedule, daily pills had to be purchased because I forgot whether or not I used medicines. Set an alarm 2 times a day to remind you of medication. -Shannon

    13. I could not remember this summer, on holidays at the lake, how to deal with a solitaire game–something I did a thousand times every summer of my life. I had Google. I had it to Google. I sat then crying at the table because I’m new to that symptom and I’m afraid of that. –  Kible

    14. I work in the hospitality and I literally look at the cash register to make a customer change and I can not make a registry because the fibrofog makes me confused and I only forget what I say in the middle of the sentence. Kelly

    15. Oh, I’m just chatting when I need to speak with a repairman, customer service etc. That way, I can’t sound like a jerk on the phone. I could have time to reflect on what I want to say Aimee

    16. Phone number mixing up. Often I have to ask people to write me or put their own phone number, l mix the number sequence up tox inconveniently– Amma

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    17. Because I forget their names, I can’t introduce people. Just like the names of my parents. I forgot my own name. I forgot my own. I had them after flashbacks in particular. It’s awful. It’s awful. My brain goes blank and I forget about talking, saying the simplest phrases or doing things to help me. Things and what’s going on to me, so they could understand, I told my family and good friends. They were awesome, apart from my mother. She is simply not open to it. I’m always not familiar with the date. I’ve got lots of advice. My calendar, my phone notes, lists of things to do. –Cynthia

    18. Cooking! I’m on a budget that is very limited. It makes me want to weep when I burn food, because every bit is precious. I continue to forget that I’ve got food on the stove. But I keep forgetting to set it. I’ve got kitchen time. This way, I have ruined many of my favorite pots.– Eva

    19. When I couldn’t follow discussions at work, I noticed the fibro fog. I wrote legal papers and supported my colleagues, and I was frightened when I began to fail to understand what people were saying to me. What was happening, I didn’t understand. My fiber symptoms have been getting worse and I can do what I need to do now in order to try and cope with my work I have been retired for 35 years and it was a good choice. My friends and family came to expect my forgetful words, names or places. I can laugh about that now, but still very frustrating. I can laugh about that. –Dolly

    20. I think I’ve all had at one time or another. Because of my delayed time of action, I no longer drive. When I stood before my children, I always felt so bad that I could not remember their names completely. Fortunately, now they’re older and they know that Mummy isn’t trying to be funny. At first I thought I was losing my mind literally and went to Doc for Alzheimer’s and Detention to have him check it out (age 45). It wasn’t so bad until then, then it just got worse. I forget what I do when I do. Trying to type this was a frustration exercise and I lose my thoughtfulness and need to continue to figure out what I was speaking about, or write in a word that is not even near the word I want to say. Some days I just want to shout that when I’m with someone, my brain will just go away somewhere. Yes, that’s helpful, when I remember, to know that I’m not alone. Olivia

    21. When I speak, I get my words changed. When I tell my daughter, for example, that she has to remove the trash, it turns out that “you have to waste it.” Failure to drive, too. I suddenly feel lost as I don’t know where I am or where I am going when I drive in a familiar area. Forget what I say in the middle of the phrase. I wonder if I said loudly something I thought. –Pritey  

    22. I find it difficult to follow the easiest directions, for example on the side of a rice box, pasta, etc. I must ask my husband for assistance many times. That never thought, but it did. Sandy

    23. Go through the food shop with a list and then don’t know where I’m going and walk– Simi

    24. Once my son asked why my bag was in the refrigerator. I looked and it was there, sure enough. I was therefore looking where I kept my bag normally and the milk was there. Couldn’t remember what to call an appliance for a kitchen, it was always called the “garage of dirty meals.” My son asked if the dishwasher was meant to me. Oh, yes, I meant that. Twice, I couldn’t find out where I was suddenly while driving. Nothing looked familiar–not road signs or companies. I could figure it out until something finally got my brain in place.

    Over 20 years, I’ve been living in the same city! It frightened me! I’m going to be at my house and just stand because I want to watch TV, but I don’t understand what to do first, and I’m going to want a glass of water. I just got to get to do something, finally. Speak with me loud and concentrate all the time. I often “twist” the words because of “verbal dyslexia” when I speak. For example, knives and forks are turned into knorks and fifes. Fog could turn into foog. I’m using “thingie,” because I can’t remember the word for them, to describe things a lot. I started saying bluntly that I can’t think of the word to the people. So until we get the right one, they’re helpful and say words.

    25. Occasionally I can’t remember if I eat and I just realize I didn’t feel wonky. I’m also forgetting when I’m driving home after doing something which takes concentration, like driving to the shop. I have to trust my car pilot at times like that, but it’s frightening! Lavit

    Well, let me say what I am confronting when this article is compiled. I forget how many comments I have already listed, I forget about the wording of the person who shares his views. I forget that it has already been covered, while reading the comment, so you may also see a few repetitions of some issues in the article. In the image below, a summary. Please inform us in the comment section when you want to add or share your experience in the list. “Chronicillness.com,” because we found the question on their website, would also be appreciated for the issue.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • The Holding foods for fibromyalgia

    The Holding foods for fibromyalgia

    By: Dr Alexa James

    Fibromyalgia is a condition that causes muscle, joint and tiredness and depression pain. There are certain therapies that your doctor can order, but fibromyalgia consumption foods can help you to control this disease and improve your symptoms noticeably. A person-to-person diet of fibromyalgia should differ because some foods that are typically in a balanced diet might cause allergic and other adverse reactions.

    It is now well recognized that the syndrome is genuine and affects millions of people every year (in the United States only), but it may not be so clear that it has other characteristics.

    For instance, it is still not widely known what causes Fibromyalgia to develop. Naturally, most doctors agree that the disease is neurobiological or functional, and most of them will decide that their development is closely related to the imbalance of the brain’s neurochemical element, which causes the brain to incorrectly process the pain. All else, however, to a certain extent is still vague.

    While a list of clear reasons has yet to be completed, one of the risk factors may lead to the syndrome. Genetics, diet, stress and other psychological factors play an important role in these factors.

    Other symptoms commonly seen in patients with fibromyalgias are headaches, tiredness, sleep disturbances, bowel irritation, weak appendages, tingling and numbing fingers and limbs.

    Since it is not clear why Fibromyalgia is actually present in some patients, there is no real cure for this syndrome. However, their different symptoms may be treated and improved, and a number of things are suggested and recommended by the doctor in these situations.

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    It is most likely to prescribe a combination of drugs, which include pain-releasing, anti-inflammatory and even benzodiazepines and antidepressants.

    Furthermore, most of the doctors are advised to take advantage of natural or alternative medicines: yoga, meditation, acupuncture, tai chi, etc. Basically, it could also be suggested to simply walk or just relax in any other way.

    What causes fibromyalgia?

