Category: Fibromyalgia

An in-depth guide on Fibromyalgia, covering its symptoms, causes, treatments, and tips for managing this chronic condition effectively.

  • Fibromyalgia Headaches

    Fibromyalgia Headaches

    Many people with fibro know all too well the intense pain from fibromyalgia headaches and/or migraines. The more one gets to know fibromyalgia, the more one understands the various and multiple parts of the body that are affected.

    This is not your average head “ache” because of the unique qualities within fibromyalgia and the TRP’s (trigger points) that are commonly associated with head pain.

    If you have fibromyalgia headaches or migraines, you know pain.

    Although there are multiple causes for head pain, we know that many common factors must be addressed in order to lessen the severity and frequency of fibromyalgia headaches.

    Are the TRP’s (trigger points) around the head, neck, and scapula area actually the cause of the head pain OR is it a stressor, perpetuating factor, or environmental exposure that initiates the pain?

    Seasonal allergies can exacerbate headaches and increase pain within the entire fibro body. I also experience more head pain when it rains, and I will tell you that it can be very intense, triggering both trigger points, and the olfactory nerve, around CN1.

    This has the potential to not only increase pain around the face and head, but in my case, I can smell and react to everything more intensely!! 

    When TRP’s (trigger points) are involved with head pain, it often “feels” more structural and some people may have a difficult time associating their environment as an instigator of pain.

    Yet due to the fibro body’s sensitivity to toxins and stimulants, this can easily start a cascade of symptoms and resulting pain. (Severe fibromyalgia headaches interfere with the quality of life even more so because of the effect on the brain, eyes, nerves, and ability to think clearly)

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    When headache pain increases, you might also feel an increase in your pulse rate and even heart palpitations. This is not uncommon due to the direct effect on the nervous system. I’ve had this since a young age, I certainly get it. 

    In the U.S. alone, 78% of women (68% of men) suffer from debilitating headaches, and migraines affect about 15% of the population, according to Dr. Ty Thomas, (National Centers for Pain Management & Research).
    Not to mention that brain fog (otherwise known as fibro fog in relation to fibromyalgia headaches) is exacerbated when headaches occur on a regular basis.

    Seasonal headaches

    There are seasons of the year that tend to bring on more headaches due to allergies, ragweed, and temperature changes. Spring and Fall are two seasons where symptoms can tend to escalate. Allergies can activate symptoms of fibromyalgia, just like toxins in any form exacerbate fibro symptoms

    Sometimes it may be necessary to limit outdoor activities during high allergy seasons or wear a face mask. I often recommend the company “I Can Breathe” for a protective face mask from toxins and allergens. 

    Another product that I often find helpful is the “Hot/Cold Migraine/Sinus/Tension Headache Head Wrap” shown below. The wrap contains beads that can be heated or cooled and applied to the head. And, guess what? It is so multi-functional that I also use this wrap around my knees.

    I actually wear this compression a different way. I wear the ice or heat part on the back of my head which covers the fibromyalgia tender points on the lower back part of the head and then the slight compression is around the forehead which helps to increase blood flow

    I prefer to use the beads in a cold state, but, alternating heat and cold are effective as well. 

    Factors in Fibromyalgia Headaches

    Any type of chronic headache pain can be debilitating as this is where we think, express, and interact with the world around us. If you have fibromyalgia and recurring headaches, there’s no doubt that you know this kind of pain.

    Suffering from chronic migraine myself since the age of 9, now 52, I sure do understand this pain and the additional symptoms that can be brought on by a migraine, including severe nausea, issues with eyes, coordination and cognition, and even vomiting when the pain escalates to a most debilitating point.

    The trigeminal nerve which travels from the brain to the face can cause inflammation while any disruption within the hypothalamus (in the brain) can affect the blood vessels. Some people find relief using caffeine during a headache, but this can backfire in others due to the constriction of blood vessels. 

    What if your headaches are instigated by CFS/ME otherwise known as Myalgic Encephalomyelitis? This kind of headache displays itself with pain around the entire head, face, eyes and can increase swelling around the jaw and parotid glands just under the jaw.

    Here, the immune system is involved and these types of headaches can come on quickly and intensely by exposure to environmental toxins such as petro fumes, fragrances, and/or chemicals of any kind.  

    Because people with chronic illness tend to be shallow breathers, we must pay attention to our breathing tendencies, as a lack of proper oxygen can bring on and intensify headaches of all kinds.

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    And again, for those of us with long-standing environmental illness or Multiple Chemical Sensitivity, headaches are often brought on by exposures to toxins in the environment, affecting our ability to breathe and relax normally. 

    What do we do when we are exposed?

    Oftentimes, we find ourselves holding our breath. We are trying to avoid breathing in toxins, but this can easily exacerbate headache pain, and tension throughout the body. We need to avoid chemicals or fragrances in our home or work environment. Read more here about migraines and Chemical Sensitivity

    Fibro and the Migraineur

    What is a migraineur?

    Actually, many fibro victims fall into this category. A migraineur is a person with a sensitive nervous system, often light sleepers, affected by weather, toxins, odors, and bright lights. They are hardworking and attentive to their environment and the feelings of others.

    They often have tight muscles and dysregulated blood vessels. Serotonin levels are also reduced during a migraine yet return to normal when the headache is resolved. This explains how migraines correlate so well with fibromyalgia and symptoms.

    The Five Phases of Migraine

    1. The first phase of migraine is called the prodrome. During this phase, lights may begin to appear brighter, change in mental process, fluid retention, irritability, or craving certain foods. These symptoms and more can signal the beginning stage of migraine.

    2. The second phase is called the aura. This is where a change in brain chemistry occurs. This nervous system disruption can last from minutes up to about an hour.

    Vision changes can occur or see spots in front of the eyes, and weakness in extremities. It has now been found that this is not a constriction in blood vessels as once thought, but a disruption in brain chemistry.

    3. The third phase is called the headache phase. This is where the pain and intensity take place. The pain may be pounding or on one side of the head. The nervous system becomes even more sensitive to light and sound.

    The muscles in the back of the neck, and upper back become tense and painful, and more sensitive to touch. Mobility within the neck and jaw can become limited as well. The severity of this phase can last from 4-72 hours. 

    4. The fourth phase is the resolution phase. Oftentimes, migraines will be resolved with sleep, but can also linger for 1-3 days.

    Vomiting is common in children who suffer from migraine, and this can sometimes stop or at least lessen the pain.

     I will say, that in my case, the vomiting did not always lessen the pain

    5. The last phase of migraine is called the postdrome. This phase usually accompanies headaches that last a longer period of time, and not everyone will experience this phase. Similar to a hangover or the flu, the symptoms here include fatigue, lack of concentration, nausea, and muscle tenderness.

    Understanding our individual triggers and the phases of migraines can support us in better managing this often-debilitating pain. There is always a ‘root’ cause and as a migraine sufferer since a very young age, I certainly know that environment has always been my biggest perpetuating factor. Toxins in various forms (chemicals, synthetic fragrances, petroleum fumes, etc.) often trigger the fibromyalgia headache or migraine and must be controlled.   Thank you for reading…

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibro Fog Support

    Fibro Fog Support

    Brain fog can be a challenging symptom for those with fibromyalgia and its primary co-conditions.

    From short-term memory loss and the lack of concentration to the inability to stay within a structured lifestyle, all are evidence of fibro-fog.

    Living with chronic pain and symptoms is challenging to the brain due to a total load of symptoms already present in the body.

    The myriad of symptoms within fibromyalgia creates a cascade of real challenges to the brain and to the balance of neurochemicals.

    If you are living with fibromyalgia and its related conditions, you are not alone if you experience fibro fog on a regular basis. 

    Did you know that the TRP’s (trigger points) in the back of the neck, head, and scapula along the upper back area can contribute to fibro fog and “cloudy brain”?

    Do you ever feel as if there is a dark cloud surrounding you? There could also be contributing inflammation around the trigeminal nerve which occurs around the head and into the face. 

    Toxic environments are one of the biggest offenders and contributors to brain fog.

    Those of us with any environmental illness know this all too well. From toxic laundry detergent fumes to body care products to petrochemicals. Traveling can also cause major fibro fog issues due to exposure to many different environments and various toxins.

    Lack of sleep within the parameters of the body clock is also a major contributor to fibro fog. Falling asleep and getting REM sleep can be more challenging, and there-in starts the vicious cycle.

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    Multi-tasking and exposure to constant media outlets can exacerbate stress and fibro fog and even create a lack of motivation within a healthy lifestyle.

    Wireless computers and cell phones emit levels of radiation that are best limited in duration and frequency for those with any brain and fibro fog issues. The tremendous increase in radiation and EMF pollution in our environment today has affected brain function and also increases the level of constant stress on the body.

