Dear Fibromyalgia

Author: dearfibromyalgia

  • Fibromyalgia Trigger Points

    Fibromyalgia Trigger Points

    Yes, there is a difference between trigger points (TRPs) and fibromyalgia tender points. This is essential to know. Especially when it comes to aggravating factors commonly found with trigger points.

    It is important to distinguish between the two in order to obtain better understanding and working solutions. A trigger point is actually more than one “point” as it is part of a taut band, much like rubber that is not exactly pliable to touch.

    TRP’s can be active or latent. Many people with or without fibro have latent trigger points, actually we all have them. They can come out of “hiding” due to illness, accident or injury. Unlike tender areas of the fibro body, these trigger points can contribute to inflammation. 

    (Let me also clarify that we do not really refer to trigger points as ‘Fibromyalgia Trigger Points‘, they are just trigger points. However, for internet search reasons, we must use this title, as this is part of the myofascial pain that occurs very commonly with fibromyalgia)

    “How are fibromyalgia trigger points different than fibromyalgia tender points?”

    Trigger points are primarily due to myofascial constriction. This constriction causes the pain to radiate to other areas (muscles, tendons, joints) within close proximity. TRP’s do not act alone like the 12-18 tender points. They are “woven” into layers of muscle and fascia and radiate from the central part of each tender point and from the more vulnerable parts of the fibro body. 

    Although the tender points have an 18-point evaluation test, this is not so easy with fibromyalgia trigger points.

    Why? Because trigger points occur over MANY areas of the body and often times in layers.

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    These layers can take place within muscle groups, muscle fibers, tendons and/or near organs that may be compromised in some way.

    The other interesting thing is that if you see the standard 18-locations tender points test, it looks pretty cut and dry. However, if you have a fibromyalgia patient map out their radiating trigger points, it can often look like a war zone!!

    That is why you might often feel that you were beat up, run over and left with little energy; this kind of radiating and knotting pain takes up a lot of energy within the fibro body.

    Common Areas for Fibromyalgia Trigger Points  

    There are some very common fibromyalgia trigger points within the fibro body around the sternum. That is why people with fibromyalgia often complain of chest pain.

    The TRPs in the chest region travel and radiate and can cause heart attack-like pains. (Although, if you do have heart disease, it is important not to confuse the two and be regularly evaluated)Trigger Points can also be one contributor of pain around the rib area, also known as Costochondritis. This particular symptom is one that tends to wax and wane. However, it can be painful with stabbing and burning sensations around the ribs and lower chest area. When symptoms are waxing, try to find a comfortable position and be sure that under garments are not constricting the upper body. 

    Because we use our hands and arms often for many daily activities of living, we have to be careful about repetitive motion that we have control over. Carpal Tunnel Syndrome can occur with excess use of computers, cell phones, heavy lifting without proper upper body strength OR even when wearing bracelets and watches. Any of these can perpetuate nerve entrapment or activate trigger points. 

    Other common fibromyalgia trigger points occur around the back of the head, neck and skull area. These TRPs can radiate pain from the back to the front of the head, even causing sinus pain, TMJ and migraine headaches.

    One of the major perpetuating factors to TRP’s in the head area is our environment. We need to be diligent about toxins within our home, the people around us or any place that we regularly reside. Too often, people are surrounded by aggravating factors and may not know it. 

    The pain from an environmental exposure feels just the same as pain from a physical injury, so even though it might feel like the pain is stemming from a structural strain or injury, the pain could stem from a toxic exposure which then ‘attacks‘ the physical body.

    Two common areas for trigger points that can be interrelated are the pelvic area and down the legs. Abdominal or pelvic congestion can perpetuate pelvic pain and TRPs here. Abdominal surgery can also increase the propensity for trigger points in the pelvic or bladder area. 

    Bladder symptoms may include spasms or a need to urinate frequently. On the other hand, you might feel a fullness in the bladder/pelvic area and not be able to urinate freely and you may feel a retention within the bladder and lower abdomen.

    As I have talked about previously see (Fibromyalgia-Leg-Pain), the Sartorius muscle (longest muscle in the body) is located in the quadrant area of the upper leg and is often a place for radiating pain (especially during a menstrual period or with urinary tract involvement)

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    This picture illustrates the TRPs here in the Sartorius muscle and how they can affect radiating pain above (pelvic area) and below (knees and legs).

    Also, difficulty in ascending OR descending stairs can be attributed to the TRPs in the Sartorius muscle. (I actually have techniques for climbing stairs and you can experiment with safer stair climbing as well by adjusting your body angle when first approaching stairs) 

    It is important to note that hamstrings (back of legs) are greatly affected by TRPs in the legs and knees and that working these may be difficult for many people on their own. FI has videos where I show various tools for working fascia and trigger points. No worries, there is always more than one way. 

    Tight hamstrings can greatly exacerbate knee pain …and with fibromyalgia trigger points, we cannot afford that.

    Another trigger point that can aggravate the fibro body first thing in the morning is around the fascia on the bottoms of the feet. This area contracts when we are off our feet and resting for many hours.
    This can cause the “burning” pain that many people often refer to.

    Again, this is one area that responds well to “rolling”. Using a tennis ball or designated foot roller which can be obtained through sports therapy centers or online is very helpful and can also help to relax other parts of the body through the pressure points on the bottoms of the feet.

    In fact, these TRPs in the feet can prove to enlighten us and re-affirm the need for safe and effective fitness protocols due to the fact that contraction from prolonged rest periods does not serve us well. (Also visit the article in our site here on Myofascial Release by using the Sitemap on top left)

    One way in which I have come to specialize in working with fibromyalgia, is teaching HOW to work around these TRP’s while staying strong and agile. Safe and fibro-specific exercise is so essential when living with fibromyalgia and related conditions AND while aging at the same time.

    Some additional bodywork I have used and recommend as part of a treatment plan include Rolfing and Bowen. Rolfing is a type of massage technique for working (relaxing) the myofascial tissue. I have found both to be highly beneficial.

    Bowen therapy helps to relax and re-align the body, especially the more vulnerable areas of the body affected by fibromyalgia. Bowen is different from traditional massage and it is often advised to avoid other types of bodywork when engaging in Bowen therapy. Check in your area for a qualified Bowen therapist. 

    Keep in mind that no one can legally claim to be a “rolfer” unless they graduated from the single school that teaches it. The treatment generally consists of a fixed series of sessions; however, the person I worked with was very helpful in arranging the schedule to make it affordable as well as successful. We must each ‘evaluate’ our individual needs and continue to employ effective tools when it comes to trigger points, because this can be the most debilitating of symptoms when living with fibromyalgia.

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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Leg Pain

    Fibromyalgia Leg Pain

    Do you suffer from fibromyalgia leg pain?  Pain that is associated with the tender points and trigger points in multiple sites? Although we often refer to them as tender POINTS, they are actually more like tender AREAS.

    These areas of pain often occur within and around the muscle. Trigger points and myofascial pain in the legs can also contribute to what we often refer to as the “lumps and bumps” in fibromyalgia.

    I have yet to meet someone with fibromyalgia that has merely a POINT of pain or tenderness. (However, both tender points and widespread pain areas are still used for diagnosis) And because tender points differ from trigger points, refer also to the ‘trigger points’ article for a more in-depth discussion on TRP’s in fibromyalgia.

    Now, most people with fibro describe an “area” of pain that radiates to the surrounding tendons or trigger points. Often there is an involvement with an associated tendon, ligament, or TRP (trigger point). This is what causes the pain to radiate or extend.

    Let’s take for example the tender points on the inside of the knee. This area can extend on average from 2-4 inches above and below the inside of the knee. So, it really makes more sense for reference to call this an AREA of pain, especially when it comes to working solutions.

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    Certain Activities of Daily Living (ADLs) Can Exacerbate Fibromyalgia Leg Pain

    Yes, there are many tender points in the lower extremity of the fibro body. Certain ADL’s (Activities of Daily Living) can exacerbate these tender AREAS. 

    Examples are sitting for extended periods, standing in one place, displacement OR shifting of weight while standing, driving, travel, cleaning activities, etc. 

    What else can exacerbate fibromyalgia leg pain? Trigger points, inactivity, loss of muscle mass, lower back pain, sciatica, SI joint involvement, certain medications, cold/flu, and more. The interesting thing about fibromyalgia–related leg pain is that it doesn’t matter whether you are standing, sitting, or lying down.

    The propensity for pain in the lower quadrant of the fibro body is just greater due to trigger points woven within layers of muscle and extremely tender areas that are not directly related to any activity or exercise. 

    The longest and most widely used muscle in the leg (otherwise known as the Sartorius muscle in the quadricep area) is responsible for much of our mobility in the lower quadrant of the fibro body. Here in the adjacent picture, I have hi-listed these areas that cause the most pain within the lower fibro body. 

    When this muscle and the surrounding muscles become de-conditioned, everything around this area also weakens including tendons and ligaments.

    Agility can be lost and these “areas” of interest become wider still (as shown in the adjacent graphic), with the tender point pain spreading both above and below the actual point location on the inside of the knee. 

    The tender points within the buttock area can also radiate pain down the leg, often on the sides and back of the legs. Hip and leg pain can result because the Illiotibial band (outside of legs) runs from the hip area down the side of each leg and when this area is tight can cause stabbing pain and severe stiffness.

    Weakness and/or shortening in the hip abductors can also cause extreme tightness and decreased mobility. Illiotibial Band Syndrome (ITBS) can occur in athletes through repetition and overuse but this painful condition is not uncommon for people with fibromyalgia.

    Now, this is where there is some controversy. Is the fibro worsening OR are these points/areas of the fibro body becoming weaker? Are you suffering from Chronic Myofascial Pain on top of fibromyalgia? That could be the reason that you feel your leg pain is getting worse, as there are many layers of trigger points in the lower body.

    One thing to consider with fibromyalgia and leg pain is that any position we stay in too long, like sitting or standing can increase pain and activate trigger points. The tender points will always be there on some level, but it is the trigger points that become activated from repetitive movements or being in one position too long.

