Category: Fibromyalgia Awareness

Raise awareness about Fibromyalgia by understanding its symptoms, impact, and the importance of support for those living with this chronic condition.

  • Fibromyalgia Diagnosis | Is Fibromyalgia Genetic? How do I know if I have fibromyalgia?

    People with fibromyalgia often ask, “Is fibromyalgia genetic?” It’s a hard question to answer, especially when little is known about how fibromyalgia works. But it’s something that could be relevant to getting the best possible treatment. So let’s look at the evidence.

    Is fibromyalgia genetic?

    If you have fibromyalgia, there’s a good chance that you know someone in your family who also has it. According to research, fibromyalgia does tend to run in families. And that implies that there is a genetic component to the disease.

    The fact that fibromyalgia might be genetic means that the genes that are responsible for so much about the way your body works are passing along fibromyalgia.

    But that also means that if someone in your family has fibromyalgia, then you are also likely to develop fibromyalgia.

    What does that mean for you?

    Because we know that fibromyalgia is genetic, we know that having a relative with fibromyalgia is a red flag when it comes to the possibility of being diagnosed with fibromyalgia. So if someone in your family has the disease, you should keep on guard for the signs that you are also developing it.

    Fibromyalgia can’t be cured, but it can be treated. And there’s no reason to spend years suffering without any treatment at all from mysterious aches and pains because you didn’t realize you had the disease.

    After all, many people with fibromyalgia can go years before finding out that the cause of their pain is in fact, fibromyalgia.

    So with your knowledge of the fact that fibromyalgia is genetic, you can have a better chance of catching it early.

    How do I know if I have fibromyalgia?

    There are a few warning signs of fibromyalgia that you should watch out for:

    If you have any of these symptoms, you should consult a doctor. Tell them if fibromyalgia runs in your family. This will alert them to the possibility that you have fibromyalgia and they should begin tests.

    Just remember that the best way to deal with fibromyalgia is to be proactive about managing your symptoms. And get a diagnosis as soon as possible.

    Fibromyalgia is a difficult disease to live with. It causes chronic fatigue and pain all over the body. And people who have fibromyalgia often find it hard to find a treatment that works for them. That’s why it’s important to get a diagnosis early so you can get effective treatment as soon as possible. There are a few early signs of fibromyalgia that you should look for to tell if you have fibromyalgia.

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    What Are The Early Signs Of Fibromyalgia?

    Fibromyalgia can be difficult to diagnose. And in the early stages, the first signs of fibromyalgia can be very different for different people. One of the best symptoms to look for early on is chronic fatigue. People with fibromyalgia often feel like they can’t seem to get a good rest no matter how much they sleep. And to make things worse, sleeping can be very difficult by itself.

    Just feeling tired all the time is probably worth a trip to your doctor, as chronic fatigue is a symptom of many different conditions.

    In addition, the most obvious symptom, and the one that doctors use to diagnose you is widespread pain. Fibromyalgia pain is located along 18 different points on the body. These are usually in the joints of the limbs and back. A doctor will test you to see if you have pain in 11 of these points, which is sufficient to prove that you have fibromyalgia.

    This pain is typically what causes fibromyalgia patients to visit a doctor, as it is difficult to manage.

    What Should You Do If You Think You Have Fibromyalgia?

    If you have these early signs of fibromyalgia, it’s important to see a doctor as soon as possible. If possible, it’s best to see a doctor who specializes in fibromyalgia. You can contact the National Fibromyalgia Research Association for a list of fibromyalgia specialists in your area. And a doctor who treats fibromyalgia regularly will be more aware of the early signs of fibromyalgia and better equipped to recommend an effective treatment.

    Be honest and thorough when describing your symptoms as it will help the doctor make the best diagnosis possible.

    What Are Some Treatments For Fibromyalgia?

    There are a number of drugs that doctors prescribe to treat fibromyalgia. Often these are anti-depressants, like Lyrica and Cymbalta, that increase the levels of serotonin in your brain. Serotonin helps calm the nerve pain associated with fibromyalgia.

    But there are also other drugs that are new when it comes to treating fibromyalgia but show promise. Drugs like naltrexone offer new hope to people with treatment-resistant fibromyalgia.

    And doctors are rapidly testing new drugs and making advancements in the study of what causes fibromyalgia. Meanwhile, many find that the standard treatments are at least partially effective.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Protocol | 10 Clothing Brands People With Chronic Pain Recommend

    During a pain flare, feeling anything touch your body can be excruciating. On those days, you’ll likely reach for soft, comfortable clothes that don’t add to your pain. Hello leggings, goodbye tailored pants.

    While you could just throw on an old T-shirt, wearing something that’s fashionable and comfortable can help boost your mood and make you feel more confident if you have to run out to the pharmacy or go to work. Luckily, there are many brands out there that offer a variety of comfortable and fashionable options.

    1. LuLaRoe

    LuLaRoe bills itself as “where fashion meets comfort,” and indeed, the company offers a selection of loose-fitting tops and T-shirts, stretch-knit dresses, A-line skirts, and leggings (their most popular item). Unlike many clothing collections designed for comfort, these pieces come in a variety of vibrant colors and patterns. A pair of leggings usually retails for $25.

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    “In the past few weeks, I’ve been buying more and more LuLaRoe clothing,” Samantha Carter told The Mighty. “The leggings provide the support that isn’t constricting when I’m dealing with an interstitial cystitis flare or muscle spasms relating to other pelvic issues, and the tops and dresses are loose and flowy, so they don’t irritate my skin when my nerves start going bonkers from my fibromyalgia and complex regional pain syndrome — even when everything else I wear feels like it’s constantly scratching a sunburn I don’t really have.”

