Category: Fibromyalgia Pain

A comprehensive look at Fibromyalgia pain, its symptoms, triggers, and effective strategies to manage and alleviate discomfort.

  • Fibromyalgia Fatigue Versus Pain. Which Is Worse And Tips For Coping With Each

    Fibromyalgia Fatigue Versus Pain. Which Is Worse And Tips For Coping With Each

    Fibromyalgia fatigue versus pain…….

    If I had been asked which I thought was worse before being diagnosed with fibromyalgia, I would have responded with pain.

    Is fibromyalgia pain really worse?

    Can fibro fatigue really be as debilitating as chronic pain?

    Let’s take a look!

    I was no stranger to pain prior to my fibromyalgia diagnosis. TMJ surgery, a c-section recovery that included an infected incision due to the wrong sutures being used, heavy and painful periods with occasional bursting ovarian cysts, a knee joint that had bone fragments stuck into it are a few examples. While each one was frustrating and painful, each pain had a cause and solution. Yet I clearly remember feeling like each situation would never end. If I had only known then, that someday I would be struck with pain that would never end……..

    The difference between the pain I experienced before my fibro diagnosis and after is that they were single pains. My jaw, abdomen, and knee. With fibromyalgia, the pain may be constant, but it isn’t always in the same area or at the same intensity.

    Fibromyalgia pain differs yearly, monthly, weekly, daily, and even hourly. There is absolutely no way anyone could ever understand unless they have fibro or a similar chronic illness.

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    Types of Pain

    Fibromyalgia produces many types of physical pain.
    Some are examples are:

    • Muscular
    • Joint
    • Nerve

    Fibromyalgia can make your skin feel like it is raw or on fire. Muscles may feel like they have been beaten or are bruised. Joints ache. Each of these pains may affect one or two specific areas or your entire body.

    Although levels may change, there is always some level of pain. Fibro pain becomes a way of life. Over time we forget what it was like to live without pain. It just becomes a way of life.

    Effect on Life

    The effects of chronic physical pain from fibromyalgia are often debilitating.
    Areas of our lives that fibro pain wrecks include but are not limited to:

    Fibro pain triggers depression and anxiety. It makes us angry and short-tempered. Disbelieving family, friends, and physicians create distrust in those we used to trust without question.

    “Before fibromyalgia, physical pain was something that indicated a problem and there was always an end to it. With fibro, physical pain never ends, it’s just life….”

    ~Cynthia Covert – The Disabled Diva

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    Fibromyalgia Pain Coping Tips

    While it is true that I always experience some type of muscle, nerve, and joint pain on a daily basis, I have been successfully lowered the levels since my diagnosis 18 years ago. The key to living with fibromyalgia is to find an effective pain relief plan.

    Keep in mind what works for one fibro patient may not help another! Some people do well following a pharmaceutical protocol. Others, like myself, feel better using a combination of natural and alternative pain relief approaches. And then there are those who have found comfort in a pain management plan that utilizes pharmaceutical, natural, and alternative treatments. No matter which route you choose, understand that there is NO one-size-fits-all pain management plan.

    Fibro Fatigue

    Not to be confused with tiredness, fibromyalgia fatigue is just as, if not more debilitating than pain. Not understanding the difference between being tired or fatigued is one reason I would have chosen pain as the worst. However, now after living with fibro for so long, I am leaning more towards fatigue being worse than the pain. This is not to diminish or make light of the pain that accompanies this wretched condition but to emphasize how horrific fatigue is. Tiredness can be fixed with a nap or good night’s sleep, fatigue cannot!

    Fatigue makes fools of us all. It robs us of our skills, our judgment, and blinds us to creative solutions.”

    ~ Harvey Mackay

    Effect of Fatigue

    One reason I consider fatigue to be worse than the pain is that depending on the pain there is often something I can do to lower the level or at least find some sort of comfort. But when overcome with fatigue, there is nothing, I repeat nothing that I can do except ride it out. I cannot snap out of it. There is NO pushing through.

    The effect fatigue has on our lives is devastating. It affects our cognitive abilities making it difficult and sometimes impossible to make decisions, focus, or communicate. It truly makes fools of us!

    Pain doesn’t always affect my brain, but fatigue does! Pain doesn’t stop me from writing and blogging. Fatigue has no mercy! There is no writing, no socializing in real life or online, no decision-making, just nothing.