    I say it often, I highly recommend not sitting for long first thing in the morning. When we go from lying in bed to sitting first thing in the morning, this only creates more stiffness in the lower back, hips, legs, and knees. 

    I had to start thinking outside of the box and this is when I set out to create fibro-specific exercises and start working with my fibromyalgia leg pain in a way that I had not previously done. This doesn’t mean that we can “cure” ALL pain through conditioning of the body, but when strength and agility are lost, everything suffers. So now we must look at what will counteract this phenomenon that has become so common in fibro today.

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    Consistent Conditioning for the fibro body

    People ask “how do you work out with fibro?” However, the greater question needs to be “how do we not?” This is never all or nothing. 

    I sure do get it. But see, we have to approach this condition in terms of conditioning, not merely temporary pain relief. Essentially, we want and need to create more LONG-TERM pain relief and subsequent independence as we age with a chronic illness.

    This is well verified and why I became a fitness trainer and studied extensively to create fibro-specific exercises and routines while also incorporating ways to lessen the severity of everyday activities that can worsen leg pain.

    Often, by the end of any given day, fibromyalgia leg pain can be even greater than upper body pain. Although they definitely inter-relate, after standing or prolonged sitting at a job or computer, the legs and tendons are often the first to be affected.

    It is important to know that it’s the everyday activities that can be detrimental to a fibro body and not the conditioning through safe and effective exercise. There are some activities of daily living such as cleaning a bathtub or lifting heavy objects improperly that really can be detrimental to a fibro body, whereas focused fitness training actually ‘protects’ the body and builds a stronger resilience and foundation.

    What about tender areas and bruising?

    Bruising and tenderness can occur with leg pain, especially if you tend to varicose veins which will cause more pressure around these vulnerable areas. Although we want to be careful of any invasive procedures for vein health, it can be helpful to address if bulging veins or even spider veins become more prominent. This can occur with both men and women. 

    Some Other Symptom Treatments For Fibromyalgia Leg Pain

    Myofascial Treatment

    It can be helpful to experiment with light “rolling” on a foam roller OR work with a therapist who is experienced in myofascial release. It does not always have to be extremely painful to ‘work’ these areas, but there is benefit in learning how to work with these affected points/areas in a way that is healing, not detrimental to the fibro body.

    Bowen Therapy done by a massage therapist trained in Bowen can also be very beneficial. With Bowen therapy, the body learns to adjust and relax to muscle stimulation and release. Many people report positive results from Bowen therapy and we highly recommend giving it a try. 

    Tender Points Treatment

    Another helpful Rx is using compression wear on the legs and knees whenever needed, even before and after exercise. We have been experimenting with various types of compression over the past few years, using compression socks, sleeves and also making our own by cutting up old socks and other pieces of material to find what works best at various rates of compression. This can increase circulation, soothe “tender” tendons and ease pain in the affected areas. 

    Low back pain is obviously a different subject than fibromyalgia leg pain except in one respect. Low back pain often involves the sciatica nerve which can radiate severe pain down one leg or the other.  

    I have recently experimented with a particular type of pressure point therapy that provides considerable relief. It is the Nature’s Pillows “BeActive“ brace. I like to wear it at night and sometimes through the night, I find that I really do have less low back and leg pain in the mornings. 

    If you are greatly affected by fibromyalgia leg pain, there are many ways that you can support this area through movement, strength, and focused range of motion exercises.

    The remedies often used to deal with the pain (salt bath, natural anti-inflammatories of any kind, light massage, etc.) can be helpful to get us through, but it becomes really essential to create and utilize a consistent program of re-conditioning on whatever level is possible for EVERY fibro body. 

    And because tender points are different from trigger points (TRPs) in the leg region.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • 6-Steps to Minimize Your Fibromyalgia Flare

    6-Steps to Minimize Your Fibromyalgia Flare

    Can we minimize fibromyalgia flares?

    If you have fibromyalgia, you likely know the triggers that precede a fibromyalgia flare. You try to avoid the triggers when possible and just get through them when you have to. However, it is never 100%. There can be variables internally and externally. 

    The most important thing to remember is that it is never “all or nothing” when working through a fibro flare. Some flares will be a shorter duration, and some can last longer depending on the exposures and factors involved.

    I often say it is almost like being “poisoned” and working to bring the fibro body back to “homeostasis” 

    Some of the more common triggers to a flare include:

    You might also find that accidents or injuries can lead to a flare. Maybe even a visit to the doctor. Anxiety, depression, or anything we ingest like a certain food, medication with side effects, or even some supplements. 

    Because fibromyalgia affects the ENTIRE body, so does a fibromyalgia flare as the adjacent graphic illustrates.  And because everyone’s tolerance and condition are different, it can be hard to predict how long a flare will last in each individual fibro body.

    Flare symptoms might include increased pain levels, brain fog, pressure in the head, cold extremities, joint pain, swelling, malaise, swollen glands, increased fatigue, and more. 

    If you have fibromyalgia, you know that flares will likely be a part of your life. The idea is to get to know our triggers and the many variables that can precede or prolong a flare. This doesn’t mean we can avoid them altogether.

    It does mean that we may be able to lessen the severity and the time length of the flare by consistently being proactive.

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    6-Step Mastery Over Pain Protocol For Your Fibromyalgia Flare

    Wouldn’t it be empowering to have more control?  Although we cannot “cure” them, we can work with them. It is possible with consistency and employing the following six steps in our Mastery Over Pain (MOP) protocol to control fibromyalgia flares: 

    1) Reduce the Toxic Load

    Working to eliminate toxins/chemicals in the home and anything used ON our bodies is the first step to reducing fibromyalgia flares. In doing this, we are strengthening our ‘core’ immune system by reducing the overall toxic load on our fibro bodies.

    I talk about this in the Environmental Illness article and throughout the website. My personal story with autoimmune illness at a young age tells why I am so passionate about this.

    I simply do not use store-bought body products and use only dye and scent-free laundry soap and other natural agents such as vinegar, peroxide, and baking soda.

    Also, without putting too many limits on our daily lives, we try to avoid outside environments that are toxic such as extended periods in shopping malls, clothing stores filled with formaldehyde, veterinary clinics, etc.

    Any place where a high level of chemicals is used and are off-gassing is generally not a safe place for a fibro body.

    2) Plan Ahead for Weather

    Weather is impossible to control. All of us fibro bodies like to say that we are like “human barometers”. We often react before and more intensely than other people. Joint pain, swelling, malaise, depression, etc. can all accompany weather changes.

    What about seasonal changes? I often talk about spring and fall bringing added challenges to the fibro body. You may feel extremely tired during the season changes and it is not uncommon to experience headaches and a tendency for extended flares. (For Spring allergies, I like to take quercetin, and additional vitamin C.

    Raw and local honey is also great for allergies. I’ve recently been talking about this on the FB page and how just a half teaspoon daily has been helpful for the intense pollen headaches I get every Spring. 

    The best idea here is to plan ahead when possible, accommodate more self-care time. I also find that movement-like range of motion exercises are a great way to be proactive and ‘vent’ the fibro body during a weather-related flare.

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    3) Stress is a big offender

    Stress is a big offender and understandably so. The adrenal glands are already having to deal with an overload through compromised immune and endocrine systems.

    This is where meditation, gentle flowing movements, deep breathing, and energy work come in. Adrenal Stress can really exacerbate symptoms in any chronic illness. 

    If you have ever had a reiki session or attended a qi-gong class, you have likely experienced this healing and proactive energy. We can learn to do the same at home by simply taking the time to listen and work with our bodies.

    Distractions are good at times, but too many distractions on a daily basis will not allow us to see what is and what is not working.

     Stress from living with a chronic condition can lead to Adrenaline Dominance. Please refer to our books page, the second book on the list there. I do highly recommend reading this book. 

    Sitting or stagnating through a flare is not only uncomfortable but will not lessen the time of the flare; moving the lymphatic fluid, oxygenating the body, and increasing blood flow (especially after a toxic exposure) is essential.

    Walking, swimming, using a rebounder (mini-trampoline), or even sitting and gently bouncing on a large exercise ball is also a great non-invasive way to move the blood and lymphatic system and help to create a sense of wellbeing. Get moving, get breathing, work to stay empowered even through a flare!!

    4) Sleep According to Your Body Clock

    Sleeping according to the body clock is one of the fundamentals in my protocol to control fibromyalgia flares.
    And I know what some of you will say “Sleep, what sleep?”

    We also have many tips and suggestions throughout the website for lifestyle and natural Rxs to aid in regulating sleeping patterns. Not an easy task for the fibro body.

    All of my suggestions pertain to ‘natural’ sleep Rx’s, however, because sleep is number one and if you are not getting it no matter what you do, talk with your doctor about a low dose sleep aid. The key is to only take the LOWEST EFFECTIVE DOSE and only while incorporating good sleep habits at the same time. 

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    For instance, if the doctor gives you 10 mg of sleep medicine, do not assume that is right for your body. Use a pill cutter, and experiment with the lowest dose possible. Using too high a dosage of any sleep medicine can have the opposite effect AND can become addictive.

    If other tools are being used consistently, the sleep aids should not be needed every night. And this will help us to better know which of the noninvasive tools are actually working for us !!

    Please also refer to the menopause link in the following step where I detail the importance of progesterone and sleep. I personally have not needed a sleep aid since taking a slow dissolve troche of progesterone before bed. Men can also take progesterone for this purpose. 

    5) Strive for Balance

    Hormones …well, they are pretty much like the weather, although we have a bit more control, we cannot control phases of life, hormonal tides, and fluctuations. We can however work to stay balanced through a “healthy” lifestyle.

    For women, if we are estrogen dominant for example, we can experiment with or talk with our doctor about natural Rx’s such as Shatavari, Vitex, Black Cohosh, and/or natural progesterone creams or troches.