    However, some studies suggest trauma, stress, nervous abnormalities, and genes may lie behind it. This is still unclear by the research panel. The symptoms you are a candidate include muscle strain, pain, joint pain, abdominal pain, inflammation, fatigue, sleeping difficulty, depression, headaches, digestive problems, rigidity and stubbornness. These symptoms often appear alongside and usually the pain is general, not just an arthritis-like part of the body.

    What are the best foods for fibromyalgia?

    Any foods with gluten should be completely avoided for fibromyalgia patients. In many foods, from white to pastry, gluten can be found. The reason gluten is harmful is because, in most cases, it causes digestive complications such as indigestion, diarrhea, and abdominal pain. Next time you visit the supermarket, make sure you ask and store gluten-free products such as bread and avenue to avoid causing your symptoms.

    Fibromyalgia should include fruits and vegetables among your top food, because they include properties that keep your blood sugar well-adjusted, boost energy and reduce mood shifts. Tomatoes, green potatoes, spinach, kale, broccoli, sweet potatoes, berries, cemetery and tropical fruit, such as mangoes and papayas, are the most suited fruit and veggies in your regular diet.

    Similarly, fibro-myalgia foods are fed fish such as sardines, salmon, cabbage, herring, tropic and mackerel. They offer abundant proteins, fatty acids and can comfort muscle and joint pain. Bake or grill as a substitute for frying to obtain as many nutrients as possible. The amount of protein required to manage muscle-related symptoms is also available in eggs, chicken, pork and turkey.

    In place of trans-or saturated grease from packaged foods and junk food, you should also choose healthy fats in olive oil, nuts, seeds, advocates and butter.

    What are the worst foods for fibromyalgia?

    The food you should avoid depends on the reaction of your body to it. Many claims to have digestive problems and inflammation when they eat cheese, milk, sour cream and other milk-based foods. You can best find out how to keep a food journal in which you can keep a clear list of the food you eat to determine what foods you should not eat.

    In general, eat plants, fresh water fish and healthy fats as many as you can, such as fruits and vegetables. Switch your sweet juices and carbonated drinks to a replacement for fruit. Create a good calorie diet to manage your weight, drink plenty of water, and make a change as soon as you feel it.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • What daily tasks do somebody with fibromyalgia feel like?

    What daily tasks do somebody with fibromyalgia feel like?

    By: Dr Alexa James

    With fibromyalgia, your routines, abilities and skills can be very restrictive. Fibro pain affects every aspect of your life, just like it takes a lot of energy and time to perform a simple task.

    People can’t think how they feel, yet they still work, so they don’t think it should be too bad. Hey, hey. It is pretty horrible and very confusing, because you do not have much control over how physically you feel. You feel like I am doing it every day, at least to manage your Fibromyalgia in some extent, do yourself a favor and use these tips.

    So, our Facebook community “fibromyalgia” is asked what it’s like to do, because it’s fibromyalgia, to share with you a everyday task. So chronicillness.co has drawn up a list of its answers and thinks that this is true and does not overestimate our conditions.

    It’s a painful job for many to take a shower, so I don’t take as many as I ought. It’s nice every day to be clean, but at what cost? The same goes for homework, such as cleaning, flooring, etc. It is like walking in wet cement and the more I walk it gets harder. Fibro morning exhaustion is another major daily problem, too. These are the normal activities for a healthy person and it may take a short time, but it’s a huge task for us to get away from it.

    There are 27 different stuff listed in order to relate to everyone who reads this, so if at first you have nothing to do with it, read it, and perhaps you’ll find anything. If you wish to add a comment to the list below, share it with others if you relate to that too.

    Here is what community share with us:

    1. Each morning, wake up. It feels like you have always had the worst haven— TOUR. Headache, nausea, pain and all-round susceptibility, a lack of desire. If you had never had a game, maybe try to think that you’re knocked, trampled and put on a joystick.

    2. We should wake up restful and refreshed… from bed, but I always feel like I was hit by the train. Getting out of bed is like glass and will shake

    3. Showering is both a wonderful sensation and probably the most strenuous task of the day. Not sure why but it drains every single ounce of my body’s energy.

    4. Walking, even walking for any time to be able to perform tasks that take longer than 15 minutes or walk more than 5 or 10 minutes, even for a leisurely walk through a park… that is the world for me!

    5. Select the right clothes and underwear. Other people who will in no way hurt me.

    6. The house and the kitchen are cleaned. The floor sweeps & bumps.

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    7. Get up morning. Get up early. Still in pain and so tired. Getting out of bed in the morning feels like a truck ran over me, and then, in the morning too, I feel nausea–Marie

    8. A clippy who pulls my hair from behind feels as if it is buried into my skirt and puts 5 lbs. Pressing my cranium. The pomegranate even feels like I’ve got to squint it’s so tight.

    9. I try to sleep on my feet without any sleep support or ice bags. The longer I sit down, but I’m so tired, I hurt more and more. It’s overnight. At around 5 am, I can fell into astonishingly asleep, then I’m in sleep blackout. I miss many things to try to get my sleep up and get depressed. I miss many things. It hurts so much and gives me headaches, so I can’t think straight. I’m anxiety because I don’t know next to the lack of normalcy what I’m going to mess up. Every week it’s becoming difficult to cope with fibro that I live with. Roxane

    10. Since I have suffered a injury in my shoulders. Carry my laundry basket down and up my steps or, in the event of pain, it hurts to push the cart when I use the shopping cart on a shop.

    11. It is very hard to Tryna to keep comfortable, no matter what I do, to sit down and walk. I tried to take my children out to walk for the sun, but after I had gone out of school, I only lasted about one hour.

    12. Bathing the children. Bathing the children. It exhausts me completely. Cooking.

    13. Dishes are a nightmare to wash. I’m afraid the water hurts the position. My wrists and fingers are hurt by my height. The noise hurts my ears, the smells sick me. Washing dishes. It’s going to take all day. I’m doing a couple then sitting, do a couple then sitting.

    14. Someone added that he would do the dishes or whatever else that feels like a long endurance race. Time!

    15. I forget it. My teeth and hair are brushing. Because my jaw hurts after 30 seconds when my mouth is open, my arms begin to ache for one or two minutes. Get up in the morning… exhausting just afterwards. I’m not.

    16. Hanging washing. Hanging washing. I swear I might cause less pain by stabbing myself with a knife.

    17. Dressing up. Something else that can seem so easy that you spent hours trying outfit after outfit on the mall. And Someone added that in my arms and shoulders I have dreadful burning pains and that I cannot go behind me looking at a belt, undo my bra, etc.

    18. My long hair is scratching. I have my arms and hands to stop & rest. I can do it, however. It only takes longer and hurts me.

