Dear Fibromyalgia

Category: Fibromyalgia Medication

Explore the medications commonly used to treat Fibromyalgia, including pain relievers, antidepressants, and other options to manage symptoms effectively.

  • Fibromyalgia and Immune Health

    Fibromyalgia and Immune Health

    Is there a connection between fibromyalgia and immune health status?  

    Yes, especially when we are living with fibromyalgia and its primary co-conditions of CFS/ME and MCS. (Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and Multiple Chemical Sensitivity)

    These co-conditions can be affected by dysfunction in both the mitochondria and the immune system. Links to these related conditions are listed at the bottom of this article.    

    Update on protection against viruses

    Due to the recent spread of coronavirus, I am interrupting this article to impart a few words on some of the best ways to protect ourselves.

    I was at a meeting recently with other health care providers and we spent some time talking about the spread of the coronavirus. I shared on the Facebook page but will expand on both recommendations and things I have done over the years for immune health.

    As it turns out, my co-worker and I were exposed to the virus at a large conference of thousands of people from all over the world in February this year. On day 5 of the 6-day conference, I got sick.

    As I found out a few months back, I did acquire the covid 19 virus, had rather mild symptoms, and then tested positive for the antibodies. My co-worker, older than me, also got it and had milder symptoms.

    I did a couple of videos regarding my positive result, because if I could encourage anyone to not be afraid, then it is worth it. I have Fibro, CFS/ME, MCS, autoimmune conditions, and more.

    I am 52, with underlying conditions, and yet I had fairly mild symptoms. My symptoms included loss of smell and taste (3-4 weeks), different types of headache, nausea, and a slight cough (about a week) 

    Some of my symptoms lingered longer as I noticed an increase in inflammation. (yes, I could literally FEEL it) I have lived with Epstein Barr a long time, so I get it. 

    Here is the thing, I truly believe in everything we ascribe to for immune health in Fibromyalgia and CFS/ME and Epstein Barr. I am doing the very same things you often hear me talk about, and now I have seen some of those symptoms decreasing. 

    I feel it is very important to tell my experience, because I live with the very same thing you do, Fibromyalgia, and I have each of its primary co-conditions.

    No, this lifelong journey has not been an easy ride for me, but I am so passionate about this cause and helping you in any way possible.  Again, I believe in the things we ascribe to because they work to help increase our quality of life, no false cures here. 

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    Be Careful of the “push” on supplements

    Everyone is talking about immune health these days, and with all of this “talk” comes the push of supplements.

    You know that I am all about safety and effectiveness when it comes to supplementation. I am not very flexible in this area because I know and have seen the potential dangers. 

    First, a common immune supplement that is being pushed is glutathione. The problem is that glutathione is not right for everyone, especially if you have had metal fillings in your mouth for any amount of time, as it can move mercury around the body.

    If you don’t feel well after taking glutathione, it is best to stop taking it and consider our alternative which is 2:1 glutamine and glycine. 

    These two amino acids (get them pure in bulk form) can be taken together to create glutathione in a safe form without hurting you. I like to start with 2 grams of glutamine and 1 gram of glycine. (shown below here)

    We can all use more vitamin C, and that is generally safe, use a raw form or liposomal form. 

    Other immune supplements we have used safely for years are listed at the bottom of this article. 

    Protect yourself against the Covid-19

    1. Have a face mask just in case, but avoid overuse so you are not exposed to CO2.

    2. Avoid too much sanitizing. Be naturally clean, not chemically clean, or this will drive down immune status. 

    3. Utilize the safest supplements. 

    4. Strengthen the immune system first by avoiding the depletion of critical nutrients. Avoid sugars and excess carbohydrates which deplete the body’s natural stores of vitamins C. Avoid secondhand smoke and exposure to chemicals. 

    Supplements will not do much if a diet is loaded with unhealthy foods. Use a food source of vitamin C and also take additional zinc. I like Wellness Formula for short duration periods of time. 

    My favorite zinc is in zinc sulfate liquid form from IONIC ZINC or Pure Encapsulations brand for zinc. 

    ALWAYS TAKE ZINC AFTER A MEAL TO AVOID STOMACH UPSET OR NAUSEA. Start slow if you need to with 1/4 to half a dose. 

    5. Vitamin D is also important for immune health, but the form is critical, read more here about the only liquid D3 emulsion we have successfully used over many years. 

    6. A colloidal silver spray in the mouth might also be helpful (if you don’t have silver fillings). Sovereign Silver is a good brand. 

    More suggestions are at bottom of this article. 

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    Cytokines, Infection & Fibromyalgia

    Advancing research in the field of neuroimmunology has offered some of the most promising discoveries between fibromyalgia and immune health.

    Some researchers now believe that molecules are known as “pro-inflammatory cytokines” may have something to do with the myriad of symptoms experienced by fibromyalgia sufferers.

    These cytokines are released by white blood cells in response to infection in the body. These molecules stimulate interaction between various bodily systems, including the brain, the nervous system, and the immune system. When the infection is treated and there is no other stressor in the body, the production of those cytokines should subside. 

    How are fibromyalgia and pro-inflammatory cytokines connected?

    Research has shown that fibromyalgia patients may have fewer cytokines in their bodies than people not suffering from this condition. This means that the immune response to infection and stress throughout the body is less aggressive in people with fibromyalgia.

    Research into this theory is ongoing, but many professionals believe that this may help lead to better treatment not only for fibromyalgia but for patients with multiple sclerosis and other conditions as well.

    How Does the Gut Affect the Immune System? 

    Working as a colon therapist, and in the field of gut health for many years, I certainly have seen the connection between optimal gut health, fibromyalgia, and immune health. A diet with too many sugars and simple carbohydrates can increase the propensity to overgrowth of bacteria and fungal infections in the digestive system and affect organs involved in the endocrine and immune systems. 

    You might have heard about SIBO (small intestine bacterial overgrowth) and wonder if this could be a problem for you? Do you experience bloating and indigestion on a regular basis? Does it seem that many foods don’t agree with you?

    You see, a lot of important things take place in the small intestine. From properly breaking down food to absorption and assimilation of nutrients. It is important, as we describe in the anti-inflammatory diet article, to reduce mucous forming foods because they, in turn, create more mucous and this makes it even harder to absorb essential nutrients. 

    In a sense, it is about starving the very things that can live in a compromised gut. This includes bacteria, parasites, and fungal infections like candidiasis. In future articles, I will continue to expand on safer and effective ways of treating this unwanted bacterium without worsening symptoms in fibromyalgia itself. 

    Sugar, Fibromyalgia and Immune Health

    What is so bad about sugar?

    Well, many of us can have a sweet tooth from time to time, but when sugar is ingested (even natural sugars) on a regular basis, this can decrease our immune status.  Ingesting sugar can lower the immune system status for 3-6 hours. 

    If you eat sugar a few times every day, then it can be easy to see how your immune system might never be able to perform at its best!!  One of our nutrition articles, Nutrition Tips gives some suggestions for daily meals and ways to avoid sugar cravings during the day. 

    What about Cold and Flu Season?
    (and 12+ suggestions)

    Some people with fibromyalgia and its primary co-conditions are hesitant about being around other people when the sniffling and sneezing season starts, while others limit their social interactions because they feel susceptible to picking up every bug or virus that goes around. 

    Here are a few points I talk about with clients and have used myself for many years. I am 52 and have rarely gotten the flu. That brings us to point one.
     
    1. Decide whether the flu shot is right for you. I don’t get them, my husband at 65 doesn’t get them, and we use natural remedies to increase our immune health and avoid toxins in the flu shot like Ethylene Glycol, Formaldehyde, Aluminum, Mercury, and more toxins. Whatever you do regarding the flu shot, you can still increase your chances of creating greater immune status by utilizing the following suggestions as well. 