    Also, we want to avoid looking at negative images regarding fibromyalgia. Avoid 24/7 symptom talk, because everything we talk about and focus on becomes bigger. 

    And, what about social interactions?

    Ever find yourself stammering or stuttering or with uncomfortable gaps in what would otherwise be a normal conversation?  Do you ever lose your words, forget what you were going to say, or even worse, lose concentration when others are speaking to you?

    That is fibro fog at its worst because it can decrease self-esteem and confidence.

    Neuro-inflammation in co-condition CFS/ME

    If you also have the primary co-condition to fibromyalgia, CFS/ME (Chronic Fatigue Syndrome or Myalgic Encephalomyelitis) you can read more here regarding inflammation that can occur around the brain. This can exacerbate symptoms of brain fog and memory issues. 

    THERE IS HOPE FOR BETTER BRAIN HEALTH

    All of the lifestyle habits, tools, and intake of essential nutrients need to be evaluated to increase brain health. Lifestyle, diet, exercise, and relaxation or biofeedback techniques.

    What we continue to know about effective exercise and fibromyalgia is that fibro responds well to an exercise regimen tailored to each individual. A plan that includes light or moderate aerobic exercise, range of motion exercises, strength work, and light flexibility exercises for increased agility.

    A 2003 Harvard review of 43 studies found that regular moderate exercise improves executive function (the ability to plan and carry out tasks efficiently); blood circulation and neural activity were both enhanced.

    When we stay active, we are able to think more clearly. The more we do, the more we are able to do. Everything is a progression in life, so we determine which way to direct our thinking. Our brain health really is an essential component when living with fibromyalgia and any chronic illness.

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    The Best Diet For Fibro Fog is The Best Diet For Fibromyalgia

    Refer to the best diet for fibromyalgia because this is also the best diet for optimal brain health. When treating fibro, we are treating the body as a whole; this means the best diet, the best fitness plan, etc. Read more about the importance of whole foods, raw fats (excellent brain food), and the best way to ingest and assimilate proteins.

    Sugar, preservatives, and excitotoxins found in many grains, grain flours, and additives are a great detriment to healthy brain function and clarity of mind.

    Working as a colon therapist for many years, I do believe the “gut-brain” can become inflamed due to improper diet and this can easily increase the propensity to brain fog. But again, this is not about perfection, keep it realistic. 

    The gut is often referred to as the ‘second brain‘ and therefore, it is essential to have a healthy terrain within the digestive tract and small intestine. Avoidance of individual food allergens and quite often the proteins in wheat (gluten) and dairy (casein) will prove to lessen irritation within the gut lining and systemic inflammation throughout the body and the brain as well. Dairy fats, however, can be beneficial and helpful for gut issues.

    Thyroid imbalance can affect the brain

    An imbalance in the thyroid can also affect the brain. Thyroid disease or underactive thyroid can exacerbate issues with short-term memory loss or the ability to think clearly. When we address the underlying causes of thyroid issues, this can have a positive impact on brain health. 

    I believe we must treat this endocrine gland as safely and effectively as possible. In our thyroid health article, I give many suggestions for effectively treating both adrenal and thyroid glands effectively. 

    Mind Body Techniques Can Be Especially Important

    Mind-body techniques are helpful in decreasing stress and stress hormones which exacerbate memory loss and the inability to concentrate.

    Ongoing brain fog can lead to increased anxiety and depression. Many studies continue to prove the effectiveness of meditation on balancing brain chemistry and producing feelings of calm and relaxation.

    Madhav Goyal, MD. of John Hopkins University, says… ” In our study, meditation appeared to provide as much relief from anxiety and depression symptoms as other studies found from anti-depressants”.

    I can’t say enough about creativity and how these aids in healthy brain function. Have you stopped doing a creative activity due to the illness?

    Note: It was always thought the right side of the brain was the creative side; however, researchers have found that when performing a creative task, the left side of the brain lights up in brain imaging to ‘help out the right side of the brain, interesting that each side really supports the other.

    WHAT ABOUT SUPPLEMENTATION FOR FIBRO FOG

    Supplements can aid in fighting fibro fog but not every supplement is right for every person. What follows is a basic list of the more essential brain nutrients.

    Always check with your doctor before taking new supplements and as we say on the supplement page, “more is not always better”

    Are you taking any of the following nutrients?

    I am supplying this list just as a reference so that you can be better armed in the fight against fibro fog. For your convenience, each supplement name is also a link to that item on Amazon Consider the following verified effective remedies if you suffer from fibro fog on a daily basis (if not already utilizing them). 

    Remember also that nutrients are not magic bullets. They can, however, support the mind and body to create a stronger foundation and resilience. Experiment and find what helps but always work to prioritize and take the lowest effective dose. Yes, even with supplements, we need only take what our body needs, and this also helps our supplements to be more cost-effective as well.

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    1. Acetyl-L-Carnitine

    ALC easily crosses the blood-brain barrier to support memory function and mitochondria (cell energy). A neuroprotective nutrient.

    2. Phosphatidylserine

    (PS) is a crucial building block in brain tissue. Modulates cortisol levels and supports relaxation. It increases memory and concentration.

    3. L-Threonate

    A form of MAGNESIUM that is better absorbed and specifically targets the brain and nervous system.

    4. Ashwagandha

    Ashwagandha for fibromyalgia helps to reduce cortisol, counters some of the oxidative stress on the body, and supports regeneration of axons and nerve cell components that support brain and nervous system function. Helpful for thyroid and adrenal stress as well.

    5% “withanolides”

    This is the active component necessary to be effective.)

    Simply taking ashwagandha in generic herbal form is not effective here and is a waste of money and effort.

    5. Ginkgo Biloba

    Provides Neuroprotection and brain circulation. Promotes healthy blood flow, as well as oxygen and glucose metabolism in the brain.

    (Note: The Health Regulatory Agency that regulates ginkgo purity in Germany, mandates that ginkgo supplements not contain more than 5 ppm of gink golic acid. You should follow this recommendation.)

    6. Omega 3’s, DHA

    This fatty acid, DHA, accounts for 40% (PUFA’s) fats in the brain. It promotes healthy cell signaling within the brain.

    Research has found vegetarian body tissue to be much lower in DHA, essential for both brain and heart health.

    7. B-12 (Methylcobalamin)

    The active form of B-12 in the CNS (Central Nervous System)

    Enhanced methylation provides neuroprotection, especially for those who may not adequately convert cyanocobalamin.

    8. Taurine

    Many great articles and studies on Life Extension are online. 

    Note: We are currently studying and utilizing additional brain health supplements and will confirm their effectiveness as we get more information and complete studies.

    Protecting and preserving brain health is essential as we age and especially with fibromyalgia and any chronic illness. Fibromyalgia is a multi-system illness wherein each system is simply striving for balance.

    Therefore, when living with daily symptoms, it’s not minded over matter.

    It Is mind and body working together.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Treatment for Fibromyalgia Using Myofascial Release

    Treatment for Fibromyalgia Using Myofascial Release

    Treatment for fibromyalgia using myofascial release can be a very effective tool for fibromyalgia pain.

    When the fascia (a membrane that covers muscles and tendons) remains tight and knotted for periods of time, the fibro body actually adapts to this as its normal state of being.

    Fibromyalgia is complex and although it affects multiple systems of the body, addressing the fascia is one area that many of us will need to address. 

    Our goal in the myofascial release is to create a ‘new normal’ where the body does not so easily hold onto tightness within the fascia; this allows the muscles, tendons, and other prone areas to relax in the way they normally would.

    Remember that there are a few different tools we can use for the lumps and knotted areas that can occur with distorted fascia. Here, I focus on rolling which can be modified to your needs.

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    Correcting distorted fascia 

    Myofascial Release (MR) of tight, knotted muscles and tendons can be accomplished in a few different ways … However, for long-term purposes and cost-effectiveness in our treatment for fibromyalgia, it is essential that we learn how to incorporate MR on a regular basis at home.

    If you have ever worked with a massage therapist or a certified Rolfer for myofascial release, you likely know the procedure and the body awareness that goes with this kind of bodywork.

    That is what makes this tool very effective and an important treatment for fibromyalgia for anyone living with fibromyalgia, certain types of arthritis, and/or stiff body syndrome.

    Myofascial Release will help to ‘loosen’ muscles and tendons while working to reduce levels of chronic long-term pain and also create a greater sense of well-being.

    Just as we convey on the Mind-Body Science page, our interaction with the environment and especially with relationships cause emotions to be stored throughout our body, often in our muscles. Myofascial release is just ONE part of treating symptoms in fibromyalgia

    It’s not unusual when undergoing treatment for fibromyalgia by an MR therapist or self-application for emotions to be released.