    19. Fold over or stand up out of the seat. Takes each power ounce. I feel like the woman of eighty years old. Take an ounce of energy out of me in a shower. Normally, after preparing in the morning you need two hours ‘ nap. And for hours I loved to drive. Twenty minutes driving now causes a lot of sciatic pain that I can no longer take. And only a year ago I was diagnosed. Don’t look forward to looking for the future.

    20. Steps up, ramps–my legs have the hardest anything uphill. Trees or steps are used. My articulations feel like I have sprains, and my muscles are dull. Sweat from pain- I always break out of

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    21. Riding… I’ve no longer got to the point where I got people ride me around because shifting gears harm too much.

    22. Yeah… I want to run away just some days to have some rest

    23- Being a single mother. raising a very active 7-year-old myself with very little help. The aspiration. It’s hard to do, it is even an easy walk away. Hardest thing to make a shampoo for my tapestry is to take a lot of my muscles and I unfortunately suffer from OCD and I like to clean my tapes at least every three months.

    24. The openness of a jar, milk or soda… my arms pain. Now my husband needs to wait so he can help me to stir and pour…… feels like shit.

    25. I used to bake much. The worst indoor task is washing. If it is too heavy to pick up, I usually push the basket on the floor. I’m so winded that I have to rest after I have carried or pushed a basket, then loaded the washer. But then after a stepping stub (I am short), I lean into the washing machine and transfer clothes to the dryer. My shoulders are burning and the joints melt. My entire flesh is tearing, my headache is winding, my heart rate is up, my hands don’t want to work anymore and hurt, I have hashimotos, I’m anemic. I’m anemic. When I get loads changed, I’m tired and too painful to fold my clothes to my couch.

    26. Hint. Hit. My cats bump my thigh and hip on my bellow or my dog. It hurts everything. I always felt bad, because my ex-husband hurt his feelings by not wanting him to touch me. For the sake of light, I have always felt I was sensitive, like pets on you or a light hand at my back. I was always sensitive.

    27. My dogs wash. Wash. They are small and I have just skyrocketed to bend over the bathtub and my pain. I’m finished for several days when they are washed and dried. I enjoyed our care routine so much, it’s torture now.

    28. Zip and buttoning. For many people it seems normal, but not for us. Hands are numb, thick and tormented, with no strength whatsoever.

    29. Make a candy. For example, thuna mayo… Stir the mayo in a feeling as stiff as I mix cement with a ruptured wrist. I have to stop and begin to taste so much that I am exhausted and I am sore on my back too. I feel like I have to rest, because my muscles are sick and dull

    30. I had to read books, such as magazines, and go through them one or two a week at least. The brain fog is the toughest part for Me (and chronic fatigue!) Now, without wondering what I’m doing, I can even get across a text message. Mental agony reflects clearly on one task.

    31. Washing because it involves not only lifting, but also up and downstairs. Shopping also takes a lot of time to my entire body-

    32. Walking up the stairs. Fibromyalgia has made my knees so painful. There aren’t any solutions either I literally have to pull myself up by the banister and hope for the best or the occasional bear walk/crawl but that’s painful too because of arthritis in my hands.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Things I found help me handle my Fibromyalgia.

    Things I found help me handle my Fibromyalgia.

    By: Dr Alexa James

    Living with Fibromyalgia is challenging.

    We do need to find out how Fibro works and how best to treat the symptoms, and we really need scientists to get it and to make this weakening condition, based on several factors, attention, and time. Doctors have only treated the symptoms that are enough to control the condition, but it does not work long term.

    In the past, the medical community tend to consider Fibromyalgia as an explanation for people who have sleep, pain and other problems. We seem to be reaching a point when some researchers are prepared to say “wait, there’s more,” than they thought before. As a result, currently living with Fibromyalgia are obligated, for pain relief, emotional turmoil and other symptoms that we experience, to go to communities full of people dealing with the same symptoms and problems as we.

    The following list shows the things I’ve discovered that help me deal with my fibromyalgia every day. It is a battle, and it can be very solitary. I hope they can help anyone else who lives with this condition. People don’t understand how it affects us, but they just don’t get it even when we try to explain.

    You can’t imagine how you feel, yet you still work, so you don’t think this should be so bad. That’s it. It’s pretty horrible, and it is very confusing, since you can’t control how physically you feel. If you feel like I’m doing every day, please take advantage and use these tips to at least handle Fibromyalgia in some way.

    For this condition, there is no cure-all. These techniques are not designed to help me say anything close to “Do these and you’ll find it.” These techniques will not fix you, but they can only help you to cope with what you’re dealing with.

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    1. That’s easier said than done, I understand, but truly try. As we often struggle against the sense of meaninglessness and feel like a burden, this could be one of the hardest things to do for us. Knowing when to give up and seek assistance can have a substantial impact on how we feel. Don’t care what people think, your emotional stress will also lessen. You are a combatant. You’re fighting against a condition that people can’t understand, or even imagine. They don’t think any more because they don’t know how it looks like.
    2. Assign a value to each event based on the effort you need to achieve and the time it takes before and after the recovery. Use this chart to help you figure out the next tip and also to help you understand how each activity is affecting you. (I started using a5-point system, 5-point system.
    3. It’s not a good day, not a bad day, but one of the days that most of us spend our time between. Once you know that, you can better measure what activities you can do before you stop, or better predict what you can fit in a given time frame.
    4. I’ve actually gone so far as to take a scheduling calendar before and after, to help me see how I need to take care of oneself. My body is not like that, and sometimes I find it difficult to remember and accept that fact.
    5. It is just as important to recover as to prepare. It takes time, and less activity takes place during the day, so many of us have to do it hard, but it is necessary. We hurt ourselves more if we don’t take the time to do these things, and we can do even less. The preparation and recovery aspect of a calendar like the calendar I mentioned before can help. Sometimes it’s easier to accept when you can see how much time your body needs to recover.
    6. Make a list of foods which you believe could affect you and begin to get rid of, one by one. Tell any changes you notice from the latest food eliminated every day during your daily routine. My own investigations have convinced me that food can have an impact on our feelings absolutely. I systematically removed food from my diet for a solid couple of years. It was more difficult to tell at the beginning which foods caused which symptoms, but the more I eliminated it was easier to know exactly what effects every product caused. For myself, it is necessary for me to avoid all the milks of dairy, many strong spices, and caffeine and to drink anything that is unclear (due to my kidneys.) I stick with lean grilled meat, veggies and not too hard for me fruits. Many books and websites on anti-inflammatory diets are available. I suggest that you look for an idea what foods are going to be eliminated.
    7. It must be very simple on your body but it still helps to move your muscles so that atrophy does not cause damage. In times you can’t get out and do things, that matters even more. That is why you want it to be sufficiently light, whether you have a good or a bad day. In 5-10 minutes, 2 or 3 times a day, this is easiest for me. I’m stretching lightly, walking in and a few 2.5 lb weight arm lifts. This is not so much, but in moderation it is movement, and motion DOES help. In our cases, excess can hurt us seriously, so it is difficult to exercise. I regard movement and practice as two different worlds. I have not the energy or the power to resist pain, but I have the ability and the strength to create energy, to move at least a little daily, because the effects of being only sedentary can be far worse.
    8. There may be several things to this. You want, of course, to physically care for yourself. This includes stretching, medication, noticing new symptoms, etc, which are elsewhere covered, but it also includes mental care. It is even more important to ensure that your anxiety is relieved and managed when you have anxiety or other mental illness. Stress can have an important physical impact on your body, particularly if you have chronic conditions. Develop a routine for everyday stress or anxiety management, which can be included in your everyday self-care.
    9. Someone who said it could be a new treatment or a symptom you didn’t know had something to do with Fibro. The more you know about it, the better you can understand what is going on with your doctor and about what you need to discuss. Make sure you don’t take and focus only on one-off situations. Do not allow it to send you into paranoid mode when you are looking for stuff. It’s not sound. Make sure you also look for others in the same field, if you read a personal experience, in order to get a more varied perspective on the matter. You would at least like to ensure that the author has experience with this subject or is from an officially certified source when reading informative articles. Reading articles with outlying headlines on Fibromyalgia adds to confusion and can overwhelm you with fear without further exploration of where the information is from. Please ensure that the proof can be supported on what you read.
    10. Many of you may have tried to, but if you don’t, or you may not, you ought to try. When maintained at constant, consistent levels, most medicinal products work best. That means that they can really be taken in a timetable. When you learn about fibromyalgia every day, you should also investigate your medications. Knowing what side effects can actually contribute to making them less severe in some people and also helps you to know when your medications are causing something.