    2. Avoid too much hand sanitizer, and use natural options like Clean Well, which has no synthetic fragrance or alcohol. It has been proven that too much “sanitizing” actually works against the body’s natural defenses. Avoid toxic hand soaps in public bathrooms, carry your own, or use warm/hot water and a paper towel. Water is the universal solvent. 
    (Also, avoid methanol in hand sanitizers) 3. If you also have the primary co-condition of Multiple Chemical Sensitivity, you might find that being exposed to toxins, synthetic fragrances, and chemicals can make you more prone to lower immune status and increased risk of sinus pain, infections, etc. I often recommend wearing a face mask on airplanes, trains, and even places like veterinary clinics that can have high levels of chemicals in the air. 4. Greatly reduce sugars, dairy, and grains, as these can be mucous forming, and mucous is like a magnet for germs, bacteria, and viruses. (Dairy fats like clarified butter (ghee) would be an exception)5. For most of us in winter, our sun exposure is greatly reduced. A quality form of vitamin D is very helpful and Life Extension Vitamin D emulsion has been proven to increase vitamin D levels safely. Read more here in our Vitamin D and immune health article. 

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    6. Use colloidal silver (I like Sovereign Silver) in the mouth, take it under the tongue and throat area. This helps to protect against and kill bacteria, viruses, etc. Easy to take drops or spray.  

    7. Stimulate the lymphatic system as much as possible.

    8. Before going in public areas, you can lightly moisten a cotton ball with a small amount of 3% hydrogen peroxide and clean the outside area of your ears. This forms extra protection.

    9. Use a sauna on occasion if you find you are not sweating at all during the winter. I like to use an infra-red sauna (shown at bottom of Natural Rxs article) but anyway that you can sweat out toxins will help, just go very slowly with any sauna use. 

    10. A multi-nutrient formula like Wellness Formula can be helpful. It does contain echinacea and goldenseal, so it should only be taken for short periods of time. It is potent and effective. Increase your vitamin C through a safe vitamin C powder like HealthForce, or whatever form of C works for you. Olive Leaf and Oregano are great for germs and fungal issues and are also in the Wellness Formula. Elderberry cough drops or extracts are also helpful.11.Eat at home more often during cold and flu season. Employees of restaurants, coffee shops, etc often show up to work sick because they need the paycheck. They are handling your food, the lids on your coffee cups, and more. 

    12. We cannot always avoid a cold or flu altogether, if you do get sick, take that time to rest, but continue to implement any of these suggestions to help support your immune system and stay proactive.

    13. A neti pot is great to get mucous and toxins out of the sinus area, just be careful if you find it irritates your sinuses, only do as much as needed.

    14. Juicing garlic (with other vegetables, not alone) is one of my favorite ways to get “nature’s antibiotic” right into the bloodstream, you can find some of my juicing recipes here.

    NOTE: Never swallow whole raw garlic OR use more than 2-3 cloves at one time. Juicing garlic is much more tolerable than eating raw, even diced in foods or in soups. You won’t get the gas, in fact, this way helps to release the gas, not trap it in your intestines.

    Can a Healthy Immune Status Decrease Fibro Flares? 

    When the immune system is compromised, you can be more susceptible to a flare because when your symptoms increase, your immune status can more easily decrease.

    During a fibro flare, you might experience more immune reactions like swollen glands, sensitivity to weather, and more areas of muscle, tendon, and joint pain. 

    Remember that the health of our lymphatic system is directly related to the health of our immune system.

    Let the Sun Shine in

    Working in the clinic and as a practitioner for many years, I have often seen the correlation between chronic illness/autoimmune illness and low levels of vitamin D, which is obtained from the sun.

    Some people have an aversion or other medical condition which might prevent them from going to the sun. Yet, from cancer to autoimmune illness to joint health, there is nothing better than getting your 25 minutes or so a day of full-body sun, when possible that is.

    Research continues to prove this. We obtain vitamin D best from the sun, but we must be able to properly synthesize vitamin D. You can read more here in our Vitamin D article.  Think about these points as well: 1. stay hydrated with alkaline water. 2. avoid toxic sunscreens which promote everything from skin cancer to rashes, use a better option like zinc oxide, and keep it fragrance and chemical-free.

    3. Organic coconut oil has a slight natural sunscreen. 4. Eat an abundance of raw organic foods during the summer months to better support vitamin D absorption and skin health. 5. Consider the best additive-free Vitamin D emulsion we have ever used and I do highly recommend and use it, first picture in the vitamin D article is linked above here. 

    What about Supplementation:

    It is a good idea to nourish your immune system so that your body is empowered to fight off illness to the best of its ability. There are many supplements out there that claim to increase and balance immune status, but I want to give you a shortlist of our recommendations. These are what I like to call the “essentials for immune status:”

    1. Additive-free multivitamin

    2. Zinc Ionic liquid (10-30mg per day) taken ONLY after meals.

    3. Vitamin C (food grade powder)

    4. Vitamin D emulsion (additive-free, proven effective, easy to take drops)

    5. Colloidal Silver (liquid or spray) 

    6. Glutamine and Glycine

    Other additional options: (not quite as cost-effective) 
    1. Cordyceps powder
    2. Pro-Boost (a thymus extract I have used for about 15 years intermittently, but again at a higher price point)

    One of the best ways to keep your immune system strong is to exercise regularly to your ability, take quality supplements that enhance and balance the immune system, and stick to a nutrient-dense diet. You may also benefit from taking a multivitamin and mineral supplement, especially if you know that your diet is less than perfect. You might also want to ask your doctor to check for nutritional deficiencies if your immune system seems to let you down all too often. 

    Although there is no one best diet for fibromyalgia, there are many dietary principles that will help to increase your immune status and help you to absorb more nutrients while working to decrease inflammatory factors.

    Check out our favorite additive-free multivitamin on the supplement page linked above. 

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    Your Thymus, Fibromyalgia and Immune Health Immune Status 

    The thymus is one of our organs that can greatly impact fibromyalgia and immune status. Your thymus is located right in the middle of your upper chest. To stimulate our immune health, we can gently tap (with a closed fist) on this middle chest area. I generally do this for about 2 minutes at a time. If you feel comfortable, you can tap a little more aggressively. 

    Don’t forget that continual exposure to toxins and irritants can also lower your immune status. Be sure to keep a non-toxic home, only using natural cleaners. Avoid conventional soaps and detergents. Because we are in such close proximity to our clothes and bed linens, it is essential to wash only with fragrance-free natural detergents. See the Chemical Sensitivity link below.  See additional article links below and thank you for being here!! 
    In future articles, we will expand more on immune health protocols we continue to work on regarding Fibromyalgia and Immune Status.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • A Weighted Blanket for Easing Fibromyalgia Symptoms

    A Weighted Blanket for Easing Fibromyalgia Symptoms

    Could a weighted blanket become an effective addition to your fibromyalgia treatment plan? We all know the importance of comfort while sleeping, but with fibromyalgia, this becomes even more essential due to the tendency of poor regeneration. 

    When chronic fatigue leaves you irritable or the pain becomes too intense, you may want to give yourself permission to cuddle up with a blanket. These blankets are now used to treat a wide variety of medical conditions and could make living with fibromyalgia a little easier.

    What are Weighted Blankets?

    Each of these blankets is simply a blanket stuffed with material that adds weight. Some of the most common fillings include glass pellets and plastic pellets or beads, but many DIY weighted blankets are made with everything from corn and small rocks to sand. When making a blanket for children, it’s common to use extra layers of cloth or other soft fillers.

    These blankets should feel much like any other blanket in your home but with some added weight. You can find them in a variety of colors and patterns, and some are heavier than others. Lighter blankets are suitable for children, but adults often experiment with weights and materials until they find the perfect weight for their personal needs.

    How Do Weighted Blankets Work?

    Blankets with added weight stimulate the production of serotonin by touching pressure points along the body. Your body reacts to the blanket just as it would react to anything soothing to the body. Serotonin has a calming effect that encourages you to relax. This is why these blankets have long been used to soothe children with autism, sensory processing disorder, and many other physical and mental disorders.