    For men, the same need for balance also applies.  Reducing sugars and grains can also help to balance hormones as well as can including more whole and organic foods and vegetable juices

    6) Can food lead to a flare?

    Last but not least, we need to be aware of all food allergens, additives, and even mucous forming foods. Did you know that excess mucous in the body can contribute to pain? “Histamine Intolerance” can also pose an issue and contribute to symptoms.

    If you have an intolerance to alcohol, nitrates, certain fruits, sugar alcohols, fermented or cultured foods, then it may be necessary to implement elimination diet protocols. (I suggest eliminating one food at a time for a period of 6-8 weeks before going on the next suspect food.)

    When we ingest foods to which we are allergic or simply have an intolerance, they can create excess mucous. This mucous is the body’s way of protecting itself; however, just like with autoimmune illness, it eventually works against us. The body is doing whatever it can to protect us. Yet this excess mucous can prevent nutrient absorption and create MANY unpleasant symptoms and increased pain. Become aware of food intolerances, keep a food journal and work to allow food to become your BEST medicine yet.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Medication Efficacy and Side Effects

    Fibromyalgia Medication Efficacy and Side Effects

    This article is an examination of the more commonly used fibromyalgia medications and a few results of recent studies on the effectiveness of the medications in fibromyalgia patients; ways to reduce the cost of your fibromyalgia medication; and appropriate warnings where warranted.

    Fibromyalgia is complex. Here at “Living with Fibromyalgia”, we understand that not everyone will walk the same path when it comes to their approach to treating fibromyalgia and all of its complexities. If you are taking prescription medication for your fibromyalgia, we want to be sure that you are approaching your fibromyalgia medication the “smarter” way. 

    If you have had major surgery in the hospital, you might think that morphine, or other opiates, are your “best friend”. But, did you know that when prescribed for fibromyalgia pain, it helps at first and then slowly turns on us until it actually causes more pain! Studies have shown this to be a fact. When it happens, you may not even know it’s the opiates that are exacerbating the fibro pain; you may even ask your doctor for a larger dose!

    The smarter approach is always going to be the least invasive with the least negative or toxic side effects. This means you may have to take more personal responsibility when working with your doctor. When you have prescribed any medication, you always need to be thinking “is this the lowest effective dose for my condition?” 

    Building a tolerance to any fibromyalgia medication without the use of other conjunctive therapies is counterproductive because we are not allowing the body to aid in the healing process. And, by healing process, we are not talking about a” cure” for fibro; no, we are talking about creating greater levels of wellness and well-being while reducing overall pain levels and fibro symptoms.

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    Some of us have been forced to be more creative, due to intolerance to medications and/or belief in holistic methods and modalities of healing. We often use the word “preventative” when referring to a lifestyle that supports less susceptibility to all diseases. Yet, preventative measures are simply living the lifestyle in which we were meant to live.

    Free of toxic medications, free of toxic air, soil, and water, and free of negative and toxic emotions. Well, to many that sounds like a perfect world that never existed anyway, at least not here on earth. But in striving to live as close to this “ideal” as possible, we are using the better and smarter approach to fibromyalgia and, as I like to say, “any other illness that may be lurking around the corner”.

    I have always been very intolerant of medications and had to find other ways to control my severe fibro and chronic migraine symptoms. I spent years working thru symptom after symptom. Also living with CFS/ME, I understand the complexity of these co-conditions and do not take them lightly.

    Over many years as both practitioner and patient, I had finally reached a point where I had built a “toolbox” containing various methods to control my symptoms. That is really what encompasses this website. This is a complex condition with complex co-conditions, I certainly get that. The point is to avoid putting an extra burden on the already vulnerable fibro body. 

    We would never recommend that anyone subject themselves to more pain than can be tolerated. The goal is to use as many non-invasive remedies as possible while trusting in the magnificence of the human mind and body. Yes, even while living with fibromyalgia and all of its complexity.

    What follows is a list of the more commonly used fibromyalgia medications and a few notes on recent studies on the effectiveness of the medications in fibromyalgia patients; ways to reduce the cost of your fibromyalgia medication; and appropriate warnings where warranted.

    Fibromyalgia Medications & Side-Effects

    TABLE 1.  FDA Approved Fibromyalgia Medication:

    The following fibromyalgia medications are expressly FDA approved for the treatment of fibromyalgia:

    BRAND      GENERIC          SYMPTOM
                                                AFFECTED

    Lyrica              pregabalin           pain, sleep,
                                                        & fatigue

    Cymbalta       duloxetine             pain, sleep,
                                                      & depression

    Savella           milnacipran         pain, fatigue, 
                                                      & depression 

    RARE BUT SERIOUS SIDE EFFECTS:

    BRAND      GENERIC      SIDE EFFECT

    Lyrica         pregabalin     Suicide,
                                               Heart
                                               Failure

    Cymbalta    duloxetine     Suicide,
                                                 Serotonin syndrome

    Savella        milnacipran    Suicide,
                                                 Serotonin syndrome,
                                                  Rapid heartbeat                                                        

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    COMMON SIDE EFFECTS:

    Constipation or diarrhea, dizziness, dry mouth, headache, stomach upset, drowsiness, sexual dysfunction, blurred vision, confusion, liver, and kidney function impairment.

    TABLE 2.    Off-Label Drugs (Approved by Drs. Prescription):

    By my count, there are over 30 drugs being prescribed “off-label” for fibromyalgia.  I’ve included several representative examples of the more interesting ones to illustrate the variety of fibro symptoms and co-conditions treated, including Restless Leg Syndrome (RLS), Irritable Bowel Syndrome (IBS), Fibro Fog, as well as the key symptoms of fibromyalgia (Pain, Sleep, & Fatigue).

    BRAND        GENERIC       SYMPTOMS
                                                AFFECTED

    Elavil         Amitriptyline     Pain,
                                                 Sleep,
                                                 Fatigue,
                                                 Depression

    Eaxil        Paroxetine-IR     Pain,
                                                 Sleep,
                                                 Depression

    Neurontin   Gabapentin     Neuro-
                                                pathic Pain
                                                 Sleep

    Wellbutrin     Buproprion   Fibro Fog,
                           HCL               Fatigue

    Klonopin     Clonazepam    RLS, Sleep,
                                                 Anxiety

    BRAND      GENERIC        SYMPTOMS
                                               AFFECTED

    Bentyl        Dicyclomine     IBS, Pain

    Prozac        Fluoxetine       Anxiety,
                                                Depression

    Provogil      Modafinil         Fibro Fog,
                                                  Severe daytime
                                                   fatigue

    Mirapex       Pramipexole    RLS

    Lunesta       Eszopiclone    Sleep

    RARE BUT SERIOUS SIDE EFFECTS:

    Check with your doctor if you decide to take fibromyalgia medication.  In particular, ask if the medication is an SSRI (Selective Serotonin Reuptake Inhibitor) if you are taking any serotonin enhancing supplements. SSRIs keep a high level of serotonin in the brain, and any additional sources could cause Serotonin Syndrome, a life-threatening condition.

    In the above list Amitriptyline, Paroxetine-IR, and Fluoxetine are SSRIs. Also, many of these drugs carry a warning regarding suicide especially for those 25-years old and younger and those with severe clinical depression.

    COMMON SIDE EFFECTS

    Constipation or diarrhea, dizziness, dry mouth, headache, stomach upset, drowsiness, sexual dysfunction, blurred vision, confusion, liver, and kidney function impairment.

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    Fibromyalgia Medication Treatment Results

    I wish I could tell you that there was a real help for your fibromyalgia symptoms from some of the drugs currently being used to treat fibro. The truth is that there is little real help with even pain which most of these drugs target.

    I have reviewed numerous clinical trials written up in scientific journals and the story is mostly the same one over and over.  I chose trials with at least hundreds of fibromyalgia patients where a large number were given the fibromyalgia medication being tested and an equally large number were given a placebo (a fake drug).

    I also looked at “Reviews” done by the Cochrane Library [1] where oftentimes they collected the results of many trials.  In these cases, the “reviewers” were careful to look for bias in the studies (a large number are funded by pharmaceutical companies) and apply a grade to the quality of the data. This is SOP (standard operating procedure) at the Cochrane Library and for this reason, they are known as the “gold standard” of published scientific studies.

    In plain language typical results were:

    • Only a small percentage of the real test drug group got moderate to substantial relief of pain; however, a slightly smaller number (about 10% less) of the “fake” drug group would achieve the same result, thereby giving an absolute creditable improvement of only about 10%.
    • The number of participants who dropped out due to side effects often approached the number who benefited. For example:  Among fibromyalgia patients taking either of two commonly prescribed, FDA approved drugs to reduce pain, 22 percent reported substantial improvement while 21 percent had to quit the regimen due to unpleasant side effects, according to a new Review in The Cochrane Library. This nets out to a “substantial improvement” of only 1% of the test group.

    As you can see, the placebo effect and side-effects take their toll on fibromyalgia medication efficacy.

    What Do the Study Doctors Recommend?

    One of the Cochrane Reviews [4] was a study of two medications. The two medications often prescribed to treat fibromyalgia are duloxetine and milnacipran. Both are listed in the FDA Approved Drugs in Table 1 above.

    The authors reviewed 10 high-quality studies comprising more than 6,000 adults who received either duloxetine, milnacipran, or a placebo for up to six months. Using a Quality of Life (QOL) scale for fibromyalgia, the studies reviewed reported QOL ratings lower than 15 on a scale of 0 to 100 even among patients on the medications. This is why I earlier said fibromyalgia medication offers little help for fibro patients.

    Now, rather than reporting directly the results of this study, I’m going to bring you an interview of the Review authors by the “Health Behavior News Service” so you can read for yourself the author’s own opinions of fibromyalgia medication and suggestions for conjunctive or even an alternative therapy.

    “This is a very important study,” says Fred Wolfe, M.D. of the National Data Bank for Rheumatic Diseases. “There’s an enormous amount of advertising suggesting that these drugs really help, whereas the research data show that the improvement is really minimal.”

