Dear Fibromyalgia

Category: Fibromyalgia Symptoms

A detailed guide to understanding Fibromyalgia symptoms, early warning signs, and how they are diagnosed.

  • Fibromyalgia and Agitation

    Fibromyalgia and Agitation

    Fibromyalgia and Agitation. You would be forgiven for thinking that these are two words that belong together. Well not in my world!!

    For those of you recently diagnosed with Fibromyalgia or those who may have an inkling that perhaps you are showing symptoms of having the condition, it is easy to allow some fear to creep in. When words like “incurable”, “chronic” and “heightened pain responses” are used it is understandable that an element of fear will kick in and your outlook is considered gloomy.

    My symptoms first started appearing in 1989, back in the day when the condition was referred to as “yuppy flu”. Doctors really didn’t have much of an idea about what was happening. After endless tests which always came back clear, I was worried that maybe I was imagining all of the fatigue and pain. A real fear for my sanity crept in. This carried on until I finally got my diagnosis.

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    In 2000, my doctor uttered the words Fibromyalgia ~ I broke down and cried.

    Not because I was scared or shocked, the reality being I was relieved. I was right all along, there had been something wrong with me and now they knew what it was, I could be cured…

    Oh, how wrong I was.  I asked the doctor excitedly, what was the cure? He then told me there wasn’t one and the fear crept in again.

    Since 1989, fear has tried to overtake me many times. My condition has threatened to overwhelm me but it has never quite succeeded because I was determined that for as long as I could, I was not going to allow the fear of Fibromyalgia gets the better of me.

    Each new day gave me an opportunity to keep on keeping on. My attitude has always been to push on through whatever the condition could throw at me. There have been times when it has knocked me down but I never allowed the fear to keep me there. I was more afraid of not being able to enjoy my family and my life, not be able to hold down a job, and becoming a burden both financially and physically.

    I didn’t have a crystal ball and could not see into the future. I did not know what Fibromyalgia would take from me and when it would take it, so I tried to get through each day the only way I knew how – which was to get up and get going.

    Fibromyalgia is not the robber it is made out to be.

    If I had listened to my GP when I got my diagnosis, then for sure I would not be functioning the way I do now. My life would have consisted of anti-depressants and strong painkillers which ultimately would have stopped working and had to be replaced by stronger medication. Most likely I would have ended up in the wheelchair that he promised me further down the line and I would not have been able to hold down a full-time job.

    For some, I know that this condition can bring with it additional health issues which means some people struggle massively with their Fibromyalgia. But I would say to those people and all of the newly diagnosed sufferers, don’t be afraid to push a little. Life is for living and making wonderful memories. Even with a chronic condition, it is possible to have a positive mindset that speaks to our body and says “I can do this”.

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    I can get out of bed today, I can have friends over for dinner, I can attend that wedding, I can make that trip for a few days holiday, I can do some gentle exercise, I can make healthy changes to my diet, I can take some quiet time to just be. I know some of you are reading this and saying I would flare – well yes, so do I but I try to compensate and be gentle with myself for a few days after doing something which exerts me. I almost build it into my schedule. I have a late-night, I follow it up with 2 early nights to try and rest my body.

    Feel the fear and do it anyway.

    We have all heard that saying, and I believe that fear could be the thing that cripples us long before Fibromyalgia. It is said that our deepest fears rarely manifest. If I could offer you one piece of advice that I know to be true for me it would be to “do it anyway”. Don’t allow the fear of what may or may not happen to hold you back from living your life. Don’t let the expectation of what you should be going through as a Fibromyalgia sufferer stop you from creating special times and memories. Your body may surprise you and give you an easy ride – you won’t know until you try.

    As Richard Branson said “You don’t learn to walk by following rules. You learn by doing, and falling over”.

    Baby steps they may be but they are still steps in the right direction. 

    I heard a poem today which inspired me to write this piece. it is by Jeff Foster and is called Nothing to Fear.

    99.99999% of your fears live only in your imagination, in anticipation, and in memory. 

    Even if the worst happens, you’ll find yourself dealing with it at the moment, responding from a place of presence. 

    You don’t have to deal with it now, you’ll handle it then.