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    Taking time to do these things can actually help your quality of life when you are suffering from a chronic disease. If you develop and adhere to a routine to manage your diseases on a daily basis, it’s more likely to help you control your disease–at least to the degree to which it is controlled.

    Nothing will improve everything–that’s why this is a chronic disease–but we can take some control and give ourselves the best chance to feel as good as we can. I hope that my fibromyalgia management can also help you to get as much control over them as possible.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

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  • NSAIDs for Fibromyalgia & Chronic Fatigue Syndrome

    NSAIDs for Fibromyalgia & Chronic Fatigue Syndrome

    By: Dr Alexa James

    The lack of inflammatory findings

    When patients complain about diffuse muscle and soft tissue pain in the tender areas, fibromyalgia (FM) diagnosis is considered. Pure or primary FM is non-inflammatory because it has poor response to anti-inflammatory conditions and has a lack of inflammatory findings about blood work, and examination. It is not associated with other inflammatory diseases. However, there can be diffuse musculoskeletal pain in patients with inflammatory disease such as RA, which feels like FM but is inflammatory, and thus likely to be inflammatory.

    What are NSAIDs?

    We generally refer to pain relievers available on the grocery store or on the pharmacy when talking about NSAIDs. Ibuprofen (advil and motrin), sodium naproxen (alve) and aspirin (bavarian and excedrin) include these substances.  Most people assume acetaminophen (Tylenol) is in the NSAID family, but this group of OTC drugs technically does not. Actually, acetaminophen not only has no effect on inflammation, but scientists remain uncertain about its workings.  It’s a pain killer or analgesic technically. There are several other types of NSAID prescription, but we will focus on the most popular ones.

    Pain killers are anti-inflammatory medicines

    Anti-inflammatory medicines are one of the most common types of painkillers. NSAIDs, which stand for non-steroidal anti-inflammatory medicinal products, are a common type of anti-inflammatory medication. Include popular OTC NSAIDs:

    The prescription strengths of these drugs are also available. NSAIDs include prescription-only:

    Not all the pain caused by fibromyalgia is due

    The general pain is usually taken with Ibuprofen, naproxen sodium and aspirin. Sometimes, pain levels associated with various types of surgery are proposed to be treated. Thus, it is meaningful to consider them as a way of finding relief from fibromyalgia. The difficulty is that not all pain with fibromyalgia is due to inflammation. In fact, the absence of fibromyalgia inflammation is one of the main differences from inflammatory conditions such as rheumatoid arthritis. However, at least one study shows that fibromyalgia is inflamed by the fascia, the fibrous sheath that covers the muscles. Inflammation, however, is not an indicator of fibro-diagnosis.

    Dangers of NSAID

    More than 100,000 people are admitted to hospitals in the United States each year due to NSAIDs, according to the American Journal of Medicine. In addition, NSAID-related problems, like ulcers and gastrointestinal bleeding, die from 15 to 20,000 each year, and digestive side effects could occur in as many as 60% of users of NSAID. Increased risk for death from heart attack or stroke is also associated with NSAIDs. These medicines may also cause liver or kidney problems.

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    Possible side effects of medicines such as Vioxx-COX-2 Inhibitors:

    Fibromyalgia Pain Relief Vioxx has been developed to reduce pain and inflammations without the risk of ulcers and other potentially fatal gastrointestinal side effects of aspirin and similar medicine, called a “COX 2 inhibitor.” Fibromyalgia Pain Relief Vioxxx. But COX-2 inhibitors may cause a second in resolving one serious problem. A group of researchers led by Garret FitzGerald MD, head of the Pharmacologist and Director of the Institute of Translational Medicine and Therapeutics at Penn, found that both drugs had been suppressing prostacyclin in humans just before Celebrex and Vioxx were approved and launched.

    Prostaglandin

    Most medical researchers agree that an anti-inflammatory drug-related pain relief is just a good benefit to their work. That is, they are preventing the syncretization of a type of lipid called prostaglandin within the body. Prostaglandins do a lot, but ultimately, they play a vital role in the inflammatory reaction process of the body.  This prevents the inflammatory response in the body from spreading or even starting.  And there is no inflammation which means no inflammatory pain.

    Fibromyalgia pain is usually not primarily caused by inflammation.

    Sounds awesome, okay? Not that quickly. See, the problem is that the pain caused by fibromyalgia does not usually come first. However, patients with fibro are also often affected by other conditions. Other inflammatory conditions such as arthritis react quite well to anti-inflammatory medicines. That being said, only one way can really figure out if anti-inflammatory drugs work for you: try them for yourself. Some of your pain, but not all, can be relieved. Other days, it could however be the perfect solution and provide you with the relief you need to make it pain free throughout your day. And it’s what matters if it works.

