Dear Fibromyalgia

Category: Chronic illness

Understand chronic illness, its symptoms, common causes, and effective management strategies to improve health and quality of life.

Best Treatment for Crohn’s Disease: Comprehensive Guide
Introduction

Crohn’s disease is a chronic inflammatory bowel disease (IBD) that affects the gastrointestinal tract. It can cause a range of symptoms, including abdominal pain, severe diarrhea, fatigue, weight loss, and malnutrition. While there is no cure for Crohn’s disease, various treatments can help manage symptoms and achieve remission. This comprehensive guide explores the best treatment options available for Crohn’s disease.

Understanding Crohn’s Disease

What is Crohn’s Disease?

Crohn’s disease is an autoimmune condition where the body’s immune system mistakenly attacks the digestive tract, causing inflammation. It can affect any part of the GI tract, from the mouth to the anus, but most commonly affects the end of the small intestine and the beginning of the colon.

Symptoms and Diagnosis
- Symptoms: Abdominal pain, diarrhea, weight loss, fatigue, blood in the stool, and reduced appetite.
- Diagnosis: Blood tests, stool tests, colonoscopy, endoscopy, imaging studies (CT or MRI), and biopsy of the affected tissue.
Best Treatment Options for Crohn’s Disease

Medications

1. Anti-inflammatory Drugs
- Aminosalicylates (5-ASAs): These drugs reduce inflammation in the lining of the intestine. Common examples include mesalamine, sulfasalazine, and balsalazide.
- Corticosteroids: Used for short-term relief of acute flare-ups, corticosteroids like prednisone and budesonide can quickly reduce inflammation.
2. Immune System Suppressors
- Thiopurines: Drugs such as azathioprine and mercaptopurine suppress the immune system to prevent inflammation.
- Methotrexate: An immunosuppressant used in moderate to severe cases.
- Cyclosporine: Typically used for severe cases when other treatments have failed.
3. Biologic Therapies
- Anti-TNF Agents: Infliximab, adalimumab, and certolizumab pegol block tumor necrosis factor (TNF), a substance that causes inflammation.
- Integrin Inhibitors: Vedolizumab and natalizumab block integrins, proteins that help white blood cells move into the GI tract.
- Interleukin Inhibitors: Ustekinumab targets interleukins, proteins that contribute to inflammation.
4. Antibiotics
- Metronidazole and Ciprofloxacin: These antibiotics can help reduce bacterial overgrowth and treat fistulas or abscesses.
Lifestyle and Dietary Modifications

1. Diet and Nutrition
- Low-Residue Diet: Reduces the frequency and volume of stools by limiting high-fiber foods.
- Specific Carbohydrate Diet (SCD): Eliminates grains, lactose, and certain sugars to reduce symptoms.
- Elemental Diet: Consists of easily digestible formulas that provide essential nutrients while giving the gut a rest.
2. Hydration
- Stay Hydrated: Drink plenty of fluids to prevent dehydration, especially during flare-ups.
3. Stress Management
- Mindfulness and Relaxation Techniques: Practices such as yoga, meditation, and deep-breathing exercises can help manage stress, which may exacerbate symptoms.
Surgical Interventions

1. Bowel Resection
- Partial or Total Resection: Removing the diseased portion of the intestine can provide relief from symptoms, although it is not a cure.
2. Strictureplasty
- Widening Narrowed Areas: This surgery widens narrowed sections of the intestine without removing any part of it.
3. Fistula Repair
- Repairing Abnormal Connections: Surgery to repair fistulas, abnormal connections between different parts of the intestine or other organs, can help reduce complications.
Alternative and Complementary Therapies

1. Probiotics
- Gut Health: Probiotics can help balance the gut microbiome and reduce symptoms.
2. Acupuncture
- Pain and Stress Relief: Acupuncture may help reduce pain and manage stress associated with Crohn’s disease.
3. Herbal Remedies
- Turmeric and Aloe Vera: Some herbal supplements have anti-inflammatory properties that may provide symptom relief.
Monitoring and Follow-up

1. Regular Check-ups
- Ongoing Care: Regular appointments with a gastroenterologist are essential for monitoring the disease and adjusting treatment plans as needed.
2. Blood Tests and Imaging
- Monitoring Inflammation: Regular blood tests and imaging studies can help track inflammation and assess the effectiveness of treatments.
Living with Crohn’s Disease

1. Support Networks
- Join Support Groups: Connecting with others who have Crohn’s disease can provide emotional support and practical advice.
2. Education and Advocacy
- Stay Informed: Keep up-to-date with the latest research and treatment options. Advocate for yourself and others by raising awareness about Crohn’s disease.
FAQs

What is the most effective medication for Crohn’s disease?