    2. Hanes

    A bad pain day sometimes means all you can tolerate is the basics — T-shirt, underwear, and maybe leggings or sweatpants. Hanes offers wardrobe staples in soft and comfortable cotton and jersey. As an added bonus, many of their shirts are tagless. Most items cost between $3.99 and $20.

    3. Motherhood Maternity

    Not all women like the idea of wearing maternity clothes when they’re not pregnant (especially those struggling with infertility). But if you’re OK with it, maternity clothes can provide comfort to those dealing with chronic pain, weight fluctuations, skin sensitivity, and bloating. Motherhood Maternity offers tunic tops (retailing for around $30), maxi skirts ($35), and jeans with stretch waistbands ($50).

    “Motherhood Maternity Secret Fit Belly Jeans. I started wearing them during pregnancy and still love them because they don’t bother my back, actually the belly band puts slight pressure on my lower back which helps ease some pain,” Kristina Bentle told The Mighty. “Plus I love that they help with my hypersensitivity, they don’t dig into you like normal jeans. And I’m not running around in leggings 24/7.”

    4. Sketchers

    For the days when you’re able to put on a pair of shoes, you’ll likely want a brand that offers support but doesn’t constrain any part of your foot. “[Sketchers] is the only brand that doesn’t pinch my Achilles’ tendon or put shock into my kneecaps,” Jaime Robeson told The Mighty. Most pairs retail for around $50 to $70.

    5. And1

    And1 is a men’s athletic brand that offers basketball shoes, shorts, sweatpants, and hoodies. Just because it’s a men’s brand doesn’t mean women can’t wear it, too. “I can buy oversized sweatpants, hoodies, shirts. Really cozy and keep me warm when I’m super cold,” Nicole Tyrrell shared. Most items retail for around $10 to $20.

    Torrid features funky, trendy styles up to a size 30. Their leggings come in a variety of fun prints, including Disney and Harry Potter, and most of their tops and dresses feature a loose fit. Leggings cost about $25 to $30, dresses go for about $60, and tops are about $28 to $50.

    “Yes, I am bigger, but not all Torrid’s line is large. They are edgy which is nice for me, they have leggings like LuLaRoe in funky colors and schemes. Pair the two and I feel comfortable and punk again,” Rebecca Stormcrowe said.

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    7. Old Navy

    Old Navy combines classic items like T-shirts and jeans with natural fabrics and forgiving cuts. Most items come in a rainbow of colors and low prices (most pieces are less than $50, with some shirts as low as $6). “I shop a lot at Old Navy because so many of their clothes are cotton. Cotton and rayon are my go-to’s.” Amanda Coleman said.

    8. Victoria’s Secret PINK

    PINK is Victoria’s Secret’s apparel collection and offers sweatshirts, leggings, sweatpants, and shorts with stretchy waistbands, as well as oversized shirts and tanks in feminine prints and colors. Most items sell for between $30 and $60. “I wear a lot of PINK clothing as it can be very loose and soft,” Kerri Donchez told The Mighty.

    Chico’s blouses and dresses could easily be worn to work or out running errands on the days you’re able to leave home. Nancy Lea Martine Koontz gave The Mighty a tip and recommended shoppers go up a size since Chico’s sizing system is “weird.”

    “The clothing is comfy, and even ordering a size larger still fits well, and isn’t uncomfortable as far as bottoms and tops go. They are a little pricey, however, you can get an app, Poshmark, which is a wonderful site that sells many name brand clothing at a discount (it’s kind of like an online consignment store),” Koontz said.

    9. Yours

    Yours offers a huge selection of everything from wraps to tunic dresses to knitwear, all in sizes 16 to 36. The styles are ideal for those who prefer looser clothing over more structured pieces. Dresses range from $20 to $100, blouses from $30 to $40, and pants around $30.

    “Lots of roomy long T-shirts and batwing tops, jeggings. I don’t feel comfortable in clingy, tight-fitting clothes,” Libby Listens Bassnett told The Mighty.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Pain | Is Your Bra Causing You More Fibromyalgia Pain?

    Fibromyalgia Pain | Is Your Bra Causing You More Fibromyalgia Pain?

    Many fibro patients suffer from a condition called Costochondritis, apart from common symptoms of fibromyalgia. In this condition, wearing a bra becomes difficult and sometimes even becomes impossible because it causes pain in the rib cage and breasts. Wearing the right bra can reduce the pain significantly if you are suffering from Costochondritis.

    costochondritis

    What is Costochondritis?

    Inflammation of the cartilage that links the ribs to the breast bone is Costochondritis. It is very sudden and causes immense chest pain, much of fibromyalgia pain begins with this pain. Is the pain mildly irritating or it is extremely irritating, this all depends on the amount of inflammation, patients suffer from. Some patients describe what they go through as burning, stabbing, or aching pain. Some patients suffer from a complex chain of pain that they even relate to a heart attack.

    Symptoms of Costochondritis

    • Pain in the ribcage and chest which worsens with exercise or any activity.
    • Pain when inhaling deeply, sneezing and coughing due to stretching of the inflamed cartilage.
    • Pain radiates from the chest to the arms and shoulders and in this manner, mimics a heart attack.
    • Pain is often accompanied by inflammation or redness, a condition known as Teitze’s Syndrome.