    It may feel strange, especially in the presence of someone else; but don’t fight it; let the emotions flow out of you. This is another reason that MR is such an effective treatment for fibromyalgia pain. The release of these stored emotions adds even greater benefit.

    Take Treatment for Fibromyalgia healing into your own hands

    If you do not have access to a therapist or trainer like myself who can help you in myofascial release, then you can learn to use a foam roller at home, but please consider my suggestions throughout this article.

    Keep it safe and effective. 

    What follows are some of the techniques that I use for people with fibromyalgia. These can always be modified where necessary and not everybody part will be a candidate for foam rolling, nor even every fibro person if too many perpetuating factors are present.

    Gaiam is a good brand and there are many others. Foam Rollers come in different sizes and textures and I suggest experimenting with more than one.

    Softer textures can be necessary for the more sensitive parts of the fibro body and at the beginning of using myofascial release. 

    (Note: A physical therapist or trainer with myofascial experience can be of great support to get you started. Just one or two sessions can be sure to exact proper form and follow through. Just be sure they have worked with fibromyalgia patients.)

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    Suggestions for Foam Rolling

    1. Roll slowly and learn to stop and ‘hold’ when rolling over a tight, knotted area. Some therapists will tend to move too quickly, yet I believe with fibromyalgia we need to progress into the release more slowly and hold to get in touch with the release itself. Keep working at this, it doesn’t happen the first time.

    2. Roll ‘up to the tender point areas but avoid getting directly on them in the beginning. I liken this to the reverse of using a rolling pin on dough .. instead of rolling from the mid-point to outer points, we ‘roll’ from the outer areas first to just inside the tender point area. Be sure to avoid rolling over joints. DO NOT roll over hips, knees, or around the back of the neck. 

    3. Just like with exercise, consistency is key. Foam rolling sessions can be utilized 2-4 times per week.  Generally, every other day or as needed. This way the body can have time to naturally adapt to the bodywork.

    4. I recommend starting with the lower body when utilizing myofascial release, as the upper body may first benefit from myofascial ‘massage’ techniques done by a therapist. This allows the patient to work slowly into the feeling of myofascial release within those most sensitive areas of both trigger and tender points. 

    That’s How We Roll…

    How do I know if I’m rolling properly?

    1. First, getting a few sessions with a therapist or fitness trainer like myself is helpful to show technique and ‘holds’ in myofascial release. Be sure they have worked with fibromyalgia. Again, there will be some vulnerable areas of the fibro body that we may need to avoid, but learn to differentiate between fibro pain and muscle pain that will come from working through trigger points. 

    2. If during the rolling, there is a ‘hurt so good kind of pain but there is less pain AFTER the session. Yet remember, there may be slight tenderness afterward, that is normal within reason.

    3. If you release emotions during and after the session. This is very normal and in fact, will verify the work done. Allow whatever emotions come up. This is intense, healing work for both mind and body.  A feeling of ‘lightness’ is also common and beneficial and, again, verifies this treatment for fibromyalgia.

    4. If you are willing to be patient through the moves and holds and know that even though it is painful, YOU are in total control and this is a healing kind of discomfort that will pay off in the long run.

    Other tools for myofascial pain

    If you follow my Facebook pages, you will see that I talk about various ways to treat the fascia. This tool is a less expensive tool for working the fascia than some other similar tools. This is great for tight legs, hamstrings, arms, abdomen, and more. 

    Mastery Over Pain (MOP)

    I talk throughout the website about what I call my MOP protocol.

    This is basically using tools such as myofascial release to gain more mastery over our pain levels and symptoms.

    During a rolling session, we are in control and that is a key component to success in levels of healing within any illness.

    In other words, we must be active participants in our healing process.

    A massage or other bodywork was done by a therapist is great, yet when we start to take control through this kind of work, we can then apply this discipline to other areas of our illness and our lives in general.

    As I like to say …” It’s not minding over matter …no, it’s mind and body working together”.

    Working for the greater good. Working to create a more resilient mind, body and spirit.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Tender Points

    Fibromyalgia Tender Points

    Neck Tender Points in Fibromyalgia

    Yes, fibromyalgia tender points are different than the trigger points detailed. It is important to know this in reference to the origin of pain. People with fibromyalgia often feel “tenderized” in these areas shown. You might describe it as a bruised feeling or tender to the touch. 

    The standard 11-18 fibromyalgia tender point evaluation is just one tool that is used to diagnose fibromyalgia. The tender points test is generally the first test utilized by treating doctors, although the criteria for diagnosing has changed and some may not always use this area of diagnosis. We believe it is important when used with the other diagnosing methods. 

    Unlike trigger points, tender points do not radiate pain to other surrounding areas when palpated. Tender areas feel sore and tender to the touch, oftentimes on a regular basis. A person does not need to have all 18 points and can even have less than 12 if other symptoms are also present.

    The adjacent graphic shows the 18 standard fibromyalgia tender points, both front, and back of the body. It is essential to note here that fibromyalgia is much more than 12, 16, or 18 tender points on the body.

    Fibro is a multi-system, complex illness that is still greatly misunderstood or denied by many conventional doctors. When using the 18-point evaluation test, a doctor will palpate these points or areas and then ask the patient to rate their pain level at each point.

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    Starting at the back of the head, neck, down to the scapula, lower back, buttocks, and down to the knees.

    It is important to understand that if you have chronic headaches, the points in the back of the head, neck and scapula area could very well be contributing to pain. Migraine headaches, sinus pain, TMJ pain, or chronic neck pain all of these can stem from these upper body points.

    With chronic lower back pain, the points around the buttocks can exacerbate and cause increased pain and mobility issues. These lower points are also very closely associated with SI joint pain.

    Just as we reference in the article on Fibromyalgia Leg Pain, these tender ‘points’ are more like tender ‘areas’ and can involve surrounding tendons and ligaments as well.

    If utilizing physical therapy or massage therapy, it is important to reveal both tender points and trigger points to your attending therapist.

    Soft tissue and inflammation

    One of the first things we need to do with tender areas of the body is to treat any underlying inflammation. Many people have inflammation factors of some kind. We want to look at everything that can contribute to inflammation from our diet (anti-inflammatory diet) to lifestyle to other aggravating factors like trigger points. 

    Fibromyalgia Tender Points: Avoid Perceived Barriers

    And although everyone’s pain threshold is different, it is essential to understand the difference between discomfort of pain that is healing to the fibro body VS. pain that is detrimental.

    It can take years for a person with fibromyalgia to discern this when it comes to activities or body work. Keep working at it. For instance, the tendons and ligaments in our body can only become stronger and more agile through training and daily strength applications.

    In other words, we have to put a healthy amount of stress on them just like in the case of our bones. Bone health is dependent on the pressure applied through safe and effective strength training. Inactivity and loss of agility will worsen pain in these tender areas and increase overall symptoms within fibromyalgia. “We cannot afford that”.

    As a practitioner and fitness trainer specializing in fibro, it is my job to help people distinguish between the two and to avoid what we therapists call ‘perceived barriers.

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    Never assume anything or this could lead to missing out on potential healing therapies. Learn to work WITH your fibro body or it will continue to dictate and have greater control.

    Taking control, using mastery techniques ..it can be done ..not as a cure but as conditioning for mind and body. This creates a stronger bodily foundation and overall resilience. It is important to note that this is not minding over matter …No, it IS the mind and body working together.

    Just like with TRP’s, it is important that we lessen our aggravating factors and implement more ongoing healing factors. 

    As I like to say …” Our independence depends on it”

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Trigger Points

    Fibromyalgia Trigger Points

    Yes, there is a difference between trigger points (TRPs) and fibromyalgia tender points. This is essential to know. Especially when it comes to aggravating factors commonly found with trigger points.

    It is important to distinguish between the two in order to obtain better understanding and working solutions. A trigger point is actually more than one “point” as it is part of a taut band, much like rubber that is not exactly pliable to touch.

    TRP’s can be active or latent. Many people with or without fibro have latent trigger points, actually we all have them. They can come out of “hiding” due to illness, accident or injury. Unlike tender areas of the fibro body, these trigger points can contribute to inflammation. 

    (Let me also clarify that we do not really refer to trigger points as ‘Fibromyalgia Trigger Points‘, they are just trigger points. However, for internet search reasons, we must use this title, as this is part of the myofascial pain that occurs very commonly with fibromyalgia)

    “How are fibromyalgia trigger points different than fibromyalgia tender points?”

    Trigger points are primarily due to myofascial constriction. This constriction causes the pain to radiate to other areas (muscles, tendons, joints) within close proximity. TRP’s do not act alone like the 12-18 tender points. They are “woven” into layers of muscle and fascia and radiate from the central part of each tender point and from the more vulnerable parts of the fibro body. 