    And who knows: The “worst” thing may turn out to be your greatest teacher, your most profound call to awakening, an invitation to the kind of courage of which you never thought yourself capable. Fear isn’t your enemy, but a signpost ~ breathe into the moment.                                                                 

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Frustrations Life

    This post may prove to be somewhat controversial but it comes from my heart and I believe I would be doing a disservice to my fellow “warriors” if I were to let it go unsaid.

    When I was first diagnosed 15 years ago, I was relieved that having already suffered for 10 years my condition was very real and had finally got recognition and more importantly a name. I remember leaving my doctor’s surgery and going home, heading straight for the computer.

    I wanted to know all there was about Fibromyalgia, it was something I had never heard of before and those around me had never heard of it. I wanted to learn what it was, what caused it, and more importantly how I was going to manage it.

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    After many hours on search engines, I finally switched off the computer feeling totally down, demotivated, and totally despondent. All I had learned from my fellow sufferers was how to claim disability allowances, how I should stop working, what were the best drugs and plenty of pictures of people posing happily with their wheelchairs and walking sticks.

    On that very first day of diagnosis all those years ago, I made the decision that this was not and never would be my route in dealing with Fibromyalgia – there had to be a better way and I was determined to find it. So over the years, there have been ups and many downs with this condition but my determination to find a way to manage it positively has remained steadfast.

    Since committing myself to the goal of reaching out to fellow sufferers, I have stepped back into the world of Fibromyalgia communities and online support groups and have to say in the majority, there are some great sources of advice and help. There is a thriving community of people who come together and share their stories safe in the knowledge that there are others who understand them and can relate. The internet I feel has helped us all become much more educated about our condition which can only be a good thing.

    Therefore, you may wonder where is my frustration and the point of the post?

    I think sometimes, those of us with Fibromyalgia can be our own worst enemies. The frustration at the lack of support from family, friends and yes, even medical professionals makes us vulnerable to hosting our own pity party. In the absence of outwardly obvious symptoms, the pages of “normal” tests results, and our grossly misunderstood diagnosis, we quickly become paranoid and confused to the point whereby a broken nail is blamed on Fibromyalgia and our plight appears hopeless.

    Sadly, I see hosts of people on these forums searching for answers that clearly our doctors can’t or won’t provide, I see them grasping for any bit of information that may explain away their constant headaches, their unexplained bruising, their restless legs along with a host of other weird and not so wonderful ailments that plague their daily lives. I too have been guilty of putting every little ache and pain down to Fibromyalgia when in reality it could potentially have been something more sinister.

    I find myself staying away from the doctor’s surgery, probably down to the years of doubt and disbelief that there was anything wrong with me, the fear that I will be labeled a hypochondriac or once again, be sent off for tests that only ever come back normal. I dismiss many ailments as “it’s just a flare” and crack on as usual.

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    I resisted the offer of medication back when I was diagnosed in 2000, for me, strong painkillers and antidepressants were not the routes I wanted to take if I could help it. I had to learn more about what I was dealing with as opposed to just giving in, rolling over, and accepting the first treatment protocol I was offered. A doctor many years later, told me that if had accepted those drugs back then, it is unlikely that I would have the life I have now, it would have changed……..for the worse! My body would have gotten used to the doses over time and my prescription would have been increased several times to enable me to have had the same effect.

    Please don’t get me wrong, I am not saying that medication is bad, it was just not for me at the time and I have never reached a time (yet) where I am ready to hand myself and my pain over to drugs. Maybe I am a fool and possibly there is the chance that I could have led a relatively pain-free existence for these past 25 years, my fatigue could have been controlled and I could have led a different life. In my defense, I also suffer from hemochromatosis so it is important that I protect my liver where possible.

    When I read the stories from fellow sufferers, I could cry. It seems that the medical professionals are only too happy to hand out the prescription drugs like smarties as a first resort as opposed to the last. I have found that there is another way and for me, that doesn’t include medication. I only wish I had found out earlier that changing my diet and including yoga and mediation in my life would have such a massive impact on symptoms. My 20’s, 30’s, and 40’s may have had a different story to tell.

    I see the forums crammed with people who have a whole host of ailments and conditions all laid at the Fibromyalgia door, they have prescribed a cocktail of drugs including morphine for symptoms that potentially may have nothing to do with Fibromyalgia. Whilst this condition is very real and affects our lives greatly, the reality I feel is that the GP’s use it almost as one net catches all. Are our complaints ever really investigated or are we written off as the nuisance that is constantly in the doctor’s office?