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    Finding the right bra  for fibromyalgia and costochondritis

    In this condition, it is a painful task to put on tight clothing which compresses the ribs and needless to say an underwear bra. To reduce the pain wearing a comfortable bra is necessary to get rid of breast and ribcage inflammation but many women do not do this. However, when needed, it is best to wear something not too tight, in a comfortable fabric, and easy to wear and remove. Here are some tips for the selection of the right bra:

    Bra fabric types:

    When buying a bra, look for:

    Something made with breathable, soft, smooth, and comfortable fabric like cotton, silk, or satin.

    Seamless bra types are ideal as they prevent edgings from pressing against the skin.

    Prevent that type of fiber that brushes against the skin and causes pain by avoiding anything textured like lace, tulle, or fabric with embroidery.

    Best bra styles for every size

    • Soft cup bras: these bras offer good support for women of all sizes. Choose something with wilder shoulder straps as they won’t dig into the skin like the thinner ones do. A front closure design would also reduce the pain of putting on and removing the bra.
    • Sports bras: these bras can be very easy and comfortable as they give support to women of all sizes. Opt for something softer and with a wider stretch to prevent squeezing your ribcage and causing pain.
    • Bralettes: for smaller-sized women, a bralette might work in a good way. They are usually made with soft cups and are mildly comfortable.
    • Bandeaus: it is another good option for small and medium-sized women because bandeaus will sure that no wires or edges would press against the skin.
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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Chronic Pain | Trying the Feldenkrais Method for Chronic Pain

    After two hourlong sessions focused first on body awareness and then on movement retraining at the Feldenkrais Institute of New York, I understood what it meant to experience an incredible lightness of being. Having, temporarily at least, released the muscle tension that aggravates my back and hip pain, I felt like I was walking on air.

    I had long refrained from writing about this method of countering pain because I thought it was some sort of New Age gobbledygook with no scientific basis. Boy, was I wrong!

    The Feldenkrais method is one of several increasingly popular movement techniques, similar to the Alexander technique, that attempt to better integrate the connections between mind and body. By becoming aware of how one’s body interacts with its surroundings and learning how to behave in less stressful ways, it becomes possible to relinquish habitual movement patterns that cause or contribute to chronic pain.

    The method was developed by Moshe Feldenkrais, an Israeli physicist, mechanical engineer, and expert in martial arts after a knee injury threatened to leave him unable to walk. Relying on his expert knowledge of gravity and the mechanics of motion, he developed exercises to help teach the body easier, more efficient ways to move.

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    I went to the institute at the urging of Cathryn Jakobson Ramin, author of the recently published book “Crooked” which details the nature and results of virtually every current approach to treating back pain, a problem that has plagued me on and off (now mostly on) for decades. Having benefited from Feldenkrais lessons herself, Ms. Ramin had good reason to believe they would help me.

    In her book, she recounts the experience of Courtney King, who first experienced crippling back spasms in her late 20s. Ms. King was taking several dance classes a week and practicing yoga, and she thought the stress of these activities might be causing the pain in her tight, inflexible back. But after a number of Feldenkrais sessions, she told Ms. Ramin, “I realized that the pain had more to do with the way I carried myself every day.”

    Even after just one session, I understood what she meant. When I make a point of walking upright and fluid, sitting straight, even cooking relaxed and unhurried, I have no pain. The slow, gentle, repetitive movements I practiced in a Feldenkrais group class helped foster an awareness of how I use my body in relation to my environment, and awareness is the first step to changing one’s behavior.

    One common problem of which I’m often guilty is using small muscles to accomplish tasks meant for large, heavy-duty ones, resulting in undue fatigue and pain.

    The group class, called Awareness Through Movement, was followed by an individual session called Functional Integration with a therapist that helped to free tight muscles and joints that were limiting my motion and increasing my discomfort. Using gentle manipulation and passive movements, the therapist individualized his approach to my particular needs.

    The ultimate goal of both sessions is, in effect, to retrain the brain – to establish new neural pathways that result in easy, simple movements that are physiologically effective and comfortable. Although the Feldenkrais method was developed in the mid-20th century, neurophysiologists have since demonstrated the plasticity of the brain, its ability to form new cells, reorganize itself, and, in effect, learn new ways to do things.

    The beauty of Feldenkrais lessons is that they are both relatively low-cost (group classes average $15 to $25, individual sessions $100 to $200) and potentially accessible to nearly everyone. There are more than 7,000 teachers and practitioners working in 18 countries, including large numbers in the United States. You can be any age, strength, fitness level, and state of well-being to participate. The exercises are slow, gentle, and adjustable to whatever might ail you. Their calming effect counters the stress that results in contracted muscles, tightness, and pain.

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    Many Feldenkrais practitioners, like Marek Wyszynski, director of the New York center, start professional life as physical therapists, although many other practitioners begin with no medical background. They then undergo three and a half years of training to become certified in the Feldenkrais Method.

    Mr. Wyszynski explained that he starts by observing how patients are using their skeletons – how they sit, stand, and walk-in ways that may cause or contribute to their pathology, be it spinal disc disease, arthritis, shoulder pain, or damaged knee joints. In accordance with Dr. Feldenkrais’s astute observation, “If you don’t know what you are doing, you can’t do what you want,” patients are then given a clear sensory experience of how their posture and behavior contribute to their pain and physical limitations.