    Although the tender points have an 18-point evaluation test, this is not so easy with fibromyalgia trigger points.

    Why? Because trigger points occur over MANY areas of the body and often times in layers.

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    These layers can take place within muscle groups, muscle fibers, tendons and/or near organs that may be compromised in some way.

    The other interesting thing is that if you see the standard 18-locations tender points test, it looks pretty cut and dry. However, if you have a fibromyalgia patient map out their radiating trigger points, it can often look like a war zone!!

    That is why you might often feel that you were beat up, run over and left with little energy; this kind of radiating and knotting pain takes up a lot of energy within the fibro body.

    Common Areas for Fibromyalgia Trigger Points  

    There are some very common fibromyalgia trigger points within the fibro body around the sternum. That is why people with fibromyalgia often complain of chest pain.

    The TRPs in the chest region travel and radiate and can cause heart attack-like pains. (Although, if you do have heart disease, it is important not to confuse the two and be regularly evaluated)Trigger Points can also be one contributor of pain around the rib area, also known as Costochondritis. This particular symptom is one that tends to wax and wane. However, it can be painful with stabbing and burning sensations around the ribs and lower chest area. When symptoms are waxing, try to find a comfortable position and be sure that under garments are not constricting the upper body. 

    Because we use our hands and arms often for many daily activities of living, we have to be careful about repetitive motion that we have control over. Carpal Tunnel Syndrome can occur with excess use of computers, cell phones, heavy lifting without proper upper body strength OR even when wearing bracelets and watches. Any of these can perpetuate nerve entrapment or activate trigger points. 

    Other common fibromyalgia trigger points occur around the back of the head, neck and skull area. These TRPs can radiate pain from the back to the front of the head, even causing sinus pain, TMJ and migraine headaches.

    One of the major perpetuating factors to TRP’s in the head area is our environment. We need to be diligent about toxins within our home, the people around us or any place that we regularly reside. Too often, people are surrounded by aggravating factors and may not know it. 

    The pain from an environmental exposure feels just the same as pain from a physical injury, so even though it might feel like the pain is stemming from a structural strain or injury, the pain could stem from a toxic exposure which then ‘attacks‘ the physical body.

    Two common areas for trigger points that can be interrelated are the pelvic area and down the legs. Abdominal or pelvic congestion can perpetuate pelvic pain and TRPs here. Abdominal surgery can also increase the propensity for trigger points in the pelvic or bladder area. 

    Bladder symptoms may include spasms or a need to urinate frequently. On the other hand, you might feel a fullness in the bladder/pelvic area and not be able to urinate freely and you may feel a retention within the bladder and lower abdomen.

    As I have talked about previously see (Fibromyalgia-Leg-Pain), the Sartorius muscle (longest muscle in the body) is located in the quadrant area of the upper leg and is often a place for radiating pain (especially during a menstrual period or with urinary tract involvement)

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    This picture illustrates the TRPs here in the Sartorius muscle and how they can affect radiating pain above (pelvic area) and below (knees and legs).

    Also, difficulty in ascending OR descending stairs can be attributed to the TRPs in the Sartorius muscle. (I actually have techniques for climbing stairs and you can experiment with safer stair climbing as well by adjusting your body angle when first approaching stairs) 

    It is important to note that hamstrings (back of legs) are greatly affected by TRPs in the legs and knees and that working these may be difficult for many people on their own. FI has videos where I show various tools for working fascia and trigger points. No worries, there is always more than one way. 

    Tight hamstrings can greatly exacerbate knee pain …and with fibromyalgia trigger points, we cannot afford that.

    Another trigger point that can aggravate the fibro body first thing in the morning is around the fascia on the bottoms of the feet. This area contracts when we are off our feet and resting for many hours.
    This can cause the “burning” pain that many people often refer to.

    Again, this is one area that responds well to “rolling”. Using a tennis ball or designated foot roller which can be obtained through sports therapy centers or online is very helpful and can also help to relax other parts of the body through the pressure points on the bottoms of the feet.

    In fact, these TRPs in the feet can prove to enlighten us and re-affirm the need for safe and effective fitness protocols due to the fact that contraction from prolonged rest periods does not serve us well. (Also visit the article in our site here on Myofascial Release by using the Sitemap on top left)

    One way in which I have come to specialize in working with fibromyalgia, is teaching HOW to work around these TRP’s while staying strong and agile. Safe and fibro-specific exercise is so essential when living with fibromyalgia and related conditions AND while aging at the same time.

    Some additional bodywork I have used and recommend as part of a treatment plan include Rolfing and Bowen. Rolfing is a type of massage technique for working (relaxing) the myofascial tissue. I have found both to be highly beneficial.

    Bowen therapy helps to relax and re-align the body, especially the more vulnerable areas of the body affected by fibromyalgia. Bowen is different from traditional massage and it is often advised to avoid other types of bodywork when engaging in Bowen therapy. Check in your area for a qualified Bowen therapist. 

    Keep in mind that no one can legally claim to be a “rolfer” unless they graduated from the single school that teaches it. The treatment generally consists of a fixed series of sessions; however, the person I worked with was very helpful in arranging the schedule to make it affordable as well as successful. We must each ‘evaluate’ our individual needs and continue to employ effective tools when it comes to trigger points, because this can be the most debilitating of symptoms when living with fibromyalgia.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Leg Pain

    Fibromyalgia Leg Pain

    Do you suffer from fibromyalgia leg pain?  Pain that is associated with the tender points and trigger points in multiple sites? Although we often refer to them as tender POINTS, they are actually more like tender AREAS.

    These areas of pain often occur within and around the muscle. Trigger points and myofascial pain in the legs can also contribute to what we often refer to as the “lumps and bumps” in fibromyalgia.

    I have yet to meet someone with fibromyalgia that has merely a POINT of pain or tenderness. (However, both tender points and widespread pain areas are still used for diagnosis) And because tender points differ from trigger points, refer also to the ‘trigger points’ article for a more in-depth discussion on TRP’s in fibromyalgia.

    Now, most people with fibro describe an “area” of pain that radiates to the surrounding tendons or trigger points. Often there is an involvement with an associated tendon, ligament, or TRP (trigger point). This is what causes the pain to radiate or extend.

    Let’s take for example the tender points on the inside of the knee. This area can extend on average from 2-4 inches above and below the inside of the knee. So, it really makes more sense for reference to call this an AREA of pain, especially when it comes to working solutions.

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    Certain Activities of Daily Living (ADLs) Can Exacerbate Fibromyalgia Leg Pain

    Yes, there are many tender points in the lower extremity of the fibro body. Certain ADL’s (Activities of Daily Living) can exacerbate these tender AREAS. 

    Examples are sitting for extended periods, standing in one place, displacement OR shifting of weight while standing, driving, travel, cleaning activities, etc. 

    What else can exacerbate fibromyalgia leg pain? Trigger points, inactivity, loss of muscle mass, lower back pain, sciatica, SI joint involvement, certain medications, cold/flu, and more. The interesting thing about fibromyalgiarelated leg pain is that it doesn’t matter whether you are standing, sitting, or lying down.

    The propensity for pain in the lower quadrant of the fibro body is just greater due to trigger points woven within layers of muscle and extremely tender areas that are not directly related to any activity or exercise. 

    The longest and most widely used muscle in the leg (otherwise known as the Sartorius muscle in the quadricep area) is responsible for much of our mobility in the lower quadrant of the fibro body. Here in the adjacent picture, I have hi-listed these areas that cause the most pain within the lower fibro body

    When this muscle and the surrounding muscles become de-conditioned, everything around this area also weakens including tendons and ligaments.

    Agility can be lost and these “areas” of interest become wider still (as shown in the adjacent graphic), with the tender point pain spreading both above and below the actual point location on the inside of the knee. 

    The tender points within the buttock area can also radiate pain down the leg, often on the sides and back of the legs. Hip and leg pain can result because the Illiotibial band (outside of legs) runs from the hip area down the side of each leg and when this area is tight can cause stabbing pain and severe stiffness.

    Weakness and/or shortening in the hip abductors can also cause extreme tightness and decreased mobility. Illiotibial Band Syndrome (ITBS) can occur in athletes through repetition and overuse but this painful condition is not uncommon for people with fibromyalgia.

    Now, this is where there is some controversy. Is the fibro worsening OR are these points/areas of the fibro body becoming weaker? Are you suffering from Chronic Myofascial Pain on top of fibromyalgia? That could be the reason that you feel your leg pain is getting worse, as there are many layers of trigger points in the lower body.

    One thing to consider with fibromyalgia and leg pain is that any position we stay in too long, like sitting or standing can increase pain and activate trigger points. The tender points will always be there on some level, but it is the trigger points that become activated from repetitive movements or being in one position too long.