    Treatment with drugs alone “should be discouraged,” the reviewers added. Instead, the review authors recommend a multi-faceted treatment approach including medications for those who find them helpful, exercises to improve mobility, and counseling to improve coping skills.

    “The medical field does poorly with the treatment of fibromyalgia in general,” says Brian Walitt, M.D., M.P.H., a co-author of the review and an expert in pain syndromes at Washington Hospital Center in Washington, D.C. “Chasing [a cure] with medicine doesn’t seem to work. The people who seem to me to do the best sort of figure it out on their own by thinking about things, getting to know themselves, and making changes in their lives to accommodate who they’ve become,” concludes Walitt.

    https://fibromyalgia-6.creator-spring.com/
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    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Pain Is Unique

    Fibromyalgia Pain Is Unique

    Fibromyalgia pain is unique due to its severity, complexity, and multiple systems involved.

    If you have fibromyalgia, you know that chronic pain is just one of the myriad of symptoms present within the fibro body at any one time.

    See, there can be multiple causes to a fibromyalgia headache for example, although the pain itself occurs in the “fashion” we call fibromyalgia pain.

    It doesn’t matter if the headache started as neck or scapular-thoracic pain OR if it was perpetrated by weather or exposure to some chemical toxins in our environment. The pain is unique to fibromyalgia.

    The stress pain that we fibro bodies feel is much the same when we are referring to fibromyalgia pain. It doesn’t matter if the stress that caused your nervous system to continually fire was from a negative or a positive experience.

    The fibro body simply has a more difficult time regulating down the “fight or flight” reflex.

    That continual stress on the body wreaks havoc on our pain sensory system and therein starts the cycle of chronic fibromyalgia pain.

    We know there are various causes to developing fibromyalgia and chronic pain fibromyalgia, but I do believe that many people simply have a greater propensity to developing fibromyalgia.

    In fact, it has been shown that over 33% of fibro suffers are genetically disposed to it. If you are like me, and your symptoms started at a young age, I am glad you are here.

    I understand this condition, living with it, working with it, and helping others to attain a better quality of life, despite the complexity of fibromyalgia and its primary co-conditions. 

    The pain and symptoms are never just in one area of the body. It is certainly not ALL in your “headache”. It is not merely in your “frozen shoulder” or “restless legs”.

    No, the fibromyalgia pain that a fibro person experiences is multi-system and that is why we believe in a multi-faceted approach to a better quality of life while living with not only fibromyalgia but related conditions as well.

    Myofascial pain is also related to fibromyalgia and it is not uncommon to have both.

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    Pain in Hands or Feet? 

    The extremities are a common area for fibromyalgia pain. Yet it is helpful to distinguish between other forms of pain in the extremities.

    Arthritis and/or nerve pain are associated with extremity pain but fibromyalgia pain is unique in its ability to wax and wane, yet not always in accordance with a weather pattern or stress.

    It might simply happen that you wake up one day and the same hand that was working well and flexible yesterday may be tight, stiff, and/or burning.

    It might be difficult to open jars, tie shoes or put on clothing. Hand pain can radiate into the forearm and elbows where there is a greater propensity for tenderness and pain simply due to tender points around the elbow region.

    Trigger points around the shoulder can also radiate pain into the forearms and hands. You may have restlessness in your hands where you feel the “need” to tap or move your hands and/or fingers.

    Try using copper compression gloves. The copper used in compression wear and clothing has been shown to reduce pain; it’s worth a try!! I use copper compression wear, clothing, and gloves. I think it’s a good investment for long-term use. 

    Try not to get too concerned when pain is “waxing”; I know, that’s easier said than done. But I have personally experienced almost debilitating hand pain during a period of time many years ago. I remember talking to my D.C. about it, and my heightened concern about not being able to use my hands the way I needed to.

    That can be scary and disconcerting. The same goes for pain in the legs and feet. See, every area of the fibro body has a propensity to wax and wane in accordance to absolutely nothing…. but especially in the extremities and/or around joints and tender points of the fibro body.

    Due to trigger points, fascia constriction, and/or nerve-related pain in the feet, you might feel burning in both the top and bottom of the feet.

    Myofascial Release can be helpful when this pain is due to inactivity or constriction from sitting, lying, or being in one position for too long; however, this type of work will vary regarding tolerance. Refer to the “myofascial release” article link at bottom of this page.

    Another remedy I’ve found (and use) is copper wear compression ankle sleeves. This foot/ankle sleeve fits gently over the foot and the copper is healing.  It provides very slight hugging compression support for diminished foot pain and improved foot structure.

    Do you have restless legs? What about restless feet? There are various causes for restless and painful legs and feet. Nerve-related pain, fascia constriction, or mineral deficiency are some common ones with fibromyalgia.

    Click here to Get these Products or Visit Fibromyalgia Store

    Fibromyalgia Pain in The Upper Body

    We have an entire article dedicated to upper back pain here on the website and with fibromyalgia, that is pretty much a given. Burning scapular-thoracic pain is one of the most unrelenting types of fibromyalgia pain.

    What about pain and tightness in the clavicle area below your neckline? Tightness around the sternum is common as there are many trigger points in this area around the subclavius and pectoralis muscles.

    The only consideration will be if the pain is coming from another source unrelated to fibromyalgia. It can be difficult to determine this but when other conditions are ruled out, you can bet on fibromyalgia and/or myofascial pain being the cause.

    NOTE: A feeling of heaviness in the upper body can be due to chronic fatigue syndrome as well, and can be associated with an inability to maintain an upright position for extended periods of time.

    Fluctuating blood pressure, heart palpitations, and a feeling of constriction in the chest are common with both fibromyalgia and chronic fatigue syndrome.

    Be careful not to exacerbate pain with shallow breathing. I often say that people with chronic illness tend to be shallow breathers and this can intensify tightness and even a choking feeling in the chest and throat area.

    Sitting too long at the computer or watching television can contribute to tightness in the armpits and pectoralis muscles.

    If you have Fibrocystic Breast Disease (FBD), you may have waxing and waning of pain and tenderness not associated with tender points but more so with lymphatic congestion and constriction. This pain is closely associated with stress or repetitive motion in the arms and/or hands.

    It might take some trial and error to figure out what works for your severe upper body fibromyalgia pain, and even when you find something that relieves pain today, it may not work the next time.

    For example, if you get a regular massage for your fibromyalgia pain, but you ever find yourself becoming less tolerant to massage that once felt good, you might need to change your approach, technique, or even avoid body massage for a period of time.

    It might happen that when you go back to it, that it is helpful again. At any rate, that is the “nature” of fibromyalgia. Waxing, waning and the unpredictability of symptoms can be most daunting when living with fibromyalgia.

    Fibromyalgia Pain In The Lower Body (Legs, Knees, & Hips)

    Another common area for pain with fibromyalgia is in the legs and knees. The interesting thing is that the first “pain zones” often related by a patient when they recall back to the first signs of fibromyalgia are in the head and upper body.

    Leg pain comes readily after, likely due to the potential for trigger points within layers of muscle in the lower body.  

    Everything works intimately together in the lower quadrant of the fibro body. The hip bone really is “connected” to the knee bone for instance when it comes to radiating pain and trigger points, due to constriction, tightness, and/or myofascial pain. Both sitting and standing for extended periods of time are not recommended when we have fibromyalgia pain.

    If you have a job where you are sitting, try to take breaks, be assertive when possible and also refer to the “pain in the butt” exercises I show on the Fibro Fit People page on Facebook. (these are some simple exercises to perform in between sitting to help loosen and avoid increased propensity to pain and tightness.

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    Otherwise known as “FG’s side to side exercises”, because much of what we do during the day is in a “forward” motion, such as walking and sitting.

    Creating a greater range of motion is more appropriate for those who find conventional stretching of the lower body difficult due to fibromyalgia pain and/or other factors like arthritis.

    Another consideration is “Activities of Daily Living (ADLs)”. ADLs are different from structured exercise and can also be an area where injury or increased pain can easily occur. For instance, you might be going along feeling pretty decent, all things considered, and then you have to lean down to clean the bathtub or mop the floor.

    All of a sudden, you might realize that these things are more difficult than before.  If some activity or chore is too difficult without undue strain, we need to ask for assistance where possible.

    Fibromyalgia Pain and Headaches

    We have an entire article here on the site dedicated to headaches and chronic migraine. This can be one of the most debilitating pain areas for a person with fibromyalgia. As I like to say, “this is where we think, express, and interact with the world around us”.

    If you have chronic head pain or migraine, then you know pain. The potential for trigger points in the upper back/scapular area can easily turn pain in the upper back into a migraine within a short period of time.

    Stressors, exposure to environmental toxins, sleeping position, seasonal allergies, food allergies, and sinus or jaw (TMJ) pain can all increase pain within the fibro body to the point of debilitation.

    Again, because there is nothing worse than trying to think, work at a job, or enjoy the simple things in life when head pain is pounding and radiating into your head, skull, and face. It makes it even more challenging to carry on a conversation or be social.

    Having had chronic migraine since the age of 9, I surely get it, and there are some things that we just cannot control.  But throughout the website, we focus on the many variables that can contribute to headaches and other areas of fibromyalgia pain and the areas where we can be more proactive to at least lessen or decrease the severity of pain.

    Temperature Dysregulation

    With fibromyalgia, there can be a few different root causes, and in addition, there can be a dysfunction in the hypothalamus, pituitary, and adrenal functions.

    And although female hormones or lack thereof can also exacerbate temperature imbalance and hot flashes, we are talking more about the everyday dysregulation in fibromyalgia itself.

    Too much stress on the adrenals can increase adrenaline while also increasing temperature sensitivity. The endocrine system is also affected by toxins in the environment, and when exposed to various things can cause the body to react with temperature dysregulation.

    During or after toxic exposure, your extremities can become very cold. This is also why people with fibromyalgia often say it feels like living with flu symptoms 24/7. There could also be an imbalance in the thyroid or the presence of thyroid antibodies.