The effectiveness of medication varies from person to person. Biologic therapies, such as anti-TNF agents, have been highly effective for many patients, but the best treatment plan should be individualized.

Can diet alone manage Crohn’s disease?

While diet can play a significant role in managing symptoms, it is usually not sufficient as a standalone treatment. A combination of medication and dietary modifications is often necessary.

Is surgery a permanent cure for Crohn’s disease?

No, surgery is not a cure for Crohn’s disease. It can relieve symptoms and manage complications, but the disease can recur in other areas of the GI tract.

How often should I see my doctor if I have Crohn’s disease?

Regular follow-up appointments, usually every 3 to 6 months, are essential to monitor the disease and adjust treatment as needed.

Are there any natural remedies for Crohn’s disease?

Some patients find relief with probiotics, acupuncture, and certain herbal supplements. However, these should complement, not replace, conventional treatments.

Can stress cause Crohn’s disease flare-ups?

Stress does not cause Crohn’s disease, but it can exacerbate symptoms. Managing stress through relaxation techniques can help reduce flare-ups.

Conclusion

Crohn’s disease requires a multifaceted approach to treatment, including medications, lifestyle changes, and sometimes surgical interventions. The best treatment plan is individualized, addressing the unique needs and responses of each patient. With proper management, many individuals with Crohn’s disease can lead fulfilling lives, maintaining remission and minimizing symptoms. Staying informed, seeking support, and working closely with healthcare providers are crucial steps in managing this chronic condition.

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06/05/2024
CRPS & The Effects Of Hot Weather
It is no secret that extreme weather can worsen symptoms of CRPS. As well as cold weather, hot weather can also have a negative impact on the well-being of sufferers. Read this blog to find out more and learn how to cope.

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Recently, a heatwave swept across the UK, bringing temperatures of 20 degrees celsius and over. Extreme weather conditions can worsen symptoms for CRPS sufferers. In past blogs, we have discussed the ways in which cold weather can affect CRPS sufferers. In this blog, we are focusing on the topic of hot weather, the symptoms it causes, and tips to educate you on how you can better cope when the temperatures begin to soar.

On hot days, it is very hard to avoid the heat. Even inside, there is very little relief unless you have an air-conditioning system installed, which is rare for homes within the UK. As a result, it is unfortunately very likely that CRPS sufferers will experience some or all of the symptoms listed below.
- More intense burning pain in the affected area
- Increased discomfort
- Extreme skin sensitivity to the sunlight
- Swelling in the affected area or around the body
- Inflammation in the affected area
- Migraines or headaches
- Stiff, achy joints
- Nausea
The slightest difference in weather can set any of the above severe symptoms off. The reason still remains a mystery but it is suspected to be associated with atmospheric changes, as well as changes in air pressure.

So, whether you are heading on a summer holiday with your family or you just want to know how to protect yourself from experiencing further pain during the summer months in the UK, take note of our tips on how to cope listed below.

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- Stay indoors or in the shade. If you are in the UK and the temperature begins to rise, try to stay indoors as much as possible. Only venture outside if necessary; inside, you will be out of the sun and much cooler. Naturally, if you are vacationing, the last thing you will want to do is stay inside. However, when outside, make sure to stay in the shade. Take a chair in the shade and ensure you have an umbrella handy while relaxing around the pool.
- Remember to refuel. Make sure to stay hydrated by drinking plenty of water and keep your energy level up with healthy snacks and meals. Try to stay away from sugar and salt, as this will dehydrate you further in the heat. Opt for fresh fruit and enjoy your meals with plenty of vegetables to ensure you get the nutrients you need to battle the heat.
- Dress appropriately. It goes without saying that to stay cool, you need to dress cool. Avoid layers and dark colors, such as black and navy, as they will absorb the heat and make you feel much hotter. Stay cool by wearing light colors, particularly white, and loose-fitting clothing.
- Give cooling products a try. Invest in something to keep yourself cool whilst on the go, such as a mini fan or facial water spray.
- Distract yourself. This tip will be easier if you are holidaying but it is important to distract yourself from thinking too much about how hot you are. Have a stash of DVDs or a new TV series at the ready.
- Keep moving. Without overdoing it, make sure you continue moving as much as possible to prevent stiff, painful joints. Be gentle and don’t strain yourself; instead, take part in light movements or exercises such as yoga or meditation.
The effects of hot weather can be particularly problematic for CRPS sufferers. By following the above steps, extreme symptoms can be alleviated and in some cases avoided completely. If you are reading this blog and have been diagnosed with CRPS, it is important for you to remember that we are not medical experts and therefore cannot provide medical advice. However, if you are experiencing worsened pain and symptoms as a result of changes in the weather, then we would recommend consulting with your doctor.