    I say it often, I highly recommend not sitting for long first thing in the morning. When we go from lying in bed to sitting first thing in the morning, this only creates more stiffness in the lower back, hips, legs, and knees. 

    I had to start thinking outside of the box and this is when I set out to create fibro-specific exercises and start working with my fibromyalgia leg pain in a way that I had not previously done. This doesn’t mean that we can “cure” ALL pain through conditioning of the body, but when strength and agility are lost, everything suffers. So now we must look at what will counteract this phenomenon that has become so common in fibro today.

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    Consistent Conditioning for the fibro body

    People ask “how do you work out with fibro?” However, the greater question needs to be “how do we not?” This is never all or nothing. 

    I sure do get it. But see, we have to approach this condition in terms of conditioning, not merely temporary pain relief. Essentially, we want and need to create more LONG-TERM pain relief and subsequent independence as we age with a chronic illness.

    This is well verified and why I became a fitness trainer and studied extensively to create fibro-specific exercises and routines while also incorporating ways to lessen the severity of everyday activities that can worsen leg pain.

    Often, by the end of any given day, fibromyalgia leg pain can be even greater than upper body pain. Although they definitely inter-relate, after standing or prolonged sitting at a job or computer, the legs and tendons are often the first to be affected.

    It is important to know that it’s the everyday activities that can be detrimental to a fibro body and not the conditioning through safe and effective exercise. There are some activities of daily living such as cleaning a bathtub or lifting heavy objects improperly that really can be detrimental to a fibro body, whereas focused fitness training actually ‘protects’ the body and builds a stronger resilience and foundation.

    What about tender areas and bruising?

    Bruising and tenderness can occur with leg pain, especially if you tend to varicose veins which will cause more pressure around these vulnerable areas. Although we want to be careful of any invasive procedures for vein health, it can be helpful to address if bulging veins or even spider veins become more prominent. This can occur with both men and women. 

    Some Other Symptom Treatments For Fibromyalgia Leg Pain

    Myofascial Treatment

    It can be helpful to experiment with light “rolling” on a foam roller OR work with a therapist who is experienced in myofascial release. It does not always have to be extremely painful to ‘work’ these areas, but there is benefit in learning how to work with these affected points/areas in a way that is healing, not detrimental to the fibro body.

    Bowen Therapy done by a massage therapist trained in Bowen can also be very beneficial. With Bowen therapy, the body learns to adjust and relax to muscle stimulation and release. Many people report positive results from Bowen therapy and we highly recommend giving it a try. 

    Tender Points Treatment

    Another helpful Rx is using compression wear on the legs and knees whenever needed, even before and after exercise. We have been experimenting with various types of compression over the past few years, using compression socks, sleeves and also making our own by cutting up old socks and other pieces of material to find what works best at various rates of compression. This can increase circulation, soothe “tender” tendons and ease pain in the affected areas. 

    Low back pain is obviously a different subject than fibromyalgia leg pain except in one respect. Low back pain often involves the sciatica nerve which can radiate severe pain down one leg or the other.  

    I have recently experimented with a particular type of pressure point therapy that provides considerable relief. It is the Nature’s Pillows BeActive brace. I like to wear it at night and sometimes through the night, I find that I really do have less low back and leg pain in the mornings. 

    If you are greatly affected by fibromyalgia leg pain, there are many ways that you can support this area through movement, strength, and focused range of motion exercises.

    The remedies often used to deal with the pain (salt bath, natural anti-inflammatories of any kind, light massage, etc.) can be helpful to get us through, but it becomes really essential to create and utilize a consistent program of re-conditioning on whatever level is possible for EVERY fibro body. 

    And because tender points are different from trigger points (TRPs) in the leg region.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • 6-Steps to Minimize Your Fibromyalgia Flare

    6-Steps to Minimize Your Fibromyalgia Flare

    Can we minimize fibromyalgia flares?

    If you have fibromyalgia, you likely know the triggers that precede a fibromyalgia flare. You try to avoid the triggers when possible and just get through them when you have to. However, it is never 100%. There can be variables internally and externally. 

    The most important thing to remember is that it is never “all or nothing” when working through a fibro flare. Some flares will be a shorter duration, and some can last longer depending on the exposures and factors involved.

    I often say it is almost like being “poisoned” and working to bring the fibro body back to “homeostasis” 

    Some of the more common triggers to a flare include:

    You might also find that accidents or injuries can lead to a flare. Maybe even a visit to the doctor. Anxiety, depression, or anything we ingest like a certain food, medication with side effects, or even some supplements. 

    Because fibromyalgia affects the ENTIRE body, so does a fibromyalgia flare as the adjacent graphic illustrates.  And because everyone’s tolerance and condition are different, it can be hard to predict how long a flare will last in each individual fibro body.

    Flare symptoms might include increased pain levels, brain fog, pressure in the head, cold extremities, joint pain, swelling, malaise, swollen glands, increased fatigue, and more. 

    If you have fibromyalgia, you know that flares will likely be a part of your life. The idea is to get to know our triggers and the many variables that can precede or prolong a flare. This doesn’t mean we can avoid them altogether.

    It does mean that we may be able to lessen the severity and the time length of the flare by consistently being proactive.

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    6-Step Mastery Over Pain Protocol For Your Fibromyalgia Flare

    Wouldn’t it be empowering to have more control?  Although we cannot “cure” them, we can work with them. It is possible with consistency and employing the following six steps in our Mastery Over Pain (MOP) protocol to control fibromyalgia flares

    1) Reduce the Toxic Load

    Working to eliminate toxins/chemicals in the home and anything used ON our bodies is the first step to reducing fibromyalgia flares. In doing this, we are strengthening our ‘core’ immune system by reducing the overall toxic load on our fibro bodies.

    I talk about this in the Environmental Illness article and throughout the website. My personal story with autoimmune illness at a young age tells why I am so passionate about this.

    I simply do not use store-bought body products and use only dye and scent-free laundry soap and other natural agents such as vinegar, peroxide, and baking soda.

    Also, without putting too many limits on our daily lives, we try to avoid outside environments that are toxic such as extended periods in shopping malls, clothing stores filled with formaldehyde, veterinary clinics, etc.

    Any place where a high level of chemicals is used and are off-gassing is generally not a safe place for a fibro body.

    2) Plan Ahead for Weather

    Weather is impossible to control. All of us fibro bodies like to say that we are like “human barometers”. We often react before and more intensely than other people. Joint pain, swelling, malaise, depression, etc. can all accompany weather changes.

    What about seasonal changes? I often talk about spring and fall bringing added challenges to the fibro body. You may feel extremely tired during the season changes and it is not uncommon to experience headaches and a tendency for extended flares. (For Spring allergies, I like to take quercetin, and additional vitamin C.

    Raw and local honey is also great for allergies. I’ve recently been talking about this on the FB page and how just a half teaspoon daily has been helpful for the intense pollen headaches I get every Spring. 

    The best idea here is to plan ahead when possible, accommodate more self-care time. I also find that movement-like range of motion exercises are a great way to be proactive and ‘vent’ the fibro body during a weather-related flare.

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    3) Stress is a big offender

    Stress is a big offender and understandably so. The adrenal glands are already having to deal with an overload through compromised immune and endocrine systems.

    This is where meditation, gentle flowing movements, deep breathing, and energy work come in. Adrenal Stress can really exacerbate symptoms in any chronic illness

    If you have ever had a reiki session or attended a qi-gong class, you have likely experienced this healing and proactive energy. We can learn to do the same at home by simply taking the time to listen and work with our bodies.

    Distractions are good at times, but too many distractions on a daily basis will not allow us to see what is and what is not working.

     Stress from living with a chronic condition can lead to Adrenaline Dominance. Please refer to our books page, the second book on the list there. I do highly recommend reading this book. 

    Sitting or stagnating through a flare is not only uncomfortable but will not lessen the time of the flare; moving the lymphatic fluid, oxygenating the body, and increasing blood flow (especially after a toxic exposure) is essential.

    Walking, swimming, using a rebounder (mini-trampoline), or even sitting and gently bouncing on a large exercise ball is also a great non-invasive way to move the blood and lymphatic system and help to create a sense of wellbeing. Get moving, get breathing, work to stay empowered even through a flare!!

    4) Sleep According to Your Body Clock

    Sleeping according to the body clock is one of the fundamentals in my protocol to control fibromyalgia flares.
    And I know what some of you will say “Sleep, what sleep?”

    We also have many tips and suggestions throughout the website for lifestyle and natural Rxs to aid in regulating sleeping patterns. Not an easy task for the fibro body.

    All of my suggestions pertain to ‘natural’ sleep Rx’s, however, because sleep is number one and if you are not getting it no matter what you do, talk with your doctor about a low dose sleep aid. The key is to only take the LOWEST EFFECTIVE DOSE and only while incorporating good sleep habits at the same time. 