    Fatigue Fighting Tips

    It is easy to fall into the fatigue trap of feeling like the flare will never end. After having so many good spells over the past few years, the flares that returned last year caused me to panic. It takes a lot of deep breathing, meditation, prayer to remain calm. CBD calms anxiety and reduces how much my fatigue feeds on it.

    Preparing for flare days will make getting through fatigue flares less stressful. I use Amazon’s Subscribe and Save to avoid forgetting items my family needs on a regular basis and Walmart Plus for grocery delivery.

    But it was accepting the flare at the moment and catering to my body’s needs that made them easier to deal with. Relaxing and allowing my body’s strength to return as it is ready is what shortens the duration. Doing too much too soon increases time down. There is no way to completely avoid fatigue flares. There is only making the best of it or dying trying to fight.

    My Fibromyalgia Fatigue Versus Pain Answer

    At this point in my fibro life, my answer is that fatigue is worse than the pain it creates. Mind you, it took a decade to change my mind. When my pain was widespread and uncontrolled, it consumed my body and mind. It was only after finding pain relief tools and products that significantly reduced my pains that I was able to recognize the severity and effects of fatigue.

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    Your answer may differ. In fact, mine could change again in a year or two. That’s the most frustrating part of living with fibromyalgia, no two days are alike. There is no getting used to the pain or learning how to work around one or two limitations. It is a never-ending battle of figuring out what areas are in need of help, searching for relief, and constantly addressing them.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • How to Prevent Fibromyalgia Flare Stank

    How to Prevent Fibromyalgia Flare Stank

    Anyone who has suffered from an extended flare or has been hit with back to back flares knows how bad fibromyalgia flare stank can be!

    Hygiene is rarely discussed in the fibromyalgia community. It’s personal and embarrassing. I mean seriously, how many people, besides myself, wake up and think that today is a good day to announce my stench on social media?

    Personal hygiene is a major issue for the chronically ill and is something that needs to be discussed without shame or humiliation.

    Fatigue and pain are the cause of fibromyalgia flare stank. It is not that we are lazy, but that we have little to no physical strength. Pain makes what movements we can make even harder. The result is going much longer than we should between showers/baths.

    I was recently hit with an unexpected back-to-back fibromyalgia weather flare. The first flare was expected. I began feeling the effects of the incoming extreme heatwave days before it hit. As usual, I began feeling better after it reached its peak. But then something unexpected occurred. A daytime high reduction of 35 degrees (115 on Sunday to 81 on Tuesday) in 48 hours was more than my body could tolerate.

    When I awoke Wednesday morning, my flare had subsided, but my stank was in overdrive! Because of the first flare, I had already pushed the boundaries of my shower schedule. And thanks to the second flare, my stench was so bad that I considered having my husband douse me in liquid soap and spraying me down with a garden hose!

    Although it has been quite some time since I have experienced a fibro flare of this magnitude, I set out to prepare for the next. Whether you experience severe and debilitating flares periodically or on a regular basis, my fibro hygiene shopping list will be of use.

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    Let’s see what I filled my cart up with!

    Fibromyalgia Flare Stank Fighting Products

    Until you have the strength or assistance necessary to take a bath/shower, these products in addition to your preferred deodorant will help.

    • No-Rinse Body Wash and Shampoo
    • Body Wipes
    • Personal Hygiene Wipes

    Keep your pillow, phone, eyeglasses, bed, and other items near you clean with a UV sanitizer wand. Lightweight and easy to use.

    Other products you may want to have on hand to help you get through your flare without totally ignoring your hygiene needs.

    • Body Mist
    • Disposable Mini Toothbrushes
    • Waterless Shampoo and Conditioning Shower Cap
    • Breath Gel

    Stank Fighting Bedside Setup

    Don’t get caught off guard! Have your products on hand and stored bedside or accessed easily. A tiered vanity for your nightstand would be ideal if you suffer from frequent flares. A travel toiletry bag filled with your fibromyalgia flare stank fighting products kept in an easy-to-reach storage cabinet can be used if your flares occur less often. You might even want to consider a hanging travel case to hang from your headboard or wall to make reaching the items easier.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia and Mobility Problems – How to Keep Moving

    Fibromyalgia and Mobility Problems – How to Keep Moving

    Discussing fibromyalgia and mobility problems is apparently taboo.

    Only one of my physicians have addressed the subject of mobility and it was only because I brought it up.