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11/04/2022
22% of U.S. Patients with Arthritis Have ‘High-Impact’ Chronic Pain — Here’s What That Means

New data from the Centers for Disease Control and Prevention (CDC) suggests that arthritis might be a leading cause of chronic pain in the U.S.

Chronic pain can occur for many reasons: migraines, reproductive-related health issues (such as endometriosis or fibroids), advanced cancer, an injury, and so on. But if you had to place a bet on the root cause for the most chronic pain patients, arthritis would be a pretty good guess.

That’s the key takeaway from a new study, presented at the 2019 American College of Rheumatology/Association of Rheumatology Health Professionals Annual Meeting in Atlanta, which aimed to compare the prevalence of chronic pain among arthritis patients to the U.S. population at large.

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To conduct the study, researchers from the U.S. Centers for Disease Control and Prevention (CDC) analyzed data on nearly 60,000 respondents to the 2016-2017 U.S. National Health Interview survey. They determined that 48 percent of those with arthritis lived with chronic pain, which was substantially higher compared to those without arthritis.

They also found that 22% of adults with arthritis had what was called “high impact chronic pain,” which is defined as pain that has lasted at least three months and is severe enough to interfere with a major life activities (like being unable to leave the house for work).

“Despite unknown temporality, our study results combined with clinical evidence suggests that arthritis may be a leading cause of [chronic pain] and [high impact chronic pain] among U.S. adults,” the authors concluded.

The authors called for “integrated approaches to pain management that include evidence-based non-pharmacologic strategies” — including cognitive behavioral therapy, physical activity, and self-management education) — to “reduce chronic pain and its adverse effects, such as psychological distress, and may help reduce prescribed opioid use.”

For more information on science-based treatment for chronic pain, sign up for an upcoming webinar from the Global Healthy Living Foundation.

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03/31/2021
Feel that cold – Fibro Weather

“Fall Blends” oil pastel by Shelley Lockwood

Fall was one of my favorite seasons.

Some days, damp ones to be more precise are rarely pleasant or enjoyable.

Last week the dull ache got less dull and today the coldness to the core started. As the cold slowly seeped deeper and deeper, the pain spread and intensified. Other than applying some heat and layering up, there isn’t much to do except waiting. Round and round it goes, where it stops nobody knows. Wait to see where the pain will settle, and how far spread it’ll be.

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Waiting to me, basically boils down to having no control over what happens next.

I think one of my biggest struggles is wondering…am I the only one? I mean I know I’m not the only one learning to LIVE with Fibromyalgia (or what I usually refer to as the “F” word).

I know I’m not the only one hurting all day every day. I know I’m not the only one tired beyond belief pretty much most of the time.

What I mean is am I the only one that feels like control is slipping away? I have always had a plan. Sure flexibility (haha) was necessary due to life’s little curveballs, but now I don’t know from one day to the next what I will physically be able to do.

Really, I never actually know from one hour to the next what this wonderful chronic condition has in store for me.

Am I the only one? The only one having difficulty accepting this newfound loss of control?

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03/01/2021
Dropping the Fibro Ball – Fibromyalgia

There it was again…the “F” ball and from a second Doctor no less. I had no idea what this fibromyalgia was but figured I should probably read up on IT. It would have to wait until later.

More importantly, I had to get back to work. Pushed through the fog while dragging my invisible cement blocks, painted my smile on, and headed back in.

Later that night, I sat down (finally) to read up on IT. Wasn’t sure of the spelling, so I started with Fibro, sure enough there it was Fibromyalgia.

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Read through the Mayo Clinic info. Everything was bang on but I knew better. Both Doctors were quite simply mistaken and that was that.