    My own doctor fobbed me off with a physio appointment recently, only for me to be told by the physiotherapist that he couldn’t possibly work with me as there wasn’t one area that needed attention but my whole body. He was fuming that in 25 years I have had to find my own way and I have never been offered the support that he thought I was due – he subsequently wrote a rather abrupt letter to my GP.

    So, I guess at the end of this, what I am trying to say is that we as Fibromyalgia sufferers have to take more responsibility for our conditions, we have to research the alternatives to the strong drugs which will turn us into zombies barely functioning and we have to be honest with ourselves.

    Whilst we have to treat Fibromyalgia with respect, we must also be open to recognizing that it possibly isn’t the reason for every little thing that goes wrong with us. Arthritis can come with age not necessarily because you have Fibromyalgia, issues with digestion won’t always be IBS.

    We have to follow our instincts and listen to our bodies – we have to take ownership!

    https://teespring.com/stores/fibromyalgia-6
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Awareness… But You Look So Well

    Fibromyalgia Awareness… But You Look So Well

    Over the years it is true to say that on the days I have felt my worst I am invariably greeted with the words by somebody or another “you look really well”.

    I have always kind of smiled at this, even joked about how crap I feel yet people think I look amazing. However, this week it really got to me and set me thinking about the realities of living with what is effectively an invisible illness. I remember once a doctor saying to me that I would probably be better off having a leg missing at least then people would know I was suffering – I am of course not suggesting that we all go out to have legs amputated but I kind of see his point.

    I am guessing that for many of us suffering from Fibromyalgia, we look pretty normal, nothing really to distinguish us from the next person. Standing at the train station this morning, I am sure nobody looked at me and thought “Poor girl, look at the pain she is in”. However, in reality, my current flare-up is so bad I could cry.

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    On a day-to-day basis, I function.

    I work, I socialize, I run home and I exercise (albeit slowly and gently with yoga), hey maybe I am luckier than most but the reality is the effects of Fibromyalgia are never far away. Sitting chatting yesterday, without thinking I tapped the biro onto my thigh and there it was, the familiar painful nudge reminding me of Fibros presence. On the outside looking in, nobody noticed, and had I have yelped out or grimaced who would have believed that a tap from a pen could evoke such a painful response. At best, I may have been labeled a wimp, at worst a hypochondriac.

    In the early days before my diagnosis, my doctor had given the suggestion that I was maybe imagining it and would investigate this further. She concluded that I must have had some mental stress that could manifest as “imaginary pain”.

    I knew that my pain and fatigue were very real but after being written off so many times, even I began to wonder.

    I can imagine that for friends and family, it is as equally confusing when their husband, wife, mother, father, son, or daughter are tired and lethargic all the time, they are in constant pain, and yet there is nothing to show for it and they are tested by the doctors only for the tests to come back normal. What are they to think? It doesn’t take a genius to figure out the frustrations and conflicting emotions on both sides.

    Due to the nature of our condition, we are often left feeling lonely and vulnerable. Unless we have a very sympathetic doctor, then we may feel that we have no place to turn, nobody who can fully understand how it feels to look Warrior and yet feel wretched. Nobody can understand, no matter how well-intentioned or how much a person loves you, they will never grasp the reality of Fibromyalgia. That is why the Fibro community is so important.

    So, the next time somebody tells you that you look great and so well, hold your head up and be proud.

    Fibromyalgia is horrible and robs us of so much, but it can’t take our life or our will. We have to work hard to function as normally as we can and that takes strength and guts to get up every day and face the world in so much pain particularly knowing that nobody will probably even notice.

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    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Stories about people who have gone into Fibromyalgia Remission

    We love hearing stories about people who have gone into Fibromyalgia remission. So here at But You Look So Healthy, we have decided to seek out those people! Most doctors give little to no hope or guidance on how to feel better. Who better than to ask about feeling better than the experts themselves? No, not the doctors, but the people who have managed to figure it out themselves and live it!

    Today we talk to Dawn from New York about her Fibromyalgia journey and how she stays healthy after living in pain for years.

    BYLSH: How long have you had fibromyalgia?