    One day you might feel like you are sweating too much and yet another you could feel cold all day long at the same temperature.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Symptoms List (Extended)

    Fibromyalgia Symptoms List (Extended)

    This list reveals PRIMARY symptoms with secondary symptoms within each direct link…

    The fibromyalgia symptoms list that we present on this page is an addition to the main Fibromyalgia Symptoms page (our unique perspective on dealing with various fibromyalgia symptoms using our protocol) Why do you NEED an accurate SYMPTOMS LIST? 

    Well, because there are too many generic inaccurate fibromyalgia symptoms listed out there that just state a lot of symptoms, without regard to PRIMARY and SECONDARY, and without regard to the possibility of missing other conditions. Please know that it is IMPERATIVE to distinguish between primary and secondary symptoms so that you do not miss another condition outside of the fibro. That is what we do here. This is not a random list of symptoms because that can be very dangerous. Yes, fibro is complex, but we are supporting the WHOLE you. 

    Some of the following links will be updated as new and more specific articles are published here on the site. This extended fibromyalgia symptoms list will get you familiar with the various symptoms and treatment options (not false cures) as you study our entire protocol for “eating the fibromyalgia elephant one symptom at a time”.

    Whether you have been living with fibromyalgia for much of your lifetime, or are newly diagnosed, our site is designed to be user-friendly and help you to live a better quality of life with fibromyalgia.

    F-G says, “Use my symptoms list links.”

    Please trust me when I say that fibromyalgia is a very complex syndrome, and there are no “silver bullets”. But there are solutions that will help us to live a better quality of life. 

    And, those solutions vary depending on the symptom. If we are going to create a better quality of life, following our protocols is the most effective way, but as always, this is NOT about perfection. 

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    Musculo-Skeletal Symptoms

    One of the defining attributes of fibromyalgia and myofascial pain is the effect on mobility about the body in time periods of a few hours to days at a time. This is often the result of severely tender “areas” of the fibro body and multiple trigger points which lie in various layers along with the fascia and muscle groups. 

    Brain/Head/Face Symptoms

    Fibromyalgia symptoms are most debilitating when they affect the brain, head, or face. This is due to the close proximity within all of our senses and the effect on them.

    Moreover, the fibromyalgia symptoms that affect this area are quite diverse, creating emotional effects; sleep disturbance; hypersensitivity to lights, noise, and chemical toxins; and all are accompanied by pain ranging from acute and throbbing to an incessant dull ache. Mitigating these varied symptoms is just as varied.

    GI Tract

    GI issues on the fibromyalgia symptoms list are often exacerbated by a common co-condition, Irritable Bowel Syndrome, which has more serious GI tract problems than fibro alone.

    However, symptom relief for either pretty much follows the same protocol. Working as a colon therapist for many years, I have utilized some effective, non-invasive remedies to ease symptoms of IBS, constipation, and spastic colon.

    Geno-Urinary Tract Skin

    A couple of the items on the fibromyalgia symptoms list in this category deserve a tip. I personally don’t have much problem with heat, but cold is a different matter. My greatest “cold” issues usually occur in the spring or fall when weather fronts often move thru accompanied by a drop in temperature. Being better prepared for weather changes is essential with fibromyalgia.

    Also, the “sensitive to touch” symptom is quite different from the allodynia symptom in which any touch is intolerable. TRPs and the fascia are usually involved in simple “sensitive to touch”.  In this case, manipulation can be done and some relief can be realized.

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    The circulatory system/ the heart muscle 

    Immune System

    In this category of the fibromyalgia symptoms list, I just want to explain why MCS (Multiple Chemical Sensitivity) is listed here as well as in the above category of “Brain/Head/Face. I’ve had severe MCS since a young age, and it can be very debilitating. With MCS, it’s all about avoiding exposures. 

    But, when exposed, the effects in the Head area are really bad and come on quickly; but that’s not the end of the story because MCS is like the worst “endocrine disrupter” really, and associated symptoms can last for days.  So, you are probably saying to yourself ” but I don’t have MCS”.  Well, hear me out…

    Sure, I’m hyper-sensitive to all manner of toxins; but in my years of working with fibro sufferers, I’m convinced that most people with fibromyalgia also react to those same toxins.  In a twisted kind of way, I’m lucky because my reactions are so “cause and effect” obvious.

    When I am exposed, I know it immediately; and, I know my fibro is going to flare.  It always does.  I’m also convinced that your fibro flares when you are exposed to those same toxins, but you probably don’t make the association in your mind because it’s not as evident as with me.  

    Consequently, I believe that many fibro sufferers’ fibromyalgia symptoms are exacerbated by the toxins in our everyday lives such as dryer sheets, perfume, deodorant, formaldehyde in our carpet and furniture, and many other sources.  You can do something to protect yourself, I have. It is important that we create a safe haven in our own homes.

    Read more about this on the Environmental Toxins page by clicking on the multiple chemical sensitivity link in the following fibromyalgia symptoms list.

    Although not listed here, you can also use the SITEMAP to access the articles on “Leaky Gut” and “Underactive Thyroid” (often part of lowered immune symptoms) There are also viral co-conditions such as Epstein Barr, anaplasma and mycoplasma that can exacerbate symptoms within fibromyalgia when these viruses are found through blood testing. 

    Other

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    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • My Fibromyalgia Help Protocol Has Been Tested. On Myself and Others

    My Fibromyalgia Help Protocol Has Been Tested. On Myself and Others

    ‘Living Strong with Fibromyalgia’ is not only about the best fibromyalgia help protocols but also about the best working solutions and ways to create more empowerment.

    Fibromyalgia is about the opposite of that. It can put limits on everything while decreasing quality of life, joy, and independence. 

    I have never used the word ‘cure’ in relation to my illnesses. I am not cured; I am better conditioned, in mind and body. I am functional on a higher level while living with severe fibro and other illness on top of that.

    Now at the age of 51, I truly believe in everything we ascribe to in creating a better quality of life. 

    My symptoms started at the age of 9, with severe migraine headaches and chest pain. (Btw, these first symptoms occurred shortly after mercury exposure and house remodeling) This was my first experience with severe pain and yet in my own 9-year-old mind, it was often hard for me to communicate how bad the pain really was.

    I do remember many times wishing I could take my head off and just ‘fix’ it. The intense head and chest pain, the vomiting, etc. I would be in the midst of one episode while dreading the next one. I had developed MCS (Multiple Chemical Sensitivity) and phase two liver malfunction through exposure to these harmful toxins on my still developing and vulnerable immune system.

    Then in my 20’s and 30’s, I was diagnosed with autoimmune disease, fibromyalgia, Epstein Barr virus, and CFS/ME. Otherwise known as Myalgic Encephalomyelitis. M.E. can be more debilitating than fibro itself. I have experienced this personally.

    Up to this point, I have had much time to learn, apply and work with others on creating a more functional life while living with fibromyalgia and each of its primary co-conditions (CFS/ME and MCS)

    Don’t get me wrong here. This has been a long process of trial and error and much application with myself and others living with not only fibromyalgia but other conditions as well. I will never say this is easy. Fibro is complex, but we still have choices as to how we approach our conditions, every day. 

    Click here to Get these Products or Visit Fibromyalgia Store

    From the age of about 15, I became holistic-minded and made it a point to avoid what I saw as a downward spiral of drugs and medications that were not addressing the ‘root cause’ of disease. That is how I have approached my illnesses since that time. Addressing each system affected and working to increase immune status and a stronger foundation. No worries, this is not about false cures, fibro doesn’t work like that. 

    In my holistic health business, I have seen many people with various conditions attain better levels of health by also adopting a holistic based lifestyle. I know that it works, not as a cure but as a ‘core’ support to building a foundation of greater health, whatever we are dealing with.

    I personally know the pain of living with autoimmune disease, fibromyalgia, environmental illness, etc. And, having an intolerance to pain meds has forced me to find the most effective alternatives to the daily pain and symptoms within fibromyalgia.

    I also believe that lifestyle, faith, and not giving up on the protocols that I talk about throughout this website are essential to “turning the corner” to better levels of health and lessening overall symptoms. It can be done. 
    My protocols are based on the many holistic treatments, both inpatient and outpatient, and various resources that I utilized over many years of working to find fibromyalgia help. 

    I have great passion, knowledge, and experience and I advocate for awareness and education for fibromyalgia.  I became a holistic health practitioner and personal trainer for this very reason.

    I knew that I had ‘fibromyalgia help‘ solutions and I have always been one to share what I know, what works, and what empowers others to support their wellness. That is why I am offering my fibromyalgia help, experience, and support. 

    As a Practitioner and Fitness Trainer specializing in Fibromyalgia, I work to help anyone with fibro live a better quality of life and stay fit through education, and safe and effective exercise. I also teach Holistic Nutrition and fibromyalgia help and support protocols for lifestyle management.

    The fibromyalgia support I offer includes fibromyalgia treatment protocols I’ve developed and self-tested that have worked for myself and others.  I do not endorse a cure. However, it has brought my severe fibro pain from a 7, 8, or 9 levels to a 2, 3, or 4 level.

    I use my own tested protocols such as my MOP (mastery over pain) which allows those with fibro and related conditions to actually REDUCE levels of pain and fibromyalgia symptoms.

    The other important point is that I have never and will never promote anything as a cure, a reversal, or any other nonsense for the sake of profit or exposure. I’ve been on the other side of that and I would never be a part of that dishonesty.

    When I share fibromyalgia help solutions, remedies, holistic tools, etc. it’s just that, solutions to living smarter with fibromyalgia. These are tools that I have tested consistently and found to work for me to help control fibro symptoms, thereby giving me more good days than bad. I share those tools on this website.

    Click here to Get these Products or Visit Fibromyalgia Store

    Be aware of scammers 

    Working with fibromyalgia is complex, and unfortunately, there are scammers out there that come in different forms. From fibro groups to people selling false cures/supplement cures, etc. It is very important to be discerning.