    Then there are the opinions of the general public, and unfortunately, some fellow fibro warriors, who make those who need to use a mobility aid out to be weak or say we have given up. However, as I have stated time and time again, there is nothing wrong with a fibromyalgia patient utilizing various types of mobility aids.

    The sad and funny thing about it is that nobody questions my use of mobility aids when I state it is for arthritis. But their eyes roll if I mention fibromyalgia. The worst part is that we are the only ones who suffer when we refuse assistance.

    But what about your thoughts or needs? We need to stop feeling that mobility issues are only important if they are permanent or acknowledged first by others. Acknowledging areas where we are struggling helps to identify what needs to be modified.

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    I was diagnosed with fibromyalgia in 2003. Since then, I have made many mistakes. And not just little ones! Refusing to accept my physical limitations has landed me in the hospital. It has stolen precious time that could have been spent with family.

    The good news is that I have also learned from those mistakes.

    Today I am going to load you up with information about how fibromyalgia affects mobility, empower you with tips for sharing your needs, and encourage you to let go of destructive misconceptions.

    Fibromyalgia is more than physical pain and fatigue. Muscle pain and weakness can make it difficult to walk and stand. Fatigue and nerve pain may affect balance.

    Fibromyalgia symptoms cause physical stress. Our bodies have to work harder to do what used to come easy.

    One mistake I made early on was pushing my body to do what I wanted instead of following its lead. My body completely freaked out and began mimicking stroke symptoms. After a week in the hospital, tests revealed nothing, and the incident was diagnosed as a severe flare.

    Another mistake I made was walking and standing longer than my body was able to just to give friends and family the impression that I was just like them. This caused my back and neck muscles to seize and freeze. Had I obeyed my body, I wouldn’t have had to spend six months on my back. Six months of should have been spent enjoying time with friends and family were spent on the couch with heavy-duty muscle relaxers and heat/ice, and massage therapy.

    Frozen muscles, dizziness, fatigue, and widespread pain limit mobility. If you are unable to walk as far as you used to, experience additional pain after walking or standing for an average amount of time, or fall often, it is safe to assume that fibromyalgia has affected your mobility.

    My fibromyalgia issues with balance have led to a broken tailbone, toe, and many bruised bones. Each injury increased my medical expenses and decreased my productivity.

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    If grocery shopping feels like a form of torture, fibromyalgia has affected your mobility.

    When and How to Discuss Your Fibromyalgia MobilityProblems

    Before we begin, I want to make it clear that you do NOT have to discuss our mobility issues with anyone. Your health, abilities, and disabilities are nobody’s business. With that said, you should always discuss them with your physician.

    Never hesitate to discuss new or continuing mobility issues with your doctors. Doing so helps them understand how your chronic illness is affecting your body. It may also bring to light other health issues that may have been overshadowed by your fibromyalgia diagnosis. When talking with your physician, be sure to emphasize the impact your mobility issues are having on your life.

    When it comes to friends and family, it is best to inform those you consider as part of your support team. This will help them know how to help you. To be honest, it is okay to share your frustration over what is happening with your body. Be real when discussing your mobility options.

    As for the rest of the world, it is none of their business. With that said, should you use a mobility aid, be prepared to be asked. Because society makes people feel that mobility aids are only for those with an injury or disability that affects the legs, it is easy to feel like we need to defend ourselves. But you do not need to.

    If you do choose to offer an explanation, keep your calm. Don’t tell people to f*c& off, talk in a relaxed manner. Give a simple explanation and move on.

    Ways to Keep Moving

    Wheelchairs are the first thing people often think of when they hear the term mobility aid. But that is only one mobility option.

    Options for balance issues include canes, walking sticks, and rollators. When my daughter was younger, her stroller served as my mobility aid. Pushing it helped with balance and the basket to put my bag’s intake pressure off of my shoulders and back. Dog strollers are another great tool.

    One of my favorite mobility aids is my rollator/transport chair combo. It allows me to walk, provides a place to rest my feet and back, and gives my entire body a break when in transport chair mode. While my family feels it is not as easy to push as my manual wheelchair, we agree that when my need to be pushed is limited, it is the best tool to use.

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    Power chairs are a wonderful option for those who have had their mobility compromised yet want to remain independent.

    The most important thing anyone with fibromyalgia can do to keep moving is to listen to their body. Pacing and not exceeding your body’s boundaries will allow you to do more regularly. Pushing hard and continually running yourself into the ground is guaranteed to decrease your productivity, plus time and ability to do the things you enjoy with the people you love.