    Many adults are now using these blankets for fibromyalgia because it helps ease pain and anxiety. Some fibromyalgia patients have layered their blankets to receiving the same benefits for many years. Now there is a more effective way to get that comfort.

    For some people, a little bit of extra weight can feel like a form of protection. This can also be a good thing for fibromyalgia when nerve pain or anxiety levels are high. 

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    When to Use Your Blanket

    These blankets are often recommended at bedtime or naptime because they are so soothing and can help improve the quality of your sleep. As a fibromyalgia sufferer, you may put your blanket to even more use. Perhaps it will become your go-to therapy when you feel achy or the pain leaves you begging for fast relief. Cuddling up under a blanket with added weight can relax your body and mind, which in turn may help manage your pain and ease any anxiety that you experience.

    You may even want to experiment with resting a weighted blanket over your lap while you work. It may turn out that a bit of weight on your legs helps calm your body so that you can work more productively.

    Selecting a Weighted Blanket

    Weighted blankets are easy to find today. You can order homemade versions on sites like Etsy or visit Amazon for a wide selection from leading manufacturers. Here are some features that you should consider:

    • Size – Make sure that the blanket was intended for adults rather than children. Look at the measurements to ensure that you will have enough room to cover up comfortably.
    • Color or Pattern – There are many blankets in neutral colors that will easily blend into any bedroom or living room.
    • Material – Some of these blankets have removeable covers while others are covered in soft materials. Shop around to find something that is attractive to you.
    • Filling & Weight – You might want to start off with a lighter weight and work your way up. Make sure that the blanket is washable because some DIY homemade blankets are weighted with sand and other materials that can’t safely go into the washing machine and dryer.

    Note: The blanket that I have used for a few years now is not actually called a “weighted blanket” it just so happens to do the trick. In fact, I always wondered how people could sleep without a blanket just because it was warm. Most of us will need sufficient covering when living with fibromyalgia. 

    While this type of blanket won’t cure fibromyalgia, it can make your life a bit easier on difficult days.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Acupuncture for Fibromyalgia Pain

    Acupuncture for Fibromyalgia Pain

    I say it often “When it comes to properly treat fibromyalgia and its primary co-conditions, we cannot think in terms of all or nothing” Even within certain tools, (in this case acupuncture) we know that there are many variables.

    This may be a tool that you can utilize on occasion like I did when other things were not helping my chronic lower back pain. 

    Also note that below I refer to acupressure, not just acupuncture. 

    Fibromyalgia isn’t the type of condition that allows you to focus exclusively on the long term. Once diagnosed, we suggest using coping tools (which will become your ongoing toolbox) and getting in the habit of using less invasive tools, which will help increase well-being while also reducing levels of pain and symptoms.

    The point is to avoid creating uncomfortable and even dangerous side effects.

    This is why it’s so important to find methods of short-term pain relief that work for your body. Your long-term plan may leave you vulnerable to physical pain that leads to emotional and mental problems, but you can fight back with alternative treatments like acupuncture. 

    Remember this is not about cover-ups here. We do not believe in just “covering” the pain and symptoms. We believe in getting to the root causes (often many) and taking the extra burden off the vulnerable fibro body wherever possible. Cover-ups actually prevent effective treatment and we want to avoid that.

    What is Acupuncture for Fibromyalgia Pain?

    Acupuncture is a unique treatment that involves the insertion of thin needles into specific points on the body. The practice was originated by practitioners of ancient Chinese medicine but has grown in popularity throughout the modern world.

    It was originally believed that energy flows through the body and must remain balanced and in harmony if a person is to enjoy great health. Inserting needles into specific regions of the body was believed to release negative energy, restoring balance.

    Modern research has proven that consistent acupuncture sessions can help with pain control, and many medical professionals are now recommending it to patients struggling to manage pain, nausea, and other symptoms through conventional means. While most people don’t know exactly why it works, there’s a growing population of believers who swear that it has worked for them.

    In most cases, the traditional methods of acupuncture are used, right down to the insertion of the needles in select areas of the body. Yet, the modern world is starting to suggest alternative methods that may work better for some patients.

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    For instance, electroacupuncture applies an electrical stimulus to the needles.  One high-quality review included nine trials, with 395 patients, and demonstrated that acupuncture, added to standard therapy, resulted in a 30% improvement in pain.

    70 Electric acupuncture was also associated with a 22% improvement in pain and an 11% improvement in fatigue.

    Acupressure is another option that mixes massage and acupuncture for fibromyalgia pain. Pressure is applied to each selected point with fingers rather than needles. The reason that I personally like acupressure over acupuncture for fibromyalgia is because we know that “light compression” on the body helps to increase blood flow and circulation.

    Now, imagine the combination of increased blood flow, circulation, and a “release” of stagnant energy and toxins. You see, this can be a really good combination for anyone living with chronic pain. 

    Let Empowerment Be Your Guide

    Now let me say one thing here. As much as we never like to say “no pain, no gain” , we have to understand that with any manipulation, there might be a period of discomfort. If your body has created a “normal” that is not so good for you, then creating a “new normal” will take some time, but it will be worth it long term.

    Knowing that you are in control is key. If you are in control of some initial discomfort of trying something new, it is easier to handle, and you won’t be running for the pain meds.

    We may actually create a sense of accomplishment, and that is really what our entire protocol is about. You know how it feels when you stumble across a tool that helps to reduce pain and symptoms on any level?

    It can feel amazing. We don’t take our health and well-being for granted, so when something works to help us feel a little more “normal”, well, it feels great!! It is one of the most empowering things we can experience. And then we build on that.

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    Acupuncture and Constipation

    Acupuncture is not just for the widespread pain of fibromyalgia. It is also good for some of the other symptoms that can be challenging.

    One of those is a sluggish bowel, or constipation. Working as a colon therapist for many years, I am very invested in clients utilizing the least invasive means to relieve their constipation.

    If we have exhausted all efforts with diet and movement, then I recommend either gentle massage therapy, acupuncture and/or acupressure. 

    Of course, you would want to be sure that there are not more serious bowel conditions that are causing the constipation, but in general, acupuncture would be a safe adjunct therapy. This can also be utilized for irritable bowel syndrome. 

    Acupuncture for Fibromyalgia

    While you may experience some reduction in pain after your first session of acupuncture, it typically takes repeat treatments to feel the full impact. I personally found acupuncture helpful for my lower back pain about 10 years ago.

    After a few treatments during a three-week period, I decided to then move on to therapeutic exercise to complement the acupuncture. As we often say, it is really about creating a multi-faceted treatment plan, which will also help it to be more cost-effective long term.

    Also know that if you have allodynia, which increases the sensitivity of the skin and the nerve endings, then you may need to proceed more slowly. Ask your practitioner if they have worked with patients who have fibromyalgia and allodynia. That is again where it greatly depends on the practitioner and their experience. It can still be done safely and effectively. 

     With the widespread pain and fatigue that occurs with fibromyalgia and chronic fatigue syndrome, it is important for the practitioner to focus on these two areas initially. It is essential to be very assertive with your practitioner. Point out your most painful areas. Relax through your sessions and avoid being pressured into multiple sessions right up front. The reason I say this is that any additional pressure on a fibro patient will only create stress. Ask yourself questions like “Am I comfortable with my practitioner?”; “Am I willing to use this as one PART of a treatment plan?”, knowing that there is no silver bullet.

    Your goal is to create a larger treatment plan that includes long and short-term pain remedies. You may feel hopeless when you think about the long term due to the lack of a cure, but acupuncture could make a significant difference in the short term. As you string together more pain-free days, you may start to see your long-term treatment plan with more optimism. Acupuncture may not be for everyone, but at least worth considering.