    I like to say “don’t allow your mind, body, and spirit to be exposed to it” My hope is that anyone who comes here will have faith in what we do to help attain a better quality of life. No matter where you are at, you deserve that. 

    Having said that, you may or may not be interested in a new page I’ve added. It is a review of the Company I’ve used to develop this website. Why would you be interested in that unless you were considering your own website? It’s because of why I wrote it. The company is Site Build It!  Many of us just call it SBI.  They don’t really need my review and I’m not going to make one penny for writing it.  But, I found out there’s an unethical website, Wealthy Affiliates (WA), that pays their affiliates to write bad reviews of their competition and sell WA. Some of those bad reviews are of this wonderful, ethical Company, SBI, I chose in 2013. I just can’t let that pass without having my two cents out there.

    I have very strong feelings about unethical behavior and I have to deal with and endure the stress of numerous websites and blogs that copy my content (and images) to put on their sites. So far, I always find out (mostly thanks to you) and take steps to have those stolen pages taken down. My blood, sweat, pain, and tears are on every page I’ve written; yet, some think nothing of using it as their own.  It really gets “my panties in a wad.” With these experiences and my bias against bad ethics.

    If you decide to read it, you’ll learn one more thing about me. When the fibro treatment protocol I layout on this website worked for me, I became passionate about getting my message out to as many fibro victims as possible.  So rather than focusing on making money as do most websites, I chose to focus on growing traffic. That’s what I’ve done here online for 6-years now. Thousands of you come here every day and read many pages. I so appreciate the trust and devotion those numbers stand for.

    About 15 years ago at one of my bottoms with fibro. I was working in holistic health, yet watching my own health decline. Helping others, yet feeling like I was dying. I was so passionate about my work and helping others, yet there was a huge disconnect in how to help myself at that time, I just couldn’t do it all. 

    I had lost my joy, my sense of humor, I had stopped the running that had been my passion for many years. I would cry at the sight of another person running down the street; I craved that feeling.  

    I was sitting with a friend one day by the front door and a runner went by. I felt a yearning and said, “Do you think I will run again?” My friend said “Yes”, but I didn’t believe him. I could barely walk up a short hill without severe burning pain and feeling my legs would give out.

    It was at this low point that my path began to change. I had always refused to be defined by fibromyalgia. I would get very discouraged having to back out of planned outings or family vacations. I wanted more control over the illnesses that had taken control of my life and my happiness. I had searched diligently for years for better fibromyalgia help, even a cure for fibro.

    I call it the “yellow flyer syndrome” days.  It seems I was constantly coming across an ad or a flyer advertising “A Cure for Fibromyalgia!” or some other fibromyalgia help; always, of course, to be disappointed. Finally, one day I found myself sitting in a hole-in-the-wall, basement office of a so-called Fibromyalgia Doctor having followed the directions printed on the yellow flyer in my hand.

    I was once again disappointed… once again in despair.  This was my fibro low point to which I referred.  I began to realize that I was not going to find a cure for the whole fibromyalgia disease, but, maybe I could find ways to ease or prevent each of the numerous fibro symptoms.  In other words, instead of trying to figure out how to eat the whole fibro elephant, I’d “eat the elephant a bite at a time”! 

    That’s the path I’ve been on for many years now; looking at potential remedies including mind-body conditioning, toxin-free environment, tailored exercise for fibro people, and the best fibromyalgia nutrition (both diet and supplements) as well as other forms of fibromyalgia help. 

    Fortunately, many years prior to that time, while looking for fibromyalgia help, I had become interested in fibromyalgia natural treatments.  This was prompted by my intolerance to drugs, but at any rate, it served me well on my quest for control of my fibro symptoms. This earlier interest in natural approaches had led me in 1994 to meet Donna Gates who authored “The Body Ecology Diet” book and taught Body Ecology. 

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    I took her course and acquired an Instructor’s Certificate and began actively teaching the course.  Additionally, I had studied and been Board Certified by I-ACT as an Advanced Level colon therapist and was also active in this field which gave me insight into the requirements for a healthy gut.  So naturally, my first bite of the fibro elephant was in the area of fibromyalgia nutrition (fibro diet and fibro supplements).

    I redoubled my efforts to self-test various diet additions/changes, many brands of packaged foods, and supplements, trying them out on myself, evaluating the required amounts or dosages to be effective on me, discarding some, adopting some, identifying manufacturers that I trusted, etc.  

    Multiple Chemical Sensitivity – Good News / Bad News

    Regarding self-testing specific natural treatments to alleviate fibro symptoms, I bring a rather unique aptitude to this effort that contributes to the fibromyalgia help I offer. I have suffered from multiple-chemical-sensitivity (MCS) for over 40-years; that’s 10-years longer than my fibromyalgia.  Though “bad news” for me (exacerbates fibro symptoms), it is definitely only positive for you.  You see, toxins in any form or intensity (even mild) affect me severely. For instance, when I run, I can be made sick by “dryer sheet” smells coming from the homes of my neighbors that I run past.

    Also, it is essential that clients be fragrance-free. However, my sensitivity works in our favor when I’m self-testing a potential remedy (a supplement for instance) because I react much more quickly than most people, including those with fibro.  I’m usually able to evaluate foods or supplements in a relatively short period rather than many months it would take a non-MCS person, assuming they could detect anything at all. Remember, I’m not looking for a cure for fibromyalgia; I’m seeking remedies that mitigate symptoms and contribute to my protocol for fibromyalgia help for you.

    This is a harsh reality for those of us with severe MCS. Here I am after picking up my husband from the airport along with a suitcase full of hotel room-induced fragrances/chemicals. We do have a routine when he returns from his travels, I pick him up only in HIS car, and then the suitcase and clothes get put into plastic bags and washed ASAP in vinegar and unscented or Miracle 2 soap.

    This has been my reality since the age of 9. You just learn how to live your best life in spite of it. I live as empowered as I can every day, but my life is not without challenges.

    After a toxic exposure, I find that safe and effective exercise is really one of the best remedies …the best Rx for supporting our lymphatic and immune system! In other words, ‘sitting’ with symptoms from exposure can make it worse and last longer.

    Fibromyalgia Help Is About Solutions, Not Symptoms

    The agenda for this website is to continue to promote and focus on solutions, not symptoms; to offer fibromyalgia help, not symptom talk, because that is what works. If I talked constantly about every symptom I have or have had, this would not help to guide you to a better quality of life. Although we offer many thorough articles on fibromyalgia, pain, symptoms, and various parts of the body affected, I often say, keep “symptom talk” in its place.

    There is a time and place for that, but focusing on symptoms daily will only increase them. I want you to focus on a better quality of life.  I thank you for believing in something greater than your illness, for being here, and for trusting in the magnificence of the human mind and body. Again, I do not use the word cure for many reasons. That is not my experience. I do live in gratitude and promote my healing by doing so. I like to say, ” A smile from the heart is a great place to start.” 

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia News and Updates

    Fibromyalgia News and Updates

    I am dedicating this article page to updates and news for you. In these uncertain times, this will be a place you can come to find out what we are doing, in case there is ever a disruption in social media platforms.

    You are an important part of this community, and I believe that no matter what else you are doing, you are at the right place.

    As fellow fibro over four decades, and trainer specializing in fibromyalgia, and its primary co-conditions, I am very passionate about this cause. I am even more passionate about guiding you to the right approach. This is complex, and the approach matters greatly. 

    It’s more than a virus 

    As if a new virus wasn’t enough. We are now seeing the effects of disorder in our world. When authority is abused, disorder ensues. People take matters into their own hands. 

    However, when we are living with a chronic illness, we have bigger fish to fry, as I like to say. We also tend to be much more empathetic. 

    We SEE ourselves as that man lying on the ground. We FEEL it. We KNOW what suffering feels like, and as many of you say here, and on our pages, you wouldn’t wish it on your worst enemy. 
    YOU have empathy, not everyone does. 

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    Uncertain Times (have you gotten sick of those words yet?)

    We are currently in the midst of a health crisis like we have never seen before. This doesn’t just affect one city or zip code, no, this has affected our world, and many countries and people of all nationalities.

    As a practitioner, I am keeping my eyes and ears open to the very best way to navigate this virus and help us all not just get through this, but hopefully and prayerfully come out better on the other side. 

    As always, you can visit and also bookmark our article on Immune Health, I cover many topics of interest regarding immune status, from some of our top long-standing supplements to dietary principles, tools, and even mind/body practice. 

    I’ve done many videos on the Facebook page talking about immune status, and it is a passionate topic for me, because like you, I have been fighting FM, CFS/ME, and MCS since the age of 9, and I truly get it. 

    When in a health crisis, people run out and try to get their hands on every immune supplement possible, and I understand that mindset, however, we could have been doing these things all along, creating a greater resilience. 

     I often say “read between the lines”, actually I say that for pretty much for the entire website, and what that means is that it is very important to read carefully, bookmark any article, and refer back to it when time is limited.

    We have a good track record working with fibromyalgia, and that is because we understand it, inside and out. We never resort to false cures, only protocols, and tools that have proven to help us live a better quality of life. 

    Our primary goals are to reduce suffering, create a more accurate depiction and portrayal of fibromyalgia, a better quality of life, and a better future. 

    A better quality of life not so that you can go save the world (that was already done for us) No, a better quality of life because that is our birthright. 

    My experience with the virus 

    If you follow on my main Facebook page, you have likely heard me talk about getting exposed to the Covid 19 virus back in February at a large 6-day conference with people from all over the world.

    I have talked about my experience in video and interactive because I wanted to encourage anyone because I had so many people say that they just knew they would not fair well if they got the virus. 

    Although I have lived with Fibromyalgia for over four decades, CFS/ME, and autoimmune conditions, I had overall mild symptoms. After I tested positive for antibodies, my friend and coworker also tested positive. I am 52, and he is 82. 

    As a retired engineer and my researcher for the last 10 years, he also had rather mild symptoms, even with a pre-existing condition of COPD. I say this to hopefully encourage others. 