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    For instance, if the doctor gives you 10 mg of sleep medicine, do not assume that is right for your body. Use a pill cutter, and experiment with the lowest dose possible. Using too high a dosage of any sleep medicine can have the opposite effect AND can become addictive.

    If other tools are being used consistently, the sleep aids should not be needed every night. And this will help us to better know which of the noninvasive tools are actually working for us !!

    Please also refer to the menopause link in the following step where I detail the importance of progesterone and sleep. I personally have not needed a sleep aid since taking a slow dissolve troche of progesterone before bed. Men can also take progesterone for this purpose. 

    5) Strive for Balance

    Hormones …well, they are pretty much like the weather, although we have a bit more control, we cannot control phases of life, hormonal tides, and fluctuations. We can however work to stay balanced through a “healthy” lifestyle.

    For women, if we are estrogen dominant for example, we can experiment with or talk with our doctor about natural Rx’s such as Shatavari, Vitex, Black Cohosh, and/or natural progesterone creams or troches.

    For men, the same need for balance also applies.  Reducing sugars and grains can also help to balance hormones as well as can including more whole and organic foods and vegetable juices

    6) Can food lead to a flare?

    Last but not least, we need to be aware of all food allergens, additives, and even mucous forming foods. Did you know that excess mucous in the body can contribute to pain? “Histamine Intolerance” can also pose an issue and contribute to symptoms.

    If you have an intolerance to alcohol, nitrates, certain fruits, sugar alcohols, fermented or cultured foods, then it may be necessary to implement elimination diet protocols. (I suggest eliminating one food at a time for a period of 6-8 weeks before going on the next suspect food.)

    When we ingest foods to which we are allergic or simply have an intolerance, they can create excess mucous. This mucous is the body’s way of protecting itself; however, just like with autoimmune illness, it eventually works against us. The body is doing whatever it can to protect us. Yet this excess mucous can prevent nutrient absorption and create MANY unpleasant symptoms and increased pain. Become aware of food intolerances, keep a food journal and work to allow food to become your BEST medicine yet.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Medication Efficacy and Side Effects

    Fibromyalgia Medication Efficacy and Side Effects

    This article is an examination of the more commonly used fibromyalgia medications and a few results of recent studies on the effectiveness of the medications in fibromyalgia patients; ways to reduce the cost of your fibromyalgia medication; and appropriate warnings where warranted.

    Fibromyalgia is complex. Here at “Living with Fibromyalgia”, we understand that not everyone will walk the same path when it comes to their approach to treating fibromyalgia and all of its complexities. If you are taking prescription medication for your fibromyalgia, we want to be sure that you are approaching your fibromyalgia medication the “smarter” way. 

    If you have had major surgery in the hospital, you might think that morphine, or other opiates, are your “best friend”. But, did you know that when prescribed for fibromyalgia pain, it helps at first and then slowly turns on us until it actually causes more pain! Studies have shown this to be a fact. When it happens, you may not even know it’s the opiates that are exacerbating the fibro pain; you may even ask your doctor for a larger dose!

    The smarter approach is always going to be the least invasive with the least negative or toxic side effects. This means you may have to take more personal responsibility when working with your doctor. When you have prescribed any medication, you always need to be thinking “is this the lowest effective dose for my condition?” 

    Building a tolerance to any fibromyalgia medication without the use of other conjunctive therapies is counterproductive because we are not allowing the body to aid in the healing process. And, by healing process, we are not talking about a” cure” for fibro; no, we are talking about creating greater levels of wellness and well-being while reducing overall pain levels and fibro symptoms.

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    Some of us have been forced to be more creative, due to intolerance to medications and/or belief in holistic methods and modalities of healing. We often use the word “preventative” when referring to a lifestyle that supports less susceptibility to all diseases. Yet, preventative measures are simply living the lifestyle in which we were meant to live.

    Free of toxic medications, free of toxic air, soil, and water, and free of negative and toxic emotions. Well, to many that sounds like a perfect world that never existed anyway, at least not here on earth. But in striving to live as close to this “ideal” as possible, we are using the better and smarter approach to fibromyalgia and, as I like to say, “any other illness that may be lurking around the corner”.

    I have always been very intolerant of medications and had to find other ways to control my severe fibro and chronic migraine symptoms. I spent years working thru symptom after symptom. Also living with CFS/ME, I understand the complexity of these co-conditions and do not take them lightly.

    Over many years as both practitioner and patient, I had finally reached a point where I had built a “toolbox” containing various methods to control my symptoms. That is really what encompasses this website. This is a complex condition with complex co-conditions, I certainly get that. The point is to avoid putting an extra burden on the already vulnerable fibro body. 

    We would never recommend that anyone subject themselves to more pain than can be tolerated. The goal is to use as many non-invasive remedies as possible while trusting in the magnificence of the human mind and body. Yes, even while living with fibromyalgia and all of its complexity.

    What follows is a list of the more commonly used fibromyalgia medications and a few notes on recent studies on the effectiveness of the medications in fibromyalgia patients; ways to reduce the cost of your fibromyalgia medication; and appropriate warnings where warranted.

    Fibromyalgia Medications & Side-Effects

    TABLE 1.  FDA Approved Fibromyalgia Medication:

    The following fibromyalgia medications are expressly FDA approved for the treatment of fibromyalgia:

    BRAND      GENERIC          SYMPTOM
                                                AFFECTED

    Lyrica              pregabalin           pain, sleep,
                                                        & fatigue

    Cymbalta       duloxetine             pain, sleep,
                                                      & depression

    Savella           milnacipran         pain, fatigue, 
                                                      & depression 

    RARE BUT SERIOUS SIDE EFFECTS:

    BRAND      GENERIC      SIDE EFFECT

    Lyrica         pregabalin     Suicide,
                                               Heart
                                               Failure

    Cymbalta    duloxetine     Suicide,
                                                 Serotonin syndrome

    Savella        milnacipran    Suicide,
                                                 Serotonin syndrome,
                                                  Rapid heartbeat                                                        

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    COMMON SIDE EFFECTS:

    Constipation or diarrhea, dizziness, dry mouth, headache, stomach upset, drowsiness, sexual dysfunction, blurred vision, confusion, liver, and kidney function impairment.


    TABLE 2.    Off-Label Drugs (Approved by Drs. Prescription):

    By my count, there are over 30 drugs being prescribed “off-label” for fibromyalgia.  I’ve included several representative examples of the more interesting ones to illustrate the variety of fibro symptoms and co-conditions treated, including Restless Leg Syndrome (RLS), Irritable Bowel Syndrome (IBS), Fibro Fog, as well as the key symptoms of fibromyalgia (Pain, Sleep, & Fatigue).

    BRAND        GENERIC       SYMPTOMS
                                                AFFECTED

    Elavil         Amitriptyline     Pain,
                                                 Sleep,
                                                 Fatigue,
                                                 Depression

    Eaxil        Paroxetine-IR     Pain,
                                                 Sleep,
                                                 Depression

    Neurontin   Gabapentin     Neuro-
                                                pathic Pain
                                                 Sleep

    Wellbutrin     Buproprion   Fibro Fog,
                           HCL               Fatigue

    Klonopin     Clonazepam    RLS, Sleep,
                                                 Anxiety

    BRAND      GENERIC        SYMPTOMS
                                               AFFECTED

    Bentyl        Dicyclomine     IBS, Pain

    Prozac        Fluoxetine       Anxiety,
                                                Depression

    Provogil      Modafinil         Fibro Fog,
                                                  Severe daytime
                                                   fatigue

    Mirapex       Pramipexole    RLS

    Lunesta       Eszopiclone    Sleep

    RARE BUT SERIOUS SIDE EFFECTS:

    Check with your doctor if you decide to take fibromyalgia medication.  In particular, ask if the medication is an SSRI (Selective Serotonin Reuptake Inhibitor) if you are taking any serotonin enhancing supplements. SSRIs keep a high level of serotonin in the brain, and any additional sources could cause Serotonin Syndrome, a life-threatening condition.

    In the above list Amitriptyline, Paroxetine-IR, and Fluoxetine are SSRIs. Also, many of these drugs carry a warning regarding suicide especially for those 25-years old and younger and those with severe clinical depression.

    COMMON SIDE EFFECTS

    Constipation or diarrhea, dizziness, dry mouth, headache, stomach upset, drowsiness, sexual dysfunction, blurred vision, confusion, liver, and kidney function impairment.

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    Fibromyalgia Medication Treatment Results

    I wish I could tell you that there was a real help for your fibromyalgia symptoms from some of the drugs currently being used to treat fibro. The truth is that there is little real help with even pain which most of these drugs target.