    How to Know When Your Fibromyalgia Mobility Problems Require Use of a Mobility Aid

    Many people wait until they can’t do anything before they consider using a mobility aid. In the meantime, they miss out on so much living!

    Signs that it may be time for you to use a mobility aid include but are not limited to:

    • Falling often
    • Not enough energy to complete simple tasks
    • More time is being spent in bed
    • Going out less
    • Growing more dependent on others
    • Pain after simple physical activities
    • Missing out family events
    • Fear of pain that will occur if you leave the house

    Choosing a mobility aid can be overwhelming. Lucky for you, I wrote an article to help you find one that fits your needs, budget, and lifestyle.

    Improving life with chronic pain should never be a taboo subject! Talking about fibromyalgia mobility problems helps us prepare us for the future, no matter what it holds.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Love, Men, and Fibromyalgia

    Love, Men, and Fibromyalgia

    Love, Men, and Fibro

    ***WARNING*** This installment is for readers 18 and over because it contains adult topics. Thank you for your understanding.

    Though this article does not touch on fibromyalgia and love directly I think it is still a very important article to read because it discusses why we women sometimes are not open with our men when it comes to love .

    Something I cannot stress enough, and I’ve stressed it in my books and articles on this subject religiously, is that you have to have open communication with your partner. Likes and dislikes can change over the years– or in a fibromite’s case– it can happen daily so never be afraid to speak up.

    This OBGYN is spot on and she completely coincides with my views about men in relationships. Your man should be asking early and often in your Love relationship what you like. And yes, it’s even better if he asks you to show him. Men sometimes need– pardon the pun– hands-on experience to learn for next time.

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    Hey everyone!  This is not going to be a normal post because I wanted to drop in and post an apology to Y’all! Last week I was involved with a Giving Thanks Romance promotion and some authors were really nice to let you all know about it via social media outlets. MANY of you have been following me on those sites for about a decade (Well… it’s going to be near two in a bit– but who’s counting 😉 LOL!) so I really want to make sure you see this apology. To make a long story short– I was GROSSLY misinformed by the coordinator how many books were involved and once I found out just how misleading the promotion had become, I pulled out my book. I am very sorry that I did that but I live by integrity as you die-hard fans of my writing know and I’d never, EVER want to mislead any reader. I am very grateful for all of the support, emails, PMs, likes, and shares by all of you! Having said that,

    FF: Hi Ali! First off, welcome to Fibro and Fabulous! Please let the readers know a little bit about yourself and your company Norwex. AB: Hi everyone! My name is Alison Buonome but you can call me Ali. I live in Vernon, CT and I am a busy mom to 5-year-old twin boys. I have lots of messes to clean and love my Norwex products. I used to despise cleaning but Norwex makes it so easy and I don’t have to worry about my family being exposed to chemicals! Norwex’s mission statement is “Safe, Effective, Sustainable”. Yep, that’s it. Our commitment to a brighter future starts with our product mission. You shouldn’t have to sacrifice effectiveness or sustainability when you choose a safer product. So we won’t put the Norwex label on it unless it meets all three criteria. FF: What made you decide to get into the Norwex business? AB: As I said above, I am a mom to 5-year-old twins boys. My boys were born prematurely at 33 weeks. I would put my kids to bed, go straight to the bed.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • What You Need To Know About Fibromyalgia Leg Muscle Weakness

    What You Need To Know About Fibromyalgia Leg Muscle Weakness

    Long before my official fibromyalgia diagnosis, I began experiencing unexplained leg muscle weakness. It’s hard to explain to someone who hasn’t experienced it themselves for many reasons. Sometimes it is painful and for others, it is not. There are levels of weakness ranging from making walking or standing difficult to impossible. It is unpredictable, unstoppable, and debilitating.

    Having not heard of fibromyalgia until my diagnosis combined with it occurring randomly and infrequently, the idea that it was a symptom of any chronic illness never crossed my mind.

    I look back now and wonder how the heck I thought it was normal. Then again, considering how busy, chaotic, and stressful life was during the episodes I remember occurring during my teens and twenties, it makes perfect sense why I would have never connected it to anything other than burnout.

    I continued to struggle with how leg muscle weakness disrupted my life for a decade after receiving my fibromyalgia diagnosis. I was frustrated by not being able to prevent flare-ups and brokenhearted over the events I couldn’t attend because of them.