    DAWN: I was diagnosed with fibromyalgia in 2007.

    BYLSH: What were your first symptoms?

    DAWN: I first noticed symptoms in 2006.

    BYLSH: What do you think triggered your fibromyalgia?

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    DAWN: I had injured my back playing with my kids a few years prior, but never got a diagnosis on that until 2006 when a sedentary job caused everything to flare back up. I believe it was a cross between this injury that caused herniated discs and getting the flu that was truly brought on by fibromyalgia.

    BYLSH: How long did it take for you to get diagnosed and what kind of doctor diagnosed you?

    DAWN: I struggled with the pain and ended up on disability for over a year before seeing a pain management specialist. He was the only Dr, other than my chiropractor, who believed me and diagnosed me. I dealt with the pain and various medications over the years.

    BYLSH: What was your rock bottom when you decided you needed to change in order to heal? What changes did you make in your life to feel better?

    DAWN: In October 2019, I decided to try a keto lifestyle to lose weight. I was convinced that I would always be in pain. I can’t recall exactly in my weight loss journey when it happened, maybe a few months in, but I realized that I was no longer in pain! My inflammation was gone. I no longer needed my pain meds! I feel that by cutting out potatoes, rice, pasta, sugar, grains, and gluten, I was relieved of the inflammation, which I believe has put my fibromyalgia into remission.

    BYLSH: Looking back in time is there anything you would have done differently to not get fibromyalgia?

    DAWN: I am not sure of the causes of fibro, or if I could have avoided getting it, but I wholeheartedly believe that we can change our outcome with diet and exercise!

    BYLSH: What do you want other fibro people to know they need to do in order to go into remission?

    DAWN: I highly suggest changing your diet by ridding yourself of processed foods and eating meats, vegetables, eggs, and healthy fats.

    BYLSH: For you, what is the number one thing to stay in remission, AKA your secret sauce or holy grail? It is the number one thing you have to do to stay in remission.

    DAWN: I realize that we are all different in our journey but start by taking control of your diet and exercise! I will continue to eat a low-carb/keto lifestyle because this is what has worked for me! I hope that you, too, can find relief in your journey to better health!

    https://teespring.com/stores/fibromyalgia-6
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • In Fibromyalgia, Some Days Are Just Tough

    In past posts, I’ve written about feeling ill-equipped to handle the role of spouse, the (still ongoing) process of learning that I can’t fix everything, and just being there for my loved one. Those are all key components of becoming the best you can be as a partner, spouse, relative, or friend of a loved one who suffers from a chronic illness such as Fibromyalgia.

    However, some days are just tough…

    • tough to watch your loved one suffer a Fibro flare
    • tough to watch your loved one have a good Fibro day but is sick with a cold, the flu, etc.
    • tough to watch your loved one deal with a separate health issue unrelated to Fibro (i.e. back and/or neck problems, migraines, etc.)

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    If my loved one has managed to avoid a Fibro flare by doing everything “just right” I feel it is a tragedy if she gets socked with another health issue that sours an otherwise good day. THOSE ARE THE DAYS THAT REALLY FRUSTRATE ME!!

    This is a time to put worry and anxiety to bed. One thing I need to remember in these instances, and I encourage you to do so as well, is that worry is essentially pointless. I am a HUGE worrier, so this is something that I struggle with on a minute-to-minute basis.

    Worry is trying to control the uncontrollable. Fibromyalgia, chronic pain, and other conditions that afflict our loved ones are often, if not always, out of our control. As caregivers and helpers, we need to only tackle the things within our control that can be beneficial for our loved ones.

    What are some of the things that are in our control?

    • Listening
    • Assisting (by fetching ice packs, supplements, massagers, running errands, etc.)
    • Cooking (meals that are conducive to our loved one’s dietary needs, not ours; that means using ingredients that will NOT cause a flair)
    • Reassuring and supporting
    • Sacrificing (putting many things second to our loved one)

    We’re all human. I know that changing our way of thinking, our way of eating, our way of living life…for the benefit of someone else…is very difficult!