    I have reviewed numerous clinical trials written up in scientific journals and the story is mostly the same one over and over.  I chose trials with at least hundreds of fibromyalgia patients where a large number were given the fibromyalgia medication being tested and an equally large number were given a placebo (a fake drug).

    I also looked at “Reviews” done by the Cochrane Library [1] where oftentimes they collected the results of many trials.  In these cases, the “reviewers” were careful to look for bias in the studies (a large number are funded by pharmaceutical companies) and apply a grade to the quality of the data. This is SOP (standard operating procedure) at the Cochrane Library and for this reason, they are known as the “gold standard” of published scientific studies.

    In plain language typical results were:

    • Only a small percentage of the real test drug group got moderate to substantial relief of pain; however, a slightly smaller number (about 10% less) of the “fake” drug group would achieve the same result, thereby giving an absolute creditable improvement of only about 10%.
    • The number of participants who dropped out due to side effects often approached the number who benefited. For example:  Among fibromyalgia patients taking either of two commonly prescribed, FDA approved drugs to reduce pain, 22 percent reported substantial improvement while 21 percent had to quit the regimen due to unpleasant side effects, according to a new Review in The Cochrane Library. This nets out to a “substantial improvement” of only 1% of the test group.

    As you can see, the placebo effect and side-effects take their toll on fibromyalgia medication efficacy.

    What Do the Study Doctors Recommend?

    One of the Cochrane Reviews [4] was a study of two medications. The two medications often prescribed to treat fibromyalgia are duloxetine and milnacipran. Both are listed in the FDA Approved Drugs in Table 1 above.

    The authors reviewed 10 high-quality studies comprising more than 6,000 adults who received either duloxetine, milnacipran, or a placebo for up to six months. Using a Quality of Life (QOL) scale for fibromyalgia, the studies reviewed reported QOL ratings lower than 15 on a scale of 0 to 100 even among patients on the medications. This is why I earlier said fibromyalgia medication offers little help for fibro patients.

    Now, rather than reporting directly the results of this study, I’m going to bring you an interview of the Review authors by the “Health Behavior News Service” so you can read for yourself the author’s own opinions of fibromyalgia medication and suggestions for conjunctive or even an alternative therapy.

    This is a very important study,” says Fred Wolfe, M.D. of the National Data Bank for Rheumatic Diseases. “There’s an enormous amount of advertising suggesting that these drugs really help, whereas the research data show that the improvement is really minimal.”

    Treatment with drugs alone “should be discouraged,” the reviewers added. Instead, the review authors recommend a multi-faceted treatment approach including medications for those who find them helpful, exercises to improve mobility, and counseling to improve coping skills.

    The medical field does poorly with the treatment of fibromyalgia in general,” says Brian Walitt, M.D., M.P.H., a co-author of the review and an expert in pain syndromes at Washington Hospital Center in Washington, D.C. “Chasing [a cure] with medicine doesn’t seem to work. The people who seem to me to do the best sort of figure it out on their own by thinking about things, getting to know themselves, and making changes in their lives to accommodate who they’ve become,” concludes Walitt.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Pain Is Unique

    Fibromyalgia Pain Is Unique

    Fibromyalgia pain is unique due to its severity, complexity, and multiple systems involved.

    If you have fibromyalgia, you know that chronic pain is just one of the myriad of symptoms present within the fibro body at any one time.

    See, there can be multiple causes to a fibromyalgia headache for example, although the pain itself occurs in the “fashion” we call fibromyalgia pain.

    It doesn’t matter if the headache started as neck or scapular-thoracic pain OR if it was perpetrated by weather or exposure to some chemical toxins in our environment. The pain is unique to fibromyalgia.

    The stress pain that we fibro bodies feel is much the same when we are referring to fibromyalgia pain. It doesn’t matter if the stress that caused your nervous system to continually fire was from a negative or a positive experience.

    The fibro body simply has a more difficult time regulating down the “fight or flight” reflex.

    That continual stress on the body wreaks havoc on our pain sensory system and therein starts the cycle of chronic fibromyalgia pain.

    We know there are various causes to developing fibromyalgia and chronic pain fibromyalgia, but I do believe that many people simply have a greater propensity to developing fibromyalgia.

    In fact, it has been shown that over 33% of fibro suffers are genetically disposed to it. If you are like me, and your symptoms started at a young age, I am glad you are here.

    I understand this condition, living with it, working with it, and helping others to attain a better quality of life, despite the complexity of fibromyalgia and its primary co-conditions. 

    The pain and symptoms are never just in one area of the body. It is certainly not ALL in your “headache”. It is not merely in your “frozen shoulder” or “restless legs”.

    No, the fibromyalgia pain that a fibro person experiences is multi-system and that is why we believe in a multi-faceted approach to a better quality of life while living with not only fibromyalgia but related conditions as well.

    Myofascial pain is also related to fibromyalgia and it is not uncommon to have both.

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    Pain in Hands or Feet? 

    The extremities are a common area for fibromyalgia pain. Yet it is helpful to distinguish between other forms of pain in the extremities.

    Arthritis and/or nerve pain are associated with extremity pain but fibromyalgia pain is unique in its ability to wax and wane, yet not always in accordance with a weather pattern or stress.

    It might simply happen that you wake up one day and the same hand that was working well and flexible yesterday may be tight, stiff, and/or burning.

    It might be difficult to open jars, tie shoes or put on clothing. Hand pain can radiate into the forearm and elbows where there is a greater propensity for tenderness and pain simply due to tender points around the elbow region.

    Trigger points around the shoulder can also radiate pain into the forearms and hands. You may have restlessness in your hands where you feel the “need” to tap or move your hands and/or fingers.

    Try using copper compression gloves. The copper used in compression wear and clothing has been shown to reduce pain; it’s worth a try!! I use copper compression wear, clothing, and gloves. I think it’s a good investment for long-term use. 

    Try not to get too concerned when pain is “waxing”; I know, that’s easier said than done. But I have personally experienced almost debilitating hand pain during a period of time many years ago. I remember talking to my D.C. about it, and my heightened concern about not being able to use my hands the way I needed to.

    That can be scary and disconcerting. The same goes for pain in the legs and feet. See, every area of the fibro body has a propensity to wax and wane in accordance to absolutely nothing…. but especially in the extremities and/or around joints and tender points of the fibro body.

    Due to trigger points, fascia constriction, and/or nerve-related pain in the feet, you might feel burning in both the top and bottom of the feet.

    Myofascial Release can be helpful when this pain is due to inactivity or constriction from sitting, lying, or being in one position for too long; however, this type of work will vary regarding tolerance. Refer to the “myofascial release” article link at bottom of this page.

    Another remedy I’ve found (and use) is copper wear compression ankle sleeves. This foot/ankle sleeve fits gently over the foot and the copper is healing.  It provides very slight hugging compression support for diminished foot pain and improved foot structure.

    Do you have restless legs? What about restless feet? There are various causes for restless and painful legs and feet. Nerve-related pain, fascia constriction, or mineral deficiency are some common ones with fibromyalgia.

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    Fibromyalgia Pain in The Upper Body

    We have an entire article dedicated to upper back pain here on the website and with fibromyalgia, that is pretty much a given. Burning scapular-thoracic pain is one of the most unrelenting types of fibromyalgia pain.

    What about pain and tightness in the clavicle area below your neckline? Tightness around the sternum is common as there are many trigger points in this area around the subclavius and pectoralis muscles.

    The only consideration will be if the pain is coming from another source unrelated to fibromyalgia. It can be difficult to determine this but when other conditions are ruled out, you can bet on fibromyalgia and/or myofascial pain being the cause.

    NOTE: A feeling of heaviness in the upper body can be due to chronic fatigue syndrome as well, and can be associated with an inability to maintain an upright position for extended periods of time.

    Fluctuating blood pressure, heart palpitations, and a feeling of constriction in the chest are common with both fibromyalgia and chronic fatigue syndrome.

    Be careful not to exacerbate pain with shallow breathing. I often say that people with chronic illness tend to be shallow breathers and this can intensify tightness and even a choking feeling in the chest and throat area.

    Sitting too long at the computer or watching television can contribute to tightness in the armpits and pectoralis muscles.

    If you have Fibrocystic Breast Disease (FBD), you may have waxing and waning of pain and tenderness not associated with tender points but more so with lymphatic congestion and constriction. This pain is closely associated with stress or repetitive motion in the arms and/or hands.

    It might take some trial and error to figure out what works for your severe upper body fibromyalgia pain, and even when you find something that relieves pain today, it may not work the next time.

    For example, if you get a regular massage for your fibromyalgia pain, but you ever find yourself becoming less tolerant to massage that once felt good, you might need to change your approach, technique, or even avoid body massage for a period of time.