    Many blessings to you on this journey… YOU are a warrior of another kind.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • The ABC’s of treating inflammation in fibromyalgia and CFS/ME

    The ABC’s of treating inflammation in fibromyalgia and CFS/ME

    You might read in a book or article that fibromyalgia is not an inflammatory condition. The problem is that it’s not the whole truth. In fact, some of the primary symptoms in fibromyalgia tend to contribute to inflammation, some directly, some indirectly. 

    I often say that this is one of the most complex conditions of our modern time, and statements made about fibro are simply not so cut and dry. 

    First, we note that inflammation can occur for many reasons. Response to healing can trigger inflammation, auto immune conditions, allergies or foreign invaders, stress, and more. Let’s focus on the inflammatory factors AND the ABC’s of treating inflammation in fibromyalgia and CFS/ME. 

    Potential Causes of Inflammation in Fibromyalgia 

    Costochondritis 

    One symptom that we often talk about here at living smarter is costochondritis. Just by the “itis” you will know it is inflammatory, but you will also know this if you have experienced it personally, and I know it’s likely you have. 

    Costochondritis can cause radiating and stabbing pain around the rib cage and chest area, front and back. The cartilage and connective tissues can become inflamed. The pain and inability to breathe without pain often sends people to the emergency room the first time they experience it.

    I talk about this symptom often to give you a better idea of how to distinguish this and any other chest or heart related issues. As always, we don’t want to miss another condition all together. 

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    Trigger Points 

    Another symptom we focus on often here is triggers points. These are different than tender points in fibromyalgia, because they tend to radiate pain. They can also lead to inflammation. 
    When we map out individual trigger points on a fibro body, it can look like a war zone. We can have many trigger points all over depending on many factors, like how effective our treatment plan is. 

    With fibromyalgia, a few of the most vulnerable areas for trigger points are the head, upper back and neck, and the legs. 

    When pain and inflammation are not properly treated through the least invasive means, then trigger points can more easily occur over time. The link above will tell you more if needed.

    Neuro-inflammation in CFS/ME

    If you have the primary co-condition to fibromyalgia called CFS/ME like I do, then you likely know that inflammation around the brain stem is another symptom, and this is why symptoms in CFS/ME can more easily occur around the head and upper body. 

    CFS/ME (Chronic Fatigue Syndrome/Myalgic Encephalomyelitis) has been implicated in contributing to inflammation around the brain, causing everything from cognitive impairment to head pain, fatigue, and swollen glands. I cite more information here … Neuro-inflammation and CFS/ME.

    Our ABC’s for treating inflammation in fibromyalgia

    Astazanthin

    Here is the “A” in our ABC’s of treating inflammation naturally. A natural antioxidant, astaxanthin is powerful in the fight against inflammation that can occur in any part of the body and brain. This is a powerful remedy that we use in our protocol.

    Generally 4-8 mg. is enough, especially when combined with our other remedies. Let me put it this way, I don’t like to depend on just one thing, for many reasons, including tolerance and overall benefit. Life Extension brand which I use is shown below. 

    Boswelia

    The “B” stands for Boswelia. OR if you’re being silly, it’s “you’re not the boss of me!!” 
    If you have fibromyalgia, joint pain, inflammation, and have never tried a quality brand of Boswelia, it might be worth your time.

    Boswelia is often recommended for various types of arthritis.

    Click here to Get these Products or Visit Fibromyalgia Store

    Sunsoil Organic CBD oil 

    The “C” stands for CBD oil. We have many cannabinoid receptors all over our body. Even when you don’t feel it working, it is likely doing more than you think, from reducing inflammation to reducing and balancing blood sugar, and protecting organs like the heart and lungs. 

    I partnered with Sunsoil after many years of trying different brands. I like the price point, the organic label, the not too strong taste, and the rigorous testing.

    Anti-Inflammatory Diet and Fibromyalgia 

    I often address dietary principles, instead of “diets” I do believe that there is not ONE diet for fibromyalgia. That said, we will all do better to adapt a dietary plan that is best for us individually, considering factors such as root issues and food allergies. Treating inflammation with diet will be different for each person. 

    Here I detail some of these principles, but if you follow here, we also address these in live interactives as well.

    What about ginger for inflammation?

    Ok, I know it’s not part of the ABC’s, but I love using ginger. I drink it in tea, slice or shred it for recipes, and take ginger shots when I need a shot of spicy goodness. 

    I use ginger, but not turmeric. You may often hear me talk about why I don’t use turmeric extracts. You see, when we have mercury poisoning (only shown by hair analysis) well, turmeric can move mercury around the body and brain. 

    I know it is heavily promoted, and some of you will be fine taking it, but I would always advise getting a hair analysis if you are not sure. Even though I had my mercury fillings taken out 20 years ago, mercury can still settle in places like the brain and other organs. Taking turmeric supplements is not right for everyone. 

    Also if you have any previous history of gallbladder disease or gallstones (with OR without a gallbladder), then you need to know that turmeric extracts can move bile too fast in a sensitive person or with too potent of a dosage. 

    How I take the ABC’s for inflammation

    Let’s take today for example. So far, I have taken the A, the C, and the G. 

    I have taken about one dropper of the Sunsoil CBD oil, one capsule of Astaxanthin, and some ginger. I like the synergy of how these works together.

    Treating inflammation naturally should really be part of our weekly routine. The bottom line is that yes, there are a few inflammation factors in fibromyalgia and its primary co-conditions, and we cannot neglect that, especially as we are all aging and dealing with many variables in the physical. 

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Organic CBD oil and Fibromyalgia/ What’s the Truth?

    Organic CBD oil and Fibromyalgia/ What’s the Truth?

    You are probably a lot like me. You have tried many things for your fibromyalgia, right? Well, one thing I say over and again is that there is not one silver bullet. We have to be using the right approach while working on our individual root causes. 

    But you likely also hear me say that getting to the very bottom of some of those root causes may not happen in many of our lifetimes. So while we are working on those “roots“, we need to use the least invasive approach to pain relief. 

    If we have fibromyalgia, we likely have multiple inflammation factors, muscle or joint pain, multiple trigger points areas, tender points, nerve pain, propensity to migraine headaches, insomnia, overactive nerves, and more. 

    The pain relief that one person receives from a particular remedy can be very different from the next. I like to say there are many variables in fibromyalgia, because there truly are, but if a non-invasive remedy that also feeds our cannabinoid system can ease some of the pain and tension, then I think it is worth it. 

    Organic CBD oil and Fibromyalgia 

    Over the past five years or so I have tried as many different brands of CBD that I could get my hands on. If you follow in the Facebook live interactives, you have likely seen me talk about the various ones and how I was still searching.

    Some brands were great, but the price point was too high in comparison. Others had variances in how much they would actually help with pain and tension. 

    Just over a year ago, I came across the Sunsoil brand and there was something different here. I wanted an ORGANIC CBD oil, but at a price point that would satisfy all of us as well.

    I cannot tell you how important it was for me to wait ……… and wait some more …. to be sure that I could truly stand behind a CBD oil without just jumping on the bandwagon or a multi level, I just didn’t care for that. 

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    I kept coming back to Sunsoil CBD oils

    As you can see, for the sake of research, I tried MANY CBD oils. But, I kept coming back to Sunsoil, and I’m glad I did. I have partnered with Sunsoil to give you a chance to try an organic CBD oil at the most cost-effective price point.

    I love their variety of oil tinctures, capsules, and sprays for oral use. I have been using the spray and it is very easy to use, just a few sprays right under the tongue. NO harsh taste like some CBD oils (I know, I have MCS) In our house, my husband loves cinnamon flavored CBD, and I like chocolate mint flavor. 

    Side effects of CBD oil 

    The good thing is that there are rarely any negative side effects reported with the use of quality CBD oils. In a Medscape article dated 12/5/19, on the use of medical cannabis, treatment had a “significant favorable effect on patients with fibromyalgia, with few adverse side effects”  

    The goal is to experience positive side effects like less pain and tension. Remember that we are feeding our endocannabinoid system at the same time, so even when you may not “feel” something working, it is likely working on things you may not feel in the moment, like systemic inflammation. 