    Finally fed up with missing out, I began searching for ways to continue living my life even when one or more parts of my body refused to cooperate. Keep reading to discover what I learned.

    I am NOT a medical professional. Always consult with your doctor before making any changes to your health care plan.

    The cause of weakness and pain differs between fibromyalgia patients. However, with most fibro patients there are mitochondrial1 changes (a change in the microcirculation and/or a change in muscle metabolism), that cause pain, fatigue, and muscle weakness by sensitizing muscle nociceptors.

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    The areas most affected are where the muscles attach to bones. While the pain and weakness feel like arthritis, fibromyalgia doesn’t damage joints or muscles2.

    Related post – Is it Fibromyalgia or Something Else?

    What Does a Muscle Weakness Flare Feel Like?

    The pain and/or weakness may be widespread or felt in just one area. The severity of both can vary and are unpredictable. Your muscles may feel bruised, stiff, or lifeless.

    In my own experience with leg muscle weakness, a flare could feel like my legs are heavy like I am walking in water or have sandbags tied to them. Sometimes they feel wobbly and wiggly, sort of like Jell-O. But the most common flare I experience is where they just feel lifeless. Sort of like being paralyzed without actually experiencing paralysis. They lack the strength to stand or walk for more than a few steps. Sometimes this form of flare is accompanied by widespread muscle fatigue that affects my entire body.

    One thing that never varies is my inability to predict or feel a flare come on. They come out of the blue, without any warning, and are noticed upon waking up in the morning or after a heavy fatigue-driven nap.

    Ways to Cope With Fibromyalgia Leg Muscle Weakness

    I experienced more leg weakness flare-ups during the first decade after my diagnosis. I didn’t experience a decrease because I discovered a cure or used positive thinking to wish them away, because neither is possible. Instead, I got to know my body, began listening to it. and most importantly I learned to work with my fibromyalgia symptoms.

    Whether you experience pain or not, muscle weakness in your legs may disrupt your daily life. It did mine!

    Medications

    Your doctor may prescribe medications like an anti-depressant (to block pain receptors) or muscle relaxers to help reduce muscle tension. They may also prescribe one of three fibromyalgia-approved medications.

    I personally find relief each night before bed with a combination of cannabis and a magnesium-rich lotion. Running a few PEMF treatments at the base of my spine also helps reduce the pain I experience throughout my lower back and legs.

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    Rest

    Quite often my fibro leg muscle weakness flares include my entire body, When this type of flare occurs, my only option is to rest. Days like this are spent in bed, lying on the sofa, or in my recliner.

    These are the non-productive days that I have had to accept. I actually refer to them as my body’s recovery days. Because that is what feels like is happening. For what usually lasts for 24 hours, 48 at the most, my muscles feel like they are forcing me to rest to give them a chance to recover from the days, weeks, or months before.

    Pacing to Reduce Frequency of Fibromyalgia Leg Muscle Weakness

    One thing I truly believe led to the reduction of how often I experience extreme leg muscle weakness flares has been learning how to balance physical activity with my actual ability. By ability, I am referring to not pushing to or past the point of what keeps my pain level lower. This can be tricky and is something that I know I will never be able to do 100%. However, by staying within my body’s comfort bubble as much as possible, I can do more than when I was always pushing its limits.

    Riding a roller coaster of super high and low muscle tension and pain levels is exhausting. It is not a sustainable way of living. But by attempting to flatten the track, at most I experience small hills and bumps. The result is taking longer to reach the point of exhaustion and less pain on a daily basis.

    Exercise

    In between flares, I use a combination of muscle-strengthening exercises with resistance bands and aqua therapy. I miss walking in the pool and am impatiently waiting for my county to go up another tier on its phased reopening schedule so that my gym can reopen its indoor pool.

    With my knee caps moving all over the place, walking on land for exercise is no longer an option, but I can tape my knees and get a great workout in water. Something I am looking into purchasing is a therapy pool for my home. I would love to hear from someone who has purchased one.

    Massage

    Massage is helpful when done regularly and not too intensely. I personally find that deep tissue massages often trigger a fibromyalgia muscle weakness flare. Whereas a regularly scheduled light massage relieves the tension without needing a day or two to recover. Talk to your doctor about what they think is best for you, give it try, and see if you experience the same results.