    Other NSAIDS ‘ potential side effects:

    Fibromyalgia Pain is 7 times more likely for adverse gastrointestinal effects for a person taking NSAIDs. The FDA estimates that 200,000 gastric bleeding cases take place every year and that 10,000 to 20,000 deaths are reported every year. The risk of developing higher blood pressure by a person is over double that of NSAIDs, which could lead to more medication. A study also included 41 percent of those who had recently begun drug use to lower blood pressure.

    Talk to your doctor

    You and your doctor will decide together if your diagnoses, symptoms, overall health and lifestyle factors are suitable for NSAIDs. It is important to note that one NSAID can work for you better than others, so that experiments with different medicines can be done to produce the best results. Talk with your doctor about possible alternatives and weigh the risk against benefit when you feel that NSAIDs are effective in reducing your pain.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

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  • Making Plans When You Have Fibromyalgia

    Making Plans When You Have Fibromyalgia

    By: Dr Alexa James

    Plans to make. Could be awesome. Awesome. For days, weeks, months or even a year, you can plan something. Plans for the same day can be made quickly. Planning is a very normal part of being a social human being, quite necessary.  However, plans can be stressful and full of anxiety if you have fibromyalgia.

    You don’t know how you’ll feel minute by minute, let’s say a day or more. Personally, because of my uncompromising pain I feel like I have dropped so many people. It’s not fair for me or with the people with whom I plan. It’s difficult to explain completely to anyone that yesterday, I felt good. I went out and had a wonderful time yesterday. Now, however? Well, half of my body is stupid today and the other half is very painful.

    It always appears to be a pretext. Like that person, you want to get away from plans. But that’s the truth farthest away. Birthday parties, family time, concerts were missed. I missed happy hours with good friends and simple nights out at the bar. I had to sell tickets for events I was looking forward to. I missed networking events that might have been great connections for my working life.

    You want to not cancel. You want to cancel. There are tears and emotional pain behind cancelation as there is physical pain. Cancelation of plans means people are dropped, and I hate that feeling personally. I thrive to be there, to support and encourage people in my life. Feel like a sinking and guilty feeling for missing bands or scheduled events. It’s so disheartening that even there is a low-key night to eat and drink.

    If people could see my pain, it would be different. It was a legitimate reason I could send a picture proving this. My pain is invisible instead and can easily be rejected as “fake.” It was because I was hung over (which I would totally own if I were cancelation plans), or because I found anything that I had better to do, or just did not want to see them. I’ve had some people wondering my pain and asks if that was because I was hung over it.

    It’s not fun to question your integrity.

    Cancel plans / leave early to anyone with an invisible disease: be patient. Be comprehensive. It’s frustrating, we know. For us, it’s awkward. We don’t want to let you down. We don’t want to let you down. We push ourselves to plan and try to do everything. With a bad day and a flare-up, the time is always terrible. We can’t control it, please remember. If we were able, we would definitely not live this way in life.

    We know that it sucks, is frustrating, and affects us not only. We won’t be egoistic and we don’t do our best to be egoistic.  Please cut us some slack next time we have to cancel. Do not lie and tell us if you don’t or tell us that it’s all right if it isn’t. It’s fine. Don’t make us feel worse than we already do, however, please.

    If (all right, when) we have to cancel, ask if we need anything if possible. Propose a sweatpant night on the couch. Pick up dinner. You cannot always rearrange and rearrange, and we do.

    All we ask is a little comprehension and forgiveness so that we try to understand and forgive.

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    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

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  • I’m not going to excuse myself for “OK” days

    I’m not going to excuse myself for “OK” days

    By: Dr Alexa James

    Our days are dictated by pain, tight muscles, fatigue and many other factors and symptoms for the patient who suffers from fibromyalgia or Chronic Pain. Sometimes we have to go so far as to plan a relaxing day, as far as our plans are concerned. What people who don’t have difficulties to understand with these conditions is how we can be productive some days, take part, enjoy fun activities, but some days we can do nothing, and getting out of bed or showering might be the greatest achievement for the day.

    Some people don’t realize that we live a daily life but, sometimes, hour by hour. However, this is our lives, it is not guaranteed what happens from day to day, things may not always be planned and the days are always uncertain. Nevertheless, regardless of what, if it’s an “ok” day, I will try to enjoy it and if I can apologize for it, I will be damned.

    This may sound a bit harsh, but our “new existence” is a reality not understandable by all. There are some days where the major challenge we face is living with fibroid and chronic pain. We’re full of pain and sleeplessness our day and nights, lost plans, friends who don’t exist anymore or who can’t work and just the simple disinformation, the lack of understanding and ignorance from medical professionals.

    But there are days when we can actually tolerate the magic pain scale, even though we may not be completely restful, and the door opens with the opportunity of living, if for at least one day or for some hours. There are many days in which we can take part.

    We need to do that just when we have a day, or days, that we can possibly enjoy family or friends, much necessary and pleasant activities or even go on holiday. We must spend the days in which we can take part in life. But now the inevitable feelings of guilt and physical sorrow come, that are always there if we push ourself too hard, with those days of actually taking part in life and trying to get the most out of a tolerable day.

    We sometimes feel guilty that we can now enjoy living for a day or two for as much as we have lost. Today, for example, I had to miss a family because I couldn’t handle it physically or mentally. I might be seeing myself having lunch with friends tomorrow or having a holiday with my family, but I feel guilty and guilty that yesterday I had to say no, but I can say yes today.

    There is absolutely nothing to predict if there is one thing that can be certain about fibromyalgia and chronic pain. We cannot always plan or commit ourselves to anything in advance, so that’s why we have to take advantage of the days. We can communicate these achievements and joys by touching a button with the age of the social media. People can see and participate in the things we could enjoy.

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    We want to share the joy we had because we had an all right day. But we feel the judgment, the voices behind our back and what we actually feel in this life of fibrous and chronic pain because someone only saw us, smiled, lived and enjoyed this moment. They won’t walk in heating pads or ice bags tomorrow when they do not see the tears, if we have to get up and go up on the stairs and do not see us suffering. They’re going to see the tears on our faces tomorrow. But let us still feel guilty because people were happy to see us and today, we had to say no to another family.

    We feel like we’re in the mountain of guilt because all can see that we could have fun, we must remember, it’s a picture. It is only a small part of our life that people see and enjoy from us, a picture that shows we were OK, if just for a while. A snapshot of an opportunity to enjoy our family activity. A snapshot of the fact that we could exist as closely as we would ever be for a little bit of time.

    An opportunity to have a good time with our families or loved ones, for an activity or at least. What this picture doesn’t show is the sorrow we experience every day, the pain which keeps us couched, the tiredness that has wiped over us and stamped out every opportunity for something to happen. We don’t want people to see these parts of our lives. We don’t share the times, we don’t post our struggles on social media.