    Dosing CBD oil with fibromyalgia

    The dosage of CBD oil is going to be individual, however I will share what I do because I also live with CFS/ME. I generally take 20-30 mg per dose. I take this amount either one or two times per day. The second dose is before bed.  If you are someone who tends to get tired with CBD, then you want to take it in the second half of the day, but I think you will find with Sunsoil that it will relax you without making you fall asleep during the day.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Hydrogen Peroxide and Coconut Oil Pulling Method for Chronic Pain Awareness

    Hydrogen Peroxide and Coconut Oil Pulling Method for Chronic Pain Awareness

    Dr. Gingers Coconut Oil Toothpaste

    So, you might have heard that bacteria build up in the mouth is detrimental to the entire body, right? And you might wonder what exactly works to combat this harmful bacterium?  Because we work hard to avoid “endocrine disruptors” of various kinds, we also don’t want them in our mouthwash and/or anything that touches our face or mouth.

    Many of us with fibromyalgia have compromised immune systems and we cannot afford to be any further compromised by either bacteria OR by chemicals or alcohols used to mitigate the bacteria. Oil pulling is an easy and effective method of naturally destroying the bacteria in our entire mouth (between our teeth, around our gums, on our tongue and in the back of our throat area).

    Prevention of all disease is about removing as many of the potential causative factors as possible.  If you or anyone in your family suffers from heart disease, oil pulling is an effective and non-invasive remedy to controlling the harmful bacterium, known to be one perpetuating factor in this condition.

    Other oil pulling techniques usually advise that either coconut oil or other recommended oils be swished in the mouth for a period of about 20 minutes. My technique shortens this time, and can be done while getting ready for the day in the morning before breakfast, or at night while getting ready for bed.

    This way we can avoid boredom.  I started doing it this way because most people will not “swish” for the recommended 20 minutes and will quickly abandon this excellent method of oral hygiene.

    Fibro-Girl’s technique with hydrogen peroxide and organic coconut oil capsules

    I have a technique that I use for oil pulling that works well and makes it easier by using Swanson EFAs organic coconut oil capsules that can be stored easily in the bathroom rather than storing a jar of coconut oil and is also more cost effective. I also combine with a very small amount of 3% hydrogen peroxide that is appropriate for using as a mouth rinse and commonly found in any drug store.  

    Simply put one or two (I use two) capsules of organic coconut oil in the mouth, with a few drops of hydrogen peroxide. Chew on the soft capsules until they break open, continuing to chew and swish both of these in the mouth for at least 10-minutes. The outer capsule will dissolve into the liquid in your mouth after chewing. 

    The “chewing” helps to really get the oils in between the gums and teeth better than just swishing. The mixture will “foam” slightly in the mouth.  This procedure will also help to ‘draw out’ mucous from the back of the tongue and throat area.  After the ten minutes, simply spit out the foamy mixture and brush or rinse teeth as usual. (Note: Using plain coconut oil sans capsules is also fine)

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    Other Oral Suggestions

    Try this coconut oil toothpaste (same one shown at the top of this article) Dr. Gingers coconut oil toothpaste is great tasting and helps to SAFELY brighten your smile. 

    Try the oil pulling method I detail above by starting with just a few minutes and work up as you can. 

    Note: Never swallow the “swishing” mixture as it is loaded with bacteria. (Also remember that the above technique is a ‘swishing’ and not a ‘gargling‘, although it can bring mucous out of the throat area)

    • I should add that other oils are also useful for “pulling”.  A couple of them are sesame oil and neem oil.  However, I developed the more readily available “coconut oil capsules/peroxide” method to reduce the normally recommended time for “pulling” from 15-20 minutes to my recommended 10-minutes in hopes that you will be more consistent in applying it.
    • Those teeth whitening strips you may see on the market are often made of toxic ingredients that we do not want to be absorbed inside of our mouths and bodies. A safer alternative is to rub a few drops of 3% hydrogen peroxide and a small amount of baking soda into teeth, do not brush, just rub with finger or cloth into teeth for 1-2 minutes, then rinse.
    • Always change out your toothbrush after being sick. In fact, if you catch a cold or flu, change out your toothbrush every 2 days then once again after recovering to avoid transmitting germs back into mouth and body. Alternatively, you can soak the toothbrush in hydrogen peroxide.

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    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Tender Points

    Fibromyalgia Tender Points

    Neck Tender Points in Fibromyalgia

    Yes, fibromyalgia tender points are different than the trigger points detailed. It is important to know this in reference to the origin of pain. People with fibromyalgia often feel “tenderized” in these areas shown. You might describe it as a bruised feeling or tender to the touch. 

    The standard 11-18 fibromyalgia tender point evaluation is just one tool that is used to diagnose fibromyalgia. The tender points test is generally the first test utilized by treating doctors, although the criteria for diagnosing has changed and some may not always use this area of diagnosis. We believe it is important when used with the other diagnosing methods. 

    Unlike trigger points, tender points do not radiate pain to other surrounding areas when palpated. Tender areas feel sore and tender to the touch, oftentimes on a regular basis. A person does not need to have all 18 points and can even have less than 12 if other symptoms are also present.

    The adjacent graphic shows the 18 standard fibromyalgia tender points, both front, and back of the body. It is essential to note here that fibromyalgia is much more than 12, 16, or 18 tender points on the body.

    Fibro is a multi-system, complex illness that is still greatly misunderstood or denied by many conventional doctors. When using the 18-point evaluation test, a doctor will palpate these points or areas and then ask the patient to rate their pain level at each point.

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    Starting at the back of the head, neck, down to the scapula, lower back, buttocks, and down to the knees.

    It is important to understand that if you have chronic headaches, the points in the back of the head, neck and scapula area could very well be contributing to pain. Migraine headaches, sinus pain, TMJ pain, or chronic neck pain all of these can stem from these upper body points.

    With chronic lower back pain, the points around the buttocks can exacerbate and cause increased pain and mobility issues. These lower points are also very closely associated with SI joint pain.

    Just as we reference in the article on Fibromyalgia Leg Pain, these tender ‘points’ are more like tender ‘areas’ and can involve surrounding tendons and ligaments as well.

    If utilizing physical therapy or massage therapy, it is important to reveal both tender points and trigger points to your attending therapist.

    Soft tissue and inflammation

    One of the first things we need to do with tender areas of the body is to treat any underlying inflammation. Many people have inflammation factors of some kind. We want to look at everything that can contribute to inflammation from our diet (anti-inflammatory diet) to lifestyle to other aggravating factors like trigger points. 

    Fibromyalgia Tender Points: Avoid Perceived Barriers

    And although everyone’s pain threshold is different, it is essential to understand the difference between discomfort of pain that is healing to the fibro body VS. pain that is detrimental.

    It can take years for a person with fibromyalgia to discern this when it comes to activities or body work. Keep working at it. For instance, the tendons and ligaments in our body can only become stronger and more agile through training and daily strength applications.

    In other words, we have to put a healthy amount of stress on them just like in the case of our bones. Bone health is dependent on the pressure applied through safe and effective strength training. Inactivity and loss of agility will worsen pain in these tender areas and increase overall symptoms within fibromyalgia. “We cannot afford that”.

    As a practitioner and fitness trainer specializing in fibro, it is my job to help people distinguish between the two and to avoid what we therapists call ‘perceived barriers.

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    Never assume anything or this could lead to missing out on potential healing therapies. Learn to work WITH your fibro body or it will continue to dictate and have greater control.

    Taking control, using mastery techniques ..it can be done ..not as a cure but as conditioning for mind and body. This creates a stronger bodily foundation and overall resilience. It is important to note that this is not minding over matter …No, it IS the mind and body working together.