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    Mobility Aids

    There are times when the lower half of my body feels weaker than the upper portion. When this occurs, I can usually use a mobility aid to help me keep up with any plans I have made. Which mobility aid I choose depends upon the level of weakness, whether I will have someone to assist me, and what a day out would demand my body to be capable of.

    My rollator/transport chair combo is perfect when little walking is involved. A wheelchair is necessary and chosen when sitting up is my only option. This option also requires that I have someone to push the wheelchair. My final option is a power chair which will allow me to get around independently. I should have mine in a few weeks and am beyond excited to know that I will soon be able to do more with less pain.

    Final Thoughts on Fibromyalgia Leg Muscle Weakness

    Fibromyalgia leg muscle weakness doesn’t have to ruin your plans every time it flares. With alternative plans or modifications in place, there are many things that we can still do despite leg muscle weakness.

    Learning how to live a life that doesn’t feel like a wild roller coaster may feel restricting at first. However, in time you will find that you will be capable of doing more than you were when you were going full speed ahead. Keep a journal of what you are able to accomplish and your pain levels. When you reach the point of your pain remaining at a low to moderate level, you should find the number of things you are able to accomplish growing.

    What are your current leg muscle weakness coping skills and how are they working for you?

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • I know 3 people who suffer from fibromyalgia, but it seems more like their problem is depression, is fibromyalgia is real?

    I know 3 people who suffer from fibromyalgia, but it seems more like their problem is depression, is fibromyalgia is real?

    You’re not entirely wrong, but you’re definitely NOT right either.

    It really drives me nuts the way doctors and the general population misunderstand fibromyalgia. Fibromyalgia literally means “muscle pain” in Latin. Of course, the muscle pain is real and it can hurt like hell, but it’s not a diagnosis. It’s like going to a doctor complaining that your head hurts, and having the doctor diagnose you with “a headache.”

    You’re no closer to knowing the cause of your pain than when you walked in. Just as a headache can be due to any number of conditions, (head injury, sinus infection, dehydration, too little sleep, a stroke, a brain tumor, etc…) fibromyalgia is caused by a whole host of other conditions. 

    Click here to Get this or Visit Fibromyalgia Store

    Doctors do a tremendous disservice to patients by throwing some Lyrica at them, telling them to exercise, and chalking it up to fibromyalgia. Fibromyalgia has become a catch-all for illnesses doctors don’t properly understand or are too lazy to test for. 

    It took me 10 years to find out my fibromyalgia was due to a connective tissue disease called Ehlers Danlos Syndrome. Meanwhile, my obsessive exercising to stop the pain of my fibromyalgia was just ripping my joints apart and forming scar tissue, because I actually had EDS and had no business running, jumping, and engaging in high-impact workouts.

    I take the heat on here every time I write about fibromyalgia, but I’m sick and tired of doctors dismissing people in real, chronic pain with a fancy-sounding term that gets them no closer to discovering the root of their pain. Not determining the real root of their pain can put patients at risk for further damage, pain, and even death.

    The causes of patients’ fibromyalgia are many and varied. What helps one patient may make another much worse. It’s dangerous to think every patient with fibromyalgia is the same.

    But most importantly, of course, pain causes depression. I’ve had some really dark, despondent times when the pain is at its worst. Stop judging your friends!! Stop speculating on their mental health!! Just be a friend. Be supportive. Listen. Be present. Your friends have been through the wringer. It’s a horrific thing to have your life stolen by pain.

    On a good day, my body aches as if I have the flu. That is my normal. That is how I have to go to work, take care of my family, keep my house in order and live life. On my worst days, I’m bedridden and unable to walk on my own.

    Before getting an Ehlers Danlos diagnosis, I had been dismissed by several doctors as a fake or a pill seeker. I didn’t tolerate that from my doctors and I certainly won’t tolerate that attitude from my friends. Please, don’t pretend to be a doctor or a psychologist. Just be a friend. Pain can be lonely and isolating.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • How do you deal with the pain of Fibromyalgia when you’re allergic to most of the Pain Medicines?

    How do you deal with the pain of Fibromyalgia when you’re allergic to most of the Pain Medicines?

    My 16 years of experience facing Fibromyalgia and 30 years of CFS

    Pain medications taken too often can lead to a pain cycle, where every time you take an analgesic, the pain will come back sooner and stronger. Once you are there, you have to stop all painkillers completely. I just had my cycle restarted by a week in the hospital where they gave me Tylenol every 6 hours. That’s a whole bottle of Tylenol in a week, and it was completely unnecessary. Now I am suffering the consequences.