    No matter how hard it seems, after all, some days are just tough, we have to remember that we’re called to love one another, and the well-being of our most special loved one(s) should be a concern that rivals none other.

    https://teespring.com/stores/fibromyalgia-6
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Fatigue: A Constant Feeling Of Tiredness

    Fibromyalgia fatigue feels like a constant state of weariness that diminishes your energy and mental capacity. Fatigue is the second most prominent symptom of fibromyalgia and can be even more debilitating than the pain.

    The overwhelming tiredness makes our bodies feel heavy and weak. It contributes to brain fog increasing memory loss and forgetfulness.

    Studies have shown that the amount of fatigue a person with fibromyalgia experiences directly impacts the amount of pain they have. Fatigue also has an impact on your emotions and is linked to depression.

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    The fatigue associated with fibromyalgia is similar to that of chronic fatigue syndrome (renamed “systemic exertion intolerance disease”). In fact, many people who have fibromyalgia may also have CFS/SEID as well. The Arthritis Foundation estimates that 50 to 70 percent of people with fibromyalgia also fit the criteria of chronic fatigue syndrome.

    Why Are We So Exhausted?

    For people with fibromyalgia and/or CFS, the conditions themselves cause fatigue. Other factors such as stress, anxiety, depression, lifestyle, and medications can make the fatigue worse.

    Below are a few reasons you may feel exhausted:

    • Sleep Disorders – Lack of good quality sleep is a big part of the problem. Sleep problems are so common in fibromyalgia that symptoms such as waking un-refreshed, fatigue, tiredness, and insomnia are included in the diagnostic criteria for FMS.
    • Mitochondrial Dysfunction – Fatigue is a hallmark symptom of mitochondrial dysfunction. Mitochondrial inside our cells convert nutrients and oxygen to energy. With fibromyalgia, the mitochondria of many cells in the body have been shown to be impaired. This means we do not have enough energy to power our body.
    • Stress – One symptom of long-term stress is fatigue. Some experts believe chronic stress is a strong contributing factor for developing fibromyalgia. Many of us with fibro know that stress will trigger a symptom flare-up very quickly. Chronic stress is also a precursor to anxiety and depression.
    • Anxiety or Depression – Anxiety and depression can both cause fatigue and leave you feeling drained. People suffering from depression are 4 times more likely to suffer from fatigue. People who suffer from fatigue are 3 times more likely to become depressed. People with fibromyalgia are likely to suffer from anxiety and/or depression. It all becomes a vicious cycle that can be difficult to break.
    • Poor Nutrition – Experts say poor nutrition is a big culprit when it comes to fatigue in general. We know there are several nutritional deficiencies involved with fibromyalgia so eating healthy and getting the proper nutrients is extremely important.
    • Medications – Many prescription and nonprescription medications can cause weariness and fatigue. A few examples are anti-anxiety medications, antidepressants, high blood pressure medications and statin medications for high cholesterol. The more medications you take the more likely you are to feel fatigued.

    Studies published earlier this year, help explain why individuals dealing with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) and Fibromyalgia have a poor response to physical activity and poor energy production.

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    Ways To Fight Fibromyalgia Fatigue

    Fibromyalgia fatigue is not that easy to treat. On good days, the fatigue can be tolerable. However, on bad days ordinary activities seem virtually impossible.

    Here are some tips that can help deal with fatigue:

    • Use Your Energy Wisely – Take breaks and pace yourself. Even if you are having a good day don’t try to do too much, it will only cause a setback. So keep your schedule simple, know your limitations and rest when you need to.
    • Exercise – I know the thought of exercising can be overwhelming, but the lack of exercise can make your muscles stiff and more painful, which also contributes to feeling fatigued. Start slow and pick a time of day that works best for you.
    • Eat Well – Eating a nutritious diet is good for your overall well-being. Avoid sugary, fried and processed food which can leave you feeling bogged down. Cooking can make me feel exhausted. On days I have more energy, I either make meals ahead or at least do some of the prep work to make it easier.
    • Reduce Stress – Fibromyalgia can be stressful and stress can leave you more fatigued. If you can learn to manage your stress, you will have more energy. Deep breathing, meditation, yoga and listening to music are a few stress management techniques that help me.
    • Prioritize Sleep – Sleep disturbances are common with fibromyalgia. The lack of quality sleep can cause fatigue and worsen fibromyalgia symptoms. Some experts believe that disordered sleep is the most important symptom to treat when you have fibromyalgia. I know that when I sleep well I feel better. When I can’t sleep I feel worse all the way around.
    • Talk To Your Doctor – If your medications are making you even more tired, talk with your doctor. He or she may be able to prescribe an alternative, lower your dosage, or have you try taking your medicine at a different time of day.
    • Energy Boosting Supplements – Four supplements that help your body produce more energy are Coenzyme Q10 (CoQ10 ), D-Ribose , Magnesium and Vitamin B . It is important to keep in mind that supplements can negatively affect certain health conditions and interact with certain medications. Please do your research and check with your doctor or pharmacist to make sure they are safe for you to take.