    It might happen that when you go back to it, that it is helpful again. At any rate, that is the “nature” of fibromyalgia. Waxing, waning and the unpredictability of symptoms can be most daunting when living with fibromyalgia.

    Fibromyalgia Pain In The Lower Body (Legs, Knees, & Hips)

    Another common area for pain with fibromyalgia is in the legs and knees. The interesting thing is that the first “pain zones” often related by a patient when they recall back to the first signs of fibromyalgia are in the head and upper body.

    Leg pain comes readily after, likely due to the potential for trigger points within layers of muscle in the lower body.  

    Everything works intimately together in the lower quadrant of the fibro body. The hip bone really is “connected” to the knee bone for instance when it comes to radiating pain and trigger points, due to constriction, tightness, and/or myofascial pain. Both sitting and standing for extended periods of time are not recommended when we have fibromyalgia pain.

    If you have a job where you are sitting, try to take breaks, be assertive when possible and also refer to the “pain in the butt” exercises I show on the Fibro Fit People page on Facebook. (these are some simple exercises to perform in between sitting to help loosen and avoid increased propensity to pain and tightness.

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    Otherwise known as “FG’s side to side exercises”, because much of what we do during the day is in a “forward” motion, such as walking and sitting.

    Creating a greater range of motion is more appropriate for those who find conventional stretching of the lower body difficult due to fibromyalgia pain and/or other factors like arthritis.

    Another consideration is “Activities of Daily Living (ADLs)”. ADLs are different from structured exercise and can also be an area where injury or increased pain can easily occur. For instance, you might be going along feeling pretty decent, all things considered, and then you have to lean down to clean the bathtub or mop the floor.

    All of a sudden, you might realize that these things are more difficult than before.  If some activity or chore is too difficult without undue strain, we need to ask for assistance where possible.

    Fibromyalgia Pain and Headaches

    We have an entire article here on the site dedicated to headaches and chronic migraine. This can be one of the most debilitating pain areas for a person with fibromyalgia. As I like to say, “this is where we think, express, and interact with the world around us”.

    If you have chronic head pain or migraine, then you know pain. The potential for trigger points in the upper back/scapular area can easily turn pain in the upper back into a migraine within a short period of time.

    Stressors, exposure to environmental toxins, sleeping position, seasonal allergies, food allergies, and sinus or jaw (TMJ) pain can all increase pain within the fibro body to the point of debilitation.

    Again, because there is nothing worse than trying to think, work at a job, or enjoy the simple things in life when head pain is pounding and radiating into your head, skull, and face. It makes it even more challenging to carry on a conversation or be social.

    Having had chronic migraine since the age of 9, I surely get it, and there are some things that we just cannot control.  But throughout the website, we focus on the many variables that can contribute to headaches and other areas of fibromyalgia pain and the areas where we can be more proactive to at least lessen or decrease the severity of pain.

    Temperature Dysregulation

    With fibromyalgia, there can be a few different root causes, and in addition, there can be a dysfunction in the hypothalamus, pituitary, and adrenal functions.

    And although female hormones or lack thereof can also exacerbate temperature imbalance and hot flashes, we are talking more about the everyday dysregulation in fibromyalgia itself.

    Too much stress on the adrenals can increase adrenaline while also increasing temperature sensitivity. The endocrine system is also affected by toxins in the environment, and when exposed to various things can cause the body to react with temperature dysregulation.

    During or after toxic exposure, your extremities can become very cold. This is also why people with fibromyalgia often say it feels like living with flu symptoms 24/7. There could also be an imbalance in the thyroid or the presence of thyroid antibodies.

    One day you might feel like you are sweating too much and yet another you could feel cold all day long at the same temperature.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Symptoms List (Extended)

    Fibromyalgia Symptoms List (Extended)

    This list reveals PRIMARY symptoms with secondary symptoms within each direct link…

    The fibromyalgia symptoms list that we present on this page is an addition to the main Fibromyalgia Symptoms page (our unique perspective on dealing with various fibromyalgia symptoms using our protocol) Why do you NEED an accurate SYMPTOMS LIST? 

    Well, because there are too many generic inaccurate fibromyalgia symptoms listed out there that just state a lot of symptoms, without regard to PRIMARY and SECONDARY, and without regard to the possibility of missing other conditions. Please know that it is IMPERATIVE to distinguish between primary and secondary symptoms so that you do not miss another condition outside of the fibro. That is what we do here. This is not a random list of symptoms because that can be very dangerous. Yes, fibro is complex, but we are supporting the WHOLE you. 

    Some of the following links will be updated as new and more specific articles are published here on the site. This extended fibromyalgia symptoms list will get you familiar with the various symptoms and treatment options (not false cures) as you study our entire protocol for “eating the fibromyalgia elephant one symptom at a time”.

    Whether you have been living with fibromyalgia for much of your lifetime, or are newly diagnosed, our site is designed to be user-friendly and help you to live a better quality of life with fibromyalgia.

    F-G says, “Use my symptoms list links.”

    Please trust me when I say that fibromyalgia is a very complex syndrome, and there are no “silver bullets”. But there are solutions that will help us to live a better quality of life. 

    And, those solutions vary depending on the symptom. If we are going to create a better quality of life, following our protocols is the most effective way, but as always, this is NOT about perfection. 

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    Musculo-Skeletal Symptoms

    One of the defining attributes of fibromyalgia and myofascial pain is the effect on mobility about the body in time periods of a few hours to days at a time. This is often the result of severely tender “areas” of the fibro body and multiple trigger points which lie in various layers along with the fascia and muscle groups. 

    Brain/Head/Face Symptoms

    Fibromyalgia symptoms are most debilitating when they affect the brain, head, or face. This is due to the close proximity within all of our senses and the effect on them.

    Moreover, the fibromyalgia symptoms that affect this area are quite diverse, creating emotional effects; sleep disturbance; hypersensitivity to lights, noise, and chemical toxins; and all are accompanied by pain ranging from acute and throbbing to an incessant dull ache. Mitigating these varied symptoms is just as varied.

    GI Tract

    GI issues on the fibromyalgia symptoms list are often exacerbated by a common co-condition, Irritable Bowel Syndrome, which has more serious GI tract problems than fibro alone.

    However, symptom relief for either pretty much follows the same protocol. Working as a colon therapist for many years, I have utilized some effective, non-invasive remedies to ease symptoms of IBS, constipation, and spastic colon.

    Geno-Urinary Tract Skin

    A couple of the items on the fibromyalgia symptoms list in this category deserve a tip. I personally don’t have much problem with heat, but cold is a different matter. My greatest “cold” issues usually occur in the spring or fall when weather fronts often move thru accompanied by a drop in temperature. Being better prepared for weather changes is essential with fibromyalgia.

    Also, the “sensitive to touch” symptom is quite different from the allodynia symptom in which any touch is intolerable. TRPs and the fascia are usually involved in simple “sensitive to touch”.  In this case, manipulation can be done and some relief can be realized.

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    The circulatory system/ the heart muscle 

    Immune System

    In this category of the fibromyalgia symptoms list, I just want to explain why MCS (Multiple Chemical Sensitivity) is listed here as well as in the above category of “Brain/Head/Face. I’ve had severe MCS since a young age, and it can be very debilitating. With MCS, it’s all about avoiding exposures. 

    But, when exposed, the effects in the Head area are really bad and come on quickly; but that’s not the end of the story because MCS is like the worst “endocrine disrupter” really, and associated symptoms can last for days.  So, you are probably saying to yourself ” but I don’t have MCS”.  Well, hear me out…

    Sure, I’m hyper-sensitive to all manner of toxins; but in my years of working with fibro sufferers, I’m convinced that most people with fibromyalgia also react to those same toxins.  In a twisted kind of way, I’m lucky because my reactions are so “cause and effect” obvious.

    When I am exposed, I know it immediately; and, I know my fibro is going to flare.  It always does.  I’m also convinced that your fibro flares when you are exposed to those same toxins, but you probably don’t make the association in your mind because it’s not as evident as with me.  

    Consequently, I believe that many fibro sufferers’ fibromyalgia symptoms are exacerbated by the toxins in our everyday lives such as dryer sheets, perfume, deodorant, formaldehyde in our carpet and furniture, and many other sources.  You can do something to protect yourself, I have. It is important that we create a safe haven in our own homes.

    Read more about this on the Environmental Toxins page by clicking on the multiple chemical sensitivity link in the following fibromyalgia symptoms list.

    Although not listed here, you can also use the SITEMAP to access the articles on “Leaky Gut” and “Underactive Thyroid” (often part of lowered immune symptoms) There are also viral co-conditions such as Epstein Barr, anaplasma and mycoplasma that can exacerbate symptoms within fibromyalgia when these viruses are found through blood testing. 

    Other

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store