I pushed on…funny how a word becomes part of your life PUSH. I had to push myself to get up in the morning. For that matter, I had to push myself to get up off the couch to go to bed. I had to push myself to get through pretty much anything and everything. The littlest things would zap me.

As each afternoon rolled around, I could hardly walk. My brain was so foggy I could hardly talk (sensibly that is ). My hands had become my enemy. As if burning, aching, and stinging wasn’t enough; they stopped listening to me and kept dropping things. It’s still difficult trying to describe the pain. The best I can come up with is, as the day progressed so would the pain. It would spread until every inch of my skin was hurting.

I had to visit my Doctor way too frequently. Rather than accept the “F” word I started to believe I was becoming a hypochondriac. That I could fix, Fibromyalgia I couldn’t. Every day there was a new pain in a new place. Every night I got less and less sleep.

Then life became unbearable. There was no pleasure, only pain. I had no choice, I finally accepted that I had the “F” word (doesn’t mean I have to say IT). After acceptance, I was able to begin learning how to LIVE with Fibromyalgia.

Every day I am learning to accept that I have limitations. I have to figure out what they are, sometimes the hard way. This month was a major setback, but that’s ok it’s almost over.

As the saying goes….this too shall pass. I’m back on the right path again.

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03/01/2021
Tired of Wishing my Life Away Fibromyalgia

Last month was awful. Not because of family, not because of friends, not because of anything that I can control but because of something that is a part of my life, like it or not.

Throughout this last year, I have done my best to eliminate negativity from my life. I find myself “testing” more and more of the self-help advice floating around out there. Some of it works, some of it doesn’t. Either way, I figure it’s worth a shot.

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When unavoidable stress manages to ooze into my life, I do my best to handle it. I do my best to avoid a Fibromyalgia flare-up. I try to “Stay Happy & Be Positive”

I wished away most of last month. I just wanted it to be over and now it is.

November has rolled around, and here I find myself once again just wishing for this situation to be over; permanently resolved. This also means I’m wishing my days away…again.

Each day of life should be cherished, not wished away. I know that…I will get back to LIVING. I will not let a couple of bad apples drain my life of joy.

See that picture up there? *The Hug; that’s what I’m going to learn to do. I will embrace each day and LIVE it to the fullest. I will no longer wish my days away!

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03/01/2021
Fibromyalgia Ain’t Gonna Get me Down

I realize for those of you meeting me here for the first time, your initial impression might be that I’m a complainer or ungrateful. I am not.

I am thankful every single day for the many blessings I have in my life. In spite of every little task taking so much effort, I am grateful that my health is not worse.

I am lucky. I have my daughters, my husband, my family, my friends, my home, my dog, etc etc etc! I don’t have to face this alone.

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Lonely Hearts Club Band Oil Pastel by Shelley

That is one of the reasons that I started this blog. So that anyone out there facing this obstacle called Fibromyalgia doesn’t have to do so alone. I hope that by sharing my innermost thoughts and feelings others will have a place to do the same. That, at the very least they will know they are not the only one. A question I have asked myself quite a few times throughout this last year.

Don’t get me wrong, this blog isn’t exactly some selfless act. It is, or at least what I’m hoping will be an important part of my healing process. My first big step toward acceptance, I mean really accepting that I have Fibromyalgia. That in spite of there being no cure, I can heal spiritually and mentally. I can improve physically and I am trying to embrace the new direction my life has taken.

People who know me beyond my words here understand how important control is to me. They know having a weakness (any weakness) is incredibly difficult for me to accept. That I pride myself on always setting the bar beyond what might be considered attainable heights.

This blog Healthizes.com is a place where I will share my journey as I take back control of my life. I’m taking you along for the ride as I learn how to accept certain limitations without lowering my personal expectations.

I hope to make new friends along the way, and I hope others will share their own experiences while learning to LIVE with Fibromyalgia.

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03/01/2021
Kicking and Screaming Toward the Fibromyalgia Half-Century Mark

As I am reluctantly dragged, kicking, and screaming toward the half-century mark…side note: boy do I wish I had the strength to actually physically resist, kick and scream right now ? … I think of the many ways that I’ve changed.

I prefer to think of it (for the most part) as evolving. That I’ve become wiser as I’ve aged.

In spite of the many things life has taught me and my continued progress toward “wise old owl designation”, two things remain constant.

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I’ve lived my life believing that honesty is the best policy and I feel joy when I’m helping someone.

You would think being diagnosed with the F word (Fibromylagia), has been the biggest hurdle I’ve faced this past year but it’s not.