    Conclusion

    Fibromyalgia fatigue can be crippling. It’s physically and emotionally exhausting. On bad days, you can barely drag yourself out of bed. You feel drained. The overwhelming tiredness will not go away. You can’t concentrate, remember things or stay focused. Believe me, I know how it feels. I can’t remember the last time I felt full of energy or haven’t felt exhausted at some point in the day.

    https://teespring.com/stores/fibromyalgia-6
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • How to Explain Fibromyalgia Pain to a Doctor

    Fibromyalgia ranks among the most puzzling and common chronic pain conditions. Fibromyalgia pain moves around from one area of the body to another or it seems to be everywhere at once. We experience several different types of pain. The intensity of the pain also changes. It can be very difficult to describe fibromyalgia pain to others. We often feel misunderstood and disbelieved.

    It is hard for people who do not have chronic pain to understand how it is for us to live with it. Even those closest to us can not fully understand. They cannot and do not know the painful life we experience.

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    It can be just as difficult to describe how your pain feels to your doctor. Many doctors use a 0-to-10 pain rating scale, which has its limitations. Each of us experiences our pain differently. One person 8 may be another person’s 4. I often feel that because I always have pain, I under-rate my pain on the pain scale.

    Describing Your Pain To Your Doctor

    We have to rely on our words to communicate our pain to our doctor. The better we can describe our pain, the easier it may be for our doctor to help. Your doctor needs to know not just how much the pain hurts, but how the pain hurts and how it impacts your life.

    Those of us with fibromyalgia suffer from different types of pain. Some words that can help you describe the way your pain feels include:

    • Dull, deep aching pain
    • Sharp, stabbing pain
    • Radiating or shooting pain
    • Stinging pain that feel like a sunburn or pins and needles
    • Strange sensations that feel like crawling, tingling, burning, itching or numbness
    • Shocking pain, it can feel like electricity zinging along the nerve and explodes in a certain area

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    Keeping a pain diary is a good way to track your pain over time and will help you be more specific at your doctor appointments. You can also use the American Pain foundations LOCATES memory aid. It is a good way to remember how to describe your pain. Each letter of LOCATES stands for the information you should tell your doctor:

    Location of the pain and whether it travels to other body parts.
    Other associated symptoms such as nausea, numbness, or weakness.
    Character of the pain, whether it’s throbbing, sharp, dull, or burning.
    Aggravating and alleviating factors. What makes the pain better or worse?
    Timing of the pain, how long it lasts, is it constant or intermittent?
    Environment where the pain occurs, for example, while working or at home.
    Severity of the pain. Use a 0-to-10 pain scale from no pain to worst ever.

    If you want your pain to be taken seriously, don’t ever rate your pain at a 10! Unless you actually look as if your pain is a 10, your doctor will think you are exaggerating.

    Dealing with fibromyalgia pain is a process. The more specific and detailed you can be when describing your pain, the more likely your doctor will be able to help you manage your pain.

    Chronic pain not only makes us feel helpless, sometimes it makes doctors feel helpless, too.

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    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Allodynia: Fibromyalgia Skin Pain

    Do you experience pain from a simple touch? Do you cringe when someone goes to give you a hug? Do these simple gestures result in excruciating pain? Skin pain is another one of those fibromyalgia symptoms that just doesn’t seem to make sense. This type of pain is called Allodynia and is usually felt as a burning sensation.

    Allodynia is believed to be a hypersensitivity to stimuli that would normally not cause pain. The pain can be provoked by a light touch to the skin, pressure from clothing, showering, combing, or brushing your hair. Even a light breeze blowing across your skin can feel like agony.

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    What Causes Allodynia?