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    Remember also that everything we do here at living smarter to increase our “immune status” are the very things that are helpful if you do catch any virus, cold, or flu. Some of us might just be more susceptible to catching things, but what happens after that is essential. 

    The immune health article listed a few paragraphs above and the Symptoms List below is great additional resources.

    Fibromyalgia Symptoms List

    I often talk about the need for accuracy when it comes to Fibromyalgia Symptoms. You might see many Fibromyalgia Symptoms List out there that are just a list of random symptoms, and that can be dangerous. I believe it is more accurate to differentiate between primary symptoms and secondary symptoms. This matters for accuracy AND so that you do not miss another condition altogether.

    Yes, fibromyalgia is complex, but we don’t want to miss something else by attributing everything to fibromyalgia. You can always refer back to this list at any time. You will see primary symptoms as links to an article and secondary symptoms within many of those articles.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • SSA’s Fibromyalgia Disability Evaluation

    SSA’s Fibromyalgia Disability Evaluation

    July 25, 2012, the Social Security Administration (USA) adjusted the regulations to permit Fibromyalgia to be a legitimate basis for Social Security Disability (SSD).  Like other disabilities, the evidence must be provided to establish that a person has a Medically Determinable Impairment (MDI). 

    Titles II and XVI of the Social Security Act now provide guidance regarding how that evidence should be developed to establish an MDI of fibromyalgia and gain a favorable ruling. It explains how the SSA evaluates fibromyalgia specifically for both initially claiming benefits and continuing disability reviews.

    For a complete look at the ruling, see Social Security Ruling, SSR 12-2p; Titles II and XVI: “Evaluation of Fibromyalgia” in the Federal Register. However, here we are providing a copy of the main evaluation criteria in the Ruling to help you in claiming benefits to which you are entitled.

    Introduction

    FM is a complex medical condition characterized primarily by widespread pain in the joints, muscles, tendons, or nearby soft tissues that have persisted for at least 3 months. FM is a common syndrome. When a person seeks disability benefits due in whole or in part to FM, we must properly consider the person’s symptoms when we decide whether the person has an MDI of FM.

    As with any claim for disability benefits, before we find that a person with an MDI of FM is disabled, we must ensure there is sufficient objective evidence to support a finding that the person’s impairment(s) so limits the person’s functional abilities that it precludes him or her from performing any substantial gainful activity. In this Ruling, we describe the evidence we need to establish an MDI of FM and explain how we evaluate this impairment when we determine whether the person is disabled.

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    Policy Interpretation

    FM is an MDI when it is established by appropriate medical evidence. FM can be the basis for a finding of disability.

    I. What general criteria can establish that a person has an MDI of FM?

    Generally, a person can establish that he or she has an MDI of FM by providing evidence from an acceptable medical source. A licensed physician (a medical or osteopathic doctor) is the only acceptable medical source who can provide such evidence. We cannot rely upon the physician’s diagnosis alone.

    The evidence must document that the physician reviewed the person’s medical history and conducted a physical exam. We will review the physician’s treatment notes to see if they are consistent with the diagnosis of FM, determine whether the person’s symptoms have improved, worsened, or remained stable over time, and establish the physician’s assessment over time of the person’s physical strength and functional abilities.

    II. What specific criteria can establish that a person has an MDI of FM?

    We will find that a person has an MDI of FM if the physician diagnosed FM and provides the evidence we describe in section II.A. or section II. B., and the physician’s diagnosis is not inconsistent with the other evidence in the person’s case record.

    These sections provide two sets of criteria for diagnosing FM, which we generally based on the 1990 American College of Rheumatology (ACR) Criteria for the Classification of Fibromyalgia (the criteria in section II.A.), or the 2010 ACR Preliminary Diagnostic Criteria (the criteria in section II.B.). If we cannot find that the person has an MDI of FM but there is evidence of another MDI, we will not evaluate the impairment under this Ruling. Instead, we will evaluate it under the rules that apply for that impairment. A. The 1990 ACR Criteria for the Classification of Fibromyalgia.

    Based on these criteria, we may find that a person has an MDI of FM if he or she has all three of the following:

    1. A history of widespread pain that is, pain in all quadrants of the body (the right and left sides of the body, both above and below the waist) and axial skeletal pain (the cervical spine, anterior chest, thoracic spine, or low back)—that has persisted (or that persisted) for at least 3 months. The pain may fluctuate in intensity and may not always be present.

    2. At least 11 positive tender points on physical examination. The positive tender points must be found bilaterally (on the left and right sides of the body) and both above and below the waist.

    The 18 tender point sites are located on each side of the body at the:

    • Occiput (base of the skull);
    • Low cervical spine (back and side of the neck);
    • Trapezius muscle (shoulder);
    • Supraspinatus muscle (near the shoulder blade);
    • Second rib (top of the rib cage near the sternum or breast bone);
    • Lateral epicondyle (outer aspect of the elbow);
    • Gluteal (top of the buttock);
    • Greater trochanter (below the hip); and
    • Inner aspect of the knee.

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    In testing the tender-point sites, the physician should perform digital palpation with an approximate force of 9 pounds (approximately the amount of pressure needed to blanch the thumbnail of the examiner). The physician considers a tender point to be positive if the person experiences any pain when applying this amount of pressure to the site.

    3. Evidence that other disorders that could cause the symptoms or signs were excluded. Other physical and mental disorders may have symptoms or signs that are the same or similar to those resulting from FM. Therefore, it is common in cases involving FM to find evidence of examinations and testing that rule out other disorders that could account for the person’s symptoms and signs. Laboratory testing may include imaging and other laboratory tests (for example, complete blood counts, erythrocyte sedimentation rate, anti-nuclear antibody, thyroid function, and rheumatoid factor).

    The 2010 ACR Preliminary Diagnostic Criteria.

    Based on these criteria, we may find that a person has an MDI of FM if he or she has all three of the following criteria:

    1. A history of widespread pain

    2. Repeated manifestations of six or more FM symptoms, signs, or co-occurring conditions, especially manifestations of fatigue, cognitive or memory problems (“fibro fog”), waking unrefreshed, depression, anxiety disorder, or irritable bowel syndrome; and

    3. Evidence that other disorders that could cause these repeated manifestations of symptoms, signs, or co-occurring conditions were excluded.

    What Documentation Do We Need?

    1. As in all claims for disability benefits, we need objective medical evidence to establish the presence of an MDI. When a person alleges FM, longitudinal records reflecting ongoing medical evaluation and treatment from acceptable medical sources are especially helpful in establishing both the existence and severity of the impairment. In cases involving FM, as in any case, we will make every reasonable effort to obtain all available, relevant evidence to ensure appropriate and thorough evaluation.

    2. We will generally request evidence for the 12-month period before the date of application unless we have reason to believe that we need evidence from an earlier period, or unless the alleged onset of the disability is less than 12 months before the date of application. In the latter case, we may still request evidence from before the alleged onset date if we have reason to believe that it could be relevant to a finding of the existence, severity, or duration of the disorder, or to establish the onset of disability.

    Other Sources of Evidence

    1. In addition to obtaining evidence from a physician, we may request evidence from other acceptable medical sources, such as psychologists, both to determine whether the person has another MDI(s) and to evaluate the severity and functional effects of FM or any of the person’s other impairments. We also may consider evidence from medical sources who are not “acceptable medical sources” to evaluate the severity and functional effects of the impairment(s).

    2. Under our regulations and SSR 06-3p, information from nonmedical sources can also help us evaluate the severity and functional effects of a person’s FM. This information may help us to assess the person’s ability to function day-to-day and over time. It may also help us when we make findings of the credibility of the person’s allegations about symptoms and their effects. Examples of nonmedical sources include:

    • Neighbors, friends, relatives, and clergy; and
    • Past employers, rehabilitation counselors, and teachers; and
    • Statements from SSA personnel who interviewed the person.

    C. When There Is Insufficient Evidence for Us to Determine Whether the Person Has an MDI of FM or Is Disabled

    • We may take one or more actions to try to resolve the insufficiency:
    • We may recontact the person’s treating or other source(s) to see if the information we need is available;
    • We may request additional existing records;
    • We may ask the person or others for more information; or
    • If the evidence is still insufficient to determine whether the person has an MDI of FM or is disabled despite our efforts to obtain additional evidence, we maydecide or decision based on the evidence we have.

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    2. We may purchase a consultative examination (CE) at our expense to determine if a person has an MDI of FM or is disabled when we need this information to adjudicate the case.

    • a. We will not purchase a CE solely to determine if a person has FM in addition to another MDI that could account for his or her symptoms.
    • b. We may purchase a CE to help us assess the severity and functional effects of medically determined FM or any other impairment(s). If necessary, we may purchase a CE to help us determine whether the impairment(s) meets the duration requirement.
    • c. Because the symptoms and signs of FM may vary in severity over time and may even be absent on some days, it is important that the medical source who conducts the CE has access to longitudinal information about the person. However, we may rely on the CE report even if the person who conducts the CE did not have access to longitudinal evidence if we determine that the CE is the most probative evidence in the case record.

    IV. How do we evaluate a person’s statements about his or her symptoms and functional limitations?

    We follow the two-step process set forth in our regulations and in SSR 96-7p.

    A. First step of the symptom evaluation process.

    There must be medical signs and findings that show the person has an MDI(s) which could reasonably be expected to produce the pain or other symptoms alleged. FM which we determined to be an MDI satisfies the first step of our two-step process for evaluating symptoms.

    B. Second step of the symptom evaluation process.

    Once an MDI is established, we then evaluate the intensity and persistence of the person’s pain or any other symptoms and determine the extent to which the symptoms limit the person’s capacity for work. If the objective medical evidence does not substantiate the person’s statements about the intensity, persistence, and functionally limiting effects of symptoms, we consider all of the evidence in the case record, including the person’s daily activities, medications, or other treatments the person uses or has used, to alleviate symptoms; the nature and frequency of the person’s attempts to obtain medical treatment for symptoms; and statements by other people about the person’s symptoms. As we explain in SSR 96-7p, we will make a finding of the credibility of the person’s statements regarding the effects of his or her symptoms on functioning. We will make every reasonable effort to obtain available information that could help us assess the credibility of the person’s statements.