    For example, some people may use excessive force, clench their teeth, hold their breath, or rush, causing undue muscle tension and skeletal stress. Years ago, I realized that my frequent headaches resulted from an unconscious habit of clenching my jaw when I concentrated intently on a task like sewing or cooking. Feldenkrais teachers do not give formulas for a proper way of behaving; rather, they rely on their patients’ ability to self-discover and self-correct.

    Once aware of their counterproductive habits, students are given the opportunity to experience alternative movements, postures, and behaviors and, through practice, create new habits that are less likely to cause pain.

    Mr. Wyszynski told me that there are more than 1,000 distinct Feldenkrais lessons currently available, most of which involve everyday actions like reaching, getting up from a chair, turning, bending, and walking.

    As a mechanical engineer and physicist, Dr. Feldenkrais understood that the job of the human skeleton was to accommodate the effects of gravity in order to remain upright. And he wanted people to achieve this in the most efficient way possible.

    Using two tall foam cylinders, one perched on top of the other, Mr. Wyszynski demonstrated a guiding principle of the Feldenkrais Method. When the top cylinder was centered on the bottom one, it stood in place without assistance. But when it was off-center, perched near the edge of the bottom cylinder, it tipped over. If instead of cylinders these were someone’s skeletal parts that were askew, tightened muscles would have to keep the patient from falling over.

    As Mr. Wyszynski explained, “Good posture allows the skeleton to hold up and support the body without expending unnecessary energy despite the pull of gravity. However, with poor posture, the muscles are doing part of the job of the bones, and with poor skeletal support, the muscles have to remain contracted to prevent the body from falling.”

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Flares | Fibromyalgia Linked to Overactive Brain Networks

    Many fibromyalgia sufferers have been told that the pain is “all in their head.” New research indicates there may be some truth to that, and that overactive brain networks could play a role in the hypersensitivity of fibromyalgia patients.

    Fibromyalgia is a poorly understood disorder characterized by deep tissue pain, fatigue, headaches, mood swings, and insomnia. There is no known cause and successful treatments have been elusive.

    In a lengthy study published in the journal Scientific Reports, an international team of researchers at the University of Michigan and in South Korea report that patients with fibromyalgia have brain networks primed for rapid responses to minor changes. This abnormal hypersensitivity is known as called explosive synchronization (ES).

    “For the first time, this research shows that the hypersensitivity experienced by chronic pain patients may result from hypersensitive brain networks,” says co-senior author Richard Harris, Ph.D., an associate professor of anesthesiology at Michigan Medicine’s Chronic Pain and Fatigue Research Center.

    In ES, a small stimulus can lead to a dramatic synchronized reaction throughout the network, as can happen when a power outage triggers a major grid failure or blackout. Until recently, this phenomenon was studied in physics rather than medicine. Researchers say it’s a promising avenue to explore in the quest to determine how a person develops fibromyalgia.

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    “As opposed to the normal process of gradually linking up different centers in the brain after a stimulus, chronic pain patients have conditions that predispose them to link up in an abrupt, explosive manner,” says first author UnCheol Lee, PhD., a physicist and assistant professor of anesthesiology at Michigan Medicine.

    The researchers tested their theory by conducting electroencephalogram (EEG) tests on the brains of 10 female patients with fibromyalgia. Baseline EEG results showed the patients had hypersensitive brain networks, and that there was a strong correlation between the degree of ES conditions and the self-reported intensity of their pain during EEG testing.

    Lee’s research team and collaborators in South Korea then used computer models of brain activity to compare the stimulus responses of the fibromyalgia patients to those of healthy ones. As expected, the fibromyalgia model was more sensitive to electrical stimulation.

    “We again see the chronic pain brain is electrically unstable and sensitive,” Harris says.

    Harris says this type of modeling could help guide future treatments for fibromyalgia. Since ES can be modeled outside of the brain in computers, researchers can test for influential regions that transform a hypersensitive network into a more stable one. These regions could then be targeted in living humans using noninvasive brain modulation therapies such as transcranial magnetic stimulation, which is currently used to treat fibromyalgia and depression.

    “We expect that our study may ultimately suggest new approaches for analgesic treatments. ES provides a theoretical framework and quantitative approach to test interventions that shift a hypersensitive brain network to a more normal brain network,” researchers reported.

    “It may be possible to convert an ES network to a non-ES network just by modulating one or two hub nodes. Indeed, transcranial magnetic stimulation and/or transcranial direct current stimulation may be improved by ‘targeting’ these sensitive hub nodes. The application of deep brain stimulation to critical nodes that could modify ES conditions is another therapeutic possibility that could be explored.”

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Awareness | The Part of Life With Fibromyalgia I Haven’t Told You About

    I’m a fairly open person when it comes to physical and mental illness, but I can also be very reserved, especially about my chronic pain and fatigue. It’s not because I don’t want to share about what’s going on with me, but because I don’t want people to think I’m a “whiner” or “attention seeker.” I am neither of those things. In fact, I’m quite the opposite.

    A lot of people know I have fibromyalgia. What they don’t know is the reality of what I deal with. They see a positive, silly, young 25-year-old woman on the outside, but they don’t realize how much pain I’m in, or how badly my anxiety is affecting me. I don’t think people really understand the intensity of my conditions. I’ll admit that part of it is my fault, for showing only the good parts of my life on social media, but showing the not-so-good parts can sometimes come off as attention seeking. I don’t want attention, I want my conditions to stop being stigmatized. I don’t want pity, I want people to understand these illnesses.