    Just like with TRP’s, it is important that we lessen our aggravating factors and implement more ongoing healing factors. 

    As I like to say …” Our independence depends on it”

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Trigger Points

    Fibromyalgia Trigger Points

    Yes, there is a difference between trigger points (TRPs) and fibromyalgia tender points. This is essential to know. Especially when it comes to aggravating factors commonly found with trigger points.

    It is important to distinguish between the two in order to obtain better understanding and working solutions. A trigger point is actually more than one “point” as it is part of a taut band, much like rubber that is not exactly pliable to touch.

    TRP’s can be active or latent. Many people with or without fibro have latent trigger points, actually we all have them. They can come out of “hiding” due to illness, accident or injury. Unlike tender areas of the fibro body, these trigger points can contribute to inflammation. 

    (Let me also clarify that we do not really refer to trigger points as ‘Fibromyalgia Trigger Points‘, they are just trigger points. However, for internet search reasons, we must use this title, as this is part of the myofascial pain that occurs very commonly with fibromyalgia)

    “How are fibromyalgia trigger points different than fibromyalgia tender points?”

    Trigger points are primarily due to myofascial constriction. This constriction causes the pain to radiate to other areas (muscles, tendons, joints) within close proximity. TRP’s do not act alone like the 12-18 tender points. They are “woven” into layers of muscle and fascia and radiate from the central part of each tender point and from the more vulnerable parts of the fibro body. 

    Although the tender points have an 18-point evaluation test, this is not so easy with fibromyalgia trigger points.

    Why? Because trigger points occur over MANY areas of the body and often times in layers.

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    These layers can take place within muscle groups, muscle fibers, tendons and/or near organs that may be compromised in some way.

    The other interesting thing is that if you see the standard 18-locations tender points test, it looks pretty cut and dry. However, if you have a fibromyalgia patient map out their radiating trigger points, it can often look like a war zone!!

    That is why you might often feel that you were beat up, run over and left with little energy; this kind of radiating and knotting pain takes up a lot of energy within the fibro body.

    Common Areas for Fibromyalgia Trigger Points  

    There are some very common fibromyalgia trigger points within the fibro body around the sternum. That is why people with fibromyalgia often complain of chest pain.

    The TRPs in the chest region travel and radiate and can cause heart attack-like pains. (Although, if you do have heart disease, it is important not to confuse the two and be regularly evaluated)Trigger Points can also be one contributor of pain around the rib area, also known as Costochondritis. This particular symptom is one that tends to wax and wane. However, it can be painful with stabbing and burning sensations around the ribs and lower chest area. When symptoms are waxing, try to find a comfortable position and be sure that under garments are not constricting the upper body. 

    Because we use our hands and arms often for many daily activities of living, we have to be careful about repetitive motion that we have control over. Carpal Tunnel Syndrome can occur with excess use of computers, cell phones, heavy lifting without proper upper body strength OR even when wearing bracelets and watches. Any of these can perpetuate nerve entrapment or activate trigger points. 

    Other common fibromyalgia trigger points occur around the back of the head, neck and skull area. These TRPs can radiate pain from the back to the front of the head, even causing sinus pain, TMJ and migraine headaches.

    One of the major perpetuating factors to TRP’s in the head area is our environment. We need to be diligent about toxins within our home, the people around us or any place that we regularly reside. Too often, people are surrounded by aggravating factors and may not know it. 

    The pain from an environmental exposure feels just the same as pain from a physical injury, so even though it might feel like the pain is stemming from a structural strain or injury, the pain could stem from a toxic exposure which then ‘attacks‘ the physical body.

    Two common areas for trigger points that can be interrelated are the pelvic area and down the legs. Abdominal or pelvic congestion can perpetuate pelvic pain and TRPs here. Abdominal surgery can also increase the propensity for trigger points in the pelvic or bladder area. 

    Bladder symptoms may include spasms or a need to urinate frequently. On the other hand, you might feel a fullness in the bladder/pelvic area and not be able to urinate freely and you may feel a retention within the bladder and lower abdomen.

    As I have talked about previously see (Fibromyalgia-Leg-Pain), the Sartorius muscle (longest muscle in the body) is located in the quadrant area of the upper leg and is often a place for radiating pain (especially during a menstrual period or with urinary tract involvement)

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    This picture illustrates the TRPs here in the Sartorius muscle and how they can affect radiating pain above (pelvic area) and below (knees and legs).

    Also, difficulty in ascending OR descending stairs can be attributed to the TRPs in the Sartorius muscle. (I actually have techniques for climbing stairs and you can experiment with safer stair climbing as well by adjusting your body angle when first approaching stairs) 

    It is important to note that hamstrings (back of legs) are greatly affected by TRPs in the legs and knees and that working these may be difficult for many people on their own. FI has videos where I show various tools for working fascia and trigger points. No worries, there is always more than one way. 

    Tight hamstrings can greatly exacerbate knee pain …and with fibromyalgia trigger points, we cannot afford that.

    Another trigger point that can aggravate the fibro body first thing in the morning is around the fascia on the bottoms of the feet. This area contracts when we are off our feet and resting for many hours.
    This can cause the “burning” pain that many people often refer to.

    Again, this is one area that responds well to “rolling”. Using a tennis ball or designated foot roller which can be obtained through sports therapy centers or online is very helpful and can also help to relax other parts of the body through the pressure points on the bottoms of the feet.

    In fact, these TRPs in the feet can prove to enlighten us and re-affirm the need for safe and effective fitness protocols due to the fact that contraction from prolonged rest periods does not serve us well. (Also visit the article in our site here on Myofascial Release by using the Sitemap on top left)

    One way in which I have come to specialize in working with fibromyalgia, is teaching HOW to work around these TRP’s while staying strong and agile. Safe and fibro-specific exercise is so essential when living with fibromyalgia and related conditions AND while aging at the same time.

    Some additional bodywork I have used and recommend as part of a treatment plan include Rolfing and Bowen. Rolfing is a type of massage technique for working (relaxing) the myofascial tissue. I have found both to be highly beneficial.

    Bowen therapy helps to relax and re-align the body, especially the more vulnerable areas of the body affected by fibromyalgia. Bowen is different from traditional massage and it is often advised to avoid other types of bodywork when engaging in Bowen therapy. Check in your area for a qualified Bowen therapist. 

    Keep in mind that no one can legally claim to be a “rolfer” unless they graduated from the single school that teaches it. The treatment generally consists of a fixed series of sessions; however, the person I worked with was very helpful in arranging the schedule to make it affordable as well as successful. We must each ‘evaluate’ our individual needs and continue to employ effective tools when it comes to trigger points, because this can be the most debilitating of symptoms when living with fibromyalgia.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • 6-Steps to Minimize Your Fibromyalgia Flare

    6-Steps to Minimize Your Fibromyalgia Flare

    Can we minimize fibromyalgia flares?

    If you have fibromyalgia, you likely know the triggers that precede a fibromyalgia flare. You try to avoid the triggers when possible and just get through them when you have to. However, it is never 100%. There can be variables internally and externally. 

    The most important thing to remember is that it is never “all or nothing” when working through a fibro flare. Some flares will be a shorter duration, and some can last longer depending on the exposures and factors involved.

    I often say it is almost like being “poisoned” and working to bring the fibro body back to “homeostasis” 

    Some of the more common triggers to a flare include:

    You might also find that accidents or injuries can lead to a flare. Maybe even a visit to the doctor. Anxiety, depression, or anything we ingest like a certain food, medication with side effects, or even some supplements. 

    Because fibromyalgia affects the ENTIRE body, so does a fibromyalgia flare as the adjacent graphic illustrates.  And because everyone’s tolerance and condition are different, it can be hard to predict how long a flare will last in each individual fibro body.

    Flare symptoms might include increased pain levels, brain fog, pressure in the head, cold extremities, joint pain, swelling, malaise, swollen glands, increased fatigue, and more. 