    For as limited a life as we can live, we really need to enjoy and enjoy the times we can live. So why are we guilty of having enjoyed this time? It’s a difficult question to answer because we found that we can’t work anymore for some of us with chronic pain and fibromyalgia, and that we can’t help our family. This is a fight in itself, and by feeling that we do not have the right to go out with family or friends, or the right to enjoy ourselves when we feel like we are human beings, we do not need to add to my mental sufferings.

    We DO have the right to live as much as possible without apologizing or guilty that we may not get out of bed yesterday. We suffer from physical or mind pain every day, fighting that nobody can see, feeling just about us, so why should we not be able to enjoy activities, holidays, nights with friends, dinners without being guilty of it? We have to take advantage of these unique opportunities, and we can’t think about our pain and struggles in every minute. Enjoy the days when even if the pain doesn’t go away, we can smile at a level without force.

    Take every chance to forget what your New Existence is, just for a little while. Whenever we can have a good day, we must stop feeling the fault we experience won’t keep apologizing for having some “ok” days, because I’m sure I fight on the other days! These are things and feelings that anyone with fibromyalgia or chronic pain cannot ever understand. And how would they really be since they were never in our shoes? The condition that we say, “I would never wish this to my worst enemy” is that we mean fibromyalgia!

    We don’t seek sympathy or mercy, we just want to understand a bit that our lives differ, because we have chronic pain to live “always.” We must enjoy things as they come and live on the days when we can truly live them.

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    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

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  • Tried to be a mother in a chronic condition

    Tried to be a mother in a chronic condition

    By: Dr Alexa James

    At least by the standards of society, I won’t lie. I succeed in being a mother. Not because I don’t love my kids because, above and beyond anything I could ever have imagined, I do it. No, my body makes me spend more time, energy, and money on ensuring I survive and work than I can on my children, I suck being a mother. It was very difficult to accept that I could not give them all I deserved. I’ve been severely depressed for years and beat myself.

    I hated myself for some time because of my guilt and shame. When I was healthier, it was a big problem for me to feel as close as I can to the perfect, so much so that I became insane trying to make every small aspect of my life micromanage able and often the lives of people around me. It was both good and bad, trying to be as close as possible to perfection.

    It meant that I could do things that the average person couldn’t (at the time) but that I was also extremely obsessed with every detail. I’d be obsessed with things that didn’t really matter but could ruin the whole thing for me. It was devastating for me to finally realize that I would not be a “super mother.”

    So much so, I still have tears in my eyes, although I write about it now-I am better off accepting my limitations. It wasn’t at all easy to accept, but it was necessary to stop feeling so guilty. The guilt was detrimental to my own mental, emotional, and relationships. Time contributed partly to this acceptance. It was much harder for me to think I could not do anything when I was younger.

    I had to accept it to find out how to be’ ABLE‘ –not the best I can be compared to healthy people. So I don’t have to find unconventional ways to be a “good mum” for my children as physically as the average person. Fortunately, I’ve got a supporting family who did the things I couldn’t do for them. My children have never been lacking in love and have never starved or met their needs.

    I am so blessed and unbelievably appreciative that my parents care for it. I know everyone isn’t able to step in and help in this way. I don’t accept that it wasn’t me who could 100 percent provide them with this stability even when I know how good they were in a lifetime. I wished desperately, but every effort to fix something wrong with my body was foiled by an emergency operation or procedure.

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    I finally gave up trying to work a real job almost three years ago. The last time was an eight-month long period, and at the end there was a 19 day torturous urethra stent experience. It’s never impossible for something like that to happen at a time when I can get enough income to stabilize or finally get to an objective that I’ve been working toward. I learned that I can keep the major medical events, which require hospitalization or bedriding, from taking place so often if I do not work, limit my activities, care about what I put in my body, and take time to recover between activities.

    Easy, eh? See, stress aggravates every condition I have. (The Sarcasm Please take note.) It lowers my immune system and makes me generally more susceptible to flares due to my fibromyalgia and any viruses or bacteria with which I come into contact. I come into contact with all kinds of germs when I have to go to an office every day to work. Because my immune system is crappy above all else, I am sick and it is likely to get much worse than that if I meet somebody with a cold-and it will lead to worse things. I can’t stay away from it until I remain home. It’s a vicious cycle.

    This also applies to almost all. Don’t work doesn’t mean I can spend with my children all the time I want to, and do anything. My children attend public school and are exposed to all the diseases I have brought in, so I also have to be very careful when I have close contact with them sometimes. I just look and feel too bad other times to let them see me like that. It caused him stress and nightmares when my oldest was very young to watch me sick. I chose to allow them to live permanently in my home while maintaining a place in the neighborhood.

    When I looked / felt good enough not to scare them I spent as much time as possible with them, and just telephoned when I was so sick to be around. It was not perfect, but I had to decide that it would be better to be alive and to function partly than to work to death. Some of you might consider it egoistic of me to do something like that, but I feel that when I had the option of relieving some of that, it would have been egoistic for me to put them through fear and stress.

    Now I am 18 years old and may not have been allowed to ask a more responsible, caring, knowledgeable, compassionate and well-adjusted man. He leaves his way and tells me that I have done the best I can through them. Nothing can take it away whilst it helps guilt somebody. Although I feel guilt and anguish, I still have two wonderful children who are very well adapted and honestly can say that they are loved.

    My point is-we are not so much as long as we love the kids and take decisions which are the best for them as we cannot get our bodies to work like they are supposed to do, as long as we do not succumb to the feelings of not being good enough or the pressure of society to function beyond our physical ability and put it potentially in.

    These sensations can get into our heads and make us feel more comfortable with our parenthood. This could lead us to make our bodies feel better than better, or to take decisions based on the things we shouldn’t do. At the time, it doesn’t feel like that. It seems that we try to do what is best when we are the perfect parent. I’d love to keep my kids full time like a normal family in my home.

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    It would make ME feel like a better mother, but it was not better for them. Sometimes being a good parent means knowing when you can’t say you can do anything and ask people you trust for assistance. I’m not suggesting that every person who is chronically ill runs out to find someone to take their children. I’ll just say that based on your specific circumstances and the general picture you should evaluate your situation. Try to reflect on these questions when evaluating:

    • Does this activity cause additional injury to my body? When compared to the advantages of doing this, compare that additional damage. For example, it is not best to put yourself in a hospital to participate in a game or recital if someone else can support your child.
    • Is this an activity needed, or can I do something easier on my body instead? One example of something easier is a virtual presence, rather than having a physical presence or perhaps having a private dinner together rather than a large party.
    • Is there more chances of doing this in the future? Or something I was to before?
    • How much does my child care for my presence in this particular activity?

    Please apply all of these questions. Even small, worldly activities, because you can figure out how to lighten your load without having a real impact on your children. You must weigh options if you are chronically ill. Instead of attending, it sometimes means to have someone log the game or recital because attending causes your condition to worsen.