    Here is the reality of someone with fibromyalgia:

    1. Pain

    When you tell someone you’re in pain, they don’t really take it very seriously. They usually think that you have a typical headache or backache. They don’t realize that your whole body is experiencing aches, stabbing pain, needles, numbness, or oftentimes a burning sensation. They also don’t realize that the clothing you’re wearing, or the cloth chair you’re sitting on could be causing you pain as well. People with fibromyalgia have sensitives to certain fabrics and materials. Some of us (including myself) feel pain in our organs. I’ve had ovarian pain for years and didn’t know what it was until I was diagnosed with fibromyalgia.

    Our pain is often unbearable and can cause difficulties in everyday situations. When I’m going through bad flare-ups, I am sometimes late to work. It seems like no matter how early I wake up, it takes me 30 minutes to an hour to get out of bed because my body is stiff, my hips are locked, and my hands ache. Carrying a grocery basket can cause my hands and elbows to tense up, opening jars is sometimes impossible, household chores can take everything out of you, and the list could go on.

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    2. Fatigue

    Speaking of being late to work, fatigue is another reason it’s so difficult to get out of bed. I could have had the best sleep of my life, but it will feel like I didn’t sleep a wink. For me, chronic fatigue is one of the most difficult symptoms. There have been days I’m nervous to drive long distances because the sun causes really bad fatigue. I work a desk job, but by midday, I feel like I’ve been doing hard labor, and all I want to do is go home and sit on the couch. And good luck trying to schedule anything with me after work. I’ll just be too exhausted to do anything. If you’re able to get me to hang out with you on weekdays, it’s probably because no matter how tired I am, I really need your company.

    3. Brain Fog

    This is the last symptom I will touch on. Brain fog is a bitch, to say the least. Completely forgetting a conversation you had yesterday, having to pause mid-sentence because you forgot what you were saying, or stopping a conversation altogether because you can’t think of the right words to use. This is the most embarrassing symptom of fibromyalgia. Feeling incompetent is incredibly frustrating and heartbreaking. I often wonder if people are judging me because of this. I find at times, I can’t even remember how to spell a word when I’m typing. I proofread my text messages, emails, and social media posts multiple times before pressing the “send” or “submit” button. The embarrassment of brain fog causes me so much anxiety. I just want people to know can’t control the way my brain works sometimes.

    Here are some other common things fibro warriors struggle with:

    1. Mental illness including, but not limited to, depression and anxiety.

    2. Temperature sensitives. Summers, and especially Winters are often unbearable.

    3. Irritable bowel syndrome (IBS).

    4. Night sweats/hot and cold flashes.

    5. Insomnia.

    6. Painful and irregular menstrual cycles.

    7. Problems with balance.

    8. Tinnitus (ringing in ears).

    9. Restless leg syndrome.

    10. Rashes and skin disorders.

    It’s very common that individuals with fibromyalgia will struggle with different symptoms than others. All symptoms are different for everyone, so it’s difficult to explain to doctors what your symptoms are. Chronically ill patients seem to know about their illness than professionals, and that can be hard when it comes to medications and treatments. We’re all in this together, and we need support and understanding from the people and loved ones in our lives.

    I hope this sheds some light on this awful illness. If you know someone living with fibromyalgia, go give them a (gentle) hug and ask what you can do to help them. Just being there to listen could mean the world!

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Main Fibromyalgia Causes In Women That No One Knows Yet

    Women are far more likely than men to get Fibromyalgia Causes —a disease that causes pain and tender points throughout the body. Between 80 and 90 percent of people who are diagnosed with this condition are women, according to the National Institutes of Health. The reason for this gender inequality may have to do with hormones, immune system differences, or genes. But researchers still aren’t exactly sure why women get Fibromyalgia Causes in much greater numbers than men.

    Fibromyalgia Pain

    Fibromyalgia Causes a very specific kind of pain. Women often describe it as a dull ache that starts in the muscles. To be diagnosed with Fibromyalgia Causes, the pain must be on both sides of your body. And, it must affect both the upper and lower parts of your body. The pain may come and go. It can be worse on some days than on others, which can make it hard to plan for daily activities.

    Main Fibromyalgia Causes In Women

    Fibromyalgia Tender Points Fibromyalgia Causes: In addition to more widespread pain, causes fibromyalgia tender points around the body. They’re called fibromyalgia tender points because when you press on them, they hurt. There are 18 possible fibromyalgia tender points. You may have pain in some or all of these places:

    • back of the head
    • area between the shoulders

    Main Fibromyalgia Causes In Women

    • front of the neck
    • top of the chest
    • outside of the elbows
    • top and sides of the hips
    • insides of the knees

    Fatigue

    Fibromyalgia Causes: The pain from fibromyalgia can make it very hard to sleep. Conditions that often occur with Fibromyalgia Causes—such as restless legs syndrome and sleep apnea—can also keep you awake at night. A lack of sleep night after night can make you feel tired and cause you to have trouble concentrating during the day. In a vicious cycle, a lack of sleep can also make your pain worse.

    Fibro Fog

    Fibromyalgia Causes in Women who may start to notice that they have trouble remembering and concentrating. They may mix up words when they speak, or get confused more easily than they used to. These thinking problems are sometimes called “fibro fog” because the mind feels foggy. Although doctors aren’t sure what’s behind “fibro fog,” it may be caused by a lack of sleep or by the effects of fibromyalgia pain on the brain.