    Allodynia is considered to be the result of a process called central sensitization. The pain comes from a malfunction of specialized nerves, called nociceptors. These nociceptors sense information about things like temperature and painful stimuli right at the skin. For some reason, our nociceptors become chronically activated and send persistent pain signals. Any sensation felt by the skin becomes painful.

    Allodynia is a fairly rare type of pain. It is only associated with a handful of conditions. These conditions include fibromyalgia, complex regional pain syndrome, neuropathy, postherpetic neuralgia (shingles), and migraine. Allodynia is also linked to the lack of restorative sleep.

    There are three sub-types:

    • Tactile Allodynia: pain caused from something touching your skin.
    • Mechanical Allodynia: pain caused by movement such as your clothing brushing against your skin or the breeze from a fan or the wind blowing across your skin.
    • Thermal Allodynia: pain caused from mild heat or cold temperatures.

    Allodynia often overlaps with hyperalgesia (abnormally heightened sensitivity to pain), which seems to be the case with fibromyalgia. So not only are we experiencing pain from stimuli that should not cause pain, the pain is amplified.

    Treating Allodynia

    The skin pain comes from a malfunction of specialized nerves. It is also related to a lack of restorative sleep. Standard treatments for fibromyalgia can also help ease allodynia. This includes eating healthy, exercising, reducing stress, and improving your sleep.

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    Medications that work for some people include:

    Some people also get relief from topical pain creams. You may have to be careful about the way you dress, as well. Loose-fitting clothing made from soft natural fibers is recommended.

    If your skin itches, burns, tingles or you have numbness, it could be a condition called Paresthesia. It’s also seen in Fibromyalgia and migraine patients. The sensations are usually felt in the hands, arms, legs, or feet, but can also occur in other parts of the body.

    Painful skin is a new symptom for me. It seems to be triggered by temperature. It doesn’t even have to be hot. When I feel a little warm, my skin starts stinging and burning, then anything touching or moving across my skin intensifies the pain. Being exposed to the sun makes it worse.

    My doctor increased my dosage of amitriptyline and said if that doesn’t help we would try gabapentin. It’s been three weeks since the dosage increase and so far it hasn’t helped. Since summer is almost over, I am wondering if the skin pain will lessen when the weather gets cooler.

    Or is that just wishful thinking?

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

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  • What Fibromyalgia Symptom Do You Resist The Most?

    What Fibromyalgia Symptom Do You Resist The Most?

    There are basically two ways to deal with Fibromyalgia: accept it or resist it. We start out fighting against it. We push ourselves. We resist. Eventually, we realize resistance is only creating more suffering for ourselves.

    We begin to accept things are different now. Our life has changed. Fibromyalgia is not going away. We have to look at our situation realistically. Our old life is being replaced by a new life full of limitations.

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    I was diagnosed with fibromyalgia over 10 years ago. At first, I could not accept that my life would have to change. I kept trying to do everything the same way I always have. Pushing and pushing myself to get things done. Working, taking care of my grandchildren, housework. I’m sure you can guess what happened -I crashed.

    I spent three years barely functioning. I was taking at least 9 medications for various fibromyalgia symptoms. I couldn’t think straight. I had no energy. I lived in a daze. Couldn’t even call it living. I was existing.

    Eventually, I had to accept that life had changed. I accepted fibromyalgia. I had to create a new life. One that was worth living. For the most part, I am happy with my new life. I never took time for myself before. I do now. I appreciate the little things more. I write which is something I have always wanted to do. My life is peaceful and quiet which is what I prefer.

    I was sure that I had fully accepted this chronic illness. I was sure that I had stopped resisting. But, I haven’t, not completely. I have been practicing mindfulness/meditation and am becoming more aware of my pain-related thoughts and my true feelings about pain. I am noticing how they increase muscle tension, anxiety, and pain. I realized there is one symptom in particular that causes me the most stress.

    Resistance creates suffering.
    Stress happens when your mind resists what is.
    The only problem in your life is your mind’s resistance to life, as it unfolds.

    – Dan Millman

    The fibromyalgia symptom that I still resist

    Fibro Fog. Instead of giving myself a break, I push myself. In doing so, I make myself feel worse. Stressed out and frustrated. Brain fog is the one symptom that scares the h*** out of me, especially memory loss. I don’t want to accept it.