    It is more important than keeping “appearances” alive and able to interact with your kids or that other people don’t think that you are doing enough. You know what can handle your body, and what it can not handle. You can’t do all you can to care about yourself and your children for as long as you can, but as a parent with chronic disease, you can only fail, so long as you’ve done what you can do to help them.

    Healthy parents are luxurious that if they choose to be there for all. We’re not, so to be there is more important than to get into the ground trying to do whatever we think a healthy parent wants to do. If you are lucky enough to have a support system, ask for help. Taking care of yourself, allow them to do what you need to provide your children with stability. It is neither disgusting nor egotistic— it’s clever.

    Yeah, I’m still guilty. It will probably never go away completely because I’m a mother who loves her kids and wishes to “do” them. I wish I was able, but life had other plans and I had to adapt. I wanted to do all the things’ super–mum I certainly know that the best thing for their well-being was my decision.

    The evidence shows how well it is adjusted at my 18-year-old. Don’t beat what you can’t do to beat yourself. Put all the energy and concentrate on what you can do and use it to show your concern. Try to be there through videos and images, and for the time before and after when you can’t be physical. Be always emotionally available to them. If you can’t physically do anything for them, find someone you can. There are so many ways to show your love that we normally don’t think about. Look for and do these things at all times. Whatever you do, don’t feel bad enough that you can’t. You, or somebody else, don’t help.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Ways to Aid someone with Chronic Disease

    Ways to Aid someone with Chronic Disease

    By: Dr Alexa James

    It can be frustrating if we need help, but don’t want to accept it, or even harder, that we don’t want to burden anybody else. Fortunately, as someone living with chronic conditions that make it harder to do normal business, I can say that there are people who really want to help others.

    Some people have the best of intentions but don’t know exactly what to offer, or maybe just want to do something else. When you offer support, the choice of words can really determine how comfortable we feel to accept your offer. I would like to note that this doesn’t mean that anyone is ready to help us at all.

    Perhaps the appreciation we feel when people help us can’t be imagined. You probably also could not imagine how difficult it would be when we were in the middle of the pain of our conditions or overwhelmed by the kindness of yours, or when we felt embarrassed that we needed your help.

    If you live with an invisible and unpredictable disease, emotions can be strong. One of us wants to be the last thing that a person cares for, and if, by offering, we feel like you are uncomfortable, or just to be cute, then we’ll probably thank you, but say that you don’t have to.

    Although we fall into daily tasks such as washing and dishes. In my case, I would rather harm myself to do what I need every day instead of having somebody who doesn’t want to help me, or be given “help,” which really doesn’t help me. I’d really like if you didn’t offer people just to be cute or to say something, because I can’t tell it is very rare.

    That is why it is very important to offer your assistance. Things to do can help someone with a chronic illness. The following are ideas. I also have a way of asking everyone to make it easier for the recipient to accept your offer, for the wording will make them feel like you want to assist them.

    Offer to clean them without any assessment or expectations.

    Rather than saying, “I’ll come and clean you up,” “Do you want me clean up?” Try to say: “On Thursday, Thursday, or Friday, I come to cleanse FOR you, whatever day works best for you. You just have to point me into a room, tell me some special instructions, and then relax.”

    That means we’ll need to work when you are coming, and it can really be hard to know when that is possible so usually, we’ll say something like, “Oh, I want it to work,” or “Oh, thank you so much for this offer, but it isn’t needed.” We’ll do the same often if you start your offer with, “You want it to work,” or “Oh, thank you so much for it.”

    We’re not ungrateful, nor do we think the worst of you. This is because we have to live with feelings we don’t do enough, and the culpability that accompanies this leads us all the time to feel like we burden those we love. We just try to avoid such sentiments and are actually a burden.

    I suggest using the phrase I mentioned previously, or saying, “Hey, I’m coming for whatever task you do,” to which many will answer, “Oh, you don’t have to,” and then, that you may tell them flat-out, to which you WILL, that you really wish to help someone without making them feel you are just being polite.

    Sometimes, you come into someone who does not really want any help, and you should fulfill their wishes in those cases. You can at least know that you’ve done all your best to make them feel comfortable accepting your assistance if you offer to use the same word that I suggested. The key is to make sure that your words imply that you WILL be helpful, not just polite.

    Go for them to the shop. It may be hard for us to perform on a bad day and it will prevent us from carrying out several other tasks so we can prevent it from being great at any time.

    Try to use sentences like: “I head to the shop later, thought I’d see if I could collect anything while I was there? “Or:’ On Thursdays I go shopping. If you list anything you need, I can pick it all. “Both of these examples are helpful in making sure that we accept the offer because: a) it allows us to recall some time in every scenario; b) you make it clear that it’s not just a journey for us. If you’re going there anyhow, we don’t feel so bad to let you help.

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    Trust the person you are trying to assist that the number of items is not an issue if you let them know that you are shopping throughout the store. I would leave things outside a list sometimes because I didn’t want a person to go back to the shop. Find a way to let them know you’re ready to get everything they need, and this isn’t a big problem.

    For this particular task, storage-specific applications can be extremely helpful. A number of them now have all the items, prices, sales and coupons listed in the app. You can use the app when you draw up your list, so it almost sounds as if you can see the items in person.

    Pay a bill or give you a prepaid gift card, that can be used wherever it is required.

    If you suffer from a chronic disease, this at least means medical bills. It could also mean that you can’t work so that finances can get tight. Even if you have great money and you do everything you can to earn income, medical expenses can keep you broken. When you can and want to really help, it can be one of the most useful things to do to relieve some of the financial strain.

    Some people might not want your money, but if you know they need help there are ways to do so. Much money stuff can be treated anonymously. Some companies used to have programs that allow you to pay on a bill without the information of your account.

    Many places have changed that because of privacy policies but checking for any company for which you want to pay is at least worthwhile. If you cannot find a way anonymously to do this via the company, slip cash into an envelope or a prepaid card, and make sure that they will only receive it anywhere else. It will alleviate some of their stress unless they are rich.

    Watch your children so that they can relax regularly.

    Many people with kids may have this very well in its wording. You are more likely to offer some sort of assistance, if you have been that fatigued parent to see another parent. For chronically ill parents, it’s both common that we feel like we aren’t doing enough for our kids or that we are riddled with it all. We will not want to accept assistance, but the fact is that a chronic disease will never go away when we feel like we “pawn them” at someone.

    Some of us are in pain and exhausted daily, regardless of how sleepy we are. Daily self-care can be very helpful in our management, but we often lack the time, especially when we are parents. The best way to do so is to talk about children as much as possible or a routine. “Annabeth needs to socialize more, why don’t I go to Isabel every Thursday to get together? “or:” You are on my school journey right now, and children need to make friends, how can I get them every day?