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    Headaches

    About half of fibromyalgia Causes in women develop headaches, according to a study in the journal Clinical Rheumatology. Many women get migraines—a throbbing type of headache that can cause nausea, vomiting, and flashes of light. Why fibromyalgia women are more likely to get headaches isn’t clear. But experts think fibromyalgia Causes in women and headaches may stem from the imbalance of chemicals like serotonin and epinephrine in the brain.

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    Painful Periods

    fibromyalgia Causes in women: In general, menstrual period cramps can be mild or painful, depending on the woman. But women with fibromyalgia report having more painful periods than usual. Some women with fibromyalgia also have endometriosis. In this condition, tissue from the uterus grows in other parts of the pelvis. Endometriosis can cause uncomfortable periods too. Women with fibromyalgia Causes may also find that sexual intercourse becomes more painful.

    Irritable Bowel and Bladder (IBS)

    Main Fibromyalgia Causes In Women: Irritable bowel syndrome (IBS) is another health condition that is more common in women, according to the U.S. Department of Health and Human Services. And women with fibromyalgia are more likely to have IBS. Researchers don’t know the reason why IBS and Fibromyalgia Causes are connected. IBS causes symptoms such as stomach cramps, bloating, constipation, and diarrhea, which can also have a big impact on a woman’s life.

    Restless Legs

    Many women with fibromyalgia get a creepy, crawly feeling in their legs that wakes them from sleep. This condition is known as restless legs syndrome (RLS). RLS is much more common in people with fibromyalgia. About 33 percent of people with Fibromyalgia Causes have RLS, compared to only 3 percent of those who don’t have fibromyalgia. RLS disturbs sleep, and it can lead to daytime drowsiness.

    Sensitivity

    Fibromyalgia Causes If you have fibromyalgia, you might notice that you have to put on a sweater every time the temperature drops, or that you break into a sweat whenever the mercury rises. Temperature sensitivity is very common in women with this condition. Some women with fibromyalgia are also more sensitive than usual to other things, such as loud noises or bright lights.

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  • Wearable Tech Emerging For Chronic Pain Relief

    The opioid crisis has revealed another real ongoing problem: a lot of people have chronic pain. For example, Lady Gaga recently revealed that she suffers from fibromyalgia, a chronic pain condition that the Centers for Disease Control and Prevention (CDC) says afflicts 4 million people (or 2% of the adult population). This number may actually be an underestimate because determining the real number of people that have fibromyalgia can be a pain.

    Fibromyalgia is frequently underdiagnosed or misdiagnosed. Many people, including doctors, are not fully aware of the condition. People may try to maintain a “Poker Face” when afflicted with the symptoms of fibromyalgia, such as pain and stiffness throughout their body, fatigue, depression, anxiety, difficulties sleeping, memory problems, and headaches. Or they may attribute the symptoms to something else. Also, until the FM/a Test was approved by the U.S. Federal Drug Administration (FDA) in 2012, no simple test for fibromyalgia was available.

    The Netflix documentary ‘Gaga: Five Foot Two‘ revealed Lady Gag’s struggles with fibromyalgia. Here Lady Gaga is pictured during the premiere during the film’s premiere at the 2017 Toronto International Film Festival.

    While fibromyalgia is certainly not the only reason someone may be started on opioids, a publication in the Journal of Clinical Rheumatology discussed how fibromyalgia has contributed to the increase in opioid medication prescriptions since 2004. Opioid medications, if you haven’t heard, can be quite addictive and lead to the use of other drugs like heroin. Therefore, there is an urgent need for more alternatives to opioid medications to help manage chronic pain.

    Enter the wearable movement. While some wearables may seem unnecessary (e.g., the No More Woof headset supposedly translates dog barks into English so that you can know when your dog is saying “what an idiot”), wearable technology for pain relief is an intriguing emerging area.

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    It may sound a bit like a late-night infomercial or something from a mystical healer: wear this band around your leg to decrease the pain throughout your whole body. But there is real scientific reasoning behind devices such as NeuroMetrix’s Quell that received U.S. Food and Drug Administration approval for over-the-counter use in July 2014.

    The Quell device is a band that looks a bit like a blood pressure cuff that you wear around your upper calf. The device does not utilize any medications but instead generates electric signals that stimulate your body to produce naturally occurring substances (endogenous opioids) that can then inhibit nerve signals that lead to feeling pain. In other words, the device helps activate your body’s natural system for regulating pain.

    Shai N. Gozani, M.D., Ph.D., Founder and CEO of NeuroMetrix, Inc. explained that “fibromyalgia is believed to result from problems with the central nervous system. There is no injury per se in the peripheral nerves. The balance between positive and negative signals regulating the pain neurons may be off. The nerve signals that inhibit pain signals may be decreased. The Quell device can help boost this part of the system.”

    Of course, you don’t just put on the band and presto your pain disappears. As Dr. Gozani related, you typically have to wear the device for a week or two before noticing the reduction in pain. Typically, people will wear the band for 6 to 8 hours a day. The device periodically cycles on and off and can also collect information on your activity and pain levels to help you adjust the device and manage your pain. The device offers the option of tapping into the Quell Health Cloud, which stores data on the usage, sleep, pain levels, and activity for many different users and thus can provide analysis that can in turn help with pain management.

    Neurometrix reported that Quell contributed $3.0M out of NeuroMetrix’s $4.3M in revenue in the second quarter of 2017 and that they shipped their 100,000th Quell device in July 2017.  Quell device shipments in the second quarter of this year were almost ten times what they were in the second quarter two years prior.