I am working on acceptance. I am working on evolving. I am trying to build a new life. One where we co-exist, my buddy Fibro and me. I am learning to LIVE with Fibromyalgia.

Sorry…that’s another glorious part of my new life…difficulty focusing and am easily distracted…now where was I?

Right, the biggest hurdle that I’ve faced and am still facing is having to deal with dishonesty in the guise of being helpful. It’s like a double whammy for me.

I can’t imagine what it must be like to live a life posing as someone helpful when in reality you’re doing the complete opposite. It must be a lonely life. I wonder what they see when they look in the mirror?

Now, this is one of the ways I’ve become wiser. There was a time I would have wished bad things for someone like that, now I feel sorry for them. Never knowing the joy of truly helping people.

You will not break me. I will never stop believing that honesty is the best policy. In the end, honesty will prevail over lies, ALWAYS.

For so many years I had it wrong. Failure was an option. As long as I gave it my best shot, and so I will.

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03/01/2021
Frankly Fibromyalgia My Dear

Frankly, My Dear, I Don’t Give a Damn

Apparently my all-time most favorite movie quote “Frankly, my dear, I don’t give a damn” not only made the top 100 list but is #1. Who knew? When Rhett Butler spoke those heartbreaking words to Scarlett O’Hara back in 1939, they would be eternal and affect people for generations to come.

Two things for as long as I can remember have caused my heart to literally ache. The song “It’s Too Late” as sung by Carole King and Rhett Butler finally gives up on Scarlett after loving her so powerfully for so long.

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When I first heard the song, I wasn’t thinking in terms of love or relationships. I was too young. I just remember suddenly realizing (I hadn’t thought about it before) that sometimes it can be too late even if you try really really hard to make it.

Ironically, I was with my mother and father who ended up divorcing not very long after. I was oblivious. At the time, I was focused on whatever outing was being canceled because we took too long.

Now Rhett is giving up on Scarlett, well which scarred me for life. Watching Gone with the Wind for the first time, or for the hundredth time I couldn’t give up all hope. I still haven’t. I think Scarlett O’Hara (me too) clung to the hope that she could somehow win back his heart.

But…

When she asks “Where shall I go? What shall I do?” he answers “Frankly, my dear, I don’t give a damn.” It never fails to break my heart.

Why am I telling you this? Ummm… I was sad. When I’m sad I think of these two things. I blogged about it just because, I guess.

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03/01/2021
Fibromyalgia Minecraft a Virtual Playground

Playing in Minecraft Digital Dirt

“When I was a kid, I used to spend hours playing in a little dirt patch in our backyard. I’d build cities with roads for my toy cars, rivers for boats, you name it. My kids do the same thing today. They just do it digitally, through Minecraft”. Excerpted from Danny’s Post Minecraft & Learning To Love The Digital Sandbox For Your Kids

My response. Great way to look at it! My 13-year-old is absolutely crazy about Minecraft. I admit that I have had my concerns. Now that I’ve read your post, I’m looking at it from a different perspective. She is creative and determined to succeed with each venture, building, or project. She finishes the job and then sets the bar higher for her next challenge. She has learned to plan ahead and face unforeseen obstacles. I like your “sandbox play” comparison and think that you’re banging on.

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Recently the four of us were on a family outing. My husband and I attempted to cajole our two teen daughters into a conversation. One daughter was busy chuckling at something someone (who wasn’t in the car) just said, so we tried the other. The next attempt fell short as the 13-year-old popped an earphone out, quite annoyed by the interruption.

I was thinking that teens today build social lives in a virtual world. They’re doing the same as we did, hanging out with a friend or friends. Just not in person. Often I’m cooking supper while talking to three or more kids, only two of which are actually in my kitchen. Took some getting used to but these days I rarely jump when an invisible kid talks to me from what I thought was an empty room.

This is their life, these are their teens. These will be the stories that start with…”When I was a kid”…

I have decided I want to be a part of this time in their lives. So, I listen and I learn. When she shows me her latest Minecraft creation, I am proud of the effort she put into it. I ask questions, each time learning a little bit more.

When my eldest brings someone “virtually” for supper or to watch a movie I talk to them as if they are in the same room.

I’m ok (as long as they are careful) with them hanging out in a Minecraft or social media digital park just like I did in the grass, sand, and dirt park all those years ago.

Take care! Debbie

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03/01/2021