    Adjust these suggestions according to how long you can / would like to devote yourself to helping. If you can’t do things regularly, providing some help can still alleviate some stress every once in a while. Therefore, don’t let the suggestions lift you away from proposing a few hours ‘ free time to play random playdates.

    Another thing to consider when providing childcare-if they are really going to use downtimes, they should do their best to make arrangements for all their children. People often forget children who are not close to their own age in their home, because they may not know them so well. If your objective is to help people really, try to involve everyone, so that their feelings are not hurt.

    Offer emotional support to those who appear to have everything covered. Sometimes we only need someone who can listen and truly understand.

    Some people are physically covered or helpful, or even financially, by themselves or other. You may appear to be in control of everything. In such cases, I offer at least to be someone they can’t compete with, or say they can be fixed easily or anything. You only have to vent sometimes. I have experienced this many times myself, so I offer to be there for others who may need it.

    Many times, if I try simply to let them vent, I’ll let them speak about anything they want, without offering much.

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    Only if they say something that they really need or want to know, will I offer you information. I usually say something like, to offer emotional support: “I know what it is like that someone does not judge, does not participate in, and does not. Sometimes, I’m adding, that I have experienced similar or detailed experiences that make them know, I’m going to understand and not be judge-full, like: “My children are 12 and 18, if you ever want to speak. I’m going to be here. I know that teenage years can be frustrating times, “or anything that is relevant to what they appear to experience. All five of these things provide you with the best opportunity to offer your assistance to someone you are interested in helping.

    Remember, there are the rarity people who just don’t want to get bothered and it is sometimes difficult for us to accept that because people want to help others. We must also respect these people, because it can also create more stress if we continue to let them help us. It can be a difficult situation to measure but you only know it can happen. Providing the wrong type of assistance can significantly increase our stress level. We always deal with people who just don’t try hard enough to fight our conditions. We always deal with people.

    Unless we have a discussion (and it is clear that we do not know something that exists, it is not appropriate or helpful to suggest practice more, yoga, meditation, diet or other similar things.

    If you have met a recent article in our condition on a new development, that is great information and helpful. Alternatively, there may be a book that you know about our situation, which can be useful, but only provide suggestions. Try not to tell us that it’s going to heal us. CHRONIC are the chronic conditions. There is no cure, only symptoms are managed.

    You should not make a comparison of the pain and the symptoms with your own when offering help (unless you have the same condition, even then, all bodies can be different).

    “Oh, when my muscles hurt, I just stretch out and take a hot bath and they feel so much better.” We wouldn’t fight so badly if it were. Without being very new to pain and diagnosis, we have tried every normal remedy, and we tend to become exasperated when people continue to put forward simple stuff.

    Together with the other examples of how not to offer combined with how to help in ways we feel comfortable with acceptance, both of these examples should certainly provide guidance if you really want to help someone. When done in the right way, your support is needed and appreciated. We will certainly try to ensure that we do not burden you for the majority of people with invisible diseases, but that your help is so needed.

    Thank you for your readiness to offer your assistance in the best way possible. More people are needed who really want to help. Some people in their lives are not ready to do so with chronic conditions. Seek them, and all of your loved ones who are struggling with your health and do whatever you can to facilitate your lives.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • What or Who I Am the Invisible Intruder – Chronic illness Awareness

    What or Who I Am the Invisible Intruder – Chronic illness Awareness

    By: Dr Alexa James

    I was something that was wanted to deny the health community once. You told me I was just in your head, I didn’t exist, you felt like freaks who have lost their minds. Something different than what their practice has been teaching them could not believe. Oh, but I’ve demonstrated I’m so real, and now they know that. I am not in your head as a figment of a psychological or overactive imagining.

    I’m a nightmare you’re worst. I have always been a mystery through the decades — a haunting mystery that no cure exists. Medications may mask a symptom if you have sufficient medication but there is no cure. I’m going to rob your family and friends away, because they don’t understand why you are as…

    May I describe one day of your life–maybe they’ll know a little about you. If they are to look at me in your midst, they might see shining red and blue flames, struck in the midst of every muscle you have. I’d be the scream of a Banshee in order to hear me. They would feel the sand and the fire on their skin to feel you from within.

    In severe cases, you cry and cry to touch something, for it’s like the hottest fire you can imagine, the sand piercing on the skin and reaching every nerve within you…. even the softest of fabrics is wounded and you are burnt when you try to use them, bedding sheets are untenable and sleep evades you. You want to rip off your skin. They will find that it is like a bass-guitar played far beyond what is regarded as “normal,” to enter your realm, and the vibrations are insupportable.

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    Every day or night, I’ll rob yourselves of sleep, sleep is uncommon. I will command your mind and body to feel less than human so long as you cannot escape into any other realm. I tear up your life and ask you to be my 24/7 slave for suffering and pain. Yes, the level of mental, emotional and physical pain you suffer doesn’t understand.

    Some say they understand, but they don’t believe them, because they walk in shoes different from you. Some suffer a similar “me,” however, at all levels and extremes, each of you suffers. Forever and a day, I shall remain a mystery. I’m not the kind of nice thing because, once in a while, I’ll tear apart your heart and soul, and I’m going to fear those you care and want to love.

    You’ll suffer, lie down for days if you’ve had that luxury, and cry out for help just to find empty arms… If you’re lucky, you may find someone that tries to stay near you! If they are lucky, you can find somebody who tries to stay close. But I usually frighten them. The time is turned into hours, the hours are turned into days, the days turn into months, the months turn into years without a cure–all that’s “Me’s pain” within you.

    Remember, I live in all of your nerves and your muscle–there’s no escape. I’m the unseen intruder. There’s no drug, no pharmacist, no wondrous drug or herb that takes me off from you… no sleeping pill or narcotic that can get me from your body… there’s no separation from “me,” I can’t live and not kill. You can never escape me when I have you inside of my grasp.

    But the biggest thing is that your torment flourishes in my favor because you don’t understand the suffering that you are suffering; just as you can’t live a life without pain you, you can’t understand who you don’t know, or want others to have time to understand, you just don’t understand. However, they often go away, if the pain that you feel is expressed, which is not really possible… There are really no words to express what each of you feels or masks. When you work with people you are forced to wear an a’ mask.’ When you come home, you cry out because of the terrible pain.

    Lyrica, Cymbalta and other medications, such as pain relief and muscle relaxing medications, just add to my control, and until they work, you don’t even know–if they work at all.

    Who am I? I’m the Invisible Intruder, and I’ve got many siblings, usually living in you as well, my name is Fibromyalgia. Welcome to my world and perhaps to the world of your friend. “The Invisible Intruder” is my name, yes. There are no escapes, because there’s no cure, I live in you, around and through, and in every aspect of your life. –by McKimson Holly

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store