    There are certainly many advantages of replacing medications with wearables. For example, addiction is less of an issue (e.g., wearing many bands all over your body probably won’t help). Finding and using ways to stimulate and modulate your body’s pain regulating mechanisms is certainly not a new approach to pain control. This is the basis of transcutaneous electrical nerve stimulation (TENS) and some physical therapy and alternative medicine approaches such as needling.

    But developing wearables so that you can go about your daily activities while receiving non-medication pain treatments is new and opens up a whole new avenue of potential ways to manage pain. Furthermore, having such devices interface with digital platforms could help better track pain management, combine treatments, generate data to provide scientific insights, and interface with other types of wearables. Who knows, someday maybe your dog can help you more with your pain management.

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  • 7 Rules for Living With Fibromyalgia

    Fibromyalgia (FMS) is not just about chronic pain and fatigue, although if you spoke to the majority of general practitioners, you would think those were the only symptoms people get. FMS is a complex, multifactorial condition and is a condition of exclusion. In other words, many, many conditions have to be excluded before a diagnosis can be made. It can, and in my case, it has, affected almost every system of my body from my skin and gastrointestinal tract to joints and muscles and not forgetting my brain. It has had a catastrophic effect on my career, which I loved. It has devastated my social life and family life will never be the same again.

    This may all sound defeatist but the best thing I have done is to accept and adapt to the changes in my life. With this in mind, I have come up with a list of rules for myself. I haven’t just made them up from thin air, they have really just evolved organically over the years.

    1. Understand your family and friends’ perspectives.

    Living with FMS is tricky because it is such a complex condition. As well as living with this condition, I have researched it a lot! It’s difficult to understand, it’s difficult to explain and it’s difficult to describe.

    There’s a famous saying, “If you can’t explain it to a 6-year-old, you don’t understand it yourself.”

    If I can’t explain it, describe it and much less understand it, how can I expect other people to? Be patient with people — they will say things that hurt, they will expect more from you than you can achieve. They may think you are lazy and you will have to keep explaining yourself, but most of all, chances are they just want you to get better. They don’t understand it, because you don’t fully understand it yourself. I find the best way is to just be honest. Tell them if you can’t do something but also what you can do. Tell them when you are having a bad day or a flare-up, but also when your day is “good.” Tell them your symptoms, even on a good day, but don’t expect them to understand until you do!

    2. Make it your new normal.

    You have a chronic illness, it is not going to get better or go away. You may be lucky enough to have a recession, but the majority of us don’t. Learn to live with it, learn to manage it. Become self-aware and understand your symptoms. You may not fully understand the condition, but get to know the symptoms you have before a flareup, for instance. I know if I get swollen glands, a fever, and a loss of appetite, there will be a flare-up in the next 48 hours. Most importantly, plan your day around your symptoms. I tend to have more energy after a shower in the morning. I generally need a nap in the middle of the day and my pain is at its worst in the evenings. This is my pattern generally, but I have to accept changes as they come and new symptoms as they arise. This is normal for me now. It’s all part of living with a chronic illness.

    3. Treat yourself holistically.

    Not only do I have fibromyalgia, I also have migraines, cluster headaches, and vertigo. I try not to keep them separate from each other. Treat yourself as a whole and not as a list of conditions. Your symptoms are part of you whether they come from one condition or another.

    4. Create a new standard for yourself and be proud of your achievements.

    Adjust your measuring stick. If you can’t do something like you used to, make what you can do your new standard and be proud of it. I know, if I tried to do a five-mile hike with the dog, not only would I be wiped out, the dog probably would, too. But, if we go for our 20-minute stroll in the park and we both feel good, even on a bad day. It may sound trivial to some, but every day, I am proud of myself for getting up and doing that walk. Don’t beat yourself up if you can no longer do the things you once used to.

    Think about the boom and bust theory. We all do this, without realizing or without intention. On a good day, you do everything you can because you don’t know when your next good day will be. Then, the next day you are in pain and severely fatigued, so you do nothing in order to recover and hope for another good day soon. The theory is, do less on good days and more on bad days. The idea is to become time-focused instead of task-focused. In other words, set a time for activity instead of just your normal full task.

    5. Plan for the crap to happen and accept that you will have horrible symptoms.

    Life is not perfect. Sometimes you can plan and pace yourself meticulously but there will always be something that disrupts your life. Don’t let it faze you. Crap happens to everyone. We just have to accept what happens and expect that there will be bad days and flare-ups, it’s just part of having the condition. Make sure you have a well-equipped flare-up box. This should always be part of the plan.

    6. Ask for help and accept help.

    You can’t do it alone, you have to ask for help. This is one of the hardest lessons I’ve learned. You may think it’s a sign of weakness in asking for help, and that it has always been quicker and easier to just do it yourself. Unfortunately, this may no longer be the case. Asking is now obligatory. Accepting help can be equally difficult but it’s time for someone else to take the strain. Life with FMS is not easy. It isn’t often that people will ask you if you need help, so when they do, be gracious. Your loved ones will not want to see you struggling, they will want to help, so let them and show gratitude with a smile and a thank you. That’s all they want in return.

    7. Don’t be afraid to let it define you.

    I don’t mean go to bed and let it take over your life. I just think we shouldn’t be afraid to let people know we have a condition that impacts our life. Life is difficult enough without making it harder by ignoring issues that can bite. You should be able to tell others that there are things you can and cannot do because of the symptoms you have.

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  • Chronic Pain Patient Abandoned by Doctor Dies

    This will be the first Christmas that Tammi Hale spends without her husband Doug in over 30 years.