    If you have fibromyalgia, you know that flares will likely be a part of your life. The idea is to get to know our triggers and the many variables that can precede or prolong a flare. This doesn’t mean we can avoid them altogether.

    It does mean that we may be able to lessen the severity and the time length of the flare by consistently being proactive.

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    6-Step Mastery Over Pain Protocol For Your Fibromyalgia Flare

    Wouldn’t it be empowering to have more control?  Although we cannot “cure” them, we can work with them. It is possible with consistency and employing the following six steps in our Mastery Over Pain (MOP) protocol to control fibromyalgia flares: 

    1) Reduce the Toxic Load

    Working to eliminate toxins/chemicals in the home and anything used ON our bodies is the first step to reducing fibromyalgia flares. In doing this, we are strengthening our ‘core’ immune system by reducing the overall toxic load on our fibro bodies.

    I talk about this in the Environmental Illness article and throughout the website. My personal story with autoimmune illness at a young age tells why I am so passionate about this.

    I simply do not use store-bought body products and use only dye and scent-free laundry soap and other natural agents such as vinegar, peroxide, and baking soda.

    Also, without putting too many limits on our daily lives, we try to avoid outside environments that are toxic such as extended periods in shopping malls, clothing stores filled with formaldehyde, veterinary clinics, etc.

    Any place where a high level of chemicals is used and are off-gassing is generally not a safe place for a fibro body.

    2) Plan Ahead for Weather

    Weather is impossible to control. All of us fibro bodies like to say that we are like “human barometers”. We often react before and more intensely than other people. Joint pain, swelling, malaise, depression, etc. can all accompany weather changes.

    What about seasonal changes? I often talk about spring and fall bringing added challenges to the fibro body. You may feel extremely tired during the season changes and it is not uncommon to experience headaches and a tendency for extended flares. (For Spring allergies, I like to take quercetin, and additional vitamin C.

    Raw and local honey is also great for allergies. I’ve recently been talking about this on the FB page and how just a half teaspoon daily has been helpful for the intense pollen headaches I get every Spring. 

    The best idea here is to plan ahead when possible, accommodate more self-care time. I also find that movement-like range of motion exercises are a great way to be proactive and ‘vent’ the fibro body during a weather-related flare.

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    3) Stress is a big offender

    Stress is a big offender and understandably so. The adrenal glands are already having to deal with an overload through compromised immune and endocrine systems.

    This is where meditation, gentle flowing movements, deep breathing, and energy work come in. Adrenal Stress can really exacerbate symptoms in any chronic illness. 

    If you have ever had a reiki session or attended a qi-gong class, you have likely experienced this healing and proactive energy. We can learn to do the same at home by simply taking the time to listen and work with our bodies.

    Distractions are good at times, but too many distractions on a daily basis will not allow us to see what is and what is not working.

     Stress from living with a chronic condition can lead to Adrenaline Dominance. Please refer to our books page, the second book on the list there. I do highly recommend reading this book. 

    Sitting or stagnating through a flare is not only uncomfortable but will not lessen the time of the flare; moving the lymphatic fluid, oxygenating the body, and increasing blood flow (especially after a toxic exposure) is essential.

    Walking, swimming, using a rebounder (mini-trampoline), or even sitting and gently bouncing on a large exercise ball is also a great non-invasive way to move the blood and lymphatic system and help to create a sense of wellbeing. Get moving, get breathing, work to stay empowered even through a flare!!

    4) Sleep According to Your Body Clock

    Sleeping according to the body clock is one of the fundamentals in my protocol to control fibromyalgia flares.
    And I know what some of you will say “Sleep, what sleep?”

    We also have many tips and suggestions throughout the website for lifestyle and natural Rxs to aid in regulating sleeping patterns. Not an easy task for the fibro body.

    All of my suggestions pertain to ‘natural’ sleep Rx’s, however, because sleep is number one and if you are not getting it no matter what you do, talk with your doctor about a low dose sleep aid. The key is to only take the LOWEST EFFECTIVE DOSE and only while incorporating good sleep habits at the same time. 

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    For instance, if the doctor gives you 10 mg of sleep medicine, do not assume that is right for your body. Use a pill cutter, and experiment with the lowest dose possible. Using too high a dosage of any sleep medicine can have the opposite effect AND can become addictive.

    If other tools are being used consistently, the sleep aids should not be needed every night. And this will help us to better know which of the noninvasive tools are actually working for us !!

    Please also refer to the menopause link in the following step where I detail the importance of progesterone and sleep. I personally have not needed a sleep aid since taking a slow dissolve troche of progesterone before bed. Men can also take progesterone for this purpose. 

    5) Strive for Balance

    Hormones …well, they are pretty much like the weather, although we have a bit more control, we cannot control phases of life, hormonal tides, and fluctuations. We can however work to stay balanced through a “healthy” lifestyle.

    For women, if we are estrogen dominant for example, we can experiment with or talk with our doctor about natural Rx’s such as Shatavari, Vitex, Black Cohosh, and/or natural progesterone creams or troches.

    For men, the same need for balance also applies.  Reducing sugars and grains can also help to balance hormones as well as can including more whole and organic foods and vegetable juices

    6) Can food lead to a flare?

    Last but not least, we need to be aware of all food allergens, additives, and even mucous forming foods. Did you know that excess mucous in the body can contribute to pain? “Histamine Intolerance” can also pose an issue and contribute to symptoms.

    If you have an intolerance to alcohol, nitrates, certain fruits, sugar alcohols, fermented or cultured foods, then it may be necessary to implement elimination diet protocols. (I suggest eliminating one food at a time for a period of 6-8 weeks before going on the next suspect food.)

    When we ingest foods to which we are allergic or simply have an intolerance, they can create excess mucous. This mucous is the body’s way of protecting itself; however, just like with autoimmune illness, it eventually works against us. The body is doing whatever it can to protect us. Yet this excess mucous can prevent nutrient absorption and create MANY unpleasant symptoms and increased pain. Become aware of food intolerances, keep a food journal and work to allow food to become your BEST medicine yet.

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  • Fibromyalgia Medication Efficacy and Side Effects

    Fibromyalgia Medication Efficacy and Side Effects

    This article is an examination of the more commonly used fibromyalgia medications and a few results of recent studies on the effectiveness of the medications in fibromyalgia patients; ways to reduce the cost of your fibromyalgia medication; and appropriate warnings where warranted.

    Fibromyalgia is complex. Here at “Living with Fibromyalgia”, we understand that not everyone will walk the same path when it comes to their approach to treating fibromyalgia and all of its complexities. If you are taking prescription medication for your fibromyalgia, we want to be sure that you are approaching your fibromyalgia medication the “smarter” way. 

    If you have had major surgery in the hospital, you might think that morphine, or other opiates, are your “best friend”. But, did you know that when prescribed for fibromyalgia pain, it helps at first and then slowly turns on us until it actually causes more pain! Studies have shown this to be a fact. When it happens, you may not even know it’s the opiates that are exacerbating the fibro pain; you may even ask your doctor for a larger dose!

    The smarter approach is always going to be the least invasive with the least negative or toxic side effects. This means you may have to take more personal responsibility when working with your doctor. When you have prescribed any medication, you always need to be thinking “is this the lowest effective dose for my condition?” 

    Building a tolerance to any fibromyalgia medication without the use of other conjunctive therapies is counterproductive because we are not allowing the body to aid in the healing process. And, by healing process, we are not talking about a” cure” for fibro; no, we are talking about creating greater levels of wellness and well-being while reducing overall pain levels and fibro symptoms.

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    Some of us have been forced to be more creative, due to intolerance to medications and/or belief in holistic methods and modalities of healing. We often use the word “preventative” when referring to a lifestyle that supports less susceptibility to all diseases. Yet, preventative measures are simply living the lifestyle in which we were meant to live.