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    Fibro fog is not something I experience, at least not at this level unless I am also fatigued. It’s been a long time since I have suffered this level of fatigue and brain fog. I have been doing so well, it’s just so frustrating to backslide. I have to keep telling myself this too shall pass. It’s just a bump in the road.

    I haven’t felt well since Oct. 5th. That was the day I lost my 14-year-old poodle, Nyka. If you read my post: Chronic Illness in Pets, you might remember she had congestive heart failure. I had been preparing myself for this day for at least a year. Her bad day’s way outnumbered the good, especially in September, and I knew it wouldn’t be much longer. I was focused on taking care of her and not myself so much.

    Within 2 days after Nyka passed, I was in so much pain, I was back to using my cane. But this time, instead of lying in bed, I stayed active. I had to or the grief was overwhelming. I felt lost. I didn’t realize how much time I spent taking care of Nyka. Giving her medications on time. Cooking for her. Hand-feeding her so she would eat. Taking her out frequently. Cleaning up messes, when she didn’t make it out in time.

    I got the pain back under control by using my foam roller and stretching 3-4 times a day instead of my usual once or twice a day. I also cleaned every room in my house from top to bottom. Little by little, each day.

    You would think the fatigue would have come from all the cleaning. But it came a few weeks later. Now, I can’t seem to shake it. Of course, it brought brain fog along for the ride. I know it is probably due to stress and grief. Another factor may be that I ran out of CoQ10. Since CoQ10 is a supplement that helps the mitochondria make energy, that may explain why I have none.

    Acceptance is not submission; it is an acknowledgment of the facts of a situation. Then decide what you’re going to do about it.

    – Kathleen Casey Theisen

    I started taking CoQ10 again a few days ago. And I am going to rest. I am not going to expect more out of my brain than it is capable of right now. No to-do list. And I am not going to feel guilty for saying “NO”.

    Well, there you have it. Brain fog is the fibromyalgia symptom I resist the most. What symptoms do you resist?

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

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    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • New criteria proposed for diagnosing fibromyalgia

    “The tender point test also has a gender bias because men may report widespread pain, but they generally aren’t as tender as women. Fibromyalgia may be under-diagnosed in both men and women because of the reliance on 11 tender points, and also due to failing to account for the other central features of the illness,” said Katz.

    Additionally, due to the confusion regarding the tender point test, the authors note that most primary care doctors don’t bother to check tender points or they aren’t checking them correctly. Consequently, fibromyalgia diagnosis in practice has often been a symptom-based diagnosis. The new criteria will standardize a symptom-based diagnosis so that all doctors are using the same process.

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    The tender point test is being replaced with a widespread pain index and a symptom severity scale. The widespread pain index score is determined by counting the number of areas on the body where the patient has felt pain in the last week. The checklist includes 19 specified areas.

    The symptom severity score is determined by rating on a scale of zero to three, three being the most pervasive, the severity of three common symptoms: fatigue, waking unrefreshed and cognitive symptoms. An additional three points can be added to account for the extent of additional symptoms such as numbness, dizziness, nausea, irritable bowel syndrome, or depression. The final score is between 0 and 12.

    This is indeed good news. The tender point test did seem rather minimal since it only takes into account pain and ignores the other predominant symptoms. Certainly, it could lead to earlier diagnosis in FMS patients, because, seriously, if it takes a decade to diagnose someone there are some issues with the methods. I recall when I finally got my diagnosis that they were too late… by then FMS had impaired a great deal of my ability to function in many aspects that I simply had to cope with on my own, often including stopping activities that became too draining or painful, when in fact early treatment would encourage a certain level of activity.

    Helping with the cognitive impairments and sleep issues early on sure would have been nice as well. What I most remember of my official diagnosis, which by then was rather moot, was that the tender point test was damn painful. Damn painful and lasted quite a bit after as well. It is like poking a bruise… yeah it hurts and hurts quite a bit if you put that much pressure on it. Of course, there was also some relief. That final moment where finally there is a name for what is wrong with you. And that hope that finally someone will help. Of course, they didn’t then. But the more medications and treatments they look into the better the future outlook for those of us that have this dang syndrome.

    https://teespring.com/stores/fibromyalgia-6
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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store