    People with Fibromyalgia find relief with gentle exercise. If you have CFS with your Fibro, that’s a different story. But for “just” Fibro, go for low-impact activities. Swimming/aquafit is the best thing you can do for your body if you have any sort of joint, muscle, or soft tissue problems.

    Click here to Get this or Visit Fibromyalgia Store

    Fibromyalgia has a flare/remission pattern like many autoimmune diseases (although it is technically not one….yet), so when you are flared, do as little as possible. Don’t be afraid to ask people for help or even get community nurses to come to help you through the worst of it.

    Other things that help:

    • Remove all toxic people from your life – also from social media
    • Reduce stress as much as humanly possible (I stopped watching the news long ago – especially political)
    • Don’t push yourself. If your body says it’s done, respect that and go lie down
    • You have a certain amount of energy each day. Plan accordingly by spreading your errands and chores out.
    • Don’t be afraid to nap. Our bodies heal when we sleep.
    • Get a TENS machine for those stubborn muscles in your shoulders. Just make sure to keep it on low, no matter how good it feels at the time. If you crank it up, your body will ding you for it the next day
    • Try not to rely on sugar or caffeine too much. These cause spikes and crashes in your energy levels, which actually reduce the amount of energy you can spend in a day. It’s hard though.
    • Do your research. Read scientific medical studies, research medications. Use logic. Avoid any website that uses the terms “leaky gut” or “homeopathic“, or claims to be able to cure Fibromyalgia. It is not cureable. It can, however, be sent into remission, where your symptoms will be minimal. This is done through stress and energy management.

    Work with your doctor. There are many non-painkiller medications that can help, although most doctors wouldn’t think to use them for Fibro.

    When I had a bad flare a year and a half ago, I asked my doctor about something to turn my immune system down, so I wouldn’t be so reactive (I have an undiagnosed autoimmune/autoinflammatory condition as well, which has caused a lot of allergies on top of the Fibro / CFS).

    This question made her remember something from another patient. As a result, I got prescribed Doxepin, which suppresses the immune system and is also the strongest antihistamine known (bonus). I haven’t had a serious Fibro flare since I went on it. Everyone’s Fibro is different so this may or may not work for you. But it is always worth asking.

    Someone suggested CoEnzyme Q10 which has helped a lot with my pain. It doesn’t help everyone. Other supplements are similar.

    You need to find what works for you, but please do not take any supplements without speaking to your doctor first. They can screw you up as easily as they can help. Your doctor will probably want to monitor your bloodwork to make sure you don’t develop any imbalances due to supplements, and some of them may not be suitable for your particular form of Fibro.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • What happens if Fibromyalgia is left Untreated?

    What happens if Fibromyalgia is left Untreated?

    Although fibromyalgia symptoms are often written off as being sleepy, it’s really a much more serious disorder than it seems. With over 5 million Americans over the age of 18 diagnosed with Fibromyalgia, fibromyalgia requires more treatment than just taking a nap. Finding the right treatment depends on the individual, but the risks of not treating Fibromyalgia at all can be devastating and more dangerous.

    Worsening Symptoms

    A major risk of leaving fibromyalgia untreated is that symptoms such as chronic pain, fatigue, headaches, and depression can worsen over time. Anxiety and mood disorders can also worsen if you don’t treat fibromyalgia. The chances of all or any of these symptoms disappearing or improving on their own, with no treatment or medication, are very slim. In fact, these symptoms can also lead to permanent changes in your body.

    Click here to Get this or Visit Fibromyalgia Store

    Disruption of Pain Signaling

    It isn’t just the symptoms themselves that can worsen. If left untreated, the chronic pain associated with fibromyalgia can lead to permanent changes in the way your body perceives pain resulting in increased sensitivity to stimuli and abnormal pain sensitivity. To prevent further disruptions in the way your body’s pain-signaling system works, it’s crucial that you seek treatment for fibromyalgia immediately.

    Difficulty getting relief

    The longer you wait to treat your fibromyalgia, the harder it will be to get relief from the symptoms. Research has shown that those who treat pain associated with fibromyalgia earlier react the best to certain drugs and treatments. In fact, waiting too long to treat fibromyalgia can make it more difficult to heal or experience any relief from the pain, no matter which treatments or medications you try. Alone, it’s best to develop a plan for treating and managing the symptoms you are experiencing as soon as possible.