    The 53-year old Vermont man, who suffered chronic pain from interstitial cystitis, committed suicide in October after his doctor abruptly cut him off from opioid pain medication.

    “His primary care provider kept trying to wean him off his opioid therapy, which worked at higher doses,” says Tammi. “My husband ran out (of medication) early a few times, so the doctor cut him off completely one day. Six weeks later he took his life as no medical establishment would treat his chronic pain.”

    We’re telling Doug Hale’s story, as we have those of other pain patients who’ve committed suicide because their deaths have been ignored or lost in the public debate over the nation’s so-called opioid epidemic.  Patients who were safely taking high doses of opioids for years are suddenly being cut off or tapered to lower doses. Some are being abandoned by their doctors.

    “I believe it will get worse with time. The docs are simply more interested in not risking their licenses than in treating chronic pain,” Tammi wrote to Pain News Network in a series of emails about her husband’s death.

    Depression and suicidal thoughts are common for many people living with chronic pain and illness. According to a recent survey of over a thousand pain patients, nearly half have contemplated suicide.

    But the problem appears to have grown worse as physicians comply with the “voluntary” prescribing guidelines released in March by the Centers for Disease Control and Prevention, which have been adopted as law in several states. Many doctors now fear prosecution and loss of their medical licenses if they overprescribe opioids. Some have chosen not to prescribe them at all.

    While federal and state authorities track the number of drug overdose deaths, no one seems to be following the number of patients who are dying by suicide or from cascading medical problems caused by untreated chronic pain. Some in the pain community call this “passive genocide.” Tammi Hale compares it to the Holocaust.

    “The Nazis eliminated the sick and the weak first, right? Makes you wonder,” she says. “I realize my comments are harsh, but I believe the public needs to be aware of the dangers any one of us could be facing with this silent epidemic.”

    Doctor Insisted on Weaning

    Doug Hale began facing a life with intractable chronic pain in 1999 after a surgery left him with interstitial cystitis, a painful inflammation of the bladder. According to his wife, Doug tried physical therapy, antidepressants, epidurals, nerve blocks, TENS, cognitive behavioral therapy, and several different medications before finally turning to opioids for pain relief. High doses of methadone and oxycodone for breakthrough pain were found to be effective.

    But a few years ago, Doug’s primary care provider (PCP) started urging him to wean to a lower dose.

    “The PCP insisted on weaning. Although Doug clearly had documented malabsorption issues, the PCP persisted on weaning. The pressure to wean was unbelievable,” says Tammi.

    “It came to a head in May of 2016. The PCP gave Doug one month to wean completely from 120mg/day of methadone and 20 mg/day of oxy. We knew this was impossible.”

    Tammi says Doug checked himself into a 7-day detox program, where he was weaned to 40 mg of methadone a day. The doctor agreed to prescribe that amount, but it was not enough to relieve Doug’s pain. He started taking extra doses.

    “He ran out a week early in late August. The PCP abandoned Doug, stating ‘I’m not going to risk my license for you. The methadone clinic can deal with you.’”

    But the methadone clinic refused to treat Doug because they saw him as a chronic pain patient, not as an addict. “Had he turned to street drugs they could have treated him, but because he didn’t break the rules they couldn’t help,” Tammi explained.

    Doug tried to detox at home, which Tammi calls a “brutalexperience. On October 10th, after being turned down by other healthcare providers, Doug went to his former doctor one last time to beg for help and was refused. The doctor said again that he didn’t want to risk his license.

    “Doug left the office still thrashing in pain and despondent,” Tammi recalls. “The next day, my dear, sweet thoughtful husband of 32 years; a father, son, brother, uncle, and friend, well-loved by many, dragged a chair to a remote spot in our back yard. A spot we could not see from the house, the road, or by the neighbors.

    “He shot himself in the head to escape his pain. He made sure we could still live in our home and not be plagued by gruesome memories. I just wish the medical establishment had an ounce of the compassion that he did.”

    “Can’t take the chronic pain anymore. No one except my wife has helped me. The doctors are mostly puppets trying to lower expenses.”— Doug Hale

    “Can’t take the chronic pain anymore. No one except my wife has helped me,” Doug wrote in a suicide note. “The doctors are mostly puppets trying to lower expenses, and (do not accept) any responsibility. Besides people will die and doctors have seen it all. So why help me.”

    Tammi says she has been comforted by an outpouring of love and support from her family, friends, and community. Doug’s suicide surprised many.

    “Doug did make vague references about suicide during the summer due to the desperation and pain. He was just such a tough guy, he survived so much that my reaction, and others after the fact, was no. Not Doug. He’s like the bionic man. Too much of a warrior to give up,” said Tammi.

    “At his memorial, so many people commented on what an inspiration he was to them. To graciously bear the path of pain and his never-give-up attitude made them reevaluate their own daily issues. I guess you could say his legacy was love and to never quit.”

    Tammi consulted with a medical malpractice attorney after Doug’s death, who told her the chances of winning a lawsuit against the doctor were slim. The cost of legal action would have also been prohibitive, after so many years of dealing with Doug’s medical expenses.

    Tammi and Doug may never get their day in court, but she is determined to share his story in the hope that patients, doctors, and regulators learn from it.

    “My promise to him was to share with others. He was thrown away like a piece of trash, but his life and the life of all humans are precious.  All patients deserve to be treated respectfully,” she wrote. “Hopefully some changes will come in time before the holocaust grows too much larger.”

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