    V. How do we find a person disabled based on an MDI of FM?

    Once we establish that a person has an MDI of FM, we will consider it in the sequential evaluation process to determine whether the person is disabled. As we explain in section VI. below, we consider the severity of the impairment, whether the impairment medically equals the requirements of a listed impairment, and whether the impairment prevents the person from doing his or her past relevant work or other work that exists in significant numbers in the national economy.

    VI. How do we consider FM in the sequential evaluation process?

    As with any adult claim for disability benefits, we use a 5-step sequential evaluation process to determine whether an adult with an MDI of FM is disabled.

    A. At step 1, we consider the person’s work activity. If a person with FM is doing a substantial gainful activity, we find that he or she is not disabled.

    B. At step 2, we consider whether the person has a “severe” MDI(s). If we find that the person has an MDI that could reasonably be expected to produce the pain or other symptoms the person alleges, we will consider those symptom(s) in deciding whether the person’s impairment(s) is severe. If the person’s pain or other symptoms cause a limitation or restriction that has more than a minimal effect on the ability to perform basic work activities, we will find that the person has a severe impairment(s).

    C. At step 3, we consider whether the person’s impairment(s) meets or medically equals the criteria of any of the listings in the Listing of Impairments in appendix 1, subpart P of 20 CFR part 404 (appendix 1). FM cannot meet a listing in appendix 1 because FM is not a listed impairment. At step 3, therefore, we determine whether FM medically equals a listing (for example, listing 14.09D in the listing for inflammatory arthritis), or whether it medically equals a listing in combination with at least one other medically determinable impairment.

    D. Residual Functional Capacity (RFC) assessment: In our regulations and SSR 96-8p, we explain that we assess a person’s RFC when the person’s impairment(s) does not meet or equal a listed impairment. We base our RFC assessment on all relevant evidence in the case record. We consider the effects of all of the person’s medically determinable impairments, including impairments that are “not severe.” For a person with FM, we will consider a longitudinal record whenever possible because the symptoms of FM can wax and wane so that a person may have “bad days and good days.”

    E. At steps 4 and 5, we use our RFC assessment to determine whether the person is capable of doing any past relevant work (step 4) or any other work that exists in significant numbers in the national economy (step 5). If the person is able to do any past relevant work, we find that he or she is not disabled. If the person is not able to do any past relevant work or does not have much work experience, we determine whether he or she can do any other work. The usual vocational considerations apply.

    1. Widespread pain and other symptoms associated with FM, such as fatigue, may result in exertional limitations that prevent a person from doing the full range of unskilled work in one or more of the exertional categories in appendix 2 of subpart P of part 404 (appendix 2). People with FM may also have no exertional physical or mental limitations because of their pain or other symptoms. Some may have environmental restrictions, which are also not exertional. 2. Adjudicators must be alert to the possibility that there may be exertional or no exertional (for example, postural or environmental) limitations that erode a person’s occupational base sufficiently to preclude the use of a rule in appendix 2 to direct a decision. In such cases, adjudicators must use the rules in appendix 2 as a framework for decision-making and may need to consult a vocational resource.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store

  • Fibromyalgia Diagnosis: The Major Steps

    Fibromyalgia Diagnosis: The Major Steps

    Have you received a fibromyalgia diagnosis?

    Many people who ultimately end up with a fibromyalgia diagnosis spend from five to ten years going to various doctors to get a proper diagnosis. It is estimated that up to 5% of the world’s population has fibromyalgia, yet many are undiagnosed, many are misdiagnosed, and many still are searching for better answers to understanding and treating the myriad of symptoms.

    NOTE: On October 1, 2015, Fibromyalgia became recognized as a REAL and official diagnosis. This represents a big step forward here in the USA health care system and for other countries to follow suit. The new diagnostic billing code for fibromyalgia is M79.7. Or as I like to say …”

    Fibromyalgia now has its own zip code!!”  Yes, fibromyalgia really does exist. With new diagnosing methods, the patient will be known to have pain and symptoms for at least three months. The WPI (widespread pain index) will require at least a score of 7 or higher to diagnose fibro, while the SS (symptom severity) test requires a score of at least 5 or higher.   

    The average person with fibromyalgia lives with symptoms for many years before diagnosis which can lead to confusion, increased isolation, and even depression. That said, we also have to be very careful about misdiagnosis.

    The reason is that when more people are misdiagnosed, it becomes more challenging to bring “accurate awareness” to fibromyalgia. And this can impede the proper treatment for any other illness present.

    Another problem is self-diagnosis. A “self-diagnose” is often one of those well-disguised scammers who will try to sell you the latest product to “cure” your fibromyalgia. Or, many times it is someone who actually self-diagnosed a long-lasting pain as fibro and “cured” it with Blue EMU or some other cream. Then, they set themselves up as experts on fibro and recommend, or worse, sell the cream as a fibro cure! I’ve seen these many times and actually had them come to my Facebook pages and comment that they had a cure! A formal medical diagnosis is critical.

    Here at LSWF, we offer many suggestions, solutions, and lifestyle support while living with the complexity of fibromyalgia and related conditions, but never false cures. There are many pain syndromes, but fibromyalgia itself is a unique and multi-system, not merely pain, and that is why proper diagnosis is essential. 

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    A THOROUGH FIBROMYALGIA DIAGNOSIS

    Other parts of a thorough fibromyalgia exam include:

    • Physical Exam and blood test
    • Evaluation of Fatigue, Sleep, Anxiety Level, & Depression
    • Widespread Pain Present in all four body quadrants for at least 3-month

    A fibromyalgia diagnosis should follow the 2016 modification to the 2010 American College of Rheumatology (ACR) guidelines.  The 2016 modification allows a diagnosis of “fibromyalgia” without the time-consuming elimination of other diseases which can mimic some of the fibro’s symptoms and was a major factor in the 4 to 5-years to get a medical diagnosis of fibromyalgia in the past.
    This diagnosis is important for several reasons:

    1. If not done, this can lead to the misdiagnosis that we often see. 
    2. It is required by the Social Security Administration (SSA) if you apply for Disability Benefits   
    3. It’s unlikely you will get a prescription, should you need one, for the FDA Approved fibromyalgia medications.

    Regarding the above, I rarely meet anyone with fibro who doesn’t have co-existing conditions. Some common co-conditions that can accompany fibromyalgia include chronic myofascial pain, autoimmune illnesses, arthritis, and chronic fatigue syndrome (CFS/ME/SEID)

    For those who do have fibromyalgia confirmed by thorough diagnostic testing, it can be some relief to know that it is not in their head and they can start to better understand this multi-system illness and all of its complexities as well as the best way to approach recovery. That’s what this website is all about.

    Doctors for Fibromyalgia Diagnosis

    There are various doctors that can give patients a fibromyalgia diagnosis: a rheumatologist, naturopath doctor, neurologist, integrative medicine doctor, or chiropractor. Yet the really important point here is that the doctor that diagnoses your fibromyalgia does not have to be the same doctor that TREATS your fibromyalgia.  

    If your treating doctor is merely throwing drugs and muscle relaxants at your fibromyalgia without treating the underlying issues, then any recovery or greater levels of healing will continue to be impeded. Fibromyalgia requires an experienced medical team and a multi-faceted approach to symptoms control.

    It needs to be understood by doctors and patients alike that treating fibromyalgia properly includes using a multi-treatment approach. Lifestyle changes are in order. Read my Home page carefully to get a feel of what’s involved.

    If at any time a fibro patient is hesitant to talk openly about all of their symptoms, or the doctor tends to dismiss the myriad of symptoms as if he/she has ‘heard it before, then it might be time to ‘fire’ that treatment plan or doctor and move on.

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    AFTER THE FIBROMYALGIA DIAGNOSIS

    And what about family and friends who are skeptical when you announce the diagnosis of fibromyalgia? It can be difficult for family members and friends to accept and support a diagnosis of an illness that is still widely misunderstood.

    It is actually quite normal for patients to go through various periods of non-acceptance and wonder who it might be safe to share with.

    I still believe that the best way to help a spouse, family member, or friend to better understand fibromyalgia is to give them time, the best education, and to also show that we are exerting a degree of proactivity within our wellness.

    Are we doing all we can to ‘live tougher’ with fibromyalgia? See, there are still many myths about fibromyalgia in the media today. This makes it even more challenging to get the right information for those who need it. Just telling a friend or family member to ‘research is not a good idea. Refer to my Fibromyalgia Resources page for books on fibromyalgia.

    Sometimes a third party is needed to intervene and help to gain a better understanding of the illness itself and the best ways to support it.

    It can be very challenging for a family member to learn how to be supportive of someone with fibromyalgia and all of its complexities. Things will need to change in order to create an environment of support and wellness; often, this takes time.

    WORK TO MAINTAIN A POSITIVE OUTLOOK, BE PROACTIVE IN APPLYING TREATMENT OPTIONS, AND ABOVE ALL BE CONSISTENT 

    The good news is that with the right tools and support, the fibromyalgia patient and those who care about them can learn to live a much better and more functional life. My own success led to my desire, even passion, to share what works here on the website. We have to gain a new perspective, stop wishing for what was, and start accepting and mastering what is here now in front of us.

    https://fibromyalgia-6.creator-spring.com/
    https://www.teepublic.com/stores/fibromyalgia-store

    Click Here to Visit the Store and find Much More….

    For More Information Related to Fibromyalgia Visit below sites:

    References:

    Fibromyalgia Contact Us Directly

    Click here to Contact us Directly on Inbox

    Official Fibromyalgia Blogs

    Click here to Get the latest Chronic illness Updates

    Fibromyalgia Stores

    Click here to Visit Fibromyalgia Store