    Permanent Lifestyle Changes

    Because the symptoms of fibromyalgia can become debilitating and worsen over time, especially if left untreated, you risk permanent lifestyle changes. The pain, headaches, and depression likely won’t allow you to stay used or take part in day-to-day activities. These types of changes also affect your family members and relationships. When dealing with fibromyalgia, the worst thing you can do is ignore it and hope it goes away.

    Fibromyalgia is a difficult and complicated disorder to live with and is even harder to explain to friends and family, or those without fibromyalgia. It’s important that you remember you aren’t alone and are diligent in taking every step possible to treat the symptoms the best way you can. Waiting and leaving it untreated can only lead to negative results.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • How do I make my husband see, that his lack of belief and support in my Fibromyalgia Condition is damaging to our relationship?

    How do I make my husband see, that his lack of belief and support in my Fibromyalgia Condition is damaging to our relationship?

    There’s only one thing you can do: educate, educate, and educate. Show him websites about it, tell him about it, explain to him how it influences your life.

    There’s only one thing you can do if he refuses to listen: just leave him.

    I’ve got an invisible and untraceable illness too. Mine is called Ehlers Danlos and due to firstly the limited amount they know about it, secondly the fact that they decided to diagnose it on basis of 7 symptoms, and thirdly the absence of most of those symptoms in me, I don’t have the official diagnosis.

    Click here to Get this or Visit Fibromyalgia Store

    My wife had a lot of trouble accepting it too. And I’ve got to admit: it is hard to accept. I am a very vivacious and lively woman, I move with purpose, I talk with purpose, come across as very lively, loud talker, loud laugher, when the music is playing I sit here swinging on my chair. So suddenly when household stuff comes up I’m sick? Hm-hm.

    So yes, explaining explaining explaining

    • Explaining that one test said I only have 15 % of the normal amount of energy. And anything under 70 is problematic.
    • Explaining that I worked very hard to get out of borderline so I could live my life. And I did not do all that to waste the rest of my life laying on the couch as I am doing now.
    • Explaining that it’s no choice but a necessity.
    • Explaining that not having the diagnosis does not mean that I don’t have it, because of the two things I mentioned above.
    • Explaining that I am sick, regardless of whether the scientists are able to pinpoint WHY I am sick.

    And then she’d ostensibly be satisfied and the subject would be settled for a while and then it would come back up. The last time I told her that she’d have to accept it or I’d have to go. Because I can’t live with someone who can’t accept this. And we talked and talked until every little detail was clear to her. And now she accepts it. But it took over a year.

    Some relationships are worth that effort, some are not. You are the only one who can say if that’s worth it. Because you can’t get a guarantee that you can get him to understand it, or accept it even if he DOES understand it.

    Don’t hesitate to contact me if you want to rant or want to talk some more in detail, or if you think your husband would benefit from talking with someone else with a chronic invisible illness about this.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Why is Fibromyalgia so poorly understood by the Medical world?

    Why is Fibromyalgia so poorly understood by the Medical world?

    IMHO, I blame two things. Misogyny, and a lack of high-tech diagnostic tools.

    Misogyny: 95% of sufferers are women over “a certain age”! A lot of the medical cohort, particularly the senior ones were and still are male. Recent studies have shown that even today, a woman with chest pains, is more likely to be discharged than a man, and as a result, more are dying from heart attacks! Men don’t take women’s reports of pain as seriously as men.

    Lack of diagnostic tools:

    It was literally only a few years ago that actual neurological change in FM patients was proven using state-of-the-art MRI and similar tools. Until then there were literally no measurable symptoms, the only patient-reported ones.

    The two together led to a disastrous mix of lack of belief. Then some idiot insurers decided, on very scant evidence that more exercise was what was needed for a cure. This made many FM sufferers even worse and was followed up by more misogyny– “you’re not trying hard enough” Of course in the US, you have crappy health care, so this was pushed down every doctor’s throats at every opportunity, and had a worldwide impact, even on countries with great healthcare like the NHS here.

    However, the NHS finally listed it as a lifelong condition a few years ago, and more evidence is stacking up. Reduced blood flow, massively more capillaries, drugs that act on the affected pain sensors that are working incorrectly. Finally, it’s on the way to being understood.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store