    Free of toxic medications, free of toxic air, soil, and water, and free of negative and toxic emotions. Well, to many that sounds like a perfect world that never existed anyway, at least not here on earth. But in striving to live as close to this “ideal” as possible, we are using the better and smarter approach to fibromyalgia and, as I like to say, “any other illness that may be lurking around the corner”.

    I have always been very intolerant of medications and had to find other ways to control my severe fibro and chronic migraine symptoms. I spent years working thru symptom after symptom. Also living with CFS/ME, I understand the complexity of these co-conditions and do not take them lightly.

    Over many years as both practitioner and patient, I had finally reached a point where I had built a “toolbox” containing various methods to control my symptoms. That is really what encompasses this website. This is a complex condition with complex co-conditions, I certainly get that. The point is to avoid putting an extra burden on the already vulnerable fibro body. 

    We would never recommend that anyone subject themselves to more pain than can be tolerated. The goal is to use as many non-invasive remedies as possible while trusting in the magnificence of the human mind and body. Yes, even while living with fibromyalgia and all of its complexity.

    What follows is a list of the more commonly used fibromyalgia medications and a few notes on recent studies on the effectiveness of the medications in fibromyalgia patients; ways to reduce the cost of your fibromyalgia medication; and appropriate warnings where warranted.

    Fibromyalgia Medications & Side-Effects

    TABLE 1.  FDA Approved Fibromyalgia Medication:

    The following fibromyalgia medications are expressly FDA approved for the treatment of fibromyalgia:

    BRAND      GENERIC          SYMPTOM
                                                AFFECTED

    Lyrica              pregabalin           pain, sleep,
                                                        & fatigue

    Cymbalta       duloxetine             pain, sleep,
                                                      & depression

    Savella           milnacipran         pain, fatigue, 
                                                      & depression 

    RARE BUT SERIOUS SIDE EFFECTS:

    BRAND      GENERIC      SIDE EFFECT

    Lyrica         pregabalin     Suicide,
                                               Heart
                                               Failure

    Cymbalta    duloxetine     Suicide,
                                                 Serotonin syndrome

    Savella        milnacipran    Suicide,
                                                 Serotonin syndrome,
                                                  Rapid heartbeat                                                        

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    COMMON SIDE EFFECTS:

    Constipation or diarrhea, dizziness, dry mouth, headache, stomach upset, drowsiness, sexual dysfunction, blurred vision, confusion, liver, and kidney function impairment.

    TABLE 2.    Off-Label Drugs (Approved by Drs. Prescription):

    By my count, there are over 30 drugs being prescribed “off-label” for fibromyalgia.  I’ve included several representative examples of the more interesting ones to illustrate the variety of fibro symptoms and co-conditions treated, including Restless Leg Syndrome (RLS), Irritable Bowel Syndrome (IBS), Fibro Fog, as well as the key symptoms of fibromyalgia (Pain, Sleep, & Fatigue).

    BRAND        GENERIC       SYMPTOMS
                                                AFFECTED

    Elavil         Amitriptyline     Pain,
                                                 Sleep,
                                                 Fatigue,
                                                 Depression

    Eaxil        Paroxetine-IR     Pain,
                                                 Sleep,
                                                 Depression

    Neurontin   Gabapentin     Neuro-
                                                pathic Pain
                                                 Sleep

    Wellbutrin     Buproprion   Fibro Fog,
                           HCL               Fatigue

    Klonopin     Clonazepam    RLS, Sleep,
                                                 Anxiety

    BRAND      GENERIC        SYMPTOMS
                                               AFFECTED

    Bentyl        Dicyclomine     IBS, Pain

    Prozac        Fluoxetine       Anxiety,
                                                Depression

    Provogil      Modafinil         Fibro Fog,
                                                  Severe daytime
                                                   fatigue

    Mirapex       Pramipexole    RLS

    Lunesta       Eszopiclone    Sleep

    RARE BUT SERIOUS SIDE EFFECTS:

    Check with your doctor if you decide to take fibromyalgia medication.  In particular, ask if the medication is an SSRI (Selective Serotonin Reuptake Inhibitor) if you are taking any serotonin enhancing supplements. SSRIs keep a high level of serotonin in the brain, and any additional sources could cause Serotonin Syndrome, a life-threatening condition.

    In the above list Amitriptyline, Paroxetine-IR, and Fluoxetine are SSRIs. Also, many of these drugs carry a warning regarding suicide especially for those 25-years old and younger and those with severe clinical depression.

    COMMON SIDE EFFECTS

    Constipation or diarrhea, dizziness, dry mouth, headache, stomach upset, drowsiness, sexual dysfunction, blurred vision, confusion, liver, and kidney function impairment.

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    Fibromyalgia Medication Treatment Results

    I wish I could tell you that there was a real help for your fibromyalgia symptoms from some of the drugs currently being used to treat fibro. The truth is that there is little real help with even pain which most of these drugs target.

    I have reviewed numerous clinical trials written up in scientific journals and the story is mostly the same one over and over.  I chose trials with at least hundreds of fibromyalgia patients where a large number were given the fibromyalgia medication being tested and an equally large number were given a placebo (a fake drug).

    I also looked at “Reviews” done by the Cochrane Library [1] where oftentimes they collected the results of many trials.  In these cases, the “reviewers” were careful to look for bias in the studies (a large number are funded by pharmaceutical companies) and apply a grade to the quality of the data. This is SOP (standard operating procedure) at the Cochrane Library and for this reason, they are known as the “gold standard” of published scientific studies.

    In plain language typical results were:

    • Only a small percentage of the real test drug group got moderate to substantial relief of pain; however, a slightly smaller number (about 10% less) of the “fake” drug group would achieve the same result, thereby giving an absolute creditable improvement of only about 10%.
    • The number of participants who dropped out due to side effects often approached the number who benefited. For example:  Among fibromyalgia patients taking either of two commonly prescribed, FDA approved drugs to reduce pain, 22 percent reported substantial improvement while 21 percent had to quit the regimen due to unpleasant side effects, according to a new Review in The Cochrane Library. This nets out to a “substantial improvement” of only 1% of the test group.

    As you can see, the placebo effect and side-effects take their toll on fibromyalgia medication efficacy.

    What Do the Study Doctors Recommend?

    One of the Cochrane Reviews [4] was a study of two medications. The two medications often prescribed to treat fibromyalgia are duloxetine and milnacipran. Both are listed in the FDA Approved Drugs in Table 1 above.

    The authors reviewed 10 high-quality studies comprising more than 6,000 adults who received either duloxetine, milnacipran, or a placebo for up to six months. Using a Quality of Life (QOL) scale for fibromyalgia, the studies reviewed reported QOL ratings lower than 15 on a scale of 0 to 100 even among patients on the medications. This is why I earlier said fibromyalgia medication offers little help for fibro patients.

    Now, rather than reporting directly the results of this study, I’m going to bring you an interview of the Review authors by the “Health Behavior News Service” so you can read for yourself the author’s own opinions of fibromyalgia medication and suggestions for conjunctive or even an alternative therapy.

    “This is a very important study,” says Fred Wolfe, M.D. of the National Data Bank for Rheumatic Diseases. “There’s an enormous amount of advertising suggesting that these drugs really help, whereas the research data show that the improvement is really minimal.”

    Treatment with drugs alone “should be discouraged,” the reviewers added. Instead, the review authors recommend a multi-faceted treatment approach including medications for those who find them helpful, exercises to improve mobility, and counseling to improve coping skills.

    “The medical field does poorly with the treatment of fibromyalgia in general,” says Brian Walitt, M.D., M.P.H., a co-author of the review and an expert in pain syndromes at Washington Hospital Center in Washington, D.C. “Chasing [a cure] with medicine doesn’t seem to work. The people who seem to me to do the best sort of figure it out on their own by thinking about things, getting to know themselves, and making changes in their lives to accommodate who they’ve become,” concludes Walitt.

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    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store